Maya Kowalski’s Lawyer Lays Out Disturbing Events That Led to Mother’s Death After Abuse Accusations
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- Опубликовано: 21 сен 2024
- The attorneys for Maya Kowalski and her family presented their opening statement on Thursday. The Kowalski family filed a lawsuit claiming doctors and the Johns Hopkins All Children’s Hospital pushed Maya’s mother to take her own life. A popular Netflix documentary called "Take Care of Maya" highlights the case. “This was the worst pain in medical science,” attorney Gregory Anderson said when describing Maya’s medical conditions.
#TakeCareofMaya #JohnsHopkins #LawAndCrime
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I was treated in similar ways before I was diagnosed with CRPS. She already had a diagnosis, and this is how she's treated?! These people are EVIL.
CRPS is so painful. I nearly died because the pain was so severe. I couldn't keep food down, I dropped to 80ish pounds. My legs atrophied because walking was too painful.
I'm on a lot of pain killers now, it's the only thing that kind of helps. It's still extremely painful, I'm 100% disabled.
Ketamine comas are a WELL KNOWN TREATMENT for CRPS. The hospital thinks it knows better than specialists?
It's so hard to find a doctor that will prescribe the dosages of painkillers I need. I had to reduce DRASTICALLY after my first pain doctor retired, just to find a new doctor that was willing prescribe opiates. Now I can't do hardly anything that I used to do.
Poor Maya. A girl needs her mother to get through stuff like this.
How sad and hard. I can’t imagine.
Yes, I agree! It makes sense that they initially were suspicious of a demand for ketamine. But beyond that first suspicion once they saw it was documented CRPS it all should have been over. :(
I'm so sorry that you and the other sufferers have to go through this everyday!
It's no comparison to your condition...AT ALL but it reminds me of the time before fibromyalgia was "discovered" they would tell women that they were faking/exaggerating
Blessings to you ❤️
I hope Maya gets justice for her mother! And I’m so glad this story is getting coverage because this same situation could be happening all over the US and likely is right now!
In terms of CRPS patients not being treated, yeah, it is. I have it too, and it's nearly impossible to get doctors to treat it.
@@MissSpaz Likely because they simply do not know how to treat it, and think it's all in the mind of the patient, and therefore their parent... hence why Giada Kowalski was accused of Munchausen Syndrome. So that's their mindset, themselves.
Doctors have massive toxic egos and they can't handle the fact that they don't know everything. They would rather blame the patient for causing their own suffering than admit they failed - or admit the patient knows more than they do.
@@rhondaalbrechtoh yah. The problem will only increase as our population grows older.
Justice for how they treated her too ... horrible
I just watched Maya’s documentary today, it is utterly heartbreaking. I cried so much for this family. The system broke this mother. She fought long and hard but in the end they broke her. I pray they get justice and I pray that medical staff AND social workers would please LISTEN to your patients.
It’s heartbreaking. How hard Beata fought for her daughter - for her family. It’s unbelievable. Beata was the most amazing, intelligent, caring, and all out warrior any person could ask for. She documented everything. Thankfully. Maya must win. John Hopkins should be ashamed of themselves.
They won't because the whole world and system is broken, the medical staff aree paid big bucks and that's all they care about, CPS ,is crooked and evil,they get paid big bucks for kidnapped children true story
Was/ is it on Netflix?
Social workers are not capable of giving medical advice or care they aren't schooled..and they don't have any documentation to provide. They are only socially schooled or directed to deal with a person's social situations..
@@michelemcguire8995yes it is
This hospital is disgusting. I can’t even believe that this was done. The whole medical staff needs to be fired. They operate like a prison/psych ward. If it’s not their way they threaten the family and hold her in a room that’s more like a prison cell. What a disgrace all their names should be publicized.
Oh, and they amputate healthy breasts and genitalia off young children too
Exactly. It is absolutely sickening that those doctors and nurses are still allowed to practice medicine. They are truly disgusting, despicable people. And the fact that some of those doctors continue to hold a social media presence and show no remorse is repulsive. The standard of medical care in this country is abhorrent, it is almost like medical malpractice is the norm these days. So heartbreaking for this young girl and her family. Her and her brother were so incredibly young going through all of this.
The staff that caused this needs prison. This was a form of kidnapping.
Who all think Dr Sally Smith is a criminal? I think she is, she needs to be punished
They need to jailed
This is the saddest story. One fact that sticks out to me is the hospital started off with denying Maya had CRPS and accusing the family they are making it up and so the hospital take her into their “care” but then have the nerve to charge the family for her care and agree that she actually does have CRPS..that really makes me sick. It’s Unbelievable
I hope they win this case.
Oh, brother! When Mya's attorney said the nurses told Mya's priest that her "religious artifacts" were taken away because they believed Mya's mother had been controlling her through religion, that did it for me. This is a very woke/ultra liberal attitude and is not legal or should not be. Regardless of the nurses/doctors/hospital's attitude toward "religious beliefs", they had NO right to interfere with Maya's right to to practice her religion!! That tells me a whole lot about this hospital. The people dealing with Maya and her medical case were/are truly unhinged!!
Oh shut up with trying to bring politics into this. Nurses are almost always republicans, by the way. 🤦🏻♀️. Until you learn what “woke” actually means, rather than whatever right wing garbage you are feeding yourself, you really should try to stop talking about politics on social media.
This case isn’t about liberals vs republicans. Get out of your cult and stop projecting. This case is about a horrific injury to an entire family.
It’s crazy because most hospitals have chaplains and chapels
Anyone that knows religion would be disappointed in those doctors for ever thinking that
Wasn’t one of the nurses or social workers prominently displaying a large cross?
@@BigGoucho yap had one on in depo as she tried to pass herself of as religious I believe the same person that said the mom was using religion to control her
imagine how hard it is to live every day looking like the woman who literally lost her fight in life trying to fight the court system and save her daughters life. rest in heavenly peace Biata !!!!! your family did not deserve this
Oh they’ll say she chose to unalive herself.
😢
Id call that a quiter
@@supme7558 that’s an ignorant thing to say!
As a mother I couldnt imagine one day away from my kids let alone 3 months! And was not allowed to even give her a hug! They villanized her and accused her of hurting Maya. They even turned her husband against her. These people have no remorse! And its not the first time they have destroyed a family! They have done this to many people. Destroyed so many lives.
Terrifying. Absolutely terrifying that our medical system could do this to a patient...to a family. I've been a Registered Nurse for 40+ years, worked many years in ICU/ER environments. I've seen this type of stuff happen. Certainly not to this extent but even on a much smaller scale, it is a nightmare for all those involved. I am so very sorry for Maya.
As I listened, I kept thinking, "Who was the real abuser"?
Not surprisingly to me. A healthcare worker
The mother, a few weeks ago I would never have said that.
@@pennicochrane8886 And why would you say that now? I haven't been watching closely the past few days.
The social worker, the doctor and other medical professionals involved in this case. They are incapable of doing their job. I just hope not just the hospital but also these people get the proper punishment. They tortured the family.
i watched the video without crying until around the 14 minute mark.... I didnt expect but my heart sank when the lawyer said that the doctors texted eachother saying mayas better off now... This really hurt my soul.
This is heartbreaking, because the mama thought taking herself out of the equation was the only thing she could do to get her baby home to get the care she needed!
I didn’t think about it this way.
It shocked me that the mom left her daughter when she needed her most. This makes sense though
That’s exactly what I told my daughter as we watched this! So sad 🥺
@keiravanhanken4876 What's really f'ed up is that they let Maya go home soon after her mom died. The mom knew the hospital, nor the judge was not going to let her see her daughter nor let her go home anytime soon. I understand why she did it, though I don't agree that it was the only solution. She felt it was the only way her daughter would get to come home, and she was not wrong. She got to come home a lot sooner than she would have had Beata not died. She did it so that her daughter wouldn't die in that hospital, because they weren't giving her the correct treatment for her condition.
@@rationalcynic8416Yes, the mother understood how unsafe her child was in the care of such an abusive arrogant narcissistic gold digging psychopathic medical community. She gave her life to protect her child from said monsters.
And the sad thing is she was kind of right! The fact that Maya was released from the hospital 6 days after her mother gave her life says a lot. Absolutely disgusting
These Drs overstepped in the most negligent way. What a sad tragic situation. My son and myself have a rare genetic disorder, been there with the suspicion by medical staff, “ it’s all in his head”. I have been accused of feeding into his hysteria by family. Sometimes the symptoms are legit. Not everyone is imagining or drug seeking!!! I hope this family gets justice!
This is so unbelievably sad. I watched the documentary and cried my eyes out. I was so angry for this family too. The hospital and everyone involved need to be held accountable!
Dear Maya .. you are so loved and so precious please do not despair any longer I pray comfort and calm overcomes you whenever you feel frailty.
Never blame the mother. She did everything she could. She love her daughter so much that she invested her whole self in knowing what's her daughter's illness. She's stressed and tired of these people separating her from her daughter. I hope this family gets the justice they deserve.
She in conversations I've heard has been positive to Maya...
This hospital staff not only need to be fired. Their Licenses need to be Suspened. Or they will just find another health care facilities and keep on their evil practice.
I really hope that Maya and her family receive justice for her mother. 🙏🏽
This is like a horror movie. Maya's mother needs justice and these vile people need to pay.
Please let there be justice for this family! This hospital deserves no mercy!
🙏 Amen
What that hospital did is despicable. I hope they win and bankrupt them.
Bankruptcy and jail time for all the doctors who dictated this this ‘treatment’
Completely agree. It’s so disgusting what they did.
Bankruptcy? 😂 And then imagine all the children who are left without a resource for care. All these comments thinking this girl is better than everyone else is repulsive. Her parents could have asked for another opinion before it got to being hospitalized. The medical doctors questioned the high dosage. If this medication had resulted in her death, all these supporters would be saying the hospital should have reported it.
@@rhondennis979 They have other hospitals. The hospital wouldn't release her and called cps on the parents even though they told them the situation multiple times. Maybe go ahead and learn something
@@TBEMike
They have "other hospitals?" Really? This is a children's hospital. Tell us what other children's hospital is in that area.
My child was only 7 or 8 and I had to bring her to the ER for help. I walked in with her full medical file to show doctors SO THAT they wouldn’t react to her being out of control. ER doctor waved her little sick wand and then everything changed. Dr tried to send my baby girl away!!!! And if I refused I was told I’d lost rights to her. Sick stuff. It took me personally knowing a neurosurgeon on staff to get him to vouch for us and we were released.
What they did to that child and her family is disgusting.
So I had a severe fear of hospitals and didn’t want to be there anymore AND I was told my son was being discharged so while I did keep saying I wanted to go home I believed he was going with me. He ended up showing signs of gerd/reflux and I was discharged and he was kept. As badly as I wanted to go home I did NOT L EAVE THE HOSPITAL ONCE I STAYED IN THE WAITING ROOM UNTIL THEY DISCHARGED MY NEWBORN THE NEXT MORNING. they had already called CPS ON ME FOR ABANDONING MY CHILD BECAUSE NOT EVEN DRUG DEALING MOMS LEAVE WITHOUT THEIR CHILD. I had to have them interview me my family come to my home just to discharge my child that I never left.
They did this again at a new hospital when my son was repeatedly told he was having night terrors that were seizures and he started having them up to 15 times a day as a 4th grader. We took him to specialists … we had tons of appointments and even more set up……. But we were aggravating him and keeping him from school with night terrors when he literally was wide awake, screaming running and falling while soiling himself at school it’s insane.
Did anyone see the videos of Maya playing with her dog and her brother at home?
Look for that video!
There was something wrong with the mother! Munchousin by Proxy I say yes.
@pennicochrane8886 Multiple doctors diagnosed her with her illness. It was not in Beata or Maya's head. You're a disturbed individual, and I hope you never have children. The hospital claimed they made it up but then charged the insurance company for CPRS treatment when they didn't treat her for it, because Sally Smith said it was made up, but three other specialists confirmed Maya had CPRS.
What a heart breaking case, that clinic and the whole chain of people from top to bottom, who let this happen, should be prosecuted for their crimes. That's just awful. I'm about to tear up with the victim in the background around 12 minute mark. Heartbreaking, truly heartbreaking. She went through agonies, her mother took her own life to save her, her family is in intense grief, and above this all, some awful doctors who just couldn't read their own patient records, and officials who fully support them.
The woman in the background tearing up is Beata's daughter Maya. She suffered incredible pain followed by the loss of her loving mother. It's too much. What happened to them is so awful and the hospital cover up is truly evil.
That's the child you're speaking of...Maya
@@bekahe4433 another commenter said that and I already expressed it. She is a strong young lady, and I am amazed at how determined she is. I guess I'll edit my initial comment in accordance. Maya deserves deepest respect and strongest compassion
on the basis of a documentary, not evidence, a Netflix documentary. got it
@@notveryartificial4486 🥰
The documentary about this case is soul crushing
Yes it is as so sad.
What is the documentary called?
@@williamyoste2812 taking care of Maya. It’s on Netflix.
I’ve been crying all day after watching it 😭 no case has ever hit me this hard before
@@notatrollanoob6156 seeing the text messages of them mocking her and her mother infuriated me
Maya we are here to support you! These horrible ppl need to be held accountable! Ive been through this myself with my daughters rare disease! They love using MBP on families that hv kids with rare diseases!
The hospital had it against the mother so bad. Since the mother was a nurse and had knowledge of the medical field and her daughter’s treatment, that bothered the doctors, since they had no clues about this diagnosis.
*I have CRPS also, I stand with Maya*
🙏🏼❤️🙏🏼❤️🙏🏼 *RIP Beata.*
*Justice for The Kowalski Family.*
This is such a sad story, as a mother of two daughters this breaks my heart. Justice for Maya's mother.
Does anyone else feel like this representation is intentionally lackadaisical and possibly purposefully unintelligible and hard to follow? It’s kind of horrifying. Get your ish together, dude!!!
100%! freaking terrible!!
I'm so happy this case is getting the attention it deserves. I hope Maya is able to get justice for her mom. 🙏 so incredibly heartbreaking 💔
Her attorney is not very clear… sounds like he’s drunk mumbling and rambling .. I hope she gets justice
I truly hope everyone will be accountable financially
I pray Maya gets Justice. These people and agencies have way too much power. It's sickening.
The hospital ignored the family and family’s physician. They instigated this and perpetuated what happened next. Then they put CRPS in their diagnosis and billed the family thousands. Ms Sally Smith (doctor term is not applicable) knew she was treated for pain and had all her little minions do her bidding. Why? Mom asked too many questions! Maya and dad and Kyle should get every single penny plus a written apology from everyone involved.
I cannot even imagine what the family is feeling having to relive all of this... praying they get justice.
I watched the document today and I was devastated seeing their situations. I cried in a long time so hard watching a documentary. My prayers for this family to get Justice for Beata.
What was the documentary called 🙂
@@melmel007 “Take care of Maya”
@@emilyjacks6022 yes thanks. I watched it right after I asked cos I found it on Netflix 😃
Even Hospitals are stealing children from parents!
Dearest Maya, I pray Justice will be served..I am so sorry for all your struggles, you are a very Brave young lady.
This lawyer is acting like he waited until the night before to practice opening statements. Get it together man.
The sheer number of people who have commented the same should be a wake-up call to the attorney (if he were ever to read this comment section, which he won't).
These doctors, social workers and nurses, your there to help not accuse!
I watched the documentary on this and let me say, money is not enough! This family needs JUSTICE!
I’m not impressed with this lawyer’s preparation. He sounds like he just got debriefed on the facts of the case today. Maya deserves better preparation from her lawyers. I feel like I could have been more conversant in the facts of the case after watching the documentary.
Totally!! His flow is totally off. He misspeaks and goes back and forth a lot. He’s basically rambling / going in circles at this point.
They just need God and the truth will present itself no matter what lawyer they have.
Poor maya, having to listen to all this. I wish I could tell her that she’s such a strong young lady with a beautiful future and that her mother will always be with her in her heart. I’ll be praying for this whole family and I hope they get justice in this absolutely disgusting case
i don't get why they brought her here if they know being sad makes her symptoms worse...
@@andrabook8758 imo I think Maya being in the background was a good reminder to the jury of the level damage the hospital did. That the mother felt like this was the only way she could free her daughter.
the hospital took their frustrations out on the family, but the mother was not the person who prescribed that stuff to the kid! She was just an easy target and scape goat in this entire circus.
None of this changes the fact that this kid should not be enduring this trial right now... this is wrong on many levels. @@shaun5047
I hope that lawyer ups his game! That was rather dull opening for such an emotional case.
I hope so, too. He talks like he just read over Maya’s case minutes before he spoke. I saw the Netflix documentary and have read about Maya’s case. Nevertheless, I’m having trouble following this attorney. He’s bumbling and stumbling his opening statement.
What do you want him to do put a Clown Suit on? Dull about death and destruction of a you woman's life if perhaps normal. It's not a circus or Law and Order its a serious FACT bases trial about profiteering over deaths.
I really hope he improves in his presentation of arguments!
Maya I hope you win. You deserve to have your mom with you now. ❤ They need to stop accusing people and treating them like liars. First do no harm ! They seem to have forgotten that on their power trip..
Absolutely horrifying what happened to Maya and her family! Should there not be criminal charges?
They finally get their day in court! Bless this father for never giving up ❤
i’m so glad u are finally getting your day in court . my daughter was born at all children’s in st pete and i had problems with them also. they decided not to feed my baby the first night or two even though my milk hadn’t come in yet and she was doing nothing but crying. i had to demand formula for her.
what happened to your family is a gross injustice and ended tragically. i hope the court hears your case and gives you the justice you deserve.
Poor Maya, poor Beata. So sorry to the family, I hope they get justice
I just watched this on Netflix or Amazon prime, it’s absolutely heartbreaking. Thoughts and prayers for this precious girl and her family
It’s criminal what that hospital did and I hope they win this for her and her mother, not forgetting her husband and brother, just finished the Netflix documentary and it’s heartbreaking 😢
I hope this family gets justice! I hope this hospital learns from their mistakes, although I’ll never ever go to their hospital specially with my kids.
I hope the lawyer steps up his game because this opening is so chaotic IMO.
He was okay in the beginning but along the way he rumbling and wasn’t organized.
I wish they could put those doctors in prison, but she definitely deserves the full $200 million to send a message to hospitals not to tear families apart
Yes although they already have $250 million from the doctor lawsuit so I don’t think it’s necessarily even about the money but just holding the hospital accountable is important
it must be if they have already won 250 mill@@Dr_KAP
@stayroxy they got 2.5 million
@@Dr_KAPIta 2.5 not 250
@@MindyMcDonald yes lol thanks for the correction I wasn’t wearing my glasses 🤣
For such an emotional case these opening statements seem pretty dull. I find the lawyer pretty tough to follow.
I'm certainly no lawyer, but this lawyer appears to be a lousy one. Had I not already known o this story and I was a juror, I wouldn't be too impressed.
Interesting though that the hospital billed the parents insurance for 3 months of care with the VERY DIAGNOSIS (CRPS) they claimed she did NOT have and mom and daughter were making up.
That is the downfall to me!
Everyone who played a hand in her death needs to be held accountable
This lawyer is awful. He seems totally unprepared and rambling instead of putting forth an informed case.😢😢😢
Because he doesn’t have one
I followed it fine 🤷🏼♀️
I was thinking the same
I actually think he did a good job presenting and explaining ..
I thought he pervade the contempt he had for the actions of the hospital with the timeline. I showed to me the utter ridiculousness of their actions compared to the completely appropriate actions of the family.
This is an astounding summary! OMG! APPALLING controlling behavior by JHACH.
Human suffering never ends because of human malice
The staff was marking down she had no markings on days when her father was taking pictures of lesions?
Falsifying medical records... Check... Patient neglect... Double check.
I hope this family gets justice 😢 5 minutes in and I'm disturbed by the treatment of this hospital, unbelievable to think a whole medical team would act in this way and not one person tried to protect that little girl 😢😢😢
Justice for Maya, Beata & the rest of their family. I don't like how they zoom in on her while she's reliving this 😢
I'm British and I watched the documentary on netflix, they got to win this! My heart truly goes out to the family this should of never happened
So incredibly sad! To the family I am so immensely sorry for your loss!!
The details of this case are horrific! I hope they have to pay until it hurts!
I have never heard of a specific hospital so far that was so disgustingly corrupt that i wanna throw up 🤢. I hope the hospital they went to eventually closes its doors forever and all the staff involved gets fired. No hospital should ever have this kind of situation happen to their patients especially by the staff.
I hope no one takes their children to this hospital.
I find it so difficult to believe that this happened in America. I hope this is a lesson to other hospitals. Maya is an angel, but now she has to go through life without her mother. I feel so bad for her whole family. They all suffered.
I'm not saying that kids don't fake issues - but I find it hard to believe a 9 year old would fake anything that kept her from simply playing with friends. That's what kids want to do more than anything.
Just watched the Netflix “Take Care of Maya” documentary!! A must-see!! Prayers for Maya & her family! 💔💔💔💔💔
I really feel for people suffering from CRPS and also fibromyalgia. They are such silent disabilities. Not knowing when it could flare up or if someone/your employer would actually believe you must be so horrific. I’m glad they got such justice too. RIP Beata.
I really hate this medical system in the US it’s absolutely disgusting, this poor child not only has to suffer with pain but now with anguish for the rest of her life!! It’s absolutely horrible! 😢 😭
Medical System in this Country much better than other country. We do not SOCIALIZED MEDICINE!!
Thank you for following through with this case!! THANK YOU THANK YOU THANK YOU
The hospital needs to shut down and demolished!!
I cant help but think the role that ketamine has as a GENERIC drug had something to do with this. I myself have had problems getting it prescribed in small doses for treatment resistant depression and life crippling PTSD. The amount of ignorance that surrounds ketamine reminds me a lot of ivermectin. People will tell you it is "an animal tranquilizer" despite the fact that it was developed for battlefield surgery and is one of the MOST COMMONLY USED medications in hospital ER's across the world. I cant help but think if the mother had asked for them to prescribe her addictive big pharma BRANDED opioids this would have never happened. Doctors can't stand that someone might know better than them in some cases, especially when it comes to their own or a loved ones care.
Ego is a huge problem in medical
Nah, no medical practitioners will give you opioid painkillers anymore, either. They just want you to be in pain now and pretend everyone is faking.
The problem is the doctor doesn't get a kickback if they were to prescribe you ketamine, although now that spravato exists there are some that will. When my insurance wouldn't cover spravato prescribed by my doctor I asked her to prescribe me generic version from a compounding pharmacy and she looked at me like I was a criminal all of a sudden.@@Mataylor17
@@Mataylor17Find a new doctor. Sprivato is incredibly helpful for many people with TRD.
Antidepressants don't work very well. A friend tried magnetic brain stimulation (insurance approves this) and that worked for her.
It took me half the video to realise the woman sitting there was Maya! 😮
Amazing it's taken this long to get to trial!
What a terrible and tragic set of circumstances. Certain things you wouldn't believe until you hear it and this is one of them. I'm continually being disillusioned by the medical profession! It's eyes wide open because they're definitely not always on your side!
Omgsh ok I was so confused!!!
I hope she gets everything she wants, needs and more!
You should see how she dresses on social media 🙄 she loves the attention
@@christyl5481 oh please
Is this hospital still running? It needs to be shut down & the staff needs to lose their licenses. I’m disgusted
I am so glad she gets the justice. Congratulations . The hospital and all the medical staffs are disgusting truly made me sick the way they treated Maya and her family as well.
Healthcare in this country is in shambles. I had a girlfriend that nearly died because she was denied treatment at a hospital when she was having severe abdominal pain. They thought she was a drug addict going through withdrawal. She was then taken to another hospital who identified that she used essential oiils improperly that caused severe kidney pain and, had she not been treated that evening, likely would have died from kidney failure. These arrogant know-it-alls who think they have the answers to everything, causing people lasting issues and, worst of all, dying as a result of their extreme negligence. And people wonder why I don't trust doctors. F the medical system and justice for Maya, Beata, and their entire family.
I honestly wish that lawyers could follow up on hospitals where children were separated/taken away from their parents and investigate if the hospitals intentions/actions were legit.
Im so sorry to Maya and her family! None of this should have ever happened! 😢 I myself have Fibromyalgia and many days its hard to even get out of bed or take a shower. Drs don’t even believe what you keep telling them over and over again. They force you to go through multiple tests and see multiple Drs to rule everything else out. Only in the end many years later to be told what you knew from day 1 that you had Fibromyalgia. Our medical system is so messed up it’s so sad.
I also have fibro and they refuse to give pain meds while we suffer and suffer
. They believe its in our head, or nerve pain and they claim painkillers dont work. But the 1 dr that gave them until the dr died i had quality of life! No DR will properly treat a fibro patient.
Emergency departments are the worst. It’s the same here in Australia- If you have anything outside the “norm” they can’t cope and just write it off as a mental illness.
Yes!
@@Dr_KAP it took almost 3 years for me to be diagnosed or even taken seriously for my chronic pain.. with them just taking blood at the ER and saying ur fine, nothing wrong here, Maybe its anxiety! And it used to make me sooo mad as ive had PTSD for 18 years! I kmow what anxiety is and physical pain is NOT freaking anxiety.. they didnt want to look or figure out was was wrong with me, they just wanted me out of the ER so they could charge someone else's insurance for the bed! Clearly its not about health but $$$$ as its always been. But ppl like us who dont have a well understood medical condition with alot of unknowns, are gaslighted, lied too and ignored as if we are lying, made it up or are dr or med shopping which is utterly absurd! My daughter and Maya each have very very rare diseases that have not alot known about it.. it maya's case there is more known about what she has then what my daughter has. The drs are uninformed and their EGO gets in the way (just like cops). How dare you suggest you know something they dont!, how dare you question them! How dare you be educated and well informed and actually be an advocate for your child, or you will be accused of Munchasen by proxy by people who are just trying to get back at you, because how dare you! It happened to me and my daughter 19 years ago and it happened again to biata and maya and it has happened to MANY MANY families who have kids with rare diseases! Its disgusting! MBP is extremely rare! And the parameters they use to "diagnose" this crap condition are the same thing any parent trying to get the correct care for a child with an unknown or rare disease would do! Which is be assertive! Be an advocate for your child! Not allowing medical personel at a hospital to drs office to gaslight you! To opt for finding care somewhere where they wont gaslight you and will listen or a second or third opinion if you come across misinformed Drs, RN's ect..To Keep insisting something is medically wrong when they say their isnt because they dont know! Instead of them trying to figure it out they claim you cause it on purpose or that you magically put it in your chikd head, that you "exaggerate" symptoms!?? Who are they to determine what someone else feels in their body? They are not qualified to deduce that someone is exaggerating symptoms! They claim the "exaggeration" because their EGO was hurt when we put them in their place or insist that they do their job and help our children! ! They call that Dr shopping (when u try and get another opinion or try and find drs who will actually listen & have an open mind to help your child, we are accused of "Dr Shopping") which is absurd because not a single dr knew what my daughters disease was or how to treat it and 99.9% of Drs still dont since there is only 177 ppl worldwide thar have her disease. So in retaliation for them not being able to figure it out & admitting they dont know and trying to refer you to someone who could help, they accuse you of munchausen by proxy! They punish you for daring to question them! And use all the same things that a loving parent would do as "Symptoms" of munchausen by proxy! Its diagusting! They destroy your soul, your family & they continue on forever claiming they were right! Even after medical evidence is shown to them that gee the parent was correct! They wont and cant admit they were wrong or that their EGO got in the way! MSBP isnt a real thing! And its absurdly overly used! Maya represents all of us who had to go through this and didnt have lawyers we could afford to sue, alot of us deserve justice! And i hope maya & her family win and get justice for all of US!
The saddest part is she already was diagnosed and they said it was wrong.. such a heartbreaking case.
Nurses were rotten, and the ER drs werent any better..smh
I just watched the series on Netflix, and I was taken aback by the arrogance of the hospital and social workers. Wow! Good for the family and congratulations to the jury for using common sense, in what was a classic case of an illusion of complexity.
Maya’s Momma is the real Hero. She pretty much …stood in front of Maya ….she took a bullet for her. That’s what a good parent does They weren’t listening. I pray she’s resting in peace now ❤
I just saw the documentary- absolutely heartbreaking 💔 the angle of that child’s hands and feet cannot be faked. That poor girl. And her mother.
Its a docudrama not a documentary
@@supme7558🤓🤓
I know it's not the same but I was diagnosed with GBS 6 years ago and no Dr could figure out what was wrong with me, until many tests were done and eventually a spinal tap, the things I was told before the diagnosis were insulting to say the least, turns out I got GBS from the flu shot.
So the hospital violated her constitutional right to practice her religion & worship
I have crps after a car accident and after 20 different drs, surgeons, neurologist, a slew of tests and er visits, and losing 80 pounds and unable to work, finally was told 18 months later i had a torn rotater cuff and had surgery but crps is even more painful.
In a nutshell this is the state of pain mismanagement in our country. You are met with total distrust and contempt from the entire medical system.
Pure evil what these demons did to this poor family.
I hope this family get justice for the utterly terrible treatment by this hospital and particularly angry, spiteful Dr! Devastating!
Justice for Maya and her mother!
Family
And now, until she is 18 years of age the court is allowed to deny her the only medication that ever really helped her.
CRPS is no joke… I have it and when I have a flair it is awful. I can’t walk without excruciating pain, can’t have anything touch my leg, it feels like it’s on fire while looking like it’s a blue, pink, purple mottling, and then it triggers other autoimmune issues and I am a hot mess. I truly feel for this family and know what it’s like for doctors to look at me, utterly clueless, as to what CRPS is and that it must be fake.
What is the reason that every nurse, social worker, and doctor associated with this case is not put on trial for their behavior the result of which is the loss of their license to practice any sort of medicine/social work or work with children at all?
Mom took herself out of the picture, to expedite aid for her daughter. 😢
No 🙄
Absolutely not the reason
What bothers me about this case, and I pray somehow she makes it through this, is the possible guilt Maya may feel due to her illness seeming to be the cause of all this. This is the part that made me so sad. I really wish they would have let her mom see her at least one, even if it meant she would have someone sitting in the room with her as she spoke to Maya.
This poor girl didn't get to see her mom at all. I guess the only comfort would be the phonecalls she had, but even those had to be brief. But I truly feel for Maya! I feel for this entire family.
Everyone is clearly broken by the event. I have no doubt that justice will prevail, I truly believe this! But I truly wish this family finds peace when this whole thing is over. They deserve it.
what bothers me is everything. why are they making her sit through this. why do people think it takes 22 min to die from strangulation.... why any of this stuff? all of it bothers me.
why attach a saline line to yourself and then kill yourself? ...why do any of this knowing how it's going to impact your kid....all of this is SOOO dark.
Justice for Maya and her dearest Mum
I don't remember the families name but we in the mitochondrial disease group have had drs not believe the families when they were telling their child's illness symptoms.
One was actually taken away from her family a d where she was placed they almost killed her due to her mito health and not.lnowing how to treat her.
She won her court case.
Praying for this family and that the courts hold the hospital accountable for theie moms death