Misophonia Success Story
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- Опубликовано: 19 окт 2024
- Patient has been struggling with a lifetime of misophonia. Here she describes her experience and results of treatment at The Neurologic Wellness Institute. Misophonia is a disorder in which certain sounds trigger emotional or physiological responses that some might perceive as unreasonable given the circumstance. Those who have misophonia might describe it as when a sound “drives you crazy.” Their reactions can range from anger and annoyance to panic and the need to flee. You can read more at her blog: beyondthelanes...
ttps://neurologicwellnessinstitute.com/
this video is really underratedddd, misophonia sucks especially since no one takes it seriously
Absolutely. Its so awful that a single sound can change your mood so much.
Dog barks is one of my triggers, and a couple of those can ruin my day.
I'm even not taking care of my ears (like high volume on earphones and stuff) because I think it wouldn't be so bad to become a bit deaf.
Yes like when you nicely ask someone to stop making a certain noise and they purposely do it again . 😾
@@aleegymnast4468 ikr its ruins my mood so much
“For by grace you have been saved through faith. And this is not your own doing; it is the gift of God, not a result of works, so that no one may boast.”Ephesians 2:8-9“for ‘everyone who calls on the name of the Lord will be saved.’”
Romans 10:13
Damn right
Misophonia has been such an issue for me. I have to cover my ears or walk out of a room when I hear smacking or chewing. (Literally feel RAGE) It used to be only this but now it's any sound effect: trickling water, someone drinking or pouring a drink, certain foods cooking. Not sure why more sounds are annoying. But it's seriously unbearable. I sleep with white noise, that definitely helps!
Could be much worse my poor daughter now has misophonia visual triggers + textual smelling and taste
Take cannabis or aywasca trip
It will get worse trust me..
Tbh pot makes u focus on other stuff. Embrace the rage bud, I love to yell when people trigger it 🤣 I tell people not to take it seriously but when I’m yelling it’s Bc a panic attack. Ill twitch facial expressions right before I get a massive heatwave down my spine, gotta stand pacing and yelling - it feels really good, the relief it brings, no lie. If I got rid of misophonia, I’d miss the feeling of getting the rage out lol, I love itself, kinda addicted. I remember it starting around 7 too, I’m 30 now. If I get it out 1 or 2 times in a sitting then they make the noise again, the feeling doesn’t come back. Embrace it a little guys.
@@yourfinalhiringagency3890 nothing like having a meal with an anarchist.
I'm 12 years old, and my parents might get me some therapy for my severe misophonia, I'm so glad that it helped you out, people who don't have misophoniaa just don't understand how distressing and enraging some common situations are. None of my friends have told me they have misophonia, none of my family members have misophonia, I don't have anyone to talk to and relate to about it, school is hell when people are chewing gum, popping gum, tapping, smacking lips, I recently had a minor panic attack from it, that's what brought its seriousness to my parents' attention. We might even be able to get my school to let me we earplugs in lesson. I Am looking forward to being able to do something about it. This video was brilliant. Thank you for opening my eyes.
Can you please share with us some of the exercises you did by yourself without the fancy machinery? Sharing those exercises with others will give people who have misophonia a chance to potentially improve themselves at home.
Please tell us about that exercises I am so suffering
@@annab4081 I'm suffering too :( i hope we both survive this crazy pain.. i heard there's no cure
@@lilly3680 yes I know no cure :( it’s so painful but hopefully one day they will find a cure
They won't share, they want you to go there or contact them directly. They choose marketing over performing a public service.
@@rachelhyde3751 i really hope so
I’m bawling as I watch this. Thank you much for sharing this. I’ve struggled with this since a child as a child as well. It had affected my relationships. I have hope that I can heal from this. ❤
I am crying too… Reading the comments, I don’t feel so alone 😢
Misophonia has ruined my life. No matter how much progress I make, all it takes is a coworker who chews with her mouth open or a neighbor whose dog repeatedly barks to make me revert to that primal state. The only solution is poking out my eardrums, but then I’d probably be driven crazy by vibrations. People who don’t suffer from this cannot relate. And our laws are not designed to take our need for quiet into account. If anything, lax nuisance laws have probably contributed to the problem. Every time someone drives buy pounding a heavy subwoofer I feel like I’m in a war zone. And every time I hear someone’s phone on speaker (which is everywhere) it’s like someone’s shoving needles in my brain.
The eardrums part is exactly how I feel. I hope you find some help. I’ve been unsuccessful so far
I can totally relate this feeling right now. My apt is right at the busy street and I can hear everything, Having trouble sleeping at night plus I have loud neighbors who get in and out their apt all night and all morning with friends and fights and drunks, I wish i just have lots of money where I can move where I want. I suggest who are bothered by noise cant sleep. Should sleep in a sealed capsule so you cannot hear any sound .
Hey I feel you. At least know you’re not alone. 20% is not a small number of people. Unfortunately, society has given us zero power and we are at the mercy of others unless we resort to revenge tactics, which seem logical given there’s very little recourse and many people are too self-centered to even try and compromise, as in a situation with a neighbor.
@@duchesspodcast Thank you. Unfortunately 20% is not the actual percentage. It’s more like 3%. The 20% comes from surveys that include people who think they have misophonia because they’re annoyed by one or two common irritants like nails on a blackboard. This obscures the real pain and suffering that living with a constant fear of triggers produces.
@@nathanlafontaine3258 Ahhh, that makes sense! Yes, immediate rage in response to particular noise isn't the same!
Please release something that people with misophonia can do at home. It is hell living with this syndrome.
And - even harder trying to explain it to other people. I live in my headphones and earplugs…
I really hate mouth noises to the point of being almost homicidal, but sometimes I wonder if the person making the noise is at fault, I mean there has to be a point where it isn't acceptable to make certain noises like sucking on bones very loud or sounding like you're making out with your food, I feel like people should excuse themselves after the fact or at least say "bear with me for a second please"
Same here‼️
To the point where you look at their mouth and wanna punch it, choke em out, then maybe rip the jaw out, yeah same. 🤣step 1 tell them about urself and miso, 2 describe the panic attack it starts and that it’s not personal , 3 relieve all pressure by yelling pacing and throwing fists. Yell exactly what’s bugging you! Then I swear to god you’ll feel real relief when u sit back down and can breath again. If they go back to the noise after I’m almost always fine, it’s even funny sometimes. Some people manage to earn my utter hatred however for their hard S sounds and having too much spit around their lips when they talk. Those people are utter trash, don’t associate. Problem solved. Love urself bud, embrace it!
I think my misophonia started when I noticed that the people around me were indifferent to my suffering. Even now they consider it a whim.
Isn't it odd that even reading the words can set you off. And the goofballs that say they can "cure" you? Nope. Still "hear".
Thank you for bringing attention to misophonia.
Only someone who does not suffer from misophonia first-hand would make a “commercial” suggesting an actual solution when in fact they are merely experimenting with different hypotheses.
EXACTLY!!!!
It’s better than nothing. You can lose your kids because of it if you are unaware
The Unabomber had all the symptoms of misophonia. He moved to Montana off-the-grid to escape trigger sounds but was still by the sound of overhead jets and his neighbors allowing the forest around to be cut down with loud equipment. He also repeatedly complained in prison about a noisy prisoner above him and the guards playing their radio outside his door. His grievances were ignored and he committed suicide. Misophonia is way more serious than the professionals are letting on. There are children on Reddit announcing their suicides. I have to wonder if those of us trying to bring attention to this disability are not on a government watchlist. They have to know that this thing is killing people. And society is only getting louder.
@@nathanlafontaine3258 I had no idea about the unabombers story. Most of us have the self control of steel to survive in such a noisy world. Oddly cities are easier for me to live because it becomes white noise but not super big cities for sure and I love camping and the morning sounds of birds. So it may explain that we are bothered by often times manufactured noises or non nature related noises other than of terrible chewing
@@nathanlafontaine3258Wait what?Can you give me the reference?
Thank you so much for sharing your experience, it has been a struggle of mine for years and hopefully I can overcome it one day
This made my day thank you for sharing your story!
It might help folks to think of this as a brain misprediction error. Small dosing and messages of I’m safe while hearing this can retrain the brain. She is right on to keep push by and it’s normal to be tired when changing neuroplasticity in the nervous system. Somatic Experiencing May help folks as you lean into changing brain response.
Thanks for sharing how to take control and get back to living life. Very brave of you!
Cool story but why not put a warning before that chewing sequence it rlly changed my entire vibe about your truthfulness.
Iv had it all my life and I feel its affecting my relationship with my family and my mental health.
After two years, is there an update on the effectiveness of the treatment? Considering this as a therapy for my daughter, but want to know the long term effectiveness.
My mother needs to watch this 😂 I never realized until today her anger towards hearing chewing, nail picking and breathing has an actual name
Loud noises are what makes me angry. From morning to late at night, people here seems to like loud noises. If is not loud exhaust, motorcycles or loud car speakers, even churches are loud here in Puerto Rico. This is hell, and it won't matter if you uses ear plugs or earphones. Even people without misophonia, will propably end up having it. This is seriously insane, and government and their laws are dumb. I've been here for one and a half year and im going insane. Thankfully im moving soon 😡
I am sorry to hear that. Misophonia is a terrible condition and we need to understand it better to help patients around the world.
Noise pollution laws are in general are quite pathetic and it's why people lose it with noisy neighbours etc...you do eventually take the law into your own hands. I suspect your problem is not misophonia though
It was exciting to see cutting-edge tech treatment methods based on solid science.
Where is this clinic located? Misophonia has been the one thing that has kept me from going out in the public to talk to people, hold a job and even have a relationship
Thank you for sharing your journey. Hopefully we can continue gaining greater understanding around misophonia and help others know that challenge it presents.
I have this with typing... and work in an office. Listening to other people type drives me insane. I literally sit at my desk blasting music in one ear and plugging the other. It makes getting things done nearly impossible. My employer will not authorize working from home full time (we're on a hybrid schedule and I am on a team with mostly remote workers).
I will say, one thing that helps, very, very slightly but it helps is if I make an effort to talk to the person next to me or around me before I start my day. It's almost like putting a person to the noise, very very slightly takes the edge off. unfortunately I cannot talk to everyone around me and don't get the chance to start the day talking to the people near me (coming in at different times, meetings etc) and once the noise is in my head, it doesn't matter if I talk to them or not. It's so hard to deal with this.
I'm in exactly same situation. I'm trying to get one extra day at home but they asking me to try CBT and visit from GP etc and I know neither will help. I find talking to colleagues distracts me from the typing and mouse clicking noises too. It's hard as no one understands what I'm going through.
@@JenFish_1 I agree. I've only felt comfortable sharing this with certain people in my life because I know how it sounds but it is a major problem for me. I agree, talking with people around the office does help a little bit I've noticed. I got approved to use two sided headphones instead of one on days when I'm in the office and that's helped a lot. I can type with two hands again! Good luck!
I have the same issue with typing and luckily was able to move away from the person. I couldn't handle the loud headphones any longer. They thought I was nuts, understandably.
THIS!!!!
Mine used to be awful growing up. I always had to eat dinner with my stepmom and she would chew so obnoxiously I was filled with rage and wanted to run. It made me eat my food as quick as possible to get away. It was hard to explain but considering my mental health was already downplayed, I knew it wouldn’t have mattered. I wish I knew more about it back then. I used to pinch myself hard to get my anger out and not have an outburst. It was torture but thankfully as an adult I can manage it more than in the past.
IF YOURE GOING TO MAKE A VIDEO ABOUT MISOPHONIA, HAVE A TRIGGER WARNING BEFORE CHEWING SOUNDS, OR DONT HAVE THEM AT ALL!! Cool video though, this treatment seems like it could help.
EXACTLY. What the hell, video???
I’ve struggled with misophonia since I was young. What is so interesting to me is that I struggle with balance. I’ve practiced yoga for years and balancing on 1 leg no matter how much I try is nearly impossible. Just wondering if balance problems are common with mispohonia. Is misophonia associated with childhood trauma as a trauma response? Thank you
My 15 year old suffers with Misophonia.. it rules her life 😔
Mine too.Only parents understand the pain and loss.
My parents don't. I swear they think they are doctors. I'm 41 and they still try to tell me it's all in my head.
So I just say, "Yes. Literally!" lol
@@retard_activated yeah mine call me crazy
Me too anf my parents take it like a joke and do it on purpose and i hate tge sound of the birds it too hard cus we can't stop a bird
clocks are a big thing for me and i can’t leave my room because there is one in every room downstairs, my mom doesn’t take me seriously at all and i’ve been talking about this for about seven years, since i was 9.
Incase anyone was wondering, this is known as going to the chiropractors. There are no specific exercises to share, and its largely regarded as psuedoscience
Hello. My name is Yana. I live in Moscow . I am 32 years old. I have a generalized anxiety disorder. Also I have misophonia. I suffer so much because of misophonia. I can’t live in my flat in calm and safety because in different times I hear different sounds which cause my anxiety or avoiding or disgusting feelings from elevator to my neighbors who like to watch tv very loud. I want to know more about treatment and how to stop my suffering. I hope so much that people will find a solution cos there is no enough information about it. Please help me if you know the treatment. How it might be correlated with my disorder. Also I want to know advice about how I can stay near with my parents which do the cough sound and they can’t control it. But I love my mommy so much I want to stay with her more often, recommend me please the exercises to handle being with my mommy please! Which therapy cbt or smth else may help better. Will wait your reply!
Thanks for sharing. I've been struggling for years. Been homeless several times and have moved many, many times, thinking it's other people. I am experiencing everywhere I go my ability to deal with people and sounds has gotten worse. I'm tired if feeling hostile and often retreat to nature, but then something disturbs my peace. It feels like a curse that keeps following me. I ask God all the time, Why, Why, Why? Why would you have me go through this?
Fascinating! Thanks for sharing!
I fixed my magnesium deficiency, as extremely low mag causes massive noise sensitivity
Did your misophonia improved after this?
@@tlloreti yes! I apply magnesium lotion once every 2 hours on the dot when I'm awake
@@halfaberry7775 oh wow.. thank you for sharing that!
Why the hell did you make the background sound so bad for this condition misophonia
A response would literally save me!
So I heard of misophonia for the first time and how sniffling drives someone absolutely crazy. I never once have cared about someone’s sniffle and have never really noticed it. Now literally in the same day I notice every single sniffle and when I hear it, it startles me. Now hearing it draws my attention each time and I had never noticed how many people were sniffling in a classroom and it’s kind of bothering me, though I wouldn’t say it’s making me mad. There is no way I could have just heard about misophonia and got it that day right? Also what should I do before it’s too late and that becomes my normal response?
It is unlikely you developed misophonia as a consequence of learning about it. However, misophonia is still not completely understood, including the mechanism of why people get it. So its hard to say many things definitive in regards to misophonia and treatment.
To me this is more of an obsession about noticing things (OCD related) than misophonia. The response would then be to try and notice it, expose yourself to the fear (because your brain is telling you NOT to notice it) then over time it retrains your brain to be bored of it again.
Thank you!!!! They treat concussions (5-6), PTSD raped by D.I., and misophonia is which I have all 3, but don't have the money to go there and obtain treatment.
Ear plugs are my everything ❤️
Hi, I am so happy to have come across your video. Just like you I have been suffering from age of 6ish. I have tired hypnotherapy etc nothing has worked. I get irritated by my daughter drinking water. I feel I am on an edge all the time. I really want to go to the clinic and sort myself out. But I live in London, so not so accessible. After a year of being there , are the exercises still helping you? Are you much better and would recommend it. As I have to take annual leave to come to US. I would be grateful if you could let me know. Thanks Gilda
Medical system has ruine my life not not knowing how to treat my ear problems
Thanks for sharing your experiences!
People talking in a quiet railway carriage, next door dog continuously yapping/barking, selfish types who have earphones which you can hear from the outside (kinda defeats the object. ) all these - make me anxious and suicidal
Stay strong. My go to for dealing with noise issues is listening to something I want so it means earphones. Of course you do get sound leakage from some
Can you provide links or titles on the published research that shows that the methods you are using are legitimately effective for misophonia [i.e., are more successful than a placebo in randomized, double blind studies that are peer reviewed, like all valid science, to rule out placebo effect, spontaneous remission, etc.] ? If you have a proven treatment or cure for misophonia, that would be very much of interest to the research and clinical communities.
What kind of disorder is it if I cannot tolerate interruptions? Not just of sound but of things flying in front of me or moving by too. My brain can't filter them out. They cut the chord in my mind especially if I'm in the middle of a thought, and I can't recover from it without exerting effort to erase the sound or interruption from my brain. What is that called? I can't find it on google.
misophonia can have visual trigger aswell, i hvave to block out my periphials from people. its weird i hate it so much to the point where im so focused on it so its impossible to ignore. so i isolate myself
Anger/annoyance from visual triggers is called Misokinesia
IMO: this guy effectively sold her snake oil. i'd like to hear what she has to say now, years later. any misophonic knows relaxation helps. she wasn't cured, but just had a new strategy - or maybe two -- things she could have learned online for free.
I was yelled at because I told them to be quite when they chewed and I get blamed for everything and say calm down but my parents don’t understand:(
Same since I was in elementary called weird for it...it’s frustrating
Same…
Hello! I have a question. How would I get diagnosed with Misophonia? Where would I do that? Thank you so much!!
There’s no agreed scientific criteria so a diagnosis is based on reaction to sound. A trained audiologist could help you with that, but if you get enraged by people lip smacking, chewing and breathing its most likely misophonia.
@@disasterology_7477 you're lucky😊 my parents or siblings are not taking it serious
@@lilly3680 Jesus bless you
@@lilly3680 I pray for your healing in Jesus name
I suffer from what I know about myself. Only some people annoy me when they eat, while others don't. I live in the Balkans where people are healthy and strong. After hard physical work, for example working in the forest where you hand over 50 tons in one day, the feeling of misophonia disappears. The feeling of mythophony is strongest for me when I'm doing nothing. In general, when you don't do anything physically, you become nervous, you are dissatisfied, and misophonia further increases this. My advice, when you feel anger from misophonia, do heavy physical work.
I'm physically disabled and can't.
what if I can't tolerate any sudden unexpected sounds and movements? not just chewing or clicking? what is that called?
Heightened Aniexty that sounds like
It still might be misophonia. I have it and certain movements trigger me. Not just the sounds
@@aleegymnast4468 my daughter is the same. Sounds and certain movements. I wish I could do anything to help her. 😞
For me it is sounds and movements.
The music is too repetitive, and gives me anxiety. Loose the music, can’t finish watching the video
Bruh he spun her left and she went “I feel different”
She’s so beautiful. She must have been a beauty queen.
And how does one pay for this type of therapy? Overall cost?
Why put such loud and annoying music over a video where you know most of the people watching it will have mysophonia?
i really cant tolerate fan and clock sounds. it really makes me so angry and anxious even when i sleep i block my ears with a pillow just to avoid hearing fan sounds. so is it also misophonia? i am really really worried about how will i survive in this world if i cant tolerate regular sounds like fan. someone please help me and tell me that should i visit a psychologist or any other suggestion?
isn't that machine gonna give you motion sickness? can one just rotate in place anywhere?
I have two ppl in my family who believe the have misophonia. How do you get diagnosed and how much is treatment?
I personally believe that misophonia is basically the opposite of empathy.
With empathy you feel others pain and suffering almost willingly
Misophonia you are unintentionally having pain and suffering caused by other people.
There's a dysfunctional imbalance of the brain. It can be fixed
I cba watching video, did she cure misohonia so i know whether or not to watch is it a valuable vid?
Wow fantastic
This is a real issue and condition.
Nobody is taking notice or listening- maybe they will one day in 30 or 40 years.
Video title is highly misleading.
I wonder if she has undiagnosed migraines too? (I was thinking about the pressure she was talking about around the forehead).
I have both misophonia and chronic migraines.
@@Lesalyhow’s your misophonia and migraines
@@mv8908 Doing quite well, currently, thank you for asking! My Headache Specialist (A Neurologist who specializes in Headache Disorders) is a wizard. I still have the phenomena of Phonophobia (increased sensitivity to noise) during migraine attacks, but that is very common for many with chronic migraine.
The misophonia began in early childhood, took a hiatus for many years, and then it reared its ugly head again during COVID-19 Lockdowns. The trigger during the lockdown resurgence is not happening in or around me anymore, but I definitely understand I am not immune from another flare-up potentially occurring again.
Thank you so much for asking!
@@Lesaly I'm Very happy to hear that you're doing so well. May I ask what treatment or meds helped you with your migraines? Ty 🥰
How much it costs??
Why have a back ground noise that triggers me ??
Hello, I have misophonia. Do you have any partners in South Africa or know of anyone in South Africa who can do the same treatment for me?
The background music is so distracting to me. I have to focus so hard to pay attention to the video.
Misophonia is dring me crazy, I honestly don't know how my husband has put up with me for nearly 42 years, he can't eat or move next to me at times, I think am getting worse the older I get 😢😢 x
Amazing
Oy, this looks expensive. Is this covered by insurance? I'm getting to desperate level of needing help with the misophonia. It brings challenges to my marriage (my husband is a trigger), and I'm concerned My unborn child will be a trigger smh.
Please export this to the UK.
Getting on a plane is torture for me, especially a long flight!
I now have a sibilance trigger. The worst part is that my ‘triggers’ focus on my wife, which quite frankly, is cruel.
So, for example the S words she pronounces because of sibilance (which is no different from others) injects me with a flight/fight response because of the irrational stress/anger response to it. It’s like a surreal internal rage. I have to wear headphones a-lot!! It’s not ideal but thankfully she seems to love me enough to show some understanding! It just makes me feel like a weirdo so I try and overcompensate with hugs etc!!
I’m 42 & still scares me. Headphones combined with white noise helps to take the sharpness of the Sssssss
Tell your brain that ki voice kuch nahi bigad payega Mera n dnt react dnt get panic just calm down agar aap react he nahi kroge toh thoda sa farak toh milega heeee
Is there a similar cillinic in canada?
What part of Canada? We have Canadians travel to our clinic commonly, however, there are some clinics who have some similarities to our clinic in Canada, depending on the location.
@@TheNeurologicWellnessInstitute toronto
I love you!!!!!!! 7 that is interesting!!! Me, too!!!! Thank you!!!!!!
“For by grace you have been saved through faith. And this is not your own doing; it is the gift of God, not a result of works, so that no one may boast.”Ephesians 2:8-9“for ‘everyone who calls on the name of the Lord will be saved.’”
Romans 10:13
this lady has a serious bakery
Headaches and not from the concussions that I have had!!!!
EAR PLUGS WHILE ILL
You have so much noise in the beginning of your video, so sadly I could not watch it.
You smacked!!!!
I enjoyed listening to the information, but your voice triggers me…😢
im poor and mentaly ill (misophonia)
UPS AND DOWNS
Making a lot of mouth noises for a large audience with misophonia
I have this and its awful
So there’s no treatment so there are no success stories and this is a load of shit. You can spin all day like laundry in a washing machine. Chiropractic neurology is pure quackery.
Yes there is. It’s a simple retraining the limbic system. Have hope! The brain is very malleable
@@carlykamps411 You can’t “simply retrain” a neurological disorder.
@@teddmented No treatments claim to completely cure misophonia- but there are ways to greatly reduce the corresponding response and anxiety that follows a trigger noise. I’m a living testimony. Chewing sounds used to put me into a rage and now I can even say it’s pretty much close to neutral. Even though people may always have the tendency or predisposition to be triggered by a sound, they can gain control of their responses.
@@carlykamps411 No treatments have been scientifically shown to work. Certainly not through a chiropractor. There are ways to learn to cope with it, but I call BS on any chiropractic based relief. It gives people false hope.
@@carlykamps411 what did you do ? Pls help
No cure for misophonia
Yes there is. It’s a simple retraining the limbic system. Have hope! The brain is very malleable.
@@carlykamps411 bet you don’t have it👍😒
I don't think so
Waste of time
Garbage
Other people's lack of manners and bad habits are NOT my "mental health issue".
I think that's an issue that's not really addressed...noisy people who could not care less and no decent regulations to deal with them
My 15 year old suffers with Misophonia.. it rules her life 😔