They use these things such as Scalpel with blades, Dissection and cutting scissors, Retractors and handheld clamps, Needle holders, suture material (absorbable and nonabsorbable), and forceps (fine and toothed), Diathermy device, Bone instruments (eg, saw, bone nibblers, osteotomes, mallet, and curettes), Irrigation NOT a machete
I went to school with Ashley, it is amazing her spirit and tenacity shines through. I Hope they find ways to help those with FOP. Amazing job Inside Edition.
Yeah, there is active medical trials. I'm participating one and it seems to be working. Too bad corona paused it for a moment and my condition got worse. Now i can't even walk normally anymore.
@@schizogaming420 Doesn't mean you should brush off your own issues either, I think is what this person is trying to say. Yes they do have it worse but it doesn't make your own situations irrelevant
I normally am not so emotional watching videos like this, but this really broke me. We take so much for granted. Watching these three really changed my outlook on life.
The amount of respect I have for these people is unthinkable. God bless em, and I hope they continue to live strong and positive lives in the face of immense adversity.
@@hannemanisunderrated5610 "Hey there humans, I've invented a fantastic new genetic mutation I want to try out on you! ... What's that? ... Oh, for no reason in particular."
My cousin was diagnosed with this a while ago, hes about 16 now. They said he’ll probably live until his forties, but as of now, he can’t lift his head straight up or move his arms too far. I feel so bad for him...
This video highlights just how unbelievably cruel and unfair life is at times. On a positive note, those peoples strength in adversity is incredible, and I salute them from the heart...
I feel so sorry for the one lady who was misdiagnosed with cancer as a child, so they removed her arm. I’m sure her life is difficult enough as it is, nevertheless with a missing limb that shouldn’t have been missing to begin with
@@icantfeelshitatall6285 I completely agree. You work with what you have at the time. But hindsight is 20/20 and knowing what she knows now, I’m sure it just makes her sick
I know most of u believe in jesus and i wont fight that contiue that im not trying to change yoirt religion and not beong mean so dont take it offensively. But the god i believe in can tale care of all problem he coul make nobody die and he could make all bad things go away, but think about it if all things were good the world would probably be overpopulated which would have to lead to bad thihgs like days were ppl can kill anybody they wanted. But even if that's not the case, only Allah knows.
Seeing the couples makes me happy, that those sweet men would take care of them so much and tend to their needs. It's just heartbreaking to see what these people have to go through every single day
I’ve never taken my normally functioning body for granted and I never will. I admire these people for managing to live to their fullest potential, an lead a somewhat normal life and find solutions to their everyday struggles. I can’t imagine what it must be like. Wishing them nothing but the best from the uk ❤
As someone who works with disabled folks, I can tell you that they don't want our admiration or respect or any of that, they just want to be treated like people.
You gotta really give these people props for having such resilience, to not be crushed under the weight of what people might think of them, if they had been any mentally weaker, no doubt they would've had committed suicide by now.
Seeing them all dancing on the floor and having a good time made me realize that life is really meant to be celebrated, no matter what your predicament may be. Don't you think so?
Happens a lot actually. A doctor is just a hub of knowledge. They can't always know if they're right or not. They have to make guesses a lot. FOP is a rare disease. A lot of medical breakthroughs have come from doctors making mistakes. Trial and error.
I can understand how it was misdiagnosed. There is a growth in someone's joint. Is it cancer that could spread if not removed, or is it that super rare bone disease that only effects 1 in 70 million?
a local buddy has this, permanently stuck in a pretty normal sitting position. fortunately it was discovered early enough for him to choose the desired position to stay in. young lad has pretty normal interests and stuff, i can't imagine how rough it is.
“With FOP sometimes all you can do is laugh, otherwise you want to cry.” Seriously this breaks my heart. God bless these people. It must be so hard to live such a way. It’s so kind of their loved ones to care for them. The fact that the doctor gets to personally know all his patients warms my heart.
Okay, that 70 year old in the wheel chair dancing to the music by rocking his wheelchair all crazy-like is how I want to be when I get older. He's having fun any way he can and I absolutely admire that.
I'm amazed at how these people have the will to continue. This is absolutely heartbreaking to see. I wish for them and all the others suffering with this disease the very best in life!
They're stronger than I am that's for sure. There's no way I could live like that, I'd be playing Russian Roulette with a fully loaded revolver in no time
My heart breaks for any poor soul having this horrible disease, especially children. It doesn't even seem fair anyone should suffer like this . We live in a bad enough world having such a disability makes it worse. Bless anyone that doesn't look at their disease as a bad thing but sees past it and sees them as normal as you and me. To marry that lady and he is normal I really like that.That's what love is all about. Wish more people could be like this instead of being so vain and only worrying about looks.
I have a question, this is kinda random but I just want to know everyone's thoughts. If during pregnancy you knew your child would have this disease, would you get an abortion to "spare" them?
@@johntucker3695 As a mother of 3 I have to say that's a hard answer. If they know 100% my child would have this and their life would be horrible, maybe just maybe. I really don't know if I could do it though. You would think that maybe soon they will have a cure or a med that will help them not get this bad. That may be enough to keep you from doing anything drastic such as an abortion,I think.
@@blondechick9804 Yeah, I had similar thoughts. I wouldn't want my child to go through a horrible life like this but I don't know if I would be able to do it because of something they would be born with. Because you kinda have to think that there will be a possibility that it's not so bad or that there might be a cure. Anyway, I was just wondering what your thoughts would be on a topic like this.
Seeing these people struggle with this brutal disease is absolutely heartbreaking, seeing the kids is devastating. I hope there’s some progress to cure this genetic demon
It might be possible to break the bone fusing the joints regularly but a true cure would probably require some way to make the genetic defect not create bone everywhere.
They're working on a treatment so they don't have to do what they do with other conditions which is constantly snap the bones at the joints and/or have multiple life threatening surgeries done all over their body all at once with tons of surgeons surrounding them.
I dont think of myself as a sensitive guy but seeing those sweet kids having so much fun dancing and thinking that a few short years from now this might not even be possible...that hit hard
My dad died of ALS after 3 long years and I thought that was the worst disease you could get. Seeing this makes me miss him so much and feel so terribly for those going through this.
This makes my problems look insignificant. I admire and respect these people's positive attitude. After watching this, I don't feel I have the right to complain about much. It really puts things into perspective.
I'm 41 and healthy as any friend around my age. This reminds me to be gracious for that fact. So glad this affliction was handled with so much optimism. I can't say I could do the same. Bless you all.
I love how she still said that God allow her to still enjoy the little things. I just made me want to be more thankful for the things that I do have in my life.
grateful??! also not to be so, my god......is a terrible disease, i repeat so....TERRIBLE DISEASE FOR LIFE! so grateful of what, i don't get it, it's not a cold or a broken arm.
One lady with this condition donated her body to her Dr so other Doctors can see how FOP attacks the body. Her zest for life was incredable and inspiration.
@@eli_xikmqq4104 Not this kind of thing, you can't. That's what I don't like about these various "Try on a disability day" events, where people have to go around blindfolded, or with one arm tied behind their back, for example. That's supposed to teach them something, but mostly it reinforces the notion that it sucks to have a disability. They learn nothing of society's response to it.
Just because these people have a disease that makes their lives miserable, doesnt mean we cant complain about our lives and feel like were having bad days. Two different things that dont have nothing to do with each other
@@PTS-Maid i can complain and all, but i should know i have it better than other people. Its not bad to realize that you have it better than others....
@ThatOne yes. It’s okay to reach higher. But the point this person was making, is that you may already have a privilege that some others don’t. So cherish, and be thankful for what you have at the moment. They said nothing about not being able to want more. Just be content with what you have, since not everyone can have that privilege.
@@Fau. jeesh dude that's horrible, but as well your living and that's a great privileged live your life as much as you can, unlike these people tho they have a lot in their plate and can't always do the same thing as you
Like, appreciate the fact that you can see, hear, walk, talk, and eat. the things u don't usually think abt when u think of things to not take for granted
My wife had CRPS, the world's most painful disease, I loved her with all my heart until her tragic and sudden death in early 2020. She was the strongest person I knew, and I will always love her.
@@gilbertsantacruz1397 whatever is waiting must be a lot better than what we got going on earth. People got fop that physically makes your skeleton hard as a rock so i'm hoping at least for them there is blessings on the other side for living through this hardship.
Next time I start in feeling sorry for myself over something silly or want to give up; I will remind myself of these brave souls who have all of my admiration and respect.
I was diagnosed with Transverse Myelitis at the age of 14. I may have spent the last 25 years in a wheelchair and unable to walk, but it's NOTHING compared to this. My heart aches for you guys but I know you're stronger than I could ever be!
Same here, i have been battling with Ankalosing Spondylitis for 6 years. The condition fuses the spine together. No where near as bad as these people. My heart goes out to everyone battling a condition.
Hearing Kathy talk about how she thought no one would love her because of her disease and how she found someone who did is very sad and telling. Not only does this create physical problems but issues in your love life, imagine how depressing and lonely, most of these people never find a partner.
@@foteinimanou5516 As politically incorrect as it is to say that: this is a valid concern and we shouldn't just dismiss it because it might be hurtful to say. Life itself can be hurtful, it hurt these people by giving them one of the most horrifying diseases imaginable and the last thing humanity needs is more of this
Life’s happiness dosent revolve around getting married. these people seem happy just chillen with their friends and family who respect them. they dont need a significant other to make their lives complete. Life isnt just about getting married. ☹️
@@hillaryhonde8425 That was true up to a decade ago but now we (so-called religious people) know of the procedures medical professionals employ to harvest viable stem cells, in which they do not involve human embryos/fetuses/babies, so all is good. Get those stem cells replicating!
@@Drakijy Adult human stem cells cannot compare to embryonic stem cells. There is nothing really to compare it to. We could discover so many more ways to save people from diseases such as this, prevent miscarriages, fertility issues, and birth defects but religious people still will not allow embryonic stem cell research. Heck, we know that we COULD cure Parkinson's disease if researchers were allowed.
@@michaelmckinnon1591 maybe it helps them stay "loose"... If I had this disease, I'd try to move in any possible position at least a couple of times a day.
@@michaelmckinnon1591 ... no?? they want to do normal things that people able to move does, i'm sure they love to dance even if it hurts. i don't see it as a bad thing, they were having a great time
I feel so sorry for those who has suffered this terrible disease they should live in normal life and they should be taken care of by their families and friends
![A Boogie Wit da Hoodie - Body (feat. Cash Cobain) [Official Music Video]](http://i.ytimg.com/vi/RMT3AlAs0r8/mqdefault.jpg)
That thumbnail doesn't even look real.. like someone took an eraser in photoshop to her.
Heartbreaking.
I’m going to hell for laughing when I read your comment
Anthony Valles 😂
@@anthonyvalles4386 see u there 😩😩
it actually sad:( i thought it was photoshop :(
looks like doodle bob started erasing her
Can you imagine being misdiagnosed and someone takes a machete to your arm.Sad
MrMelgibstein i don’t know how people amputate but I don’t think a machete is used
@@auxiliomedesmayocallesevie1718 in some places
Løcø•Cøcøa i lmao pinché girl lol jkjk
What’s even sadder is amputation makes movement go quicker so those doctors could literally have taken years off her life
They use these things such as Scalpel with blades, Dissection and cutting scissors, Retractors and handheld clamps, Needle holders, suture material (absorbable and nonabsorbable), and forceps (fine and toothed), Diathermy device, Bone instruments (eg, saw, bone nibblers, osteotomes, mallet, and curettes), Irrigation NOT a machete
"Be grateful for your health. Use it to accomplish your goals and do good"
My brother tried to do good and accomplish his goals and he ended up getting tuberculosis because of a gang in Mexico after he helped a homeless man
@@connordendyhow is he doing now ?
@@connordendyo damn is he okay?
@@ITSFALLIXIX he’s dead
@@connordendy oh omg I’m so sorry for your loss,that must have been very hard for you
I went to school with Ashley, it is amazing her spirit and tenacity shines through. I Hope they find ways to help those with FOP. Amazing job Inside Edition.
Wow really?
Yeah, there is active medical trials. I'm participating one and it seems to be working. Too bad corona paused it for a moment and my condition got worse. Now i can't even walk normally anymore.
@@VaultYT. yep, i was the school
Did u get the FOPussy?
Its really sad that there is not a cure for this....praying for all those people
》Venom《 - maybe one day we’ll find a cure :)
joek money did you just say the SYNDROME was man made? Or am I mistaken and you said the cure was man made?
you know whats more sad, there is children
No money in a disease affecting a small number of people. Companies wont invest for research for small potential returns.
Maybe surgery where they remove the bone but something like that will probably happen In 2100
When you think your life is the worst, think about these good hearted people with bodies literally turning to bone
Yeah, damn
@Bodhi he’s saying you can’t complain about your life to others because there will always be people in worse situations than you
@Bodhi How am I brushing off other peoples lives???
@@schizogaming420 Doesn't mean you should brush off your own issues either, I think is what this person is trying to say. Yes they do have it worse but it doesn't make your own situations irrelevant
@@schizogaming420 thank you
I normally am not so emotional watching videos like this, but this really broke me. We take so much for granted. Watching these three really changed my outlook on life.
Am i a bad person if i laugh constantly
@@DL84I would question that
@@DL84yes
@@DL84 Mostly just sad and cringy to laugh. Or some attempt at 2007 edgy humor.
It's really inspiring how positive they remain. I think that's the part that's really touching.
The amount of respect I have for these people is unthinkable. God bless em, and I hope they continue to live strong and positive lives in the face of immense adversity.
Seems more like god cursed them.
Why did God give them this?
@@hannemanisunderrated5610 "Hey there humans, I've invented a fantastic new genetic mutation I want to try out on you! ... What's that? ... Oh, for no reason in particular."
I hate that misdiagnosis took her arm that she so desperately needed
It wouldn't have mattered
@@radpan9642 yes it would… Her having another arm could at least help her with her daily tasks.
yes she needs 2 arms for ACTIVITIES -,Daily. but she does pretty Darn GOOD
@@Saffins llllllll
It would’ve helped, yes, but for how long? Her other arm would’ve became just as stiff and she’d be back in the same position… just with two arms
My cousin was diagnosed with this a while ago, hes about 16 now. They said he’ll probably live until his forties, but as of now, he can’t lift his head straight up or move his arms too far. I feel so bad for him...
does he go to the fop convention? maybe he would like it
Mega Cap
1 of 800? I'm so sorry.
@@sleepingstudios4478 and you think this because?
@@cameroncalzone8860 it’s paralysis not this disease
This video highlights just how unbelievably cruel and unfair life is at times. On a positive note, those peoples strength in adversity is incredible, and I salute them from the heart...
Hit me right in the feels. Hats off to the brave souls that have to put up with the disease and make the most of it.
I feel so sorry for the one lady who was misdiagnosed with cancer as a child, so they removed her arm. I’m sure her life is difficult enough as it is, nevertheless with a missing limb that shouldn’t have been missing to begin with
Mannnnn 😢
And all it took was looking at her damn toes 💔
medicine is not so simple especially in these genetic diseases. the doctors had the best intention at the time
@@icantfeelshitatall6285 I completely agree. You work with what you have at the time. But hindsight is 20/20 and knowing what she knows now, I’m sure it just makes her sick
Man, turning into a statue+ a lost arm due to misdiagnosis
Dang I wish I could just take these people disease away
Ikr so sad I really wish I could have powers to take away all of these ppls diseases away🥺😔
Thank goodness we may eliminate all disease by the next 100 years or less.
Same
@LeilaTheBird not really
I know most of u believe in jesus and i wont fight that contiue that im not trying to change yoirt religion and not beong mean so dont take it offensively. But the god i believe in can tale care of all problem he coul make nobody die and he could make all bad things go away, but think about it if all things were good the world would probably be overpopulated which would have to lead to bad thihgs like days were ppl can kill anybody they wanted. But even if that's not the case, only Allah knows.
Seeing the couples makes me happy, that those sweet men would take care of them so much and tend to their needs. It's just heartbreaking to see what these people have to go through every single day
I’ve never taken my normally functioning body for granted and I never will. I admire these people for managing to live to their fullest potential, an lead a somewhat normal life and find solutions to their everyday struggles. I can’t imagine what it must be like. Wishing them nothing but the best from the uk ❤
I cannot even begin to describe how much I admire these people and their strength.
As someone who works with disabled folks, I can tell you that they don't want our admiration or respect or any of that, they just want to be treated like people.
You gotta really give these people props for having such resilience, to not be crushed under the weight of what people might think of them, if they had been any mentally weaker, no doubt they would've had committed suicide by now.
the thumbnail of this video looks like the woman's photo being edited and cropped out in part
I gotta be thankful
Im your 3.5k like
Seeing them all dancing on the floor and having a good time made me realize that life is really meant to be celebrated, no matter what your predicament may be. Don't you think so?
100% agree.
i agree, the outcome is the same for everyone so its best to live life at its fullest!
They sure keep a stiff upper lip!
no
Definitely though hopefully someday science will be advanced enough to prevent/cure things like this
I cried constantly while watching, both from sadness and happiness. It's so wonderful to see good people loving and caring for these people.
I swear my worst day so far could never be as bad as a regular day for them. Always gotta remember that things could be way worse.
I guess you could say living with FOP really makes you work your fingers down to the bone.
I couldn’t imagine living like that. I give all my condolences to them
I couldn't live like that either! I would want to be euthanized
Save some for later💀
Ikr i would be so depressed if i had to live like that... I give all of my condolences to them
They have had this problem since childhood they don’t know any different 😒
It’s like a statue
Geez who trained the doctor? Who misdiagnoses somebody so bad that they lose their arm for no reason?
The consequences of ignorance.
Happens a lot actually. A doctor is just a hub of knowledge. They can't always know if they're right or not. They have to make guesses a lot. FOP is a rare disease. A lot of medical breakthroughs have come from doctors making mistakes. Trial and error.
It is called "practice" for a reason.
I can understand how it was misdiagnosed.
There is a growth in someone's joint. Is it cancer that could spread if not removed, or is it that super rare bone disease that only effects 1 in 70 million?
Its a RARE disease...doctors dont see this eveyday so how about you give him a break?
a local buddy has this, permanently stuck in a pretty normal sitting position. fortunately it was discovered early enough for him to choose the desired position to stay in. young lad has pretty normal interests and stuff, i can't imagine how rough it is.
Their strength is inspiring. Wishing them peace and love.
This is a sad condition
Same
yes, we shouldn't be thinking of this condition as "I'm glad I have it. I'm glad it makes me differen" like, this ain't no reward bruh frrr
You shouldn't pity on them you should encourage them
@@Ewee689 in fact. Look at the one who does not have an arm, she put her makeup on using scissors. So much corageous!
666 likes
That is why one shouldn’t take anything for granted....always be grateful of what you have because you never know what may happen.....
who knows, next thing you know you unexpectedly loose ur legs due to a car accident and now you can't walk anymore
I take everything for granted
yes! even if it just scratching your eye , some people can’t even do just that ,
Nobody ever takes notice of their ability to walk, talk and move. Even the little things can disappear.
AMEN
Wow. I’ve never even heard of this. So heartbreaking, but also watching them all make the best of their lives. Very remarkable.
Damn, this has to be one of the worst diseases I’ve seen
“With FOP sometimes all you can do is laugh, otherwise you want to cry.”
Seriously this breaks my heart. God bless these people. It must be so hard to live such a way. It’s so kind of their loved ones to care for them. The fact that the doctor gets to personally know all his patients warms my heart.
@bell c@t that is true my friend.
@bell c@t Why doesn't he cure them now, so they can enjoy life?
Yeah God bless... what a blessing
@bell c@t reasonable
God bless these people? If God was real, he wouldn't allow them to be in this position in the first place.
Okay, that 70 year old in the wheel chair dancing to the music by rocking his wheelchair all crazy-like is how I want to be when I get older. He's having fun any way he can and I absolutely admire that.
👌🏿
He’s only 57... didn’t you watch the video??
@@amandacharlebois9295 she means at 3:32
I'm amazed at how these people have the will to continue. This is absolutely heartbreaking to see. I wish for them and all the others suffering with this disease the very best in life!
when life is scarier than death...
I feel terrible for these people, no one should have to live like that. 😞
Yeah this is incredible distressing to watch.
damn this world is crazy
@@larryputra3692 1:12 got me bricked up 😘
@@nuclear9977 👀
They're stronger than I am that's for sure. There's no way I could live like that, I'd be playing Russian Roulette with a fully loaded revolver in no time
My heart breaks for any poor soul having this horrible disease, especially children. It doesn't even seem fair anyone should suffer like this . We live in a bad enough world having such a disability makes it worse. Bless anyone that doesn't look at their disease as a bad thing but sees past it and sees them as normal as you and me. To marry that lady and he is normal I really like that.That's what love is all about. Wish more people could be like this instead of being so vain and only worrying about looks.
Yeah I agree but that lady is normal like everyone else
Ya i feel so Bad ༎ຶn༎ຶ
I have a question, this is kinda random but I just want to know everyone's thoughts. If during pregnancy you knew your child would have this disease, would you get an abortion to "spare" them?
@@johntucker3695 As a mother of 3 I have to say that's a hard answer. If they know 100% my child would have this and their life would be horrible, maybe just maybe. I really don't know if I could do it though. You would think that maybe soon they will have a cure or a med that will help them not get this bad. That may be enough to keep you from doing anything drastic such as an abortion,I think.
@@blondechick9804 Yeah, I had similar thoughts. I wouldn't want my child to go through a horrible life like this but I don't know if I would be able to do it because of something they would be born with. Because you kinda have to think that there will be a possibility that it's not so bad or that there might be a cure. Anyway, I was just wondering what your thoughts would be on a topic like this.
This made me smile in a tone where my heart breaks for my little girl n man's best friend Holley who is super sick. Thank you for making me smile
I admire their strength and resilience. Seeing this gives me one more thing to be thankful for.
Seeing these people struggle with this brutal disease is absolutely heartbreaking, seeing the kids is devastating. I hope there’s some progress to cure this genetic demon
It might be possible to break the bone fusing the joints regularly but a true cure would probably require some way to make the genetic defect not create bone everywhere.
There's currently an experimental treatment in the pipeline that seems to work fairly well. It isn't a cure, but it slows the progression.
Couldn’t hold back the tears when I saw the 3 year old
They're working on a treatment so they don't have to do what they do with other conditions which is constantly snap the bones at the joints and/or have multiple life threatening surgeries done all over their body all at once with tons of surgeons surrounding them.
I dont think of myself as a sensitive guy but seeing those sweet kids having so much fun dancing and thinking that a few short years from now this might not even be possible...that hit hard
I hope there's a cure soon, I can't imagine going through that everyday, they're so frickin strong, God bless
how does she use the bathroom though
@@eli_xikmqq4104 probably have a caretaker and use a bedpan
@@eli_xikmqq4104 maybe don't think about that
"God bless"? Yeah, I guess this is definite proof of *Sky Daddy's* love all right.
@@jimscanoe The internet wouldn't be the same without the occasional entitled atheist.
This brought tears to my eyes, I feel so bad for these people. I hope they have someone who has a good heart to help take care of them.
My dad died of ALS after 3 long years and I thought that was the worst disease you could get. Seeing this makes me miss him so much and feel so terribly for those going through this.
I started crying after they showed the 3 year old kid having fun and dancing with another kid.
Me too. He reminded me of my nephew. 😔
♥️
Same 🥺🥺
why? that's not your problem
@Krazy Guy 😐
This makes my problems look insignificant. I admire and respect these people's positive attitude. After watching this, I don't feel I have the right to complain about much. It really puts things into perspective.
I agree
You have every right to complain. How bad somebody else feels don't make your problems insignificant.
Benner Yes it does, you have no grounds to complain when people like these exist
@@YOTSUBA_desu False, and what you said constitutes a fallacy known as the "fallacy of relative privation."
@@shirin8609 yeah, I think they’re trying to say that they shouldn’t think they have the worst life ever or something.
So impressive how they deal with everyday life and come up with a way to deal with it. Pretty awesome people
Massive Respect! Instead of playing victim these guys plough ahead with their lives! God Bless you!
I thought someone photoshopped the thumbnail wrong...
Me too!!
But sadly it's a real disease
Me too
And it’s all because of a misdiagnosis that’s crazy...
Jam Hopsey most doctors always due that as an excuse to torture patients
Watching this made me feel claustrophobic, I can’t imagine how it feels to be stuck in a position and not be able to move or stretch
I know it must suck :(
Sleep paralysis
Getting stuck in a washing machine head first is much more scarier...
@@RentFreeInsideYourDamnHead dude, its nowhere close
@@doomslayer8431 only temp sucks
I'm 41 and healthy as any friend around my age. This reminds me to be gracious for that fact. So glad this affliction was handled with so much optimism. I can't say I could do the same. Bless you all.
We definitely all take our Health for granted. Bless all those struggling with this Disease.
I love how she still said that God allow her to still enjoy the little things. I just made me want to be more thankful for the things that I do have in my life.
@Barry Midikiner GTFO
Thanks god for giving these people this condition ur the best 🙏
She actually goes to my church, I didn’t know she had this disease
Zakaria Ogle you ok man?
I read this as she said it.
My heart breaks for them. They have incredible strength, but what a horrendous card to be dealt. Life just is not fair.
Not fair at all smh I hate this world
Yup, God exist in this world, yup. God Bless!
You said break because you also thought about breaking the bones too
That's why don't take your bodies for granted and take care of yourselves.
@@squirrel8121 god 😂
Heartbreaking too see these poor people living with this condition makes you appreciate what you have and what we take for granted every day
heartbreaking to see them. my god they have amazing positivity! i love this trio!
Be grateful for your health. Use it to accomplish your goals and do good
Jeez
Dwaine Woolley .l
I’m a big fan
I will lad, I will...
grateful??! also not to be so, my god......is a terrible disease, i repeat so....TERRIBLE DISEASE FOR LIFE! so grateful of what, i don't get it, it's not a cold or a broken arm.
This is honestly heartbreaking for these people. I feel so bad for them.😭😭😩😩
Yeah I dont think i would continue my life if i have that disease, bless those people..
same this is sad 😞
It dat cheemss
600th comment like 😎
The 3 years old baby, bless his heart. Wish happiness to all of these beautiful people.
this is the TRUE DEFINITION of stunning and brave people here. God bless
God bless them
But god made them
looks like they hadn't
SGG exactly. God made them, and God doesn’t make mistakes.
Medicinal Blood then your life is meaning less
Pixell if the World was perfect how do you separate the good people from the bad
One lady with this condition donated her body to her Dr so other Doctors can see how FOP attacks the body. Her zest for life was incredable and inspiration.
😭😭 That's so friggen sad yet wholesome. These poor people..
My deepest condolences to her family, relatives, and friends
Wow, that's something
@@maamenuamah9453 If you look it up, you can find pictures of her skeleton.
So did my cousin, Andy Sando. He was Nancy’s husband.
This is so sad. Glad these people all have each other.
This once again shows that humanity is beautiful and that people can overcome all adversity!
I love that doctor. You can tell he really wants to help these people.
its might be rare but its hell on earth, hopefully he finds a cure for the disease soon! bless this man
I honestly doubt they’re gonna find a cure
I’m not gonna explain because I’m the worst without a plan for a good explanation
And all he did was to take himself pictures
He about to do experiments on them
Big L
I can’t imagine having something like this, god bless them all 💞
well, u can still know what something is like without going through it
Omg ur profile pic teehee
@@eli_xikmqq4104 Not this kind of thing, you can't. That's what I don't like about these various "Try on a disability day" events, where people have to go around blindfolded, or with one arm tied behind their back, for example. That's supposed to teach them something, but mostly it reinforces the notion that it sucks to have a disability. They learn nothing of society's response to it.
Screw your profile picture
pop bob who's
What a compassionate doctor
So inspirational, thank you for sharing your stories.
Blessings to all these people and the little angels. Please find a cure.
Agree
No cure for this
I can’t picture myself with FOP. How will I live? How will I survive? I feel bad for those unfortunate people
God bless them
They do survive...and they do it because they HAVE to. There's no choice but to!
I feel bad
@@ssc4554 God cursed them.
@@Dr_Mundo wtf?
When i was in school someone i knew had this disease it was very sad she was very nice and i hope she's still doing her best
That's great inside edition shined light on this.
I can't imagine how painful this is....and it seems to just get worse and worse. Heartbreaking.
Mentally painful 😭
@@JupiterVortex especially, yes. 😥
Bruh when I saw the kids I literally wanted to. Cry
same.
@@mircocapra4531 This is NOT funny.
@@mircocapra4531 No.
@@snoopypajamapants WHAT is IT?
@@thesecurityguard. faking dumb things
Welp, looks like I'm done complaining about my chronic shoulder pain
Makes you appreciate your muscles so much honestly these folks have tremendous courage to keep living
This just reminds me not to say I’m having a worst day there’s people having a worse day
Worse live**
amen
Just because these people have a disease that makes their lives miserable, doesnt mean we cant complain about our lives and feel like were having bad days. Two different things that dont have nothing to do with each other
@@PTS-Maid i can complain and all, but i should know i have it better than other people. Its not bad to realize that you have it better than others....
That’s the worst way to think, dude you can feel bad and have a terrible day, because you have feelings.
That’s why we have to be grateful for everything because not everyone has the same opportunities that we do.
@ThatOne yes. It’s okay to reach higher. But the point this person was making, is that you may already have a privilege that some others don’t. So cherish, and be thankful for what you have at the moment. They said nothing about not being able to want more. Just be content with what you have, since not everyone can have that privilege.
should i be grateful for having crippling mental illnesses that affect the way i function every day?
@@Fau. remember some people have it way worse than you
Yeah them homeless people should be damn grateful
@@Fau. jeesh dude that's horrible, but as well your living and that's a great privileged live your life as much as you can, unlike these people tho they have a lot in their plate and can't always do the same thing as you
I hope they find a cure! Wish them lot of strength.
Something GYAT in my eye at 1:12
I’m actually crying, that’s love right there.
This shows that it’s good to appreciate what you have.
Boi
Yea
Like, appreciate the fact that you can see, hear, walk, talk, and eat. the things u don't usually think abt when u think of things to not take for granted
The 3rd one I saw so far that said this, just let people live...
I love that all three of them have the most beautiful souls.
My wife had CRPS, the world's most painful disease, I loved her with all my heart until her tragic and sudden death in early 2020. She was the strongest person I knew, and I will always love her.
i wish u al the best❤
God bless you.
I’m sorry for your loss🙏🙏🥺
@@asdfdsafasfdsadfasdfsadfdon’t be disrespectful
@@asdfdsafasfdsadfasdfsadf Learn manners Mate.
I cannot imagine living in that condition! I feel sorry for them.
They're so brave and reselient, truly inspirational
even though they have a heartbreaking disease they still have smiles on their faces.
“ God has given me the ability to find the joy in the little things in life” I will never complain about my problems again. 🙏 ❤️
I know how you feel. I watched this and realized I don't have any reason to complain about anything.
God froze their asses lmao
Sure you will, but if you remember her outlook on life it can help you to be more grateful for what you do have ❤️
Your said a mouth full. WoW. This is by far one of the worst diseases I have ever heard of.
@@krissianvictir1291 That ain't very funny.
Why does this world have to be this way. Proud of them to stay positive and move forward.
Because aliens hate us
When we cross over I'm not sure if I want to come back so fast you just don't know what hand will be delt
@@gilbertsantacruz1397 whatever is waiting must be a lot better than what we got going on earth. People got fop that physically makes your skeleton hard as a rock so i'm hoping at least for them there is blessings on the other side for living through this hardship.
Life isn't made to be fair unfortunately
I mean, our entire existence is really just a fluke.
1:56 what a strong person..
BLESS THESE PEOPLE. APPRETIATE WHAT YOU HAVE. I AM SO LUCKY TO BE HEALTHY
Next time I start in feeling sorry for myself over something silly or want to give up; I will remind myself of these brave souls who have all of my admiration and respect.
Amen
They have no choice . It’s not about bravery .
If I get it u will also have to learn to adjust
True
I bookmarked this video for that reason. I feel like a moron complaining.
AMEN
I was diagnosed with Transverse Myelitis at the age of 14. I may have spent the last 25 years in a wheelchair and unable to walk, but it's NOTHING compared to this.
My heart aches for you guys but I know you're stronger than I could ever be!
You have empathy to other people! That is great strength!
Same here, i have been battling with Ankalosing Spondylitis for 6 years. The condition fuses the spine together. No where near as bad as these people. My heart goes out to everyone battling a condition.
When Jesus Christ returns one day, he will heal the world 🌎 and it's people! 🙏🏻🙏🏼🙏🏾💜🙏🏿 God loves his children!
❤️👏👏
Power to you man ❤️
I didn't know this existed. But I am so sorry for them. Amazing how so many show such happiness and enthusiasm.
Omg…this is so depressing to watch. Bless them and let’s be thankful if we’re not suffering from any harsh diseases. 😢
Hearing Kathy talk about how she thought no one would love her because of her disease and how she found someone who did is very sad and telling. Not only does this create physical problems but issues in your love life, imagine how depressing and lonely, most of these people never find a partner.
How you get that font for username?
@@dnegel9546 look up copy paste font
@@foteinimanou5516 just maybe, humanity is stronger off for having those people.
@@foteinimanou5516 As politically incorrect as it is to say that: this is a valid concern and we shouldn't just dismiss it because it might be hurtful to say. Life itself can be hurtful, it hurt these people by giving them one of the most horrifying diseases imaginable and the last thing humanity needs is more of this
Life’s happiness dosent revolve around getting married. these people seem happy just chillen with their friends and family who respect them. they dont need a significant other to make their lives complete. Life isnt just about getting married. ☹️
Stem cell research is a must now
@Marina Mansfield really good to hear that. I can’t wait to see how much stem cell research will aid people with various health conditions
Religious people won’t allow it :(
@@hillaryhonde8425 That was true up to a decade ago but now we (so-called religious people) know of the procedures medical professionals employ to harvest viable stem cells, in which they do not involve human embryos/fetuses/babies, so all is good. Get those stem cells replicating!
@@Drakijy Yes there's research and treatments involving adult stem cells (not embryonic) so no religious issues :)
@@Drakijy Adult human stem cells cannot compare to embryonic stem cells. There is nothing really to compare it to.
We could discover so many more ways to save people from diseases such as this, prevent miscarriages, fertility issues, and birth defects but religious people still will not allow embryonic stem cell research.
Heck, we know that we COULD cure Parkinson's disease if researchers were allowed.
Omigosh I can't imagine the pain 😢 I wouldn't wish this cruel disease on anyone. Bless their souls and determination ❤
Glad Nancy is able to find joy in the little things 😊
The fact that they're all DANCING in good spirits, having a blast together, says it all! Incredible people.
Big L
@@B31L L + Jealous + No friends
@@Ash_19503 youre asian L
Them having a dance party is the cutest thing ever 🥺
We humans need more spontanious dance parties
Kinda sadistic towards FOP sufferers though courtesy of the pain that accompanies the disease
@@michaelmckinnon1591 maybe it helps them stay "loose"... If I had this disease, I'd try to move in any possible position at least a couple of times a day.
@@michaelmckinnon1591 ... no?? they want to do normal things that people able to move does, i'm sure they love to dance even if it hurts. i don't see it as a bad thing, they were having a great time
So crazy. My heart goes out to all of them!
I feel so sorry for those who has suffered this terrible disease they should live in normal life and they should be taken care of by their families and friends
I wish there would be a cure to every disease soon
Seeing people suffer breaks my heart
DEATH
@@codyrw8397 Damn who hurt you cody?
@@testsubjectt001 Sorry, watching people in pain makes me angry at the world! Peace
Normally makes me laugh cuz I don't like people. But this is beyond overkill. These poor people:(
Yeah it’s called breaking the bones