Omg!!! Nobody has ever told me this. I could cry right now. I have migraines daily and I have hyper-mobile EDS and CPS and fibromyalgia I have a lot of reflux I have a sliding hernia, I have IBS 😭 My migraines and headaches are ruining my life right now.
Idk if I have Ed’s. Although I think I do. I do have hyper mobile joints and I’ve had a migraine everyday for 8 weeks. Did u ever found a treatment for your migraines?
Hi. I have recently been put on a waiting list to see neurology this was after many attempts of going through my GP and them speaking to neurology for me. I went to see my consultant last week who diagnosed my EDS (private) and he sent a letter to my GP recommending that I see neurology that my migraines are daily still and that Im on 12 triptans a month that are still not helping I need to see neurology. The GP reluctantly said okay. Im still not convinced as they have done this before and have just come back with more drugs for me to take so watch this space!! I hope you get some help. My GP is useless thats why I had to pay and go private in the end its the only way I could get a diagnoses of what was wrong with me regarding the EDS and the fibro. The migraines I have had since I was 11 so they have been a pain but have gotten worse as I have got older. If you have a good GP ask for a referral to rhemotology for a diagnosis then you can be sure.
Hiya. I had a consult with a neurologist. It was awful to tell you the truth. I am doing better on my own. No I have not found a treatment for my migraines. They have said about the injections but I think I would rather stick with what I am using. The triptans and the topmirate. I have so much going on with my EDS as in my urology issues and digestion that it is all too much at times. 😞
@@missa7821 do you have migraine s n the body as my neurologist says my migraines which are in my upper body armpits shoulders are migraine no headache
I have migraine pain constant in my shoulders armpits 2.5 years before this chest my neurologist says it empigelic migraine but no head pain.i had normal migraine 25 years ago I have heds Asperger's diagnosed yesterday at 43
I just came across this. Dr. Martin is my doctor and I’m eternally grateful for him. He is truly the BEST!
Omg!!! Nobody has ever told me this. I could cry right now. I have migraines daily and I have hyper-mobile EDS and CPS and fibromyalgia I have a lot of reflux I have a sliding hernia, I have IBS 😭
My migraines and headaches are ruining my life right now.
Idk if I have Ed’s. Although I think I do. I do have hyper mobile joints and I’ve had a migraine everyday for 8 weeks. Did u ever found a treatment for your migraines?
Hi. I have recently been put on a waiting list to see neurology this was after many attempts of going through my GP and them speaking to neurology for me. I went to see my consultant last week who diagnosed my EDS (private) and he sent a letter to my GP recommending that I see neurology that my migraines are daily still and that Im on 12 triptans a month that are still not helping I need to see neurology. The GP reluctantly said okay. Im still not convinced as they have done this before and have just come back with more drugs for me to take so watch this space!! I hope you get some help. My GP is useless thats why I had to pay and go private in the end its the only way I could get a diagnoses of what was wrong with me regarding the EDS and the fibro. The migraines I have had since I was 11 so they have been a pain but have gotten worse as I have got older. If you have a good GP ask for a referral to rhemotology for a diagnosis then you can be sure.
I had my hernia done have you had yours done is your.migraine always in the head
Hiya. I had a consult with a neurologist. It was awful to tell you the truth. I am doing better on my own. No I have not found a treatment for my migraines. They have said about the injections but I think I would rather stick with what I am using. The triptans and the topmirate. I have so much going on with my EDS as in my urology issues and digestion that it is all too much at times. 😞
@@missa7821 do you have migraine s n the body as my neurologist says my migraines which are in my upper body armpits shoulders are migraine no headache
I have migraine pain constant in my shoulders armpits 2.5 years before this chest my neurologist says it empigelic migraine but no head pain.i had normal migraine 25 years ago I have heds Asperger's diagnosed yesterday at 43
Is it common to have ice pick headaches in a patient with EDS?