Ehlers-Danlos Syndrome Explained: The Impact on Headache Disorders

Episode 199: Why are people with Ehlers-Danlos Syndrome (EDS) and other connective tissue disorders at greater risk for migraine and other headaches disorders?
In this episode, Dr. Lindsay Weitzel and Dr. Vincent Martin dive deep into the link between EDS and chronic headache, explaining how EDS affects the body and increases headache frequency and severity. Learn whether EDS is diagnosed clinically or through genetic testing and how healthcare providers that can help manage EDS and headache.
Watch the full episode for expert insights on treating headaches in EDS patients.
#HeadWise #EDS #Headache #Migraine #ChronicPain #ConnectiveTissueDisorders
You can find previous episodes of our podcast HeadWise on our website headaches.org, RUclips, Apple Podcasts, Spotify, or wherever you get your podcasts. Make sure to follow us so you never miss an episode!
Follow the National Headache Foundation's podcast HeadWise, as host Lindsay Weitzel, PhD, has informative discussions with headache experts on the latest treatment, research, lifestyle recommendations, and personal stories about living with migraine disease and headache disorders. HeadWise can be found on Apple Podcasts, Spotify, Stitcher, Overcast, or wherever you get your podcasts.
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[@gabriellefeldman5062]

I'm 50 and currently being diagnosed with EDS and chronic migraines. I'm a complete mess. This topic has really helped, and I have a fantastic neurologist that I think can really help me. Thank you for this episode. I've been trying to get diagnosed for over 30 years with a number of comorbidities.

[@NationalHeadacheFoundation]

Thank you so much for sharing your journey with us. It’s wonderful to hear that our episode was helpful to you, and that you’ve found a neurologist who is providing support and care. We hope we can continue to be a resource to you and wish you the best in your continued progress!

[@gabriellefeldman5062]

@@NationalHeadacheFoundation thank you

[@Truerealism747]

I have heds to are you also diagnosed autism is your migraine present in the body as mine is not in the head now but chronic in body same nausea

[@gabriellefeldman5062]

@@Truerealism747 I don't have autism, but I do have dyslexia and ADHD. I wonder if there is comorbidity between these issues?

[@Truerealism747]

@@gabriellefeldman5062 yes there is the dyslexia causes CFS my friend has severe CFS dtlexia obvously ADHD rccx gene theory? Any other family with it do you have migraine pain in the body

[@mariak5253]

Didn't mention EDS and CSF leak that is very common and creates headaches. Can you do an episode about CSF leak and EDS?

[@NationalHeadacheFoundation]

Thank you for the suggestion! We will have to look into making an episode about both. In case you haven't seen them we do have some episodes that cover CSF leak (not specifically related to EDS).
Low-Pressure Headache - Finding the Leak ruclips.net/video/ySestbdPsds/видео.htmlsi=EwLJjMAWXZ0MbTIm
Low Pressure Headache - ruclips.net/video/9PfVNtr3kWw/видео.html

[@pastorgibson5357]

HELP!!! I'm a Hypermobile EDS POTS patient with a headache that started Sunday 10/21/2007 and has never stopped!!!!! I've seen COUNTLESS doctors and was diagnosed at Stanford but no one has been able to make it go away. It's not a migraine that's been ruled out however NO ONE has been able to make it stop not even when hospitalized. The Mayo clinic does not have any answers either. PLEASE HELP WILL TRAVEL AND HAVE TRAVELED OUT OF STATE!!!

[@Paula-z8g]

Over 40 yrs. Suffered, many dr. Visits when laughing or mild exercises, could hear blood pumping through head, finally found a surgeon who diagnosed with Chiari malformation my (cerebellum was out of my skull, very painful after surgery, but worth it no more headaches, cerebellum was put back in skull. Wish you the best, nothing worse than constant headaches.