Thank you for going over the many reasons we need an MRI, and how they should go, and what we should do. Your support and concern for our understanding, of all the aspects of our disease is applauded and greatly appreciated. Much love and respect . #StrongerTogether
My most recent MRI was with contrast. I am now having bowel problems, so I had a whole spinal cord and brain MRI (90 minutes in the machine) and all free, on the great British NHS, and I am so grateful for my lovely kind neurologist.
@fruitypie3219 hello sweet pea. Its worth asking your doc whether it's appropriate for you to have a light sedative before your scan. Xx hope you stay well.xx
Great. I just wasted money on a 1.5 tesla machine. Head only. This order came from my primary. I should’ve waited til I saw a neurologist. Thanks for this information. I’ll get a neurologist soon.
Havent had my full spine imaged in a few years. Getting it done this june. They were supposed to do it last year but they didnt check me in properly so i wasted an hour. They called me asking where i was... and i was like... been in the waiting room for an hour...
UK person here: using contrast in every MS patient MRI seems to be NHS policy. Every MRI I've had has been with contrast, i just sort of take contrast use for granted at this point.
Also NHS. Had contrast on all my scans pre diagnosis, told all after that would be without contrast. I'm on tysbari and JC +ve so have additional scans for PML monitoring.
This is an awesome video. I wish I had had this available to me when I first started having MRIs for my MS. I was not aware of the 1.5T and 3T machines, and while I live in Australia, I think we have the same issues here. The explanation of the different frequencies for Brain, Cervical and Thoracic scans was also brilliant, and has given me a lot more context for how my scans differ now.. Thank you so much, Dr Boster!
Thank you, thank you! I have my neuro appt next month. Dx 12 yrs ago. Never had MRI of thoracic spine, and this past fall, I received the "devil's hug." I'm hoping my doctor will order a full MRI as you have suggested. 🙏🏻❤️ God bless your work!
I have allergic reactions to contrast, was very happy my neurologist agreed to not do contrast anymore. Makes the whole scan days much more enjoyable. Thanks for the video!
I always have contrast. My brain is MRI every two years. If I have a relapse, the rules change and everything is MRI. My next one is in July. I will a lot more water for a few days prior, so my veins can be found. I am used to this as it is part of my life. Thanks for sharing your thoughts.
Perfect timing! Today was my first neurological appointment, and bloodwork and an MRI are scheduled. I am relieved to see that my doctor has ordered exactly what you have recommended here. My approach to addressing my health issues can be summed up like this: "What would Dr. Boster do?" Thank you for sharing your expertise with us. The education you provide is empowering us to be our own best advocates. ❤
This is a great video! I had always had 1.5T MRIs (since 2001), but a few years ago I decided to go to UCSF for their 3T. WOW. What a difference. My 1.5T consistently showed 11 lesions, while the 3T showed 20+ lesions! My neuro at UCD said it wasn’t clinically significant, but that’s the part I struggle to understand. Thanks for this video! 🎗️
Great video thanks Dr. Boster. I have changed my DMT from Aubagio to Ocrevus because of 2 new silent spots on the MRI. It is a great monitoring tool. Even if you are stable, do not skip your annual MRI checks. There is no need to take a stupid risk.
Because of my dye allergy, they didn't do an MRI with contrast a decade ago. Nowadays, I can take a prep to avoid an allergic response and do just fine. Currently, I am working with a neurologist that mentioned ALS, but I don't think she or I are convinced of that. After years and a lot of research, I'm pretty sure I know what it is... I don't know why she's not doing an MRI herself (using the non-contrast decade old one from an ill-equipped local hospital) but sending me to a university 4 hours away for a second opinion; all avenues should be looked at first. What I'm trying to say is, I understand how valuable MRI'S are as well as how knowledgable the one reading them is obtain to a proper diagnosis and avoid unnecessary treatments etc.
Thank you for explaining the MRI, in my 30 years of MRIs I have never had my T spine. I have not really understood why I feel so much worse every year but my MRI always says no change.
Thanks Dr B! I only had MRIs with contrast during my diagnosis and first year post diagnosis (brain & C/T spine scanned only once). After the first year I had only a brain MRI twice a year without contrast. I’m going into my 4th year post diagnosis and have been neda3 for 3 years with a DMT. I started on Tysabri and switched to Ocrevus within 6 months due to JCV.
@@lemonpeelangelfish it is very new and I think there is only one. It is huge and requires super cooling. And it only takes about 4 minutes! newatlas.com/medical/powerful-mri-brain-scans-iseult/
I don't understand why there would be an age cut-off for follow-up MRIs. Can't new disease activity occur at any age? And shouldn't new disease activity be treated at any age? Without respect to age, given there is new disease activity, isn't there always the potential for further disability?
I apologize for being so late replying, thank you so much for the video this morning Dr Aaron. I get an MRI every year and it is of the brain cervical and thoracic spine and I will say those MRIS last a while and thank goodness they give me music to listen to during the process. My last MRI I remember I was getting spasms in my foot and you have to try to keep still man was that a pain in the butt Aaron but thank God the the Radiologists we're able to get good pictures without making me do it all over again and thank you again for doing this video
Hi from the UK. I see another British MSer mentions contrast is normal on the NHS. I had a contrast MRI for dx under private health care in early 2020. My next consultation and MRI (with NHS) was early 2024 with no contrast. New lesions showing now so my DMT is under review.
Mine started with serious Optic Neuritis in 2008 and many other balance symptoms thereafter right up until full diagnosis in Feb 2023 , my diagnosis was SPMS and my walking is now permanently affected, disjointed walking and balance.
Hey I’m from Texas and having a lot of concerning symptoms (mainly Spasticity) but the wait to see a neurologist is excessive. Do you know of any MS centers like yours in Texas?
How often are radiologists wrong in their MRI findings? I ask because I had my first MRI with and without contrast in December and the radiologists concluded that I had a bunch of lesions characteristic of MS. However, when I met with my neurologist, he said that I don’t have any lesions at all. I’m seeking a second opinion regardless, but I want to know if this is a common situation.
Just found your channel. This was all I could tolerate after being so recently diagnosed with rrms. 2 months ago. Thank you. Also, I have a question. How common is it that a patient ends up getting plasmapheresis at the onset? Is that normal? I ended up needing it. 31 year old woman from Mi. If I can get an answer that would be great. I'm just trying to find my footing after the whole mess of this disease crap.
I noticed in your video that someone used a tablet to view MRI images... Is the contrast equivalent in a tablet to what can be seen on a properly calibrated diagnostic display? Would you recommend the use of diagnostic displays for the most accurate understanding of what is being looked at? Thank you.
Hi Dr Boster, hope you're well. I have a question that you hopefully have the time to answer. For about 3-4 months I've been experiencing some very worrying symptoms, probably around 15 different symptoms that come and go, that all point to MS. It's the usual stuff that you would expect. Numbness in extremities and limbs, pain (crushing, squeezing, sun-burn, neck pain, lower back pain, testicle pain), altered sensations like my head feeling like it is expanding, biting pains like electric shocks all over my body but predominately around my upper legs and face. Fatigue, weakness etc. For years before these recent months I have been struggling with a change in my gait (foot drop) and coordination issues as well as occasional bladder dysfunction. So I have been absolutely convinced that I not only have MS, but have progressive MS. I've had a bunch of blood tests, STD tests, an eye exam. All came back totally normal. I've also had an MRI of my head, neck and spine. All came back clear of lesions and no sign of damage... Despite this potentially good news? I'm still convinced of MS. Nothing I have researched even comes close to causing all of the symptoms I've been experiencing except for MS. Is there any way that I could be experiencing all of this without lesions? It just doesn't add up. I want a lumbar puncture but need a neurologist to refer me for one and here in the UK, NHS waiting times are over a year to see a neurologist. It feels like my only option at the moment is just to wait and hope I don't become disabled in the meantime.
I have been getting horrendous nerve pain in my left side back and side which moves about. And I have numbness and itching. I have a thoracic and spine MRI on the 16th of this month. I have been having many symptoms for a long time and i had the same nerve pain last year on the right side when my armpit went numb. I have been diagnosed with fibromyalgia, but I believe there is something else going on. So we shall see. I have subscribed to the channel. Thank you. 😊
As far as I know, I don't have MS. However, I had 2 TBIs in 3 months time. Went through concussion therapy with the first one and was about to graduate when I was hit at a stoplight by a truck going about 60mph. Injured my left eye and Brocas area because my head was slightly turned to the right at impact. Took 1.5 years to be seen by a neurologist's office; a PA. 2 MRIs, done without contrast of my head and with contrast on my neck. Was told it was good news I didn't have a stroke, but had white spots that were indicative of harsh headaches and constant migraines, double vision; 2 pages of symptoms, etc. No answers yet. Post concussion syndrome, but no help with pain or help with Aphasia. Any ideas?
I hope that in a future video you can talk about transverse myelitis. What would it mean if you went to see a new neuro and the notes said that a "herald symptom" was transverse myelitis"? Many doctors have seen that MRI, but nobody has said anything about it. I looked it up, but I don't understand what it means for me as a patient. Is there any treatment for it beyond DMTs and steroids for relapses? Shouldn't someone have told me I have this?
My mri says multiple punctate hyperintense lesions in subcortial white matter microangiopathic !! Conclusion says on report microangiopathic lesions. I have severe pain in finger tips ankles numbness tingling in head at times and very stiff in mornings. Don't no if it's white matter disease or Ms. But what I'm reading is lesions in subcortial are not Ms lesions !!! Confused. Waiting to see neurologist. Thanks doc
I was diagnosed in 2016 with MRIs and spinal tap. I had an MRI and visit with my neurologist and she now says I have Transverse myelitis. Could you do a video on the differences between the two or how someone can be diagnosed with MS and then have the doctor change it 8 yrs later?
Dr Boster, I have several symptoms of MS. My brain MRI is clear of demyelination. I’ve had episodes of double vision. No explanation as to why, relying totally on the brain MRI. I find this concerning. What should I do? I’ve also had sudden onset bowel and bladder incontinence. I have total body muscle weakness. My fibromyalgia symptoms are worsening.
I'm tired. Body is changed I use to take great care if myself but all that exercise has affected my health.it was going well but I had fainted...they found a AVM.
Hi Dr, I just got my MRI yesterday and was wondering if I’ll be able to get correctly diagnosed if I had my braces on ? I got a head MRI, thoracic spine MrI & cervical spine . I was told after the MrI that by doing the MRI with braces would cause some hardship in reading the MRI now I’m worried .
😢I have been told my frontal lobe shrinkage age 54 female. All symptoms of Ms,, waiting to see a specialist, also something about myelin which isn't good. I'm worried 😢😢
Question how long after a ocrevus infusion I can give my self a stomach detox. If i can or able to so the the body can except the gd fruits and vegetables
It is fascinating. I've lost track of the number of MRIs I've had for MS. Probably 20+. I would have to travel like 45 min into a biger city to get a 3T MRI but there's a 1.5T MRI a mile from my house and 16 miles as well. Each more convenient. If I did a 3T I'd need to switch all the way with the first being the new baseline and going back to the 3Ts from there for the best comparison. I probably couldn't get in to a 3T within 72 hours scheduled either. I know the image quality is better and I have had 3Ts in the past but what is the real resolution difference between the technologys? I think 1.5 is like 128 to 256p and 3T is like 256 to like 540ish p but I have no idea, it probably varies depending on the specific scans parameters.
What does it mean when the neurologist asks the radiologist to use ppms protocol when booking a mri? Contrast would be used for all types I would have thought. Mine asked for this when I had my scan to see if suitable for dmt's, to look for inflammation
Good morning Doc. News on my health front, a doctor who was persistent scheduled a calcium score, despite hearing no stenosis, discovering a 50 to 70% stenosis in all 3 regions of my LAD. Meanwhile, all my other doctors pointed to my diabetes or even psychiatric referral. Meanwhile, I have smoldering myeloma burning in the corner of my body. I'm not sure doctors like me carrying copies of my imaging on a tablet and ask questions about certain images. My thoughts and thinking has restored some too, maybe a response to steroid nasal spray or doubling my vitamin D or is there just more blood getting by? Anyway, I found the widowmaker, before it got me. To your frustrated viewers, looking for answers, don't let them BS you, had they got me to psyche, they may have let me have the heart attack to prove I was crazy and not just an asshole that had a difficult to diagnose illness. I
What do you think about 7T MRIs? Do you think they’re more helpful than a 3T MRI to help with treatment or to determine what else could be happening when another neurological condition is suspected on top of the confirmed MS diagnosis? Thanks
Doc, and if I can't lie on my back (well, accordingly, I start to shake and get very dizzy. Is it possible because of exacerbations or some other problems?
Does MRI is Needed to have Solu-medrol infusion if i have new symptomps? Because My neurologist insist to have an MRI before we get started with solu-medrol cause it's the protocol thing, i'm just scared because i feel like i lose lot's of time by having bureaucracy going around while i'm like decaing from inside...
I had an MRI showing 1 lesion in 2008, then 3 in 2015. I haven't had a MRI again yet. It turns out I also have Chiari malformation. Are the 2 linked? My neurologist quit his practice b4 ever explaining anything about any of it to me and I only assume I have ms bc the MRI report says "consistent with ms" and I lost my insurance b4 I could get into the new doc. I now have insurance but feel like it has been so long that it is like starting from scratch. I dont even know if my regular primary DR even knows about my scans and I feel like he chalks up all my symptoms to normal aging. I try to tell him I feel like it is more extreme than that. My vision has got so bad over just the last couple of months in a real noticeable way and I pee about 60 times per day. I stood up one night and went blind in 1 eye for about a minuet. I have muscle weakness especially in my arms and my feet and toes cramp and curl up as if I was low potassium but I am not. I also have pains in my head that feel like electricity.. ughh I dont want to go into the DR saying "I have ms" when I dont know bc that DR sent me for a spinal tap and I never saw him again to go over results but I feel like not mentioning it is causing him to think I am just a normal 42 yo aging person w aches and pains.
Dr Aaron this may be stupid could please make a video on why the hell hospital do not give steroids when they find new lesions in MRI ive heard this from people like my myself oni Kesimpta doesn’t that seem like a red flag any new lesions should be a trip to the hospital for steroids am I wrong thats a flare up correct ? please explain lesions on MRI that are not getting treated with steroids doctor. It sounds stupid doesn’t it? arent people putting themselves in harms way without steroids a new lesions doesnt that seem kinda concerning. I thought any new lesion was a trip to the emergency room to get admitted for steroids. Please make a video explain this to me that’s kind of concerning. Is it not people are talking about getting lesions and they’re not getting steroids that’s very concerning that’s a flareup. Am I wrong Dr. Aaron please explain there’s people talking about having to put three or four new lesions and they’re not going to the emergency room. It’s scary to me I’m just a dude living with this this disease. Aaron, I had three flareups in less than two months because of Prior authorization to get on the Kesemptia. It’s a broken system. It really is. They’re not listening to the doctors Insurance is out to make money. Please see this understand what I’m saying. dr. arron hospitals are putting people on the Kesimptia I had a hospital doctor tell me it’s the best out there it’s even better than the Orevus sorry if I spelt it wrong. dr. is there anyway they can approve Kesimpta to make it more stronger. I don’t know if that’s possible the way it works is pretty crazy. It kills those Bone murrow cells by marking it for death like you’ve said. Doctor when did they find out cells talk to each other that’s pretty crazy. It’s pretty scary. Is it not? I think you for your videos you seem to understand this virus very well and I love your videos. I love this medicine so far I think it will do good I just don’t want anymore flareups docctor I had two really bad flareups you should see my MRIs. Doctor they didn’t think I was able to walk again it was that bad. MS came back and it was really brutal. I was on Vumurity they called to weak It’s not a good medicine from what I’ve heard they put me on a much stronger medicine. Sorry for the long comment. I love your videos. Please help people there’s gotta be something they can do to get rid of this horrible virus. Doctor I’m 36 years old. I got diagnosed when I was 32. This flareup is way worse than back then. dr please keep making videos. Kesimpta from everything I’ve heard is a miracle drug. It does good work. It just takes time. Thank you doctor Aaron MD. Explain why cells talk to each other that seems kind of scary doesn’t it B cells talking to T cells does not seem good at all. thanks so much for Dr. Arron MD.
Do you read your patient’s MRIs or does a radiologist? I recently reviewed my MRI from last year with my neurologist and he caught disc herniation that the radiologist did not catch. He told me that he will have neuro surgery review his MS patients MRIs afterwards
Just so grateful that you are my husband’s Dr 🙏🏼
Thank you for going over the many reasons we need an MRI, and how they should go, and what we should do. Your support and concern for our understanding, of all the aspects of our disease is applauded and greatly appreciated.
Much love and respect .
#StrongerTogether
My most recent MRI was with contrast. I am now having bowel problems, so I had a whole spinal cord and brain MRI (90 minutes in the machine) and all free, on the great British NHS, and I am so grateful for my lovely kind neurologist.
The thought of being in the scan more than 15 minutes bring me panic attacks and anxiety, I wonder if I could be put to sleep, with the nhs
@fruitypie3219 hello sweet pea. Its worth asking your doc whether it's appropriate for you to have a light sedative before your scan. Xx hope you stay well.xx
are you saying the mri gave you bowel problems?
@Sbannmarie no! I had bowel problem so they did an MRI 😆 🤣 😂
Great. I just wasted money on a 1.5 tesla machine. Head only. This order came from my primary. I should’ve waited til I saw a neurologist. Thanks for this information. I’ll get a neurologist soon.
Havent had my full spine imaged in a few years. Getting it done this june. They were supposed to do it last year but they didnt check me in properly so i wasted an hour. They called me asking where i was... and i was like... been in the waiting room for an hour...
UK person here: using contrast in every MS patient MRI seems to be NHS policy. Every MRI I've had has been with contrast, i just sort of take contrast use for granted at this point.
Hi I’am also in the UK and all my MRI scans haven’t had contrast .Large NHS teaching hospital too
I wish. My doctor forgets what blood form to use.
I’m in uk and had several mri scans. I never had contrast with my mri scans
Also NHS. Had contrast on all my scans pre diagnosis, told all after that would be without contrast. I'm on tysbari and JC +ve so have additional scans for PML monitoring.
This is an awesome video. I wish I had had this available to me when I first started having MRIs for my MS. I was not aware of the 1.5T and 3T machines, and while I live in Australia, I think we have the same issues here. The explanation of the different frequencies for Brain, Cervical and Thoracic scans was also brilliant, and has given me a lot more context for how my scans differ now.. Thank you so much, Dr Boster!
Thank you, thank you! I have my neuro appt next month. Dx 12 yrs ago. Never had MRI of thoracic spine, and this past fall, I received the "devil's hug." I'm hoping my doctor will order a full MRI as you have suggested. 🙏🏻❤️ God bless your work!
I have allergic reactions to contrast, was very happy my neurologist agreed to not do contrast anymore. Makes the whole scan days much more enjoyable. Thanks for the video!
I always have contrast. My brain is MRI every two years. If I have a relapse, the rules change and everything is MRI. My next one is in July. I will a lot more water for a few days prior, so my veins can be found. I am used to this as it is part of my life. Thanks for sharing your thoughts.
Perfect timing! Today was my first neurological appointment, and bloodwork and an MRI are scheduled. I am relieved to see that my doctor has ordered exactly what you have recommended here. My approach to addressing my health issues can be summed up like this: "What would Dr. Boster do?" Thank you for sharing your expertise with us. The education you provide is empowering us to be our own best advocates. ❤
This is a great video! I had always had 1.5T MRIs (since 2001), but a few years ago I decided to go to UCSF for their 3T. WOW. What a difference. My 1.5T consistently showed 11 lesions, while the 3T showed 20+ lesions! My neuro at UCD said it wasn’t clinically significant, but that’s the part I struggle to understand. Thanks for this video! 🎗️
ucsf is the gold standard.I wish Dr. West was still practicing there!
Great video thanks Dr. Boster.
I have changed my DMT from Aubagio to Ocrevus because of 2 new silent spots on the MRI. It is a great monitoring tool. Even if you are stable, do not skip your annual MRI checks. There is no need to take a stupid risk.
Because of my dye allergy, they didn't do an MRI with contrast a decade ago. Nowadays, I can take a prep to avoid an allergic response and do just fine. Currently, I am working with a neurologist that mentioned ALS, but I don't think she or I are convinced of that. After years and a lot of research, I'm pretty sure I know what it is... I don't know why she's not doing an MRI herself (using the non-contrast decade old one from an ill-equipped local hospital) but sending me to a university 4 hours away for a second opinion; all avenues should be looked at first. What I'm trying to say is, I understand how valuable MRI'S are as well as how knowledgable the one reading them is obtain to a proper diagnosis and avoid unnecessary treatments etc.
Thank you for explaining the MRI, in my 30 years of MRIs I have never had my T spine. I have not really understood why I feel so much worse every year but my MRI always says no change.
Thanks Dr B! I only had MRIs with contrast during my diagnosis and first year post diagnosis (brain & C/T spine scanned only once). After the first year I had only a brain MRI twice a year without contrast. I’m going into my 4th year post diagnosis and have been neda3 for 3 years with a DMT. I started on Tysabri and switched to Ocrevus within 6 months due to JCV.
Thanks Dr. Boster! Excellent video! Have you seen the 11.7 Tesla images out of France? They are gorgeous!
Hey Vickie, Wow I didn’t realise they went above 7!!
@@lemonpeelangelfish it is very new and I think there is only one. It is huge and requires super cooling. And it only takes about 4 minutes! newatlas.com/medical/powerful-mri-brain-scans-iseult/
@@EvenSoItIsWell Wow!
@@lemonpeelangelfish right?! So exciting.
Wish I could pay you to review my MRI. My neurologist sucks!
What new symptoms would prompt a new thoracic spine MRI?
I don't understand why there would be an age cut-off for follow-up MRIs. Can't new disease activity occur at any age? And shouldn't new disease activity be treated at any age? Without respect to age, given there is new disease activity, isn't there always the potential for further disability?
Thank you so much Aaron , l don’t miss any of your feeds . Vickie in the UK 🇬🇧👍
Long overdue, hope you will describe how to understand the scans once completed.
Dr Boster has several videos on MRI including interpretation: ruclips.net/video/_l_X3QuY72c/видео.htmlsi=5RVDIwhIka-GXnoa
On Monday I have MRI I hope everything will be okay with me long time I didn’t see ur videos cause I was in hospital much respect Dr😊
Thank you, Dr. Boster! This was a very helpful video for new diagnosis of MS and monitoring MS patients.
I apologize for being so late replying, thank you so much for the video this morning Dr Aaron. I get an MRI every year and it is of the brain cervical and thoracic spine and I will say those MRIS last a while and thank goodness they give me music to listen to during the process. My last MRI I remember I was getting spasms in my foot and you have to try to keep still man was that a pain in the butt Aaron but thank God the the Radiologists we're able to get good pictures without making me do it all over again and thank you again for doing this video
Thanks so much for this explanation very helpful.
Hi from the UK. I see another British MSer mentions contrast is normal on the NHS. I had a contrast MRI for dx under private health care in early 2020. My next consultation and MRI (with NHS) was early 2024 with no contrast. New lesions showing now so my DMT is under review.
Mine started with serious Optic Neuritis in 2008 and many other balance symptoms thereafter right up until full diagnosis in Feb 2023 , my diagnosis was SPMS and my walking is now permanently affected, disjointed walking and balance.
Hey I’m from Texas and having a lot of concerning symptoms (mainly Spasticity) but the wait to see a neurologist is excessive. Do you know of any MS centers like yours in Texas?
first comment🎉..love your work dr boster
How often are radiologists wrong in their MRI findings? I ask because I had my first MRI with and without contrast in December and the radiologists concluded that I had a bunch of lesions characteristic of MS. However, when I met with my neurologist, he said that I don’t have any lesions at all.
I’m seeking a second opinion regardless, but I want to know if this is a common situation.
Just found your channel. This was all I could tolerate after being so recently diagnosed with rrms. 2 months ago. Thank you. Also, I have a question. How common is it that a patient ends up getting plasmapheresis at the onset? Is that normal? I ended up needing it. 31 year old woman from Mi. If I can get an answer that would be great. I'm just trying to find my footing after the whole mess of this disease crap.
Howdy Dr Boster this is an awesome informative video thank you!! 🔥🔥❤️🔥🔥🔥
Glad it was helpful!
I noticed in your video that someone used a tablet to view MRI images... Is the contrast equivalent in a tablet to what can be seen on a properly calibrated diagnostic display? Would you recommend the use of diagnostic displays for the most accurate understanding of what is being looked at? Thank you.
Hi Dr Boster, hope you're well. I have a question that you hopefully have the time to answer. For about 3-4 months I've been experiencing some very worrying symptoms, probably around 15 different symptoms that come and go, that all point to MS. It's the usual stuff that you would expect. Numbness in extremities and limbs, pain (crushing, squeezing, sun-burn, neck pain, lower back pain, testicle pain), altered sensations like my head feeling like it is expanding, biting pains like electric shocks all over my body but predominately around my upper legs and face. Fatigue, weakness etc.
For years before these recent months I have been struggling with a change in my gait (foot drop) and coordination issues as well as occasional bladder dysfunction. So I have been absolutely convinced that I not only have MS, but have progressive MS.
I've had a bunch of blood tests, STD tests, an eye exam. All came back totally normal. I've also had an MRI of my head, neck and spine. All came back clear of lesions and no sign of damage... Despite this potentially good news? I'm still convinced of MS. Nothing I have researched even comes close to causing all of the symptoms I've been experiencing except for MS.
Is there any way that I could be experiencing all of this without lesions? It just doesn't add up. I want a lumbar puncture but need a neurologist to refer me for one and here in the UK, NHS waiting times are over a year to see a neurologist. It feels like my only option at the moment is just to wait and hope I don't become disabled in the meantime.
I have been getting horrendous nerve pain in my left side back and side which moves about. And I have numbness and itching. I have a thoracic and spine MRI on the 16th of this month. I have been having many symptoms for a long time and i had the same nerve pain last year on the right side when my armpit went numb.
I have been diagnosed with fibromyalgia, but I believe there is something else going on. So we shall see. I have subscribed to the channel. Thank you. 😊
I had 2 mris it was scary for me thanks Dr Boster
As far as I know, I don't have MS. However, I had 2 TBIs in 3 months time. Went through concussion therapy with the first one and was about to graduate when I was hit at a stoplight by a truck going about 60mph. Injured my left eye and Brocas area because my head was slightly turned to the right at impact. Took 1.5 years to be seen by a neurologist's office; a PA. 2 MRIs, done without contrast of my head and with contrast on my neck. Was told it was good news I didn't have a stroke, but had white spots that were indicative of harsh headaches and constant migraines, double vision; 2 pages of symptoms, etc. No answers yet. Post concussion syndrome, but no help with pain or help with Aphasia. Any ideas?
people avoid MRI because they are afraid/closterphobic.
I'm one of those people. But there are medications to deal effectively. with the panic caused by the claustrophobia.
Thank you Dr B so much from Morocco
I just had my First MRI. Sounds to me it looks fine per doctor. But am waiting for my follow up with the neurologist. I just waiting
I hope that in a future video you can talk about transverse myelitis. What would it mean if you went to see a new neuro and the notes said that a "herald symptom" was transverse myelitis"? Many doctors have seen that MRI, but nobody has said anything about it. I looked it up, but I don't understand what it means for me as a patient. Is there any treatment for it beyond DMTs and steroids for relapses? Shouldn't someone have told me I have this?
My mri says multiple punctate hyperintense lesions in subcortial white matter microangiopathic !! Conclusion says on report microangiopathic lesions. I have severe pain in finger tips ankles numbness tingling in head at times and very stiff in mornings. Don't no if it's white matter disease or Ms. But what I'm reading is lesions in subcortial are not Ms lesions !!! Confused. Waiting to see neurologist. Thanks doc
I have to admit the music at the intro caught my senses way off guard and my heart jumped out of my chest or so it seemed
I was diagnosed in 2016 with MRIs and spinal tap. I had an MRI and visit with my neurologist and she now says I have Transverse myelitis. Could you do a video on the differences between the two or how someone can be diagnosed with MS and then have the doctor change it 8 yrs later?
Love the smile on Dr Boster's face before the finger.... that's all I'm here for!!! 🫵
Dr Boster, I have several symptoms of MS. My brain MRI is clear of demyelination. I’ve had episodes of double vision. No explanation as to why, relying totally on the brain MRI. I find this concerning. What should I do? I’ve also had sudden onset bowel and bladder incontinence. I have total body muscle weakness. My fibromyalgia symptoms are worsening.
Dr. B Can you explain why you do less MRIs after 60
Yes please, Dr......2X...
I'm tired. Body is changed I use to take great care if myself but all that exercise has affected my health.it was going well but I had fainted...they found a AVM.
I love your videos you are so informative
Hi Dr, I just got my MRI yesterday and was wondering if I’ll be able to get correctly diagnosed if I had my braces on ? I got a head MRI, thoracic spine MrI & cervical spine . I was told after the MrI that by doing the MRI with braces would cause some hardship in reading the MRI now I’m worried .
Great video, thank you!
What if I'm allergic to scan dye😮
Thank you.
😢I have been told my frontal lobe shrinkage age 54 female. All symptoms of Ms,, waiting to see a specialist, also something about myelin which isn't good. I'm worried 😢😢
Is it necessary to always do MRI with contrast
Got the answer in the last section of video . Thanks doctor
Thanks you doc 🤘
Question how long after a ocrevus infusion I can give my self a stomach detox. If i can or able to so the the body can except the gd fruits and vegetables
It is fascinating. I've lost track of the number of MRIs I've had for MS. Probably 20+. I would have to travel like 45 min into a biger city to get a 3T MRI but there's a 1.5T MRI a mile from my house and 16 miles as well. Each more convenient. If I did a 3T I'd need to switch all the way with the first being the new baseline and going back to the 3Ts from there for the best comparison. I probably couldn't get in to a 3T within 72 hours scheduled either. I know the image quality is better and I have had 3Ts in the past but what is the real resolution difference between the technologys? I think 1.5 is like 128 to 256p and 3T is like 256 to like 540ish p but I have no idea, it probably varies depending on the specific scans parameters.
What does it mean when the neurologist asks the radiologist to use ppms protocol when booking a mri? Contrast would be used for all types I would have thought. Mine asked for this when I had my scan to see if suitable for dmt's, to look for inflammation
I'm allergic to shellfish. That along with Hashimoto's Thyroiditis, I've been told not to use iodine contrast. Are all contrasts utilizing iodine?
The contrast for MRI is not iodine, it's gadolinium.
MRI contrast is not Iodine. It is Gadolinium.
Good morning Doc. News on my health front, a doctor who was persistent scheduled a calcium score, despite hearing no stenosis, discovering a 50 to 70% stenosis in all 3 regions of my LAD. Meanwhile, all my other doctors pointed to my diabetes or even psychiatric referral. Meanwhile, I have smoldering myeloma burning in the corner of my body. I'm not sure doctors like me carrying copies of my imaging on a tablet and ask questions about certain images. My thoughts and thinking has restored some too, maybe a response to steroid nasal spray or doubling my vitamin D or is there just more blood getting by? Anyway, I found the widowmaker, before it got me. To your frustrated viewers, looking for answers, don't let them BS you, had they got me to psyche, they may have let me have the heart attack to prove I was crazy and not just an asshole that had a difficult to diagnose illness. I
What and when will AI and quantum computing begin to impact MS?
I can't have contrast.
What do you think about 7T MRIs? Do you think they’re more helpful than a 3T MRI to help with treatment or to determine what else could be happening when another neurological condition is suspected on top of the confirmed MS diagnosis? Thanks
Doc, and if I can't lie on my back (well, accordingly, I start to shake and get very dizzy. Is it possible because of exacerbations or some other problems?
Does MRI is Needed to have Solu-medrol infusion if i have new symptomps? Because My neurologist insist to have an MRI before we get started with solu-medrol cause it's the protocol thing, i'm just scared because i feel like i lose lot's of time by having bureaucracy going around while i'm like decaing from inside...
Do you take out-of-state appointments?
I had an MRI showing 1 lesion in 2008, then 3 in 2015. I haven't had a MRI again yet. It turns out I also have Chiari malformation. Are the 2 linked? My neurologist quit his practice b4 ever explaining anything about any of it to me and I only assume I have ms bc the MRI report says "consistent with ms" and I lost my insurance b4 I could get into the new doc. I now have insurance but feel like it has been so long that it is like starting from scratch. I dont even know if my regular primary DR even knows about my scans and I feel like he chalks up all my symptoms to normal aging. I try to tell him I feel like it is more extreme than that. My vision has got so bad over just the last couple of months in a real noticeable way and I pee about 60 times per day. I stood up one night and went blind in 1 eye for about a minuet. I have muscle weakness especially in my arms and my feet and toes cramp and curl up as if I was low potassium but I am not. I also have pains in my head that feel like electricity.. ughh I dont want to go into the DR saying "I have ms" when I dont know bc that DR sent me for a spinal tap and I never saw him again to go over results but I feel like not mentioning it is causing him to think I am just a normal 42 yo aging person w aches and pains.
Greetings, Aaron.
Is it any situation where spinal puncture is recommended where mri was inconclusive?
Or rather to be precise. Can a spinal determine MS where an MRI didn't show anything as a biomarker?
Can MRIs miss lesions? Can CT-scans find MS lesions?
Dr Aaron this may be stupid could please make a video on why the hell hospital do not give steroids when they find new lesions in MRI ive heard this from people like my myself oni Kesimpta doesn’t that seem like a red flag any new lesions should be a trip to the hospital for steroids am I wrong thats a flare up correct ? please explain lesions on MRI that are not getting treated with steroids doctor. It sounds stupid doesn’t it? arent people putting themselves in harms way without steroids a new lesions doesnt that seem kinda concerning. I thought any new lesion was a trip to the emergency room to get admitted for steroids. Please make a video explain this to me that’s kind of concerning. Is it not people are talking about getting lesions and they’re not getting steroids that’s very concerning that’s a flareup. Am I wrong Dr. Aaron please explain there’s people talking about having to put three or four new lesions and they’re not going to the emergency room. It’s scary to me I’m just a dude living with this this disease. Aaron, I had three flareups in less than two months because of Prior authorization to get on the Kesemptia. It’s a broken system. It really is. They’re not listening to the doctors Insurance is out to make money. Please see this understand what I’m saying. dr. arron hospitals are putting people on the Kesimptia I had a hospital doctor tell me it’s the best out there it’s even better than the Orevus sorry if I spelt it wrong. dr. is there anyway they can approve Kesimpta to make it more stronger. I don’t know if that’s possible the way it works is pretty crazy. It kills those Bone murrow cells by marking it for death like you’ve said. Doctor when did they find out cells talk to each other that’s pretty crazy. It’s pretty scary. Is it not? I think you for your videos you seem to understand this virus very well and I love your videos. I love this medicine so far I think it will do good I just don’t want anymore flareups docctor I had two really bad flareups you should see my MRIs. Doctor they didn’t think I was able to walk again it was that bad. MS came back and it was really brutal. I was on Vumurity they called to weak It’s not a good medicine from what I’ve heard they put me on a much stronger medicine. Sorry for the long comment. I love your videos. Please help people there’s gotta be something they can do to get rid of this horrible virus. Doctor I’m 36 years old. I got diagnosed when I was 32. This flareup is way worse than back then. dr please keep making videos. Kesimpta from everything I’ve heard is a miracle drug. It does good work. It just takes time. Thank you doctor Aaron MD. Explain why cells talk to each other that seems kind of scary doesn’t it B cells talking to T cells does not seem good at all. thanks so much for Dr. Arron MD.
Do you read your patient’s MRIs or does a radiologist? I recently reviewed my MRI from last year with my neurologist and he caught disc herniation that the radiologist did not catch. He told me that he will have neuro surgery review his MS patients MRIs afterwards
I dare you to say "person" instead of human for once