I'M TIRED. (3.1.19)
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- Опубликовано: 27 ноя 2024
- My body is complex... and tired.
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Guess I just needed to get that off my chest (lung pun). Thanks for understanding so many of the ups and downs of life on this crazy earth! As woody sings “you got a friend in me”. Can we all agree that song is brilliant?!
Praying for you to have a bit of a break! I watched one of Peter's sermons yesterday it was really good. I foget which one, you went up and gave a bit of a testimony. God bless you both & your baby 🐕
@@juliemaggard7094 I agree! Peter has a God given talent for speaking and ministry, as does Mary ❤
I can so relate to that! I always watch out for how does our life feel: Is it a happy and good background with up to several hours of illness and pain? Or does it start to feel like the background is illness and pain and there are only sprinkles of happiness in between? Then we really need to do something. - As long as the background feels like life, we'll be doing okay-ish. - I am sending you lots of friendly and grateful thoughts!
Quote is from Elf!
Funny I was eating apple and peanut butter when watching this. My favourite snack right now!
@@spinstercatlady , Seems like his voice is becoming more and more gravelly as the years go by! Maybe it's what comes with age, or simply being tired!! LOL! :)
Mary, don’t forget we’re the people, your people! Not just the internet. #wecarealot
I just want to say I am so grateful for you honesty about the frustration around “normal” test results. I’ve had that feeling SO MUCH and I always feel so weird for it.
It’s ok to be tired... but don’t every lose your wonderful smile! Sending you love and positive thoughts from Italy!
Mary and Peter you do such a great service in educating us about CF . I am so impressed with how you don't let a disease define you. So glad you are so honest about how some days just don't go well. Such a lovely couple you are along with Ollie 😊👍
Speaking from a Lupus standpoint. Some days are good, some days are not! I can feel really bad and have normal blood tests. And feel good with not so good blood tests. So yes celebrate the good but deal with what life hands you first. Mary, your sharing helps me live with my health issues. It makes me feel not so all alone!! Thank you!
hi mary peter and olie boy sorry about the rough day
I love you Peter, Mary, and Ollie. I’m pretty sure I’ve been struggling with undiagnosed POTS for about a week or two and I’m also tired. I love how hard you work and I just love you guys❤️
Mary I hope you read this. I know you have CF but I have also noticed something through watching your videos. Hear me out. I think you also suffer from some food allergies/sensitivities. I didn’t know I had any food allergies until I was in my 30’s. After I stopped eating all the foods that I was allergic to, it improved my breathing and over health. I suffered from bed ridden asthma for almost 35 years. Inhalers, nebulizers, weekly PFT’s, cortisone, prednisone, Tedrol, IV’s, repeated hospitalization. I am no longer on any of it! I know it won’t cure you but it can certainly help improve your immunities, and possible triggers and give you some relief! I would suggest the IGg, blood tests that detect immediate and delayed reactions. I hope this can help you at least some! God bless!
Thank you for your comment. This kind of makes sense in a very complicated way (and what part of how the body works is not complicated?) But an allergic response can show itself by inflammation (indicated by the high inflammatory markers) without an infection (which would have been indicated if the white blood count was high as they had thought by that one test) Very time consuming and tedious task to find the exact food or combination of foods that trigger sensitivities and allergies and what food combinations may prevent symptoms when the symptoms are vague and can be associated with another set of problem areas. But its worth the effort to experiment gradually and gently. Since CF affects the GI system too, not just the calories are needed, but the specific nutrients that are needed and how they are absorbed, comes into play in the already complicated situation. I know CF clinicians address calories and enzymes, but there could be so much more to learn that could help the patients, including minimizing allergies or food sensitivities. Instead of looking at the symptoms and trying to look outward to where they are coming from then how to treat, maybe look at the whole physical picture and following the pathways leading inward from the responses of each system toward what is going into the various contributors and how they function in the whole body. A lot of CF care involves treatments and procedures to "band-aid what is broken" instead of using "building blocks" to allow physiology to make the broken parts work. I really think you may be on to a new view on treating these complex diseases. Not that some miracle food "cures," but that the right foods and nutrients might allow the CF body to cope better with whatever parts are not behaving right!
Karen Fitzpatrick Thank you! I was actually diagnosed with CF as an infant. Later to be determined it was not but severe allergies. In the 60’s this was a completely foreign concept and my parents never avoided my known allergies. As I mentioned, in my adult years I was extensively tested and strictly followed the celiac/candida diet and within 3 weeks I felt human for the first t8me in my life! I know that this poor girl is on so many antibiotics that are playing havoc on her gut and the combination can most definitely create a lot of the symptoms she is dealing with. I could go on and on with the knowledge I have gained through this journey I have been on for now 52 years. I just hope something within what am said can maybe help her, even a little bit. My CRP was higher than my specialist had ever seen. I pray for her everyday !
Yes! I have Hashimoto's. If i eat gluten i feel like i have the flu. Some of my labs can be normal but i still feel horrible. I also have COPD.
Mary I wanted to thank you so much for you're talking about the uncertainty of your illness!! As much as I hate to hear that you're struggling (you guys are my favourite RUclipsrs) I live with chronic pain and have felt really alone in that recently as a young person. Just seeing of the title of this video made me cry because even with completely different illnesses I knew I had a warrior by my side in you. Thank you. Keep fighting to pick up the camera, you really make a difference.
Ive had chronic foot pain for almost a year - I really respect how you handle the difficult days. I tend to always analyse looking for answers every day & that's draining...your so great at picking yourself up & focusing on the positive..💕
I understand...i have my good days and bad days...lately, more bad than good but I try to feel better and do my best...
Thanks for sharing your rough days. I had one yesterday to. I have many health issues going on but not C.F. the way my health issues are fixed is surgery. My heart sank when my doctor told me I will need a reversion on my ostomy. I cried softly in the room when I was left alone. Surgery is in 2 weeks. I pray I start feeling better. I feel my health is taking over my life right now.
Mary our family wishes you all the smiles under the Son. We all love Peters haircut. Sending gods blessings you both. Love as well.
We are a large family here, lots of support, we all sympathise with you and boy has my year so far challenged me. My daughters boyfriend has CF and he’s suffered with stomach pains, he is gluten free now and no pains. It’s learning and knowing yourself too I think. We love you guys, so wonderful. Xx
❤️ been a rough week here too! Processing the same as you with my son's health. What do you do now? What does the future hold? What, what, what??? I have multiple questions too and it is a matter of figuring out which doctor the question relates too. I agree, too much in one Day gets to you. Crying helps relieve the frustration but then you move on again. Take a break from it all. I did tonight, ran away to visit with friend and barely focus on the medical side of things, just general life. Tomorrow is a new day. I am grateful for our team of doctors trying to figure out my little puzzle piece son.
You break my heart. You try so hard to be cheerful. I feel selfish when I complain of head aches or fixable things
Totally feel for ya with the whole not knowing what's going on with your body when tests come back normal. I totally understand the feeling. I have a lot of medical issues myself. I often joke that I'm a "Medical Rubik's Cube" that no one has been able to solve. It's tough when you just keep hitting dead ends when trying to figure out your body.
I SO know that feeling of celebrating normal tests-but then being left with wondering why I’m feeling so bad-sometimes a positive test is reassuring...sometimes! THUMBS UP FOR MARY TODAY!!! 👍We are cheering for you!!
You certainly are a strong woman 💪🏼 👩🏼! You push through and your still smiling! And your faith is so big that’s a big thing! You have inspired me in the short time I’ve started to watch your videos! Peter is the perfect example of a loving and caring husband! You two are perfect for each other!
Sorry you had an overwhelming day.... I totally understand the frustration of "everything looks normal" but then not understanding why you don't feel "normal". Love you guys!!
You are so amazing...when you came on you were so frustrated and defeated and as you talked through your feelings you started to tell us that we can get through anything and suddenly you sounded better and more positive and no coughing for a few minutes. My heart is with you always...
With chronic illnesses with every day symptoms, it can all get on top of us sometimes and we feel broken. That's OK. We are allowed to feel what we feel and have days where we need to cry, take it easy and ramp up the comforts. Then afterwards we can pick ourselves up again. The getting no answers from tests is so relatable too.
Peter the hair isn't bad, a change can be fun sometimes and I like the short sides!
As a fellow chronic illness fighter, I have to emphasize about 2 things here.
1) "Normal" test results REALLY stink sometimes! I remember getting in my car after one dr visit and just bawling because I had finally just had ENOUGH of "normal" test results. I wanted answers, darn it! I was soooo frustrated!!!
2) Self tracking and self reporting can be such a chore! I've got migraines, and we're still trying to find the right rx. Of course the only way my team knows what's going on is through what I report. Being diligent about keeping a log is...still not something I'm great at 😕
Ohhhhhh Mary love ❤ I am so sorry that your coughing and body are "bad" lately. I wish you could have a break from it all and get some good sleep and some good relaxation time in. Peter's hair looks great after the haircut 😊
Mary I pray the Lord blesses you with good health!! Your in my prayers!!!
My heart goes out to you. Your chest and muscles have to hurt from so much from constant coughing. No wonder you are tired. Praying for both of you🙏
yes to the test result thing. I had borderline inflammation tests, not really bad enough to be BAD, but my fingers were already twisting and knobby. Of course most of the symptoms you can't SEE, and I was "No really something is wrong!" So glad to get it figured out, but I will say, winter is very much harder. I know the worst for me is HIGH TEMPERATURES, so we won't move. South, but I do struggle in the winter more. So much more sleep. So much more pain. Where is the land of about 65 degrees year round? But YES FOR LAUGHING!!! Crying some and yet coming on RUclips to listen to you assure me "you are NOT ALONE!" I hope you know YOU are not alone also!
Hawaii is about 75 degrees year round. It never gets real hot, and seldom gets cold.
Thank you so much for mentioning grocery pickup. We tried it after seeing it on your show & my DH broke a toe. It makes me so happy to be better able to help my family shop for groceries.
I feel similarly about ‘normal’ test results.
Hi Guy`s , Mary I am so happy and honored to witness your processing and ending with a Sunshine Smile !! :) Crying is so healthy , go to any library and take a book out on psychology and 99% of the time it will mention letting go of emotions as a path to healing. If you need to cry , I will be more than happy to pass you a virtual tissue :)
Peter , you got a hair cut !! I thought it was fine before , but it looks fine , in a few days you will get used to it anyway :)
Mary & Peter + Ollie , my opinion is your body is burning up , IF , your fasting blood test is accurate and your white cell count is in fact in the normal range , I would suggest getting rid go the inflammation in your body. Certainly you do not need to have a doctors eye to see your rosy cheeks / unstable sugar levels , and still have a normal white cell count ???
To me it can only mean inflammation is causing your body to fight so hard it is using ALL the energy ( the sugar in your blood ) you have to fight. I would have to suggest going back on prednisone , I know the risks involved , the reduction of your immune system , but we must but the fire out. Peter I dare say you might agree with me , you see Mary far more than 10 ~ 15 min. per day , if she is constantly flushed / tired / hungry -- but not , inflammation .
You have my prayers and my thoughts , I would run this past your team to see if a overly inflamed body could be todays root cause.
I still believe there is an autoimmune disease correlation with CF.
Take care , thoughts are with you guy`s , all my best , Gary
Absolutely agree , Mary is fighting so hard , there very well might be secondary infections forming somewhere the doctors are yet to be aware of. Meanwhile , all we can do is offer guidance and support. Take care , Gary @@gypsythehoneybee3261
The Peter Style Mohawk, looks good. Doesn't one of the Jonus brothers have hair kind of like that? I think it looks good. Keep smiling Mary. 😀👋
YOU ARE DOING GREAT!!! I know u are always a positive person and will get through this overwhelmed feeling! Just keep ur head up Mary!!!! Sending all the love and prayers!!!
I haven’t been on in a while and I’m so sorry to hear you’re having a hard time. I hope the coughing will subside, at least to the norm. Big hugs from Ohio ❤️
You are Wonder Woman, I always stand in amazement at your strength! Praying for a better day
Hi Mary and Peter sorry you had a bad day. I have emphysema or they call it COPD. I'm on oxygen when doing exertion, which can be just taken out the trash. But I'm an old 63 and it started to slow me down 2 or so years ago. It is scary when you can't get air. I'm terribly sorry you have had this from the get go at such a young age. After watching you guys for a while now I asked my pulmonologist about CF and didn't like what all she told me. I hope tomorrow is a better day for you. As we know prayers work and you get mine daily. Hugs to both of you and a pat on the head to Ollie. Don't really know you guys, but you have my love. Take care.
Mary your brave and strong! I’m sorry you’ve had a tough day!! Prayers!
Falkor and I are thinking of you. My health and home life has been flipped upside down recently. But knowing we’re not alone helps . You all make me smile...especially OllyBoy...sorry😉 Sending spoons, love, positive vibes & prayers. 🧡🐶🤗Tracee & Falkor
P.s. Peanutbutter & Apples...YES!!! Falkor s favorite snack🍎🥜
You are so strong!! Thank you for your inspiration!
same thing going on with me girl!! it sucks when nobody can figure out what's wrong. you're always in my prayers 💜💜
I'm not sure why, but Peter saying "poofy" cracks me up
As Mary was talking and she mentioned the word complex, a Bible verse came to mind that says: Thank you for making me so wonderfully complex! Your workmanship is marvelous-how well I know it. Psalms 139:14
No matter how complex we are, we are special in Jesus’ eyes ❤️much love to you guys 😀
Please have your B12 checked because my Mom was feeling incredibly shaky before she started needing B12 injections.
Sending hugs and prayers that you start feeling so much better!!!!
Mary your amazing girl! I couldn’t imagine what you go through on a daily basis! You a inspiration to all!
Praying for you both. Fabulous ending from Peter "The internet confounds me sometimes." Pretty sure that's a very good thing. 😉
Thank you for sharing your day. The good and bad! I’ll keep you in my prayers!
I just want to bless you, Mary and your whole family. may gods blessings be upon you.
spockck thank you so much! We feel His blessings so tangibly! Thank you for your kind words!
Thanks for sharing. I can;t say "I understand" because I don't, but I do care, and pray and empathize with all the things that are incorporated with what you share. You definitely have a friend in me (I love Disney). Life is full of that "fuzzy math". Your attitude is admirable and appreciated.
My T-shirt arrived Friday. It’s fantastic. Thank you
Oh Mary. :( Have you considered perhaps you're feeling weird lately because you might be feeling anxious? Sometimes, you can't really pinpoint where it comes from... but with everything being "up in the air" lately with blood work and things, you might not realize you're feeling anxious when you are. It's not easy! I wish I could switch with you and give you a break for a day.
Stefanie Roy anxiety in the waiting is such a real life struggle- I feel like this is something that ALL humans can relate to. Like you pointed out in my life currently, today the waiting for blood work answers, or waiting for a treatment plan- all the waiting can allow my heart and mind to run a million miles a minute! I’m gonna give you a spoiler alert... after processing through all of this, praying, eating, resting... last night, we made a late night target run and had such a fun time :) we even filmed it and you’ll see it on Monday :) thanks for your care and kindness Stefanie!
@@thefreylife , Very true! It's amazing how a simple Target run (or the like), can divert us! :)
I agree, I’d trade a day out to give sweet Mary a break. I am guessing many of us would if we could!
@@shannonlandis5224, absolutely! I definitely would. Although she might not like my body much either since I have chronic illnesses too.
Stefanie Roy Anxiety is Rough...
"Smilings my favorite" ~ ELF 😂🤣
I agree..smiling is pretty awesome. I hope that you are able to get some relief Mary! You are in my thoughts and prayers🙏🙏
love you guys
mary you are such a hopeful soul...it lifts people who watch....and your husband is truly an angel from God....
I hope you feel a bit better soon Mary
I get shaky when I'm feeling anxious,could it be that your suffering from a bit of anxiety? xxxxx
Awww...Mary I wish I could do something to take away your troubles. You're too sweet to have to deal with all this but you sure are a tough young woman. Stay strong and go with the flow. Peter...your hair grows fast! My 22 year old son is the same way. We call him our chia pet...it just grows and grows out the top! Hair looks good..have Mary take some off. Love and blessings to you both.❤❤❤
I totally understand the frustration over normal results. I have recurrent pancreatitis and actually just ended up in the hospital with fever and severe pain. I was so disappointed when they said my lipase was normal, but they believe my pancreas is starting to burn out from repeated attacks, so they believe it’s still pancreatitis
Again, Mary, some inhalers cause shakiness it could be that?
Katie Ahronson especially, albuterol
Good point. Mary was put on another inhaler. Never thought of that.
So true! albuterol is the WORST!
Nebulizer treatments do that too
Is albuterol the same as salbutamol or is it different?
Love you guys. Peace and better health to you Mary. Your a great woman , Mary - Courage and power on! -sandy
Mary and Peter you are a great wife and husband and hope feel better and keep Oliver close to u because dogs lessen stress and let u relaxes and I love ur Channel I just want u to happy and to start to feel better
The unknown makes everything worse so does frustration. Sounds like you are very anxious, anxiety can make symptoms worse. Talk with your doctor about some relief. ❤️❤️❤️❤️
Praying for you right now!!!!!
FreebirdTMH thank you!
I'm a barber. It's perfectly okay, and us barbers don't mind at all, if you pop back in the shop and say "it's still a little long on top". We can fix that in a jiffy and would rather have a happy customer. 🙂👍💈✂
Mary anytime you need to talk I am here to listen my prayers are always with you god bless
I have so much admiration for you Mary. I pray you feel better soon. Peter, I actually like your haircut. Love you both ❤️
My heart is sad for Mary. Sending good vibes and prayers your way!
Praying for you Mary!
First hope you feeling better! What you do It helps the healthy people understand what it is like to be constantly sick. The daily struggles you deal with. Documentation as you call it helps the medical field with what works and what didn't to find a cure. Will keep Ollie, Peter & you in my prayers. Sending 💖 from WI
I know how hard it is somedays! Keep up the positive attitude and enjoy this time! Hi Ollie boy!!
Your authenticity is what makes you guys who you are!
Love you Mary, Peter, and Ollie. I am sorry you are having such a rough day.
These are such nice people and a wonderful couple. She is getting much worse and I wish there is something that can be done to help her. I guess we can do what we can and pray for her to get stronger and improve.
Mary I have to admit I cried when you started vlogging. You are such a trooper and I admire how you are so honest with your life’s ups and downs. Sending lots of hugs 🤗 and kisses 😘 (😷 of course) xx
you both inspire me, and help me on the trying times I'm having. I'm legally blind with thyroid issues & IBS. I'm mostly I in allot of pain with the ibs BUT the encouragement you both give me & god, I'm a warrior! I love u both ! ♡
Prayers for you Mary stay strong love you all!
I get shaky sometimes thinking my blood sugar is high and I check and it's fine so I get what you mean by frustrating when you feel weird but everything is "normal." Love y'all and praying as always even when I'm unable to comment due to my own health.
Mary, I have asthma and wheezing and cough but watching you struggle just breaks my heart. Please take care of yourself.❤️❤️❤️
Mm
Sending love and prayers dear Mary. I am so sorry for what you're going through. Peter your new haircut looks good. Bless you both and Ollie!💖
I definitely know what you mean I’ve been trying to find answers with my pulmonologist with almost acts like a GP he just really wants to find out what’s wrong and I’ve had those appointments with specialists where I just leave in tears because it can be so confusing to not have answers. I’m hoping for everyone struggling with health in any way to have at least a good distraction to come by and help us get through these rough days!
I can really relate to the frustration of getting normal test results back when there's something obviously not right with your body. After being ill for a long time you usually have it right when you feel something is off. Or more off than usual. But I'm glad for you that your cortisol was normal. I have adrenal insufficiency and I wouldn't wish that on my worst enemy. So with everything else you're dealing with I'm glad you don't have to add the struggles with cortisol levels too on top of that. I'm in that stage where a lot of other hormones/test results are way off too besides my cortisol but no doctor cares and/or knows enough to do anything about it. So I'm stuck feeling like crap and know something is wrong but I don't know what and how to fix it to be able to feel at least a bit better.
Sending you kind thoughts and hope. X
I understand the frustration but dont give up Mary keep pushing forward.
Could shakiness be a long term side effect of any medications you are on? I'd read about them online, or check with the doctor to investigate. I hope the coughing eases off for you.
Praying for y'all.. I hope it gets a little better for you Mary! The vlogs make me smile. Thank you guys! 😀❤❤❤💙💙
Mommy used to say that . It gets hard for us loved ones and caregivers. I really feel for you both.
No diagnosis for me either and I scare my circle of docs to death. Scares me to death and the next episode might literally do the job. I feel your day girl!❤️
I found this on good ol’ Google-Mukbang-made up of the Korean words for “eating” (meokneun) and “broadcast” (bangsong)-originated in South Korea in the late 2000s-10s. So that’s where Mukbang came from!
One thing I've learned about dealing with chronic illness is that you have to have a ton of patience. And sometimes that's hard to do. It's like we spend so stinkin much time waiting. Waiting to hear from blood work, the doctors advice, waiting to just feel better, waiting to figure out something that we can't figure out. Waiting in the waiting room. Lol. Had to throw that in there. And processing, I can totally relate to that. Sometimes you can process till the cows come home; and then you just have to make a target run. Lol
Mary, I just want to reach through the screen and give you a supportive hug. Especially while you are coughing. Peter the hair is OK. I always tell myself it will grow out fast. You are looking weary get a good night of rest, you got important work to do tomorrow. God will rich and bless you both.😉
Sorry you had a rough day Mary, we feel you sweetie!
"Mukbang" originated from Korea, where it's been wildly popular for about ten years now! Korea has a very strong dining culture, where eating is a communal experience. Watching a mukbang (translates roughly to "eating broadcast") while eating is kind of like joining someone for a meal.
Mary could cut some off the top
Praying you have some better feeling days coming up.
stay strong! we love you you’re so beautiful by the way ❤️
Oh honey I hope you feel better and I love the haircut you kind of resemble your dog Ollie how sweet I grew up hearing my mom say we always resemble our dogs there are personalities seriously I hope everything works out for you love and ((HUGS)) 🌹❤
Love you two,I have been following you forever but have never commented,Mary I admire you so much as you deal with all your trials,Peter you are so very supportive & intuitive to Mary’s situation.My struggle with sarcoidosis(no comparison)& I so get what you have just said about results....”Great news re results”so why am I feeling like this...I want a reason!!!Much love to you both💕💕💕🐶🐶🐶
Love and prayers coming your all's way.
I mean to say that I face that same type of uncertainty and it felt good to know that I wasn't alone in that. Have to edit my long comments better haha
Prayers up for you Mary
Smiling is my favorite is from Elf; I love Elf. 🥰 I’m in the same situation as you right now. All my bloodwork was normal, for me, but something is clearly not right. It’s frustrating. I still have more tests to run next week, but most of the serious problems have been eliminated. You’re not alone. 😋
I'm going through the same thing , I hope you find your answers !
jennifer pearson Thank you ☺️I hope you do as well. 😇
Love you Mary...in my thoughts and prayers sweetie....
*hugs* and prayers Mary! 💙 “Smiling is my favorite!!” Is from the movie “Elf”
I get fed up with feeling so bad and Doctors refusing to acknowledge the fact. Now my GP is insisting I don't need pain medications, I suffer from chronic pain, due to skeletal and musclar issues. Twenty year old bi-lateral TKRs,
ITB issues following a repair bought on from a fractured femur four years ago, bulging discs in my lower back even following three RFN treatments and attempting to delay a shoulder replacement. As well as eating issues due to a Hiatal Hernia type 3, without treatment. Specialists telling me my bones are forty years older than my actual age but hay! Nothing wrong with me. The Government is now insisting that we are required to stop taking Opioids due to idiots ODing on street drugs. Just like of other sufferers, they want us to shut up and put up with it.
YES, this "war on drugs" is RIDICULOUS! It's going to cause true pain patients to either go buy on the street or the suicide rates are going to increase. Pain patients AREN'T the problem addicts ARE!!!!!! It's seriously screwing us real pain patients and that's both sad and scary.
Have you ever checked out the possibility of it being an inflammatory arthritis such as Ankylosing Spondylitis? Or just even Spondylitis? It often hits some people in mid-teens, others when they're a little older but is often not properly diagnosed until at least a decade later. There are now good treatments for it.
@@misszsazsa6288 Thanks for this information. Each area of pain has developed at different times, diagnosed by CT or MRI with ongoing nuclear bone scans, to rule out infection. I am under a Pain Specialist so I will raise the issue with him. Fortunately I successfully battled the application process and was placed on a Disability Pension for five years. Now I have been moved to the Aged Pension. My Pain and Orthopaedic Specialists acknowledge my issues and have been treating me for years. It is now just over a year since the Government in my country decided to remove any over the counter codeine medications and put the screws into GPs to stop prescribing. We can't access medical cannabis, even though the Government legislated to legalise it. I am approaching 66, so why they are deciding that we shouldn't have chronic conditions and pain is beyond me. I am fed up with politicians who have no basic medical understanding, interferring in medical issues.
@@MissaLVT You are 100% correct. This has been my thinking also. Considering I am allergic to morphine and have issues with fentynol patches and other pain relief patches, I have few options open to me. If I as thirty or forty years younger, I could understand their concerns but not at nearly 66 and after over forty surgeries in the past 45 years. It isn't as though I have a low pain threshold. After fracturing my femur overseas, I went about ten days without treatment and had to travel 28 hours by air and car to reach home. That process was only possible because I travel with a small mobility scooter, because I couldn't weight bear. Specialists aren't the issue, it is General Practitioners that are the problem. No GP has ever done anything to help me? Only by having Private Health and demanding referrals have I survived over the years. Come the time that they operate, it is always followed by "I didn't realise just how bad it was".
@@Lyn4817 I'm 38. Been in pain since I was 18 or 19. It's gotten progressively worse over the years and now I spend most of my days in bed. I've had over 20 surgeries and procedures done to try to help with the pain but nothing works. Thankfully I'm at a pain clinic that's known me since 2006 so right now they're keeping me on the meds I've been on but I'm terrified for the day that they decide to take them away. I already have to choose between my anti anxiety meds or pain meds. I had to choose pain meds to live but my anxiety is through the roof now. It really sucks! It shouldn't be up to the government as to what meds I get, that should ONLY be my doctor's decision!