My husband is watching this with me. He says a lot of the symptoms Migraine Jen is dealing with are the same ones I deal with during a bad POTS episode. The specific ones he pointed out are: Rapid eye movement, clear thoughts but trouble speaking (which makes me so angry!), gasping for air after saying a sentence, palpitations, needing to sit down, shaking or tremors, muscles tensing and brain fog. I just wanted other Potsies to know they aren't alone if they recognize those symptoms in themselves. He also wants me to tell you he was VERY concerned for you once you got to the bathroom. He wanted to go through the screen and make you lay down because that is how I look/act right before I end up collapsing! 😄 Thank you again for posting Migraine Jen. It is so comforting to know I am not alone in this struggle. ❤️
I'm sorry you are going through this 😔 and thank you for your detail- reading your story helped me feel less alone. As for taking a seat... that's what Buddy is for! He hadn't alerted, so I knew I was fine 🥰 if I didn't have Buddy, I wouldn't have continued past when I grabbed a stool in the kitchen.
@@MommingwithMigraine That is why I am working on getting my own POTS alert dog. It is so hard to know for sure when I am going to rapidly decline, so hubby is always on alert. It would be nice to have a dog to give him a bit more comfort and me more security knowing my dog will alert me on days where I am so iffy.
@@sarahkwast1250 So lucky to have a hubby who is on top of it, but a SD can take a lot of pressure off the caretaker. It's a big commitment too though - my husband does a lot of Buddy's care. I wish you the best of luck with your journey
@@MommingwithMigraine We have spent a lot of time weighing the pros and cons of a mobility/POTS alert dog. Hubby actually took a step down at work so he can work from home to support me. I am hoping an alert dog will give him the peace of mind and the break from constantly being 'on duty' he deserves. It is truly a blessing to have an understanding and supportive husband for sure! I am so thankful I found your channel and am praying you find the answers and solutions you are seeking. Sending love, support and hugs your way! ❤️
What's so impressive and crazy is that regular Jenn had no idea Migraine Jenn had made this video. I'm impressed by how well you manage your life, and continue to be saddened that you are suffering as much as you are and have to manage the way you do
I feel like im watching myself during a migraine attack when i watch these. I know youve gotten more in depth diagnoses since this but i am so thankful for this channel❤
Buddy nightmares, especially if you can't get to him. I tell my dog, " what a good boy, come to mama, oh what a good boy" I do this while patting my thigh🐶 Amazing how fast your positive voice calms your dog!!! 🐕
I love the nuances in the editing of the video - the starting/stopping of the music, change in music, the little comments to explain symptoms or Jen talking to Migraine Jen. It helps to explain some of the things that you are experiencing throughout. Also wanted to let you know that you got me addicted to Huel. My body doesn't like having regular food for breakfast most mornings (especially on workdays) so I have really enjoyed finding Huel on your recommendation. I have been wondering - What flavors do you like the best? So far, my favorite is salted caramel. 🙂 Thanks! All my love to both Jen and Migraine Jen! ❤️
I precut easy to grab food like meats, cheese, fruits and veggies so when I'm not feeling like I can stand for those few minutes I can still eat healthy. I batch prep things like boiled eggs as well so there's always an easy to grab option. I use a Google home as well and we have a few around the house. Most of the lights are controlled by it which is nice to not need to walk over to a switch ever. We have routines set up so lights in areas like outside turn on at dusk. Anything that can be prepared in advance I do as far in advance as possible in case I'm having a hard time when I am trying to go out (with someone else driving) and I keep a list of things I need to take with for every situation like going to the dog park, doing errands, going to an appointment, visiting family for the day or night, going camping etc so if I do need to pack during a flare I have my list to help me not forget something critical.
A few things I add to my hacks list is a shower chair, ginger candies, liquid IV powder, dry erase markers to write reminders on mirrors and windows, and multiples of all my essential items to store in different locations (work,home,car,purse) thanks as always for a great video ❤🥰
Agree with the ginger candies and electrolytes. I’ve actually been loving Elete electrolytes that have zero sugar or artificial sweeteners and more potassium/magnesium vs sodium. I can mix it into whatever I’m drinking.
What you said about separating yourself from your disease really rang true for me -- I've found that helpful with my mental illness, to separate my thoughts and feelings from the lies my disorder tells me or the mental gymnastics my brain needs to compensate in certain situations. For instance, if I'm experiencing rejection sensitive dysphoria, it's not that *I* believe my friends don't love me, it's that my *brain* is telling me that they're mad at me. This makes it easier to explain to other people without sounding like I doubt them or they're bad friends, and also easier for me to tell my brain to shut up and stop being mean and unrealistic while not invalidating my emotions and what I'm feeling. What my brain is telling me is a lie and not real, but what that lie makes me feel is still real and deserving of compassion and patience, and both those truths can coexist.
Instead of a conventional "2 in 1" shampoo, look for cowashes. Short for conditioning wash. You're more likely to find sulfate free options! Manes by mell likes the one from Cantu
That’s an awesome suggestion. I can’t do sulfates (sever allergy) so I can’t find many 2-in-1 options. Any suggestions of where you find these? Amazon? Target?
Most drug stores, target, WalMart should all have this kind of stuff. Look for the textured hair section and black owned brands. Cantu, Shea moisture, Maui moisture, and mielle are all common drugstore brands that do sulfate free products
Oh my goodness! You are so cute and hilarious! Thanks for putting a humorous spin on migraines. Even though us sufferers know how debilitating migraines are, it's really nice to watch some light hearted content regarding chronic pain/illness.
The First minute and a half was exactly me this morning- tremors and even still damp hair. Thank you for bravely sharing your "attacks". Not only are your videos informative, but I can use them as example of my own "episodes". You and the community you're building here definitely help to ease the isolation and related emotions. Thank you! Hope today is less painful for you and your subscribers!
Smart Light bulbs. Very helpful when the lights need adjusting but your feeling sick and don’t want to get up as well as many other reasons. And you can link them to Alexa.
I can tell by your voice you are definitely not feeling good. When you’re done with the video please lay down and try to get some rest. I know you’re trying really hard in this video and I’m proud for you. But if you can’t finish the video I totally understand. Because I also as a blind person suffer from severe migraines where I’m on two different kinds of medicine for it. And I do the same I have stainless steel cups two of them two different size and I have two packs of The straws that can bend because when my migraine hits I’ll lay down in the bedroom. And my guide dog if I’m sitting up and he puts his body against me I know to lay down. But I truly hope you feel better really soon. Because I can tell in your voice you’re not yourself.
Good morning! For those wanting to pursue CSF leak diagnosis, I just happen to be at the radiology department at Harborview Hospital in Seattle, for non-migraine related imaging, and saw that they do a specific 'CSF Leak Scan'. It is NOT a basic MRI.
Man sister ...you must be a strong woman. When I have a migraine the pain is so bad I have to lay down. I sure couldn't do a video....and I don't even get all the terrible symptoms you do. You are like a superwoman.
I suffer from migraines,cluster and tension headaches..and when they come on I get spasms and shakes, im pretty much bed ridden, there is no hope of functioning..and they ALWAYS make me so incredibly nauseous that I always throw up..which only makes it worse because of the force.. Luckily they have lessened in frequency for me. I really appreciate these tools and tips because I have a small window of functioning at the start of an episode and these can come in really handy
Thank you for sharing this, I get the feeling I have a migraine coming on as I'm exhausted (more than normal), yawning tonnes and feel like my entire body has got very weak. Think ill make a smoothie before the pain starts too bad (always have a headache so can't say before the pain starts) Also very forgetful today apparently
I love your content as a fellow migraine sufferer and especially your sense of humor!! I can’t thank you enough! Sending so much love and positivity your way!! (And to all your followers) 💖 Lizzy
I have never had a migraine before. It looks awful. This video shows what you go through perfectly. Wow. Keep digging into the CF leak. You need answers. Good luck.
We order catering sizes of chicken wings and pasta from a local take out place, divide them up, and freeze them. It's so easy to just throw in the oven and heat them for 10 min when I have a migraine and cooking is hard. Making your own is cheaper but I really like the take out ones and I only use them for bad migraine days. I also have ear plugs made for concerts. They make everything quieter but I can still hear if someone talks to me. My parrots think they're toys and do what ever they can to pull them out tho, so there's that. ;) Thanks for the tips.
I have chronic migraine but I’m also visually impaired and work a guide dog. My dog just started detecting my migraines this week, he’s only officially trained to guide. One of my migraine hacks is an ice hat and have 2 so one is always in the freezer. I also have learned to sit while doing laundry, i use a front load washer.
Two weeks ago I was diagnosed with bad migraine and just learning what triggers them and I find that mountain dew triggers them and milk so this is a good way me to understand my migraine better thank you.
I am going to have to keep this video at hand anytime I need so that way I can try and remember some of these tips and tricks for dealing with my own migraines and yeah I have intractable global cluster migraine headaches
Wow, you have pretty much the same symptoms I do... except with me the pain and nausea has the upper hand.... (Though my husband says I am pretty much like you when I have an attack). So, my hacks for when I have migraines, even the ones without much pain or nausea.... I don't like drinking water, but have found out that drinking diet coke actually works... the caffeine in it actually helps me. Also, I always get a washcloth, wet it thoroughly and put it on various parts of my head an neck. Then the third is that I have this gel with diclofenac in it.... I slather that stuff all over my neck and shoulders and it helps. Oh and lastly... locking myself in a dark room with a low temperature also helps...even if I just do it for half an hour....
Finally, a way I can physically show my neurologist what it's like living thru & with complex migs. I hate, hate, hate how unreliable hands become. I drop things so many times, even when I place them, with the upmost care, on a flat surface. Obviously that makes my headache worse because I have to lean down & pick them up, which makes the nausea & migraine worse. I also have a grabber to reach things, but tilting my head up, even one centimeter makes it worse & triggers the neuralgia. Tilting it forward nakes me more likely to fall, or trip or increases the nausea or triggers the neuralgia. The way we get confused, forgetful, or lose our train of thought & wobbly gait makes me look stoned. It looks worse because we slurr our words. I had 4 nerve blocks around the occipital nerves & made the former pain feel like insead of exploding w a mig, my head was imploding w pressure. I could deal w that better, but the nausea levels are now worse, much worse. In my experience, sometimes the headache can be worked thru, but not the nausea or stomach pain. Does your stomach hurt too? I need to get some of the egg warmer/containers to make food. As hard & as slowly I try cooking, I invariably forget to turn off the stove. I've burned clothes & pots & pans, exploded plates & glasses. Last one, I picked up a hand towel from the bathroom & began warming it as if it were a piece of steak on the grill. I have NO idea why my brain made me do it, why a towel, how I got the towel, (I forgot most of this until I saw the scorched towel). Fortunately, I was startled by my dog barking, but for me, the worst thing is, the absolute "does not compute" or "it's not important" non-attitude. It's not normal to faint, be picked up, & start using the computer or after realizing one does not cook towels, some of these symptoms & actions. Why do I not think it's an issue or worrisome to faint, to cook a towel. My family will help me stand up, but I just continue as if unaware & unconcerned about my previous actions, no sense of danger or importance. Soc.Sec does not want to give me disability because there don't appear to b any physical explanations. They send us to a shrink...um, do people who have a regular headache & take migraine attack meds benefit from them? Can a person get pale, hollow eyed, runny nosed, slurr words, forget, lose train of thought, at will? I know I do not wake up every day planning how sick I want to b that day, or what symptoms Iwant to have or deal with. I love my family, i used to be intelligent & curious & funny. I wake up hopeful for a new day, I want to do things, I want to smile or vomplete a craft project,etc. I don"plan to be in pain, nauseous & tired. I don't choose to forget what !happened 5 seconds earlier. Sometimes as soon as I get up from bed, I get the migraine. Anyway, 3 things that sometimes help: ▪︎ during a mig. Episode, get a glass, add about 1/5 teaspoon of Himalayan pink salt, squeeze a full lemon (or use bottled lemmon juice)& add about 2-4 oz of MINERAL water. You can change the proportions to what works best. It works because it is a true chemical reaction & it's healthier than medicine. It often works. I would run out of meds otherwise. ▪︎Second, at most pharmacies, go to the stomach care section, whre they have pepto bismol, and get a package of Nauzene chewable tablets, it's a homeopathic supplement to help w nausea. ▪︎3rd, as my biggest trigger is light, specially sunlight, my house has protective film on the windows & as dumb as it sounds, I wear polarized sunglasses & use weak artificial light to help myself. ▪︎No, it's not dumb... straws, specially the ones w the bendy tip are life saviours. ▪︎ zthis last one might not b good for you, but I have found it the only other way I can get thru a day...it only works 50% of the time...benadry(it also helps w the runny nose) to put myself to sleep. I cannot fall asleep w a migraine, but sometimes I can use Benadryl to sleep (or be hyper, like I said, it's 50:50.
Oh, btw, my favorite hack that’s been an absolute LIFE SAVER is my heavy duty massage gun that my hubby got me for X-mas last year. It came with multiple attachments & is super strong. After I have a seizure or if I injure myself when I pass out, my massage gun is the best tool to help relax my muscles so I can recover even quicker! Another favorite, when it’s chilly I rotate between multiple pairs of hospital grade compression leggings. (they were each given to me to wear during a different surgery) And by leggings, I mean they literally go all the way up to the crotch & are tight which I find helps my symptoms
I get suck bad speech delays and part of that is because I loose me train of thought and will completely zone out mid sentence and then forget what I was talking about. Talking has been difficult. I already have a stutter normally and it gets so much worse. Also LOVE your bathroom especially your shower!! It’s so big!!!
I use a chronic pain bath salts and they help me for at least the rest of the night. It’s a smaller bag but it’s with the other bath salts in my Walmart
I use a green Allay light that helps me function without the photosensitivity that I normally struggle with. I lay with an ice pack behind my neck on a neck roll which helps reset my spine and chill the migraine. I sometimes also chew ice chips.
I love Migraine Jen so much! She makes me feel better because we are so similar when I am not doing well, and it makes me feel like I'm not alone or being silly or anything, because Migraine Jen is badass! I completely relate to having fully formed sentences and thoughts, but it just not being able to come out of my mouth, and sometimes its like my thoughts are in a washing machine tumbling round and round. My condition is morphing a lot, and it can sometimes be scary to try to do things when I'm not well in case I mess things up, but your videos make me realise that sometimes messing things up is fine, just try to do it in as safe a way as possible
Sumatriptan kills my migraines pretty quick, I definitely recommend getting a perscription for it if your suffering. Luckily my migraines don't last all day and I can usually count on them being over in a fee hours at the most bit still very painful , with lots of anxiety, nausea, tingly feeling in fingers, constant yawning, and restlessness
It was so crazy, when you went down stairs for the last three things I could tell immediately that you had gotten a little better but then heard the decline in the tone of your voice. Migraine Jen’s voice is so different. It’s more questioning, and less gravelly (I like the gravel in your voice it’s sort of soothing)
Also my migraine hack is those gel eye masks they usually have at spas. I don’t even necessarily put them on my eyes. But it’s so nice to have something cold that is attached to my head so I can lay on my side or walk around without it slipping
I am definitely going to get some big headphones for my walks outside. Such a great idea! I hate small talk with neighbours, especially when im not feeling my best. ❤
Definitely have to show this video to my gf so she can better understand what it's like. Also you've gotta share how you put on the headphones while still recording!!
Migraine Kelli is why we have so many Alexa’s in our house. We have 4 kids, and I can’t always get up and around. She offers me a way to communicate from wherever I am, my neighbors are listed as emergency contacts if I have a really bad time and need help, and it keeps me from hollering for kids for meals (2-story house, ya know). I’d like to add my walking sticks to the list. I get hemiplegic migraines, which kind of look like a stroke, so walking gets super hard. So, I keep some of our walking sticks strategically placed around the house, in case I need stability to move. My weighted blanket and heating pads are also, must-haves. Heating pads help with the neck stiffness, and the weighted blanket is great for when I get the full body tremors. I haven’t tried Huel, but I do keep my favorite assortment of frozen fruits in the little freezer above my fridge, for quick smoothies. I forget to eat, when I get migraine-y, a lot, and that is something easy to make that also doesn’t upset my stomach. Bonus: my 11-year-old loves to make smoothies for Mom. And, final one, a mini fridge in my bedroom. On the days that I just can’t get out of bed, stairs are an absolute no-go for me. So, I have a mini-fridge in my bedroom where I can keep cold drinks and small things for me to snack on. Life saver!
I normally have fairly dark sunglasses in reach as the living room/kitchen area in my home doesn't have curtains I can close, and I get terrible light sensitivity. I can put them on if I need a drink or something to eat, and I don't feel the eye/head stab when as bad when I walk into light.
Watched this while literally wearing a Huel tshirt and drinking Huel for breakfast. LOL 100% agree that it rocks when you aren’t feeling like food but need to eat. Also find I have fewer migraine days and shorter postdromes since Huel became my breakfast routine.
Could you show us your ginger tea recipe some time? Also I just wanted to say I admire how well you handle your migraine and pots symptoms at the same time!
Thanks for the kind words! It's a lot, haha. That's why I want to get to the bottom of it so badly! My full Ginger video is here: ruclips.net/video/_0w3IVDEPao/видео.html ... I believe I make it for you in my Day in the Life Vlog: ruclips.net/video/xEmQJlhCUVw/видео.html
Hi! My migraines are not as strong but I do have a couple of hacks besides some of those mentioned. Most of my attacks develop overnight so I wake up with an empty stomach and very strong nausea. I keep a bowl under my bed (it has those large drawers underneath) because I've cleaned enough vomit on the floor and bed clothing to know I can't make it to the bathroom in time (even though my migraine self thinks I can). I usually can't eat during the episodes so after being 24+ hours (sometimes 2 or 3 days) without eating and with all the exhaustion, when the episode starts fading I get really hungry. At that point I can't eat anything flavorful or smelly or I'll just end back where I was, so I eat bread or plain rice. If it's possible my boyfriend cooks me some but if not I keep some microwave rice cups that take two minutes to cook because I can't handle the smell of anything cooking at that stage. Although sometimes I can tell ahead and I take a migraine abortive pill, more often than not I can't set them apart from my tension headaches and I let them play out too long. When I realize it's a migraine I already have this feeling of repulse towards water (or anything that could possibly pass down mu throat) that I can't seem to bring myself to just take the pill (partially because of a very sudden appearance of nausea). So I try to wait for a split second where I don't feel so bad and I take a domperidone pill (which I keep nearby) to help with the nausea so I can create a new nausea free interval of time to take the abortive, as it is a much larger pill that I often vomit if I don't follow this strategy. By the way, it probably isn't the same for everybody but I found something intriguing: I used to lay on the side opposed to the migraine center because I thought that it would hurt more otherwise but I found out that even though initially I get slightly worst, I do feel better laying for longer periods on the side of the migraine center. I know it seems counterintuitive but give it a try and see if it works for you.
Love the editing on this one, sometimes I feel like this in real life where everything just pauses and I can't find words or whatever. As far as I know, I don't have migraines, but I have a really hard time waking up and I struggle with so far undiagnosed dizziness etc. in the direction of pots, so at times I can be quite "out of it" because I'm in the middle of a conversation but decided to move to a different room so suddenly I'm half-fainting, leaning against a door frame and somebody is expecting me to continue my sentence... Also completely over-excerted this week with 6 different health related appointments, still no results, but there will be an MRI soon...
Thank you for posting this I'll take some of those tips. Also helps to see that I'm not the only one who has a lot of trouble talking/thinking/just functioning sometimes, and I cracked up when you edited the music to stop during your pauses 😂😂😂 YES that is so relatable...totally understand why you separate your non-migraine identity to Migraine Jen, it really does seem like DID looking from the outside (non-migraine) in.
So, I started watching your videos not too long ago & A LOT of what you’re going through is identical to my symptoms that I’ve had for the last 20 years with no explanation or diagnosis, other than cardiogenic syncope & vasovagal syncope & neither has a real treatment plan. I usually research my symptoms thoroughly because in my experience, Drs pretty much suck & I literally end up finding my own diagnosis 3/4 of the time, but this entire time I have completely missed POTS & Dysautonomia!! 🤦🏻♀️ So after learning about them FROM YOU, I decided to talk to my neurologist & he agreed that I probably have both. So now he’s referring me to a cardiologist since I haven’t seen one in almost a decade when I was diagnosed with the 2 syncopes via wearing the 48hr cardiac monitor & a tilt table test. (which he wants me to have repeated since it’s been 10yrs) Moral of the story is that thanks to your channel, I FINALLY found my diagnosis after TWENTY YEARS of suffering!! THANK YOU!!!!
I don't even know what to say!!! That means so much and I'm just so frickkkkkin thrilled that you are getting answers after so so long. Thank you for sharing your story!!
We have some of the smart outlets for Alexa and we use her for our lights. Nice for when I forget to turn them off going in and out of the room and also nice for our fish tanks so our fishies get the light they need.
Relia-BOWL. Migraine Jen is great. Also yes i agree on alexa - I finally got an echo (the old model because the reviews were better) on prime day and I love it already for timers when I'm cooking, and music
Until I started watching your videos I didn't really know what migraine was, so thank you for being so open and sharing with us (even if you didn't remember you filmed this until you ran out of camera space 😂)! My favorite part was about your shot glasses..."mine has boobs!" ❤
Forgive me if this is an obvious question but how are the pain levels of a complex migraine? Are your main symptoms the neurological symptoms or is it super painful as well?
No an obvious question if you ask me! =) Most of the time if I'm confused, it's just a ~level 4ish "headache" pain with physical achey discomfort and heavier POTS. For my truly painful migraines, I'm at a 52 in the silent dark with an ice pack and still suffering. Hope that helps
After 20 years of getting migraine whenever I wear my hair up, I’ve accepted that it’s not worth it. I wear a lot more bandanas now and that’s a little better
I haven't been diagnosed with migraines, but I get these same symptoms. I'll start getting dizziness and off balance, fuzzy thinking, irritable, then boom head starts really hurting and I can't even talk or form sentences in my head. Doesn't happen to me everyday, but maybe once or twice a week now, although it was an everyday thing while breastfeeding and right after weaning.
Migraines for me are I get confused then I’m very sick then pass out asleep for 5 hours ish then wake and sometimes repeat. I have no tips or tricks as them come on within minutes. When I am asleep I actually cannot be woken, it’s like my brain has shut down
Dark room, something to split my attention from the migraine, electrolights, heat, craniosacral therapy 90 mins once a month if possible.botox, stillpoint inducer.
Small detail caught my eye: that you get veiny hands in migraines! I have this randomly and it reeeally sucks because I have arthritis (especially in my hands) and it's so much worse when this vein thing happens. Overall I have rare severe migraines and usually small ones, so will watch carefully if it is maybe a migraine thing! btw it's really strange that the veins fill in seconds as I put my hands down and they turn normal as I put them up. But isn't a migraine theory about dilatation of some head vessels? So maybe it could also be in the hands...
We're you given antibiotics like Cipro or floroquinolones they can cause csf leak symtomps as well damage tendonds just a suggestion hope you can get diagnosed on time.
Instead of a shampoo conditioner, just use a good natural conditioner! Don't use the cheap crap🙂💖 a good conditioner will clean the hair too. Sometimes, I even use my organic lavender body wash. If you must use a leave in conditioner after body wash. Temperature changes, ugh, I use to breakout in hives, maybe try a antihistamine before getting in bath, or swimming. Love both Regular Jen and Migraine Jen💖
Fair. There's humor in it for sure. You wanna know what's really scary? Buddy leaving Reggie all over the house. A VERY convincing dead squirrel on the floor 🤣🤣🤣
Cooking with a migraine? WHAT!?! HOW!?! Sooo...I can't even friggin open my eyes when I get one...how the heck are you doing anything but laying in bed in a dark ass room?? Also, why are you talking like a baby? AND I'm thinking you're a hypochondriac...just sayin...I don't mean that in a bad way. It's just as real as a migraine 😪 🙃 😫 Take care and feel better MJ!
@@MommingwithMigraine NOPE! I started watching your videos because you have great content, and I'll keep watching to learn as much as I can. I just call em how I see em, this video threw me off because of your different style of speaking, that's all. I hope alls well, take care!
Links are in the description! 💜
How can I get to the links in the description from here I’m not very good we’re trying to figure out that
My husband is watching this with me. He says a lot of the symptoms Migraine Jen is dealing with are the same ones I deal with during a bad POTS episode. The specific ones he pointed out are: Rapid eye movement, clear thoughts but trouble speaking (which makes me so angry!), gasping for air after saying a sentence, palpitations, needing to sit down, shaking or tremors, muscles tensing and brain fog. I just wanted other Potsies to know they aren't alone if they recognize those symptoms in themselves.
He also wants me to tell you he was VERY concerned for you once you got to the bathroom. He wanted to go through the screen and make you lay down because that is how I look/act right before I end up collapsing! 😄
Thank you again for posting Migraine Jen. It is so comforting to know I am not alone in this struggle. ❤️
I'm sorry you are going through this 😔 and thank you for your detail- reading your story helped me feel less alone. As for taking a seat... that's what Buddy is for! He hadn't alerted, so I knew I was fine 🥰 if I didn't have Buddy, I wouldn't have continued past when I grabbed a stool in the kitchen.
@@MommingwithMigraine That is why I am working on getting my own POTS alert dog. It is so hard to know for sure when I am going to rapidly decline, so hubby is always on alert. It would be nice to have a dog to give him a bit more comfort and me more security knowing my dog will alert me on days where I am so iffy.
@@sarahkwast1250 So lucky to have a hubby who is on top of it, but a SD can take a lot of pressure off the caretaker. It's a big commitment too though - my husband does a lot of Buddy's care. I wish you the best of luck with your journey
@@MommingwithMigraine We have spent a lot of time weighing the pros and cons of a mobility/POTS alert dog. Hubby actually took a step down at work so he can work from home to support me. I am hoping an alert dog will give him the peace of mind and the break from constantly being 'on duty' he deserves. It is truly a blessing to have an understanding and supportive husband for sure!
I am so thankful I found your channel and am praying you find the answers and solutions you are seeking. Sending love, support and hugs your way! ❤️
@@sarahkwast1250 amazing, love to hear it 👏 love and hugs, and tons of spoons!
What's so impressive and crazy is that regular Jenn had no idea Migraine Jenn had made this video. I'm impressed by how well you manage your life, and continue to be saddened that you are suffering as much as you are and have to manage the way you do
I feel like im watching myself during a migraine attack when i watch these. I know youve gotten more in depth diagnoses since this but i am so thankful for this channel❤
Migraine Jen is herself no matter what the "technical" trigger is for these episodes. I'm happy to be some solidarity for you. Love and hugs!
Buddy nightmares, especially if you can't get to him. I tell my dog, " what a good boy, come to mama, oh what a good boy" I do this while patting my thigh🐶
Amazing how fast your positive voice calms your dog!!! 🐕
Watching Migraine Jen as Migraine Tori is like looking in a mirror 😂
Migraine Jen loves watching the MJ videos! LOL! Hope you enjoy =P
I know the feeling. Try working in a busy litigation law office with major brain fog. . .
I love the nuances in the editing of the video - the starting/stopping of the music, change in music, the little comments to explain symptoms or Jen talking to Migraine Jen. It helps to explain some of the things that you are experiencing throughout.
Also wanted to let you know that you got me addicted to Huel. My body doesn't like having regular food for breakfast most mornings (especially on workdays) so I have really enjoyed finding Huel on your recommendation. I have been wondering - What flavors do you like the best? So far, my favorite is salted caramel. 🙂
Thanks! All my love to both Jen and Migraine Jen! ❤️
I precut easy to grab food like meats, cheese, fruits and veggies so when I'm not feeling like I can stand for those few minutes I can still eat healthy. I batch prep things like boiled eggs as well so there's always an easy to grab option. I use a Google home as well and we have a few around the house. Most of the lights are controlled by it which is nice to not need to walk over to a switch ever. We have routines set up so lights in areas like outside turn on at dusk. Anything that can be prepared in advance I do as far in advance as possible in case I'm having a hard time when I am trying to go out (with someone else driving) and I keep a list of things I need to take with for every situation like going to the dog park, doing errands, going to an appointment, visiting family for the day or night, going camping etc so if I do need to pack during a flare I have my list to help me not forget something critical.
A few things I add to my hacks list is a shower chair, ginger candies, liquid IV powder, dry erase markers to write reminders on mirrors and windows, and multiples of all my essential items to store in different locations (work,home,car,purse) thanks as always for a great video ❤🥰
Agree with the ginger candies and electrolytes. I’ve actually been loving Elete electrolytes that have zero sugar or artificial sweeteners and more potassium/magnesium vs sodium. I can mix it into whatever I’m drinking.
What you said about separating yourself from your disease really rang true for me -- I've found that helpful with my mental illness, to separate my thoughts and feelings from the lies my disorder tells me or the mental gymnastics my brain needs to compensate in certain situations. For instance, if I'm experiencing rejection sensitive dysphoria, it's not that *I* believe my friends don't love me, it's that my *brain* is telling me that they're mad at me. This makes it easier to explain to other people without sounding like I doubt them or they're bad friends, and also easier for me to tell my brain to shut up and stop being mean and unrealistic while not invalidating my emotions and what I'm feeling. What my brain is telling me is a lie and not real, but what that lie makes me feel is still real and deserving of compassion and patience, and both those truths can coexist.
Instead of a conventional "2 in 1" shampoo, look for cowashes. Short for conditioning wash. You're more likely to find sulfate free options! Manes by mell likes the one from Cantu
Ooh thank you! I'd never heard that term before! I did find & link a sulfate-free one, too
That’s an awesome suggestion. I can’t do sulfates (sever allergy) so I can’t find many 2-in-1 options.
Any suggestions of where you find these? Amazon? Target?
@@MommingwithMigraine Hairstylist with Migraines, I love your videos Jen!
Most drug stores, target, WalMart should all have this kind of stuff. Look for the textured hair section and black owned brands. Cantu, Shea moisture, Maui moisture, and mielle are all common drugstore brands that do sulfate free products
Oh my goodness! You are so cute and hilarious! Thanks for putting a humorous spin on migraines. Even though us sufferers know how debilitating migraines are, it's really nice to watch some light hearted content regarding chronic pain/illness.
You are so welcome! Thanks for the kind words!
The First minute and a half was exactly me this morning- tremors and even still damp hair. Thank you for bravely sharing your "attacks". Not only are your videos informative, but I can use them as example of my own "episodes". You and the community you're building here definitely help to ease the isolation and related emotions. Thank you! Hope today is less painful for you and your subscribers!
Smart Light bulbs. Very helpful when the lights need adjusting but your feeling sick and don’t want to get up as well as many other reasons. And you can link them to Alexa.
Yes I love smart light bulbs & I get horrible migraines. 💚
I think you explanation of MigraineJenn vs DID/personalities was really clear and relatable. Compliments to MigrainJenn for explaining it so well!
I can tell by your voice you are definitely not feeling good. When you’re done with the video please lay down and try to get some rest. I know you’re trying really hard in this video and I’m proud for you. But if you can’t finish the video I totally understand. Because I also as a blind person suffer from severe migraines where I’m on two different kinds of medicine for it. And I do the same I have stainless steel cups two of them two different size and I have two packs of The straws that can bend because when my migraine hits I’ll lay down in the bedroom. And my guide dog if I’m sitting up and he puts his body against me I know to lay down. But I truly hope you feel better really soon. Because I can tell in your voice you’re not yourself.
Thank you
Good morning! For those wanting to pursue CSF leak diagnosis,
I just happen to be at the radiology department at Harborview Hospital in Seattle, for non-migraine related imaging, and saw that they do a specific 'CSF Leak Scan'. It is NOT a basic MRI.
Man sister ...you must be a strong woman. When I have a migraine the pain is so bad I have to lay down. I sure couldn't do a video....and I don't even get all the terrible symptoms you do. You are like a superwoman.
I suffer from migraines,cluster and tension headaches..and when they come on I get spasms and shakes, im pretty much bed ridden, there is no hope of functioning..and they ALWAYS make me so incredibly nauseous that I always throw up..which only makes it worse because of the force.. Luckily they have lessened in frequency for me. I really appreciate these tools and tips because I have a small window of functioning at the start of an episode and these can come in really handy
Thank you for sharing this, I get the feeling I have a migraine coming on as I'm exhausted (more than normal), yawning tonnes and feel like my entire body has got very weak. Think ill make a smoothie before the pain starts too bad (always have a headache so can't say before the pain starts)
Also very forgetful today apparently
I love your content as a fellow migraine sufferer and especially your sense of humor!! I can’t thank you enough! Sending so much love and positivity your way!! (And to all your followers) 💖
Lizzy
hahah thank you!! always great to hear from you lizzy!
I have never had a migraine before. It looks awful. This video shows what you go through perfectly. Wow. Keep digging into the CF leak. You need answers. Good luck.
Well I want the kitchen gloves 🧤 gecko hands ! And did anyone else want banana bread?
We order catering sizes of chicken wings and pasta from a local take out place, divide them up, and freeze them. It's so easy to just throw in the oven and heat them for 10 min when I have a migraine and cooking is hard. Making your own is cheaper but I really like the take out ones and I only use them for bad migraine days.
I also have ear plugs made for concerts. They make everything quieter but I can still hear if someone talks to me. My parrots think they're toys and do what ever they can to pull them out tho, so there's that. ;)
Thanks for the tips.
You do so well withe handling your migraines.
I have chronic migraine but I’m also visually impaired and work a guide dog. My dog just started detecting my migraines this week, he’s only officially trained to guide. One of my migraine hacks is an ice hat and have 2 so one is always in the freezer. I also have learned to sit while doing laundry, i use a front load washer.
Two weeks ago I was diagnosed with bad migraine and just learning what triggers them and I find that mountain dew triggers them and milk so this is a good way me to understand my migraine better thank you.
I am going to have to keep this video at hand anytime I need so that way I can try and remember some of these tips and tricks for dealing with my own migraines and yeah I have intractable global cluster migraine headaches
Thanks for sharing this Jen! Super relatable and helpful to see a fellow migrainer mid-migraine.
You're so welcome!
Wow, you have pretty much the same symptoms I do... except with me the pain and nausea has the upper hand.... (Though my husband says I am pretty much like you when I have an attack). So, my hacks for when I have migraines, even the ones without much pain or nausea.... I don't like drinking water, but have found out that drinking diet coke actually works... the caffeine in it actually helps me. Also, I always get a washcloth, wet it thoroughly and put it on various parts of my head an neck. Then the third is that I have this gel with diclofenac in it.... I slather that stuff all over my neck and shoulders and it helps. Oh and lastly... locking myself in a dark room with a low temperature also helps...even if I just do it for half an hour....
Finally, a way I can physically show my neurologist what it's like living thru & with complex migs. I hate, hate, hate how unreliable hands become. I drop things so many times, even when I place them, with the upmost care, on a flat surface. Obviously that makes my headache worse because I have to lean down & pick them up, which makes the nausea & migraine worse.
I also have a grabber to reach things, but tilting my head up, even one centimeter makes it worse & triggers the neuralgia. Tilting it forward nakes me more likely to fall, or trip or increases the nausea or triggers the neuralgia. The way we get confused, forgetful, or lose our train of thought & wobbly gait makes me look stoned. It looks worse because we slurr our words. I had 4 nerve blocks around the occipital nerves & made the former pain feel like insead of exploding w a mig, my head was imploding w pressure. I could deal w that better, but the nausea levels are now worse, much worse. In my experience, sometimes the headache can be worked thru, but not the nausea or stomach pain. Does your stomach hurt too?
I need to get some of the egg warmer/containers to make food. As hard & as slowly I try cooking, I invariably forget to turn off the stove. I've burned clothes & pots & pans, exploded plates & glasses. Last one, I picked up a hand towel from the bathroom & began warming it as if it were a piece of steak on the grill. I have NO idea why my brain made me do it, why a towel, how I got the towel, (I forgot most of this until I saw the scorched towel). Fortunately, I was startled by my dog barking, but for me, the worst thing is, the absolute "does not compute" or "it's not important" non-attitude. It's not normal to faint, be picked up, & start using the computer or after realizing one does not cook towels, some of these symptoms & actions. Why do I not think it's an issue or worrisome to faint, to cook a towel. My family will help me stand up, but I just continue as if unaware & unconcerned about my previous actions, no sense of danger or importance. Soc.Sec does not want to give me disability because there don't appear to b any physical explanations. They send us to a shrink...um, do people who have a regular headache & take migraine attack meds benefit from them? Can a person get pale, hollow eyed, runny nosed, slurr words, forget, lose train of thought, at will? I know I do not wake up every day planning how sick I want to b that day, or what symptoms Iwant to have or deal with. I love my family, i used to be intelligent & curious & funny. I wake up hopeful for a new day, I want to do things, I want to smile or vomplete a craft project,etc. I don"plan to be in pain, nauseous & tired. I don't choose to forget what !happened 5 seconds earlier. Sometimes as soon as I get up from bed, I get the migraine. Anyway,
3 things that sometimes help:
▪︎ during a mig. Episode, get a glass, add about 1/5 teaspoon of Himalayan pink salt, squeeze a full lemon (or use bottled lemmon juice)& add about 2-4 oz of MINERAL water. You can change the proportions to what works best. It works because it is a true chemical reaction & it's healthier than medicine. It often works. I would run out of meds otherwise.
▪︎Second, at most pharmacies, go to the stomach care section, whre they have pepto bismol, and get a package of Nauzene chewable tablets, it's a homeopathic supplement to help w nausea.
▪︎3rd, as my biggest trigger is light, specially sunlight, my house has protective film on the windows & as dumb as it sounds, I wear polarized sunglasses & use weak artificial light to help myself.
▪︎No, it's not dumb... straws, specially the ones w the bendy tip are life saviours.
▪︎ zthis last one might not b good for you, but I have found it the only other way I can get thru a day...it only works 50% of the time...benadry(it also helps w the runny nose) to put myself to sleep. I cannot fall asleep w a migraine, but sometimes I can use Benadryl to sleep (or be hyper, like I said, it's 50:50.
Oh, btw, my favorite hack that’s been an absolute LIFE SAVER is my heavy duty massage gun that my hubby got me for X-mas last year. It came with multiple attachments & is super strong. After I have a seizure or if I injure myself when I pass out, my massage gun is the best tool to help relax my muscles so I can recover even quicker!
Another favorite, when it’s chilly I rotate between multiple pairs of hospital grade compression leggings. (they were each given to me to wear during a different surgery) And by leggings, I mean they literally go all the way up to the crotch & are tight which I find helps my symptoms
I ordered a bathroom floor with a migraine. It’s really wacky. Fortunately I like it!
I get suck bad speech delays and part of that is because I loose me train of thought and will completely zone out mid sentence and then forget what I was talking about. Talking has been difficult. I already have a stutter normally and it gets so much worse. Also LOVE your bathroom especially your shower!! It’s so big!!!
I use a chronic pain bath salts and they help me for at least the rest of the night. It’s a smaller bag but it’s with the other bath salts in my Walmart
Thank you Migraine Jen and Jen!!!! 💜💜💜
I use a green Allay light that helps me function without the photosensitivity that I normally struggle with. I lay with an ice pack behind my neck on a neck roll which helps reset my spine and chill the migraine. I sometimes also chew ice chips.
I love Migraine Jen so much! She makes me feel better because we are so similar when I am not doing well, and it makes me feel like I'm not alone or being silly or anything, because Migraine Jen is badass! I completely relate to having fully formed sentences and thoughts, but it just not being able to come out of my mouth, and sometimes its like my thoughts are in a washing machine tumbling round and round. My condition is morphing a lot, and it can sometimes be scary to try to do things when I'm not well in case I mess things up, but your videos make me realise that sometimes messing things up is fine, just try to do it in as safe a way as possible
Sumatriptan kills my migraines pretty quick, I definitely recommend getting a perscription for it if your suffering. Luckily my migraines don't last all day and I can usually count on them being over in a fee hours at the most bit still very painful , with lots of anxiety, nausea, tingly feeling in fingers, constant yawning, and restlessness
Migraine jen is so similar to migraine me it's a little sobering, but this video is very educational and nice
Thank you for making these videos
It was so crazy, when you went down stairs for the last three things I could tell immediately that you had gotten a little better but then heard the decline in the tone of your voice. Migraine Jen’s voice is so different. It’s more questioning, and less gravelly (I like the gravel in your voice it’s sort of soothing)
Also my migraine hack is those gel eye masks they usually have at spas. I don’t even necessarily put them on my eyes. But it’s so nice to have something cold that is attached to my head so I can lay on my side or walk around without it slipping
I am definitely going to get some big headphones for my walks outside. Such a great idea! I hate small talk with neighbours, especially when im not feeling my best. ❤
They're a little sound-cancelling too! It's great! Hope you love it.
Definitely have to show this video to my gf so she can better understand what it's like. Also you've gotta share how you put on the headphones while still recording!!
Migraine Kelli is why we have so many Alexa’s in our house. We have 4 kids, and I can’t always get up and around. She offers me a way to communicate from wherever I am, my neighbors are listed as emergency contacts if I have a really bad time and need help, and it keeps me from hollering for kids for meals (2-story house, ya know).
I’d like to add my walking sticks to the list. I get hemiplegic migraines, which kind of look like a stroke, so walking gets super hard. So, I keep some of our walking sticks strategically placed around the house, in case I need stability to move.
My weighted blanket and heating pads are also, must-haves. Heating pads help with the neck stiffness, and the weighted blanket is great for when I get the full body tremors.
I haven’t tried Huel, but I do keep my favorite assortment of frozen fruits in the little freezer above my fridge, for quick smoothies. I forget to eat, when I get migraine-y, a lot, and that is something easy to make that also doesn’t upset my stomach. Bonus: my 11-year-old loves to make smoothies for Mom.
And, final one, a mini fridge in my bedroom. On the days that I just can’t get out of bed, stairs are an absolute no-go for me. So, I have a mini-fridge in my bedroom where I can keep cold drinks and small things for me to snack on. Life saver!
Thank you for sharing!
Migraine Jen is so sweet :)
Have you seen the sticker books for adults? They're like paint by number, but they're stickers. The pictures turn out like mosaics. Pretty cool.
We got these for my dad with dementia! He enjoyed them !
I normally have fairly dark sunglasses in reach as the living room/kitchen area in my home doesn't have curtains I can close, and I get terrible light sensitivity. I can put them on if I need a drink or something to eat, and I don't feel the eye/head stab when as bad when I walk into light.
Watched this while literally wearing a Huel tshirt and drinking Huel for breakfast. LOL 100% agree that it rocks when you aren’t feeling like food but need to eat. Also find I have fewer migraine days and shorter postdromes since Huel became my breakfast routine.
Could you show us your ginger tea recipe some time? Also I just wanted to say I admire how well you handle your migraine and pots symptoms at the same time!
Thanks for the kind words! It's a lot, haha. That's why I want to get to the bottom of it so badly! My full Ginger video is here: ruclips.net/video/_0w3IVDEPao/видео.html ... I believe I make it for you in my Day in the Life Vlog: ruclips.net/video/xEmQJlhCUVw/видео.html
Thanks so much!
Hi!
My migraines are not as strong but I do have a couple of hacks besides some of those mentioned. Most of my attacks develop overnight so I wake up with an empty stomach and very strong nausea. I keep a bowl under my bed (it has those large drawers underneath) because I've cleaned enough vomit on the floor and bed clothing to know I can't make it to the bathroom in time (even though my migraine self thinks I can).
I usually can't eat during the episodes so after being 24+ hours (sometimes 2 or 3 days) without eating and with all the exhaustion, when the episode starts fading I get really hungry. At that point I can't eat anything flavorful or smelly or I'll just end back where I was, so I eat bread or plain rice. If it's possible my boyfriend cooks me some but if not I keep some microwave rice cups that take two minutes to cook because I can't handle the smell of anything cooking at that stage.
Although sometimes I can tell ahead and I take a migraine abortive pill, more often than not I can't set them apart from my tension headaches and I let them play out too long. When I realize it's a migraine I already have this feeling of repulse towards water (or anything that could possibly pass down mu throat) that I can't seem to bring myself to just take the pill (partially because of a very sudden appearance of nausea). So I try to wait for a split second where I don't feel so bad and I take a domperidone pill (which I keep nearby) to help with the nausea so I can create a new nausea free interval of time to take the abortive, as it is a much larger pill that I often vomit if I don't follow this strategy.
By the way, it probably isn't the same for everybody but I found something intriguing: I used to lay on the side opposed to the migraine center because I thought that it would hurt more otherwise but I found out that even though initially I get slightly worst, I do feel better laying for longer periods on the side of the migraine center. I know it seems counterintuitive but give it a try and see if it works for you.
Love the editing on this one, sometimes I feel like this in real life where everything just pauses and I can't find words or whatever. As far as I know, I don't have migraines, but I have a really hard time waking up and I struggle with so far undiagnosed dizziness etc. in the direction of pots, so at times I can be quite "out of it" because I'm in the middle of a conversation but decided to move to a different room so suddenly I'm half-fainting, leaning against a door frame and somebody is expecting me to continue my sentence... Also completely over-excerted this week with 6 different health related appointments, still no results, but there will be an MRI soon...
Thank you for posting this I'll take some of those tips. Also helps to see that I'm not the only one who has a lot of trouble talking/thinking/just functioning sometimes, and I cracked up when you edited the music to stop during your pauses
😂😂😂 YES that is so relatable...totally understand why you separate your non-migraine identity to Migraine Jen, it really does seem like DID looking from the outside (non-migraine) in.
One more comment(promise lol): You going over to check on Buddy in your condition was really touching.
Talking about how your shot glasses have boobs is so endearing, Migraine Jen cares about the good stuff!!! ♥️♥️
#priorities 😅
Hi Jen what kind of visual disturbances so you get?
"Mine has boobs". lol
So, I started watching your videos not too long ago & A LOT of what you’re going through is identical to my symptoms that I’ve had for the last 20 years with no explanation or diagnosis, other than cardiogenic syncope & vasovagal syncope & neither has a real treatment plan. I usually research my symptoms thoroughly because in my experience, Drs pretty much suck & I literally end up finding my own diagnosis 3/4 of the time, but this entire time I have completely missed POTS & Dysautonomia!! 🤦🏻♀️ So after learning about them FROM YOU, I decided to talk to my neurologist & he agreed that I probably have both. So now he’s referring me to a cardiologist since I haven’t seen one in almost a decade when I was diagnosed with the 2 syncopes via wearing the 48hr cardiac monitor & a tilt table test. (which he wants me to have repeated since it’s been 10yrs)
Moral of the story is that thanks to your channel, I FINALLY found my diagnosis after TWENTY YEARS of suffering!! THANK YOU!!!!
I don't even know what to say!!! That means so much and I'm just so frickkkkkin thrilled that you are getting answers after so so long. Thank you for sharing your story!!
We have some of the smart outlets for Alexa and we use her for our lights. Nice for when I forget to turn them off going in and out of the room and also nice for our fish tanks so our fishies get the light they need.
That's a great idea! We have timer lights as well, just not through the Dot.
Relia-BOWL. Migraine Jen is great. Also yes i agree on alexa - I finally got an echo (the old model because the reviews were better) on prime day and I love it already for timers when I'm cooking, and music
Until I started watching your videos I didn't really know what migraine was, so thank you for being so open and sharing with us (even if you didn't remember you filmed this until you ran out of camera space 😂)! My favorite part was about your shot glasses..."mine has boobs!" ❤
You're so so welcome and I'm glad you enjoyed it!
Love Your Videos!!❤❤❤❤
Thank you!!!
Forgive me if this is an obvious question but how are the pain levels of a complex migraine? Are your main symptoms the neurological symptoms or is it super painful as well?
No an obvious question if you ask me! =) Most of the time if I'm confused, it's just a ~level 4ish "headache" pain with physical achey discomfort and heavier POTS. For my truly painful migraines, I'm at a 52 in the silent dark with an ice pack and still suffering. Hope that helps
Thanks Jen! Hope you’re doing well
Thanks for the video
After 20 years of getting migraine whenever I wear my hair up, I’ve accepted that it’s not worth it. I wear a lot more bandanas now and that’s a little better
Even if I don't have a migraine I get instant headache from dry shampoo. Plain corn or potato starch is my secret too :D Greetings from Europe 🇪🇺
Great tip!
I haven't been diagnosed with migraines, but I get these same symptoms. I'll start getting dizziness and off balance, fuzzy thinking, irritable, then boom head starts really hurting and I can't even talk or form sentences in my head. Doesn't happen to me everyday, but maybe once or twice a week now, although it was an everyday thing while breastfeeding and right after weaning.
Sounds like vestibular migraine.
Migraines for me are I get confused then I’m very sick then pass out asleep for 5 hours ish then wake and sometimes repeat. I have no tips or tricks as them come on within minutes. When I am asleep I actually cannot be woken, it’s like my brain has shut down
Ok, totally off-topic, but I am SO jealous of your shower and bathtub. Dream bathroom right there lol xD
That shower is the pride and joy of the house, till we have to clean it 🤣
I wonder if Buddy was alerting the camera to a migraine at around 9:20, or so in the video?
Thank you for snoot cam!
You bet!
Dark room, something to split my attention from the migraine, electrolights, heat, craniosacral therapy 90 mins once a month if possible.botox, stillpoint inducer.
The positionally veiny hand thing is very normal. It's just much more pronounced in people with lower body fat. ;)
It's normal for me when I'm in a migraine or it's hot out, but not otherwise.
Small detail caught my eye:
that you get veiny hands in migraines!
I have this randomly and it reeeally sucks because I have arthritis (especially in my hands) and it's so much worse when this vein thing happens. Overall I have rare severe migraines and usually small ones, so will watch carefully if it is maybe a migraine thing!
btw it's really strange that the veins fill in seconds as I put my hands down and they turn normal as I put them up. But isn't a migraine theory about dilatation of some head vessels? So maybe it could also be in the hands...
Isn't it odd?! It happens a little normally but it's NUTS during attacks. Thanks!!
Migraine Jen and Migraine Robin are very similar!
The veiny hands until you lift them up is a POTS thing
Yeah. My POTS acts up during migraine attacks.
@@MommingwithMigraine that actually kind of makes sense
I'm headed to endocrinologist now bc I have high prolactin but no symptoms. Fibro is pretty bad but everything else is ruled out.
I hope you are able to get to the bottom of your symptoms 💜
We're you given antibiotics like Cipro or floroquinolones they can cause csf leak symtomps as well damage tendonds just a suggestion hope you can get diagnosed on time.
i’m currently on topiramate for mood stabilization and i’m worried about the seizure side effects
POTS is a real struggle.
YES. But it's so unassuming too!!
I have epilepsy and 17:30 is what I feel like when I feel seizure*y*
I also love having an Alexa we have 2
Looks like the migraine sends you into an autonomic storm
Absolutely
Were the palpitations skipped beats? Looked like it (finger to throat to check)
Yeah, a little skip-hop. It went away though. I only get that a few times per month.
♥️❤️♥️❤️
💜💜💜
Instead of a shampoo conditioner, just use a good natural conditioner! Don't use the cheap crap🙂💖 a good conditioner will clean the hair too. Sometimes, I even use my organic lavender body wash. If you must use a leave in conditioner after body wash.
Temperature changes, ugh, I use to breakout in hives, maybe try a antihistamine before getting in bath, or swimming. Love both Regular Jen and Migraine Jen💖
It looks like symptoms of craniotomy cervical instability which is a comorbidity of eds
Sorry cranio cervical
It's on the radar... we'll see! :)
How long does your migraines last for the most part ?
Seems to be... either 8 hours or 3 days 🤔
I have the exact red container for eggs
Do you love it?!!
Yes
Those gloves make it look like you have cartoon hands.
13:00 I thought that was a mirror.
We'res buddy?
I want to laugh, but it's really not funny. It's actually kind of scary.
Fair. There's humor in it for sure. You wanna know what's really scary? Buddy leaving Reggie all over the house. A VERY convincing dead squirrel on the floor 🤣🤣🤣
Cooking with a migraine? WHAT!?! HOW!?! Sooo...I can't even friggin open my eyes when I get one...how the heck are you doing anything but laying in bed in a dark ass room?? Also, why are you talking like a baby? AND I'm thinking you're a hypochondriac...just sayin...I don't mean that in a bad way. It's just as real as a migraine 😪 🙃 😫 Take care and feel better MJ!
Are you new here 😅
@@MommingwithMigraine NOPE! I started watching your videos because you have great content, and I'll keep watching to learn as much as I can. I just call em how I see em, this video threw me off because of your different style of speaking, that's all. I hope alls well, take care!