Be Curious, Believable Hope. Peter's Multiple Myeloma Story - Life After CAR-T
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- Опубликовано: 15 окт 2024
- In our first episode of "Life After CAR-T", Peter Rivkees shares his Multiple Myeloma story from being diagnosed, to receiving treatments, providing advice for people living with multiple myeloma, and more.
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Thank you Peter for sharing your story of hope! ❤
This is a very encouraging story. I've had MGUS for 14 years and it has been relatively stable, but my last three labs have shown progression, specifically the last two the progression was a little unnerving. I'm currently waiting for my appointment with the hematologist-oncologist. Whatever happens, I'm grateful to have had 14 years of worry-free time, and to know that there are plenty of options and hope for the future
My wife’s first symptoms were relentless anemia et calfs cramps. Her primary doctor could not figure out what was wrong even after numerous tests and wrongly guessed diagnosis. He was humble enough to say - i give up - and refer my wife to someone with a better entourage of specialists. One of them happened to cross her medical file, as he was replacing her new doctor for a few days, and immediatly recognized she had all pointing towards MM. this took 2 years over all to come to a correct diagnosis. 2 stem cell transplants (auto & allo), 4 years of remission and now the bug is back. This war is tough on her and on me. We fight hard and keep our heads high but…it’s hard.
Thanks for sharing Patrick, totally understand. We are rooting for your wife, you, and the rest of your family. Shout out to MM warriors!
Thank you for creating this video. As someone recently diagnosed, I found this very informative and also relieved some of my anxiety. Good luck and thank you!
Man I lack all the good bits aka divorce poverty homelessness and mm