DIY Diagnostic: A Life-Changing Test for PKU Patients | Nathan Kuehne | TEDxVictoria

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  • Опубликовано: 24 ноя 2024

Комментарии • 33

  • @ProjectPKU
    @ProjectPKU 8 лет назад +36

    I so ridiculously proud of you Nathan. Thank you again so very much . I still look foward to meeting you when I'm home next in Victoria. Hearing you read my email at the beginning of your speach gave me chills ! I'll be watching you and expect greatness for your future !

  • @ajfrompa1726
    @ajfrompa1726 3 года назад +2

    My daughter was diagnosed today with PKU today at 6 days old. Devastated as you can imagine only wanting the absolute best for your child. Seeing this video today was a real morale booster. Keep it up.

    • @9darkwizard1
      @9darkwizard1 2 года назад +1

      Our daughter was diagnosed last month at 7 days old as well. You're not alone. Thank you Nathan for working hard to help those with PKU!

  • @kpalerm3
    @kpalerm3 8 лет назад +11

    What you are doing is absolutely amazing and it gives me so much hope for my sons future with PKU and a life with stable levels. Thank you, thank you, thank you!

  • @Cfranki001
    @Cfranki001 5 лет назад +3

    I have classical pku and always thought about something like this. It would make monitoring levels so much easier and faster

  • @feef6098
    @feef6098 7 лет назад +1

    Nathan this is just so fantastic and I so hope to see the end result of your device world wide in every chemist/pharmacy and doctors surgery!! Great public speaking to WELL DONE!! And THANK YOU!!

  • @karenw5288
    @karenw5288 6 лет назад +1

    I am so excited and I truly hope Nathan is successful with the urine test for PKU. Having PKU and see all the new products such as low pro foods, better tasting formula's and medication that can help myself as well as my fellow PKU'ers adhere their diet. Conquering PKU one step at a time. Kudos to Nathan what a accomplishment for this young man.

  • @ciaracadwell5097
    @ciaracadwell5097 9 лет назад +2

    wow what an amazing contribution to the pku community, I hope this student gets all the funding and support he needs to achieve all his goles pku and others

  • @Trendsetic
    @Trendsetic 3 года назад

    Way to go, Kid! Amazing. I just happened upon this topic. I respect anyone who use their smarts and creativity to make a better world. Respect.

  • @kate580423
    @kate580423 6 лет назад +10

    I'm PKU patient 24years olds 😆 raise hand if your pku patient as well 💪🙋

  • @bryanlise79
    @bryanlise79 6 лет назад +6

    Oh my you are one brilliant guy!! My daughter has pku and this would be a life saver. How can we help you in making this happen?

  • @semnijespar587
    @semnijespar587 8 лет назад

    I'm so happy I know this guy! Hope you make more amazing scientific breakthroughs Nathan!

  • @mrdeadsea7777
    @mrdeadsea7777 7 лет назад +4

    I quick google search shows that this "DIY Test" isn't available, or at least available to the public. It is now 2017, how is this helping ?

  • @IOGoodday
    @IOGoodday 6 лет назад

    Вот это да! Какой молодец! У нас путь 2 недели занимает...тоже ждать приходится. Будем очень ждать новостей!

  • @pragmaticmusing6923
    @pragmaticmusing6923 4 года назад +1

    dealing with headaches and malaise due to a mild form of pku, I try to crowd out the phenylanine with BCAA amino acids, and I seem to be able to deal with the headaches, insomnia and general malaise using lemon grass tea.

  • @meghan3you
    @meghan3you 8 лет назад +1

    Thank you Nathan!

    • @glitterstarfish1269
      @glitterstarfish1269 8 лет назад +1

      Nathan hi I'm brenda 34 from NH I'm PKU. I came across your video searching PKU. First let me say, You are my hero!!! Like Amanda, some day I dream of having a healthy baby of my own. It has been quite a struggle with such a strict diet to keep my levels low. When I heard everything you had to say I thought it was a dream. I hope with all my heart you succeed with your amazing idea. It truly would change my world. I've been waiting a long time for someone like you to step up and challenge this very invention for an at home device to find out our levels quicker. I hope to see more of your wonderful research and development soon. - Your BIG FAN Brenda!!!!!

  • @kyleegarcia5569
    @kyleegarcia5569 4 года назад +1

    This was 5 years ago...I was hoping for a break through by now!

  • @hillaryschlaht5896
    @hillaryschlaht5896 6 лет назад +1

    Hi Nathan,
    This is absolutely fantastic! This would be such a game changer in my everyday life... By far the most exciting development in PKU research (in my opinion). Are you still working on this?? I'd love to know if this is any closer to market... where can I find more info??
    Thank you so so so much for your hard work!!

  • @aditisingh6172
    @aditisingh6172 4 года назад +1

    Why this video has such less views?? Oh please promote and share it more so that people can get aware man

  • @유채민채널
    @유채민채널 3 года назад +1

    제 딸아이는 PKU 입니다.
    이 장치가 하루빨리 공급될수있도록 각 단체에 협조 요청 부탁드립니다.

  • @이나라-z8h
    @이나라-z8h Год назад

    넌 반드시 성공할거야

  • @lassusprophetam8209
    @lassusprophetam8209 6 лет назад +2

    Is your test available

  • @IOGoodday
    @IOGoodday 6 лет назад +2

    И большое ему спасибо с Дальнего Востока России!

    • @Eugenicaq
      @Eugenicaq 17 дней назад

      Zdrowia, wiary i wszelkiej pomyślności.

  • @lifewxixi
    @lifewxixi 8 лет назад +1

    Can I get your autograph?

  • @toddtompkinstompkins743
    @toddtompkinstompkins743 Год назад

    Me and my Twin brother Brad and mother we have p.k.u. it true r iq is very low.

  • @mikemiller7231
    @mikemiller7231 Год назад

    BS