I’m so sorry this is happening to you and your family. This is not embarrassing, it’s not your fault. It’s ok to have a bad day especially given the surgery and extra stress. I am thinking of you all and sending positive thoughts. 💗
I feel for you BNB ❤ I have been feeling down in dumps. I had my ablation 3 months ago. Had 8 great weeks now my afib has been ramping up again. So I’ve been feeling just like you wondering if I’ll ever be myself again. I watched a talk the other day and the speaker said life is all about change. Especially as we age. But we need to embrace change and not live in the past and move forward believing in yourself. We must constantly deal with change and keep fighting. It’s good to let it all out like you’re doing. And with your old you - you have built a legacy of helping people with afib move forward with their lives. I personally thank you for all your information. In my prayers my friend 🙏🏻
I am a 33-year-old mother of two, and was diagnosed with a very similar tumor that is usually found in children right before Christmas. I am now in the limbo of waiting for surgery and I really hope that you can take the time to rest your mind , and search for more meaning. it is very hard to lose what we once had but I promise you, if you focus on God and allowing your mind to heal and not fixate on what was. You will get a restored life and perspective, regardless of what you had. If you do not already know, Jesus just ask him to come into your life. Ask him to reveal himself to you and show you what he wants you to do. Lord Jesus please be with this man. Please give him your peace that surpasses all understanding. He is struggling with all the unknowns and in this world he will only find the temptation of comparison and be stollen all the joys of clarity and peace that only you can provide. Please reveal yourself to him in this difficult time in Jesus name AMEN!
💔 I'm so sorry, this has got to be extremely difficult, so unfair:'( Fill your diet with all the superfoods and anti cancer foods you can manage. Do what you must to manage pain. Rest rest rest. Talk it out or get help with the mental issues if you need it. It may be that since your cancer is so rare there simply isn't enough data available for anyone to predict the outcome. The 'old' you is locked into your legacy forever, that can't ever be gone. But it's obvious that the unknown of the future is terrifying you right now. I sure wish you could get the answers you desperately want. 😢 I know it's not much but there are lots of people crying with you right now, wishing they could hug you and ease your suffering a little. Praying for you!!!!❤❤❤
Big big hugs ❤ A close friend of mine struggle with glioblastoma and I know that losing the ability to do minor things she used to be able to do easily is extremely difficult for her. Thanks for sharing this important video. Thank you.
My heart goes out to you and my prayers for your recovery go to God. I wish I could make all cancer disappear. Don’t be embarrassed, we are hear to help you by listening whenever you need to rant.
I saw a video a few months ago that discussed how important it is to keep mentally strong, but at the same time allowing yourself to have days like this, and to be as forgiving with yourself as possible. With all your past videos and everything that has happened you have shown you are on of the strongest people around. Sending you thoughts and prayers.
Thank you for this video. I agree the mental part is as difficult if not more so than the physical. Instead of a focus on being strong I try to focus on being kind & patient with myself (much harder than being so for others). Thx for your honesty
Aaaw I am going to pray for you. Don’t beat yourself up. We all have days like this. I feel like I’ve had years of feeling bad for myself and it’s so hard to keep going one day at a time. Please get some rest. I believe you will lift again but maybe not as heavy. Be proud of what you achieved.
Ah yes... "The New Normal" as my doctors said. Do the best you can with what you have and let God handle the rest of it. You have the gift of knowing, now is the time to do the most of what your body will allow you to do. Go get it BNB!
I empathize with your pain; it's truly heartbreaking. It's challenging to confront our vulnerability, but expressing emotions, including tears, is okay and essential for healing.
This is such a hard time your in , my condolences. Don’t stop your keto , I think your talking about Fred evard he actually was carnivore it may not be a cure but I believe it can make a bad situation better . Trying EVERYTHING you can will allow you to accept the situation. Jesus is Lord ! He loves you by his stripes you are healed! Best of luck
THank you I been doing better mentally now. Also Sadly on the steroids many of us cannot produce adequate ketones. And those keep my brain from swelling, so not optional. So this advice is not for everyone. I wish these RUclips Docs would mention this as almost all cancer patients need Dexamethasone, especially for brain tumors
The facts are Cancer loves sugar, so why feed it sugar. Even if keto doesn't "cure" it, maybe it slows it down drastically or helps chemo/radiation work better. If it gives you more time thats a good enough reason to keep fucking doing it. Let it all out and then get back on track and keep going strong man, this is a battle. Nothing worth having comes easy. I'm praying for you, don't give up!
I’ve been finding more evidence around targeted exercise around treatment sessions than I find for keto so I’ll be focusing on that when treatment starts. I keep eating keto because it’s improving my health markers
just letting you know I had a brain tumor had one strong radiation treatment had a MRI and it's gone I go back in April for another MRI to make sure it's still gone I started out having seizures no headache no throwing up I feel like my old self sir just put it in God's hands with radiation is all I had please keep praying and saying God can do miracles praying for you just stay strong and positive because God can do miracles Amen God bless you hope you have a speedy recovery.🙏🙏
You make my heart hurt for you. Cancer is evil!’ You are not an idiot. Hang in there. Take it a day at a time. We are just lucky each day to be alive. It’s in Gods hands. Sending strength to you. Cancer survivor Kathy Erie pa. Chemo and radiation are so hard. They gave me marijuana pills from Cleveland clinic to increase diet.
My dad has brain cancer the size of a large fist deep in the brain between the two sides he has done 6 weeks of chemo and 6 of radiation he had three weeks off an is doing chemo 5 days a month on chemo pill he feels exactly like you stay strong they told him they couldn’t tell him a time frame the doctor said they wasn’t playing god it’s very hard to watch but stay as positive as you can take one day at a time god speed
@@BNBsBrainCancerJourney short term memory is really affected not able to eat says everything is extremely bitter some days are better with taste don’t eat with metal use plastic fork an spoons throwing up is another one
@@BNBsBrainCancerJourney also if your taste starts to go tablespoon of baking soda an tablespoon of salt to a cup of like warm water swoosh an spit do this several times it does help ibuprofen does not seem to help Tylenol does better foods with protein seems to make him feel better
Research the man that took dog medicine that cured his cancer, its called fenbendazole, may be worth a try. Prayers for you to receive complete healing in Jesus Name ! There's power in that name !! Speak Jesus over every problem , just call on Him !
I'm so sorry you are going through hell on earth. In my opinion, eat whatever you want. Don't beat yourself up thinking you did anything that caused this devil cancer. Your depression and sadness is normal. Also, chemo, radiation and other treatments can cause brain fog, out of body sensations. My husband passed from Glioblastoma Multiforme Grade 4, so I understand. Prayers of comfort and healing ❤🙏🙏 Oh, get in your doctor's face and demand some answers ❤
Im so sorry you're going through this. 😢 Have you looked into hyperbaric oxygen therapy? Supposedly, they have had good results with it, cancer doesn't like oxygen. I know what you mean looking things up for yourself on the Internet. Try to hang in there.
Truth is that doctors don't know the exact date that terminal patients are going to die. They just make up an arbitrary time frame and go from there. It's all a guess. I think you, BNB, are weighed down with the negativity of your situation. You must find ways to lighten your load. I do understand because with brain cancer it affects your whole body and your emotions. Prayer is the answer. Prayer and rest and thinking of good times, good situations that happened in your life. Think of good memories and aim for physical comfort and relaxation every day. I'm praying for you and hope you find some comfort.
BNB, you are always in my prayers. I am so sorry that you are going to have to go through the chemo on top of your prior therapy. I know it must be terribly frustrating to not be able to do simple things but your brain right now is coming off of such a traumatic experience. And yet, you are communicating so well to us. So, I know there is plasticity taking over to compensate for the portion of the brain that was affected. I could never estimate your time remaining but I see a lot of improvement. You are a very unique person so I believe that you will heal. Perhaps you may not go back to the “old you” but you can reinvent yourself to be better in different ways. As I watch what you are experiencing, I feel it is quite normal to mourn your prior life. And, don’t assume, you can’t get back to it at a later time. For now, I know you will be brave to go through this chemo time. Focus on just enduring that as it is a big challenge. Don’t put too much more in your shoulders. Let that be your goal along with whatever research you can do. Keep up with our videos (if you can) because you have a huge group of people praying and cheering you on. ❤❤❤
My best friend died 2 yrs ago from brain cancer. It happens you need to see about getting a personal assistant. Your insurance should pay for it. I get one everyday for few hours.
BNB, Im not a social media person. And commenting only because I saw your video, please let me know BNB,if somehow I could send you a care package to you? Could I (and how can I) private message you, via email or txt or talk on phon?.
I’m so sorry this is happening to you and your family. This is not embarrassing, it’s not your fault. It’s ok to have a bad day especially given the surgery and extra stress. I am thinking of you all and sending positive thoughts. 💗
Thank you
I feel for you BNB ❤ I have been feeling down in dumps. I had my ablation 3 months ago. Had 8 great weeks now my afib has been ramping up again. So I’ve been feeling just like you wondering if I’ll ever be myself again. I watched a talk the other day and the speaker said life is all about change. Especially as we age. But we need to embrace change and not live in the past and move forward believing in yourself. We must constantly deal with change and keep fighting. It’s good to let it all out like you’re doing. And with your old you - you have built a legacy of helping people with afib move forward with their lives. I personally thank you for all your information. In my prayers my friend 🙏🏻
Thank you I wish you a speedy improvement I’ll pray for you also
I am a 33-year-old mother of two, and was diagnosed with a very similar tumor that is usually found in children right before Christmas. I am now in the limbo of waiting for surgery and I really hope that you can take the time to rest your mind , and search for more meaning. it is very hard to lose what we once had but I promise you, if you focus on God and allowing your mind to heal and not fixate on what was. You will get a restored life and perspective, regardless of what you had. If you do not already know, Jesus just ask him to come into your life. Ask him to reveal himself to you and show you what he wants you to do.
Lord Jesus please be with this man. Please give him your peace that surpasses all understanding. He is struggling with all the unknowns and in this world he will only find the temptation of comparison and be stollen all the joys of clarity and peace that only you can provide. Please reveal yourself to him in this difficult time in Jesus name AMEN!
thank you this was a short moment in my journey I chose to share, generally im quite positive and hopeful
Just came across your video. Sending prayers for your healing. Keep the faith my friend. 2:57 God Bless...🙏
You are so honest authentic and strong. I prayed for you.
Appreciate it
💔 I'm so sorry, this has got to be extremely difficult, so unfair:'( Fill your diet with all the superfoods and anti cancer foods you can manage. Do what you must to manage pain. Rest rest rest. Talk it out or get help with the mental issues if you need it.
It may be that since your cancer is so rare there simply isn't enough data available for anyone to predict the outcome.
The 'old' you is locked into your legacy forever, that can't ever be gone. But it's obvious that the unknown of the future is terrifying you right now. I sure wish you could get the answers you desperately want. 😢 I know it's not much but there are lots of people crying with you right now, wishing they could hug you and ease your suffering a little. Praying for you!!!!❤❤❤
Thank you so much
Big big hugs ❤ A close friend of mine struggle with glioblastoma and I know that losing the ability to do minor things she used to be able to do easily is extremely difficult for her.
Thanks for sharing this important video. Thank you.
I am so sorry you have been going through this awful time.
My heart goes out to you and my prayers for your recovery go to God. I wish I could make all cancer disappear. Don’t be embarrassed, we are hear to help you by listening whenever you need to rant.
Many blessings to you Sir.
Heartbreaking brother 😥💔 Praying for you, please try to hang in there ❤️🙏
I saw a video a few months ago that discussed how important it is to keep mentally strong, but at the same time allowing yourself to have days like this, and to be as forgiving with yourself as possible. With all your past videos and everything that has happened you have shown you are on of the strongest people around. Sending you thoughts and prayers.
Thanks maybe we saw same vid
Thank you for this video. I agree the mental part is as difficult if not more so than the physical. Instead of a focus on being strong I try to focus on being kind & patient with myself (much harder than being so for others). Thx for your honesty
sharing the wins and the losses
I really feel for you. I'm so sorry. It's not fair.
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️.
Sending Love ❤️
Aaaw I am going to pray for you. Don’t beat yourself up. We all have days like this. I feel like I’ve had years of feeling bad for myself and it’s so hard to keep going one day at a time. Please get some rest. I believe you will lift again but maybe not as heavy. Be proud of what you achieved.
Thank you for your support
You are entitled to have a bad day. Praying for you!
Ah yes... "The New Normal" as my doctors said. Do the best you can with what you have and let God handle the rest of it. You have the gift of knowing, now is the time to do the most of what your body will allow you to do. Go get it BNB!
Praying for you Brother. God bless you and get you through these difficult times.
I appreciate that
I empathize with your pain; it's truly heartbreaking. It's challenging to confront our vulnerability, but expressing emotions, including tears, is okay and essential for healing.
thanks
Sending prayers. Hang in there sorry you are going through this
thanks for this
God bless you, sir.
Thx
don't give up hope. God is there next to you have faith he will get you through this just have faith in our father 🙏🙏🙏🙏🙏
Yes he is
This is such a hard time your in , my condolences. Don’t stop your keto , I think your talking about Fred evard he actually was carnivore it may not be a cure but I believe it can make a bad situation better . Trying EVERYTHING you can will allow you to accept the situation. Jesus is Lord ! He loves you by his stripes you are healed! Best of luck
THank you I been doing better mentally now. Also Sadly on the steroids many of us cannot produce adequate ketones. And those keep my brain from swelling, so not optional. So this advice is not for everyone. I wish these RUclips Docs would mention this as almost all cancer patients need Dexamethasone, especially for brain tumors
God bless you and thanks for sharing what it's really like. 🙏
Thanks for listening
It's hard... I'm thinking of you and your very hard journey....😢 We are here for you ...the whole way❤
THank you I been doing better mentally now.
The facts are Cancer loves sugar, so why feed it sugar. Even if keto doesn't "cure" it, maybe it slows it down drastically or helps chemo/radiation work better. If it gives you more time thats a good enough reason to keep fucking doing it. Let it all out and then get back on track and keep going strong man, this is a battle. Nothing worth having comes easy. I'm praying for you, don't give up!
I’ve been finding more evidence around targeted exercise around treatment sessions than I find for keto so I’ll be focusing on that when treatment starts. I keep eating keto because it’s improving my health markers
Just keep fighting the good fight brother! @@BNBsBrainCancerJourney
@@TheBeastKane
ruclips.net/video/o1XZmV9og90/видео.html
🙏❤️🙏
Chin up, guy, you're doing awesome! Luv from Canmore❤❤❤
Thank you so much!!
We have to remember we live in a world where carcinogens are everywhere. We must pray hope and dont worry
true
just letting you know I had a brain tumor had one strong radiation treatment had a MRI and it's gone I go back in April for another MRI to make sure it's still gone I started out having seizures no headache no throwing up I feel like my old self sir just put it in God's hands with radiation is all I had please keep praying and saying God can do miracles praying for you just stay strong and positive because God can do miracles Amen God bless you hope you have a speedy recovery.🙏🙏
thanks for this
You make my heart hurt for you. Cancer is evil!’ You are not an idiot. Hang in there. Take it a day at a time. We are just lucky each day to be alive. It’s in Gods hands. Sending strength to you. Cancer survivor Kathy Erie pa. Chemo and radiation are so hard. They gave me marijuana pills from Cleveland clinic to increase diet.
THank you I been doing better mentally now.
I which you peace and good health.God sees and hear your cry.my heart goes out to you and your family.something we will never know the reason or why.
THank you, im doing much better emotionally now
My dad has brain cancer the size of a large fist deep in the brain between the two sides he has done 6 weeks of chemo and 6 of radiation he had three weeks off an is doing chemo 5 days a month on chemo pill he feels exactly like you stay strong they told him they couldn’t tell him a time frame the doctor said they wasn’t playing god it’s very hard to watch but stay as positive as you can take one day at a time god speed
That’s a tough tumour to carry around what kind of symptoms is he dealing with
@@BNBsBrainCancerJourney short term memory is really affected not able to eat says everything is extremely bitter some days are better with taste don’t eat with metal use plastic fork an spoons throwing up is another one
@@chrissmith3766 thanks for tips
@@BNBsBrainCancerJourney also if your taste starts to go tablespoon of baking soda an tablespoon of salt to a cup of like warm water swoosh an spit do this several times it does help ibuprofen does not seem to help Tylenol does better foods with protein seems to make him feel better
Research the man that took dog medicine that cured his cancer, its called fenbendazole, may be worth a try. Prayers for you to receive complete healing in Jesus Name ! There's power in that name !! Speak Jesus over every problem , just call on Him !
Very sorry your going through this.
Appreciate it thank
Praying for you ❤
thank you!
Your a top guy and dont deserve this bullshit. #fuckcancer sending good thoughts from New Zealand 🇳🇿 ❤️
Thanks, I agree fuckcancer, I even have a journal with that on the cover
I'm so sorry you are going through hell on earth. In my opinion, eat whatever you want. Don't beat yourself up thinking you did anything that caused this devil cancer. Your depression and sadness is normal. Also, chemo, radiation and other treatments can cause brain fog, out of body sensations.
My husband passed from Glioblastoma Multiforme Grade 4, so I understand.
Prayers of comfort and healing ❤🙏🙏
Oh, get in your doctor's face and demand some answers ❤
Thank you and sorry to hear about hubby.
Im so sorry you're going through this. 😢 Have you looked into hyperbaric oxygen therapy? Supposedly, they have had good results with it, cancer doesn't like oxygen. I know what you mean looking things up for yourself on the Internet. Try to hang in there.
Not easy to get and you would need many treatments im sure.
Do you know what type of chemo you will be on? My mom did really well on the pills. You are in my prayers. 🙏🏼
This was the name
temozolomide (Temodar)
Temodar
Truth is that doctors don't know the exact date that terminal patients are going to die. They just make up an arbitrary time frame and go from there. It's all a guess. I think you, BNB, are weighed down with the negativity of your situation. You must find ways to lighten your load. I do understand because with brain cancer it affects your whole body and your emotions. Prayer is the answer. Prayer and rest and thinking of good times, good situations that happened in your life. Think of good memories and aim for physical comfort and relaxation every day. I'm praying for you and hope you find some comfort.
thanks for this
Find GOD.
I have
@@BNBsBrainCancerJourney then surrender to his WILL. We are only here temporary.
BNB, you are always in my prayers. I am so sorry that you are going to have to go through the chemo on top of your prior therapy. I know it must be terribly frustrating to not be able to do simple things but your brain right now is coming off of such a traumatic experience. And yet, you are communicating so well to us. So, I know there is plasticity taking over to compensate for the portion of the brain that was affected.
I could never estimate your time remaining but I see a lot of improvement. You are a very unique person so I believe that you will heal. Perhaps you may not go back to the “old you” but you can reinvent yourself to be better in different ways.
As I watch what you are experiencing, I feel it is quite normal to mourn your prior life. And, don’t assume, you can’t get back to it at a later time.
For now, I know you will be brave to go through this chemo time. Focus on just enduring that as it is a big challenge. Don’t put too much more in your shoulders. Let that be your goal along with whatever research you can do. Keep up with our videos (if you can) because you have a huge group of people praying and cheering you on.
❤❤❤
My best friend died 2 yrs ago from brain cancer. It happens you need to see about getting a personal assistant. Your insurance should pay for it. I get one everyday for few hours.
I do get a PSW 4 hours a week, and it helps
@@BNBsBrainCancerJourney good.
I’m so very sorry for your pain.
THank you I been doing better mentally now.
BNB, Im not a social media person. And commenting only because I saw your video, please let me know BNB,if somehow I could send you a care package to you? Could I (and how can I) private message you, via email or txt or talk on phon?.
bignorthernbear@gmail.com can email me there. No need to send anything truly.