Something that my dad uses to make transferring easier is using a satin pillowcase (empty, not filled with a pillow) to make sliding from chair-to-bed, for example, easier on him. This lessens the “drag” of trying to move his clothed body across a fabric bedsheet. 💫💫💫
Thanks a bunch, Brian. I'm old but relatively a para newbie and your posts have been most helpful. I've had a couple of J2 gel cushions but think the Roho Hybrid would be better for my purposes. I found a Roho Nexus on a popular web site but haven't found the Hybrid yet. Hope they are still making and in my size. Thanks again, Brian. You make a real difference in real people's lives. That must be a great feeling! :-) Blessings!
I have been T10 paraplegic since 1983. I've sat on numerous Roho Low Profiles and Supracor Slimlines. I prefer Supracor because it lasts forever, it doesn't puncture and leak, and its firmness helps me to sit up straighter. My current Supracor Slimline has lasted 6 years and is still usable. I haven't tried a Roho foam-air cell hybrid, such as the one you have. The firm foam under the thighs would help with posture but the air cells will leak after a while. How long does your Roho last before it deflates and dies?
Thanks for the review I am in the process of choosing another cushion and this one really looks much more logical to use, because those transfers with the ROHO really makes to challenging because you sink down to your chair seat giving you 3 in less of push off transfers. Thanks
I don’t see how y’all do it with out handles on your chair. But I’m a paralyzed from chest down. The bars help me transfer and reach heights I wouldn’t normally be able to.
Hi Brian, Thanks for the video. My mom has broken hip and needs some type of cushion while healing up. You are an inspiration to watch and love your videos and advice.
I use a Jay Balance, which is also a hybrid like Elite. Couldn't be happier. Got it in 2018 and actually this year was first time I had a puncture which I solved with a patch and some liquid PVC/rubber. Well build and like you said, probably the best, the results from BodiTrak were better than honeycomb and gel. If I will get another, will probably be the same type.
I like the stimulite had good success however it goes flat after abit, like 5 years. Tried ROHO & Jay Gel and got flats with both them. I have a custom RIDE cushion now which is perfect as my ITs are totally floating all weight is held up by back of butt side/hips and thighs. Very hard and light weight cushion makes it great for transfers. I cannot feel anything so that doesn’t bother me. Thanks as always for your videos. Well done!
Your video was very helpful. I am desperately researching and looking to purchase a wheelchair pad and a preventative bed ulcer mattress fir my son. After 2.5 years he has his first bed soar and I feel helpless. So thank you very much for helping.
Tanhia Young Hi Tanhia, know this is an old post. I would meet with a physical therapist that does pressure mapping. They know what cushions work for your son according to how he distributes his pressure when sitting. This will help prevent future wounds.
There is another Jay cushion I have that I've liked and will be getting what replaces it. I have the Jay Active which has a gel compartment you Velcro at the back. It has been replaced with the JX2 which I'm getting soon. I think the gel centers are easier to push back into place but I never really had to do that much. I just had trouble with the gel centers busting, but I think I was not careful enough about taking care of them. I'm hoping I get a much better experience. Several Roho cushions were suggested to me but I wanted to stick with what has worked so many years for me.
lt's been a long time since you have posted, wondered if you were going to. l appreciate very much your posts, l think we all have something to bring to the table, we all have creative minds and l have had to be to survive this long with no skin issues so far. l have only made one video about self care but plan to do more soon. l am a T12 and have been for 30 years and my first video is directed to sharing is entitled Paraplegic Longevity-Wheelchair Cardio. The bulk of my videos are traveling as a wheelchair user and l am just learning to edit. Most are a little on the rugged side but improving now that l am a student editor! I would really love to take your bike for a ride! haha! Hope to see more of your experiences, l admire your determination. Randy
+SitDownPerspective Thanks for the comment Randy! I've had a busy year with work so my videos got put on the back burner. I really enjoy making them and communicating with others so I will be making more soon. Glad you have shared some videos as well!
nice, how can i get one. I live in the Caribbean n would love to no how i can purchase one n cost as well. please, it would mean alot to me to bring my husband who has been wheel chair bound for eighteen years. It would make me very happy to bring him some kind of relief from pain after all those years of painful sitting. please help. waiting on your reply. thank you.
HI Brian. I also use a Roho, though full size, and covered with a full sized cover. You mention issues with punctures. Have you explored a cover that might protect the air cells? I have watched all your videos and wondered how you were transferring from your chair (e.g. air travel) with such ease - know I know.
+DonWW The 2 leaks I have experienced were not so much of the cells being punctured but seemed to likely be caused by wear and tear. The leaks developed in the crease at the base of the cell.
im currently using a jay cushion, might not be the best but ive actually only used the cheap generic basic cushion before that so its better than those. im boney on one butt and have a pressure sore but not really on the other side, this video puts me to shame really, i was born disabled, spina bifida, but know next to nothing about all the different technology thats out there for disabled people, ive just coped with what ive been given and not questioned it, i think i need to step up my game lol (im in England, and get my equipment through the NHS so it might be different over there.)
It's nice to see someone with disability give a review on these productsis worse than having someone that doesn't have to use them tell you what's best for you
I use a Roho and I've also used the Jay2. I like the Roho b/c I feel like the air chambers give me more pressure relief, but I like the Jay2 b/c it had the contour (plus I had side wedges for my adduction weakness). I was wondering if you have ever tried the Roho Contour Select? If so, do you think this would give me better control so that my legs don't splay out as much and the way there are different heights to the chambers it will give me that contour I am looking for? Thanks!
I have a couple of roho cushions, my problem is that they don't provide stability, I lean to the right because I have scoliosis from my paralysis. Do you find the elite to be more stable?
Hello there, I have Cerebral Palsy and I use a honeycomb cushion. While I've not gotten sores from it, it does start to dig into my body after a little bit, and I find that after about 6 months of usage the cushion gets kinda squished and is less comfortable, my insurance is a pain, they avoid replacing anything like the plague. I was wondering if you had any thoughts on possibly a different type of cushion, especially if it's easier to clean, as I have issues with bladder leaks. Thank you so much for your time.
Thanks Mr. Bryan I've been trying to comprehend what type of dicubital cushion would be best for my stepson. I also been informed that sheepskin is very good. Cld he use that as a cover over the cushion y9u have on yr chair???
I have spina bifida and i am not a fan of cushions. That gel cushion you showed the one thats heavy and you didnt like ive tried that one and i didn't like that one either, i thought it was to thick and it felt weird. i find that because of my spina bifida when i sit on a cushion unless it is a thin one i feel kinda like im being pushed forwards if that makes any sense. i tried explaining to the OT that cushions i feel don't make me sit right with my back and all they did was give me a lumbar thing which made things worse. so right now im sitting on nothing and hoping not to get a pressure sore. :-(
Where does one go to get pressure mapped? I'm on my second chair now and this was never part of the process for me. Is it something that insurance covers or is it more of an optional part of fitting?
+Cheshire House Pressure mapping is usually done by physical medicine and rehab therapists. I have always been pressure mapped when trying a new chair or cushion and yes, it is covered by insurance. We have a "wheelchair clinic" at the Ohio State University and they have specialized therapists that focus on getting the best fit and efficiency out of your wheelchair.
I need tips on what can I use so that when I sit down my legs wont open it’s hard for me to Wear dresses because when I said my legs won’t close I don’t know if it’s the cushion or just me
Yea, I can imagine that would be a problem in a dress. I've had to add support under my cushion to raise my legs enough to keep them together. As long as your under leg to foot plate is well proportioned your legs won't spread. You can always add foam pads under the cushion to raise it enough to solve this problem.
I have a car that has very narrow and uncomfortable seats. I was thinking of using one of these wheelchair air cushions to help with the comfort level and tolerability. I'm driving about 5 to 10 hours a day. I can't find a regular seat cushion that is big enough or comfortable enough. Would you recommend that I try a wheelchair cushion for a car seat? Thanks!
The wheelchair cushion has a large base that may sit too high in a car. I do have a ROHO LTV air filled cushion for the car though that works well. Look it up!
Hey Calvin! Long time so see buddy. I tried the supracor bud I think I'm just way too bony. The ROHO gives me better protection long term. Great to hear from you!
Hello Sir....i have a question for you if I may. I realize this an old video....i am currently wanting to switch from a power chair to a manual chair very much like if not exactly like yours. I will be a driver of a vehicle and need a chair that disassembles. If you could please tell me the name and model of chair I would be most appreciative.
His older one (the one with the ROHO cushion) is a TiLite ZRA, and his current one (the one he's sitting in) is a TiLite ZR, which is basically the non-adjustable version of the ZRA. The manufacturer of TiLite is Permobil.
@@ParalyzedLiving Thank you very much, I was looking for it online and I get one for 149 and another for 375 dollars. Will it be the same in terms of quality or is there a difference? How much did yours cost you and I apologize for the inconvenience.
@@SergioJr04 I looked it up quickly and I think $149 is only for the cushion cover. I went through my insurance and believe I only had to pay a copay - not the full $375. Do you have any insurance coverage that can help? If so, you’ll need a prescription to go that route.
I can't it in anything my legs go completely numb from pressure on my spine and my butt is bony like your's.What would you suggest that doesn't put pressure on the butt???I am desperate and facing being paralyzed in my future from my spine.I think you liked the Roho Hybrid Elite is that right?
I can only get one so for my chair and traveling which one should I get?Can I get from a company that sales supplies so my insurance will pay for it?My doctor says nothing is going to help.I lay mostly in bed on my left side now.Thank you for the help and the video.
Something that my dad uses to make transferring easier is using a satin pillowcase (empty, not filled with a pillow) to make sliding from chair-to-bed, for example, easier on him. This lessens the “drag” of trying to move his clothed body across a fabric bedsheet. 💫💫💫
Thanks a bunch, Brian. I'm old but relatively a para newbie and your posts have been most helpful. I've had a couple of J2 gel cushions but think the Roho Hybrid would be better for my purposes. I found a Roho Nexus on a popular web site but haven't found the Hybrid yet. Hope they are still making and in my size. Thanks again, Brian. You make a real difference in real people's lives. That must be a great feeling! :-) Blessings!
I have been T10 paraplegic since 1983. I've sat on numerous Roho Low Profiles and Supracor Slimlines. I prefer Supracor because it lasts forever, it doesn't puncture and leak, and its firmness helps me to sit up straighter. My current Supracor Slimline has lasted 6 years and is still usable.
I haven't tried a Roho foam-air cell hybrid, such as the one you have. The firm foam under the thighs would help with posture but the air cells will leak after a while. How long does your Roho last before it deflates and dies?
Awesome video! Love seeing other people with "disabilities" educating! I love my gel cushion but I don't have a bony butt hahaha!
Thanks for the review I am in the process of choosing another cushion and this one really looks much more logical to use, because those transfers with the ROHO really makes to challenging because you sink down to your chair seat giving you 3 in less of push off transfers. Thanks
I don’t see how y’all do it with out handles on your chair. But I’m a paralyzed from chest down. The bars help me transfer and reach heights I wouldn’t normally be able to.
Hi I am a blind pereson and I love listening to ur videos
Great to see you posting again.
Hi Brian, Thanks for the video. My mom has broken hip and needs some type of cushion while healing up. You are an inspiration to watch and love your videos and advice.
I use a Jay Balance, which is also a hybrid like Elite. Couldn't be happier. Got it in 2018 and actually this year was first time I had a puncture which I solved with a patch and some liquid PVC/rubber. Well build and like you said, probably the best, the results from BodiTrak were better than honeycomb and gel. If I will get another, will probably be the same type.
I like the stimulite had good success however it goes flat after abit, like 5 years. Tried ROHO & Jay Gel and got flats with both them. I have a custom RIDE cushion now which is perfect as my ITs are totally floating all weight is held up by back of butt side/hips and thighs. Very hard and light weight cushion makes it great for transfers. I cannot feel anything so that doesn’t bother me. Thanks as always for your videos. Well done!
Your video was very helpful. I am desperately researching and looking to purchase a wheelchair pad and a preventative bed ulcer mattress fir my son. After 2.5 years he has his first bed soar and I feel helpless. So thank you very much for helping.
Tanhia Young Hi Tanhia, know this is an old post. I would meet with a physical therapist that does pressure mapping. They know what cushions work for your son according to how he distributes his pressure when sitting. This will help prevent future wounds.
There is another Jay cushion I have that I've liked and will be getting what replaces it. I have the Jay Active which has a gel compartment you Velcro at the back. It has been replaced with the JX2 which I'm getting soon. I think the gel centers are easier to push back into place but I never really had to do that much. I just had trouble with the gel centers busting, but I think I was not careful enough about taking care of them. I'm hoping I get a much better experience. Several Roho cushions were suggested to me but I wanted to stick with what has worked so many years for me.
lt's been a long time since you have posted, wondered if you were going to. l appreciate very much your posts, l think we all have something to bring to the table, we all have creative minds and l have had to be to survive this long with no skin issues so far. l have only made one video about self care but plan to do more soon. l am a T12 and have been for 30 years and my first video is directed to sharing is entitled Paraplegic Longevity-Wheelchair Cardio. The bulk of my videos are traveling as a wheelchair user and l am just learning to edit. Most are a little on the rugged side but improving now that l am a student editor! I would really love to take your bike for a ride! haha! Hope to see more of your experiences, l admire your determination. Randy
+SitDownPerspective Thanks for the comment Randy! I've had a busy year with work so my videos got put on the back burner. I really enjoy making them and communicating with others so I will be making more soon. Glad you have shared some videos as well!
@@ParalyzedLiving Hi Brian, I am glad that you shared some of your videos. Stay positive. Kind regards, from, PaulLaw.
Its very important to have a good cushion to avoid ulcers
Love your videos man, thanks for sharing.
nice, how can i get one. I live in the Caribbean n would love to no how i can purchase one n cost as well. please, it would mean alot to me to bring my husband who has been wheel chair bound for eighteen years. It would make me very happy to bring him some kind of relief from pain after all those years of painful sitting. please help. waiting on your reply. thank you.
I hope to make a survivor group meeting soon maybe I'll see you there. Awesome videos man!
HI Brian. I also use a Roho, though full size, and covered with a full sized cover. You mention issues with punctures. Have you explored a cover that might protect the air cells? I have watched all your videos and wondered how you were transferring from your chair (e.g. air travel) with such ease - know I know.
Never mind - just watched your next video. It appears that you have a cover over the whole seat.
+DonWW The 2 leaks I have experienced were not so much of the cells being punctured but seemed to likely be caused by wear and tear. The leaks developed in the crease at the base of the cell.
im currently using a jay cushion, might not be the best but ive actually only used the cheap generic basic cushion before that so its better than those.
im boney on one butt and have a pressure sore but not really on the other side,
this video puts me to shame really, i was born disabled, spina bifida, but know next to nothing about all the different technology thats out there for disabled people, ive just coped with what ive been given and not questioned it, i think i need to step up my game lol (im in England, and get my equipment through the NHS so it might be different over there.)
It's nice to see someone with disability give a
review on these productsis worse than having someone that doesn't have to use them tell you what's best for you
Thanks for the recommendations up top
I recently got the half air half rigid cushion
Thanks for the info man it really does help
I use a Roho and I've also used the Jay2. I like the Roho b/c I feel like the air chambers give me more pressure relief, but I like the Jay2 b/c it had the contour (plus I had side wedges for my adduction weakness). I was wondering if you have ever tried the Roho Contour Select? If so, do you think this would give me better control so that my legs don't splay out as much and the way there are different heights to the chambers it will give me that contour I am looking for? Thanks!
I have a couple of roho cushions, my problem is that they don't provide stability, I lean to the right because I have scoliosis from my paralysis. Do you find the elite to be more stable?
Tell us about the type of chair you use. I would like a chair like that
Hello there, I have Cerebral Palsy and I use a honeycomb cushion. While I've not gotten sores from it, it does start to dig into my body after a little bit, and I find that after about 6 months of usage the cushion gets kinda squished and is less comfortable, my insurance is a pain, they avoid replacing anything like the plague. I was wondering if you had any thoughts on possibly a different type of cushion, especially if it's easier to clean, as I have issues with bladder leaks. Thank you so much for your time.
Thank you for sharing!!
Thanks Mr. Bryan I've been trying to comprehend what type of dicubital cushion would be best for my stepson.
I also been informed that sheepskin is very good. Cld he use that as a cover over the cushion y9u have on yr chair???
I have spina bifida and i am not a fan of cushions. That gel cushion you showed the one thats heavy and you didnt like ive tried that one and i didn't like that one either, i thought it was to thick and it felt weird. i find that because of my spina bifida when i sit on a cushion unless it is a thin one i feel kinda like im being pushed forwards if that makes any sense. i tried explaining to the OT that cushions i feel don't make me sit right with my back and all they did was give me a lumbar thing which made things worse. so right now im sitting on nothing and hoping not to get a pressure sore. :-(
I know this video is old but would you rather a single compartment or a dual compartment
Great vid, I agree hybrid is the best.
Where does one go to get pressure mapped? I'm on my second chair now and this was never part of the process for me. Is it something that insurance covers or is it more of an optional part of fitting?
+Cheshire House Pressure mapping is usually done by physical medicine and rehab therapists. I have always been pressure mapped when trying a new chair or cushion and yes, it is covered by insurance. We have a "wheelchair clinic" at the Ohio State University and they have specialized therapists that focus on getting the best fit and efficiency out of your wheelchair.
@@ParalyzedLiving Hi Brian, this video is very useful. Nice cushions for the wheelchair. Kind regards, from, PaulLaw.
I know this video is older but, do you still use the Roho?
I need tips on what can I use so that when I sit down my legs wont open it’s hard for me to Wear dresses because when I said my legs won’t close I don’t know if it’s the cushion or just me
Yea, I can imagine that would be a problem in a dress. I've had to add support under my cushion to raise my legs enough to keep them together. As long as your under leg to foot plate is well proportioned your legs won't spread. You can always add foam pads under the cushion to raise it enough to solve this problem.
@@ParalyzedLiving Hi Brian, great video. Hybrid is the best. Kind regards, from, PaulLaw.
What do you think of memory foam cushions?
Could you leave a link on where to buy the roho hybrid elite?
I have a car that has very narrow and uncomfortable seats. I was thinking of using one of these wheelchair air cushions to help with the comfort level and tolerability. I'm driving about 5 to 10 hours a day. I can't find a regular seat cushion that is big enough or comfortable enough. Would you recommend that I try a wheelchair cushion for a car seat? Thanks!
The wheelchair cushion has a large base that may sit too high in a car. I do have a ROHO LTV air filled cushion for the car though that works well. Look it up!
Where can I buy this
Hi Brian! I've been using the Supracore for over ten years with no problems whatsoever. If I recall, you are a T3 I'm a T4.
Hey Calvin! Long time so see buddy. I tried the supracor bud I think I'm just way too bony. The ROHO gives me better protection long term. Great to hear from you!
Hello Sir....i have a question for you if I may. I realize this an old video....i am currently wanting to switch from a power chair to a manual chair very much like if not exactly like yours. I will be a driver of a vehicle and need a chair that disassembles.
If you could please tell me the name and model of chair I would be most appreciative.
His older one (the one with the ROHO cushion) is a TiLite ZRA, and his current one (the one he's sitting in) is a TiLite ZR, which is basically the non-adjustable version of the ZRA. The manufacturer of TiLite is Permobil.
hello currently which cushion do you use, I want to buy one like yours. I have a bony buttock 😄. I had a roho, but every time she had to patch it.
Yes I had the same issues with my ROHO cushions. I am currently using a Ride Java cushion and like it much better than the air or gel filled cushions.
@@ParalyzedLiving Thank you very much, I was looking for it online and I get one for 149 and another for 375 dollars. Will it be the same in terms of quality or is there a difference? How much did yours cost you and I apologize for the inconvenience.
@@SergioJr04 I looked it up quickly and I think $149 is only for the cushion cover. I went through my insurance and believe I only had to pay a copay - not the full $375. Do you have any insurance coverage that can help? If so, you’ll need a prescription to go that route.
@@ParalyzedLiving thanks Bro
@@ParalyzedLiving how long have you been away from ROHO hybrid now and using the Ride Java?
how often do you have to pump the ROHO Cushion?
+Chris Chan Almost never. Since there is such little pressure it doesn't leak.
@@ParalyzedLiving Hi Brian, how often do you have to pump the ROHO cushion? Kind regards, from, PaulLaw.
I can't it in anything my legs go completely numb from pressure on my spine and my butt is bony like your's.What would you suggest that doesn't put pressure on the butt???I am desperate and facing being paralyzed in my future from my spine.I think you liked the Roho Hybrid Elite is that right?
Yes for me the ROHO hybrid or a full ROHO is the way to go. Air cushions offer much more pressure relief than Gel or honeycomb cushions that I tried.
I can only get one so for my chair and traveling which one
should I get?Can I get from a company that sales supplies so my insurance will pay for it?My doctor says nothing is going to help.I lay mostly in bed on my left side now.Thank you for the help and the video.
Who makes your low profile cushion and where did you get it?
Looks like maybe the ROHO Mosaic cushion, though I can't be 100% sure.
cool.
Muy util
im a new sub had a stroke cant use right arm or leg
You have full finger function? Jelly
+legitsrs yes
@@ParalyzedLiving Hi Brian, you have full finger function? Jelly. Kind regards, from, PaulLaw.
Plz tell Hindi , explain in Hindi ,I have need this Cushan