As an OSU nursing graduate (a while ago!), I want you to know how much insight your videos have given me into the "living in the world" life of people who who have suffered SCI's. I have cared for several patients in the hospital and many times have wondered how they worked it all out after going home. You are a natural born teacher, and with honesty and charm you are providing much needed knowledge and information to all of us. Thank you for your courage in sharing your life and I am looking forward to further installments.
Hey Brian. I was recently paralyzed from the waist down and I've been dreading my trip across the country. This makes it a lot clearer and easier for me. Thanks!
I've flown international, and they have an aisle chair the flight attendants use, but there are a few issue to know; first, the flight attendants are not allowed to help you transfer, so if you're not able to transfer for yourself or if you've been stuck over by a window, it may be a bit more difficult, next you will have to be bold with them in giving instructions because they do not understand how the aisle chair needs to be positioned and lastly, when you're done, they sometimes have walked away so you will need to use the call button if that type of plane has one inside the bathroom. Plan in advance, from the time you realize you need to use the restroom, to the time they actually get you there can be a while, it took them 45 mins on a recent flight. Bring lots of sterile wipes because airplane toilets are very dirty and if you're like me having to self cath, it can give you a mentally horrible feeling.
Just wanted to say thanks for this video and your others, I have a lot of anxiety about having to make my first flight. I'm just about a year into my injury and even though I went through a month long inpatient rehab there were a ton of stuff they don't touch on and the fact that I had (many don't) access to the internet in my room meant I was able to take full advantage of videos made by yourself and other Paraplegics...Anyway, keep up the great work and thank you!
You have great tips. I've been a para since 1985 and it gives "fear of flying" a whole new dimension! I have flown a lot including Utah to Ireland. They did have an on-board aisle chair for the bathroom but I didn't use it. I have a continent urostomy on my belly (internal pouch, no external bag) so I can cath in my seat into a zip-lock bag and place it inside a barf bag for later disposal. I can literally do it in my sleep, so under a blanket is not too hard. I try to take advantage of my seatmate's potty trip for more privacy. My biggest fear is losing bowel control so I dose up on immodium for a long flight. The best fun is that the people who board later don't even know I'm a "crip" until we meet at baggage claim!
Your brilliant , as a partine wheel chair user my limit walking Is flat ground 100 ft, I used a Porsche Alber electric self-contained chair and frequently I am not seeing a video like this would rocket on to the plane and I wish the large planes and stored insisted my chair be stored in the front closet and they did do that except for one flight out of 30 I flew 5 to 6 times a year 5 to 7 hours. Including flights to Europe the biggest thing is yes wear a condom catheter and make sure in my case I put on KAFO braces to stabilize myself. Thank you for your assistance you’re brilliant man very brave
Great video! I am a C5-6 and flew to Greece a few years ago - 14 hours total from NY. What was nice was the flight wast full so I had an empty chair next to me and could literally lean over for pressure reliefs. Wife helped with bathroom stuff and I spent about a week getting ready for the flight. Really want to watch your diet before a long flight like this; dont need any surprises at 35K feet!
This video is heaven sent my boyfriend is flying from north Carolina to here in Seattle he's quadriplegic C6 and hasn't flown in over 20 years now I can give him some great ideas Thanks🙂
I'm in a wheelchair and am going to be traveling out of state in a few days, sure it's only a two hour flight but I still had watching this video on my pre-travel check list.
Just to note: All commercial airlines are required to have a wheelchair closet on-board, in the front by the cockpit entrance. As per federal law you must be allowed to put your wheelchair in it so long as it folds or breaks down to 13″ x 36″ x 42″ or smaller. If your wheelchair doesn’t fold this small without removing anything, but it will fit in this space with the wheels/backrest/headrest/etc. removed, and the wheels/backrest/headrest/etc. can be removed without the use of tools, not only do they have to let you use this space, they have to help you take your chair apart. (Source: www.ecfr.gov/cgi-bin/text-idx?SID=ae47679a5dc0b0cdd685abc7e3437dbb&mc=true&node=pt14.4.382&rgn=div5#se14.4.382_167) §382.123 What are the requirements concerning priority cabin stowage for wheelchairs and other assistive devices? “(b) If a wheelchair exceeds the space provided for in §382.67 of this part while fully assembled but will fit if wheels or other components can be removed without the use of tools, you must remove the applicable components and stow the wheelchair in the designated space. In this case, you must stow the removed components in areas provided for stowage of carry-on luggage.” (Source: www.ecfr.gov/cgi-bin/text-idx?SID=ae47679a5dc0b0cdd685abc7e3437dbb&mc=true&node=pt14.4.382&rgn=div5#se14.4.382_1123) If they even suggest theres no room unless there is already another passenger's wheelchair in that closet they have violated federal law. CFR Title 14, Chapter II, Subchapter D, Part 382, Subpart E, Section 382.67, Subsection (e) “As a carrier, you must never request or suggest that a passenger not stow his or her wheelchair in the cabin to accommodate other passengers (e.g., informing a passenger that stowing his or her wheelchair in the cabin will require other passengers to be removed from the flight), or for any other non-safety related reason (e.g., that it is easier for the carrier if the wheelchair is stowed in the cargo compartment).” (Source: www.law.cornell.edu/cfr/text/14/382.67) More info can be found on this masterpost here: phoenixonwheels.tumblr.com/post/167626925261/fuckyeahparaplegia-phoenixonwheels I highly suggest you read through it as i had no idea before now these even existed.
Rigid frame wheelchairs rarely if ever fit these spaces, I have used them when I had a folding wheelchair, but the mobility most folding wheelchairs give is terrible.
I have a question, what do they do for seating for people who are wheelchair bound. My mom has cerebral palsy and i'm planning to save up money for me, her , and my dad to go on a trip but she has difficulty making it to the bathroom if its too far, etc. This is pretty much my only concern when traveling.
@@NotGamersHD Planes that have a certain number of seats or more are required to have an onboard aisle chair. Always double check, but they're supposed to. If it's a concern, that's an option. Someone on youtube (I forget who) did a video that talks all about the onboard aisle chair.
I've been in a chair for only 3 weeks now (brain cancer) and was thrilled to see your video as my husband and I want to start traveling some after my radiation gets done next month.. Thank you so much.
For international flights they should also have aisle chairs. Make sure they do before you pull away from the gate. It's better if you go on a larger plane also because you will have to use one of the bathrooms which is in the middle section (as opposed to the sides) that has two bathrooms with a middle divider. Make sure they know how to move the divider otherwise you will be sitting outside the bathroom with them trying to figure it out, in the aisle chair. If you don't have one of the bigger bathrooms its like gymnastics getting in a small one. Even if you get first class or business class the bathrooms are likely to be the smaller ones and you will have to go all the way back to coach to use one back there. As far as sleeping, try to upgrade to business or first with lay-flat seats, but I know that gets expensive. When you get to the gate ask to be moved to the "front of the plane" so they don't have to take you through all the aisles. I've gotten a couple upgrades for free to bc and almost always get upgraded for free to economy plus. Also ask if there is anyone in the seats next to you because it will be hard for them to get around you. I've had them clear entire rows for me without asking and slept across three seats. Go to sites like seatguru to see the layout of your aircraft. If you go to Europe consider taking the train between countries as it is cheap, fast and you get to stay in your chair with easy access to the bathroom. I've also found the Europeans extremely helpful to anyone in a wheelchair. Get back to me with any other questions.
Never had to use a bathroom in a plane. A friend of mine who works in a travel agency and has lots of wheelchair user clients, told me that you can ask an airline for an option to have a special aisle chair on board the plane. And they might also put a strong guy on the flight who could help changing seats. Still, never tried this myself. BTW, had to fly over Europe quite a lot, but never saw anyone using all these straps for an aisle chair. Looks like a real pain in the ass. As for the cushion - try putting it behind your back once? I usually fold it in the middle and put it just a bit over my loin. it gives you a straighter position, you don't bend down and it's way easier to sleep in this position. Actually works for almost any seat - plane, train, etc... Or you can put something else there, if you prefer to sit on your cushion no matter what.
I find in the UK they are pretty reliable at using the straps, same with Switzerland, Netherlands, but France, Italy, Spain, Turkey, they don't bother. You can't really categorize Europe as one place, I find Netherlands/Belgium are often good at helping but think they have done you a huge favour and will make you feel bad if you ask for more help. Further south they might be less knowlegable about what help to offer but will happily give it if you can explain what you want. Also if you need a wheelchair accessible taxi, Madrid has been the best in my experience.
I took my son out of his wheelchair in Italy. I was checking to see if his adult diaper needed to be changed. Our Italian driver came to check on us and helped me put my son back in his wheelchair.
I'm going to Scotland next year, June of 2018, I'm a T7 paraplegic and I am NERVOUS AS HELL. I've never been on a plane, much less in the 4 years I've been in this chair. I have absolutely no idea how I'm going to get through this, I'll be sure to get it on video and post here how it works put
If you are arriving in Edinburgh, be warned, they have provided me with all of my worst delays in getting off an aircraft, they use a lift even for planes which are deboarding via jetway so they can take you direct to passport control. I've never flown into Glasgow, so no experience there. The biggest problem I find with UK airports is delays rather than not knowing how to do things. The biggest problem with getting around outside of the airport is that the big cities and many towns have old town centres, which can mean narrow pavements, the entrances to big stores will have been modified to be at street level, but smaller stores and cafes probably not. They should have ramps, but unless someone else has complained previously they may well not. I believe there is a website called something like "accessible scotland". I've never rented a car in the UK (given I live here and own one), but I assume major companies will allow you to rent an automatic with hand controls. If you are coming from US your parking placard will not be valid and as far as I have been able to find out there is no temporary solution (I moved US to UK and was basically housebound until I got a UK one issued - this is much easier within Europe as they are valid across EU countries). Let me know if you have any more questions, I'm in the south myself, but I may be able to find some people in Scotland to ask if you have very specific questions, otherwise the UK is generally much of a muchness.
Thankyou so much for this video my son is 14 and has spastic Cerebral palsy and doesnt transfer hisself and we are flying to Hawaii and are concerned with the Isle wheelchair and the bathroom situation and your videos are so awesome!!! Much Love !! Melanie Hansen
Hi my 15 yrs old daughter also has cerebral palsey and does needs trunk support. She will not be able to sit in the chair without any support. Did u have a special seating or cushion for your son? We’re wanting to go to Hawaii as well but I’m afraid of travel complications.
thank you for posting this video! my mom is a paraplegic and is afraid of flying because of it. I am forwarding this video to her in hopes that it will give her the courage to come visit us. God Bless you! Awesome video!
easy jet are great plus staff help esp if you're unsteady on your feet they help even strangers ask if i need assistance which is sometimes frustrating as i like to be independent but greatful for the help. thanks for this video
Thanks so much for making this video, C6 partial quad here - been afraid to fly Concerned about demeaning process also ; Helps me find some courage to fly
Thank you for the video my mom is paralyzed on one side of her body due to a stroke . Watching your video gave me a good visual how to board a plane with wheelchair.
Thank you, Brian. My husband is recently handicapped and can only walk a few steps with hanging and leaning on walls, countertops. I was wondering and worried how to transport him on the plane.
T7/8 complete. 21 yrs I insert a Foley and use a leg bag. I don’t need to dehydrate myself. Bring empty water bottles to empty the bag in flight. If you are with someone they can empty the bottles. I found out that the attendants will not touch your “bottle” even w/gloves. Don’t ask for an empty bottle, they may ask if you are using it for “bodily fluids”. I only needed to experience this once. Always sit on your personal cushion. As he noted remember to manage your air in the cushion. I use a Ryde cushion so not an issue. Yes non stops is the way to go otherwise be sure to allow a 2 hour lay over. Remember 1st on last off. I flew to Barcelona this summer and with a Foley there were no issues. Be sure to bring enough catheter w/attached bag and some incontinent pads in case you have to abort the Foley for what ever reason. Only happened once in 20 yrs. Enjoy the world.
Very good information, thanks! I am going to be taking my son on his first plane trip and we both have anxiety about the process, his chair being damaged, etc. so this is very helpful!
This is how my boyfriend uses the bathroom in a plane: Using the restroom (toilet) on a plane (Wheelchair user) (Paraplegic). He wants to be able to use the bathroom by himself so he always asks for the back seats, which are as close as possible to the bathroom. He also made a video of how he boards a plane with the aisle chair on his channel. That said, using the bathroom in a plane is admittedly the worst part of the trip for him. Also, he recommends United Airlines for international flights. He was very disappointed by American Airlines that made one of his trips horrible regarding accessibility on a flight from France. He used Frankfurt, Brussels and Paris airport several times so if you need any tip to travel there, you can get in touch with him.
I flew to Poland from Denver with a layover in Frankfurt Germany. I brought my metal walker, but was transferred to a wheelchair to move around the airport faster. I can stand and limp, so I was wheeled up to the doorway of the plane and used the walls and seats for assistance as I limped through the aisles to my seat. Interestingly, in my smaller plane ride to Katowice, I was brought to the runway on a bus and transferred to a L-Shaped metal seat and strapped in, wherein I was carried up the stairs into the little plane and pushed down the aisle to my seat. They let me limp off through the aisleway when we landed, which was nice. I will say that the Frankfurt Airport was the nicest place I've ever flown as a disabled person. They wheeled me to a staging-room, which had coffee & water and restrooms out of sight of the general public of the airport. From there they would wait till my flight was boarding then wheel my out to handle the rest of the trip. In the meantime they watch over your stuff while you get to be a tourist, rather than a disabled dude carrying a pile of bags, which is probably the best experience possible. Nice videos, my dude.
All your videos are so helpful. Also to answer the question I went from Philadelphia to California and I just use the condom catheter and I never have problems. I really need to set my a bathroom up how you have, that's the only problem I have is showering nowadays and I have to take baths and I use a yoga mat so I can avoid sores as well. But I wish you the best and thank you for all your videos and you gave me hope that one day I will get married.
Being an Aussie I only fly Quantas and they have an aisle chair on board and all staff have basic training to deal with wheelies (they do fly out para Olympic team)
I don't have a spinal cord injury but I cannot walk due to balance issues along with bone problems. In the last year I have traveled about 8 times. I hate hate the aisle chair so much! I am very sensitive to touch and it makes my pain worse. They strapped me in and pulled the belts so hard I felt like I could not breathe. I even told them to go lightly. Thank god I slipped my hands under the leg belt to stop her from strapping it too tight. or else they would have heard me screaming. Then on the way back they did not have one at the gate so it took a good 10-15 to get one and it delayed the next plane. I have found south west is the best! I love taking my chair right on the plane. One tip I have is buying TSA Pre. You don't have to have a pat down and it saves so much time and energy. I got it after an agent made me cry because she was way to rough on my legs causing pain. TSA Pre only swipes your hands and chair then just inspect the chair. I definitely recommend it if you fly a lot.
Yes, the isle chairs suck! I can see someone with leg pain would also have a hard time. I recently was told the same thing about the benefits of the prescreening pass. Sounds great! Especially for people who fly often or have trouble with the search. The person who told me is a C6 quad and has difficulty lifting and moving for the screening.
Hello! My name is Elyse. I have a form of muscular dystrophy. So, I have to use a electrical wheelchair. Flying for me is very difficult. I have only flew twice in my life. One time, I went to South Carolina (I live in Michigan). The fly to South Carolina was great, I actually enjoyed myself. The fly back was another story. It was July 4th and I was so excited to see the fireworks in my neighborhood. I remember parking near the exit. And my mom transferring me to the correct seat. I don’t know where this guy flies but this airline seems like a dream. I flew Delta. Delta does not let you get the first seat. You have to sit at your seat that’s on your plane ticket. Anyways, after the plane ride everyone exits the plane. The flight attendant was very kind and sat with me while they were trying to figure out how to move my chair. When my mom went to turn on the chair the pilot yells at her and says ‘it’s protocol that we move the chair.’ My Mom understands. My mom tries to show them how to turn the chair on and move it, but they said it was protocol and that we couldn’t help them at all. I already knew this was going to be a train wreck. These two men came and tries to figure out how to turn the chair on. They were bickering and arguing. My mom tried to intervene but they shut her down. The two men decide to manually lift it off the plane. Once they get off the plane they were exhausted. The huge African American man started yelling at the other man. The African American guy got so frustrated that he decided that hitting the chair would make it move. Where I rest my back one, it’s metal but I have a cushion. The whole back was crooked. I couldn’t even rest my back on it without it being uncomfortable. My whole control panel was bent down. I could barely move the chair. I have severe scoliosis so I have to have padding the left side near the arm rest. The padding was ripped off. My mom is going to ballistic. Cussing the staff out and everything. Once we get out of the plane the flight attendant rolls out a manually wheelchair. It was hard to move my wheelchair. She tells me that ‘everything will be okay and that we are going to fix my wheelchair and we are going to get your legs back’ I was seven when this all happened. My mom rolls me out of the hallway and we get into the waiting area to board the plane. The flight attendant apologizes to my mom. Mom gives her snarky remark and wanted the supervisor. We talked to the supervisor and they said they would pay for all damages. I didn’t have a chair until September 4. School was in three days. I was bedridden for the whole summer. And there was nothing my mom, my dad or I could do about it.
My first time using an isle chair I had a family come up to me and the flight person and the Mom helped buckle me in she said it was just like a baby’s car seat. I was so thankful haha
Thank you for the video presentation as an new one BK amputee I had to be strapped down like I ready to launch off of a rocket to the moon but the flight attendee knows what they were doing do the boarding process was very short and my seats were all the way back of the plane and the first to board the plane at which everything was fast without any delay and very happy everything when well, Thank you for the insight and is very educational for others to understand.
I realize its been a few years since you made this video. I have a T11 incomplete. I fly over 100k miles a year. A lot of it is international. On your question about what to about flights over 3 hours, I use a foley while in flight. For the day of flight I get the foley setup with a leg bag and I wear a pair of shorts with pockets to hold the bag. If I’m on a long haul I switch to an over night bag and have an empty plastic large water bottle with me to drain off the bag so I don’t fill more than 50%. You can cap the bottle and have someone help you dump it. So far that hasn’t been an issue. When I get to my destination I go back to straight catheter. My company allows me to fly business overseas so I take an inflatable air mattress (very thin like you use for camping) to help offset the hardness of the seat. So far they have been good about providing extra pillows. I stick with larger carriers as I have high standing in my status so things do go better. Internationally I do the same. Thanks for all the effort in your videos. They are very helpful.
If you have pneumatic tires you need to let some air out of them. Keep the pump for your cushion and a small tire pump in your carry on. When you get your wheelchair back inspect it closely for any damage. It is a good idea to take pictures of your wheelchair before you fly to prove any damage was done by the airline. Before leaving the airport go to the office in baggage claim to file a report of the damage. If the wheelchair can not be used they are required to provide you a rental. They also must repair any damage to the chair or replace it. If you use any adaptive sports equipment like a handcycle, basketball chair etc they are required to transport it for free and again, inspect it when you get to your destination and report any damage and again they ate required to provide a rental. Do not ever get an isle seat, if you do other passengers will be crawling over you to get on, off, and whenever they need to use the restroom. Be prepared to drag yourself off the plane if your flight is delayed getting in and your connecting flight is leaving soon. Also be ready for your bags to disappear. You can carry all your adaptive equipment in the cabin at no expense to you. Just be sure the only items in that bag are adaptive items. They are also required to keep your wheelchair in the cabin if it will fit in the closet. If the flight crew has it full of there stuff they are required to remove it for your own adaptive equipment. I have not flown international flights as of yet but am looking into flights to Asia when the travel restrictions ease up. I am looking at business class as you will be able to lie down in your own little cubicle.
I am kind of in your boat because I use a wheelchair. But I use my chair part time. I use my chair for distances, such as going through airports or zoos and such. I am not in your boat though in a way because when I fly, yes I do get a preboard pass and I do board first but once I get down to the plane I have the flight attendants place my chair underneath the plane and I walk on. I am able to get up and go to the bathroom during long flights (I just took a flight to Japan, 15 hours out, 9 hours back) and it felt good to get up every so often and stretch my legs
Hi Brian, by the way I use a manual wheelchair and my level of injury is c6,c7., and I've been in the chair since 2003 and I'm still learning for better more efficient way to deal things with SCI.
I’m a flight attendant and to answer your question about international flights and how disabled people use the bathroom . Every airplane is required to have an aisle chair so we would just take that out and take you over to use the bathroom . I think most would rather hold it but you’re always welcome to use it just ask us . I’ve been flying 7 years and I’ve only had one person ask me .
Thank you! The longest flight I've done is 3 hours because I had no idea how to get to the bathroom. Your info about inflight use of the aisle chair for this purpose is much appreciated.
Southwest airlines operate an entirely 737 fleet, similar to RyanAir in Europe and EasyJet (A319/A320 for them). However, from that picture I'm pretty confident they don't have enough space to allow you to transfer to a front seat from your regular wheelchair, also they do have assigned seating. Also if boarding from a jetway it's a bit hit and miss how much of a step there is, I've had an aisle chair end up almost horizontal as the wrestle it over a big step and been glad for the straps. I can actually walk a bit, but I've never been to the toilet on an airplane as it's too hard for my walking ability, longest flight has been about 4 hours, I went UK to Abu Dhabi changing in Turkey - that's one way in which a layover can be an advantage.
hehe you are lucky, I live in Argentina, I make lot of flights for more than 10 hours, I have to use a folley cather with a 1.5 litter bag and sometimes I keep a bottle with me to empty the bag and I try to move myself to protect myself. But I still traveling because it worth it. keep doing your videos they are really good. Regards.
I've flown a lot since I've been on a French exchange and I'm a wheelchair racer who competes nationally/internationally. I try not to drink too much, but if I really have to go, I'm able to use my crutches as long as there's no turbulence. I'm not fully paralyzed, so that works for me, but I think some of my friends catheterize.
Thank you so much for the video!! I am highly interested in learning more about international flying. My mother is paralyzed from the chest down she has full arm mobility but it's a bit weak. I want to take her to see her family in Malaysia soon. I have decided a good route Chicago to London, hotel for the night or two so she can rest. Then London to Malaysia. She does have her Roho wheelchair cushion for her to sit on. I'm concerned about her wheelchair getting damaged in the cargo hold. The other big thing is bathroom. She has the straight catheter, she has large "overnight" that hold large amounts of fluid. I'm concerned about the other type of bathroom. She has no bowel control but always goes in the AM with the aid of laxative. I suppose i can consult with her doctor. I really want to make this trip happen for her.
There are plenty of people that are paralyzed who have flown internationally and even some small planes have isle chairs that she can transfer onto to get to the restroom. From there, she might need help getting into the bathroom to go #2 but I'm sure it's possible. A foley catheter (internal) would help with the urine and that way she wouldn't have to straight cath during the flight. Just empty the bad. One thing to note: The ROHO cushion will inflate at high altitudes so she will need to let some air out. When you get back on the ground you will notice the cushion is flat so more air will need to be added. Check the comments below too. I know others have talked about flying internationally so you may find some useful info. This is possible so don't give up on it!
i have done long flights before. its important to note i dont have arm funtion. anyway, i got someone to carry me to the toilet. or i reduce my fluids and make sure i 'go' at the airport. here in the uk you often have to be carried on. but the staff know what they are doing.
what i suggest and have done for long international flights is to have a leg bag, your good for 8-10 hours depending on how much you drink. some international carriers as someone mentioned below have a w/c bathroom onboard and an isle chair where they can assist you or if you have someone to help great. Bring a container/bottle if you need to empty the leg bag during flight, its not safe to transfer and such at the end with a very full bag. During check in security, i believe when they swab they are looking for drug residue, not bomb but maybe both?? Great help and video as always.
Nice video, I have Duchenne Muscular Dystrophy and fly at least every year or 2 years with my family internationally. More than 6 hours flight. I mainly fly from Birmingham to Islamabad.
I fly to NY and NJ from PR and never had any issues boarding the plane with that narrow wheelchair but something happened one day on a flight from PR to JFK . I was watching from my window seat the baggage handlers loading luggage into the plane and it was then when I saw a guy trying to fold my wheelchair (my chair is a rigid) . That asshole was pulling on everything with force and even flipped the wheelchair upside-down causing all kinds of scratches on the frame and after a couple of minutes of frustration he threw it on the ramp. When I got to NY one of the arm rest was missing and nobody could find it but fortunately my brother in law was the ramp supervisor that day and he found it still in the belly of that plane that was bound to Europe in 10 minutes. Now I take with me in the plane every part that may come loose and also tape a small sign on the chair saying "this is a rigid wheelchair do not try to fold"
I've used the toilet on a flight via an aisle chair pushed by a flight attendant. The big issue is privacy since the space is too small to close the door. The flight attendant drew a curtain over the door and stood guard to make sure nobody barged in unexpectedly.
I'm with you buddy on the "overkill" part. It's such a hassle! Fortunately, I don't have to fly that much. I prefer to drive or take the train. I have a specialized wheelchair that I use with special lightweight ramps or board from ground level. I never travel alone either. Bathroom issues are a REAL BIG problem for me.
There is a group called “Center for the Prevention of Passenger Outsourcing” who is campaigning against the major airlines’ (American, Delta, United) increasingly frequent outsourcing of flights to commuter airlines (those who use regional jets such as Embraer and Canadair). Although I am fine with the use of smaller planes for low demand routes, offering flights to cities with airports which cannot accommodate larger planes, etc., you bring up a good reason to be picky about what kind of plane is used on the flights you book. One article this organization has on its site mentions that there are times where the airline’s website may say that a 737 (to correct you, Southwest uses 737’s, not 747’s; the 747 is an extremely large plane which is only used for overseas/cross country flights) will be used for the flight when you book it, but the airline decides for whatever reason to change the plane to a regional jet.
living in the states is not as trying but certain parts are as bad or worse. I live in a college town and there is no public transportation. there is a senior or disabled tram but you have to call a day ahead, and are at the mercy of the tram as departure and arrival times. the town is on a hill and has snow in the winter with no major snow removal
I've never flown but when I go to festivals and concerts where the bathroom is inaccessible. My Dr will give me a foley catheter and a leg bag. That should work for long flights as well.
Hi Brian I was flying from Zurich to Sao Paulo last year, about 15h if I remember correctly. The dolly was not so much of a hassle except that the armrest in the plane were fix, so I had to transfer over them and I was sitting somewhere in the middle . For the bathroom I would not know, since I was using a condom catheter. There's also meds that allow you to fill your bladder more than normal but I didn't want to risk that. Cheers Roland
I've never yet come across a plane that doesn't have a secret button somewhere to lift up the arm rest, the flight attendents should know even if the person assisting you doesn't. This is unless you are on a row with tray tables in the arm rests, they obviously don't move.
I have flown international and it is a challenge to get from the seat to the bathroom im paralyzed from the waist down so I have upper body strength I have scooted my way from my seat to the bathroom and trying to get into the bathroom is tricky since it is so small I sit on the toilet to shut the door but it is also a challenge to drop my pants and do my business so its difficult for a paraplegic to use the airplane. restroom if needed.
Hi Brian, I hope I spelled your name correctly, but anyways, thanks for making this very informative video,, I flew couple times international, my flight was from Minneapolis, Minnesota to Manila. Philippines, and there is no direct flight, it always stop mostly in Japan, but sometimes Korea or China. and Minneapolis to Japan is close to 15 hours and Japan to Manila Philippines is close to 5 hours, so the first time I flew was in was with family so that I was a little comfortable but the second I flew was in was by myself and what I did was in brought along with me 2 empty water bottles and I'm using a condom catheter with a leg bag. emptying the bag is the embarrassing part but I want to get to my destination so I have to deal with it, and before boarding to my connecting flight I have to empty everything and don't drink too much, and don't eat too much too.
How difficult is it getting assistance getting out of the aircraft and into the aircraft and through immigration etc since baggage is right out of immigration in Manila (NAIA. I use to live there and haven’t been back since I got MS and GBS and can’t walk. How is the experience in NAIA or even Centennial? I’m glad you posted. Thanks.
I have an extremely painful locked knee since 6+ months and another foot that can't bear weight. I'm considering traveling to another country for treatment. It's pretty challenging for me to move out of my wheelchair. I can still move sideways using my arms, as long as heights match and there's enough room to move legs around without touching anything in front. I'm feeling very nervous about how I'm going to travel. :(
Wow this is an amazing video! My wife and I love to travel and were afraid that we wouldn't be able to. I am still not nearly as proficient with transfers as I need to be but this gives me hope. How do you handle pressure shifts on a plane?
Wow. With how thorough they were strapping you into the aisle chair, I had hoped they had some spot where they could just lock it to the floor and that would be the seat you stayed in. What a pain to transfer from wheelchair to aisle chair, then to seat. My mother is in a wheelchair and has to miss my son's wedding because there is no way she could fly. And now seeing what you have to go through, we know for sure she wouldn't be able to do it. :-(
Last airport I was in at the security checkpoint, there was a gentleman in a wheelchair because he had a prosthetic leg and they made him stand in the middle of the room and took his prosthetic leg to check it or whatever and they made him stand on one leg for like ten minutes... like they didn’t give him s chair... wtf
I use a electric wheelchair that has to be disassembled to be put in the hold of the plane. In Pakistan hardly anyone cares about people in wheelchairs. Few times my wheelchair was damaged when we got off the plane. I went to Istanbul in Turkey and my controller was damaged, wouldn't work at all.
I experienced that many time. I traveled all over the USA, and Canada, as well as one trip to Denmark. And they put me in those weird Skinny push things. For me, when I flew the Denmark that was 6 hours over the water. But I had a coach who was traveling with me, and he arranged to get help for me to use the bathroom. But for someone who has no help. I can't help.
I find that being in a wheelchair is difficult no matter where you go. Even going to doctor appointments and hospitals wheelchairs don’t fit. So I stay home and only go to my doctor appointments and avoid drinking anything.
I’m pretty much the same. I can do short distances with walker SOMETIMES but mostly no. I just stay home. I have MS so the fatigue I have to take cautio with as well especially with heat living in southeast Texas.
If you are used to intermittent cathing yourself and you’re going to be on a long flight, you may try inserting a foley and using that along with a leg bag the day you travel. (Prob check with your Dr or PA first) That way, even if your leg bag gets full you can discreetly dump it into say an empty throwaway plastic bottle. Whatever you do, don’t just decide to skimp on liquids because flying will DRY you out and then boom your vac is interrupted by a UTI.
grimtt I’ve used foley caths but try to avoid them if at all possible bc they irritate my bladder and I end up leaking for a few days. I’ve used a condom cath for added insurance though.
Hi Brian. Southwest uses 737s, not 747s. Big difference. As for international flights, I was asking my friend (777 pilot) about this. He mentioned that all 777s have an aisle chair and an ADA bathroom on board. I don't know about other aircraft. My neurologist has mentioned that there are medications which will slow down the production of urine which may be of assistance.
+Paralyzed Living. Hi Brian, just finished flying to London from Dallas. I received an Rx for desmopressin 0.1 mg to help control the production of urine. Outbound was DFW -> Chicago -> Heathrow as it took about 2 hours from the trans-Atlantic flight. But, a mechanical delay kept us on the ground an additional 1:45 in Chicago, thereby making it about the equivalent. The Rx helped a lot. I wore a brief, just in case, as backup. Return was Heathrow to Dallas, 9.5 hours. I did not use the aisle chair/bathroom, I relied on the Rx. Managed it well.
i got a same condition like you too sir, and i did exactly the same as you when i get on board, and yes, i still can having a sweet sex life with my wife too, great job my friend, you inspire me to make a chinese video to share ,let those Asian country who paralyzed like us. thank you sir!
One Southwest doesn't have 747s they have 737s. In 1994-1995 I was a Passenger assistant. This PSA must of not got the training because I had to go through Training & had to PASS before I could do the job.
Hi thanks for posting your video it is great. My mum is in a wheelchair. we live in the UK and I am looking to take her to Barbados for a holiday. Can you tell me when we get to Barbados I noticed they don't have air jetty's so when we get there how do they get someone in a wheelchair off a plane with no jetty? Thanks in anticipation for your answer. Andy.
They use a lift, a bit like the ones they use to put food on planes. If you travel more you will find they use them sometimes even if there is a skybridge, sometimes it's because of stairs in the terminal that they then bypass and take you direct to passport control.
I'm so afraid to do this. I'm 6'4 and about 240lb. I also use an electric chair that can lay back for my blood pressure. Wasn't there talk about being able to stay in your wheelchair a year or two ago?
Hey there great video buddy! I'm also paralyzed (less than 2 years) T-11 and I've flown a few short flights as well. Like you my flights have been nothing more than a few hours. I'm actually putting together a video of myself commuting very similar to what you've demonstrated here. Another thing you and I have in common is that I'm concerned about the bathroom deal. I'm planning to travel abroad in the future and that's really the only thing I'm a bit concerned about. I did "IC" AKA "cath" in my assigned seat during one flight haha. It wasn't an emergency but I happen to have the isle to myself so I covered myself with a jacket and handled business! But I don't expect to always be so fortunate. If you since figured out a solution I'd love to hear about it. Thank you for the video and for sharing your knowledge! Cheers, Greg
Hi Greg, yes I have still yet to take a long flight. I think if I did though I might use a foley catheter with a leg bag for peace of mind. That way it's one less thing to worry about.
Good video. I am a C5 quadriplegic and fly a lot! Almost exclusively international flights over 6 or 7 hours. I have an indwelling catheter (SP) and usually wear a leg bag or for longer flights switch to a night time drainage bag as soon as I get in my seat. I also travel with an assistant/friend and they usually have to empty my leg bag at least once on a 5 hour cross country flight. Since I have the power chair I've always got to use an aisle chair and a complete lift from the aisle chair to my seat. I've been fortunate that most of my longer flights, over 10 hours, are usually in business class, but I have done 14 or 15 hours several times in coach and am really tight and high and spasticity at the end of sitting still for so long!
Nooooooo, I just flew on Southwest Airlines, I weigh 130 pounds and my chair is only 16 inches wide, and I was in the very front row with a service dog, and I had to use their aisle chair. I was NOT able to use my chair to board either on my flight out or my return flight. I agree, get a bigger plane, but Southwest Airlines does not let you board on your own chair. I have a nonunion femur fracture and didn't need all the jostling. It made my flight that much more painful. They knew abut the fracture. Thank you Southwest Airlines.
Morgan Calvi that’s really strange because I’ve always been able to board using my chair. Did they tell you you weren’t allowed to try? This is very surprising bc I know several other paras that use Southwest exclusively because they didn’t need to use an isle chair. I will say their newer planes make it more difficult but it’s still doable. My seat cushion is also 16” wide. Sorry you had a crappy experience. 😕
@@ParalyzedLiving when I asked if I could try, they just said they always use the aisle chair. I was kind of afraid to even say anything else because airport security is such a nightmare these days. America really needs to stop and think about how others view this country. They really aren't helping their cause looking all paranoid and stuff all the time.
What's up Brian my name is Ryan I am a T4 paraplegic 27 years... I flew to Hawaii which was a 8 hour flight on the 747 and yes I was the first one on last one off... It was the longest 8 hours of my life... On the way there I made it without going to the bathroom, on the way home I used a leg bag because it was just too hard on the way there... On the way there I was basically hollering at people to get their asses off of the airplane so I could get off they don't realize that I've been sitting in the same chair for 8 hours people are stupid..,. I have watched a lot of your videos I wish I would have started making some of my videos I have done stuff that would blow people's minds..
My mother isn't paralyzed, but she has MS.. which causes her to have leg spasms when she is touched, and lost her balance. Her body would probably not mold to an airport wheelchair... I was wondering if your own personal wheelchair is given to you right back after the flight?
Make sure you are clear about what you need, but it should be returned to you at the gate and be sure to kick up a fuss if they don't do what they are told.
I have MS and GBS. I’m curious myself if I’d fit on that isle chair. What about people who use both wheelchair and people who transfer with a walker? I’m suppose to fly with Delta soon. I can walk short distances with my walker and I thought about bringing my wheelchair for getting across the airport. My other concern is connecting flight. I’d be making a layover/connection in Atlanta. I’m curious which is a better choice under my circumstances. This is the first time I’ll be flying since I’ve been wheelchair bound. My ability to use walker is a recent accomplishment but it’s short distances. My wife will be traveling with me to help me. Any advice anyone?
I know this is an old video but ive recently had a condition come to light where some days im perfectly fine, other days im in a wheelchair, some days I just have a cane. I'm going to be flying soon and my condition gets worse the more walking I have to do. I'm debating the pros and cons of using my wheelchair for the full day that my travel is going to take. Any advice?
I’m in the same situation. I have MS and GBS and can walk short distances with a walker. I’m debating brining my wheelchair and walker or maybe not bringing my wheelchair at all. I’m wondering if they’ll make me use that aisle chair if I use my walker. My main issue is balance from lack or little of nerve function in my lower legs and feet to control foot muscles for balance. I don’t know what to do.
I have Spina Bifida, I'm unable to walk, but I can move around pretty well. Flying with a wheelchair sucks. I really hate that isle chair they use to get you on the plane. I just feel like I am going to be dropped. I've only ever flown in big planes, but still my wheelchair is too wide to wheel onto it. Have a flight in an Airbus to Albuquerque in July, first time I've ever flown on an Airbus plane. We'll see how that goes. The layover on the way there is 3 hours, but the layover on the way back will just be an hour. Hopefully enough time.
Hi there! This video is nice to know what I should expect when I go on a trip in a few months. I do however have a question... How long before your boarding time do you usually have to get to the airport in order to get through the security and everything?
+Kamryn Robinson No longer than the average person. Luckily, you are able to skip a large portion of the security line because they have a separate line for wheelchairs.
@@ParalyzedLiving Hi Brian, how are you? This video is nice to know what I should expect when I go on a trip in a few months. I do however have a question… How long before your boarding time do you usually have to get to the airport in order to get through the security and everything? Kind regards, from, PaulLaw.
well i have been on a wheelchair since i was 4 so the first time i did a international flight i had no liquids since the night before and in the morning just half a glass of water and i try to do something to sweat a little so that the water is in all my body and i dont have pie. also i know this works because a do feel my bladder after a while i got the sensitivity back a little bit. i have a T12 injury
Does it cost extra to bring a wheelchair or is it considered your carry on personal item? I can walk to my seat on the airline but will need my chair in the airport as I have a heart condition where my blood pressure drops very low and my heart rate shoots up to around 180-200bpm. It's an awful feeling. Walking and standing are very hard on me
Neither - it's not your personal item, it's a mobility device and it's separate from your personal item limit - you can still bring one of those, too! :) When you check in (even online) there will be a question if you have any special requirements, and there are a few questions to determine what type of assistance you need, if any. For example, if you have a mobility impairment (trouble walking, or can't walk at all) there are different 'levels': if you need a wheelchair to the plane door but can walk down the aisle to your seat, versus needing an aisle chair (the very skinny wheeled chair) to take you down to your seat. When you book, you'll be asked then, too, about any disability/special needs, etc, and they tend to book you closer to the front of the plane to you're not struggling to get to the back of the plane past many, many people, etc. And you can bring your wheelchair with you, and/or a walker or whatever you use. (If you use a power/electric wheelchair or scooter, their are certain rules about the type of batteries they use being allowed - that's all detailed on the websites of any airline for safety reasons). When you arrive and check in/check your bags, you'll get a special tag for your wheelchair telling them to bring it to the door of the plane when you get to your destination. You might want to bring a folding cane along to help you if you need to use the washrooms during the flight, to help give you some stability... But be warned that most are super tiny (except on huge jets that go overseas, I gather. I've only taken smaller jets on trips a few hours or less.) But obviously space is limited, so keep that in mind. Hope that helps a bit. There are other details, but this is just to start. If you need more information, airlines have information for passengers with disabilities, or you could call their customer service line for more details.
Thank you for your comment to her question! I have MS and GBS. I’m curious myself if I’d fit on that isle chair. What about people who use both wheelchair and people who transfer with a walker? I’m suppose to fly with Delta soon. I can walk short distances with my walker and I thought about bringing my wheelchair for getting across the airport. My other concern is connecting flight. I’d be making a layover/connection in Atlanta. I’m curious which is a better choice under my circumstances. This is the first time I’ll be flying since I’ve been wheelchair bound. My ability to use walker is a recent accomplishment but it’s short distances. My wife will be traveling with me to help me. Any advice anyone?
As an OSU nursing graduate (a while ago!), I want you to know how much insight your videos have given me into the "living in the world" life of people who who have suffered SCI's. I have cared for several patients in the hospital and many times have wondered how they worked it all out after going home. You are a natural born teacher, and with honesty and charm you are providing much needed knowledge and information to all of us. Thank you for your courage in sharing your life and I am looking forward to further installments.
Barbara Williams thanks for your comment
I've been a paraplegic for 13 years now and I'm about to get on a plane for the first time since I've been in my chair! Thanks for the video
How did it go
Hey Brian. I was recently paralyzed from the waist down and I've been dreading my trip across the country. This makes it a lot clearer and easier for me. Thanks!
I've flown international, and they have an aisle chair the flight attendants use, but there are a few issue to know; first, the flight attendants are not allowed to help you transfer, so if you're not able to transfer for yourself or if you've been stuck over by a window, it may be a bit more difficult, next you will have to be bold with them in giving instructions because they do not understand how the aisle chair needs to be positioned and lastly, when you're done, they sometimes have walked away so you will need to use the call button if that type of plane has one inside the bathroom. Plan in advance, from the time you realize you need to use the restroom, to the time they actually get you there can be a while, it took them 45 mins on a recent flight. Bring lots of sterile wipes because airplane toilets are very dirty and if you're like me having to self cath, it can give you a mentally horrible feeling.
Just wanted to say thanks for this video and your others, I have a lot of anxiety about having to make my first flight. I'm just about a year into my injury and even though I went through a month long inpatient rehab there were a ton of stuff they don't touch on and the fact that I had (many don't) access to the internet in my room meant I was able to take full advantage of videos made by yourself and other Paraplegics...Anyway, keep up the great work and thank you!
You have great tips. I've been a para since 1985 and it gives "fear of flying" a whole new dimension! I have flown a lot including Utah to Ireland. They did have an on-board aisle chair for the bathroom but I didn't use it. I have a continent urostomy on my belly (internal pouch, no external bag) so I can cath in my seat into a zip-lock bag and place it inside a barf bag for later disposal. I can literally do it in my sleep, so under a blanket is not too hard. I try to take advantage of my seatmate's potty trip for more privacy. My biggest fear is losing bowel control so I dose up on immodium for a long flight.
The best fun is that the people who board later don't even know I'm a "crip" until we meet at baggage claim!
Hi. I’m a part time wheelchair user. I can’t walk long distances (ie through an airport. Or even store) so I found this very helpful.
Your brilliant , as a partine wheel chair user my limit walking Is flat ground 100 ft, I used a Porsche Alber electric self-contained chair and frequently I am not seeing a video like this would rocket on to the plane and I wish the large planes and stored insisted my chair be stored in the front closet and they did do that except for one flight out of 30 I flew 5 to 6 times a year 5 to 7 hours. Including flights to Europe the biggest thing is yes wear a condom catheter and make sure in my case I put on KAFO braces to stabilize myself. Thank you for your assistance you’re brilliant man very brave
Great video! I am a C5-6 and flew to Greece a few years ago - 14 hours total from NY. What was nice was the flight wast full so I had an empty chair next to me and could literally lean over for pressure reliefs. Wife helped with bathroom stuff and I spent about a week getting ready for the flight. Really want to watch your diet before a long flight like this; dont need any surprises at 35K feet!
Thanks so much for the information, I've never had to fly since I've been in the chair. You've made me feel better about flying!
This video is heaven sent my boyfriend is flying from north Carolina to here in Seattle he's quadriplegic C6 and hasn't flown in over 20 years now I can give him some great ideas Thanks🙂
I'm in a wheelchair and am going to be traveling out of state in a few days, sure it's only a two hour flight but I still had watching this video on my pre-travel check list.
SirWheelzAlot3384 h
Just to note: All commercial airlines are required to have a wheelchair closet on-board, in the front by the cockpit entrance. As per federal law you must be allowed to put your wheelchair in it so long as it folds or breaks down to 13″ x 36″ x 42″ or smaller. If your wheelchair doesn’t fold this small without removing anything, but it will fit in this space with the wheels/backrest/headrest/etc. removed, and the wheels/backrest/headrest/etc. can be removed without the use of tools, not only do they have to let you use this space, they have to help you take your chair apart.
(Source: www.ecfr.gov/cgi-bin/text-idx?SID=ae47679a5dc0b0cdd685abc7e3437dbb&mc=true&node=pt14.4.382&rgn=div5#se14.4.382_167)
§382.123 What are the requirements concerning priority cabin stowage for wheelchairs and other assistive devices?
“(b) If a wheelchair exceeds the space provided for in §382.67 of this part while fully assembled but will fit if wheels or other components can be removed without the use of tools, you must remove the applicable components and stow the wheelchair in the designated space. In this case, you must stow the removed components in areas provided for stowage of carry-on luggage.”
(Source: www.ecfr.gov/cgi-bin/text-idx?SID=ae47679a5dc0b0cdd685abc7e3437dbb&mc=true&node=pt14.4.382&rgn=div5#se14.4.382_1123)
If they even suggest theres no room unless there is already another passenger's wheelchair in that closet they have violated federal law.
CFR Title 14, Chapter II, Subchapter D, Part 382, Subpart E, Section 382.67, Subsection (e)
“As a carrier, you must never request or suggest that a passenger not stow his or her wheelchair in the cabin to accommodate other passengers (e.g., informing a passenger that stowing his or her wheelchair in the cabin will require other passengers to be removed from the flight), or for any other non-safety related reason (e.g., that it is easier for the carrier if the wheelchair is stowed in the cargo compartment).”
(Source: www.law.cornell.edu/cfr/text/14/382.67)
More info can be found on this masterpost here: phoenixonwheels.tumblr.com/post/167626925261/fuckyeahparaplegia-phoenixonwheels
I highly suggest you read through it as i had no idea before now these even existed.
Rigid frame wheelchairs rarely if ever fit these spaces, I have used them when I had a folding wheelchair, but the mobility most folding wheelchairs give is terrible.
I have a question, what do they do for seating for people who are wheelchair bound. My mom has cerebral palsy and i'm planning to save up money for me, her , and my dad to go on a trip but she has difficulty making it to the bathroom if its too far, etc.
This is pretty much my only concern when traveling.
@@NotGamersHD Planes that have a certain number of seats or more are required to have an onboard aisle chair. Always double check, but they're supposed to. If it's a concern, that's an option. Someone on youtube (I forget who) did a video that talks all about the onboard aisle chair.
I've been in a chair for only 3 weeks now (brain cancer) and was thrilled to see your video as my husband and I want to start traveling some after my radiation gets done next month.. Thank you so much.
Please tip the attendance at the end
For international flights they should also have aisle chairs. Make sure they do before you pull away from the gate. It's better if you go on a larger plane also because you will have to use one of the bathrooms which is in the middle section (as opposed to the sides) that has two bathrooms with a middle divider. Make sure they know how to move the divider otherwise you will be sitting outside the bathroom with them trying to figure it out, in the aisle chair. If you don't have one of the bigger bathrooms its like gymnastics getting in a small one.
Even if you get first class or business class the bathrooms are likely to be the smaller ones and you will have to go all the way back to coach to use one back there.
As far as sleeping, try to upgrade to business or first with lay-flat seats, but I know that gets expensive. When you get to the gate ask to be moved to the "front of the plane" so they don't have to take you through all the aisles. I've gotten a couple upgrades for free to bc and almost always get upgraded for free to economy plus. Also ask if there is anyone in the seats next to you because it will be hard for them to get around you. I've had them clear entire rows for me without asking and slept across three seats.
Go to sites like seatguru to see the layout of your aircraft.
If you go to Europe consider taking the train between countries as it is cheap, fast and you get to stay in your chair with easy access to the bathroom. I've also found the Europeans extremely helpful to anyone in a wheelchair.
Get back to me with any other questions.
Never had to use a bathroom in a plane. A friend of mine who works in a travel agency and has lots of wheelchair user clients, told me that you can ask an airline for an option to have a special aisle chair on board the plane. And they might also put a strong guy on the flight who could help changing seats. Still, never tried this myself.
BTW, had to fly over Europe quite a lot, but never saw anyone using all these straps for an aisle chair. Looks like a real pain in the ass.
As for the cushion - try putting it behind your back once? I usually fold it in the middle and put it just a bit over my loin. it gives you a straighter position, you don't bend down and it's way easier to sleep in this position. Actually works for almost any seat - plane, train, etc... Or you can put something else there, if you prefer to sit on your cushion no matter what.
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I find in the UK they are pretty reliable at using the straps, same with Switzerland, Netherlands, but France, Italy, Spain, Turkey, they don't bother. You can't really categorize Europe as one place, I find Netherlands/Belgium are often good at helping but think they have done you a huge favour and will make you feel bad if you ask for more help. Further south they might be less knowlegable about what help to offer but will happily give it if you can explain what you want. Also if you need a wheelchair accessible taxi, Madrid has been the best in my experience.
I took my son out of his wheelchair in Italy. I was checking to see if his adult diaper needed to be changed. Our Italian driver came to check on us and helped me put my son back in his wheelchair.
I'm going to Scotland next year, June of 2018, I'm a T7 paraplegic and I am NERVOUS AS HELL. I've never been on a plane, much less in the 4 years I've been in this chair. I have absolutely no idea how I'm going to get through this, I'll be sure to get it on video and post here how it works put
If you are arriving in Edinburgh, be warned, they have provided me with all of my worst delays in getting off an aircraft, they use a lift even for planes which are deboarding via jetway so they can take you direct to passport control. I've never flown into Glasgow, so no experience there. The biggest problem I find with UK airports is delays rather than not knowing how to do things. The biggest problem with getting around outside of the airport is that the big cities and many towns have old town centres, which can mean narrow pavements, the entrances to big stores will have been modified to be at street level, but smaller stores and cafes probably not. They should have ramps, but unless someone else has complained previously they may well not. I believe there is a website called something like "accessible scotland". I've never rented a car in the UK (given I live here and own one), but I assume major companies will allow you to rent an automatic with hand controls. If you are coming from US your parking placard will not be valid and as far as I have been able to find out there is no temporary solution (I moved US to UK and was basically housebound until I got a UK one issued - this is much easier within Europe as they are valid across EU countries). Let me know if you have any more questions, I'm in the south myself, but I may be able to find some people in Scotland to ask if you have very specific questions, otherwise the UK is generally much of a muchness.
Thankyou so much for this video my son is 14 and has spastic Cerebral palsy and doesnt transfer hisself and we are flying to Hawaii and are concerned with the Isle wheelchair and the bathroom situation and your videos are so awesome!!!
Much Love !! Melanie Hansen
Hi my 15 yrs old daughter also has cerebral palsey and does needs trunk support. She will not be able to sit in the chair without any support. Did u have a special seating or cushion for your son? We’re wanting to go to Hawaii as well but I’m afraid of travel complications.
thank you for posting this video! my mom is a paraplegic and is afraid of flying because of it. I am forwarding this video to her in hopes that it will give her the courage to come visit us. God Bless you! Awesome video!
easy jet are great plus staff help esp if you're unsteady on your feet they help even strangers ask if i need assistance which is sometimes frustrating as i like to be independent but greatful for the help. thanks for this video
Thanks so much for making this video, C6 partial quad here - been afraid to fly
Concerned about demeaning process also ; Helps me find some courage to fly
Hi Brian. Excellent stuff, I've just discovered your youtube channel & I'm really grateful to you for your videos. Thanks.
Walter. Scotland
You make it look so easygoing. I am glad you took the time to show how to board. Thank you.
Love your videos
Thank you for the video my mom is paralyzed on one side of her body due to a stroke . Watching your video gave me a good visual how to board a plane with wheelchair.
Thank you, Brian.
My husband is recently handicapped and can only walk a few steps with hanging and leaning on walls, countertops. I was wondering and worried how to transport him on the plane.
T7/8 complete. 21 yrs
I insert a Foley and use a leg bag. I don’t need to dehydrate myself. Bring empty water bottles to empty the bag in flight. If you are with someone they can empty the bottles.
I found out that the attendants will not touch your “bottle” even w/gloves. Don’t ask for an empty bottle, they may ask if you are using it for “bodily fluids”. I only needed to experience this once.
Always sit on your personal cushion. As he noted remember to manage your air in the cushion. I use a Ryde cushion so not an issue.
Yes non stops is the way to go otherwise be sure to allow a 2 hour lay over. Remember 1st on last off.
I flew to Barcelona this summer and with a Foley there were no issues. Be sure to bring enough catheter w/attached bag and some incontinent pads in case you have to abort the Foley for what ever reason. Only happened once in 20 yrs.
Enjoy the world.
Very good information, thanks! I am going to be taking my son on his first plane trip and we both have anxiety about the process, his chair being damaged, etc. so this is very helpful!
How old is your son
I’m presuming if it’s a longer flight, you have access to a disabled bathroom?
This is how my boyfriend uses the bathroom in a plane: Using the restroom (toilet) on a plane (Wheelchair user) (Paraplegic). He wants to be able to use the bathroom by himself so he always asks for the back seats, which are as close as possible to the bathroom. He also made a video of how he boards a plane with the aisle chair on his channel. That said, using the bathroom in a plane is admittedly the worst part of the trip for him. Also, he recommends United Airlines for international flights. He was very disappointed by American Airlines that made one of his trips horrible regarding accessibility on a flight from France. He used Frankfurt, Brussels and Paris airport several times so if you need any tip to travel there, you can get in touch with him.
I flew to Poland from Denver with a layover in Frankfurt Germany. I brought my metal walker, but was transferred to a wheelchair to move around the airport faster. I can stand and limp, so I was wheeled up to the doorway of the plane and used the walls and seats for assistance as I limped through the aisles to my seat.
Interestingly, in my smaller plane ride to Katowice, I was brought to the runway on a bus and transferred to a L-Shaped metal seat and strapped in, wherein I was carried up the stairs into the little plane and pushed down the aisle to my seat. They let me limp off through the aisleway when we landed, which was nice.
I will say that the Frankfurt Airport was the nicest place I've ever flown as a disabled person. They wheeled me to a staging-room, which had coffee & water and restrooms out of sight of the general public of the airport. From there they would wait till my flight was boarding then wheel my out to handle the rest of the trip. In the meantime they watch over your stuff while you get to be a tourist, rather than a disabled dude carrying a pile of bags, which is probably the best experience possible. Nice videos, my dude.
All your videos are so helpful. Also to answer the question I went from Philadelphia to California and I just use the condom catheter and I never have problems. I really need to set my a bathroom up how you have, that's the only problem I have is showering nowadays and I have to take baths and I use a yoga mat so I can avoid sores as well. But I wish you the best and thank you for all your videos and you gave me hope that one day I will get married.
Joe Paciocco Thanks for the tip and good luck god bless!
Being an Aussie I only fly Quantas and they have an aisle chair on board and all staff have basic training to deal with wheelies (they do fly out para Olympic team)
I gather BA fly British paralympians, but they have a terrible reputation amongst disabled passengers.
I don't have a spinal cord injury but I cannot walk due to balance issues along with bone problems. In the last year I have traveled about 8 times. I hate hate the aisle chair so much! I am very sensitive to touch and it makes my pain worse. They strapped me in and pulled the belts so hard I felt like I could not breathe. I even told them to go lightly. Thank god I slipped my hands under the leg belt to stop her from strapping it too tight. or else they would have heard me screaming. Then on the way back they did not have one at the gate so it took a good 10-15 to get one and it delayed the next plane. I have found south west is the best! I love taking my chair right on the plane.
One tip I have is buying TSA Pre. You don't have to have a pat down and it saves so much time and energy. I got it after an agent made me cry because she was way to rough on my legs causing pain. TSA Pre only swipes your hands and chair then just inspect the chair. I definitely recommend it if you fly a lot.
Yes, the isle chairs suck! I can see someone with leg pain would also have a hard time. I recently was told the same thing about the benefits of the prescreening pass. Sounds great! Especially for people who fly often or have trouble with the search. The person who told me is a C6 quad and has difficulty lifting and moving for the screening.
nice tips and will not only be helpful to me, but I’m sure many others. Thanks
Hello! My name is Elyse. I have a form of muscular dystrophy. So, I have to use a electrical wheelchair. Flying for me is very difficult. I have only flew twice in my life. One time, I went to South Carolina (I live in Michigan). The fly to South Carolina was great, I actually enjoyed myself.
The fly back was another story. It was July 4th and I was so excited to see the fireworks in my neighborhood.
I remember parking near the exit. And my mom transferring me to the correct seat. I don’t know where this guy flies but this airline seems like a dream. I flew Delta. Delta does not let you get the first seat. You have to sit at your seat that’s on your plane ticket.
Anyways, after the plane ride everyone exits the plane. The flight attendant was very kind and sat with me while they were trying to figure out how to move my chair.
When my mom went to turn on the chair the pilot yells at her and says ‘it’s protocol that we move the chair.’ My Mom understands.
My mom tries to show them how to turn the chair on and move it, but they said it was protocol and that we couldn’t help them at all. I already knew this was going to be a train wreck.
These two men came and tries to figure out how to turn the chair on. They were bickering and arguing. My mom tried to intervene but they shut her down. The two men decide to manually lift it off the plane. Once they get off the plane they were exhausted. The huge African American man started yelling at the other man. The African American guy got so frustrated that he decided that hitting the chair would make it move.
Where I rest my back one, it’s metal but I have a cushion. The whole back was crooked. I couldn’t even rest my back on it without it being uncomfortable. My whole control panel was bent down. I could barely move the chair.
I have severe scoliosis so I have to have padding the left side near the arm rest. The padding was ripped off.
My mom is going to ballistic. Cussing the staff out and everything.
Once we get out of the plane the flight attendant rolls out a manually wheelchair. It was hard to move my wheelchair. She tells me that ‘everything will be okay and that we are going to fix my wheelchair and we are going to get your legs back’ I was seven when this all happened. My mom rolls me out of the hallway and we get into the waiting area to board the plane. The flight attendant apologizes to my mom. Mom gives her snarky remark and wanted the supervisor.
We talked to the supervisor and they said they would pay for all damages.
I didn’t have a chair until September 4. School was in three days.
I was bedridden for the whole summer. And there was nothing my mom, my dad or I could do about it.
I’m sorry that happened. Very unfortunate situation.
My first time using an isle chair I had a family come up to me and the flight person and the Mom helped buckle me in she said it was just like a baby’s car seat. I was so thankful haha
Thank you for the video presentation as an new one BK amputee I had to be strapped down like I ready to launch off of a rocket to the moon but the flight attendee knows what they were doing do the boarding process was very short and my seats were all the way back of the plane and the first to board the plane at which everything was fast without any delay and very happy everything when well, Thank you for the insight and is very educational for others to understand.
I realize its been a few years since you made this video. I have a T11 incomplete. I fly over 100k miles a year. A lot of it is international. On your question about what to about flights over 3 hours, I use a foley while in flight. For the day of flight I get the foley setup with a leg bag and I wear a pair of shorts with pockets to hold the bag. If I’m on a long haul I switch to an over night bag and have an empty plastic large water bottle with me to drain off the bag so I don’t fill more than 50%. You can cap the bottle and have someone help you dump it. So far that hasn’t been an issue. When I get to my destination I go back to straight catheter. My company allows me to fly business overseas so I take an inflatable air mattress (very thin like you use for camping) to help offset the hardness of the seat. So far they have been good about providing extra pillows. I stick with larger carriers as I have high standing in my status so things do go better. Internationally I do the same. Thanks for all the effort in your videos. They are very helpful.
If you have pneumatic tires you need to let some air out of them. Keep the pump for your cushion and a small tire pump in your carry on.
When you get your wheelchair back inspect it closely for any damage. It is a good idea to take pictures of your wheelchair before you fly to prove any damage was done by the airline. Before leaving the airport go to the office in baggage claim to file a report of the damage. If the wheelchair can not be used they are required to provide you a rental. They also must repair any damage to the chair or replace it.
If you use any adaptive sports equipment like a handcycle, basketball chair etc they are required to transport it for free and again, inspect it when you get to your destination and report any damage and again they ate required to provide a rental.
Do not ever get an isle seat, if you do other passengers will be crawling over you to get on, off, and whenever they need to use the restroom.
Be prepared to drag yourself off the plane if your flight is delayed getting in and your connecting flight is leaving soon. Also be ready for your bags to disappear. You can carry all your adaptive equipment in the cabin at no expense to you. Just be sure the only items in that bag are adaptive items.
They are also required to keep your wheelchair in the cabin if it will fit in the closet. If the flight crew has it full of there stuff they are required to remove it for your own adaptive equipment.
I have not flown international flights as of yet but am looking into flights to Asia when the travel restrictions ease up. I am looking at business class as you will be able to lie down in your own little cubicle.
I am kind of in your boat because I use a wheelchair. But I use my chair part time. I use my chair for distances, such as going through airports or zoos and such. I am not in your boat though in a way because when I fly, yes I do get a preboard pass and I do board first but once I get down to the plane I have the flight attendants place my chair underneath the plane and I walk on. I am able to get up and go to the bathroom during long flights (I just took a flight to Japan, 15 hours out, 9 hours back) and it felt good to get up every so often and stretch my legs
Hi Brian, by the way I use a manual wheelchair and my level of injury is c6,c7., and I've been in the chair since 2003 and I'm still learning for better more efficient way to deal things with SCI.
I’m a flight attendant and to answer your question about international flights and how disabled people use the bathroom . Every airplane is required to have an aisle chair so we would just take that out and take you over to use the bathroom . I think most would rather hold it but you’re always welcome to use it just ask us . I’ve been flying 7 years and I’ve only had one person ask me .
Thank you! The longest flight I've done is 3 hours because I had no idea how to get to the bathroom. Your info about inflight use of the aisle chair for this purpose is much appreciated.
So cool 🙏
Southwest airlines operate an entirely 737 fleet, similar to RyanAir in Europe and EasyJet (A319/A320 for them). However, from that picture I'm pretty confident they don't have enough space to allow you to transfer to a front seat from your regular wheelchair, also they do have assigned seating. Also if boarding from a jetway it's a bit hit and miss how much of a step there is, I've had an aisle chair end up almost horizontal as the wrestle it over a big step and been glad for the straps. I can actually walk a bit, but I've never been to the toilet on an airplane as it's too hard for my walking ability, longest flight has been about 4 hours, I went UK to Abu Dhabi changing in Turkey - that's one way in which a layover can be an advantage.
hehe you are lucky, I live in Argentina, I make lot of flights for more than 10 hours, I have to use a folley cather with a 1.5 litter bag and sometimes I keep a bottle with me to empty the bag and I try to move myself to protect myself. But I still traveling because it worth it. keep doing your videos they are really good. Regards.
I've flown a lot since I've been on a French exchange and I'm a wheelchair racer who competes nationally/internationally. I try not to drink too much, but if I really have to go, I'm able to use my crutches as long as there's no turbulence. I'm not fully paralyzed, so that works for me, but I think some of my friends catheterize.
Thank you so much for the video!! I am highly interested in learning more about international flying. My mother is paralyzed from the chest down she has full arm mobility but it's a bit weak. I want to take her to see her family in Malaysia soon. I have decided a good route Chicago to London, hotel for the night or two so she can rest. Then London to Malaysia. She does have her Roho wheelchair cushion for her to sit on. I'm concerned about her wheelchair getting damaged in the cargo hold. The other big thing is bathroom. She has the straight catheter, she has large "overnight" that hold large amounts of fluid. I'm concerned about the other type of bathroom. She has no bowel control but always goes in the AM with the aid of laxative. I suppose i can consult with her doctor. I really want to make this trip happen for her.
There are plenty of people that are paralyzed who have flown internationally and even some small planes have isle chairs that she can transfer onto to get to the restroom. From there, she might need help getting into the bathroom to go #2 but I'm sure it's possible. A foley catheter (internal) would help with the urine and that way she wouldn't have to straight cath during the flight. Just empty the bad. One thing to note: The ROHO cushion will inflate at high altitudes so she will need to let some air out. When you get back on the ground you will notice the cushion is flat so more air will need to be added. Check the comments below too. I know others have talked about flying internationally so you may find some useful info. This is possible so don't give up on it!
You’re such a good daughter
i have done long flights before. its important to note i dont have arm funtion. anyway, i got someone to carry me to the toilet. or i reduce my fluids and make sure i 'go' at the airport. here in the uk you often have to be carried on. but the staff know what they are doing.
what i suggest and have done for long international flights is to have a leg bag, your good for 8-10 hours depending on how much you drink. some international carriers as someone mentioned below have a w/c bathroom onboard and an isle chair where they can assist you or if you have someone to help great. Bring a container/bottle if you need to empty the leg bag during flight, its not safe to transfer and such at the end with a very full bag. During check in security, i believe when they swab they are looking for drug residue, not bomb but maybe both?? Great help and video as always.
I wish my body's lightweight like yours easy to maneuver around and transferring from airplanes chairs. Thanks for sharing.👍🏼✈️
Nice video, I have Duchenne Muscular Dystrophy and fly at least every year or 2 years with my family internationally. More than 6 hours flight. I mainly fly from Birmingham to Islamabad.
I fly to NY and NJ from PR and never had any issues boarding the plane with that narrow wheelchair but something happened one day on a flight from PR to JFK . I was watching from my window seat the baggage handlers loading luggage into the plane and it was then when I saw a guy trying to fold my wheelchair (my chair is a rigid) . That asshole was pulling on everything with force and even flipped the wheelchair upside-down causing all kinds of scratches on the frame and after a couple of minutes of frustration he threw it on the ramp. When I got to NY one of the arm rest was missing and nobody could find it but fortunately my brother in law was the ramp supervisor that day and he found it still in the belly of that plane that was bound to Europe in 10 minutes. Now I take with me in the plane every part that may come loose and also tape a small sign on the chair saying "this is a rigid wheelchair do not try to fold"
I've used the toilet on a flight via an aisle chair pushed by a flight attendant. The big issue is privacy since the space is too small to close the door. The flight attendant drew a curtain over the door and stood guard to make sure nobody barged in unexpectedly.
There`s a place in the Caribbean where extra help is part of the vacation deal, google the Caribbean Assisted Villas.
International flights have larger bathroom doors. The isle chair can fit inside.
I'm with you buddy on the "overkill" part. It's such a hassle! Fortunately, I don't have to fly that much. I prefer to drive or take the train. I have a specialized wheelchair that I use with special lightweight ramps or board from ground level. I never travel alone either. Bathroom issues are a REAL BIG problem for me.
There is a group called “Center for the Prevention of Passenger Outsourcing” who is campaigning against the major airlines’ (American, Delta, United) increasingly frequent outsourcing of flights to commuter airlines (those who use regional jets such as Embraer and Canadair). Although I am fine with the use of smaller planes for low demand routes, offering flights to cities with airports which cannot accommodate larger planes, etc., you bring up a good reason to be picky about what kind of plane is used on the flights you book. One article this organization has on its site mentions that there are times where the airline’s website may say that a 737 (to correct you, Southwest uses 737’s, not 747’s; the 747 is an extremely large plane which is only used for overseas/cross country flights) will be used for the flight when you book it, but the airline decides for whatever reason to change the plane to a regional jet.
living in the states is not as trying but certain parts are as bad or worse. I live in a college town and there is no public transportation. there is a senior or disabled tram but you have to call a day ahead, and are at the mercy of the tram as departure and arrival times. the town is on a hill and has snow in the winter with no major snow removal
I've never flown but when I go to festivals and concerts where the bathroom is inaccessible. My Dr will give me a foley catheter and a leg bag. That should work for long flights as well.
I wonder how airlines deal with people in power chairs
Hi Brian
I was flying from Zurich to Sao Paulo last year, about 15h if I remember correctly. The dolly was not so much of a hassle except that the armrest in the plane were fix, so I had to transfer over them and I was sitting somewhere in the middle . For the bathroom I would not know, since I was using a condom catheter. There's also meds that allow you to fill your bladder more than normal but I didn't want to risk that.
Cheers
Roland
I've never yet come across a plane that doesn't have a secret button somewhere to lift up the arm rest, the flight attendents should know even if the person assisting you doesn't. This is unless you are on a row with tray tables in the arm rests, they obviously don't move.
"Human dolly"😂😂😂. You be cracking me up but you keep it real 🤣. Yeah we fly southwest all the time!
Haha that’s legit what it is! Always felt like someone was moving a washer/dryer combo on the plane. 😆
I have flown international and it is a challenge to get from the seat to the bathroom im paralyzed from the waist down so I have upper body strength I have scooted my way from my seat to the bathroom and trying to get into the bathroom is tricky since it is so small I sit on the toilet to shut the door but it is also a challenge to drop my pants and do my business so its difficult for a paraplegic to use the airplane. restroom if needed.
Brenda Murphy yes it is very difficult
What a great resource, thank you!
Hi Brian, I hope I spelled your name correctly, but anyways, thanks for making this very informative video,,
I flew couple times international, my flight was from Minneapolis, Minnesota to Manila. Philippines, and there is no direct flight, it always stop mostly in Japan, but sometimes Korea or China. and Minneapolis to Japan is close to 15 hours and Japan to Manila Philippines is close to 5 hours, so the first time I flew was in was with family so that I was a little comfortable but the second I flew was in was by myself and what I did was in brought along with me 2 empty water bottles and I'm using a condom catheter with a leg bag. emptying the bag is the embarrassing part but I want to get to my destination so I have to deal with it, and before boarding to my connecting flight I have to empty everything and don't drink too much, and don't eat too much too.
How difficult is it getting assistance getting out of the aircraft and into the aircraft and through immigration etc since baggage is right out of immigration in Manila (NAIA. I use to live there and haven’t been back since I got MS and GBS and can’t walk. How is the experience in NAIA or even Centennial? I’m glad you posted. Thanks.
I have an extremely painful locked knee since 6+ months and another foot that can't bear weight. I'm considering traveling to another country for treatment. It's pretty challenging for me to move out of my wheelchair. I can still move sideways using my arms, as long as heights match and there's enough room to move legs around without touching anything in front. I'm feeling very nervous about how I'm going to travel. :(
I'm from the Middle East and live in America so you can Imagine the Long Haul Flights plus Many Stopovers I've been on When I travel abroad
Wow this is an amazing video! My wife and I love to travel and were afraid that we wouldn't be able to. I am still not nearly as proficient with transfers as I need to be but this gives me hope. How do you handle pressure shifts on a plane?
thanks for the information and for making this video
God Bless you and thank you for posting this video!
737's. still decently large planes. This is a really cool channel! Thanks for putting these videos up. Cheers friend!
Flown all the way to Cancun as a high spinal cord injury
A very educational video, thank you!
Wow. With how thorough they were strapping you into the aisle chair, I had hoped they had some spot where they could just lock it to the floor and that would be the seat you stayed in. What a pain to transfer from wheelchair to aisle chair, then to seat.
My mother is in a wheelchair and has to miss my son's wedding because there is no way she could fly. And now seeing what you have to go through, we know for sure she wouldn't be able to do it. :-(
Last airport I was in at the security checkpoint, there was a gentleman in a wheelchair because he had a prosthetic leg and they made him stand in the middle of the room and took his prosthetic leg to check it or whatever and they made him stand on one leg for like ten minutes... like they didn’t give him s chair... wtf
I use a electric wheelchair that has to be disassembled to be put in the hold of the plane. In Pakistan hardly anyone cares about people in wheelchairs. Few times my wheelchair was damaged when we got off the plane. I went to Istanbul in Turkey and my controller was damaged, wouldn't work at all.
I experienced that many time. I traveled all over the USA, and Canada, as well as one trip to Denmark. And they put me in those weird Skinny push things. For me, when I flew the Denmark that was 6 hours over the water. But I had a coach who was traveling with me, and he arranged to get help for me to use the bathroom. But for someone who has no help. I can't help.
I find that being in a wheelchair is difficult no matter where you go. Even going to doctor appointments and hospitals wheelchairs don’t fit. So I stay home and only go to my doctor appointments and avoid drinking anything.
I’m pretty much the same. I can do short distances with walker SOMETIMES but mostly no. I just stay home. I have MS so the fatigue I have to take cautio with as well especially with heat living in southeast Texas.
If you are used to intermittent cathing yourself and you’re going to be on a long flight, you may try inserting a foley and using that along with a leg bag the day you travel. (Prob check with your Dr or PA first) That way, even if your leg bag gets full you can discreetly dump it into say an empty throwaway plastic bottle. Whatever you do, don’t just decide to skimp on liquids because flying will DRY you out and then boom your vac is interrupted by a UTI.
grimtt I’ve used foley caths but try to avoid them if at all possible bc they irritate my bladder and I end up leaking for a few days. I’ve used a condom cath for added insurance though.
Hi Brian. Southwest uses 737s, not 747s. Big difference. As for international flights, I was asking my friend (777 pilot) about this. He mentioned that all 777s have an aisle chair and an ADA bathroom on board. I don't know about other aircraft. My neurologist has mentioned that there are medications which will slow down the production of urine which may be of assistance.
DonWW Hi Don, thanks for the response. I'm glad to know international flights can be an option. :)
+Paralyzed Living. Hi Brian, just finished flying to London from Dallas. I received an Rx for
desmopressin 0.1 mg to help control the production of urine. Outbound was DFW -> Chicago -> Heathrow as it took about 2 hours from the trans-Atlantic flight. But, a mechanical delay kept us on the ground an additional 1:45 in Chicago, thereby making it about the equivalent. The Rx helped a lot. I wore a brief, just in case, as backup. Return was Heathrow to Dallas, 9.5 hours. I did not use the aisle chair/bathroom, I relied on the Rx. Managed it well.
FYI, Southwest only uses 737s .. a 747 is the largest Boeing plane, which has the upper deck area :-)
Yes, you are correct. I needed to do my homework. lol
i got a same condition like you too sir, and i did exactly the same as you when i get on board, and yes, i still can having a sweet sex life with my wife too, great job my friend, you inspire me to make a chinese video to share ,let those Asian country who paralyzed like us. thank you sir!
I have to use an electric wheelchair because my muscles in my body are weak. I dunno if I can get on a plane and I'm scared to do it. Any advice?
Thank you for this video!
One Southwest doesn't have 747s they have 737s. In 1994-1995 I was a Passenger assistant. This PSA must of not got the training because I had to go through Training & had to PASS before I could do the job.
Hi thanks for posting your video it is great. My mum is in a wheelchair. we live in the UK and I am looking to take her to Barbados for a holiday. Can you tell me when we get to Barbados I noticed they don't have air jetty's so when we get there how do they get someone in a wheelchair off a plane with no jetty? Thanks in anticipation for your answer. Andy.
They use a lift, a bit like the ones they use to put food on planes. If you travel more you will find they use them sometimes even if there is a skybridge, sometimes it's because of stairs in the terminal that they then bypass and take you direct to passport control.
Yes, nice way to put it. People that don't know what they are doing. I meet a lot of them.
thanks for sharing experience
I'm so afraid to do this. I'm 6'4 and about 240lb. I also use an electric chair that can lay back for my blood pressure. Wasn't there talk about being able to stay in your wheelchair a year or two ago?
Hey there great video buddy! I'm also paralyzed (less than 2 years) T-11 and I've flown a few short flights as well. Like you my flights have been nothing more than a few hours. I'm actually putting together a video of myself commuting very similar to what you've demonstrated here. Another thing you and I have in common is that I'm concerned about the bathroom deal. I'm planning to travel abroad in the future and that's really the only thing I'm a bit concerned about. I did "IC" AKA "cath" in my assigned seat during one flight haha. It wasn't an emergency but I happen to have the isle to myself so I covered myself with a jacket and handled business! But I don't expect to always be so fortunate. If you since figured out a solution I'd love to hear about it. Thank you for the video and for sharing your knowledge! Cheers,
Greg
Hi Greg, yes I have still yet to take a long flight. I think if I did though I might use a foley catheter with a leg bag for peace of mind. That way it's one less thing to worry about.
+Paralyzed Living I flew from philly to San Diego and had to cath on the plane. Just hid behind my backpack and no one noticed haha
Good video. I am a C5 quadriplegic and fly a lot! Almost exclusively international flights over 6 or 7 hours. I have an indwelling catheter (SP) and usually wear a leg bag or for longer flights switch to a night time drainage bag as soon as I get in my seat. I also travel with an assistant/friend and they usually have to empty my leg bag at least once on a 5 hour cross country flight. Since I have the power chair I've always got to use an aisle chair and a complete lift from the aisle chair to my seat. I've been fortunate that most of my longer flights, over 10 hours, are usually in business class, but I have done 14 or 15 hours several times in coach and am really tight and high and spasticity at the end of sitting still for so long!
My issue with traveling is my bladder. When I have to go I have to go I can hold it but not for very long. It's gotten better but it's still an issue
Nooooooo, I just flew on Southwest Airlines, I weigh 130 pounds and my chair is only 16 inches wide, and I was in the very front row with a service dog, and I had to use their aisle chair. I was NOT able to use my chair to board either on my flight out or my return flight. I agree, get a bigger plane, but Southwest Airlines does not let you board on your own chair. I have a nonunion femur fracture and didn't need all the jostling. It made my flight that much more painful. They knew abut the fracture. Thank you Southwest Airlines.
Morgan Calvi that’s really strange because I’ve always been able to board using my chair. Did they tell you you weren’t allowed to try? This is very surprising bc I know several other paras that use Southwest exclusively because they didn’t need to use an isle chair. I will say their newer planes make it more difficult but it’s still doable. My seat cushion is also 16” wide. Sorry you had a crappy experience. 😕
@@ParalyzedLiving when I asked if I could try, they just said they always use the aisle chair. I was kind of afraid to even say anything else because airport security is such a nightmare these days. America really needs to stop and think about how others view this country. They really aren't helping their cause looking all paranoid and stuff all the time.
Fantastic video. You’re really good looking by the way
What's up Brian my name is Ryan I am a T4 paraplegic 27 years... I flew to Hawaii which was a 8 hour flight on the 747 and yes I was the first one on last one off... It was the longest 8 hours of my life... On the way there I made it without going to the bathroom, on the way home I used a leg bag because it was just too hard on the way there... On the way there I was basically hollering at people to get their asses off of the airplane so I could get off they don't realize that I've been sitting in the same chair for 8 hours people are stupid..,. I have watched a lot of your videos I wish I would have started making some of my videos I have done stuff that would blow people's minds..
My mother isn't paralyzed, but she has MS.. which causes her to have leg spasms when she is touched, and lost her balance. Her body would probably not mold to an airport wheelchair... I was wondering if your own personal wheelchair is given to you right back after the flight?
Yes, I "board check" my chair at the gate so its available when I get off.
Make sure you are clear about what you need, but it should be returned to you at the gate and be sure to kick up a fuss if they don't do what they are told.
I have MS and GBS. I’m curious myself if I’d fit on that isle chair. What about people who use both wheelchair and people who transfer with a walker? I’m suppose to fly with Delta soon. I can walk short distances with my walker and I thought about bringing my wheelchair for getting across the airport. My other concern is connecting flight. I’d be making a layover/connection in Atlanta. I’m curious which is a better choice under my circumstances. This is the first time I’ll be flying since I’ve been wheelchair bound. My ability to use walker is a recent accomplishment but it’s short distances. My wife will be traveling with me to help me. Any advice anyone?
I know this is an old video but ive recently had a condition come to light where some days im perfectly fine, other days im in a wheelchair, some days I just have a cane. I'm going to be flying soon and my condition gets worse the more walking I have to do. I'm debating the pros and cons of using my wheelchair for the full day that my travel is going to take. Any advice?
I’m in the same situation. I have MS and GBS and can walk short distances with a walker. I’m debating brining my wheelchair and walker or maybe not bringing my wheelchair at all. I’m wondering if they’ll make me use that aisle chair if I use my walker. My main issue is balance from lack or little of nerve function in my lower legs and feet to control foot muscles for balance. I don’t know what to do.
I have Spina Bifida, I'm unable to walk, but I can move around pretty well. Flying with a wheelchair sucks. I really hate that isle chair they use to get you on the plane. I just feel like I am going to be dropped. I've only ever flown in big planes, but still my wheelchair is too wide to wheel onto it. Have a flight in an Airbus to Albuquerque in July, first time I've ever flown on an Airbus plane. We'll see how that goes. The layover on the way there is 3 hours, but the layover on the way back will just be an hour. Hopefully enough time.
lol i have Spina Bifida too, and the aisle seat almost folded on me
Ahmed Gafar Had a flight from Albuquerque to Dallas on an MD80, not the smoothest ride to say the least.
Try
DC to London
Detroit to Amsterdam
London to Dubai
Ahmed Gafar Luckily the MD80 isn't used for international flights
Thanks I have acually carried a empty water bottle in my carry on bag incase I had to empty the leg bag
Hi there! This video is nice to know what I should expect when I go on a trip in a few months. I do however have a question... How long before your boarding time do you usually have to get to the airport in order to get through the security and everything?
+Kamryn Robinson No longer than the average person. Luckily, you are able to skip a large portion of the security line because they have a separate line for wheelchairs.
@@ParalyzedLiving Hi Brian, how are you? This video is nice to know what I should expect when I go on a trip in a few months. I do however have a question… How long before your boarding time do you usually have to get to the airport in order to get through the security and everything? Kind regards, from, PaulLaw.
well i have been on a wheelchair since i was 4 so the first time i did a international flight i had no liquids since the night before and in the morning just half a glass of water and i try to do something to sweat a little so that the water is in all my body and i dont have pie. also i know this works because a do feel my bladder after a while i got the sensitivity back a little bit. i have a T12 injury
U got it all in control
Swa only uses 737 not 747 is a jumbo jet.
Does it cost extra to bring a wheelchair or is it considered your carry on personal item? I can walk to my seat on the airline but will need my chair in the airport as I have a heart condition where my blood pressure drops very low and my heart rate shoots up to around 180-200bpm. It's an awful feeling. Walking and standing are very hard on me
Neither - it's not your personal item, it's a mobility device and it's separate from your personal item limit - you can still bring one of those, too! :) When you check in (even online) there will be a question if you have any special requirements, and there are a few questions to determine what type of assistance you need, if any.
For example, if you have a mobility impairment (trouble walking, or can't walk at all) there are different 'levels': if you need a wheelchair to the plane door but can walk down the aisle to your seat, versus needing an aisle chair (the very skinny wheeled chair) to take you down to your seat.
When you book, you'll be asked then, too, about any disability/special needs, etc, and they tend to book you closer to the front of the plane to you're not struggling to get to the back of the plane past many, many people, etc.
And you can bring your wheelchair with you, and/or a walker or whatever you use. (If you use a power/electric wheelchair or scooter, their are certain rules about the type of batteries they use being allowed - that's all detailed on the websites of any airline for safety reasons). When you arrive and check in/check your bags, you'll get a special tag for your wheelchair telling them to bring it to the door of the plane when you get to your destination.
You might want to bring a folding cane along to help you if you need to use the washrooms during the flight, to help give you some stability... But be warned that most are super tiny (except on huge jets that go overseas, I gather. I've only taken smaller jets on trips a few hours or less.) But obviously space is limited, so keep that in mind.
Hope that helps a bit. There are other details, but this is just to start. If you need more information, airlines have information for passengers with disabilities, or you could call their customer service line for more details.
Thank you for your comment to her question! I have MS and GBS. I’m curious myself if I’d fit on that isle chair. What about people who use both wheelchair and people who transfer with a walker? I’m suppose to fly with Delta soon. I can walk short distances with my walker and I thought about bringing my wheelchair for getting across the airport. My other concern is connecting flight. I’d be making a layover/connection in Atlanta. I’m curious which is a better choice under my circumstances. This is the first time I’ll be flying since I’ve been wheelchair bound. My ability to use walker is a recent accomplishment but it’s short distances. My wife will be traveling with me to help me. Any advice anyone?