I´ve being seen some of your videos and everything I want to tell you is that you are an inspiration not just for me, but for a whole bunch of people out there. I have no healthy issues but still, whenever I see the way you smile in your videos and the way you´re just honest about everything, it really gives me hope in humanity. Keep up that really good attitude towards life. Keep up being a motivation and example for many people. Regards.
Hi Brian, how are you? I’ve been seeing some of your videos and everything I want to tell you is that you are an inspiration for a whole bunch of people out there. I see the way you smile in your videos and the way you’re just honest about everything. It gives great hope in humanity. Keep up the great attitude towards life. Keep up your motivation and example for many other people. Kind regards, from, PaulLaw.
its so true being in a wheelchair is kinda the easy part, its all the other issues being a paraplegic that you have to deal with on a daily basis, toileting is so difficult, people do tend to see the wheelchair and think you just can't walk, but its so much more than that. thank you so much for showing awareness, wish I had the courage to talk freely about this. x
Thanks for sharing your insight and experience. I am a nurse and hearing what works for you helps me advise my patients. I appreciate your prospective!!
I've watched a couple of your videos. I'm writing a screenplay about a character who is afflicted with a spinal cord injury and is paralyzed from the waist down. I had barely finished writing the first page, and I realized how ignorant I was to a paralyzed person's ordinary life habits. So I began to do my research and stumbled across your videos. At first I watched your video regarding bowel movement, and it was hard for me to watch it without feeling, I regretfully admit this, with pity disguised as compassion. Then I noticed something I was too blind to see at first. I saw a "normal" look in your eyes. I was blown away by it. You, sir, are a perfect example of how an adverse situation must be tackled. Head on, and with resolve. The best way to overcome hardship is to get through it. And you have. Thank you, you are an example to everyone who takes the time to watch you. Thank you for having the determination to help others that share your condition and I humbly thank you for helping me write a more truthful rendition of what a paralyzed person's life is. I'd love to put your name in the "Special Thanks" portion of the credits of the movie. God bless and thank you once again.
Awesome of you posting this video brother. I was born with Spina-Bifida and because of where my lession is I also have neurogenic bladder. I get the same dizziness when my bladder is beginning to get too full - usually too late and I begin to leak. Anyways, I appreciate your commitment to helping SPINAL CORD INJURY (SCI) patients deal with some of these situations.
Hello , i am a physical therapist and thankyou so much for educating . As we have only theoretical knowledge regarding this subject and many a times are unable to answer client concerns. i have been watching all your videos and they are so informative. And kudos to you for giving such great tips and tricks to help the community. Thankyou!
As a support worker for SPI clients I have really appreciated your videos and I thank you for sharing your journey. It has allowed me to obtain more insight into the field I have chosen as a career. Thank you!
You're an inspiration man. If you can do it I can too. It'd be awesome to meet you and talk with someone who actually lives through the same struggles.
you are a superb inspiration. Fantastic series of videos, extremely information. Thank you for pulling something up from somewhere within you to share yourself. Thank you, thank you.
Good info. Only thing to add is to start seeing a urologist at least once a year. They can help diagnose and prevent UTIs, possibly get you cheaper or free catheters and supplies through your insurance and give other advice. If you get repeat UTIs it could be due to things outside of your bladder maintenance, such as kidney stones.
I thank you for your honesty about a subject that I'm ambarassed to even talk about, I know its human nature but even before I became paralyzed it was something I was already sneaky about. To the ones that gave you a thumbs down I would like to salute them with my middle finger cus for 1 your doing a damn good job and 2 they might not have the same issues so they can't identify. Great job and thank you.
I'm 63 and as u say in ur "bowel" video I've always thought "oh he can't walk"... never have I considered all the other issues... best wishes from Italy
C6 Incomplete Quad Here: Haven't had infection in 6 years/never leak (prior to that had them constantly due to not knowing how to control anything). I intermittent catherize (non-lube), and I wait to wash my hands after (I learned years ago we are immune to our own germs). I limit the amount of coffee, beer and any diuretic beverages as much as possible as these cause you to have to use the washroom outside of your bladder's trained schedule. Much like our bowels, we must train our bladders (I typically pee once every four hours). I moderate the amount of water intake daily by increasing intake when urine looks cloudy/smells, and decreasing when I'm urine is transparent - basically it's better to drink over a long stretch of time, than all at once (this will throw you off your schedule). My urine output is also affected by other factors such as how full my bowels are, and if I showered that day. Lastly, every night I take 2000mg of Vitamin D, 2000mg of Vitamin C, a Men's pill and 400MG of Septra.
I'd be interested in whether any of your doctors did anything like: 1. Discussed with you what you are facing in regard to your bowel and bladder; 2. Set you up on a bowel and bladder protocol; 3. Recommended any reading material, videos etc. on bowel and bladder problems; 4. Recommended any specialists who deal with or are trained in bowel and bladder problems. My doctors did close to zero. It was my neurologist and not my urologist who pointed me towards DDAVP (desmopressin) to suppress urine production at night.
God bless you and your family, I felt like God guided me to your channel..... I now see I'm selfish even before the SURGERIES I was not walking the way I wanted to the way I used to but I was walking n after almost 2 years, I still have some issues with my legs(mostly my right leg) but I'm able to stand in the shower(about a min) but seeing as b4 I used a shower chair, anyway sorry for taking up your time, God bless n thank you for educating those who don't know(I get laughed n looked at n I'm trying to learn to deal with it, kinda tired of being depressed) AND PLEASE keep the videos coming.....🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽
Louraine George thank you for reaching out! I understand your struggle but try to remind yourself it could always be worse. I do that all the time and knowing I can do things that others cannot gives me strength. Stay strong!
Nice advice "Adam" I mean Brian. Your videos are very helpful. I am a functional Tetraplegia due to MS. I have the neuro bladder and bowel. Bowel has gotten worse for me and just trying to figure things out as I prepare to travel with a wheelchair for the first time ever. Thanks for all your videos :)
god bless you dude you do really well for your self I been paralyzed for four years and im in a nursing home cause I have a titanium spine so I can't bend at all its really hard for me and I do want to go home im going keep trying Thankyou for the ideas alot of people wouldn't understand what we go thru every minute of the day
Have you ever tried Speedicaths? Blue Cross/Blue Shield insurance covers 200 caths a month, and Speedicaths are very similar to your hydrophilic ones, except they are in a sterile saline solution that works as its own lubricant. You can even put the cath back into its package/solution after using it so you can recycle it later if you are worried about running out. Also, cath extender tubes are nice because then you can just pee into a toilet or the grass without carrying around a big old bottle.
Here i am watching your video with a catheter for last 2 weeks and setting up my night bag Normally I self cath but things are getting worse BPH. UTIs when they get bad make me tell myself that next time i'll be even more careful about keeping everything clean. Your vid make me feel things are not soo bad after all :)
Hi great video. I am c6/c7 complete post 20yrs. I have been doing the intermitent method for abt 11 yrs but started getting frequent UTI and bleeding. I had a foleys put in and never looked back. I asked myself why didnt I do this from the begining. I quess intermitent works for some but with regular cleaning and hygiene of my foleys and legbag, last had a UTI 1 year ago. and it really great when I am at work. piece of mind. I just sometimes notice a slight smell, thats when I change it. literature states indwelling catheters can cause cancer and other complications. But I am content and happy with it especially when driving long distances. thanks for the video.
Thank you for sharing this! I also Cath and as soon as you started talking about the feeling you get I was like yes! I know exactly what you're talking about! Weird how that made me so excited I know. Lol. I've never heard of anyone else that had this feeling of non feeling and it's cool to hear there is an actual medical term for it. I just found your channel a couple days ago and so far im loving it. Thank you for making the videos!
Very informative. TY. I rely on my "spider sensation" a la Spiderman to know when i need to do cic. How often be should one change the Nelatons catheter ?
Wow, you’re amazing! I’m able to walk, but can kind of relate, I’m 49, but since I was 20 I’ve been battling Crohn’s disease and colon cancer, and after 34 brutal operations I now have less than 5% of my G.I. tract left, and now have something called a Kock pouch (yep, pronounced cock!lol! It’s named after it’s inventor, Dr Kock). Essentially, they removed and stitched shut my rectum, they removed my entire large intestine and almost all of my small bowel. As for my pouch, it’s a bag of skin made from my small bowel stitched to my abdominal wall, with an opening where my small intestine sticks out aka, a stoma, that I must insert a catheter into at least 8 to 10 times a day to empty my bowels, so I have a slight understanding of how you feel, but you my friend are absolutely amazing! I struggle so much just with my one issue, I don’t know how you’ve adapted so well just such a huge obstacle. I’m sure people say to you what they say to me, how brave we are, or ask us how do we do it, when in reality it’s not like we have any choice, we either do it or explode, LOL! I also have to use a catheter to empty my bladder many many times a month because my interior pouch, when full, or when inflamed, presses up against my bladder, blocking the ureter, preventing me from peeing, so I have no choice but to use a catheter, only difference is I’m fully “able-bodied”, but, I am legally totally disabled, and live my life on long-term disability because living with almost no intestine makes it really hard to get any nutrients from your food. Essentially I can’t eat a damn thing except soups, very soft meet which I chew the hell out of, a lot of crushed up supplements, and gallons of boost (and absolutely no alcohol whatsoever, or coffee, both of which are diuretics, and I already lose gallons of fluid every single day, I actually have to drink between 5 to 6 L of fluid a day just to stay alive. But as for your mobility…Actually, let me rephrase that, I can walk and sit, so I have a slight advantage over you, but from what I’ve seen from your videos I would never call you disabled, you don’t let anything stand in your way, and I admire you so much, as I’m sure millions of other people do too, thanks so much for making these videos and showing all of us that we can do anything no matter what happens to us, God bless my friend! PS - sometimes you just have to laugh at this, I’m sure you’ll agree that public restrooms are a nightmare most times, many times I have to use a urinary catheter and stool catheter (with only 5% of my bowel, my stool is basically just brown water) at the same time. Because I look “normal “,(I hate that term), anytime someone sees me using a handicap washroom I get yelled that, I get dirty looks, or I get the manager, or the police, called on me. A couple of months ago I was at a roadside rest stop on my way to Washington DC (I live in Toronto) to visit family, when this miserable old bugger saw me going into the handicap washroom, and started pounding on the door, calling me every name in the book, and threatening to call the police if I didn’t leave, so I went about my business, and yelled back “go ahead and call the cops, I dare you!”. And guess what? He did! LOL! Aweeeeee sweet revenge, The officer knocked on the door and asked me to unlock it, not knowing that I had both a urinary and a stomal catheter in me as I emptied my bladder and bowels at the same time. I tried yelling through the door to not come in until I was finished, but this old bastard started yelling at the cop to unlock the door anyways, so he did...... I am definitely not shy about being seen naked, after being a G.I. patient for the past 29 years, you lose all humility and don’t give a rats ass who sees your butt or your dick, but if you could’ve seen the looks on their faces, let’s just say I wish to God I had a camera, they looked like a couple of deer caught in the headlights of the car at night, they both turned beet red with embarrassment, and shut the door as fast as they could. I actually thought it was funny, started laughing. Once I was finished my business I walked out of the bathroom to see the cop yelling at this old man for wasting his time and for humiliating me, they both were so ashamed of what they did, but me being me, I told them if they wanted, I can get them in wallet size so they don’t do the same thing again to someone else. I just suddenly got a case of the giggles, I was almost in tears from laughing so hard, as the cop and this old man stood there staring at me like I had worms coming out of my ears. All I said to them was please be more considerate and do not assume anything in the future, to which they both agreed. The cop bought me lunch, and the old man look like he was about to cry. At first when I was still depressed, and desperately trying to cope with my new reality, I would’ve taken a lot of joy from seeing this little bugger suffer, but I grew past that phase a long time ago, and can now just laugh my ass off every time something like this happens, and it happens on a weekly basis I kid you not. This may sound insane but a part of me is a little envious of you, because people can see you’re obviously disabled, but when you have an invisible disability, you also have to face the nightmare of accusations and dirty looks, which makes your recovery twice as hard. With that however, you do grow thicker skin because of it, and can really gross people out anytime you want to! Lol!........ you’re talking to one of the very few people on this planet that can take a shit without taking off his pants, I wonder if that qualifies as a superpower?! LOL!😂😂😂😂😂😂😂
Vasacare works for me. I take one 10 mg everyday completely relaxes my bladder. When I cath I average around 350 cc's four to five times a day. You don't have to worry about any leakage because of this medication. It was given to me from a doctor at Washington University St Louis. I have been in a chair paraplegic, t9 going on 50 years this coming April 2023. Any questions you can let me know. Jay Williams..
Cool! That’s what the vids are there for. Yes I have occasional accidents but typically wear a men’s pad in my underwear just in case I leak. I do keep an extra pair of pants in my car if I have to change when I’m out but it’s rare I have to do that. #2 accidents are also few and far between but it usually means a trip home to take a shower. Brings a new meaning to, “sh*t happens.” 😬
Great vidéo, im a c6/c7 incomplète slightly have sensation when the bladder is full when using the intermittent catheter the problem is sometimes i have to empty continuously meaning the bladder is not empty. I want to know how can you be sure the bladder is completely empty when using an intermittent catheter ?
I can go to 1 liter without leaking but like you said, it's not good at all. Usually I get between 400ml to 500ml. I'm glad to find an opened mind with your channel. Can we have a private tchat ? Thanks
I have a neurogenic bladder and need to catheter. . I have watched several videos concerning intermittent catheterizing. Still, none of the videos discuss the pain involved during and after the procedure. I am into my 11 years of neurogenic bladder problem and each time I insert the tube it hurts and even after. I have to take painkillers to get by the pain. Am I the only one suffering this pain?
Hi Brian Love your videos the way you inspire people, I am not paraylised but I have uti evey month I will have to start to cath I am female so its harder lol this qwas caused because of cancer surgery I hate UTI how are you going on with them
I have been a para for 8 years and I used to straight cath but I found that I never got the sense that I was empty. I would keep it in until there was no more flow, but I could go through the hassle of getting back in bed and five minutes later I'd be wet and have to change sheets,etc. So now I have a suprapubic and at least stay relatively dry.
My husband had a motorcycle accident on his way to work in September 2017. He suffered a brain injury on the left side. He's still not walking and just started talking two months ago.. Spinal injury and brain injury a similar in some ways.
Hey! Your videos have taught me so much. I'm a newbie paralysed 7 months . Wondering what the situation is when we go out drinking... Nightclubs etc.. Do we have to drain really often in nightclubs ? Because before I got injured I remember how often i needed the toilet after a drink.
Yea, when I go out I just have to cath more often. Sometimes I wear a foley catheter with a leg bag when I go out. This way I can just drain the bag when it's full and not worry about when I have to go. This is especially ideal when out at functions where a clean bathroom is hard to get to. (ie, concerts, festivals, etc)
Thank you so much for sharing all this information that can be somewhat uncomfortable to talk about :-) You are awesome for doing so. Love your motivation level and watching you get dressed was amazing- I watched that clock behind you and I think you did the whole thing in about 5 min!!! Amazing- wonder if condom cath would help at night time - to avoid interrupting sleep- having to transfer... Love your videos!!! God bless
+Jonathan Rekash I have some of the Magic 3 and like that it has the lube pack and green slide so you don't have to touch the catheter. The downside is they take FOREVER to drain my bladder. It easily takes twice as long and as the Coloplast...nobody got time for that. lol I recently switched to the Coloplast Speedicath which is pre-lubed and still drains my bladder quickly. It's also a little more stiff than most catheters so you can insert it without having to touch the cath at all.
+Paralyzed Living That sounds really good. I'll have to see if they can send me a sample. They also said there are different thicknesses. I have a 14 french. I wonder if a 16 french would drain faster.
I have developed an issue where I have to urinate way to often. My urologist ran tests that indicate my bladder has little muscle function. He says I am not fully emptying my bladder hence it refills faster. My beginning treatment is that I have to catheterize myself three times daily, morning noon and night after urinating. The idea is to fully empty my bladder and provide some relief from going to the bathroom. I am now going about every hour. At night it is like 2 -3 or 4 hours between trips. I have full bladder control, I do not pee on myself and am able to "hold" it for any amount of time. I am really afraid of this, the catheterization. Does it hurt? Thoughts on my condition. This developed after spinal surgery where L 3 4 and 5 were fused. Of course the spinal doc says he had nothing to do with it.
Have you considered or tried catheters that comes in the water already, or with a small pouch of water that you just squeeze to release the water to activate the surface of the catheter? I use the latter version myself for when I need to cath. I’m not paralyzed but have a genetic connective tissue disorder and suspect I may have tethered cord as a complication from it as I have some loss of sensation in my legs and bladder. Sometimes I only go twice in a day, sometimes I have to go all the time, sometimes my bladder doesn’t empty properly and sometimes I just can not pee at all on my own, so catheters are a great invention! The catheters I use are called LoFric Sense but I think they may only be available for women, tried Speedicath compact too but for some reason they make me bleed a bit even though the same size of LoFric doesn’t 🤔
Great info Bryan. I've high functioning c7 incomplete but recently having some bladder issues where without warning, I start to pee. This isn't with a full full bladder but at anytime even after peeing recently. I'm going to ask about some of the meds and maybe go to more catheterization per day than 2. I order some of the self lubing hydrophilic. Thanks for the ideas.
+Todd Register Ask your urologist if you're having bladder spasms. You need to avoid those because it can raise your Blood Pressure, and they will come on very quickly with no warning. I usually only get them when my bladder is in trouble, like a bladder infection. Get a sample of this leakage to your urologist and talk to him/her about this.
Hello there, my husband is a T4 injury and he usually times his bathroom routine.. And I know exactly what you mean when you say sensation or urge .. but I was wondering do you have a schedule time to go? I hope I didn't mess up asking this simple question lol..
Hello brother even I wanted to use that intermittent catheter but my bladder leakes automatically once the bladder gets filled up . I can feel the sensation once bladder gets filled up. So do you any suggestion to stop leakage...?
Did you have issues with leakage soon after your injury, or was it something that developed over time? Could it be something that develops as a result of waiting to long and having large volumes?
Okay kind of off topic but i have some depersonalization issues when im anxious, and i completely understant what you mean about feeling a bit sick when your bladder is full because i wont feel at all when i have to go to the bathroom and when its been more than 12h ill start to get sick and panick and then ill be like "maybe i have to go to the bathroom". And im always right.
Hi , just wondering if you have ever experienced resistance when inserting the catheter and any blood clot to the tip of catheter after pulling it out. if so any tip pls ? thanks
Yes I have had resistance but no blood that I can recall. Usually it helps to remove the catheter and change your seating position. This could help correct the angle at which the catheter is inserted.
Can I ask if anyone ever just sits on the toilet and pushes on their bladder to empty it? My daughter has TM and sometimes we can just barely touch her bladder and it will empty some that way? or is this not recommended?
+DJreeser I typically drink a good amount of water. Maybe 8 glasses a day. I don't really avoid anything or have a special schedule. I like beer and coffee...both make me pee more so I have to be ready for that.
Just got back from the urologist. And I mentioned that "sixth sense", (autonomic dysreflexia). I think it's time for Botox. I'm a T4 complete from a motorcycle accident, so I'm really starting to relate. Good to hear from someone who knows! 😉
Do you feel pain i have ms and they have warning and prepping my for these situations that are coming. Haven't lost full control yet but I do notice the progression and accidents with no warnings.
Terry Davenport no I do not have any sensation down there but my father in law who is fully able bodied had to use them do to prostate issues. He said it didn’t hurt. I wear a pad in my underwear just for added insurance in case I leak a little. Give that a shot of you haven’t already.
Terry Davenport no I do not have any sensation down there but my father in law who is fully able bodied had to use them do to prostate issues. He said it didn’t hurt. I wear a pad in my underwear just for added insurance in case I leak a little. Give that a shot of you haven’t already.
I was born with spinal bifida and now wear a catheter all the time but before when i was self cathing i was alsp put on the med for my bladder called vesicare and it worked so much better for me then oxybutnin and i only took at once a day before bedtime! Maybe u should try it and they also have oxybutinin in patch form for u instead of pills 3 times a day.
Hi I faced L1 fracture for last 6 month before but still am facing urinary pblm ( urine not came in stand mode ) can u suggest how long take a recovery
How do you know when to go number 2 can you feel when you need to go do you just go every so many hours I guess it's tricky when you are ready to goto the bathroom it must be hard being like that
Am a paraplegic from neck down,C6 to be exact.....recently had epidural stimulation......i feel a weird sensation including headache , sweating & pilo erection following rectal and bladder fullness ...am learning to differentiate b/n the two....am not from states...
My daughter has neurogenic bladder, I have to use a catheter every 4hours she was born with spinal bifida,she can move her legs but she can't be standing up for more than 10minutes
+Neil van der Merwe I'm going to try to get a few samples next time I get a cath delivery to try them out. I know I used them once before and they were really stiff which I didn't like but they have a compact version that I may give a shot.
I did the bladder botox study to see if effects of AD were lessened. It allowed me about 50ml gain no change to AD. I can try again but last i checked it would cost me ~$500 ummm no thanks lol. Will need to check again to see if medical is covering it in BC, Canada yet.
I still get a few a year. It usually happens when I've been careless though. Like if I drink and let my bladder get too full or if I don't take my Methenamine and D-Mannose regularly.
owereb Usually after I quit drinking and pee around that hour interval i usually have to cath less since my body dumped a bunch of fluid. Alcohol dehydrates you which is why you pee a lot when drinking and then afterward you don’t pee as much. It’s not an exact science and it can vary greatly on how much fluid I drank earlier in the day, how many beers, etc. I’ve gotten used to listening to my body but it isn’t as easy with a buzz. On many occasions I’ve had to pee way too much and the next day my bladder is irritated so I have to go more often. Like maybe every 200ccs. Sorry I wish there was an exact answer but the body isn’t always predictable. I wear a pad in my underwear most days just for peace of mind.
I am quadriplegic c3 to c7 from past 15 years but i recovered a lot i do walking with supports , transfer from wheelchair to bed n same. I want to know any solution to increase volume of bladder my starts leaking after 200cc. please help me with any suggestions or advice.. appreciate
Am C6 complete injury....sacral stimulation( interstim ii) helped me alot....it increased mine from 20ml to 320 ml......i had severe neurogenic overactive bladder....but your urologist may suggest medication like oxybutinin or botox instead....good luck
I´ve being seen some of your videos and everything I want to tell you is that you are an inspiration not just for me, but for a whole bunch of people out there. I have no healthy issues but still, whenever I see the way you smile in your videos and the way you´re just honest about everything, it really gives me hope in humanity. Keep up that really good attitude towards life. Keep up being a motivation and example for many people. Regards.
+Alexa Nieto Thanks for the comment!! I really appreciate it :)
Hi Brian, how are you? I’ve been seeing some of your videos and everything I want to tell you is that you are an inspiration for a whole bunch of people out there. I see the way you smile in your videos and the way you’re just honest about everything. It gives great hope in humanity. Keep up the great attitude towards life. Keep up your motivation and example for many other people. Kind regards, from, PaulLaw.
@@ParalyzedLiving This Problem can effect sexual life ???
@@BirdsLover3820 yes unfortunately. I actually have a video talking about that.
@@ParalyzedLiving can you tell me your WhatsApp number I m too much worried
its so true being in a wheelchair is kinda the easy part, its all the other issues being a paraplegic that you have to deal with on a daily basis, toileting is so difficult, people do tend to see the wheelchair and think you just can't walk, but its so much more than that. thank you so much for showing awareness, wish I had the courage to talk freely about this. x
Thanks for sharing your insight and experience. I am a nurse and hearing what works for you helps me advise my patients. I appreciate your prospective!!
I've watched a couple of your videos. I'm writing a screenplay about a character who is afflicted with a spinal cord injury and is paralyzed from the waist down. I had barely finished writing the first page, and I realized how ignorant I was to a paralyzed person's ordinary life habits. So I began to do my research and stumbled across your videos. At first I watched your video regarding bowel movement, and it was hard for me to watch it without feeling, I regretfully admit this, with pity disguised as compassion. Then I noticed something I was too blind to see at first. I saw a "normal" look in your eyes. I was blown away by it. You, sir, are a perfect example of how an adverse situation must be tackled. Head on, and with resolve. The best way to overcome hardship is to get through it. And you have. Thank you, you are an example to everyone who takes the time to watch you. Thank you for having the determination to help others that share your condition and I humbly thank you for helping me write a more truthful rendition of what a paralyzed person's life is. I'd love to put your name in the "Special Thanks" portion of the credits of the movie. God bless and thank you once again.
Awesome of you posting this video brother. I was born with Spina-Bifida and because of where my lession is I also have neurogenic bladder. I get the same dizziness when my bladder is beginning to get too full - usually too late and I begin to leak.
Anyways, I appreciate your commitment to helping SPINAL CORD INJURY (SCI) patients deal with some of these situations.
Mujhe 2007 se neorogenic bladder se pidit hu upchar bataye
I have spina bifida too
Hello , i am a physical therapist and thankyou so much for educating . As we have only theoretical knowledge regarding this subject and many a times are unable to answer client concerns. i have been watching all your videos and they are so informative.
And kudos to you for giving such great tips and tricks to help the community. Thankyou!
As a support worker for SPI clients I have really appreciated your videos and I thank you for sharing your journey. It has allowed me to obtain more insight into the field I have chosen as a career. Thank you!
Awesome! Glad the vids are useful! :)
You're an inspiration man. If you can do it I can too. It'd be awesome to meet you and talk with someone who actually lives through the same struggles.
you are a superb inspiration. Fantastic series of videos, extremely information. Thank you for pulling something up from somewhere within you to share yourself. Thank you, thank you.
Good info. Only thing to add is to start seeing a urologist at least once a year. They can help diagnose and prevent UTIs, possibly get you cheaper or free catheters and supplies through your insurance and give other advice. If you get repeat UTIs it could be due to things outside of your bladder maintenance, such as kidney stones.
if you use straight intermittent cathes you have less chance of a stone, indwelling methods create the stones
i'm case of spinal cord injury .
your videos are useful 4me..
worth a fortune
I thank you for your honesty about a subject that I'm ambarassed to even talk about, I know its human nature but even before I became paralyzed it was something I was already sneaky about. To the ones that gave you a thumbs down I would like to salute them with my middle finger cus for 1 your doing a damn good job and 2 they might not have the same issues so they can't identify. Great job and thank you.
So until now you are still using an intermittent catheter?
Has the feeling of urinating started to appear?
I'm 63 and as u say in ur "bowel" video I've always thought "oh he can't walk"... never have I considered all the other issues... best wishes from Italy
C6 Incomplete Quad Here:
Haven't had infection in 6 years/never leak (prior to that had them constantly due to not knowing how to control anything). I intermittent catherize (non-lube), and I wait to wash my hands after (I learned years ago we are immune to our own germs). I limit the amount of coffee, beer and any diuretic beverages as much as possible as these cause you to have to use the washroom outside of your bladder's trained schedule. Much like our bowels, we must train our bladders (I typically pee once every four hours). I moderate the amount of water intake daily by increasing intake when urine looks cloudy/smells, and decreasing when I'm urine is transparent - basically it's better to drink over a long stretch of time, than all at once (this will throw you off your schedule). My urine output is also affected by other factors such as how full my bowels are, and if I showered that day. Lastly, every night I take 2000mg of Vitamin D, 2000mg of Vitamin C, a Men's pill and 400MG of Septra.
I'd be interested in whether any of your doctors did anything like:
1. Discussed with you what you are facing in regard to your bowel and bladder;
2. Set you up on a bowel and bladder protocol;
3. Recommended any reading material, videos etc. on bowel and bladder problems;
4. Recommended any specialists who deal with or are trained in bowel and bladder problems.
My doctors did close to zero. It was my neurologist and not my urologist who pointed me towards DDAVP (desmopressin) to suppress urine production at night.
God bless you and your family, I felt like God guided me to your channel..... I now see I'm selfish even before the SURGERIES I was not walking the way I wanted to the way I used to but I was walking n after almost 2 years, I still have some issues with my legs(mostly my right leg) but I'm able to stand in the shower(about a min) but seeing as b4 I used a shower chair, anyway sorry for taking up your time, God bless n thank you for educating those who don't know(I get laughed n looked at n I'm trying to learn to deal with it, kinda tired of being depressed) AND PLEASE keep the videos coming.....🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽
Louraine George thank you for reaching out! I understand your struggle but try to remind yourself it could always be worse. I do that all the time and knowing I can do things that others cannot gives me strength. Stay strong!
Omg I'm so glad you've posted! Missed seeing ya! Happy New Year :)
Nice advice "Adam" I mean Brian. Your videos are very helpful. I am a functional Tetraplegia due to MS. I have the neuro bladder and bowel. Bowel has gotten worse for me and just trying to figure things out as I prepare to travel with a wheelchair for the first time ever. Thanks for all your videos :)
You are proving some serious medical information alot of people did not know unless your a nurse or doctor lol🎉.
god bless you dude you do really well for your self I been paralyzed for four years and im in a nursing home cause I have a titanium spine so I can't bend at all its really hard for me and I do want to go home im going keep trying Thankyou for the ideas alot of people wouldn't understand what we go thru every minute of the day
Yes... you are right.....seeing people fighting same stuff helps alot....am C6 complete....keep fighting...
Have you ever tried Speedicaths? Blue Cross/Blue Shield insurance covers 200 caths a month, and Speedicaths are very similar to your hydrophilic ones, except they are in a sterile saline solution that works as its own lubricant. You can even put the cath back into its package/solution after using it so you can recycle it later if you are worried about running out. Also, cath extender tubes are nice because then you can just pee into a toilet or the grass without carrying around a big old bottle.
Your a truly amazing person. I wish you well
Thank you for posting this
Thank you for this series, great post rehab info. I hope to get to the point where you are one day.
I admire your great positive and determination you have !
Here i am watching your video with a catheter for last 2 weeks and setting up my night bag Normally I self cath but things are getting worse BPH. UTIs when they get bad make me tell myself that next time i'll be even more careful about keeping everything clean. Your vid make me feel things are not soo bad after all :)
Thank you for being so open. It just feels like ur such a nice person, like I could ask you anything. Such a nice voice :)
Hi great video. I am c6/c7 complete post 20yrs. I have been doing the intermitent method for abt 11 yrs but started getting frequent UTI and bleeding. I had a foleys put in and never looked back. I asked myself why didnt I do this from the begining. I quess intermitent works for some but with regular cleaning and hygiene of my foleys and legbag, last had a UTI 1 year ago. and it really great when I am at work. piece of mind. I just sometimes notice a slight smell, thats when I change it. literature states indwelling catheters can cause cancer and other complications. But I am content and happy with it especially when driving long distances. thanks for the video.
Thank you for sharing this! I also Cath and as soon as you started talking about the feeling you get I was like yes! I know exactly what you're talking about! Weird how that made me so excited I know. Lol. I've never heard of anyone else that had this feeling of non feeling and it's cool to hear there is an actual medical term for it. I just found your channel a couple days ago and so far im loving it. Thank you for making the videos!
Very informative. TY.
I rely on my "spider sensation" a la Spiderman to know when i need to do cic.
How often be should one change the Nelatons catheter ?
Wow, you’re amazing! I’m able to walk, but can kind of relate, I’m 49, but since I was 20 I’ve been battling Crohn’s disease and colon cancer, and after 34 brutal operations I now have less than 5% of my G.I. tract left, and now have something called a Kock pouch (yep, pronounced cock!lol! It’s named after it’s inventor, Dr Kock). Essentially, they removed and stitched shut my rectum, they removed my entire large intestine and almost all of my small bowel. As for my pouch, it’s a bag of skin made from my small bowel stitched to my abdominal wall, with an opening where my small intestine sticks out aka, a stoma, that I must insert a catheter into at least 8 to 10 times a day to empty my bowels, so I have a slight understanding of how you feel, but you my friend are absolutely amazing! I struggle so much just with my one issue, I don’t know how you’ve adapted so well just such a huge obstacle. I’m sure people say to you what they say to me, how brave we are, or ask us how do we do it, when in reality it’s not like we have any choice, we either do it or explode, LOL! I also have to use a catheter to empty my bladder many many times a month because my interior pouch, when full, or when inflamed, presses up against my bladder, blocking the ureter, preventing me from peeing, so I have no choice but to use a catheter, only difference is I’m fully “able-bodied”, but, I am legally totally disabled, and live my life on long-term disability because living with almost no intestine makes it really hard to get any nutrients from your food. Essentially I can’t eat a damn thing except soups, very soft meet which I chew the hell out of, a lot of crushed up supplements, and gallons of boost (and absolutely no alcohol whatsoever, or coffee, both of which are diuretics, and I already lose gallons of fluid every single day, I actually have to drink between 5 to 6 L of fluid a day just to stay alive. But as for your mobility…Actually, let me rephrase that, I can walk and sit, so I have a slight advantage over you, but from what I’ve seen from your videos I would never call you disabled, you don’t let anything stand in your way, and I admire you so much, as I’m sure millions of other people do too, thanks so much for making these videos and showing all of us that we can do anything no matter what happens to us, God bless my friend!
PS - sometimes you just have to laugh at this, I’m sure you’ll agree that public restrooms are a nightmare most times, many times I have to use a urinary catheter and stool catheter (with only 5% of my bowel, my stool is basically just brown water) at the same time. Because I look “normal “,(I hate that term), anytime someone sees me using a handicap washroom I get yelled that, I get dirty looks, or I get the manager, or the police, called on me. A couple of months ago I was at a roadside rest stop on my way to Washington DC (I live in Toronto) to visit family, when this miserable old bugger saw me going into the handicap washroom, and started pounding on the door, calling me every name in the book, and threatening to call the police if I didn’t leave, so I went about my business, and yelled back “go ahead and call the cops, I dare you!”. And guess what? He did! LOL! Aweeeeee sweet revenge, The officer knocked on the door and asked me to unlock it, not knowing that I had both a urinary and a stomal catheter in me as I emptied my bladder and bowels at the same time. I tried yelling through the door to not come in until I was finished, but this old bastard started yelling at the cop to unlock the door anyways, so he did...... I am definitely not shy about being seen naked, after being a G.I. patient for the past 29 years, you lose all humility and don’t give a rats ass who sees your butt or your dick, but if you could’ve seen the looks on their faces, let’s just say I wish to God I had a camera, they looked like a couple of deer caught in the headlights of the car at night, they both turned beet red with embarrassment, and shut the door as fast as they could. I actually thought it was funny, started laughing. Once I was finished my business I walked out of the bathroom to see the cop yelling at this old man for wasting his time and for humiliating me, they both were so ashamed of what they did, but me being me, I told them if they wanted, I can get them in wallet size so they don’t do the same thing again to someone else. I just suddenly got a case of the giggles, I was almost in tears from laughing so hard, as the cop and this old man stood there staring at me like I had worms coming out of my ears. All I said to them was please be more considerate and do not assume anything in the future, to which they both agreed. The cop bought me lunch, and the old man look like he was about to cry. At first when I was still depressed, and desperately trying to cope with my new reality, I would’ve taken a lot of joy from seeing this little bugger suffer, but I grew past that phase a long time ago, and can now just laugh my ass off every time something like this happens, and it happens on a weekly basis I kid you not. This may sound insane but a part of me is a little envious of you, because people can see you’re obviously disabled, but when you have an invisible disability, you also have to face the nightmare of accusations and dirty looks, which makes your recovery twice as hard. With that however, you do grow thicker skin because of it, and can really gross people out anytime you want to! Lol!........ you’re talking to one of the very few people on this planet that can take a shit without taking off his pants, I wonder if that qualifies as a superpower?! LOL!😂😂😂😂😂😂😂
Thank for sharing knowledge. It very useful for my patients. ขอบคุณมากๆครับ
Vasacare works for me. I take one 10 mg everyday completely relaxes my bladder. When I cath I average around 350 cc's four to five times a day. You don't have to worry about any leakage because of this medication. It was given to me from a doctor at Washington University St Louis. I have been in a chair paraplegic, t9 going on 50 years this coming April 2023. Any questions you can let me know. Jay Williams..
Thanks I have learned a lot on what a paralyzed person goes threw every day Any accidents???outside the house u have to change ur pants
Cool! That’s what the vids are there for. Yes I have occasional accidents but typically wear a men’s pad in my underwear just in case I leak. I do keep an extra pair of pants in my car if I have to change when I’m out but it’s rare I have to do that. #2 accidents are also few and far between but it usually means a trip home to take a shower. Brings a new meaning to, “sh*t happens.” 😬
Thanks for uploading. Really useful for me.
thank u for all the videos
Great vidéo, im a c6/c7 incomplète slightly have sensation when the bladder is full when using the intermittent catheter the problem is sometimes i have to empty continuously meaning the bladder is not empty. I want to know how can you be sure the bladder is completely empty when using an intermittent catheter ?
I can go to 1 liter without leaking but like you said, it's not good at all. Usually I get between 400ml to 500ml. I'm glad to find an opened mind with your channel.
Can we have a private tchat ?
Thanks
Totally agree. Yes feel free to send me a private message on my Paralyzed Living FB page.👍🏼
God please tell me I'm not the only one that wishes to grab him up in a big ole hug.
Terri Cruz haha I’ll take a squeeze! 😊
M having same problem as urs..i can totally relate..glad i found any!!
Out of curiosity does it hurt to have to use a cath everyday?
Maybe for someone who can feel it. I don’t fit that criteria though, luckily. lol 😆
@@ParalyzedLiving that makes lots of sense. On the plus side at least you don’t have pain 😊
Hand washing and hand sanitizer...
2020: Hello...it's me...
What a great guy.
Thanks bro for the videos. I work in brain rehab. Its awesome hearing the information you have. Because you are living with a spinal cord injury.
I have a neurogenic bladder and need to catheter. . I have watched several videos concerning intermittent catheterizing. Still, none of the videos discuss the pain involved during and after the procedure. I am into my 11 years of neurogenic bladder problem and each time I insert the tube it hurts and even after. I have to take painkillers to get by the pain. Am I the only one suffering this pain?
Hi Brian Love your videos the way you inspire people, I am not paraylised but I have uti evey month I will have to start to cath I am female so its harder lol this qwas caused because of cancer surgery I hate UTI how are you going on with them
My catheters are already prefilled with natrium cloride, I use SpeediCath by coloplast. Really simple!
+Grillarkatten I think it's natrium cloride anyway.. haha
+Grillarkatten Is that a lubricant or is it for something else (the natrium chloride I mean)
fuzzybuddy Yes it is, works very well :)
+Grillarkatten Ok, Thanks!
is there a way to make medical pay for it?
THANK YOU FOR SHARING… JOE SRQ FL USA
thank you sooooooo much I am learning so much from you, my boyfriend is newly injured 12/30/15
+Anjanett Hunt Good! That's what these videos are here for. :)
I have been a para for 8 years and I used to straight cath but I found that I never got the sense that I was empty. I would keep it in until there was no more flow, but I could go through the hassle of getting back in bed and five minutes later I'd be wet and have to change sheets,etc. So now I have a suprapubic and at least stay relatively dry.
Very informative video.
I have a hard time cathing in my wheelchair! Can’t get the pants down far enough without help or get them back up!! Any suggestions please!!??
Does it hurt when you insert? How about when you pull it out
Very informative video. Do you still feel the sensation of peeing? Thanks
Thank you for your videos
My husband had a motorcycle accident on his way to work in September 2017. He suffered a brain injury on the left side. He's still not walking and just started talking two months ago.. Spinal injury and brain injury a similar in some ways.
Hey! Your videos have taught me so much. I'm a newbie paralysed 7 months . Wondering what the situation is when we go out drinking... Nightclubs etc.. Do we have to drain really often in nightclubs ? Because before I got injured I remember how often i needed the toilet after a drink.
Yea, when I go out I just have to cath more often. Sometimes I wear a foley catheter with a leg bag when I go out. This way I can just drain the bag when it's full and not worry about when I have to go. This is especially ideal when out at functions where a clean bathroom is hard to get to. (ie, concerts, festivals, etc)
i deal with this all the time thanks for the video i am on that med it works for me so well if i can ask how did you get your injury
Glad it works! I was in a motorcycle accident. Check out my video "how I got paralyzed" for more details.
thanks
Thank you so much for sharing all this information that can be somewhat uncomfortable to talk about :-) You are awesome for doing so. Love your motivation level and watching you get dressed was amazing- I watched that clock behind you and I think you did the whole thing in about 5 min!!! Amazing- wonder if condom cath would help at night time - to avoid interrupting sleep- having to transfer... Love your videos!!! God bless
its really helpfull and awesome....
thanks for sharing. great video.
Also check out the Magic 3 cath. It has a packet in side that you pop and it lubes the cath. I like it.
+Jonathan Rekash I have some of the Magic 3 and like that it has the lube pack and green slide so you don't have to touch the catheter. The downside is they take FOREVER to drain my bladder. It easily takes twice as long and as the Coloplast...nobody got time for that. lol I recently switched to the Coloplast Speedicath which is pre-lubed and still drains my bladder quickly. It's also a little more stiff than most catheters so you can insert it without having to touch the cath at all.
+Paralyzed Living That sounds really good. I'll have to see if they can send me a sample. They also said there are different thicknesses. I have a 14 french. I wonder if a 16 french would drain faster.
Need that bag exactly that one
I have developed an issue where I have to urinate way to often. My urologist ran tests that indicate my bladder has little muscle function. He says I am not fully emptying my bladder hence it refills faster. My beginning treatment is that I have to catheterize myself three times daily, morning noon and night after urinating. The idea is to fully empty my bladder and provide some relief from going to the bathroom. I am now going about every hour. At night it is like 2 -3 or 4 hours between trips. I have full bladder control, I do not pee on myself and am able to "hold" it for any amount of time. I am really afraid of this, the catheterization. Does it hurt? Thoughts on my condition. This developed after spinal surgery where L 3 4 and 5 were fused. Of course the spinal doc says he had nothing to do with it.
Can we use sanatizer to clean our hands
Have you considered or tried catheters that comes in the water already, or with a small pouch of water that you just squeeze to release the water to activate the surface of the catheter? I use the latter version myself for when I need to cath. I’m not paralyzed but have a genetic connective tissue disorder and suspect I may have tethered cord as a complication from it as I have some loss of sensation in my legs and bladder. Sometimes I only go twice in a day, sometimes I have to go all the time, sometimes my bladder doesn’t empty properly and sometimes I just can not pee at all on my own, so catheters are a great invention! The catheters I use are called LoFric Sense but I think they may only be available for women, tried Speedicath compact too but for some reason they make me bleed a bit even though the same size of LoFric doesn’t 🤔
Great info Bryan. I've high functioning c7 incomplete but recently having some bladder issues where without warning, I start to pee. This isn't with a full full bladder but at anytime even after peeing recently. I'm going to ask about some of the meds and maybe go to more catheterization per day than 2. I order some of the self lubing hydrophilic. Thanks for the ideas.
+Todd Register Ask your urologist if you're having bladder spasms. You need to avoid those because it can raise your Blood Pressure, and they will come on very quickly with no warning.
I usually only get them when my bladder is in trouble, like a bladder infection. Get a sample of this leakage to your urologist and talk to him/her about this.
Thanks, I will test the urine. It did calm down...but that feeling lasted a week.
Hello there, my husband is a T4 injury and he usually times his bathroom routine.. And I know exactly what you mean when you say sensation or urge .. but I was wondering do you have a schedule time to go? I hope I didn't mess up asking this simple question lol..
Mine, I feel the need to urinate but I couldn’t control it as well as my bowel. I am desperately now. I feel frustrated.
Hello brother even I wanted to use that intermittent catheter but my bladder leakes automatically once the bladder gets filled up . I can feel the sensation once bladder gets filled up. So do you any suggestion to stop leakage...?
Did you have issues with leakage soon after your injury, or was it something that developed over time? Could it be something that develops as a result of waiting to long and having large volumes?
Okay kind of off topic but i have some depersonalization issues when im anxious, and i completely understant what you mean about feeling a bit sick when your bladder is full because i wont feel at all when i have to go to the bathroom and when its been more than 12h ill start to get sick and panick and then ill be like "maybe i have to go to the bathroom". And im always right.
Are there any long term side effects of ditropan ?
Hi , just wondering if you have ever experienced resistance when inserting the catheter and any blood clot to the tip of catheter after pulling it out. if so any tip pls ? thanks
Yes I have had resistance but no blood that I can recall. Usually it helps to remove the catheter and change your seating position. This could help correct the angle at which the catheter is inserted.
Can I ask if anyone ever just sits on the toilet and pushes on their bladder to empty it? My daughter has TM and sometimes we can just barely touch her bladder and it will empty some that way? or is this not recommended?
Hi,
How much do you drink/pass daily? (and what do you usually drink/avoid?). Do you drink the same amounts at specific times during the day?
+DJreeser I typically drink a good amount of water. Maybe 8 glasses a day. I don't really avoid anything or have a special schedule. I like beer and coffee...both make me pee more so I have to be ready for that.
Just got back from the urologist. And I mentioned that "sixth sense", (autonomic dysreflexia). I think it's time for Botox. I'm a T4 complete from a motorcycle accident, so I'm really starting to relate. Good to hear from someone who knows! 😉
+Butch Vegas That feeling can be helpful but if you are having issues with leaking or not retaining more than 300CCs i'd say botox is a good option.
+Paralyzed Living totally agree.
I'm t4 too I'm 13 I fell from 4 th floor balcony
Hi Brian I find it hard I can’t hold my bladder or my bowels L5S1 and 6
Do you feel pain i have ms and they have warning and prepping my for these situations that are coming. Haven't lost full control yet but I do notice the progression and accidents with no warnings.
Terry Davenport no I do not have any sensation down there but my father in law who is fully able bodied had to use them do to prostate issues. He said it didn’t hurt. I wear a pad in my underwear just for added insurance in case I leak a little. Give that a shot of you haven’t already.
Terry Davenport no I do not have any sensation down there but my father in law who is fully able bodied had to use them do to prostate issues. He said it didn’t hurt. I wear a pad in my underwear just for added insurance in case I leak a little. Give that a shot of you haven’t already.
very honest mature video
I was born with spinal bifida and now wear a catheter all the time but before when i was self cathing i was alsp put on the med for my bladder called vesicare and it worked so much better for me then oxybutnin and i only took at once a day before bedtime! Maybe u should try it and they also have oxybutinin in patch form for u instead of pills 3 times a day.
Hi I faced L1 fracture for last 6 month before but still am facing urinary pblm ( urine not came in stand mode ) can u suggest how long take a recovery
How do you know when to go number 2 can you feel when you need to go do you just go every so many hours I guess it's tricky when you are ready to goto the bathroom it must be hard being like that
No, I can't feel when I have to go but I can feel a sensation when I am going. I have trained my body to go every other morning and it works well.
I know this might sound brutal, but I use a bit of aloe hand sanitizer on my urethra and a dry cath.
Do you have any feeling from the waste down? How do you know when you have to do a bowl movement?
Am a paraplegic from neck down,C6 to be exact.....recently had epidural stimulation......i feel a weird sensation including headache , sweating & pilo erection following rectal and bladder fullness ...am learning to differentiate b/n the two....am not from states...
What brand do you have I have Hollister
+dylan o boyle I use Coloplast. May switch it up though.
I also sleep on a hospital pad and I have a protection thing that I zip my mattress up in it, so I have double protection
My daughter has neurogenic bladder, I have to use a catheter every 4hours she was born with spinal bifida,she can move her legs but she can't be standing up for more than 10minutes
have you tried Speedicath? it come pre-lubed already. so out of the packet it's lubed
+Neil van der Merwe I'm going to try to get a few samples next time I get a cath delivery to try them out. I know I used them once before and they were really stiff which I didn't like but they have a compact version that I may give a shot.
+Paralyzed Living hey I want to be friend with you ☺☺. I am saffroni from india. awaiting your mail.mine is saffronitele@gmail.com
I did the bladder botox study to see if effects of AD were lessened. It allowed me about 50ml gain no change to AD. I can try again but last i checked it would cost me ~$500 ummm no thanks lol. Will need to check again to see if medical is covering it in BC, Canada yet.
Bless you
I have urinary retention issues and mine you just crack it in the package and you shake it and it lubricates it.
How successful have you been at avoiding UTIs?
I still get a few a year. It usually happens when I've been careless though. Like if I drink and let my bladder get too full or if I don't take my Methenamine and D-Mannose regularly.
How often do you have to cath if you’ve had a beer or two. I’ve been having difficulty with this
owereb When I drink it’s usually every hour. It definitely makes me go a lot more often.
Paralyzed Living and whenever you had your last drink, how many times of cathing every hour do you go back to your normal routine?
owereb Usually after I quit drinking and pee around that hour interval i usually have to cath less since my body dumped a bunch of fluid. Alcohol dehydrates you which is why you pee a lot when drinking and then afterward you don’t pee as much. It’s not an exact science and it can vary greatly on how much fluid I drank earlier in the day, how many beers, etc. I’ve gotten used to listening to my body but it isn’t as easy with a buzz. On many occasions I’ve had to pee way too much and the next day my bladder is irritated so I have to go more often. Like maybe every 200ccs. Sorry I wish there was an exact answer but the body isn’t always predictable. I wear a pad in my underwear most days just for peace of mind.
U have a Instagram account?
I am quadriplegic c3 to c7 from past 15 years but i recovered a lot i do walking with supports , transfer from wheelchair to bed n same. I want to know any solution to increase volume of bladder my starts leaking after 200cc. please help me with any suggestions or advice.. appreciate
Am C6 complete injury....sacral stimulation( interstim ii) helped me alot....it increased mine from 20ml to 320 ml......i had severe neurogenic overactive bladder....but your urologist may suggest medication like oxybutinin or botox instead....good luck
Hi I have some questions how can contact you... I have a T12 spinal cord injury
Maryte vega hi
i also have autonomic dysreflexia too
How do you control the leakages?
I take oxybutynin and get bladder botox every three months which helps decrease leakage.
U still have to do Botox every 3 months and take oxybuton 2 a day?