No one talks or gives info on these kind of things. Real life! Figuring out how to solve new challenges on my own has been difficult. Thank you for making videos and being kind enough to talk about things most wouldn't.
I don't have a spinal cord injury. But I am dating someone who does. I looked up videos about spinal cord injuries in generally because I was curious as to how he functions. These videos are real and detailed. It makes it clear as to how day to day life is. Thank you for providing great videos.
Kelsey Kneese my fiance has been paralyzed for nine years now make sure you take time for yourself as well if you are his primary caregiver coming from someone whom is 24\7 it can be a strain on your relationship but I just wish my man was more independent like the man on the video an more able good luck to you an your man prayers an god bless
You made a choice to be his care giver.........you don't have to be. What level is your guy's sci level? I'm thinking he must be a quad. I am a female combo para/quad and am fully independent. So, unless your guy can't use his arms/hands........then consider sending him back for rehab work at a proper SCI rehab center. BTW I was 24 at injury and am now 61.5. I went back to rehab after my ex walked out when I was 27 and learned to care for myself. Good luck and remember you can leave also if he won't try.
+Paralyzed Living same with me, after my Moto X accident and while I was laying in rehab scared as hell for what lay ahead your video gave me answers to some many questions I had. Big thumbs up!
Its helping me so much right now. So happy I came across his videos I had two spine surgeries due to a fatty tumor on my spine I removed it and been wearing diapers. Being incontinent is so hard to deal with at first
MINAH THE CHAMPION I was in a car crash and my legs got trapped then it stopped my nerves when I got to the hospital they told me I was paralysed its ridiculous it's really hard for me to get dressed as I'm only young everyone looks and laughs at me in school but I'm ok now I'm in a special school thank you for listening to my story of how I got paralysed
You are truly amazing!!! My 77year old mother just had a severe stroke---we sat with her today and watched most of your videos and you were such an inspiration to her. Thank you for passing on your knowledge...and your HOPE. You have no idea how much this means to people. GOD BLESS YOU!!
As a PT Asst. who has done a lot of SCI rehab, I love your videos! They are among the best out there. Thank you so much for your candor, and keep up the great work!
You are just incredible. You're so easy to talk to, listen to. I find myself agreeing with you and then listening to other nuggets of information you share with us. You seem so comfortable describing what and how you do things in order to make it work. Huge respect for you! Thank you for sharing all this information with us. Your comfort level affects my comfort level and it all just works. Thank you!
Your frank discussions are a God send to those disabled and their caretakers. You allow those that are afraid or ashamed to get the answers they may not know to ask. Thank you. You are my hero.
This is an eye opener. I didn’t realize this would require such a procedure. Thank you for producing this video as it will surely help others who find themselves paralyzed.
Thank you for talking about these intimate topics! I'm impressed with how you present everything and you are very honest about the reality of it. Thank you!
I love that you are so open about everything. I work in health care and there are so many questions I have for people that I would never ask. And this gives me such a great insight on the lives of my patients.
This is inspirational man I’ve been paralyzed since October 2018 from being shot gives times and am paralyzed from the waist down but your videos have helped thanks a lot 🙏🏿
You are so brave for providing such raw, much needed information. Those “uncomfortable” subjects are real life and my heart goes out to you for sharing your story. You are a true inspiration...
I have the utmost respect for anyone dealing with these issues. I know I wouldn’t have the strength and willpower to do what you do. I wish you the best bro.
Brian, thank you so much! I truly appreciate you taking the time to discuss, demonstrate, and walk us all through the conundrum. I have been dealing with these issues for 7-8 years now with no real, detained follow-through guidance. You nailed it and I thank you for your candor and "getting-it-done" attitude. I was inspired and refocused on good management OPS. May God continue to bless and shore you up, daily!
I have cauda equina due to injuries to L4/5 vertebrae. I am 73 and have bowel and bladder problems.I wear special pads in case of accidents.I am so sorry to see a young person with the same problems as me,I thank him for sharing his story in order to help the rest of us.
My cousin just became paralyzed after a hit and run car accident. He has had so many problems trying to deal with life after and specifically these kind of daily things. He had to be rushed to the ER again for a urinary infection. I didn’t know it was all so complicated. Very informative video!
Your video is very informative. Thanks. I work with a lot of paralyzed patients and I feel empowered by the courage and strength that you have and others challenged with this condition. I have met some of the most beautiful people in my field of work and they inspire me. Thanks for your videos!!!
Hi, awesome videos, I saw in another video you mentioned you have gotten your timing better now. I would really appreciate an updated video on bowel and bladder management.
I was watching this just to see the toilet transfer (I have MS) and was amazed at how well you did this video. So informative and while it's not something people wanna talk about, it was very helpful. Thanks for sharing your method!
Hey I just found you didn't realize you've been doing videos for so long. I have been a paraplegic for 49 years now seems like a long time I'm 61 years old. My injury is T9 and it seems like over time things do change and one thing works for you 10 years ago may not work now. Keep up the videos I appreciate them and maybe one day I'll share my experiences with you.
Just found your website. I damaged my spinal cord and have all these problems and its great to see and hear this as so many of use have this and its great that you actually talk about poop. The only person I can talk to is my bowel and bladder nurse and it’s so good to chat about the problems to her as no one realises what we have to do. So a big thank you x 😅
Thank you for going through these routines in a detailed and honest way. It's important for loved ones to know what an SCI patient goes through. You're amazing, and you help a lot of people!
You are a wonderful human being to come forward and talk about things people like to keep in the dark, and you bring it to the light. It is real life, and can happen to anyone! Thank you so much for your bravery!!! I
I use a bum gun (that's what it's called in Thailand) a water hose with a trigger (like what you see on a kitchen sink). Well just hold it up against your bottom a few seconds of water to fill the cavity, then it all comes out easily. Rinse a few more times, to be sure it all came out. Then wait 15 minutes to see if all the water leaked out, then squeeze your nose (then blow) to force any water if left in there
Hey just watched your video and of course we all do things different. I'm a T9 paraplegic going on 50 years. My bow treatment is a lot different I'll go sometimes 3 or 4 days without having a bowel movement. Once I get that urge, the feeling to go I will do what we call rectal stretch. That will trigger a bowel movement for me. I also try to eat a lot of fiber with metamucil added to my diet. Tens to work better for me, gives me a lot more freedom where I'm not tied down to an actual bowl care day. This makes it possible for me to be able to go out, go here go there without being tied down to a toilet every other day. Any questions you can always ask. Jay Williams..
Yes, Jay W. There's also another water soluble fiber like metamucil but has no flavor so you can mix it with any flavors you want. Makes good bulk🙂for your muscles to push along.
Great educational videos. Transanal irrigation is also a very effective way of bowel management, takes about an hour. Instead of repeated digital stimulation and chemicals, it's just warm water irrigation. Abdominal massage instead. A bit easier for some.
Thank you for the information Bryan I don't have a spinal cord injury but I do have CP a birth defect and I am also in a wheelchair because of my disability I live alone I have my own apartment and I've been living on my own for several years now overtime specially being by yourself and living by yourself your disability does get easier easy ways and learn how to deal with your disability does or you being disabled you just have to learn how to make it work for you that's what I be trying to tell my grandmother because when you have a disability is permanent and it's not going to go away but you learn how to deal with it overtime and I wanted to get my own apartment because I I got tired of living with people in a family I wanted to learn how to live on my own and learn how to do things by myself and learn how to take care of myself better when you living with family they want to do everything for you and I don't like that because I am a very independent woman and I don't like everybody doing things for me all the time 24/7 because I'm not a mama's girl and I'm not I'm a daddy's girl but I'm also independent and I like to do for myself and be by myself but soon I won't be by myself I'll have my baby girl and I also have to learn how to take care of my soul so I can learn how to take care of her because being a mom is my responsibility is nobody else's responsibility to take care of my child or my children that I decide to have in the future if I decide to have anymorejust because we have disabilities don't mean that we're not human we deserve to have a regular normal life like everybody else and some people they treat us just because we have disabilities and challenges of that nature they think we unhuman and it's not fair and it's not right I'm willing to do whatever I have to do to be a good person so I can be a good mother to my baby girl because at the end of the day that's all I have I don't have anything else I got my family but you know I have to I have to have my own life too if my family want to be a part of my life than more than welcome to but I don't have time to deal with the nonsense because I have someone else that I have to think about now my baby girl when she comes into this world and I don't have time for nonsense and drama and I don't want that around my daughter.
Thank for sharing this intimate experiences. We know that is not easy, but this help us to understand better the difficulties that that people with limited movements have with day to day activities. Thanks!
Your video has helped a lot of people. I even learned a couple of new aspects myself. My previous occupation I was in an architectural firm creating construction drawings. The part I always got the most enjoyment from was incorporating the little extras over and above the basic code for assisting the disabled while they were using public facilities. Currently I have the ability to design a home which is only a block from a university to incorporate some of these items. I aim to do a wet room bathroom so it doesn't matter if the water is contained. It allows for an open plan. *I was wondering if a hand held wand shower next to the toilet could be a useful accessory for toileting? A recessed shelf for storing washable cloths in addition to toilet paper?* While I am aware of bidet equipped toilet seats I can imagine so many aspects of them that could go wrong if one was not perfectly seated and of the correct body shape. They seem to be extremely over priced; possibly they are imported from Japan.
Electronic bidet. Imported from Hong Kong, into the Australian Capital Territory, where we have been living for the last 20 years. Extremely happy with it. Assists with urinary and bowel problems. Before, during and after use for medical purposes. The hot air blower also dries, after washing. Very reliable, quiet and trustworthy. Not at all expensive. Just a few hundred dollars, easily fitted by the local handyman.
A nurse once told me to rub in small circular circles (gently) from right to left and from the bottom of the right side to top and back down on the other side (like an upside down 'u') to get things moving.
Thanks again for making these videos. Not many are brave enough to talk openly about these topics. Even after 35 years, I still cringe a bit when someone asks "How do you..." . I can handle the sex and pee questions, but this one is a bit of a "Do you really want to know?" subject to me. I want people to have the knowledge, but it's always been our culture's 'hands-off' subject, and it's just a bit embarrassing to me, depending on who asks. Often, I'll just take the magician's way out "How do you do that?" - "Very well, in my opinion." You handle these topics Very good and openly. I can now refer people to your videos when they want to know how things work. :D Take care- Tony
I been thinking about doing a video on how to get in and out of a vehicle. I'm yet to see a video how I get in and out. All the videos I see seems more difficult than how put my chair in and out. I drive a 4 runner.
+paralyzed living can you give us an update on how the paint protector is working on your chair compared to your chair that didn't have it on. I have a vocational school, auto collision class paint my chair for me and it got scratched up so bad, and when I get my new chair I want them to paint it again then put the paint protector on it to keep it looking nice. I just want to know if you think it was worth doing.
I ordered some of those mini enemas today. I a pretty high functioning c7 incomplete. I've been using the glycerin suppositories and digital stim with limited success. A lot of the time, I end up going to work and other activities with the feeling that I still need to go or haven't finished. It's very debilitating. I tend to sit most of the time and avoid going far from a private bathroom. It makes me a prisoner in my home on the weekend not wanting to leave the house. So my plan is to use those every other day or every third day to see if it will help complete the process. I'm going to allow more time on those days and will take extra clothes to work just in case. And suggestions?
Hi Brian, my injury is t7-8 and I use a suppository too. Instead of putting in the suppository after the toilet transfer I usually insert it into my butt 10-15 mins before I transfer so I don't have to keep my finger inside the whole time.
I do the same thing but a 7pm. I just came across those enemas. You wouldn't think the difference between an enema and a suppository would be so different but it makes a world of difference. I also spend about an hour in the bathroom. My biggest fear is that I will have a problem during the day or at night.
what if you have to crap and you can feel everything but cant get it out? How do you deal with that agony and horribleness? Sensory and pain r still there but movement isnt, thats horrible
If you don't mind me asking, how did you become paralyzed? I am a volunteer here at the Audie Murphy VAMC. I help out with our SCIC ward. As a retired soldier and disabled veteran myself, I spend time with our hospitalized vets.
So when you have to dig or stim you don't risk injuring yourself? or causing irritation? I wonder why there are not small implates like pacemakers were you can hit a remote or whatever to cause the bowel muscle to cramp and move the bowel down and out?
Thanks for useful info! Where did you purchase the padded. elongated toilet seat? I'm searching for something better than ones at the local hardward store with too soft of foam that immediately bottoms out.
Bob Mikesic I’ve been buying mine from Home Depot. I typically replace it once a year or so. I had bad luck with one I bought from Walmart so avoid cheap padded seats.
My brother is a sci t9. He only takes 10 minutes to poop using a rectal enema for 1 yr already and learned to push?before it takes him more than one hour or more!.now he customized a enema tank made of stainless. He said it changed his life not anymore waiting for poop to come out. Sorry for my english
+Neil van der Merwe For Me, (sci T-7) it's always been difficult to know "for certain" if I'm 100% finished. It's a matter of faith, especially now that I'm over 50 and been paralyzed most of my life. When I was newly paralyzed, I did a digital stim every night before sleep, and was able to empty my lower bowel pretty good every night. After about 5 years, it slowed and I had to do it every 2 nights. By the early 1990's it was every 3 nights. Then I got married and had to change it to mornings and my body changed to every 4th day, and I have to use a suppository, which can cause accidents later in the day/night. Just something I have to deal with as it comes. I think my body has finally stopped slowing, as I've been on the 4 day schedule for over 10 years now. Just remember, everyone is different and what worked for me may not work for anyone else. But I have heard similar stories from other people around my area.
+Paralyzed Living i hope my brothers style can help a lot of sci. Its very cheap and easy to buy enemas and he never had UTI since his accident 2001. He started his enema because they found a tumor in his intestines because he poop once a week. I remember his poop is like brick size thats why he damaged his hole now that looks like flower.he doesnt want his tumor to be operated or removed so he doctored himself. My brother is a type of person who is not afraid to try anything just not to go to the doctors..his motto s IF I DIE ATLEAST I DIE TRYING NOT WASTE MY MONEY PAYING PROFITABLE DOCTORS. But believe me his tumor is gone now.he just put baking soda or sometimes tea in his enema water,we dont know if those ingredients help or just a miracle. He has afriend sci t10 been using sophository for 8yrs he said the tube inside the hole sorry i dont know what its called ,was irritated the doctor sudden decision is close the hole and put a bag at his side belly to poop sorry i dont know what
+Carmela Guanzon continuation 😊 sorry i dsome say the cause is being dependent on the sophository maybe our sophository here in the philippines is not as good you have in america.. We all thinks that my brother using the enema made him healthy. We had him gemeral checked in a lab all is perfect even his high glucose or sugar is now normal without taking any medicines. My brother also hates medicines bec it will destroy his kidneys he said!!! And do a dialysis in a wheelchair is very hard. Sometimes my brothers imaginations is going too far. Even said he can poop everyday since he practice chewing his food as many as can be,not like before 6 chews only and swallow i dont know if that really helps.and he sleeps on his left side and his bed inclined 8inches high.. Now he poops everyday with that blue thing girdle or sometimes those fedex back protection wrapped very streched in body and makes a very strong fake cough or fake vomit after filling hole with water enema
you can't use a enema over a extended period of time , it will harm your digestive tract . digital stimulation can be very depressing , especially if you have bowel in continence , or bladder incontinence , I'm a paraplegic result of a 1981 spinal cord tumor .
when i became a paraplegic after an accident i wasn't scared about never walking again or anything like that. people can pretty much have a normal life and even a good one in a wheelchair. sure there all A LOT, So Many challenges but still it can become a great life. i was scared about my bowel and Bladder challenges. that's what scared me. not being able to control that. i went through a bowel management program and it has help A LOT but still having to do so much just to go to the bathroom is Hard!!! but i got the hang of it. i have control back.
I'm a C5 incomplete what i do is just wait(or gorge my self in food) until it's full and it automatically goes plus tugging slightly on my catheter helps trigger the bowel movement.
+Jeffer DG Same. Sometimes I take a shot of a medicine which kinda makes me less hard in my stomach. Good to hear that someone is doing the same :L (I'm around a T5-T6)
Hi good night, my son got injured early this year, his t7-9 is damage, he is paralyzed from the waist down we r is coping, going to therapy. It is something new to us, I would like to ask u some questions, could we talk, not on this platform, could u talk me privately I would be waiting for an answer.
Oh ok. I thought it said $75 for a two month supply. My fault. Now I'm actually trying to pass it through insurance because I explained the medical necessity. I'll comment again once I get an answer to let everyone know if it works or not.
Yeah, I have Health Alliance Connect through medicaid. They already did a preauth but now they want clinicals that say I'm paraplegic so it's looking good.
i myself used to do a similar routine (for 25+ years) then changed. I try to eat better, lots of berries for example, now i check 1 or 2 times/day. Depending on how i feel, usually in the mornings I can tell from AD indicators, like blotchy flush legs for example, I now have a routine that takes up less than 5 mins/day, try to baredown as much as possible as well. Found that you do not need to empty your entire bowel, just lower. "Listen" pay attention & you will get to know the triggers if its AD or such. everyone is different of course but for me it didnt take anytime to get used to the new routine & its made a huge difference in my life. good luck all. dont hesistate to ask peers.
I typed my comment for about an hour but I dont have the courage to post it publicly. I really like to learn more things about how to do things after a SCI. I wish you could talk more about your bowel management and diet on your next videos.
+James M Beilfuss II I have done both a morning and evening routine and found the evening routine was really inconvenient if I wanted to be out doing things on the weekend. I prefer to get it out of the way first thing in the day so I don't have to mess with it later.
Hi, you were trained for an evening program because it fit the rehab centers time frame ETC, for example. I attended one of the best facilities in the nation and it was a disaster. I later found out my paper read I was depending on charity, this is why, I’m sorry I can not finish story, God Bless you and yours. Great channel we all need a support group, this is great. I have aloof questions and have learned a lot along the way. UTI’s biggest problem.
I have nerve damage of my colon and Pacific pacifically in my rectum basically when I push nothing really happens. I'm having a lot of problemswhat do you mean exactly when you say you use your finger to push are you talking about when you place your hand on the kind of in the backside of the rectum and push down ?
What happens if you don’t have finger/hand coordination? can you still do this totally independently with or without the hand movements? Will using the laxative cause any damage to the bowels.? Sorry I have so many question.
Thank you for such a informative video you sir a such an impersonation to others who have spinal cord injuries and for other people who have to help themselves go to the restroom for other health reasons. I will pass your video on to others who need this information. God Bless You!
Love your confidence, I know I am very insecure about this kinda stuff so it really encourages me. Thanks! Also idk if you have heard of it but there is a thing called the ACE program which makes it a lot quicker (about 30 min every other day) and rarely requires manual stimming.
hi.. wish I saw ur videos months ago... this is helpful as I'm am new to being paralyzed(7mths now), also from the waist down (car accident). and like u like no feeling either but I have a question..being that I deal with chronic pain I have to take pills and patch to help (I'm never out of pain) but the medication has also slowed my bowels and hardened it.. what are ur suggestions to try to get it moving? oral (colace) laxative doesn't work.. so it's a manual thing in order for me to go.. would appreciate if you have some advice to this.. I'm afraid that I'm going to have to have surgery to get it moved because it doesn't come out unless someone moves it,it's as bad as I feel it thru my stomach in the colon..help if u can.. thanks much
precious maynard many of my friends who also have SCI take Macrogol to make the bowels " wet " and it really helped them, for the pain i have the same as what you have I'm taking those pills it reduced my pain not sure but you give it a try : Novamin - Amitriptylin -Pregabalin- Oxcarbazepin tell your doctor and another note i was taking morphine it makes depression and slow in every thing mentally and physically with time i get toxic so instead of relief pain it was making pain i stopped taking it but know when i have strong pain i take it. hope you get better
precious maynard many of my friends who also have SCI take Macrogol to make the bowels " wet " and it really helped them, for the pain i have the same as what you have I'm taking those pills it reduced my pain not sure but you give it a try : Novamin - Amitriptylin -Pregabalin- Oxcarbazepin tell your doctor and another note i was taking morphine it makes depression and slow in every thing mentally and physically with time i get toxic so instead of relief pain it was making pain i stopped taking it but know when i have strong pain i take it. hope you get better
I don't have an immediate solution but I know I've had the same side effects with pain killers. First step is to drink PLENTY of water since the bowel needs all it can get. Stool softeners will also be important. At times I was extremely constipated I used Glycerin suppositories which helped. I hope you can find a solution!
Please guys don't take medication for everything. Try magnesium citrate 400 mg start on 200 then move your way up. Eat lots flax seed, beets, organic kefir, real sourdough bread if you can get or bake your self.Fermented bread is better because it's predigested. Fuck flour, pasta all that GMO shit and try natural way if dealing with this issue... medication s are fucking toxic and make you worst in the long run. Don't treat you digestive system like a garbage and it will love you back. I know you might be paralyzed and digest harder because cant move and everything is slow and backing up, but please that's why it's even more important to eat right and healthy and not depend on drugs...there is a natural way of fixing that... health= wealth 😉
Thamk you so much for these videos I wish I found them before I was six months out because now at six months I think I’m going crazy but your videos do you have a lot better than their corporate videos that are just confusing thank you
Actually with the transfer you doing to the toilet it’s unbelievable I used to fall once a week I’m gonna try this it looks so much easier than hopping over that damn wheel!!!
+Greg Lyman That can be tricky. I've seen a device that goes under your armpits to help lift you up. I do my bowel program in the morning before I put pants or underwear on.
You are a treasure, sir. It takes courage and strength to place yourself in the hands of total strangers. May Jehovah God give you the strength to continue moving forward. 😉
No one talks or gives info on these kind of things. Real life! Figuring out how to solve new challenges on my own has been difficult. Thank you for making videos and being kind enough to talk about things most wouldn't.
this man is amazing! some lady is very very lucky!
Christine McMillan just do it all in the tub f it.... It's Much easier
One shot and u have water to wash it down that's what I'm doing
I don't have a spinal cord injury. But I am dating someone who does. I looked up videos about spinal cord injuries in generally because I was curious as to how he functions. These videos are real and detailed. It makes it clear as to how day to day life is. Thank you for providing great videos.
Kelsey Kneese my fiance has been paralyzed for nine years now make sure you take time for yourself as well if you are his primary caregiver coming from someone whom is 24\7 it can be a strain on your relationship but I just wish my man was more independent like the man on the video an more able good luck to you an your man prayers an god bless
I am T10 injured present
You made a choice to be his care giver.........you don't have to be. What level is your guy's sci level? I'm thinking he must be a quad. I am a female combo para/quad and am fully independent. So, unless your guy can't use his arms/hands........then consider sending him back for rehab work at a proper SCI rehab center. BTW I was 24 at injury and am now 61.5. I went back to rehab after my ex walked out when I was 27 and learned to care for myself. Good luck and remember you can leave also if he won't try.
this guy helped me years ago deal with being paralyzed....l salute you Sir!
+MrHalmik4 Thanks for the feedback!!
+Paralyzed Living same with me, after my Moto X accident and while I was laying in rehab scared as hell for what lay ahead your video gave me answers to some many questions I had. Big thumbs up!
Its helping me so much right now.
So happy I came across his videos
I had two spine surgeries due to a fatty tumor on my spine I removed it and been wearing diapers.
Being incontinent is so hard to deal with at first
@@ParalyzedLiving Hi Brian, you are a true inspiration and a warrior. Kind regards, from, PaulLaw.
I am not paralyzed and I have watched all your videos out of curiosity lol... good job very informative
You should be thankful. SCI is a serious (underrated) trauma.
MINAH THE CHAMPION same here
MINAH THE CHAMPION
hi, do you have a specialisem in this subject?
MINAH THE CHAMPION I was in a car crash and my legs got trapped then it stopped my nerves when I got to the hospital they told me I was paralysed its ridiculous it's really hard for me to get dressed as I'm only young everyone looks and laughs at me in school but I'm ok now I'm in a special school thank you for listening to my story of how I got paralysed
Just to watch RUclips I’m proud of you, stay strong and stay smiling my friend
The little things you take for granted. What an inspiration.
You are truly amazing!!! My 77year old mother just had a severe stroke---we sat with her today and watched most of your videos and you were such an inspiration to her. Thank you for passing on your knowledge...and your HOPE. You have no idea how much this means to people. GOD BLESS YOU!!
Super helpful. Thanks for not being afraid to talk about the more personal stuff.
He is an absolute jewel in how he deals with his life. A lesson for all of us
You are a true inspiration and warrior.
As a PT Asst. who has done a lot of SCI rehab, I love your videos! They are among the best out there. Thank you so much for your candor, and keep up the great work!
You are just incredible. You're so easy to talk to, listen to. I find myself agreeing with you and then listening to other nuggets of information you share with us. You seem so comfortable describing what and how you do things in order to make it work. Huge respect for you! Thank you for sharing all this information with us. Your comfort level affects my comfort level and it all just works. Thank you!
Thank you for such a much needed video! This stuff isn't easy to talk about.
Your frank discussions are a God send to those disabled and their caretakers. You allow those that are afraid or ashamed to get the answers they may not know to ask. Thank you. You are my hero.
wow, I didn't know that it was that difficult to just go to the bathroom when you're paralyzed. I learned a lot. Thank you.
This is an eye opener. I didn’t realize this would require such a procedure. Thank you for producing this video as it will surely help others who find themselves paralyzed.
Thank you for talking about these intimate topics! I'm impressed with how you present everything and you are very honest about the reality of it. Thank you!
Amazing video. It's nice to read other people's comments on how your videos have helped them. Good job man!
I love that you are so open about everything. I work in health care and there are so many questions I have for people that I would never ask. And this gives me such a great insight on the lives of my patients.
This is inspirational man I’ve been paralyzed since October 2018 from being shot gives times and am paralyzed from the waist down but your videos have helped thanks a lot 🙏🏿
You are so brave for providing such raw, much needed information. Those “uncomfortable” subjects are real life and my heart goes out to you for sharing your story. You are a true inspiration...
It’s so great that you are being so open about subjects that most people don’t want to talk about. Thank you for your honesty.
I have the utmost respect for anyone dealing with these issues. I know I wouldn’t have the strength and willpower to do what you do. I wish you the best bro.
Thank you for your video. No one wants to cover the bowel program, but you did a great job!
Brian, thank you so much! I truly appreciate you taking the time to discuss, demonstrate, and walk us all through the conundrum. I have been dealing with these issues for 7-8 years now with no real, detained follow-through guidance. You nailed it and I thank you for your candor and "getting-it-done" attitude. I was inspired and refocused on good management OPS. May God continue to bless and shore you up, daily!
NvrGiveIn you as well!! Thank you!! 😊👍🏼
I have cauda equina due to injuries to L4/5 vertebrae. I am 73 and have bowel and bladder problems.I wear special pads in case of accidents.I am so sorry to see a young person with the same problems as me,I thank him for sharing his story in order to help the rest of us.
You don't hold back. Thanks for your honesty. No need to sugarcoat things when dealing with reality.
What an amazing man, such grace and positive thinking to get through your life, Your an inspiration to all. What a Man....
Thanks for being so up front. Most people are uncomfortable about talking about this. Love you are able to discuss it truthfully.
Yes I’m not afraid to share if it helps people understand the process. Thanks!!
Amazing leader for his life and advice for others...you are powerful and a true lightpost for others.
My cousin just became paralyzed after a hit and run car accident. He has had so many problems trying to deal with life after and specifically these kind of daily things. He had to be rushed to the ER again for a urinary infection. I didn’t know it was all so complicated. Very informative video!
Hope all is well 🙏
Your video is very informative. Thanks. I work with a lot of paralyzed patients and I feel empowered by the courage and strength that you have and others challenged with this condition. I have met some of the most beautiful people in my field of work and they inspire me. Thanks for your videos!!!
Hi, awesome videos, I saw in another video you mentioned you have gotten your timing better now. I would really appreciate an updated video on bowel and bladder management.
I was watching this just to see the toilet transfer (I have MS) and was amazed at how well you did this video. So informative and while it's not something people wanna talk about, it was very helpful. Thanks for sharing your method!
Hey I just found you didn't realize you've been doing videos for so long. I have been a paraplegic for 49 years now seems like a long time I'm 61 years old. My injury is T9 and it seems like over time things do change and one thing works for you 10 years ago may not work now. Keep up the videos I appreciate them and maybe one day I'll share my experiences with you.
I’m 13 years in and there’s always room to learn from others!
@ParalyzedLiving if you have any questions let me know. I am now 50 years plus with my disability and looking forward to retirement.
I love listening his way of speaking and the voice.
I would never have thought that this would be an issue after an SCI so I'm really learning. Thank you.
Guys don’t say nothing just put the damn Like video button for this GOAT. 👏
Just found your website. I damaged my spinal cord and have all these problems and its great to see and hear this as so many of use have this and its great that you actually talk about poop. The only person I can talk to is my bowel and bladder nurse and it’s so good to chat about the problems to her as no one realises what we have to do. So a big thank you x 😅
Absolutely! I realize it’s “taboo” but it’s a part of the package unfortunately. Thank you for the comment!! Glad it helped even if only a little.
no helped a lot and your other videos thank you so much. 😊
Thank you for going through these routines in a detailed and honest way. It's important for loved ones to know what an SCI patient goes through. You're amazing, and you help a lot of people!
You are a wonderful human being to come forward and talk about things people like to keep in the dark, and you bring it to the light. It is real life, and can happen to anyone! Thank you so much for your bravery!!! I
You know you're doing many people a service by sharing.
Thank you, my dad is recently paralyzed and its so difficult to figure out these things!
Anastasia Nikitovic so sorry to hear that. It’s tough in the beginning but hopefully he can find his stride. ♥️
Wow hope all is well 🙏
I use a bum gun (that's what it's called in Thailand) a water hose with a trigger (like what you see on a kitchen sink). Well just hold it up against your bottom a few seconds of water to fill the cavity, then it all comes out easily. Rinse a few more times, to be sure it all came out. Then wait 15 minutes to see if all the water leaked out, then squeeze your nose (then blow) to force any water if left in there
You are a courageous to share that part of your life with all of us.
I found this video so interesting, I have worked for years with incontinence in adults and children really good
Thank you so much for sharing! We are studying in nursing school and this really helps us to be better nurses.
Hey just watched your video and of course we all do things different. I'm a T9 paraplegic going on 50 years. My bow treatment is a lot different I'll go sometimes 3 or 4 days without having a bowel movement. Once I get that urge, the feeling to go I will do what we call rectal stretch. That will trigger a bowel movement for me. I also try to eat a lot of fiber with metamucil added to my diet. Tens to work better for me, gives me a lot more freedom where I'm not tied down to an actual bowl care day. This makes it possible for me to be able to go out, go here go there without being tied down to a toilet every other day. Any questions you can always ask. Jay Williams..
Yes, Jay W. There's also another water soluble fiber like metamucil but has no flavor so you can mix it with any flavors you want. Makes good bulk🙂for your muscles to push along.
Great educational videos. Transanal irrigation is also a very effective way of bowel management, takes about an hour. Instead of repeated digital stimulation and chemicals, it's just warm water irrigation. Abdominal massage instead. A bit easier for some.
DUDE... you're BRAVE. I have mild Cerebral Palsy, not a spinal cord injury, but still am learning from your videos. I commend you. :-)
Thank you for the information Bryan I don't have a spinal cord injury but I do have CP a birth defect and I am also in a wheelchair because of my disability I live alone I have my own apartment and I've been living on my own for several years now overtime specially being by yourself and living by yourself your disability does get easier easy ways and learn how to deal with your disability does or you being disabled you just have to learn how to make it work for you that's what I be trying to tell my grandmother because when you have a disability is permanent and it's not going to go away but you learn how to deal with it overtime and I wanted to get my own apartment because I I got tired of living with people in a family I wanted to learn how to live on my own and learn how to do things by myself and learn how to take care of myself better when you living with family they want to do everything for you and I don't like that because I am a very independent woman and I don't like everybody doing things for me all the time 24/7 because I'm not a mama's girl and I'm not I'm a daddy's girl but I'm also independent and I like to do for myself and be by myself but soon I won't be by myself I'll have my baby girl and I also have to learn how to take care of my soul so I can learn how to take care of her because being a mom is my responsibility is nobody else's responsibility to take care of my child or my children that I decide to have in the future if I decide to have anymorejust because we have disabilities don't mean that we're not human we deserve to have a regular normal life like everybody else and some people they treat us just because we have disabilities and challenges of that nature they think we unhuman and it's not fair and it's not right I'm willing to do whatever I have to do to be a good person so I can be a good mother to my baby girl because at the end of the day that's all I have I don't have anything else I got my family but you know I have to I have to have my own life too if my family want to be a part of my life than more than welcome to but I don't have time to deal with the nonsense because I have someone else that I have to think about now my baby girl when she comes into this world and I don't have time for nonsense and drama and I don't want that around my daughter.
Thank for sharing this intimate experiences. We know that is not easy, but this help us to understand better the difficulties that that people with limited movements have with day to day activities. Thanks!
you have given great courage thanks
Your video has helped a lot of people. I even learned a couple of new aspects myself. My previous occupation I was in an architectural firm creating construction drawings. The part I always got the most enjoyment from was incorporating the little extras over and above the basic code for assisting the disabled while they were using public facilities. Currently I have the ability to design a home which is only a block from a university to incorporate some of these items. I aim to do a wet room bathroom so it doesn't matter if the water is contained. It allows for an open plan.
*I was wondering if a hand held wand shower next to the toilet could be a useful accessory for toileting? A recessed shelf for storing washable cloths in addition to toilet paper?*
While I am aware of bidet equipped toilet seats I can imagine so many aspects of them that could go wrong if one was not perfectly seated and of the correct body shape. They seem to be extremely over priced; possibly they are imported from Japan.
Electronic bidet. Imported from Hong Kong, into the Australian Capital Territory, where we have been living for the last 20 years.
Extremely happy with it.
Assists with urinary and bowel problems. Before, during and after use for medical purposes.
The hot air blower also dries, after washing. Very reliable, quiet and trustworthy. Not at all expensive. Just a few hundred dollars, easily fitted by the local handyman.
Love your videos but seldom comment. Been a T9-10 sci for four years now and always learning something different to try. Keep it up!
you are a really courageous man . thanks so much for sharing
I think using the bidet will be much easier and cleaner .
You are amazing. Stay encouraged!
A nurse once told me to rub in small circular circles (gently) from right to left and from the bottom of the right side to top and back down on the other side (like an upside down 'u') to get things moving.
Hats off to you for doing this routine. I can put myself in your shoe and I can imagine it. You're a brave man. Note: Your bathroom looks awesome!
Thanks again for making these videos. Not many are brave enough to talk openly about these topics. Even after 35 years, I still cringe a bit when someone asks "How do you..." .
I can handle the sex and pee questions, but this one is a bit of a "Do you really want to know?" subject to me. I want people to have the knowledge, but it's always been our culture's 'hands-off' subject, and it's just a bit embarrassing to me, depending on who asks.
Often, I'll just take the magician's way out "How do you do that?" - "Very well, in my opinion."
You handle these topics Very good and openly. I can now refer people to your videos when they want to know how things work. :D
Take care-
Tony
Respect! ✊
Love u bro Lots of Love 💕💕 from India
Thank you for making your videos and tackling the tough subjects. Great job!
Thanks for sharing such intimate details. Very educational for others. Your brave and one great person to care about others like you do.
I been thinking about doing a video on how to get in and out of a vehicle. I'm yet to see a video how I get in and out. All the videos I see seems more difficult than how put my chair in and out. I drive a 4 runner.
Good attitude, good job! Best of luck. Would love to hear from you
will the rectum get used to the Enameez Plus after using for certain of period?
I've used it for 7 years and it hasn't been an issue.
Thx for your response, mate.
Enemeez are great. I've tried several other things, but nothing else seems to work quite as well.
+paralyzed living can you give us an update on how the paint protector is working on your chair compared to your chair that didn't have it on. I have a vocational school, auto collision class paint my chair for me and it got scratched up so bad, and when I get my new chair I want them to paint it again then put the paint protector on it to keep it looking nice. I just want to know if you think it was worth doing.
I ordered some of those mini enemas today. I a pretty high functioning c7 incomplete. I've been using the glycerin suppositories and digital stim with limited success. A lot of the time, I end up going to work and other activities with the feeling that I still need to go or haven't finished. It's very debilitating. I tend to sit most of the time and avoid going far from a private bathroom. It makes me a prisoner in my home on the weekend not wanting to leave the house. So my plan is to use those every other day or every third day to see if it will help complete the process. I'm going to allow more time on those days and will take extra clothes to work just in case. And suggestions?
i'm the same Todd.I always carry rechangable clothes and depends underwears when i go out and i'm on my stool softners and fiber supplements.
Hey Todd hope you are doing good, I was wondering do you have family with that last name that live in Cleveland Oh?
@@kimr.2284 No, my nephew lived up there about 5 years ago for a year or two but his last name isn't Register.
Hi Brian, my injury is t7-8 and I use a suppository too. Instead of putting in the suppository after the toilet transfer I usually insert it into my butt 10-15 mins before I transfer so I don't have to keep my finger inside the whole time.
I do the same thing but a 7pm. I just came across those enemas. You wouldn't think the difference between an enema and a suppository would be so different but it makes a world of difference. I also spend about an hour in the bathroom. My biggest fear is that I will have a problem during the day or at night.
what if you have to crap and you can feel everything but cant get it out? How do you deal with that agony and horribleness? Sensory and pain r still there but movement isnt, thats horrible
If you don't mind me asking, how did you become paralyzed? I am a volunteer here at the Audie Murphy VAMC. I help out with our SCIC ward. As a retired soldier and disabled veteran myself, I spend time with our hospitalized vets.
I was in a motorcycle accident. There is a video talking about how I became paralyzed. Glad you are helping others too!
So when you have to dig or stim you don't risk injuring yourself? or causing irritation? I wonder why there are not small implates like pacemakers were you can hit a remote or whatever to cause the bowel muscle to cramp and move the bowel down and out?
Thanks for useful info! Where did you purchase the padded. elongated toilet seat? I'm searching for something better than ones at the local hardward store with too soft of foam that immediately bottoms out.
Bob Mikesic I’ve been buying mine from Home Depot. I typically replace it once a year or so. I had bad luck with one I bought from Walmart so avoid cheap padded seats.
@@ParalyzedLiving Thank you. Which manufacturer/brand of seat have you found provides the most supportive foam?
My brother is a sci t9. He only takes 10 minutes to poop using a rectal enema for 1 yr already and learned to push?before it takes him more than one hour or more!.now he customized a enema tank made of stainless. He said it changed his life not anymore waiting for poop to come out. Sorry for my english
+Carmela Guanzon Thanks for the reply! I would like to hear more on his set up.
+Paralyzed Living I would also lie to know more as I spend almost 2 hours at a time and then not even sure if my bowel is 100% out
+Neil van der Merwe For Me, (sci T-7) it's always been difficult to know "for certain" if I'm 100% finished. It's a matter of faith, especially now that I'm over 50 and been paralyzed most of my life.
When I was newly paralyzed, I did a digital stim every night before sleep, and was able to empty my lower bowel pretty good every night. After about 5 years, it slowed and I had to do it every 2 nights. By the early 1990's it was every 3 nights. Then I got married and had to change it to mornings and my body changed to every 4th day, and I have to use a suppository, which can cause accidents later in the day/night. Just something I have to deal with as it comes.
I think my body has finally stopped slowing, as I've been on the 4 day schedule for over 10 years now.
Just remember, everyone is different and what worked for me may not work for anyone else. But I have heard similar stories from other people around my area.
+Paralyzed Living i hope my brothers style can help a lot of sci. Its very cheap and easy to buy enemas and he never had UTI since his accident 2001. He started his enema because they found a tumor in his intestines because he poop once a week. I remember his poop is like brick size thats why he damaged his hole now that looks like flower.he doesnt want his tumor to be operated or removed so he doctored himself. My brother is a type of person who is not afraid to try anything just not to go to the doctors..his motto s IF I DIE ATLEAST I DIE TRYING NOT WASTE MY MONEY PAYING PROFITABLE DOCTORS. But believe me his tumor is gone now.he just put baking soda or sometimes tea in his enema water,we dont know if those ingredients help or just a miracle. He has afriend sci t10 been using sophository for 8yrs he said the tube inside the hole sorry i dont know what its called ,was irritated the doctor sudden decision is close the hole and put a bag at his side belly to poop sorry i dont know what
+Carmela Guanzon continuation 😊 sorry i dsome say the cause is being dependent on the sophository maybe our sophository here in the philippines is not as good you have in america.. We all thinks that my brother using the enema made him healthy. We had him gemeral checked in a lab all is perfect even his high glucose or sugar is now normal without taking any medicines. My brother also hates medicines bec it will destroy his kidneys he said!!! And do a dialysis in a wheelchair is very hard. Sometimes my brothers imaginations is going too far. Even said he can poop everyday since he practice chewing his food as many as can be,not like before 6 chews only and swallow i dont know if that really helps.and he sleeps on his left side and his bed inclined 8inches high.. Now he poops everyday with that blue thing girdle or sometimes those fedex back protection wrapped very streched in body and makes a very strong fake cough or fake vomit after filling hole with water enema
you can't use a enema over a extended period of time , it will harm your digestive tract . digital stimulation can be very depressing , especially if you have bowel in continence , or bladder incontinence , I'm a paraplegic result of a 1981 spinal cord tumor .
when i became a paraplegic after an accident i wasn't scared about never walking again or anything like that. people can pretty much have a normal life and even a good one in a wheelchair. sure there all A LOT, So Many challenges but still it can become a great life. i was scared about my bowel and Bladder challenges. that's what scared me. not being able to control that. i went through a bowel management program and it has help A LOT but still having to do so much just to go to the bathroom is Hard!!! but i got the hang of it. i have control back.
Thank you for sharing this. I know it's very personal, but thank you for showing us.
How it sexual functioning after spinal cord injury?
I'm a C5 incomplete what i do is just wait(or gorge my self in food) until it's full and it automatically goes plus tugging slightly on my catheter helps trigger the bowel movement.
+Jeffer DG Same. Sometimes I take a shot of a medicine which kinda makes me less hard in my stomach. Good to hear that someone is doing the same :L (I'm around a T5-T6)
+Jeffer ive never heard that method before, I'm a c5 too
+DiSCIpling Recovery Different strokes for different folks.
Hi good night, my son got injured early this year, his t7-9 is damage, he is paralyzed from the waist down we r is coping, going to therapy. It is something new to us, I would like to ask u some questions, could we talk, not on this platform, could u talk me privately I would be waiting for an answer.
Where do you buy your enemeez? I pay twice that and that is the cheapest I could find. Thanks!
+Jonathan Rekash I get mine off Amazon. It's typically around $75 for a bottle of 30.
Oh ok. I thought it said $75 for a two month supply. My fault. Now I'm actually trying to pass it through insurance because I explained the medical necessity. I'll comment again once I get an answer to let everyone know if it works or not.
Oh my gosh, I'm sorry again. It is only a one month supply for me because I use them once a day. I'm sorry Brian! :)
medicaid payed for mine hope it works out
Yeah, I have Health Alliance Connect through medicaid. They already did a preauth but now they want clinicals that say I'm paraplegic so it's looking good.
YOu are strong...positive...brave and blessed.
I wonder if a bidet might help you. The water stream might be able to stimulate instead of your finger?
i myself used to do a similar routine (for 25+ years) then changed. I try to eat better, lots of berries for example, now i check 1 or 2 times/day. Depending on how i feel, usually in the mornings I can tell from AD indicators, like blotchy flush legs for example, I now have a routine that takes up less than 5 mins/day, try to baredown as much as possible as well. Found that you do not need to empty your entire bowel, just lower. "Listen" pay attention & you will get to know the triggers if its AD or such. everyone is different of course but for me it didnt take anytime to get used to the new routine & its made a huge difference in my life. good luck all. dont hesistate to ask peers.
I typed my comment for about an hour but I dont have the courage to post it publicly. I really like to learn more things about how to do things after a SCI. I wish you could talk more about your bowel management and diet on your next videos.
I can do that. Always feel free to send me a private message if you are uncomfortable posting publicly.
I was taught to do a night time BM is a morning one better? mind you, I dont work, but am constantly running to drs, pt, etc
+James M Beilfuss II I have done both a morning and evening routine and found the evening routine was really inconvenient if I wanted to be out doing things on the weekend. I prefer to get it out of the way first thing in the day so I don't have to mess with it later.
Hi, you were trained for an evening program because it fit the rehab centers time frame ETC, for example. I attended one of the best facilities in the nation and it was a disaster. I later found out my paper read I was depending on charity, this is why, I’m sorry I can not finish story, God Bless you and yours. Great channel we all need a support group, this is great. I have aloof questions and have learned a lot along the way. UTI’s biggest problem.
I have nerve damage of my colon and Pacific pacifically in my rectum basically when I push nothing really happens. I'm having a lot of problemswhat do you mean exactly when you say you use your finger to push are you talking about when you place your hand on the kind of in the backside of the rectum and push down ?
Is the suppositry a gel
No it’s a liquid that comes in a small squeeze tube.
What happens if you don’t have finger/hand coordination? can you still do this totally independently with or without the hand movements? Will using the laxative cause any damage to the bowels.? Sorry I have so many question.
Thank you for such a informative video you sir a such an impersonation to others who have spinal cord injuries and for other people who have to help themselves go to the restroom for other health reasons. I will pass your video on to others who need this information. God Bless You!
Hello, thank you for posting. Can I ask if you are upper or lower motor neuron? Thanks again!
Love your confidence, I know I am very insecure about this kinda stuff so it really encourages me. Thanks! Also idk if you have heard of it but there is a thing called the ACE program which makes it a lot quicker (about 30 min every other day) and rarely requires manual stimming.
+Cale McGowan I never heard of ACE, I'll have to look into that too
+DiSCIpling Recovery yeah it's definitely a great thing to have
Cale McGowan I'm getting the ace because of spina bifida and issues with accidents or constipation. is it painful?
Kayla Thomasson well I don't have any feeling below my chest so I don't feel any pain but I'm not sure if it hurts or not if you do have feeling.
thank you, I'm nervous to get it done but it's the only option now
hi.. wish I saw ur videos months ago... this is helpful as I'm am new to being paralyzed(7mths now), also from the waist down (car accident). and like u like no feeling either but I have a question..being that I deal with chronic pain I have to take pills and patch to help (I'm never out of pain) but the medication has also slowed my bowels and hardened it.. what are ur suggestions to try to get it moving? oral (colace) laxative doesn't work.. so it's a manual thing in order for me to go.. would appreciate if you have some advice to this.. I'm afraid that I'm going to have to have surgery to get it moved because it doesn't come out unless someone moves it,it's as bad as I feel it thru my stomach in the colon..help if u can.. thanks much
precious maynard
many of my friends who also have SCI take Macrogol to make the bowels " wet " and it really helped them, for the pain i have the same as what you have
I'm taking those pills it reduced my pain not sure but you give it a try :
Novamin - Amitriptylin -Pregabalin-
Oxcarbazepin
tell your doctor
and another note i was taking morphine it makes depression and slow in every thing mentally and physically with time i get toxic so instead of relief pain it was making pain i stopped taking it but know when i have strong pain i take it.
hope you get better
precious maynard
many of my friends who also have SCI take Macrogol to make the bowels " wet " and it really helped them, for the pain i have the same as what you have
I'm taking those pills it reduced my pain not sure but you give it a try :
Novamin - Amitriptylin -Pregabalin-
Oxcarbazepin
tell your doctor
and another note i was taking morphine it makes depression and slow in every thing mentally and physically with time i get toxic so instead of relief pain it was making pain i stopped taking it but know when i have strong pain i take it.
hope you get better
I don't have an immediate solution but I know I've had the same side effects with pain killers. First step is to drink PLENTY of water since the bowel needs all it can get. Stool softeners will also be important. At times I was extremely constipated I used Glycerin suppositories which helped. I hope you can find a solution!
Please guys don't take medication for everything. Try magnesium citrate 400 mg start on 200 then move your way up. Eat lots flax seed, beets, organic kefir, real sourdough bread if you can get or bake your self.Fermented bread is better because it's predigested. Fuck flour, pasta all that GMO shit and try natural way if dealing with this issue... medication s are fucking toxic and make you worst in the long run. Don't treat you digestive system like a garbage and it will love you back. I know you might be paralyzed and digest harder because cant move and everything is slow and backing up, but please that's why it's even more important to eat right and healthy and not depend on drugs...there is a natural way of fixing that... health= wealth 😉
Miralax daily
Oké very helpfull but do you get your pants of ?
🙄🙄 thats a silly. Question
Thamk you so much for these videos I wish I found them before I was six months out because now at six months I think I’m going crazy but your videos do you have a lot better than their corporate videos that are just confusing thank you
Actually with the transfer you doing to the toilet it’s unbelievable I used to fall once a week I’m gonna try this it looks so much easier than hopping over that damn wheel!!!
I am trying to find a way to pull my pants back up after finishing. I still depend on assistance and sometimes is not around. i am a t7 para .
+Greg Lyman That can be tricky. I've seen a device that goes under your armpits to help lift you up. I do my bowel program in the morning before I put pants or underwear on.
My biggest issue, too!
You are a treasure, sir. It takes courage and strength to place yourself in the hands of total strangers. May Jehovah God give you the strength to continue moving forward. 😉
How do you pull up and down your pants