Fibroid Ambassador Toya Johnson Testimonial
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- Опубликовано: 12 май 2021
- Toya Johnson, author, rapper, and entrepreneur, shares her story about her battle with fibroids to empower women to seek treatment for their fibroid symptoms. Watch Toya discuss her diagnosis, why she chose to have a myomectomy, and what she wishes could have been different.
You are not alone in your experiences with fibroids, and the Fibroid Fighters Foundation wants you to help other women know they're not alone either. Join the fight against fibroids today by sharing your story: bit.ly/2RVFe9I
Subscribe to our channel for more fibroid survivor stories and to stay up to date on the fight against fibroids: bit.ly/35nMs9H
About Fibroid Fighters
As a public welfare organization dedicated to the education and research of uterine fibroids, The Fibroid Fighters Foundation has partnered with political leaders, public figures, activists, and fibroid survivors to spread the word about uterine fibroid disease. We're on a mission to end the silence and stigma that surrounds women's health, specifically the reproductive health issue of fibroids.
Fibroids impact 1 in 3 women, but despite how common this disease is, often the only treatment offered for symptomatic fibroids is hysterectomy. Whether partial or complete, hysterectomy comes with multiple drawbacks, including but not limited to the loss of fertility.
A part of the Fibroid Fighters Foundation mission includes bringing awareness to the minimally invasive fibroid treatment option known as Uterine Fibroid Embolization (UFE). UFE is an FDA-approved treatment for fibroids that involves embolizing the arteries that connect the fibroid tumors to the blood supply.
I'm so happy more and more people are sharing their story....We are NOT alone...blessings to all
As women we go through so much 😪
I ended up having a hysterectomy in February. I was losing so much blood that I passed out at the mall, on top of having 7 fibroids. I'm now pain and issue free.
I don't have a support system. I just found out through ultrasound I have multiple grapefruit size. I'm still emotional about it. I'm feeling the same as described. It hurts to be in fatigue and pain all the time. I heard about them possibly coming back and that's why I'm thinking about the natural way. I believe my severe anemia is why they came about and heavy periods. Pray for me if yall read this pls
Yes, I am here . In the name of Jesus touch her body Heavenly Father!
I have four fibroids , one sits on bladder
@@makishacox6100 thank you, praying for you too!
Many Blessings And Prayers Your Way🙌🏾🙌🏾🙏🏾💪🏾 Many Of Us Been Dealing With It But I'm Glad We Are Not Alone! Yes I'm Doing Natural Things And It Takes Time But It Helps!! Diet Change And Exercise Plays A Huge Roll
Being a woman that just found out I have fibroids i felt all of this. I am in tears
God bless you and for your healing healthy and successfully hugs 🤗❤️
Thank you ladies
I too am a fibroid survivor. I thank God I didn't suffer with the severe bleeding like most women do. How I found out is that my cycle went from 3 days to 7 days and when I would lay on my stomach I would feel like a heart beating in my stomach. I was tired like most and my iron was really low. After getting an vaginal ultrasound it was determined I need to have mine removed asap. In doing so I too had a myomectomy done to have a 6lb fibroid removed. The good news is, it's been over 15yrs and by the grace of God they have not returned.
Did the fibroid removal trigger menopause?
@@UnknownUnknown-yl1lt I think that happens when you have a hysterectomy.
God is good. I had my myomectomy six weeks ago. I pray I have the same testimony. Gone for good!
@@BeautifulFavored what were your symptoms if you don't minded me asking
Wow! I used to feel that extra pulse where the fibroids were too. The BIG one, size of a coconut. I was tired ALL the time. Constant fatigue. It robbed me of my ability to work and get so many things done. And the male doctors I went to to figure out why I was fatigued were absolutely of NO HELP.
I found out that I had Fibroids when I was pregnant and had my daughter at 36 . I had my son at 18 , when I was married to my first husband . Even when I was a young girl , I use to hate having my period . I was a heavy bleeder and my period would stay on for 10 days straight . I was anemic . I wore 105 pounds until I had my son . When I was pregnant with my daughter , that when they told me about the fibroids . I use to by pads by the dozen . After my daughter was born and we moved to Atlanta : I had the surgery on April 9th 2011 and they removed a tumor from my body that weighed 4 pounds 5 Ounces . I had a partial hysterectomy . If I had not had that tumor removed from my body : I wouldn't be here to enjoy my 2 children , my second husband and my grandchildren . I just had a birthday on June 1 2021 . I am 59 years of age . And I thank God and Jesus Christ for blessing me too see another year and another day .Love you and be Blessed and Safe ! Ms . Lin Dallas Ga .
I love me some Toya ❤ she's a strong brave intelligent beautiful black woman. I appreciate you sharing your story and journey with us.
I’m a fibroid survivor I had mymectomy surgery-twice the first time the obgyn opened me up and said she didn’t see anything the second surgery my beautiful doctor obgyn Racheal Harthorn said my fibroid was the entire mass of my uterus after a MRI detected it she was able to clean my entire uterus but it immediately kicked me into an early menopause at the age of 36 the extremely heavy bleeding anemia I had to receive vitamin injections for my loss of blood and the 5 untrine
biopsy I endured without any medication OMG 😳 but I’m grateful this topic is being addressed and open for conversation without judgement and Shame I thank you Latoya Wright 🙏🏾👏🏽
I been thought it all and a survivor also.
I just found out that at age 48 I may be going through early menopause myself and I don't even have kids. I pray to God this not so.
The cleaning of the uterus put you into menopause?
I too have fibroids so glad to hear that celebrities are dealing with this too ❤
Thanks for telling your story! Same here with going through heavy periods. And i am anemic.
Toya boo I went through the EXACT same thing twice as you boo and OMG when I tell you I wish I was FULLY aware of what my body was going through and if I had MORE information I would NOT be a 50 yr. old woman today with NO children sister the GYN doctors don't care as much as they should especially with the African-American culture for women I definitely would've had 2 children that I always wanted now I have NONE and I feel like GYN doctors that I've seen over the years knew my FAMILY HISTORY but just didn't do their job RIGHT BY ME AT ALL NONE OF THEM and I REALLY RESENT THEM FOR THAT Toya I am one of your biggest supporters/fan I truly respect you as a woman because I swear you and I have SOOOOO many things in COMMON that it's almost scary to know I wasn't alone with a lot of things I went through in my life because Toya boo you went through a lot of what I experienced as well WOW I really love you Toya like the sister that I NEVER had and I PRAY that 1 day we will get the opportunity to really meet each other and have a real sister conversation that would be SOOOO DOPE GOD BLESS YOU SISTER LOVE - QUEENS, NY loves you as well STAY AS DOPE AND FLY AS YOU ARE BOO LOVE YOUR BIGGEST SUPPORTER/FAN 🙏🏽 🙏🏽 😇👍🏽👍🏽👏🏽👏🏽💪🏽💪🏽🥰😍🤩💜💜💜💜💜
I'm on day 3 of laparoscopic myomectomy surgery recovery and I'm glad I came across this video. Thanks Toya for sharing this insight ❤️
Thank you for speaking about this toya. Can you imagine walking around with 4 pads on from over flowing what a horrible feeling. 313
I knew the feeling of it all and yes after surgery it was very painful recovering but I feel 100% better now as of today.
Yes I do agree with toya on that Heavy period is very painful 😣
Thank you so much for sharing your story. I have fibroids and endometriosis. I've had laparoscopic surgery twice for the endo. and am seeing a surgeon soon about my largest fibroid which is about the size of an orange. These conditions are miserable and there is not enough information or treatment options available. My new OB/GYN almost immediately pushed me toward a partial hysterectomy, and that just seems crazy to me. But I guess we'll see. Best of luck to all and God bless.
Thank you latoya for opening up about it. I dont really talk about me having fibroid but I also had mines remove. I would love to tell my story because its by god grace that im still here to tell my story.
This is a subject that she addressed so professionally .
I had a myomectomy also. My fibroid was size of an orange. I had surgery bikini cut. Now i believe its back. I can feel it a certain way i lay down. Im not in any pain im beyond menstrual cycles so im leaving it alone. I thank toya for sharing her story. It helps to kno ur not alone
I would ask if they removed all of them or just the one giving the most problem. I told my doctor I heard the fibroids come back after a myomectomy so I didn’t want to do that procedure and he said not the ones they removed but the ones they didn’t remove will still be there. He said they don’t tell people they didn’t remove them all. I’m doing the uterine fibroid embolization procedure next month as I have 5-6 fibroids and they have grown sine I learned I had them 3 yrs ago.
@@jno2004they can and likely will always come back until you get toward menopause unless you make some dietary changes to lower sugar intake and estrogen dominance. It is said that estrogen accumulates in fat and of course fat grows with high sugar intake. As well drinking milk from a cow that is kept on estrogen to keep it pumping milk when it doesn’t even have a baby calf to nurse isn’t healthy is it?
I love Toya she’s naturally beautiful, didn’t know she went through this, the things people go through behind close doors. We as women go through so much. Glad she shared her story.
I loved this video so much. I was diagnosed in 2019 at the age of 26 when I was pregnant with my son and my pregnancy was super painful bc of it. There has to be other options other than surgery. We need a cure for this and more women to speak out as well. My mother also has this and other women in my family.
Toya thanks for sharing my daughter is going through that same thing right now, and you’re right the more you know the better, and just educating yourself about what you’re dealing with and speaking on your experience can be helpful to other women around the world .
Thanks for telling your story. Thanks for using your voice and platform yo bring awareness and sharing your story. I have so many female family members that have and still are dealing with fibroids. If you know better, you do better. With that said, ladies attend to SELF. Prevention is key. Although domethings are out of our control, do your routine women's health checkups and know your status. Be aware. Thanks Toya!!! Born and raised New Iberia, LA BBY!!!
Girl thank u 4 sharing ♥️♥️♥️
Thanks for sharing your story😢😢😢
I'm currently going through this! So glad she is giving us A voice!
Thank you for sharing this
Thanks so much for telling your story!!!
Thank you! I am currently going through this issue and I know/knew nothing about fibroids until I had a MRI on my spine. That's when they saw them.
Watching this currently 4 weeks, 4 days post op from a full abdominal hysterectomy. I’m 36 and was diagnosed with fibroids back in 2022. The fibroids were so large that my uterus was the size of a 38 week pregnant woman. I had only had complications since 2019, but didn’t think anything of it because I’ve always had menstrual cramps. I talked to my GYN and a myomectomy as well as UFE were given as an option but, with the same warnings that they could return or the UFE may not work since the fibroids we so large and there were so many of them! I made the hardest decision of my life by getting a hysterectomy but, I don’t regret it at all! No more painful periods, no more oversized uterus that wouldn’t allow me to lay on my stomach and causing me to have sciatic nerve pain! Explore all of your options and do what’s best for you and your situation! A hysterectomy is not ideal for everyone and every situation. But, I’m definitely glad I did it
I’m so sorry that they took your uterus. They could have done a myomectomy to remove them. Especially if you were at the stage in life where you wanted children. The first offer they made to me was to take my uterus and I was absolutely NOT going to give it to them. I wanted to be a mother. Yes they usually grow back if you don’t make changes . They could t take all of mine out , because I wanted my fertility preserved. But I did get pregnant and give birth to an amazing miracle child. Such a blessing . The doctor removed a small. Fibroid and showed it to me after I gave birth. Since having the larger ones removed , I have not had the problems I had prior to the surgery ( excruciating pain, vlog clots, fatigue, back pain etc) I’m sure I still have some in there but they don’t cause me suffering. They may be preventing pregnancy but I don’t regret keeping my uterus. Hopefully as I get older they should shrink. I’m glad you found relief though. Did the hysterectomy accelerate menopause for you or necessitate you being on hormones?
Wow God bless you Toya peace and blessings may you get the more you need heathy and successfully ❤️😘
Thanks for sharing your Story
I glad I not the only one🤗
I have been diagnosed with fibroids as well I have no pain but other side efforts that come with them. I have been advivised to have a full hysterectomy. I am in my 40's .. Thank you for sharing
Thank you for sharing this. I haven't had this issue but I feel so much more confirdent in talking to my doctor about it if it happens to me.
Awesome interview… 🥰😍😃
Great job. I too was diagnosed and discussed my options but have yet to make a decision. We all should speak up.
I Appreciate Her Honesty ... Thanks For Sharing This is a Very Important topic we need to know more about!
Thank you for sharing!
Blessings to you toya👸🏿🙏🏿😇❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️real lady boss Thank you for the information very informative yesss
Very helpful 🙏🏾
Praying for u.
I'm going thru this now, yes very painful.
Reducing soy in my diet helped me. 🦋🥺
Thank u so much for this. I will definitely look into the UFE procedure more. I did NOT want to be cut open so I started trying to shrink them naturally by changing my entire way of eating and even taking herbal extracts. It seems to be working but the process is just taking a bit way too long, so I will have to look into UFE. One thing about the herbal extracts is that they make your periods even heavier, so of course sometimes I feel like I’m stuck between a rock and a hard place 🙄😒😕 and I don’t have that “support system” that Toya spoke of, EVERYTHING is on ME. So what surgery can I go and have and be down for a long period of time while trying to take care of my child with Autism?!?! So, I’m am so grateful to find this video. Thank u, again. 🙏🏽🥰
God Bless you! I am SO grateful, for you being transparent! I'm getting ready now for Fibroid surgery soon and I thank you for the Wisdom🙌 Looking into UVF
I wish you all the BEST!
I went through this last year. I kept telling my doctor for years that something was wrong. I was overlooked. It took for me to go to a fertility doctor to find out why I wasn’t getting pregnant. Little did I know I had 5 fibroids. I went back to my doctor she finally did an ultrasound and confirmed it. She wanted to do a hysterectomy and I said I’m trying to have a baby. Then I came across another doctor who did the surgery to remove them. I’m still not pregnant and scared to death of them coming back. I suffered for years and no one listened to me.
Keep going to the doctor to see if there are fibroids preventing pregnancy. Keep trying. If you want a baby try and don’t take it like you have forever . Be diligent because the fibroids do grow and even when removed if you don’t change your diet and stop using things with chemical estrogens and having dairy and 🥩 ( commercial) etc they will grow back.
Don’t be “ scared to death”. They won’t kill you. But they can be a major inconvenience and cause of suffering. But I’ve heard women tell that they shrank theirs through dietary changes and lifestyle.
I had that same problem plus a cyst girl I’m still recovering I was loosing so much blood I had to get blood transfusions and iron infusions I’ve gone through it all.
I am dealing with all 3 and it's frustrating
What did you do to over come them?
Think this is what I’m going through heavy painful periods and anemia that can’t be fixed from iron pills. Totally sucks!
@@bbstar2254 I will love!! Thank you 🙏
@@marcaskew6199 How you know I dont?
Currently healing from this ❤️🩹 day 4 😫
This is very good. I think a lot of people don't speak out on it is because they don't have the funds or the insurance to get it taken care of so a lot of people suffer in silence because of that. There should be some type of Charity or funds to help those who are unable to afford going through those procedures whatever it maybe when it comes to getting rid of fibroids
Even if you only have Medicaid- if they are causing you suffering and pain your insurance should cover examination and removal . Even surgery.
Thanks for sharing your story Toya, I had a hysterectomy in 2017 due to multiple fibroids 1 being the size of a lime w/excessive bleeding. I was 45 yrs old, and fibroids are hereditary in my family. I got 2 doctors opinions both advised a hysterectomy because of my age, me not planning to have anymore children. I did my own research after I was diagnosed and found out about Endometrial Oblation(basically burning the fibroids from the endometrial wall). They can grow back, and I didn't want to have that procedure done to have it again 3-5yrs later. I never hear of a myomectomy, it sounds close to an Endometrial Oblation.
Look up uterine fibroid embolization. I’m glad you didn’t have a hysterectomy. They are SO UNNECESSARY!!! But it’s the first option they throw at you. It’s a profitable surgery 💰💰💰💰 . I had an abdominal myomectomy and wish I’d had something less invasive. It was major surgery . But I wasn’t letting them take my uterus. It was not the problem! The fibroids were.
I just had my Uterus and tubes removed. My Uterus grew and my fibroid was huge as well. I bled 26 days out of the month for almost 9 months. I blacked out due to my low anemia and had to get blood transfusions. I also had to wear diapers and take iron pills 3-5 times daily. It all got worst so quick. The crazy thing is a hysterectomy is considered a cosmetic surgery per insurance.
I have been dealing with heavy bleeding since May and it’s to the point I have to where black pants every day, because it always find a way to go through about 3 pads, and I’m so fatigued, have cramps and even tired and weak. I’m anemic also, I found out I have fibroids also. It’s really a lot and it really drains me, I have 3 children and I’m scared, I feel like I even get light headed sometimes.
But I’m here to share my story, I’m ready to speak out about it, because it definitely messes up your day to day life. Yea! it cause me to be very irritated to, I feel like I’m pushing people away because I’m so grumpy. I’m not myself at all.
I am so sorry about what you are going through! Make sure to rest, take Iron with Vitamin B12 and Vitamin C together for anemia, beef liver, check your vitamin D level because if deficient it can cause fibroids growth, research pomegranate and serraptase supplements. Good Luck!
Very informative
Oooo wooow GOD bless beautiful… U just taught me sumthing new
Thank you 🙏🏽 💖...... But God is good ..
i love you toya ❤❤😍😍😢😢
I had a myoectomy last june l can feel its grown back but smaller this time doctors appt in a month it hasnt even been a yr since surgery but lm not ready for a hysterectomy
Have the hysterectomy and you won't have anymore Fibroids at all. I had that procedure and my life is great!!!!
Yes I had to have a partial hysterectomy myself because I had a fibroid and I didn't have heavy bleeding sometimes as African-American women were just women. You could be walking around and don't even know you have a fibroid that's how I didn't know that there was anything wrong with me into my doctors help me that I had a fibroid and I was like well I don't have heavy cramping and not and and bleeding because normally those are typical the symptoms of it but I was nervous myself never had surgery but I had to get a partial hysterectomy and that that way there will be no more fat boys anymore they won't come back so I feel fine it took me 4 to 6 weeks to recover too I thought initially that I would feel different from them taking my uterus and my Fallopian tubes but everything still is the same and the best thing about it you don't have no more. So I thank God for pulling me through that surgery and it's a blessing so anybody if you are afraid to have surgery and if you don't want those fibroids to not come back you have to have a history especially if you're done with kids and I already have my kids so I'm glad this happened later on in my life
True👑💯
I have the same issue but don't have any insurance can't get no help I have had like 3 blood transfusion but still no help but some stuff I can Say it's been on me also where I be depressed and just wanna give up!!
I was back to work in 2 weeks I too was cut only thing it pushed me into early menopause. My husband would stay up at night thinking I was going to die.
Wow
I am now going through this and I don’t know what to do… I have been dealing with this for years and I am open to share my story💜
See an obgyn! Look for a specialist who does fibroid removal. Look into dietary changes for shrinking fibroids.
YES LORD
I had a full hysterectomy in 2010 I had 4 fibroids very painful heavy bleeding. I had to get 7 blood transfusions. No Joke back then there was nothing they could do to save it. 313
Rescently i have daignose two large size fabroid and multiple fabriod with cyst.plz pray for me.i want to conceive.thnx.plz guide me
I also have a cyst also
I am one of those women representing the statistic.
AMEN currently dealing with FIBROIDS and all that comes with it and I too want to have another child so I don't want anything to do with a hysterectomy.But I also don't have time to be down for 4-6 weeks 😫😩 I am going to look into the UFE and see if that is a better fit.Thanx for sharing
I wish you the BEST!
@@ladyk2023 Thank you!!
Whatever you do do what's best for your body not what's quick. Wish u the best...❤
@@alexism.7712 thank you true but I don't have the days to take from work for that well I do but I like to use vacation for vacation😩😫
Just a testimony that I did a hysterectomy and had my son after. It was a challenging however it was successful.
Just found out I have multiple large fibroids. I have a number of the symptoms she mentioned. My tubes are tied…don’t want fibroids to return & don’t want really want to remove anything, or have sex feel different or lose my sex drive….any advice?
Going through this also
Thank you for your comment! We encourage you to look into all your treatment options by visiting our website and by finding a fibroid specialist near you to discuss those options. We wish you the best on your fibroid treatment journey bit.ly/3YBQRkc
I just had a 15cm and 4 smaller one’s removed. Should be able to try to get pregnant this summer!
I unfortunately lost my uterus to a dishonest doctor 😢 my pathology result only showed polyps 😢 i need my life back! My joy my peace 😭😭
🙏🏽🙏🏽❤❤
Just found out I have this smh 🤦♀️
Fibroids are normal in black women. I had them also they were removed surgically.
That's the first sign eating ice, or starch fibroids they are noncancerous tuber
I eat ice like I’m crazy
So true I don’t have the craving for ice anymore after my surgery
@@rauchandiarobinson7202 I eat ice like a crazy person then when my cycle pours I need a bucket.
Rapper?
Rapper ???
I'm not trying to be messy. But ummm its serious