Dear Emmet...i am a 51 year woman and have psc too. Through all my live I have had periodes off fatigue. Did not understand why. But 3 years a go there was my diagnose: PSC. I was 48 years of age then. At first i was really glad to know what was wrong whit my body, but then the reality hits. Knowing what could be in store......I do find you a brave young boy. Telling everyone whats up. Hopefully they wll find a cure soon, espascially for young people like you.
Dear Emmet. Hope you are doing well. Is it possible to reach out to you or your parents. I have a young family member most likely has psc/overlapping auto immune hepatitis. Thank you Steven
Thanks for your message! We are hoping to announce the date and location of our 2024 Conference very soon. Communicating via RUclips isn't always the quickest way to get information from PSC Partners. Ways to keep up to date are: Sign up on our email list to get our monthly newsletter (bit.ly/PSCPEmailSignUp), follow up on our other social media pages, and/or email us at contactus@pscpartners.org for immediate response.
God be with you. We lost our son to this in 2015. He had a tough go of it but never gave up. Don't let it get you down.
Dear Emmet...i am a 51 year woman and have psc too. Through all my live I have had periodes off fatigue. Did not understand why. But 3 years a go there was my diagnose: PSC. I was 48 years of age then. At first i was really glad to know what was wrong whit my body, but then the reality hits. Knowing what could be in store......I do find you a brave young boy. Telling everyone whats up. Hopefully they wll find a cure soon, espascially for young people like you.
I just want to ask if you can diagnose it by an abdominal ultrasound alone?
@@rcjs3488diagnosed by mrcp
Bonjour
Mon fils de 18 ans vient de recevoir le diagnostic psc. Mon coeur vous remercie sincèrement pour ce vidéo qui nous donne espoir!
Dear Emmet. Hope you are doing well. Is it possible to reach out to you or your parents. I have a young family member most likely has psc/overlapping auto immune hepatitis. Thank you
Steven
Any update? Hope you are feeling better. I dealt with bile issues with Gallbladder- not fun.
Keep fighting Emmet.
When and where is the conference im close to mayo in jacksonvills fl
Thanks for your message! We are hoping to announce the date and location of our 2024 Conference very soon. Communicating via RUclips isn't always the quickest way to get information from PSC Partners. Ways to keep up to date are: Sign up on our email list to get our monthly newsletter (bit.ly/PSCPEmailSignUp), follow up on our other social media pages, and/or email us at contactus@pscpartners.org for immediate response.
Lee Linda Perez Margaret Garcia Betty
God is good all the time,