Years and years of medical negligence.... For those of us who are 40 yrs diagnosed in to this nightmare,there is still no change, not enough funding, not enough medical research! The disease of a thousand names it was called ' chronic fatigue syndrome ' infuriates me ! M.E is a multi systemic illness and should have the funded that every neurological illness receives. If I live to be a hundred years old I don't think I will see this. .... Shame on you
We are fortunate to have such intelligent, compassionate and articulate ladies pushing forward our case. Sarahs compassion, despite her personal loss, to advocate for other's and Dr Bonita's bravery in taking on her own profession are both highly commendable and needed. Thank you ladies
A good start would be teaching doctors the most important things from ME/CFS research so far: low blood volume, autoantibodies, hypovolemia, lowered ATP. A lot is known already. Communicating just the basics would dispel the psychosomatic narrative and get doctors more interested in thinking about it.
I have had ME for 25 years. Nothing has changed in terms of medical care in all that time. The medical profession are on the whole arrogant, dogmatic and closed minded. If only all doctors were like Bonita.
It says in black and white on this clip that ME is an incurable disease, so why does PIP not understand this and grill us sufferers for several hours only to disbelieve us and make us suffer even more with the constant questioning! I for one am so tired of it and so tired of the health professionals thinking they know more than us the sufferers. We need help!
Simon Wessely pushed the psychiatric angle he said we would never get better until we accepted that ME was psychiatric. He is the reason we've been neglected and ignored for decades. In honour of his horrendous ignorance he was knighted and made head of the BMA. How will anything ever change for us with him in such a powerful position?
I have had Me, Fibromyalgia and possibly POTS for 37 years. I still don’t think there is enough help for people with chronic illness. I have been waiting 2 years for Rumatoligist appointment. This shouldn’t have happened to Mave 😢.
![Binita Kane, William Weir (ME Specialist) Chat About Chronic Fatigue On BBC Breakfast [27.08.2024]](http://i.ytimg.com/vi/7u40KIuz8Y4/mqdefault.jpg)
Hope it starts to end the medical gaslighting
Years and years of medical negligence.... For those of us who are 40 yrs diagnosed in to this nightmare,there is still no change, not enough funding, not enough medical research! The disease of a thousand names it was called ' chronic fatigue syndrome ' infuriates me ! M.E is a multi systemic illness and should have the funded that every neurological illness receives.
If I live to be a hundred years old I don't think I will see this. .... Shame on you
We are fortunate to have such intelligent, compassionate and articulate ladies pushing forward our case. Sarahs compassion, despite her personal loss, to advocate for other's and Dr Bonita's bravery in taking on her own profession are both highly commendable and needed. Thank you ladies
A good start would be teaching doctors the most important things from ME/CFS research so far: low blood volume, autoantibodies, hypovolemia, lowered ATP. A lot is known already. Communicating just the basics would dispel the psychosomatic narrative and get doctors more interested in thinking about it.
I have had ME for 25 years. Nothing has changed in terms of medical care in all that time. The medical profession are on the whole arrogant, dogmatic and closed minded.
If only all doctors were like Bonita.
20 years for me, 40 years for my Dad, here in the US and the situation here is little, if any, better than what y'all have in the UK.
It says in black and white on this clip that ME is an incurable disease, so why does PIP not understand this and grill us sufferers for several hours only to disbelieve us and make us suffer even more with the constant questioning! I for one am so tired of it and so tired of the health professionals thinking they know more than us the sufferers. We need help!
And make us do it again every 3 years!
Simon Wessely pushed the psychiatric angle he said we would never get better until we accepted that ME was psychiatric. He is the reason we've been neglected and ignored for decades. In honour of his horrendous ignorance he was knighted and made head of the BMA. How will anything ever change for us with him in such a powerful position?
Thank goodness there is some recognition of ME and its symptoms coming out of this tragedy
Thankyou for reporting on this....
I have had Me, Fibromyalgia and possibly POTS for 37 years. I still don’t think there is enough help for people with chronic illness. I have been waiting 2 years for Rumatoligist appointment.
This shouldn’t have happened to Mave 😢.
same x hi and hugs xx
Sarah and Bonita were awesome.
kings college hospital , ....treatment offered... 12 weeks cbt .... joke for people sick for decades