I, too, have spastic diplegia cerebral palsy and I learned that most if not all spastic cerebral "palsists", if I can use that, have the same response and most of the time, for me, my body moves as though I was startled but I was unaware of it. I usually get more startled due to the fact that my body suddenly moved without my permission or intent. I prefer, when it happens, just act as if it didn't happen. It happens when I least expect it and it can happen when I can expect it (like seeing lightning and expecting thunder). It also happens when people touch me. This has always been the case, however, being molested doesn't help (I think I'm more jumpy when someone touches me, like a pat on the back, unexpectedly.) When I used to walk, car horns could cause me to fall because the jump in the body causes me to lose my balance. People cannot overstimulate the response to exhaustion-- if that was the case, I would not have it today as I was bullied with that pretty much every day of my life in public school. But I did take that idea and used it to my advantage many years ago (like in the 1990s). I surround myself with sound as in I make myself available to bands (I was involved with my cousins' band, then when I returned to the Roman Catholic Church, I got involved in the youth band and finally, now that I am no longer a Roman Catholic but still a Christian, I got myself involved in the Church band), I play music in my vehicle, I usually have something on like a radio, tv, and anything that produces sound to muffle unexpected sounds. I know it sounds counterproductive but that helps. To my knowledge, there is no cure or treatment that is worth taking a risk, like you said, taking medications will only add to the problem (side effects).
@@Claires2003 Hi there! We can connect on IG (@RoyJonesOnWheels) or, my channel email can be found under the about section of the channel page. Thanks!
I also have the same cp and I get jumpy when people call my name or touch me. My eyes are sensitive and when nurses come close to them I get scared. Yeah a heads up is best
I, too, have spastic diplegia cerebral palsy and I learned that most if not all spastic cerebral "palsists", if I can use that, have the same response and most
of the time, for me, my body moves as though I was startled but I was unaware of it. I usually get more startled due to the fact that my body suddenly moved
without my permission or intent. I prefer, when it happens, just act as if it didn't happen. It happens when I least expect it and it can happen when I can expect it (like seeing lightning and expecting thunder). It also happens when people touch me. This has always been the case, however, being molested doesn't help (I think I'm more jumpy when someone touches me, like a pat on the back, unexpectedly.) When I used to walk, car horns could cause me to fall because the jump in the body causes me to lose my balance. People cannot overstimulate the response to exhaustion-- if that was the case, I would not have it today as I was bullied with that pretty much every day of my life in public school. But I did take that idea and used it to my advantage many years ago (like in the 1990s). I surround myself with sound as in I make myself available to bands (I was involved with my cousins' band, then when I returned to the Roman Catholic Church, I got involved in the youth band and finally, now that I am no longer a Roman Catholic but still a Christian, I got myself involved in the Church band), I play music in my vehicle, I usually have something on like a radio, tv, and anything that produces sound to muffle unexpected sounds. I know it sounds counterproductive but that helps. To my knowledge, there is no cure or treatment that is worth taking a risk, like you said, taking medications will only add to the problem (side effects).
I have cerebral palsy and I have this problem, it's so difficult and people don't understand , it's good to know I'm not alone.
Glad that I'm not the only one that has this problem.
You are not alone!
I have a startle reflex and there is a natural way it’s called rhythmic movement it’s really helped me no medicine needed
Thank you for sharing! I have never heard of this, but I am going to look into it!
@@RoyJonesOnWheels is there a way of getting in contact with you can send you articles about it
@@Claires2003 Hi there! We can connect on IG (@RoyJonesOnWheels) or, my channel email can be found under the about section of the channel page. Thanks!
@@RoyJonesOnWheels ok thank you
I also have the same cp and I get jumpy when people call my name or touch me. My eyes are sensitive and when nurses come close to them I get scared. Yeah a heads up is best