Calling The Ambulance Again
HTML-код
- Опубликовано: 6 сен 2024
- Not even 24 hours after Lonnie was discharged, we had to call 911 for the ambulance to come again. His oxygen needs have gone up so we needed to make some emergency changes.
My son had a dental surgery in October 2022 triggering a rare autoimmune disease we didn't know he had (ANCA+ Vasculitis). This caused bleeding in his lungs which ultimately impacted many organs but has damaged his lungs to an irreparable point. He now needs a double lung transplant. He has given me permission to share his story ❤️
💰 Donate Here 👉 www.gofundme.c...
⭐ Lonnie Jr Playlist 👉 • Lonnie Jr
💖 Confused about our family? Go here 👉 • MOST Asked Questions A...
🧩 Merch 👉 teespring.com/...
🧩 Amazon Store 👉 www.amazon.com...
🌈 TikTok 👉 ourlandingcrew
🏔 We would love to hear from you👇
Our LANDing Crew
TBA
⭐ Special Needs Parent DISCORD 👉 / discord
⭐ Neurodivergent Friends DISCORD 👉 / discord
Business Inquiries 👉 tubalreversalmom@gmail.com
Parent Support 👉 ourlandingcrew@gmail.com
Follow Us On Social Media👇
IG & TikTok 👉ourlandingcrew
💰Donate & Regular Updates Here 👉www.gofundme.com/f/ourlandingcrew
Please don’t feel like you need to defend yourself against these ignorant fools. You are doing the best that you can for you, your son and the rest of your family. Keep doing you, keep doing whatever you do to cope with what is happening. The people who “know” you, know this is not a cake walk & you’re putting on a brave face for everyone. We’ll all be here to support you.
Steph don’t ever be sorry for being you. I’ve always admire how knowledgeable you are and the fact that you take the time to educate yourself.
We fear what we do not know!
When you need to let it out ..come on here and let it out.. we are here for you!!❤
Praying for Lonnie Jr.This too shall pass.🙏🇨🇦
I am so glad I found you all! You are the best part of my life! I love you all so much!! GOD BLESS YOU ALL! 💋💋💋💋
One of my friends had a lung transplant 10 years ago and he’s still going strong. Another friend son just had his SECOND heart transplant and is doing well. They’ve come a long way.
I LOVE hearing stories like this, thank you
@@OurLANDingCrew8 I wish I could connect you with him. Do you want me to ask him if he’d be willing to talk to you at all?
It's been a while since I've dropped in..I want you to know that feeling positive, having a positive attitude is great and I get it. If in were in your shoes, so would I. You having hope is beautiful and is just how you should feel. I too have great hope..and I think your son will do great when he gets his new lungs! You hang in there..don't worry about what others say or think, you all got this!
So sorry, this is happening, keeping y'all in my thoughts ❤
How? How do you do it? I’m so inspired by you. Your strength is remarkable. Giving the kids individual one on one time, while going through this devastating & scary situation, & you manage to smile through it. I feel like you can’t catch a damn break, but you just keep going. 🥺 I’m proud of you Steph. Praying for Lonnie and all your babies, but praying for you the most. You’re the captain, the conductor, the leader of the pack, so I pray for your strength, perseverance, & solace while you walk through the unknown. Sending you so much love, and may the Lord, direct your steps. ❤
I’m a 21 year old chronically I’ll mom not to Lonnie’s extent but it is SO hard! I’m sending all my love and prayers to you guys
Continued prayers for Lonnie jr. Stephanie just want to say you are doing the best you again and you are a blessing to your family.
You are a tower of power....I cannot believe how difficult this must be. Just counting the minutes until the transplant can take place.❤
Jeez Noah looks all grown up. He's so cute !! Thank God your respite care worker is still there, what a relief she must bring for you at this time
Any relatives coming to CO to help the other children out so you both as parents can spend A lot time with Lonnie Jr!!....let your tears flow!
I am so sorry Stephanie. If I could reach through the screen to give you a big hug I would !
Don't ever apologize for crying Steph. Your keeping on top of all the things. I hope your able to at least get some sleep as well
You have to keep positive to deal. I have done this myself when talking about my son, who is not only autistic but has gone deaf and blind over the years.
I have seen people like you when I worked as a nurse with kids who had heart defects and cancer.
You can't cry all the time. You just have to deal, and be strong for your kids.
"You can't cry all the time." This. This is it. Like yes, we have emotions but we also have to function.
You are very brave and strong. The last thing you ever need to worry about is whether or not people approve of the way you talk or think or do things. It is your life, it is your family. You are defying the odds and excelling at it. Well done!
Continued prayers for Lonnie Jr and you Stephanie. God bless you.
What you’re doing is called infodumping and I live for it lol. It’s one of my favorite past times. I know so much about vasculitis because I have an autoimmune disease and my dog has vasculitis. My emotional display doesn’t match what I say my emotion is…so I totally know you’re scared and sad. Please take care of yourself too ❤
Sending my prayer for Lonnie jr. speedy recovery! ✨🙏🏿✨🙏🏿✨🙏🏿❤️🥰
Thank you for all the updates!! I continue to pray for Lonnie Jr. and all of you!!
Stephanie you make more sense than I would in a similar situation. Be safe. Thinking of you and your family.
I can feel your trembling heart. I am so sorry. No one will will agonize like a mama. Lonnie is a warrior! He WILL come out on top. Having you as his mom makes all the difference. Praying for you all. Stay strong, Lonnie❤
Still praying for Lonnie Jr and your whole family. I don't know how you do it. Stay strong and keep the faith
Stephanie, I’ve been following your family for awhile now ( through Emily Wallace). My thoughts and prayers are with Lonnie Jr… 🙏❤️
Thank you so much Cynthia!
Gentle thoughts for you, Steph-and I am holding all of you, especially Lonnie, in the Light. Be blessed, all of you. 💕🌺💕🌺
Stephanie..
I'm so sorry you are in this situation . As a Mother, I can't even imagine what you're going through trying to take care of Lonnie as well as tendimg to the needs of your other children. Please be kind to yourself my dear. You are truly doing an amazing job. Please know you and your family are in my thoughts and prayers. 🙏 God Bless you all...😢
I am so sorry that this is happening. Praying that it gets better. ❤❤
You are a hero for your children!
Stephanie, you are like myself but with different medical things. When you are around so much medical stuff you learn, you research, you retain information because it matters that you know and understand. I get it 100%, and it is not excitement over any of it. It is anxiety over it all. If you were not terrified, I would question things. I mean, let's face it they did NOT send my husband 12 hours away to see a Dr because he has a common illness. Transplants are not for people without serious issues. Prayers, I think you are doing an evaluation this week. I have a hard time keeping up, and that is why I just finished this video. I am sure I was interrupted and didn't get back to finish lol hugs to all of you.
I would be a absolute mess if something like this happened,you are so strong 💪.
DiecFam here! Starting at 20 min mark... I believe you. I know you don't have to explain yourself, thank you for doing it anyway. Not because I'm new, but because I'm newly diagnosed autistic/adhd and you have a way of explaining my thoughts. Big hugs, you're doing great momma! ❤
I still think it was a good decision to take him home. The hospital was right about you knowing when he needed to come back. I don’t think they would realise how urgent his condition was until they tried to let him leave. I’ve been on a bipap in the ICU when I was septic. For me it was incredibly painful because one of my chronic pain conditions is TMJ in my jaw, so the pressure was excruciating. That said, I willingly went back on it when they let me try to breathe without it. Cutting off a person’s air is terrifying & it triggers the primal fight, flight, freeze or fawn response. So I get why Lonnie jr is struggling mentally/emotionally as well as physically with all of this. Try to remember to take care of yourself too mama, you won’t be able to help the kiddos if you’ve got nothing left in the tank
I wish I had a magic wand. Bless your heart Stephanie. I’m praying and sending tons of positive vibes your way. I wish I could hug you. I know that’s weird I don’t even know you ❤
Don’t apologize for crying or taking a few moments to be human! This is scary, you’re right! And it’s ok to not be ok sometimes. I think we would be more concerned if you didn’t break down once in a while. I don’t have kids, and I can’t imagine what you’re going through, but I know how much my heart hurts for you and your family and I can imagine how much that would be magnified for you. Stay strong when you can be, when you can’t, don’t. He will get through this, I know it!
Hugs Stephanie I hope Lonnie gets his transplant soon ❤❤
Praying for you guys daily
Thank you SO much!
I’m so sorry your family is having to go thru this. Wishing your sweet boy the best. Love from Texas ❤
Steph and Lonnie I’m so sorry this is happening. Y’all in my thoughts and prayers ❤️🌻 Be safe Your long term followers are there for you. Share what you want❤
Awww honey I am so so sorry! I'm hoping this is all over soon. Love you and your family
I’m praying for you guys.
Having a child who had a similar disease when he was young I can totally connect. My heart and prayers are with you and your family. I am so impressed with how you are managing to pay so much attention to your younger children at this time. I do know it is difficult. Keep asking medical questions and keep looking out for Lonnie Jr. I know your heart is troubled but know that so many prayers are going out to your son until he is back up on his feet! Blessings!
It’s soooo hard but I also know that it’s important they get time with me as much as possible even if their brother is sick.
@@OurLANDingCrew8 and if you get help from others take it. Prayers and blessings!
I'm sending you, LJ and the whole family all my positive vibes. ❤
Jesus has your back Lonnie JR....NEVER GIVE UP!! ❤ from your Minnesota Fan!!
Sending love and healing energy for Lonnie and your whole family ❣️
Bless your heart Mama. One can only imagine what a parent goes through when their child is sick. My continued prayers for your son and your family.
My God no one should ever question you or make statements like that. Educating yourself about his illness is best for you and him. You are a tower of strength and doing much more than I could ever do. You are a beautiful person and wonderful mom. I am keeping you all in my thoughts and prayers. Stay positive and strong. Much love.z
Prayers for Lonnie, you and the whole Landing crew!!! God will see you through this! Sending you lots of love and many virtual hugs from down here in Central Texas!!! ❤❤❤
my heart goes out to your beautiful family your an amazing mama sending a prayer,hug
Aww precious Noah! He is getting so grown!! So handsome ❤ I love that you’re giving each kid their special day with you I know it means the world to them right now. Always thinking of and sending positive vibes to Lonnie Jr ❤
You’re such a strong mama! Hang in there & praying for you guys! 🙏❤️
I’m praying for you guys🙂❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Trying to heed what you said in the last video: There are some things that are just out of our control. Probably the only way to deal with situations as difficult as yours. - Still keeping all fingers crossed! ❤❤
I'm so sorry you even feel the need to explain things. Your doing everything right and you should feel very proud of yourself...your a wonderful mother in every way.
Continued prayers!!!
Every time you post an update I still can’t believe that this is happening. I’m really sorry and as always, sending prayers of love and healing.
It's weird because I can't believe it's happening either. Every morning I wake up, for the first 5 seconds I forget the nightmare I am living.
@@OurLANDingCrew8 I truly don’t know how you find the strength to keep going! I had a kidney transplant which I know is very different from what Lonnie Jr. is going through but I am happy to offer any advice from a transplant recipient perspective if it helps at all. 😊
Thank you so much :)
Lonnie Jr is still on our prayer list and prayer app hugs. I been on cpap and bipap for a couple years and it can definitely make u feel suffocated and forced air. Its uncomfortable
Man Stephanie! You amaze me more every time I watch you! I sure hope you know your worth! Most selfless, giving, loving Mother❤️
I hope when Lonnie Jr. is healthy, you get some you time! I know you wouldn’t have it any other way, but you seriously deserve the world!
Thank you for continuing the videos. :) Thoughts & prayers for Lonnie Jr. you & your family. I hope for those who don't understand or are new can learn. I hope they can be kind. I can't imagine how hard this journey has been. Always thankful for YT as I can't be on all the platforms.
Watching from Scotland - you are a complete power-house/warrior - amazed at how your doing it all....its extreme. Try to look after yourself....your doing such a great job x
Your an amazing mom! ❤ Stay positive and lots of prayers ! 🤗 🙏
I'm so sorry ya'll are going through this. Prayers sent 🙏
I love watching your content, you are an amazing momma, and I pray every day for Lonnie and your family!!!
Being strong doesn't mean that you won't struggle. May the God of all comfort sustain Lonnie and you and your family. 🧡
And I'm the same way--when I have gotten new diagnoses, I research as much as I can so I'm more prepared and that helps take some of the anxiety out of it. It can be a really good thing for some people. And talking about things can be therapeutic too (it is for me too). I haven't once gotten the impression that you're excited about it; that's crazy that people would even think that.
I appreciate the updates and hope that things will improve in time.
Sending prayers for Lonnie and you Stephanie, I hope you have family that is able to help you, it's a lot of stress on you being away from your other children. God bless 🙏🙏
Sending hugs and prayers 🤗🙏❤️❤️❤️
Keep on one step at a time, you’re doing a fantastic job dealing with things most of us will hopefully never have to. Sending lots of love and best wishes to you all x
So very sorry. Praying for y’all 🙏🙏🙏.
I’m keeping you & Lonnie Jr. & your family in my daily prayers.
Your doing a great job with his medical issues & ur other kids as well to have family time when your home! God bless you always!!
You are amazing, GBU and all family, love from UK
Thank you for sharing. Prayers continue for Lonnie Jr and your family. God be with you all.
Many prayers for Lonnie and you and your family!
Poor kiddo. Hang in there mama. ❤
Continued prayers for Lonnie Jr. And your family ❤. Might I add I’m so grateful that you have Kathleen. She seems AMAZING and the kids respond so well to her. It’s a Godsend you have her there when you can’t be.
Kathleen has literally carried our entire family these last few months
I’m praying for Lonnie. ❤
Your utterly amazing momma! ❤
Sending love and prayers from Australia ❤❤ you are an amazing mum and you have an amazing son ❤
I know I don't know you personally because I only watch your vlogs. But I've watched you for such a long time and it's obvious you are a worried, scared mother and in absolutely no way enjoying this.
Never change yourself stephenie we love you and your family! And im praying for you guys❤❤❤
Even if you are trying to stay strong, you are allowed to be weak too. Don't forget to be kind to yourself
my heart breaks for lonnie jr he is only 17 i think and gone through so much. He deserve to be happy and not sick. I wish i could heal him so he could never suffer again. I been praying and i will keep praying that god heals him
Same. It's not fair.
Lonnie Jr still has a long road ahead of him. I am praying for all of you.
Praying for your Precious Son,,May God cover Him in Mercy and Grace,,And fill his soul with Healing 🕊️✌️🙏
It's heartbreaking that you feel you need to explain how you are to people. People who have never had their lives change in a split second will never understand. Just keep putting one foot in front of the other and moving forward. It's awesome that Lonnie is doing well at home! Hang in there!
Steph I’m going to continue to continue. You guys are going through some scary stuff. I know God will get you through these things and when you come out the other side you will be stronger and tougher than you are going in. Keep your chin up and keep those beautiful smiles coming. Lonnie is watching how mama handle it. We love y’all all 😘🥰
I am praying everything works out for your family. I don't think many people realize about the dangers of dental procedures when you don't know you have a underlying condition. I am familiar with the dental issue but was misdiagnosed with a weak mitral valve and had to take massive amounts of antibiotics before and after. Years later under anesthesia there was an issue so ended up with cawolf Parkinson White syndrome. Rare and had ablation. My granddaughter was born with it but thankfully she grew out of it m please be careful with any dental work. Any infection can go straight to the heart . Prayers for you
I am sorry for what your dear son is going through. My heart goes out to all of you at this time.
Always wishing your heart and mind to be strong to handle it all! You are amazing! Always praying for Lonnie jr to be protected and to be strong enough to prevail! ❤
I'm so sorry this is happening to Lonnie Jr. He's so young and it's not fair when young people have to go through something like this. I'm continuing to pray for him. ❤
I totally understand needing ALL the medical information about a diagnosis. I do that with my many diseases. I speak like a nurse, it's a whole thing. I just feel better with knowledge. Things aren't as scary if I know the potential effects of the condition.
I’m so sorry you all are going through this 😢! Still praying for all of you…Stephanie, you are amazing and God is carrying you through this season. 🙏🏼
Love you and your family so much. Many prayers from our house in SC.
i'm glad you got Ronnie Junior home and I hope all goes well. God bless us everybody in a lot of ways so I hope that all goes well for Ronnie Junior Lonnie Junior you're a strong young man and I hope somebody reads this to you because I want you to know that you are important and I'm glad that your mom and everyone else is rooting for you and helping you through all this and I pray that when you get your lung transplant that you will be able to do more and that you will be able to be home a lot with your family I just want you to know Lonnie that no one could ever say they know how you feel because they don't unless they are in your shoes. They should never say it, so Lonnie Junior I pray for you every night and I think about you. There are so many people struggling in the world and they struggle for all different reasons and people which would not be as comfortable as your parents are to help you. Some parents wouldn't take the steps that your mom has took to make sure that you're OK you got a good family and as I said, I will pray for you and I will find out more of how you're doing but I just to be negative toward you and your family. That is not my way of negativities not a good thing I want people hurt others it's wrong but Lonnie Junior I want you to know that I care and I live in Canada and I know people that have faced things like this not the issue you have but face either having a long eat or having transplants are never getting them and I have a friend that has pulmonary hypertension she'll never get lungs. She'll never get a new heart because she has a great big laugh hernia in her chest that they will not remove her fix. This young lady is on full-time. She's only 33 years old and all I'm saying to you is I wish you luck and I hope that you will get better. Have a good night and God bless you and your whole family and I hope I never say anything to hurt anybody and if there are mistakes in this Lonnie Junior just know that I have a visual challenge and I have to speak through my equipment and sometimes it doesn't do anything, right good night stay strong buddy because you've got people out there that care and will continue to those of us who understand not your situation, but understand that hospitals and medical stuff is not cool
The kids all look so grown up. Its ok, not to be ok especially with everything happening and changing. If I’m scared I will check things out online. I’m thinking about doing public / inspiring speaking etc to talk my situation. I know it’s hard watching and waiting for life changing surgery. It’s not something you can buy or make but a gift. Go and love all the kids.
Aww i wish we were friends and lived near you, ur the best mother in the world don't ever question that ever ❤ ur amazing ur children are blessed to have you as there mother
I’m so sorry you and your family are going through this I pray for your sons health and your family’s strength I love you all ❤
Love you all and I’m still praying every night on my knees for Lonnie Jr. I’m so glad you are getting one on one time with all your other children and having small breaks away! You are an amazing woman 🥰☀️💜🫶🎶
Appreciate the updates and hope we can be a safe place for you to process and get out the thoughts and feelings as you go through these trying moments.
u all are in my prayers.