I just started nursing school this week and my professor was talking about us all thinking of a positive saying for when we're in clinical and get nervous and my go to was "do what you think you can't do!" You guys are one of my many supports through school!! xx
There is a vlogger on RUclips called Chronically Jaquie. She has many illnesses and that you can relate to her. You might want to check her out. She lives in Florida.
My mom and I love to watch your videos together. She has sponge kidney, lupus, Graves' disease and lupus. I have kidney disease. We love seeing you guys everyday. We have your blue bird print in our living room framed, hope you have a lovely day from my mom and I in hamilton Ontario
reversevaccum I had a spinal fusion twice for scoliosis ,although it was painful it taught me alot about physiotherapy and medical knowledge. I work in the nhs so it comes in useful.
Our family grows/sells heirloom tomatoes and we have for several years. One thing I know is that tomatoes like a lot of room for their roots and they like HEAT. If they have those two things, every-other-day watering should suffice :)
I was just watching the yesterdays vlog and was already at 10minutes or so, and was thinking "Oh.. That's sad.. This is the last uploaded video!" and a few seconds later "New video from the freylife" And I got super happy, so now I am going to watch this one!
Hey guys - so great to see your smiling faces again today! I CAN'T WAIT to get our Overcomer bag that you shipped yesterday! It's going to be a little diaper bag for our 6 year old with Lowe Syndrome. He is such a fighter and is definitely OVERCOMING the odds so far with his little life. -Jessica
You were in my head all day yesterday Mary - I went shopping with my Aunt, Cousin and Grandmother and we went to a thrift store (Mary thought number 1), gardening place, Target (Walked all around and heard in my head repeatedly "Do what you think you can't do mhmm" because I never had walked the whole store, and I bought leggings there) and then we stopped at our local Dollar Tree.
I'm a medical nerd, too. I have Gastroparesis with a GJ peg feeding tube. Each month, my 4 boxes of medical supplies arrive. I love your positive attitude and outlook on life. You're very inspirational to me. :)
Mary you inspire me so much! You're so upbeat all the time and I love watching you guys. I pray that there's a miracle and a cure for CF one day. Stay strong and keep uploading videos! Kim from Canada
Im a nicu nurse and use both g-buttons. I love the mini one-- only thing is that you have to push a little harder when hooking up the extension tubing-- makes me worry about pulling on the site and causing irritation/granulation tissue over time. Love that it glows in the dark, too! :) Im interested to see which one you like best!
Both Mary and petter have inspired me to start up my own channel :) I plan on doing little bits of everything I was inspired because I my self was diagnosed with a rare medical condition at 13 years called wagr syndrome I wanna share my story with the word and how rare this syndrome is
I'm right with you in being a medical nerd! Maybe it's partially being raised by a doctor and having students with various diagnosis but I find it fascinating. Generally when you mention or experience something new I go and look it up so I already had researched the differences between the mic-key and mini buttons.
I love my AMT mini one tube! Another fun part is the mini one tube glows green along with the ports on the extensions! Those little things like glowing in the dark make having a tube more fun!
I just love you guys so much, BLESS YOUR HEARTS, OUR BROTHER RONNIE PASSED AT 26 , I WILL SOON BUY ONE OF YOUR BAHS AS A HOSPITAL BAG BECOUSE I HAVE LUPUS AND 3 CHILDREN AND Y'ALL INSPIRE ME SO MUCH!LOVE YOU AND THANK YOU FOR ALWAYS STAYING SO REALL!
I am a medical nerd too! I have type 1 diabetes and I wear 2 medical devices, an insulin pump and a continuous glucose monitor. I love reading articles about new medical technology and I want to have a career in the medical field!
Dear marry and peter you have helped me so much through out my fathers illness and death and I am greatfu.l I only tell close friend and although I have not seen you in person and am taking a risk by commenting, I consider you two a good friend I have issues which I have mentioned before like Eplipsy absents seirzues with that comes with a lot of steriotypeing I will support you in what ever situ yourselves in
Hey, your crazy weather swings sounds a lot like Texas springtime weather when we say Mother Nature is having mood swings! Turn on the heat and don't get chilled!Hope the weather warms up again for you soon!
I always have the bell on, not only to stay subscribed and stuff but because you guys are my favourite daily vloggers and I always look forward to your videos ❤️
Hey Mary! Would you ever make prints larger than 8x10? I've been looking for a large flamingo to put in my living room and I love yours. I don't see a way to contact you via your online store. Would love to know if that would ever be possible or not!
Nothing wrong in being a medical nerd. You start to pickup the lingo of it. The more you know about things the better or its a learning process as you go. Sometimes doctors (not meaning to) over look things and if the patient brings it up as something to consider, who knows, they just might. Yep, always have to check the bell to make sure you get the notifications. If doesn't look like its "ringing", then no notifications for you!! Awww, Ollie looked cute when he was blinking!!! Seriously, if you guys made a stuffed animal toy of Ollie boy, I betcha they would sell super fast!! Then you could donate the money to either CF or for service dogs care packages. Have a great night guys!!!
Thanks for mentioning the problem with RUclips "unsubscribing" people. I look for your videos in the evening when I get on the computer but never noticed that I had been unsubscribed at some point. Needless to say I went back and subscribed again to your channel. :-)
Hi! I'm a new sub, and have fallen in love with you all! Such a beautiful family! My sweet little son has a mic-key button (g-tube). I'm interested to see how you like the mini one. We were thinking of switching. I will stay tuned :)
Mary, I'm the same way when I talk about my condition and the various procedures I've had done or the various meds I've been on and am on. New doctors have told me that they are scared of me and my knowledge. But I'm the only college graduate in my family that didn't go on to become an RN.
Mary! Remember what you said about the Jtube being like an extreme body piercing? It kinda makes sense, because with piercings, the person performing the piercing will put in a larger piece of jewelry in order for the piercing to swell and heal, then once it's healed more, they'll place a smaller piece of jewelry in the piercing as it's more comfortable and sticks out less, just like the mini! :)
OMG Mary!!! You need to find a way to get the "Do what you think you can't do" as a sticker for like gym bags!!!!!! That would be amazing! Or like transfers to a gym shirt of some kind!!
Supposedly, the bell will notify your subscribers when you have uploaded a new video. Not sure how effective it is tho... good luck! Love your channel!
Hi, Mary! I currently have walking pneumonia, which paired with my asthma is pretty miserable. I know this can't compare with CF and what you go through, but I was wondering if you would have any tips and tricks up your sleeve for some relief. My ribs are so sore from coughing so much and I'm having such a rough time. Major props to you for being so strong.
I am also a medical nerd. I just got diagnosed with either a staph infection, pseudomonas, or a random antibiotic resistant bacteria. (sorry about my spelling of things) Ive had this chest infection without knowing I had one for most likely over 6 months. Please say some prayers for me y'all.
I laughed when you mentioned your rosey cheeks in yesterday's Vlog .. mainly because I've been looking pretty well this week and I'm in mid Rheumatoid Arthritis flare up wierd eah... I love been told I'm looking "so well" lol I'm waiting patiently for my tote bag... xxx
I've clicked the bell on ALL the vlogs I'm subscribed too and I never get notified. I've checked my settings with RUclips and on my phone and from what I can see it's all set up correctly. :( I just have to make a point to come see y'all each day!!
Hi Mary! I had a question! I have CF as well, I have both strains of the F508 mutation and was prescribed Orkambi almost a year ago. I don't know if I missed what strain you have, but I was wondering if Orkambi is an option for you?
I think she has two other different mutations. :( There's a video on there somewhere, maybe the Q & A about cystic fibrosis playlist or something?? There are new medicines for other mutations in the works right now, though, also. Hopes and prayers to all the great researchers!
I use the phrase, "Do what you think you can't do" when I do anything because I have several neck and spine issues. When I do my husband calls me Wonder Woman because he wanders why I do the things I can't do. Lol. Wish I could get a canvas bag with that phrase but I'm always broke. Love the bag though!
We give our dog the same dental chews, and we laugh because it makes his poop bright green. It actually helped when a neighbor (apartments) was blaming us for someone else not pick up after their dog. Anyway, enough with random story time lol
you should film every time you cough in a day and post it unedited! i think it'd be a really interesting and important way to show the reality of CF and such
Clicking the bell doesn't seem to unsubscribe you. However, it can get complicated from there. Sometimes, "apparently" if I have already hit the bell- i.e., turned on notifications-- it won't show me the screen which lets me know that I have done that and show me my notification options. Then I have to unsubscribe and re-subscribe to see for sure that I have clicked on the bell to turn on email notifications. Was that helpful, or just entertaining???? ;)
Have you ever collaborated with Delta Phi Epsilon, they raise awareness for Cystic Fibrosis as well as Eating Disorders! They are apart of the foundation they give money too which is part of the treatment and the walk you previously did!
I was unsubbed and I did in fact have the bell pressed. I don't know what YT is doing these days! I thought unsubbing had calmed down!! I'm glad you are feeling a bit better!! Yay for progress!! :)
I couldn't have a button. My feeding tube was both in my stomach and jejunum so the tubing extended about 6 externally. Which was fine, except when I was unhooked because just having that hanging was annoying. I had to have both though because while they fed me through the jejunum one, they had to vent/empty my stomach contents at the same time because my pancreas was nonstop backing bile into there.
I just started nursing school this week and my professor was talking about us all thinking of a positive saying for when we're in clinical and get nervous and my go to was "do what you think you can't do!" You guys are one of my many supports through school!! xx
We're all becoming proud medical nerds with you, Mary! ;)
love your vlogs thanks for being here to help chronic illnesses
Ontario is walking for CF! Canada has your back, Mary!
Woohoo! Go Team Frey Life Ontario!
Catherine Ward where (what city) is the Ontario walk?
Alexandra Rose just look up CFF of Ontario and you will find walks in different areas
There is a vlogger on RUclips called Chronically Jaquie. She has many illnesses and that you can relate to her. You might want to check her out. She lives in Florida.
Denise Roman someone on here mentioned her channel and I've been watching her too!
My mom and I love to watch your videos together. She has sponge kidney, lupus, Graves' disease and lupus. I have kidney disease. We love seeing you guys everyday. We have your blue bird print in our living room framed, hope you have a lovely day from my mom and I in hamilton Ontario
abby biggs I also have lupus 💪💜 I am trying in my area to get more lupus awareness and also a support vlog started, I would love to chat with your mom
abby biggs i have a kidney disease too. do you do dialysis? i have done dialysis for 1.5 years and my stepfather donated his kidney to me in january!
My mom had surgery this week and everyone in my family is grossed out by all of it and I'm fascinated
reversevaccum I had a spinal fusion twice for scoliosis ,although it was painful it taught me alot about physiotherapy and medical knowledge. I work in the nhs so it comes in useful.
Our best to your Mom and family. With my prayers. Best wishes to you all.
I hope her recovery goes well!
You are interested and will be the one helping her the most. Thank you. And hope she gets better soon
I love how as soon as The Frey Life videos post there are always dozens of views. You are both an inspiration.
Our family grows/sells heirloom tomatoes and we have for several years. One thing I know is that tomatoes like a lot of room for their roots and they like HEAT. If they have those two things, every-other-day watering should suffice :)
I almost always end up with a smile on my face after watching each of your vlogs. You cannot know what a blessing that is for me. Thank you both. :)
Libby, I am so thankful to hear this!
I was just watching the yesterdays vlog and was already at 10minutes or so, and was thinking "Oh.. That's sad.. This is the last uploaded video!" and a few seconds later "New video from the freylife" And I got super happy, so now I am going to watch this one!
Seka Ruri ii
Have you watched all the old ones starting with 2014 yet? They have a whole backstory for us, lolol! ;)
2listening1 I was just thinking that hahaha
hope you are enjoying your move l
Yes, I have been following for a few years now ^~^ Watching everytime when I can!
I'm new to your channel, but I LOVE your attitude! You've definitly earned a nee subscriber! Love y'all
No debating, if cold heat comes on! If to hot ( for me over 85 plus humidity) AC comes on.
Ac never gets turned off here. (Texas) my family likes it freezing
Hey guys - so great to see your smiling faces again today! I CAN'T WAIT to get our Overcomer bag that you shipped yesterday! It's going to be a little diaper bag for our 6 year old with Lowe Syndrome. He is such a fighter and is definitely OVERCOMING the odds so far with his little life. -Jessica
I absolutely love 2.13 to 2.20 in this vlog and Mary's reaction. Wonderful
I love how you analyze your medical supplies! I do the same thing with mine!
Sweet the new Frey life :)
You were in my head all day yesterday Mary - I went shopping with my Aunt, Cousin and Grandmother and we went to a thrift store (Mary thought number 1), gardening place, Target (Walked all around and heard in my head repeatedly "Do what you think you can't do mhmm" because I never had walked the whole store, and I bought leggings there) and then we stopped at our local Dollar Tree.
Haha I'm a medical nerd too
PotsAndPups same here!!! but I also work in pharmaceuticals so it's in my blood :)
PotsAndPups I am also
Same! For me I've had health issues for basically my whole life (genetic mutation) so I'd say it's in my "blood" too lol
same I'm had min my hole life
I'm a medical nerd, too. I have Gastroparesis with a GJ peg feeding tube. Each month, my 4 boxes of medical supplies arrive. I love your positive attitude and outlook on life. You're very inspirational to me. :)
Mary you inspire me so much! You're so upbeat all the time and I love watching you guys. I pray that there's a miracle and a cure for CF one day. Stay strong and keep uploading videos! Kim from Canada
Im a nicu nurse and use both g-buttons. I love the mini one-- only thing is that you have to push a little harder when hooking up the extension tubing-- makes me worry about pulling on the site and causing irritation/granulation tissue over time. Love that it glows in the dark, too! :) Im interested to see which one you like best!
the bond of olly and peter always makes me smile
Glad that you were able to make both of the walks this past weekend! BTW, saw a report that a form of Kinder Egg is coming to the states!
Both Mary and petter have inspired me to start up my own channel :) I plan on doing little bits of everything I was inspired because I my self was diagnosed with a rare medical condition at 13 years called wagr syndrome I wanna share my story with the word and how rare this syndrome is
Mary, I just wanted to say great job!! Doing your vests and handling all your "stuff" each day. We're cheering for ya
Awe, thank you. Seriously. thank you for your encouragement with all my stuff :)
Bless you Mary, Peter and Ollie! 🙏💜👍
I'm right with you in being a medical nerd! Maybe it's partially being raised by a doctor and having students with various diagnosis but I find it fascinating. Generally when you mention or experience something new I go and look it up so I already had researched the differences between the mic-key and mini buttons.
you are such an inspiration mary
I'm going to edinburgh for the first time today! :) Thinking fondly of your first few months of vlogs xxx
I love my AMT mini one tube! Another fun part is the mini one tube glows green along with the ports on the extensions! Those little things like glowing in the dark make having a tube more fun!
I really hope you enjoy the mini one just as much as I do! I send the best well wishes during your first tube change!
I just love you guys so much, BLESS YOUR HEARTS, OUR BROTHER RONNIE PASSED AT 26 , I WILL SOON BUY ONE OF YOUR BAHS AS A HOSPITAL BAG BECOUSE I HAVE LUPUS AND 3 CHILDREN AND Y'ALL INSPIRE ME SO MUCH!LOVE YOU AND THANK YOU FOR ALWAYS STAYING SO REALL!
I am a medical nerd too! I have type 1 diabetes and I wear 2 medical devices, an insulin pump and a continuous glucose monitor. I love reading articles about new medical technology and I want to have a career in the medical field!
Dear marry and peter
you have helped me so much through out my fathers illness and death and I am greatfu.l I only tell close friend and although I have not seen you in person and am taking a risk by commenting, I consider you two a good friend I have issues which I have mentioned before like Eplipsy absents seirzues with that comes with a lot of steriotypeing I will support you in what ever situ yourselves in
We love It's Us too! They have an awesome channel!
Mary ,if you are nervous about your procedure you will be fine I have faith you will be ok. Just pray about it.
Hey, your crazy weather swings sounds a lot like Texas springtime weather when we say Mother Nature is having mood swings! Turn on the heat and don't get chilled!Hope the weather warms up again for you soon!
I always have the bell on, not only to stay subscribed and stuff but because you guys are my favourite daily vloggers and I always look forward to your videos ❤️
What is with your weather???? That's crazy!
Judith Montel I agree strange weather. But the weather in Iowa has been pretty crazy too.
wow...
Judith Montel Missouri is like this too!! Once had a tornado on New Year's Eve!!
@Steffyqueen Lea - eeeek!!!
When I first saw the intro, I thought the "it" you couldn't wait to see was the lab report, lol. That would have been "even" more nerdy, heh, heh! :)
RUclips undid my bell settings for you guys. I wondered why I wasn't getting notified when you posted. Now I know and have reclicked the bell.
I was at the Great Strides walk in Chicago as well!! It was so amazing!☺️😍
Were you really Gabby?! That's awesome! Did you see Arianna?
The Frey Life i did actually! And I just watched her vlog and I seen some of my family in the background of one of her shots!
Hey Mary! Would you ever make prints larger than 8x10? I've been looking for a large flamingo to put in my living room and I love yours. I don't see a way to contact you via your online store. Would love to know if that would ever be possible or not!
I would say you should send them an email. It is on the about tab on their channel
I went to high school with Arianna from It's Us. I don't know they made RUclips videos until you guys mentioned it a while ago. What a small world.
No way?! That's awesome!
I decided to be a nurse and started watching your videos because I am a medical nerd!! Unite!
Medical nerds unite!
It's really weird, but I love letting your videos kind of stock up, so I can have a Mary, Peter & Ollie marathon. :)
Love yall from Shreveport Louisiana. Mary, your hair looks so pretty. I looked away for a second and when I looked back the hoodie makes me at
♡ from Kansas
Nothing wrong in being a medical nerd. You start to pickup the lingo of it. The more you know about things the better or its a learning process as you go. Sometimes doctors (not meaning to) over look things and if the patient brings it up as something to consider, who knows, they just might.
Yep, always have to check the bell to make sure you get the notifications. If doesn't look like its "ringing", then no notifications for you!!
Awww, Ollie looked cute when he was blinking!!! Seriously, if you guys made a stuffed animal toy of Ollie boy, I betcha they would sell super fast!! Then you could donate the money to either CF or for service dogs care packages.
Have a great night guys!!!
Mary, I think your assumption is correct. at least for mine.
Your weather is crazy! Lol. I live in Az, which can be not so great sometimes...like today when it was 108! No, I'm not ready for summer.
So excited for my tote bag to arrive !! Xx
goodmorning mary n peter ♡ God bless
medical stuff fascinates me so much, too!
Thanks for mentioning the problem with RUclips "unsubscribing" people. I look for your videos in the evening when I get on the computer but never noticed that I had been unsubscribed at some point. Needless to say I went back and subscribed again to your channel. :-)
Thanks for subscribing and resubscribing Liz :)
Hi! I'm a new sub, and have fallen in love with you all! Such a beautiful family! My sweet little son has a mic-key button (g-tube). I'm interested to see how you like the mini one. We were thinking of switching. I will stay tuned :)
Mary received both of the very different, equally rare humor genes from both of her parents.
I follow Zdogg so I've learned alot over the last year or so
We've had crazy weather here in Michigan too. We had the AC on then the next day or so we have the heat back on.
I was the sameway as you. couldn't wait to see it.
Mary, I'm the same way when I talk about my condition and the various procedures I've had done or the various meds I've been on and am on. New doctors have told me that they are scared of me and my knowledge. But I'm the only college graduate in my family that didn't go on to become an RN.
glad your out of the ruff morning stage
As always...Daily love💙💙💙
I love you guys 💕💕
Mary! Remember what you said about the Jtube being like an extreme body piercing? It kinda makes sense, because with piercings, the person performing the piercing will put in a larger piece of jewelry in order for the piercing to swell and heal, then once it's healed more, they'll place a smaller piece of jewelry in the piercing as it's more comfortable and sticks out less, just like the mini! :)
Love your vlogs! :)
Hello Mary, Peter and Oliver, I hope everything is okay I love your story!
I cracked up when they mentioned the toaster and right after the toaster went off! Hah! Praying for you both!
Now I want whatever you were eating on Instagram. Tell us all about it tomorrow!
OMG Mary!!! You need to find a way to get the "Do what you think you can't do" as a sticker for like gym bags!!!!!! That would be amazing! Or like transfers to a gym shirt of some kind!!
Supposedly, the bell will notify your subscribers when you have uploaded a new video. Not sure how effective it is tho... good luck! Love your channel!
Hey mary!! how are you!?
lol I end every vlog in the bathroom. It has the best lighting in the house at the moment.
Nice button pad. Very cute.
When you said Mic-key and Mini it made me smile because it's like Mickey Mouse and Minnie Mouse, the colors match the names!
Hi, Mary! I currently have walking pneumonia, which paired with my asthma is pretty miserable. I know this can't compare with CF and what you go through, but I was wondering if you would have any tips and tricks up your sleeve for some relief. My ribs are so sore from coughing so much and I'm having such a rough time. Major props to you for being so strong.
I am also a medical nerd. I just got diagnosed with either a staph infection, pseudomonas, or a random antibiotic resistant bacteria. (sorry about my spelling of things) Ive had this chest infection without knowing I had one for most likely over 6 months. Please say some prayers for me y'all.
I was at the Chicago walk it was so much fun!!!
Hi u guys are so amazing and inspiring ❤️❤️❤️❤️❤️
I have hit the bell and never miss a notification of your vlogs and never have been inscribed, so maybe that is the solution.
I laughed when you mentioned your rosey cheeks in yesterday's Vlog .. mainly because I've been looking pretty well this week and I'm in mid Rheumatoid Arthritis flare up wierd eah... I love been told I'm looking "so well" lol I'm waiting patiently for my tote bag... xxx
I've clicked the bell on ALL the vlogs I'm subscribed too and I never get notified. I've checked my settings with RUclips and on my phone and from what I can see it's all set up correctly. :( I just have to make a point to come see y'all each day!!
Hi Mary! I had a question! I have CF as well, I have both strains of the F508 mutation and was prescribed Orkambi almost a year ago. I don't know if I missed what strain you have, but I was wondering if Orkambi is an option for you?
I think she has two other different mutations. :( There's a video on there somewhere, maybe the Q & A about cystic fibrosis playlist or something?? There are new medicines for other mutations in the works right now, though, also. Hopes and prayers to all the great researchers!
Hi Mary, I was wondering where you got the big bed for Ollie. I have two huge dogs and that bed would be just right for my dogs.
This is the one we bought for Ollie amzn.to/2qgIk52
I use the phrase, "Do what you think you can't do" when I do anything because I have several neck and spine issues. When I do my husband calls me Wonder Woman because he wanders why I do the things I can't do. Lol. Wish I could get a canvas bag with that phrase but I'm always broke. Love the bag though!
HI Frey Life! :)
I'm a med nerd also! You guys make me smile!!! 😄😄😄😄😄😄
Just ordered a tote bag from you :) I also watch Its Us! Small world that you saw their video!
We give our dog the same dental chews, and we laugh because it makes his poop bright green. It actually helped when a neighbor (apartments) was blaming us for someone else not pick up after their dog. Anyway, enough with random story time lol
Keep fighting Mary
you should film every time you cough in a day and post it unedited! i think it'd be a really interesting and important way to show the reality of CF and such
We were going to go- but I had a vacation in ICU
Clicking the bell doesn't seem to unsubscribe you. However, it can get complicated from there. Sometimes, "apparently" if I have already hit the bell- i.e., turned on notifications-- it won't show me the screen which lets me know that I have done that and show me my notification options. Then I have to unsubscribe and re-subscribe to see for sure that I have clicked on the bell to turn on email notifications. Was that helpful, or just entertaining???? ;)
Have you ever collaborated with Delta Phi Epsilon, they raise awareness for Cystic Fibrosis as well as Eating Disorders! They are apart of the foundation they give money too which is part of the treatment and the walk you previously did!
I was unsubbed and I did in fact have the bell pressed. I don't know what YT is doing these days! I thought unsubbing had calmed down!! I'm glad you are feeling a bit better!! Yay for progress!! :)
I've had the bell on ever since I subscribed.
I am definitely a medical nerd... born with a very rare condition and going thru 38 surgeries made me one. :-)
I couldn't have a button. My feeding tube was both in my stomach and jejunum so the tubing extended about 6 externally. Which was fine, except when I was unhooked because just having that hanging was annoying. I had to have both though because while they fed me through the jejunum one, they had to vent/empty my stomach contents at the same time because my pancreas was nonstop backing bile into there.
And the extension cords in the mini-button are purple ).
the same weather is happening to us in Pennsylvania