Living with Moebius Syndrome: Life Lessons & Acceptance

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  • Опубликовано: 29 сен 2024
  • **January 24th is Moebius Syndrome Awareness Day 💜💜** Hi friends! January 24th is Moebius Syndrome Awareness Day and in marking this special day, I thought I would create a new video discussing the rare neurological condition I have lived with since birth. This year, I took a bit of a different approach for the video and included a couple personal stories that directly relate to living with Moebius and hopefully bring home the central theme that living with any condition including Moebius is a day-to-day experience in both positive & negative aspects. This is not scripted and is just a candid dialogue from the heart & soul. I appreciate everyone's kindness, love & support throughout the years truly so much!! It means the absolute world to me. Thank you! #moebiussyndrome #January24th #spreadawareness #lookbeyondfacevalue

Комментарии • 17

  • @crooster1
    @crooster1 8 месяцев назад +7

    Thanks for bringing this condition to my attention. Actually never heard about it before. You seem like a cool dude, take care friend.
    The YT algorithm works in mysterious ways sometimes.

  • @roningaming716
    @roningaming716 8 месяцев назад +6

    How long have you had a channel? You have my sub Brother, hope to see you on my one of my streams. Keep grinding. 🫡❤️

  • @denisekozak2030
    @denisekozak2030 8 месяцев назад +3

    God bless you brother i myself also have a birth defect.I was born with out hip sockets so I know what its like to be different I'm so glad you made this video I subscribed ❤😊

  • @BetaBuxDelux
    @BetaBuxDelux 8 месяцев назад +3

    Thank you for sharing. Wish you all the best man.
    I think when a relationship falls apart you have to fall in love with your plan “B”.
    I’m not sure what that means to me but after playing RDR2 for a while I want a place where I can fish and cook. I think that would make me super happy.

  • @CharlesOwenVALUEOFEVERYTHING
    @CharlesOwenVALUEOFEVERYTHING 8 месяцев назад +7

    Where you try you'll eventually find success.

  • @mysheitzbrown
    @mysheitzbrown 8 месяцев назад +2

    BALLSY MOVE MY FRIEND. Thanks for the education, wasn't aware of this. Have a great new year!

  • @tonygarea7925
    @tonygarea7925 8 месяцев назад +7

    Thanks for making this video! I did not know about this condition before this video. I wish you the best friend!

  • @therealDunkelheit
    @therealDunkelheit 8 месяцев назад +1

    Hi there, when I was little I had a neighbor with the same Syndrome, he was different and had the same handicap as you. I called him Dr. Robotnik from the Sonic Series. Now I noticed that in the Adventures of the Sonic the Hedgehog Show from 1993 had the Planet they were living on called Moebius, probably because of Dr. Robotnik having the same Syndrome.

  • @bjarnyg
    @bjarnyg 8 месяцев назад +1

    you should subtitle this.

    • @giorgipiorgi
      @giorgipiorgi 8 месяцев назад +8

      I understood him. Maybe your hearing is poor

    • @ArthropodSpidey
      @ArthropodSpidey 8 месяцев назад +9

      You should learn some respect.

    • @roningaming716
      @roningaming716 8 месяцев назад +7

      You're about to get ratioed 🤡

    • @dionnamorris6367
      @dionnamorris6367 8 месяцев назад +6

      L take 😅

    • @JZN-fq5fz
      @JZN-fq5fz 8 месяцев назад +4

      You should get a gf "i n cel" 💀