This is the best video on drugs for osteoporosis ! Just the facts vs scare stories. Please have this Doctor Rubin back for more info. She is fantastic. Thanks !
That was all very interesting, thank you. One thing I dislike a lot is when professional people call the stopping of potentially harmful drugs a "holiday". It is nothing like a holiday, waiting to see how much your bones deteriorate before being put back on the drug. It's condescending to have people call this time a "holiday".
Thank you, Margaret, for all your fantastic work on osteoporosis. As a "young, old" woman who had been on bisphosphonates for 9 years, then a holiday for 3 years with regression, and reluctant to go back on the drugs, I find this presentation invaluable. With a good education on all the details and nuances, we are able to come at this condition from a spirit of collaboration instead of fear! Thanks again.
No, I don't. In fact, many, many of us Osteo sufferers feel as I do. More info doesn't equate into what we all need to actually get better in reality. You are speaking only for yourself.
@@andreah6379 What do you mean when you say "what we'll need to actually get better in reality?" I'm not trying to cause trouble, I want to understand what you are saying. Thanks.
I was put on fosamax when I was in my 50s because of osteopenia and was on it for five years but then when had oral surgery and needed bone graft because I was told I had lost jaw bone and jaw bone was infected from having been on that medicine. So I have been afraid to go on any meds since but now have moderate osteoporosis. But I’ve very scared now to go on Prolia or Evenity or Forteo though my endocrinologist wants me to take them. But I don’t think she is appreciating my concerns. Doesn’t seem like there are safe drug options yet for those of us with osteoporosis
Best information to date on osteoporosis. As a pharmacist and patient, this is so timely and helpful. There are very few doctors so specialized. The aging population of baby boomers needs more practitioners like Dr. Rubin and physical therapists like Margaret. Thank you very much! I have hope that I can do something about my dire genetics and very poor bone density. Please provide updates on Evenity as more is known. Thanks again
Just came across this. I was diagnosed with osteoporosis but I've been doing lifestyle change and weight lifting and actually bone density showed improvement between first scan and second. Since then (2019) my gp has denied allowing me to get another dexa. Plus I was denied a referral to an endocrinologist. The latest thing is to tell women "thyroid issues are gp issues and no testing is necessary other than TSH". Regarding the "dreaded osteonecrosis of the jaw" - both my periodontist and dentist strongly (STRONGLY) recommend Not taking bisphosphenates. I have two implants, about to get a 3rd. My gp said, seriously, "would you rather have your teeth or spend the rest of your life in a rehab facility because you broke your hip." With the way women are treated it's no wonder we don't trust the medical profession, and the side of these meds are awful. Plus they're also pushing statins which are also Not recommended for people with osteoporosis. It's depressing how one medical specialist doesn't talk to another, and the whole situation starts feeling like a medical con. It's time for functional medical doctors to be covered by insurance. My mother was on bisphospenates for years. She suffered terribly from Gerd and died from a sarcoma at the base of her esophagus. Yet no doctor connected the dots. Docs are not looking at people as whole bodies. That's a crime.
I feel like she glosses over the GI side effects of some of these drugs. I took Fosomax for several years but the heartburn that it caused made me absolutely miserable on a daily basis. That's the reason I haven't started up on another drug treatment despite my DEXA numbers getting progressively worse.
Fosamax is a nasty drug with equally nasty side effects. There are better, safer and more natural treatment options now available. “Fosamax creates thick, but brittle bones. In October 2010, the FDA ordered Merck to change its drug label to reflect the bone-fracture connection. Fosamax use may also make fractures more difficult to heal.”
I agree! These drugs have nasty side effects and very slim benefits if any. I am researching. HRT which has a bad rep but I think may be a better alternative. Good luck!
I have had long term GERD and take 20 mg omeprazole daily. I’m nearing “middle old”. My rheumatologist wants to put me on Prolia since I have lost height but no compression fractures. What would I be able to take after Prolia? My pcp wants me to see an endocrinologist.
My mother-in-law is a 100 years old. Never went on this kind of medicine, she was always walking. Cause she worked in the hospital for 53 years. She's a 100 so far so good. She hasn't broken anything.
I really enjoyed her presentation. I would definelty want to see her. I am 72 with osteoporosis of the hips -2.8 and -2.9. I am so scared to get a fracture. My doctor here wants me on atelvia since I have thyroid disease. I was on fosamax for 6 years and then went on a holiday years ago. I was only early 50's when I did take it. I had plenty of problems with it. Acid Reflux plus swallowing problems. I wish I knew what to do.
I took biphos and suffered severe muscle pain. It was 8 years ago. Recently, I was offered Prolia, and after 1 shot, I developed bone spur in my spine which required surgery due to nerve pain . Also bone pain to the arm presented. I stopped the Prolia regardless what benefits it promised. The benefits are in the future but the side effects are now. I don’t see any documents mentioned the side effects I have endured
When you read the fine print with lots of drugs, you may come across a line that says, "...There may be other side effects not listed here." Disgusting. I would bet you if more men than women suffered from Osteoporosis/penia and couldn't get an erection, scientists & doctors would be scrambling for a cure !!
These drugs actually stop normal bone breakdown and rebuilding. That's why the jawbone and femur - the most heavily used - fail to build new bone and disintegrate. Side effect? WTF? All that happens is a crust forms on the outside of bones to make some of then appear "thicker." This whole thing is a pharmaceutical myth that it helps most people (women). It might be advised for someone who has an imbalance of bone formation, but that really really rare. The rest of us are being told we should be on these actually bone-destroying drugs. We get taken off for "vacations" before it's evident how much bone destruction they do.
Just turned 75 and my pcp said my DEXA showed osteopenia and prescribed Fosamax. I read about the side effects and was shocked to realize that my mom who had been on Prolia for two years got osteonecrosis of the jaw and her teeth loosened with no bone around some of them! Fosamax warned of the same side effects! No thanks to that poison! I’m increasing my weight training, taking a bone supplement and just got a vibration platform. And praying for a reversal.
Please keep me posted. I just got diagnosed with Osteoporosis and I’m only 26. I’d really like to know if alternative approach is better than fosamax (I’m also put on the drug for 2 months now)
Thank you, @Margaret Martin, Physical Therapist, for persisting in this conversation and asking the questions that your experience with patients leads to. The answers we get here are so much more thoughtful than the usual run of the mill -- particularly those produced by pharmaceutical companies!
Margaret I appreciate so much the series of information on prescriptions for bone loss. I am learning what my questions are before I see my doctor next month. I've been trying to figure out if there are actual bone specialists. But it seems like there are doctors and physiotherapists who have specialized in osteoporosis. Thank you for helping to empower me as a patient.
Thanks for uploading this video...the bone specialist dr is so refreshingly honest and frank about drigs benefits limitations and the fact that docs dont know everything.
Dr.Rubin, thank you. I'm a 'young-old', been on Prolia for 5 years. Information from my Endocrinologist is 'sketchy' at best. Your presentation was calming and informative. It will help me formulate my questions for my next visit. I don't feel so alone when it comes to osteoporosis. If I could ask a question, does Prolia help with osteoarthritis? Perhaps another video to address that one. Many, many thanks for bringing so much information to light.
I'm 56 and fell and had to have a hip replacement I was diagnosed ostoprosis ,this interview was just what I needed . I now feel confident about the medication I'm taking. I have my holidays planned in 5 years . I also have started taking estrogen. You really have made a positive impact on how i feel about my condition. Thank you .(from the UK)
not sure what estrogen you are taking but there is bio identical estrogen made from yams and can be obtained from a compounding dr with a prescription. it is a safer estrogen it is called c estriole it is not fda approved but used in europe for 40 years FDA can not patent it bc it is plants
Suzanne, thank you for sharing! I’m glad to hear you are recovering or recovered from a hip fracture. That is amazing. I hear terrible things about that which makes me so fearful. Your share gives me some comfort.
Why no mention of the newer osteoporosis injections Evenity or Romosozumab. This is s very expensive medicine to treat osteoporosis, and I understand that even with this expensive treatment from Amgen, after the treatment is stopped with the 12th monthly injection routine, the new bones that were built up during the treatment starts to decline quickly. SO what is the use of spending a fortune on this kind of treatment when it also does not last in terms of it's effects on building up newer bones and avoiding fractures in the future?
Hello, and thank you for so much of the information!!! I’m 57, dexa scan was -4.3 spine( 2 years ago) and have had 2 spontaneous fractures ( T8-T10) I have severe stomach issues( chronic gastritis and stomach ulcers) what do I do, where do I begin? Should I weight train, can I exercise? I’m completely lost, and very scared!!!
I just turned 50 had a DEXA scan and my right hip decreased 9.5% I have always been active (running, walking, weight training, cross-fit etc). I am baffled as to why I am loosing bone density. I will see an endocrinologist but I am researching now to get educated before I see the doctor. Thank you for your information.
My problem was a parathyroid ( we have 4) that wasn’t working right. It was pulling calcium from my bones and putting it into my blood, so my calcium level was almost 12. I had no idea, no symptoms. I had it removed but not before it drained my calcium from my bones. Good luck and find out soon!
Is Forteo a drug with many debilitating side effects? How effective is it in increasing bone density after using Fosamax for 2 years? I’ve read that the side effects are many and Forteo may not be as effective in building bone as we would hope, especially after many suffer from the terrible side effects the gains should be significant. I am young old and have fractured once. Forteo has been recommended. The information on the side effects and patient reviews are frightening. Do you have any information on Forteo, please?
My first Envinity shot at the Dr. office was a Monday. That evening my left jaw hurt so bad. And I I hurt all over. So bad that I called them because I have RA rheumatoid arthritis. I said I will never take that again no more shots. Because I felt like I was In total flare. On Wednesday I went to my Dentist appt. I told him I got some kind of a shot on Monday and my jaw was killing me. He canceled my tooth extraction that day and said we don’t know if you’ll heal because you did that shot. By Friday I was back at the Dr. office at his request. He told me my jaw could not possibly hurt. There was a 0.1% chance this could happen and that’s after many shots. And all this pain was from an RA flare. I told him. Well my RA flare started last Monday evening. I said, OK, let’s go with what you said. I’m not doing the shot again. RA is bad enough I do not need anymore pain. And 3 disks were messed up and I am waiting on back surgery. He talked me into doing the shot one more time but not for a couple months so I said OK. it took about a month and a half for all those symptoms I had to go away. It was awful stupid me did another shot. My jaw still hurt, but not as bad my left thigh was killing me. With the second shot. He reassured me that this was not from the shot and I reassured him that it was my left thigh, muscle bone, whatever still hurts and top it off my neck that I had gotten surgery on last year. It no longer hurt it was killing me. Like it never hurt before. Mostly at night. It’s been hurting so bad I made an appt with my neck dr. In two weeks I’ll get a neck x-ray. Before I see him. This Dr had fixed my neck and I had no more pain. He put screws and rods in my neck and in two weeks they fell out due to brittle bones, so I have no more screws or metal in my neck . I am afraid to lay down at night. I told him I’m not doing those shots again and he suggested proleia . . I’m not doing any shots ever again for my bones. My sister did Rosina’s for years. She’s paid thousands of dollars for her teeth because she has no bones left in her mouth.
I have RA 25 years and like you said we suffer enough pain without taking a shot to get more. I have been diagnosed with osteo and I’m upping my walking, resistance exercise and getting a vibration plate and continuing magnesium, calcium and vitamin D and vitamin k. I might take bisphosphonate for one year to get an initial boost in bone but then that’s it.
I’m 54 and dr wants to put me in Tymlos, you are saying not to start drugs til 60s. Should I wait? I’m in very good shape, exercise and eat well, but my t score is -2.8
I was on fosamax previously and the side effect I got from it was I could not swallow. I did not make the connection at the time and when I told my doctor I could not swallow, she had me go through all these tests to see why I could not swallow and luckily nothing was found. One day I checked the side effects of fosamax and sure enough difficulty swallowing was one of them! I immediately stopped taking it and I was able to swallow again. Now she wants to put me on prolia and I am very reluctant. I am trying to work on building bone density through diet, supplements and exercise instead. I may go on hormone therapy if nothing works.
My mom was on Prolia and after 2 years her teeth started to loosen! Her dentist showed me the X-rays that showed the bone in her jaw had disintegrated! A side effect of Prolia!!!
It is astonishing that nobody warned you of this risk, then when the symptoms happen it is YOU that discovers why. I was not warned of any risks, I wasn't even told to sit upright for 30 mins etc. My gut feeling told me this wasn't right, the whole thing didn't make sense - why did my doctor not even have a brief conversation with me before prescribing it?! I have not taken this drug and the more research I do, the more I am glad I haven't touched it. I'm am taking the same route as you - exercise and diet, rebounding exercise, vit D 4000u a day and K2. NOBODY has suggested this - only from my own research. I wish you the best of luck, please take care of yourself
My side effects from Prolia have been different than mentioned in this video. I was prescribed Prolia and experienced 12 continuous days of severe bone aches after the first shot. When I woke in the morning I had extreme stiffness and difficulty walking and moving throughout the day. I am 64 and felt like I was “old old”. I don’t know if this is common or not, but it was uncomfortable enough for me to chose not to continue with further injections. I am now on HRT in hopes that this proves to be a more effective treatment plan. I am told I should wait 2 yrs for my next bone density test to see if HRT helps. Very discouraging to have to wait and see, but I am hoping that my results are better in time. Maybe in 2 years there will be better alternatives.
Diet and exercise are far safer than any osteoporosis medications. We all age so stands to reason your not going to have the same bone density as when you were younger. I have high risk of a spinal fracture according to a dexa scan 5 years ago, I chose not to take Prolia and 5 years on I’m still fracture free.
Diet and expertise will not help much if you are in estrogen deficiency also known as menopause. We need to make estrogen replacement standard at menopause like it used to be before the flawed 2002 Women’s Health Initiative study. It was bullshit. They blamed blood clots and breast cancer on estrogen when it was actually do to starting women over 65 on HRT. HRT is healthy when started within 10 years of menopause. The sooner the better. After that the arteries have hardened to much an their can be an increase I. Blood clots or other heart problems. There is no evidence that HRT causes breast cancer. More breast cancer happens in older women weather on HRT or not. It is a condition of getting old.
This doctor is so refreshing. I wish I'd had a doctor with her perspective when in my late 50s she had me take a DXA scan. I have not had fractures and it would have been better if I had avoided having a diagnosis of osteoporosis purely based on the DXA scan. I wish I could have just carried on being active and healthy, as I still am at 65, and not have started on Prolia. Now I'm stuck on this drug. I didn't get good advice.
I have bad osteoporosis and am terrified.A fried of mine's jaw bone cracked totally in half with fosomax then had to go onto morphine for the terrible pain and now is addicted to the morphine.A nightmare. I have an appointment with a specialist homeopath next who hopfully can give him strong meds in homeopathic form which is not dangerous.l know homeopathy has alot of sucess with this
I was on Prolia for approx 5 years and then after a leg fracture, an endocronologist took me off that and prescribed Teraperatide. I am 70 years old - had osteoporosis since age 25 (after a bone biopsy after) I have now had 16 bone breaks. Is going off the Prolia harmful to me? Can you take both together?
I so much appreciate what you have done for us - I’m 76 with osteoporosis, drug-free so far - in bringing information which goes a long way to dispel fears. My primary wants me to take Fosamax and I need to be sensible. Thank you.
Wow this interview has helped me so much, thank you! I was reading all these terrible results from Fosamax and I had really considered not getting it. I'm 67 and was diagnosed osteoporosis in 2022. So I will be probably going ahead starting it this summer. It will be an infusion so I hope my doctor can see if I'm having a bad reaction to take care of me. Don't know how that works. My doctor is at a college hospital in Chicago so I guess he sees lots of patients and will know what to do. Thank you do much for helping to relieve our anxiety.
I'm 57 and have been on Boniva for a couple of years. My doctor wants to put me on Prolia, but didn't really give me a reason why, so I'm doing some research about the differences. This video was very educational. Thank you!
Old old 81 yesterday. Just fell on hardest concrete never had broken bone in life didn’t hurt unless I moved : positional. But it was the stem behind the Greater Trochanter. Next morning hip replacement. I was buzzing along great went to post op found another fracture lower so put on no weight bearing until Aug 22nd. Says I’ll be good to go??? What does that mean? I always subbed retired teacher JH, HS this time of year. I am on Alendronate sodium. Few bouts of diarrhea. Trying to keep up protein slim not hungry but counting Ca and protein daily. I take a multivitamin/ mineral daily. Boron but no added Ca just dietary . D3 + K2 any suggestions. I do all exercises not weight bearing plus arm shoulder weights . I was a step racer 10 miles and sprint 9 minutes. Say it is jump and strike with osteoporosis like marching or jump rope. Let me know a little.
Make sure your K2 is also listed as K2 MK7, not MK4. Bone needs impact so brisk walking is good but to make it better for bones, can you include taking a hill on your walk? That's my input. Maybe that helps you. Sara Meeks is an 80+yo physical therapist on YT who specializes in treating Osteo patients interested in isometric exercises for bone health. You might want to check her out. She has Osteoporosis herself & has been in the field of PT since the early 60s.
@@andreah6379 My K2 is the seven not four. Since I recently started the cane go up gradually elevated. Until the last post op on hip fearful of subsiding the titanium insert down the femur. I am retired teacher but sub JH HS been getting 3 miles/ day. I am also still doing therapy one day/ week. Thinking hip recovery then osteoporosis marching dropping up and down hills. Is that clearly thinking?
I fractured in my spine L1 May of 2022. Had kyphoplasty and fractured L2 end plate. Endo wants to start me on reclast. I’m still healing from an infection I had after procedure. Should I wait until I’m clear 100 % from the infection? Apparently the infection is gone but they are still waiting to be dyre. My spine became inflamed and o had ours in the right psoas muscle. Took antibiotics for 6 weeks. Any suggestions?
I was on xgeva for MBC. I took excellent care of my teeth. I of course got ONJ. It took nearly 18 months for this dead bone to come out. 2 days after the dead bone came out. I finally saw the doctor that explained what had happened. He said anything that causes a break in the mucousa of mouth has the potential to start the ONJ process. This allows germs to get in which causes bone death.
Hi im 61 fell and broke my rist and found out i had ostie,i had a bone infusion a month ago put me on my arss for two days,i have no thyord 34 years, doctor said ill end up with heart problems but instead i got brittle bones,doc said i need another one in a year,please what can i do to help myself naturally
I really appreciate this interview and the questions that you asked. Thank you for seeking out Dr. Rubin so she could share her knowledge with those of us with these types of questions!
The doctor claims that the side effects are rare . Well, not according to the people that share their experience on several osteoporosis groups on Facebook. Many many had to quit the drugs because of the side effects. Maybe she is more careful on what she prescribe to her patients but the rest of us have to use other doctors/ endocrinologists that may not have her expertise .
Dr. Rubin quotes the incidence of side effects in aggregate against the total population of people taking the medication. She is careful to quote the facts. The reason you might see a higher incidence reported among Facebook groups is because the people who do have a side effect spend time on these Facebook groups while those who do not (the majority), do things other than spend time on Facebook (in those groups). If they are doing well with the medication, why would they frequent these groups? Another point to consider is that people often experience side effects but they might be caused by sources other than the osteoporosis pharmaceutical. The "side effect" might be from another pharmaceutical. a supplement, inactivity or general decline. I have treat many patients on Prolia and rarely see the side effects.Thank you.
The incidence of side effects is studied and reported. Of course, anecdotal data from a Facebook group is going to make side effects seem much more prevalent. People with side effects are often looking for other methods to treat their osteoporosis or looking for others with whom they can commiserate. Frankly, I think FB has been a detriment to treatment. I see many who refuse prescriptions because they have been scared out of proportion to actual risk. I’d bet most of them are taking a more common medication for something else, and aren’t even aware of common side effects.
@@CloverHikes I don’t take any prescriptions medications. My dental implant specialist warned me about OP medications because they interfere with dentistry. If you are on these medications you cannot have dental implants , and they also causes teeth loss .
@@Hissage I wish I’d never heard of it. My dr just put me on it without telling me any thing I did not have cancer and found out too late that I was just barely in the Osteoprosis side Started falling before all the other things happened I was 65. Had bad falls before and did not break anything. He should have checked more. I have celiac which is why my bones are problematic I’m sure it could have been managed with another drug. ! Drs don’t care. They don’t investigate. Now I can hardly get around even with a walker. My life has been ruined. Have to live alone , husband passed and children have no idea how difficult life is. Have been told it’s too late for hormones. Can’t swallow things so what do I do now ?? Fragility fractures now are so painful and no one seems to care ! Dentist won’t let me go on anything or he won’t pull my tooth or work on them. !!
@@CloverHikes maybe they are not scared out of our proportion to the risk. Maybe they are just extremely risk adverse and that is their choice. So suck it. You seem to be trying to control people into adopting your values.
Hello all,jaad 43,have severe osteoporosis and classification but all my blood test&minerals came good,wonder if something dangerous in my bone metabolism,lost what to do
None of this is reassuring. I just received a diagnosis of osteoporosis and I’m 65. As much as I’m concerned about the prognosis of that diagnosis, I’m more terrified and wary of treatment with these drugs.
Thank you for this information! I read that once you start taking Prolia, if you stop it, you are at significantly increased risk of spine fractures. Is that true? Are there situations where it might better to go on HRT (if you've never had HRT before, also no children, and you are more than 10 years post-menopausal) vs the Bisphosphonates or Denosumab?
@@MrsKDFerguson It's true about Prolia. You can't just stop it without increasing your risk of having vertebral fractures. You are supposed to go on bisphosphonates after stopping Prolia. (So when your next shot is due, you would start bisphosphonates.)
I was on Fosamax which I liked and the side effects were a pain in my neck, and I ended up dislocating my knee. The NP suggested I go onto Prolia. Why ….. didn’t she ever mention that I would need to always be on this drug, Prolia? Thank you for explaining the OP drugs for us!!! Because of your information, I will now… choose to stay on this Fosamax medication! ❤😊
My rhuematologist said I don't need vit k or check magnesium etc. Even though my pulmonologist for sarcoidosis upped my vit d3 because even with supplimentation with vit d3 and fozomax was so low. And bone density was still low. I now have dental disease and can't take fozomax any more. I'm screwed. I eat holistically . No proccesed food. Etc
The molecule is identical to the one our body makes. You can but it online overseas pharmacies. The FDA did not approve it. The board that voted was bribed by big Pharma making all these toxic bone densifyers . I don’t know for a fact they were bribed but it is a molecule our body makes but they claimed it causes cancer. Certainly not to the degree this other crap for building bones does.
Margaret do many of your clients on Tymlos complain about fatigue? I have a patient that is pretty tiny I wondered if she could take it every other day and still be effective. But it's totally wiping her out. We've eliminated any other cause.
I took one dose of prolia and had every side effect in the book, body pain, weakness, jaw pain, and I have a rare side effect with my thyroid. I devolved hyperthyroidism.
same here . i like thousands are petrified of taking bio phosphanates . …. can i ask which ones are the best ???? is risedronate sodium or a different one???
I am taking it once a week but it seems my right kidney has a little pain. My bone density is 3.1 and I don't feel good when I take it. Will I need to continue in my medicine or will I stop or need to replace.
I respect having Dr. Rubin on but to ask why doctors would prescribe something that will cause fractures, well, that has an answer that I should think most doctors can guess. Most patients today feel doctors' hands are tied by drug companies and that they get told in administrative meetings that this is what you give patients with certain problems. And that there's only so many treatments you can give and that's that; no room for their own thoughts on the matter. I don't believe in conspiracy theories, but you tell me. How much wiggle room to doctors have today to speak and think for themselves? Also in one FB group I have only been in for a few weeks, I have already heard of one person getting osteonecrosis and dying from it, due to these drugs. How "rare" can osteonecrosis be if I have already found out about someone who died of it. after just being in a group for three weeks? The medical definition of "rare" seems to be wildly inconsistent. On top of that, if you don't give people in their 50s these drugs because they don't fracture, but they do improve bone density for people in their 50s, doesn't it make sense to think that the reason fracturing happens to people in their 60s is because bone density was decreasing progressively during the 50s? And wouldn't drugs help bone density so as to keep fractures from starting in the 50s to begin with?
The benefits from these drugs are very slim, small decrease in # of fractures and who knows how these studies were done. The side effects are horrible!
Endocrinologist Janet Rubin didn’t even use the word “rare”. She said “I haven’t seen in my practice…and …..I am only in clinic once a week” yes, sir, if your head is hidden in the sand you can’t “see” anything.
In US, our healthcare industry is for-profit, meaning their No1 goal isn't healthy patients, but $$$$$$. No conspiracy needed. It's fact. Big drug companies send out their sales people to push their drugs on the doctors, wining & dining them, & in turn, they push it on their patients. Many patients say that their doc never discussed possible side effects with them when they handed out these prescriptions. To me, personally, with such SERIOUS side effects that these drugs have, that's downright immoral!! What ever happened to "Do no harm"???!! It's not illegal to have doctors own stock in these drug companies, & knowing that these drugs are serious poison to their patients. This is what for-profit means. Dollars over life, over health.
Yep, there is no evidence for bone quality. The only evidence is for bone density and density does not equal strength. We can easily buy Strontium at the health food store. Strontium increases bone density and is somehow known not to build bone quality. DEXa scans only measure bone density so there is no way that the Pharma companies could have proved that their drugs increase bone quality=strength with flexibility.
I am 79. Had L3 fracture in December and had first Prolia injection in January. I would strongly suggest you take your rx for fosomax when you have low T scores. I did not because of side effects and scared. I have walked every day and yoga 2x week for years plus hike. also calcium, mag, D-3 etc. and eat very healthy. Prevent the fractures if you can. If that means taking medication do it. Fractures and immobility are not fun!
Maybe I am an exception, but I found out I had osteoporosis when I was was told I had two compressed fractures at T11 and T12. At that time, I was 61 years old at the time. I wish I had a bone density test much earlier as I could have got on fosamax and maybe prevented the two fractures. Once you have a fracture from osteoporosis I have heard you are at hight risk for another one.
Even if you aren't diagnosed with either Osteoporosis or Osteopenia, you can still have a fracture! There are also such things as "silent fractures," where you have a fracture in your spine but never felt great pain. Just like some ppl think having Osteopenia isn't as bad as Osteoporosis. There's no guarantee at all with any diagnosis what each day can bring when it comes to your bones!
ok if risks are more after 4 years for older people. what about yonger people? im 27 and got diagnosed wiht op , have loads of other health issues too. i been worried about the side effects form everything i been reading but can tell jsut how rare it is or how likyl it will be i break my femurs or have a jaw issue or other serious side effects. dose this 4 year go to anyone who takes it or dose it jsut matter on age? i start my first dosage in few days, and my edno said its for 5 year treatment. just wondering how soon i can break soemthing if this is a big risk. just how rare is it?
From all that I've read and heard from doctors, about 2000-5000IU a day--but each person is different & needs to check with their own healthcare provider. You don't want to get too much of any fat-soluble vitamin! Most Americans are deficient in VitD. BTW: Best way to get VitD3 is sunshine! No sunscreen, bare skin and about 15-20 minutes, high noon is helpful and best. (If you have had skin cancer, than completely avoid this.)
I have to have tooth extractions. I started my Prolia injection’s December 2021. I have to stop them in order to complete my dental work. The dental work I will be having will be for several months.
I am 69 and the Endocrinologist told me I have severe bone loss. He gave me a list of 6 medications to consider. I’ll meet back with him in 6 months. I have had osteoporosis for over 10 years. On two separate occasions I was prescribed Fosamax. And I took 1-2 pills each time. Both times I felt like my ankles were weak and would break. I stopped taking the Fosamax. I understand about osteoclasts and osteoblasts and the “dance” they play to create strong bones. I need to do research on all my choices of medications, but I don’t think I want to mess with my osteoclasts and osteoblasts. There are just too many horror stories out there of people who take these drugs.
I just turned 60 going on 61 . I have severe bone density in my left hip and femur . No fractures exercising . My doc suggested Prolia in my 50’s now I see an endocrinologist and suggesting Evenity . That is new and my insurance doesn’t cover . On top of it my husband is a dentist . I am a breast cancer survivor. Had it in my 40’s . Put me in menopause by 46.
I'm in the UK but it was all a 'secret' who had prescribed me a biphosphonate and NOBODY warned me about side effects. I'm 51. Not taking the risk thank you very much.
Age 78 diagnosed osteoporosis of left hip. Prescribed BONIVA, going on 4 years. No known side effects. How long is continued medication recommended? I Exercise most days, brisk walking 1 hour about 5 kilometres. 30 minutes into walk, hip becomes very uncomfortable starting at hip radiating down to knee. Any advice please?
Are you sure that's not a side effect of this drug? Make sure you read all the fine print. Many side effects aren't listed but the "side effect" instructions will say something like, "...Not all side effects are listed here." Then, you have to go online and Google the drug for more info. I do that even before going on any drug.
@@andreah6379 I read all 64 pages of the patient information leaflet and the possible side effects did worry me. However, almost 4 years later, I do not seem to have any side effects. My question was, "how long is continued medication recommended?" I have read and been advised by other users of Boniva, that it only builds exterior bone, which starts chipping after prolonged use.
Hi! This was a very interesting video so thank you. But I am confused about the timing of the drug holiday for the bisphosonates. The talk was to take the holiday at about 4 years. Can you confirm if that meant before you start your 4th year or if it means after you finish your 4th year? Thank you.
Just found this. Wow. In 2010 age early 50’s my PCP ordered a dexa. DX osteoporosis. PCP wanted to put me on this new drug, Prolia. I declined and found a new provider.
Dr. Rubin is mostly concerned with patients who are frail where the risk of fracture is elevated. In this case, she recommends pharmaceutical intervention, such as Prolia.
I studied forteo it has a black box warning about causing bone cancer and u have to stop after 2 years bc it is so toxic I went to forteo class to learn how to inject it and watched a 70 yr old woman have a non stop back spasm she drove to the class but could not drive home due to the horrible pain you have to daily inject it and keep it cold and take it with on trips I decided against it bc i get side effects from drugs read all the fine print
I need go on Aromatase inhibitors soon. I'm 67. I already have osteoporosis. They are suggesting I take either prolia or Zometa because I have CKD stage 3A and I am being treated for Ulcerative Colitis with Remicade. Should I seek a specialist or are these safe for me?
I'm only 54 and my endocrinologist want me to take Prolia. Should I get a second opinion? What should people do if they're under 60 years old and already have osteoporosis?
Great question I am also 54 & was diagnosed with osteoporosis. My GP suggested Prolia but I didn't take it. I would like to know what I should do apart from diet with high calcium & weight training exercise.
@@margaretmartinpt and is she in favor or forteo or like drug for person such as Diann and others similar; at what age does one consider forteo? Could she get into when it is appropriate?
@@yoongtan5163 I suggest you read my reply below to Brenda & watch the video link I posted. Taking calcium is not the answer & neither is weight training after watching the video from Bob & Brad. Too much calcium & the wrong kind...rock hard white tablets can cause many other isdues incuding hardening your arteries. You would be better served to get calcium from your diet & supplement w/Vit. D3, Vitamin K2 MK7 & a good multiple magnesium supplement. Everyone thinks calcium is the answer. It is not. If you do choose to take it, I would take a plant based calcium. Just my opinion from years of having osteoporosis & doing my research. I am 61 & have had osteoporosis for the better part of the last 20 years.
The interviews with Dr. Rubin are so helpful. I'm in the class of women who are early 50's and diagnosed with osteoporosis. I've been active my whole life with both weight bearing and weight resistance exercising. Though I'm on HRT now, I am not confident this is enough, and I feel like I should seriously consider taking a pharmaceutical. From the video, it sounded like Evinity is not a 'first line' drug for someone in their early 50's. Did I misunderstand? Evinity sounds like a good option for me. One other comment, would you consider an interview with someone who can discuss the Echolight REMS testing vs the DEXA? I had the REMS done recently in NC. My lumbar spine T was -2.5 (vs 3.0 DEXA) and femur neck was -2.5/-2.9 (vs -1.5/-1/8 DEXA). DEXA was done 9 months earlier. Thanks for all your information!
Thank you. Margaret so much for being so thoughtful.to include this concern for the well-being of your patients /clients . I am in the Old Very old category . Being 93. Yes I do have severe osteoporosis ,and follow your. Exercise program . I am very active . My doctor wants me to start Rx.but it is so very confusing for me ,because of side effects ,and when to take the Rx ,as it is my concern that no.one knows the stage the bone is . Did I make that clear .?? At the present time I am loading up on Collagen. And hope that will make a difference , which I was promised it does . However ,the only was to check is Dexa. And that is 5year gap ! I feel I am rambling on . A Appreciate your program
Notice none of the many side effects of Prolia were discussed I'm 55 osteoporosis T -2.7 with kyphosis & osteoarthritis I'm so unsure about committing 5 years to a drug
With all the advances in medical science I'm amazed they haven't found a solution for bone loss. You have reassured me that it is a complicated event and taking drugs may be the only solution.
oh but they have.. the solutions they offer do not fix the problem but rake in a ton of profits for big pharma so it is working perfectly for the pharmaceutical industry they have become very corrupt it is all about the profits they can charge huge sums of money with the current system I worked with a naturopath to get all my supplements good and got a physical therapy program for my hips and you tube has good physical therapies for osteo. Also lots of walking with with a weight vest or back pack with glass water bottles in it carrying lots of groceries walking etc lots of weight bearing
Of course exercise and diet are 1st line defense and repair; but Low Intensity Vibration platform is approved therapy in Europe, Canada and Australia. Pharmaceutical companies prevent its approval in USA.
Why do so many bone doctors, etc. say that drugs like Fosomax do build bone, but it's not good bone and it's easily breakable and prevents the osteoblasts/osteoclasts from working correctly?
I went to a life screening here in Robbinsville NC. The lady said I needed to see the doctor about my bone density. So my doctor sent my to have a bone density test. I have Osteoporosis in my spine and hips. I’m 62 and will be starting on a weekly dose of Fosamax. I love your videos.
I am 57, and just after my 3rd fracture about 3 years I decided to go with the aclasta infusion. It's supposed to work for 24months. Frustratingly, 6months on, and I have just had another fracture (shoulder) (whilst on the job). I desperately want to pursue trail running. Any suggestions?
@@hollyhansen7898It's funny that so many of us here are so desperate to maintain bone health if not make it better and the 1st thing most everyone vows to do is take up running. Walking up a hill, any incline can be beneficial to bone health--no running needed. It's been my lifeline!
Genetics, what kind of life style did you have growing up and into adulthood? Did you drink alcohol, or lots of soda? Are you big into keeping active and into weight bearing exercise, even walking up a hill is great for bones. Your bones start to decrease in density in your 40s. Fractures of the spine can happen to even normal bone! Two things to know are not just bone density which is measured with DEXA but also the quality of bone--how well mineralized are your bones and there's tests for that that rarely are done automatically by your doctor & often you need to request them. There's so much to know!
I had breast cancer 25 yrs ago chemo shut my ovaries down. I have osteoporosis now I have tried everything. I even do kettlebell weight workouts for years . Broke my wrist put me on forteo for 2 years did put some areas into osteopenia but now on prolia im 69
What happens if bisphosphanates gives you gastric problems, reflux/gerd, etc? Dr will then prescribe nexium or a generic to help with your gastric issue but which weaken your bones, so then what!? No thanks.
Your comment you have to have a doctor who knows what they are doing, unfortunately in Wales our GP is responsible for this treatment they know is what they learned at med school, to keep practicing they do not have to keep up to date. Sad for their patients of which I am one.
I was on Prolia around 75. Had osteoporosis for many years before that. Tried foxanax without help first. Well because I needed high calcium with Prolia my test showed hip got worse and with further testing the calcium w3 t into arteries and not bones. Caused auerism in aorta so I am not on anything. Took D3, k2/m7, magnesia. Stood ok two years. But now I’m 83 and going bad again. I don’t know what to do. Plus I’m on S/s and the drug is my cost 1200. Every six months. I can’t afford it. No help. What now. Please advis3.
see a naturopath they have a whole different toolkit and often have cheaper and more holistic less toxic supplements they are a great tool for aging well
Can you exercise at all? If you can do isometric exercises, you may find help with checking out very experienced physical therapist on YT, her name is Sara Meeks. She's in her 80s, has Osteoporosis, too and can give help with proper exercises to hopefully maintain bone for yourself. There is so much work involved but it could help you. And it's free.
Thyroid is good. I exercise swimming, weight baring , walking and exercises. I never took medicine before till now being young old age. What do you think of doctor telling you to chew Antacid 500 chew Have no reflux ever but doctor wants take Antacid 500 3 x daily. Can’t take 3 x daily extreme sinus head aches. I’m drinking 1 to 1.5 gallons water daily. Extremely dehydration. This is from my family doctor should I see a specialist.
Sounds like you are drinking a lot of water which may be washing out the minerals and vitimins you should be getting from your food before your body has a chance to absorb them. Look up what Dr. Berg says about drinking too much water.
Had severe , very severe , cramping with fosamax... then to find out it may, may not help. And you can't take for many years. ... Then the medicinal ca+ will not always go into the bones, but into vessels and other tissues. Think i will go back to my Grandmother's teachings. Eat a little of everything, back on meat, my skin is clearing, my energy is back . Can't find cod liver oil. Can powder egg shells for my ca+. Can't eat my eggs raw though, and I may look into buttermilk, though i hear greek yogurt is a good exchange. My general health really needed fixing, and slowly re- incorporating the meals of yesteryear has made improvements.
Our grandmothers were the wise ones. Doctors? not so much. They do what the FDA tells them, and FDA does what the big pharmaceuticals dictate. Nothing but drug pushers.
a great cod liver oil is CARLSONS kroger stores have it and you can get it online it does not taste bad either they took the most of the fishy taste out save our bones is a nurse who has great diet tips to help the condition
There are different kinds of Cslcium supplements. Eggshells are the worst. Not easily digested and absorbed. If interested in Calcium supplements, take Calcium citrate. It's digested betterand more absorbable. The best is hydroxyapatite. It's a form of Calcium that also has other essential minerals attached in a crystal form (from what I read) and it's all good for the bones. Stay away from too much salt and soda pop, if you liked those things. Calcium doesn't do well with those things.
people under 50s do fracture. 43 osteporosis, fractured myfoot, not healing. i am not healing and scared. I have low estrogen, history of amenorhha. i need medicine, as my aunt had 5 hip fractures,my doctors are not doing anything forme. i cannot work, i am losing friends because i am stuck at home. please advocate to health care that we cannot leave this alone....execricse is not enough. i exercise mywhole life. exercise and diet not enough. without estrogen, bones will not build...I am sick of people only treating women over 60, this is killing people all over the world:) lets get real please,thank you for listening, as i am scared and have had 4 fractures in feet overyear
This is the best video on drugs for osteoporosis ! Just the facts vs scare stories. Please have this Doctor Rubin back for more info. She is fantastic. Thanks !
That was all very interesting, thank you.
One thing I dislike a lot is when professional people call the stopping of potentially harmful drugs a "holiday". It is nothing like a holiday, waiting to see how much your bones deteriorate before being put back on the drug. It's condescending to have people call this time a "holiday".
Thank you, Margaret, for all your fantastic work on osteoporosis. As a "young, old" woman who had been on bisphosphonates for 9 years, then a holiday for 3 years with regression, and reluctant to go back on the drugs, I find this presentation invaluable. With a good education on all the details and nuances, we are able to come at this condition from a spirit of collaboration instead of fear! Thanks again.
You are welcome. Happy to help.
No, I don't. In fact, many, many of us Osteo sufferers feel as I do. More info doesn't equate into what we all need to actually get better in reality.
You are speaking only for yourself.
@@andreah6379 What do you mean when you say "what we'll need to actually get better in reality?" I'm not trying to cause trouble, I want to understand what you are saying. Thanks.
I was put on fosamax when I was in my 50s because of osteopenia and was on it for five years but then when had oral surgery and needed bone graft because I was told I had lost jaw bone and jaw bone was infected from having been on that medicine. So I have been afraid to go on any meds since but now have moderate osteoporosis. But I’ve very scared now to go on Prolia or Evenity or Forteo though my endocrinologist wants me to take them. But I don’t think she is appreciating my concerns. Doesn’t seem like there are safe drug options yet for those of us with osteoporosis
Best information to date on osteoporosis. As a pharmacist and patient, this is so timely and helpful. There are very few doctors so specialized. The aging population of baby boomers needs more practitioners like Dr. Rubin and physical therapists like Margaret. Thank you very much! I have hope that I can do something about my dire genetics and very poor bone density. Please provide updates on Evenity as more is known. Thanks again
Thank you. Here is my interview with Dr. Rubin on Evenity. ruclips.net/video/V2ZRDXLRVx8/видео.html
Incredible physician you have interviewed here! Thank you to you both!
Just came across this. I was diagnosed with osteoporosis but I've been doing lifestyle change and weight lifting and actually bone density showed improvement between first scan and second. Since then (2019) my gp has denied allowing me to get another dexa. Plus I was denied a referral to an endocrinologist. The latest thing is to tell women "thyroid issues are gp issues and no testing is necessary other than TSH". Regarding the "dreaded osteonecrosis of the jaw" - both my periodontist and dentist strongly (STRONGLY) recommend Not taking bisphosphenates. I have two implants, about to get a 3rd. My gp said, seriously, "would you rather have your teeth or spend the rest of your life in a rehab facility because you broke your hip." With the way women are treated it's no wonder we don't trust the medical profession, and the side of these meds are awful. Plus they're also pushing statins which are also Not recommended for people with osteoporosis. It's depressing how one medical specialist doesn't talk to another, and the whole situation starts feeling like a medical con. It's time for functional medical doctors to be covered by insurance. My mother was on bisphospenates for years. She suffered terribly from Gerd and died from a sarcoma at the base of her esophagus. Yet no doctor connected the dots. Docs are not looking at people as whole bodies. That's a crime.
I feel like she glosses over the GI side effects of some of these drugs. I took Fosomax for several years but the heartburn that it caused made me absolutely miserable on a daily basis. That's the reason I haven't started up on another drug treatment despite my DEXA numbers getting progressively worse.
Fosamax is a nasty drug with equally nasty side effects. There are better, safer and more natural treatment options now available.
“Fosamax creates thick, but brittle bones. In October 2010, the FDA ordered Merck to change its drug label to reflect the bone-fracture connection. Fosamax use may also make fractures more difficult to heal.”
I agree! These drugs have nasty side effects and very slim benefits if any. I am researching. HRT which has a bad rep but I think may be a better alternative. Good luck!
@@attop21 - me too. The side effects of these drugs is horrible
GERD and intense nausea! I also was very shaky/jittery on Fosamax.
I have had long term GERD and take 20 mg omeprazole daily. I’m nearing “middle old”. My rheumatologist wants to put me on Prolia since I have lost height but no compression fractures. What would I be able to take after Prolia? My pcp wants me to see an endocrinologist.
My mother-in-law is a 100 years old. Never went on this kind of medicine, she was always walking. Cause she worked in the hospital for 53 years. She's a 100 so far so good. She hasn't broken anything.
Your mom got that right.
Did she has osteoporosis?
I really enjoyed her presentation. I would definelty want to see her. I am 72 with osteoporosis of the hips -2.8 and -2.9. I am so scared to get a fracture.
My doctor here wants me on atelvia since I have thyroid disease. I was on fosamax for 6 years and then went on a holiday years ago. I was only early 50's when I did take it. I had plenty of problems with it. Acid Reflux plus swallowing problems. I wish I knew what to do.
I took biphos and suffered severe muscle pain. It was 8 years ago. Recently, I was offered Prolia, and after 1 shot, I developed bone spur in my spine which required surgery due to nerve pain . Also bone pain to the arm presented. I stopped the Prolia regardless what benefits it promised. The benefits are in the future but the side effects are now. I don’t see any documents mentioned the side effects I have endured
When you read the fine print with lots of drugs, you may come across a line that says, "...There may be other side effects not listed here."
Disgusting. I would bet you if more men than women suffered from Osteoporosis/penia and couldn't get an erection, scientists & doctors would be scrambling for a cure !!
These drugs actually stop normal bone breakdown and rebuilding. That's why the jawbone and femur - the most heavily used - fail to build new bone and disintegrate. Side effect? WTF? All that happens is a crust forms on the outside of bones to make some of then appear "thicker." This whole thing is a pharmaceutical myth that it helps most people (women). It might be advised for someone who has an imbalance of bone formation, but that really really rare. The rest of us are being told we should be on these actually bone-destroying drugs. We get taken off for "vacations" before it's evident how much bone destruction they do.
still very reluctant ti take these dugs. haven't met or heard of a doctor in Florida willing to discuss.
Not surprised at all. More often than not, many ppl say doctors never discussed both pros & cons of these drugs.
Just turned 75 and my pcp said my DEXA showed osteopenia and prescribed Fosamax. I read about the side effects and was shocked to realize that my mom who had been on Prolia for two years got osteonecrosis of the jaw and her teeth loosened with no bone around some of them! Fosamax warned of the same side effects! No thanks to that poison! I’m increasing my weight training, taking a bone supplement and just got a vibration platform. And praying for a reversal.
Please keep me posted. I just got diagnosed with Osteoporosis and I’m only 26. I’d really like to know if alternative approach is better than fosamax (I’m also put on the drug for 2 months now)
Take HRT
@@londoncalling7895 i think there is a window for starting HRT - between 5 to 10 years after menopause. But it does look like a much better option
@@attop21 the latest thinking is its beneficial from any age see a menapause specialist clinic.
I'm 57 and stopped prolia due to side effects, pain in the jaw being one of them. I am also looking at getting a low intensity vibration machine.
Thank you, @Margaret Martin, Physical Therapist, for persisting in this conversation and asking the questions that your experience with patients leads to. The answers we get here are so much more thoughtful than the usual run of the mill -- particularly those produced by pharmaceutical companies!
Thank you.
Margaret I appreciate so much the series of information on prescriptions for bone loss. I am learning what my questions are before I see my doctor next month. I've been trying to figure out if there are actual bone specialists. But it seems like there are doctors and physiotherapists who have specialized in osteoporosis. Thank you for helping to empower me as a patient.
You are welcome.
Thanks for uploading this video...the bone specialist dr is so refreshingly honest and frank about drigs benefits limitations and the fact that docs dont know everything.
Dr.Rubin, thank you. I'm a 'young-old', been on Prolia for 5 years. Information from my Endocrinologist is 'sketchy' at best. Your presentation was calming and informative. It will help me formulate my questions for my next visit. I don't feel so alone when it comes to osteoporosis. If I could ask a question, does Prolia help with osteoarthritis? Perhaps another video to address that one. Many, many thanks for bringing so much information to light.
I'm 56 and fell and had to have a hip replacement I was diagnosed ostoprosis ,this interview was just what I needed . I now feel confident about the medication I'm taking. I have my holidays planned in 5 years .
I also have started taking estrogen.
You really have made a positive impact on how i feel about my condition. Thank you .(from the UK)
not sure what estrogen you are taking but there is bio identical estrogen made from yams and can be obtained from a compounding dr with a prescription. it is a safer estrogen it is called c estriole it is not fda approved but used in europe for 40 years FDA can not patent it bc it is plants
Suzanne, thank you for sharing! I’m glad to hear you are recovering or recovered from a hip fracture. That is amazing. I hear terrible things about that which makes me so fearful. Your share gives me some comfort.
Why no mention of the newer osteoporosis injections Evenity or Romosozumab. This is s very expensive medicine to treat osteoporosis, and I understand that even with this expensive treatment from Amgen, after the treatment is stopped with the 12th monthly injection routine, the new bones that were built up during the treatment starts to decline quickly. SO what is the use of spending a fortune on this kind of treatment when it also does not last in terms of it's effects on building up newer bones and avoiding fractures in the future?
Hello, and thank you for so much of the information!!! I’m 57, dexa scan was -4.3 spine( 2 years ago) and have had 2 spontaneous fractures ( T8-T10) I have severe stomach issues( chronic gastritis and stomach ulcers) what do I do, where do I begin?
Should I weight train, can I exercise? I’m completely lost, and very scared!!!
Oh thats awful.
I have just found mine is -4.4 in the spine. I also have gastric issues.
So scary and not sure what to do.
I'm the same and I'm 54.
I just turned 50 had a DEXA scan and my right hip decreased 9.5% I have always been active (running, walking, weight training, cross-fit etc). I am baffled as to why I am loosing bone density. I will see an endocrinologist but I am researching now to get educated before I see the doctor. Thank you for your information.
Thank you for the update. Good luck with your research. I have free course on osteoporosis that you might find helpful: melioguide.com/free-course/
My problem was a parathyroid ( we have 4) that wasn’t working right. It was pulling calcium from my bones and putting it into my blood, so my calcium level was almost 12. I had no idea, no symptoms. I had it removed but not before it drained my calcium from my bones. Good luck and find out soon!
@@margaretmartinpt - Sorry I am just now seeing this. Thank you
I too always doing everything advised for healthy bone so shocked at finding osteoporosis out after fracture on my femur stem and hip replacement.
Is Forteo a drug with many debilitating side effects? How effective is it in increasing bone density after using Fosamax for 2 years? I’ve read that the side effects are many and Forteo may not be as effective in building bone as we would hope, especially after many suffer from the terrible side effects the gains should be significant. I am young old and have fractured once. Forteo has been recommended. The information on the side effects and patient reviews are frightening. Do you have any information on Forteo, please?
My first Envinity shot at the Dr. office was a Monday.
That evening my left jaw hurt so bad. And I I hurt all over. So bad that I called them because I have RA rheumatoid arthritis. I said I will never take that again no more shots. Because I felt like I was In total flare. On Wednesday I went to my Dentist appt. I told him I got some kind of a shot on Monday and my jaw was killing me. He canceled my tooth extraction that day and said we don’t know if you’ll heal because you did that shot. By Friday I was back at the Dr. office at his request.
He told me my jaw could not possibly hurt. There was a 0.1% chance this could happen and that’s after many shots. And all this pain was from an RA flare. I told him. Well my RA flare started last Monday evening.
I said, OK, let’s go with what you said. I’m not doing the shot again. RA is bad enough I do not need anymore pain. And 3 disks were messed up and I am waiting on back surgery. He talked me into doing the shot one more time but not for a couple months so I said OK.
it took about a month and a half for all those symptoms I had to go away. It was awful stupid me did another shot.
My jaw still hurt, but not as bad my left thigh was killing me. With the second shot. He reassured me that this was not from the shot and I reassured him that it was my left thigh, muscle bone, whatever still hurts and top it off my neck that I had gotten surgery on last year. It no longer hurt it was killing me. Like it never hurt before. Mostly at night. It’s been hurting so bad I made an appt with my neck dr. In two weeks I’ll get a neck x-ray. Before I see him. This Dr had fixed my neck and I had no more pain. He put screws and rods in my neck and in two weeks they fell out due to brittle bones, so I have no more screws or metal in my neck .
I am afraid to lay down at night. I told him I’m not doing those shots again and he suggested proleia . . I’m not doing any shots ever again for my bones. My sister did Rosina’s for years. She’s paid thousands of dollars for her teeth because she has no bones left in her mouth.
My sister did Fosomax for years she is 76 I am 66.
I have RA 25 years and like you said we suffer enough pain without taking a shot to get more. I have been diagnosed with osteo and I’m upping my walking, resistance exercise and getting a vibration plate and continuing magnesium, calcium and vitamin D and vitamin k. I might take bisphosphonate for one year to get an initial boost in bone but then that’s it.
I’m 54 and dr wants to put me in Tymlos, you are saying not to start drugs til 60s. Should I wait? I’m in very good shape, exercise and eat well, but my t score is -2.8
How do you treat hyperparathyroid? I don’t have a tumor but I am losing calcium my DeXa scan was not good.
I know someone with pagets disease, are the same medication being used for them?
I was on fosamax previously and the side effect I got from it was I could not swallow. I did not make the connection at the time and when I told my doctor I could not swallow, she had me go through all these tests to see why I could not swallow and luckily nothing was found. One day I checked the side effects of fosamax and sure enough difficulty swallowing was one of them! I immediately stopped taking it and I was able to swallow again. Now she wants to put me on prolia and I am very reluctant. I am trying to work on building bone density through diet, supplements and exercise instead. I may go on hormone therapy if nothing works.
Good luck! I’m taking a similar route, avoiding the nasty drugs if possible as the benefits don’t seem to be there.
@@attop21 Thank you!
My mom was on Prolia and after 2 years her teeth started to loosen! Her dentist showed me the X-rays that showed the bone in her jaw had disintegrated! A side effect of Prolia!!!
@@RevelationArtist Thank you for sharing. I cannot believe we are not warned properly about the risks
It is astonishing that nobody warned you of this risk, then when the symptoms happen it is YOU that discovers why. I was not warned of any risks, I wasn't even told to sit upright for 30 mins etc. My gut feeling told me this wasn't right, the whole thing didn't make sense - why did my doctor not even have a brief conversation with me before prescribing it?! I have not taken this drug and the more research I do, the more I am glad I haven't touched it. I'm am taking the same route as you - exercise and diet, rebounding exercise, vit D 4000u a day and K2. NOBODY has suggested this - only from my own research. I wish you the best of luck, please take care of yourself
My side effects from Prolia have been different than mentioned in this video. I was prescribed Prolia and experienced 12 continuous days of severe bone aches after the first shot. When I woke in the morning I had extreme stiffness and difficulty walking and moving throughout the day. I am 64 and felt like I was “old old”. I don’t know if this is common or not, but it was uncomfortable enough for me to chose not to continue with further injections. I am now on HRT in hopes that this proves to be a more effective treatment plan. I am told I should wait 2 yrs for my next bone density test to see if HRT helps. Very discouraging to have to wait and see, but I am hoping that my results are better in time. Maybe in 2 years there will be better alternatives.
Diet and exercise are far safer than any osteoporosis medications. We all age so stands to reason your not going to have the same bone density as when you were younger. I have high risk of a spinal fracture according to a dexa scan 5 years ago, I chose not to take Prolia and 5 years on I’m still fracture free.
@@ronhef8849, what is your advise what type of diet & exercise you do
Diet and expertise will not help much if you are in estrogen deficiency also known as menopause. We need to make estrogen replacement standard at menopause like it used to be before the flawed 2002 Women’s Health Initiative study. It was bullshit. They blamed blood clots and breast cancer on estrogen when it was actually do to starting women over 65 on HRT. HRT is healthy when started within 10 years of menopause. The sooner the better. After that the arteries have hardened to much an their can be an increase I. Blood clots or other heart problems. There is no evidence that HRT causes breast cancer. More breast cancer happens in older women weather on HRT or not. It is a condition of getting old.
Prolia ruined my life😡
@@jaadamin4125 You have to eat what your bones need, I recommend watching Dr Berry's youtube video on reversing bone loss.
This doctor is so refreshing. I wish I'd had a doctor with her perspective when in my late 50s she had me take a DXA scan. I have not had fractures and it would have been better if I had avoided having a diagnosis of osteoporosis purely based on the DXA scan. I wish I could have just carried on being active and healthy, as I still am at 65, and not have started on Prolia. Now I'm stuck on this drug. I didn't get good advice.
I have bad osteoporosis and am terrified.A fried of mine's jaw bone cracked totally in half with fosomax then had to go onto morphine for the terrible pain and now is addicted to the morphine.A nightmare. I have an appointment with a specialist homeopath next who hopfully can give him strong meds in homeopathic form which is not dangerous.l know homeopathy has alot of sucess with this
Refer Homeopathic Dr ?? Results follow up ??
I was on Prolia for approx 5 years and then after a leg fracture, an endocronologist took me off that and prescribed Teraperatide. I am 70 years old - had osteoporosis since age 25 (after a bone biopsy after) I have now had 16 bone breaks. Is going off the Prolia harmful to me? Can you take both together?
Thank you very much. This was an excellent presentation. Very grateful.
Glad it was helpful!
I so much appreciate what you have done for us - I’m 76 with osteoporosis, drug-free so far - in bringing information which goes a long way to dispel fears. My primary wants me to take Fosamax and I need to be sensible. Thank you.
Fosamax ? What was your decision
Wow this interview has helped me so much, thank you! I was reading all these terrible results from Fosamax and I had really considered not getting it. I'm 67 and was diagnosed osteoporosis in 2022. So I will be probably going ahead starting it this summer. It will be an infusion so I hope my doctor can see if I'm having a bad reaction to take care of me. Don't know how that works. My doctor is at a college hospital in Chicago so I guess he sees lots of patients and will know what to do. Thank you do much for helping to relieve our anxiety.
Excellent video. I now have a better understanding about taking Prolia. Thank you so much!
I'm 57 and have been on Boniva for a couple of years. My doctor wants to put me on Prolia, but didn't really give me a reason why, so I'm doing some research about the differences. This video was very educational. Thank you!
Thanks for sharing!
Are the fragility fractures spontaneous fractures or is it from falling?
Old old 81 yesterday. Just fell on hardest concrete never had broken bone in life didn’t hurt unless I moved : positional. But it was the stem behind the Greater Trochanter. Next morning hip replacement. I was buzzing along great went to post op found another fracture lower so put on no weight bearing until Aug 22nd. Says I’ll be good to go??? What does that mean? I always subbed retired teacher JH, HS this time of year. I am on Alendronate sodium. Few bouts of diarrhea. Trying to keep up protein slim not hungry but counting Ca and protein daily. I take a multivitamin/ mineral daily. Boron but no added Ca just dietary . D3 + K2 any suggestions. I do all exercises not weight bearing plus arm shoulder weights . I was a step racer 10 miles and sprint 9 minutes. Say it is jump and strike with osteoporosis like marching or jump rope. Let me know a little.
Make sure your K2 is also listed as K2 MK7, not MK4.
Bone needs impact so brisk walking is good but to make it better for bones, can you include taking a hill on your walk?
That's my input. Maybe that helps you. Sara Meeks is an 80+yo physical therapist on YT who specializes in treating Osteo patients interested in isometric exercises for bone health. You might want to check her out. She has Osteoporosis herself & has been in the field of PT since the early 60s.
@@andreah6379 My K2 is the seven not four. Since I recently started the cane go up gradually elevated. Until the last post op on hip fearful of subsiding the titanium insert down the femur. I am retired teacher but sub JH HS been getting 3 miles/ day. I am also still doing therapy one day/ week. Thinking hip recovery then osteoporosis marching dropping up and down hills. Is that clearly thinking?
Dr I am on the boniva injection is it save to just stop using it?
I fractured in my spine L1 May of 2022. Had kyphoplasty and fractured L2 end plate. Endo wants to start me on reclast. I’m still healing from an infection I had after procedure. Should I wait until I’m clear 100 % from the infection? Apparently the infection is gone but they are still waiting to be dyre. My spine became inflamed and o had ours in the right psoas muscle. Took antibiotics for 6 weeks. Any suggestions?
why can’t i have the medication that stimulates bones first instead of bisphosphanates
I don’t want anything with bisphosphonates or estrogen or soy. I’m thinking of looking into more holistic alternatives.
I was on xgeva for MBC. I took excellent care of my teeth. I of course got ONJ. It took nearly 18 months for this dead bone to come out. 2 days after the dead bone came out. I finally saw the doctor that explained what had happened. He said anything that causes a break in the mucousa of mouth has the potential to start the ONJ process. This allows germs to get in which causes bone death.
Good to know. Sorry you had to go through that.
Fran - May I ask what ONJ stands for ? I am worried that I may run into similar problem with my teeth under the medication. thank you in advance.
Isn’t it necrosis of the jaw?
@@theresa94010 Osteonecrosis of the jaw.
Hi im 61 fell and broke my rist and found out i had ostie,i had a bone infusion a month ago put me on my arss for two days,i have no thyord 34 years, doctor said ill end up with heart problems but instead i got brittle bones,doc said i need another one in a year,please what can i do to help myself naturally
Thank you Margaret and Dr. Rubin. I so appreciate this important information. Bless you.
I really appreciate this interview and the questions that you asked. Thank you for seeking out Dr. Rubin so she could share her knowledge with those of us with these types of questions!
I have been on prolix for years is there a save way to stop taking it
The doctor claims that the side effects are rare . Well, not according to the people that share their experience on several osteoporosis groups on Facebook. Many many had to quit the drugs because of the side effects. Maybe she is more careful on what she prescribe to her patients but the rest of us have to use other doctors/ endocrinologists that may not have her expertise .
Dr. Rubin quotes the incidence of side effects in aggregate against the total population of people taking the medication. She is careful to quote the facts. The reason you might see a higher incidence reported among Facebook groups is because the people who do have a side effect spend time on these Facebook groups while those who do not (the majority), do things other than spend time on Facebook (in those groups). If they are doing well with the medication, why would they frequent these groups?
Another point to consider is that people often experience side effects but they might be caused by sources other than the osteoporosis pharmaceutical. The "side effect" might be from another pharmaceutical. a supplement, inactivity or general decline.
I have treat many patients on Prolia and rarely see the side effects.Thank you.
The incidence of side effects is studied and reported. Of course, anecdotal data from a Facebook group is going to make side effects seem much more prevalent. People with side effects are often looking for other methods to treat their osteoporosis or looking for others with whom they can commiserate. Frankly, I think FB has been a detriment to treatment. I see many who refuse prescriptions because they have been scared out of proportion to actual risk. I’d bet most of them are taking a more common medication for something else, and aren’t even aware of common side effects.
@@CloverHikes I don’t take any prescriptions medications. My dental implant specialist warned me about OP medications because they interfere with dentistry. If you are on these medications you cannot have dental implants , and they also causes teeth loss .
@@Hissage I wish I’d never heard of it. My dr just put me on it without telling me any thing I did not have cancer and found out too late that I was just barely in the Osteoprosis side Started falling before all the other things happened I was 65. Had bad falls before and did not break anything. He should have checked more. I have celiac which is why my bones are problematic I’m sure it could have been managed with another drug. ! Drs don’t care. They don’t investigate. Now I can hardly get around even with a walker. My life has been ruined. Have to live alone , husband passed and children have no idea how difficult life is. Have been told it’s too late for hormones. Can’t swallow things so what do I do now ?? Fragility fractures now are so painful and no one seems to care ! Dentist won’t let me go on anything or he won’t pull my tooth or work on them. !!
@@CloverHikes maybe they are not scared out of our proportion to the risk. Maybe they are just extremely risk adverse and that is their choice. So suck it. You seem to be trying to control people into adopting your values.
Hello all,jaad 43,have severe osteoporosis and classification but all my blood test&minerals came good,wonder if something dangerous in my bone metabolism,lost what to do
Same here😢
I’m 43 and I don’t know what to do with osteoporosis. I gave birth to a child 1.5 years ago
None of this is reassuring. I just received a diagnosis of osteoporosis and I’m 65. As much as I’m concerned about the prognosis of that diagnosis, I’m more terrified and wary of treatment with these drugs.
Thank you for this information! I read that once you start taking Prolia, if you stop it, you are at significantly increased risk of spine fractures. Is that true? Are there situations where it might better to go on HRT (if you've never had HRT before, also no children, and you are more than 10 years post-menopausal) vs the Bisphosphonates or Denosumab?
Yes, true re: stopping Prolia.
I also would like to know the answer to this question.
@@MrsKDFerguson It's true about Prolia. You can't just stop it without increasing your risk of having vertebral fractures. You are supposed to go on bisphosphonates after stopping Prolia. (So when your next shot is due, you would start bisphosphonates.)
I had unpleasant side effects from prolia, researching different options both medication and more natural.
Sorry, my question is also about trying HRT ten/fifteen years past menopause instead of osteoporosis medications?
I was on Fosamax which I liked and the side effects were a pain in my neck, and I ended up dislocating my knee. The NP suggested I go onto Prolia. Why ….. didn’t she ever mention that I would need to always be on this drug, Prolia? Thank you for explaining the OP drugs for us!!! Because of your information, I will now… choose to stay on this Fosamax medication! ❤😊
My rhuematologist said I don't need vit k or check magnesium etc. Even though my pulmonologist for sarcoidosis upped my vit d3 because even with supplimentation with vit d3 and fozomax was so low. And bone density was still low.
I now have dental disease and can't take fozomax any more. I'm screwed. I eat holistically . No proccesed food. Etc
save our bones online is a site by a nurse who has a ton of non drug tips
David our bones
@@hollyhansen7898 Thank you for sharing. This is exactly what most of us need
What do you know about the nasel spray called calcitonin Salmon ?
The molecule is identical to the one our body makes. You can but it online overseas pharmacies. The FDA did not approve it. The board that voted was bribed by big Pharma making all these toxic bone densifyers . I don’t know for a fact they were bribed but it is a molecule our body makes but they claimed it causes cancer. Certainly not to the degree this other crap for building bones does.
Margaret do many of your clients on Tymlos complain about fatigue? I have a patient that is pretty tiny I wondered if she could take it every other day and still be effective. But it's totally wiping her out. We've eliminated any other cause.
I took one dose of prolia and had every side effect in the book, body pain, weakness, jaw pain, and I have a rare side effect with my thyroid. I devolved hyperthyroidism.
That's scary n sad...
same here . i like thousands are petrified of taking bio phosphanates . …. can i ask which ones are the best ???? is risedronate sodium or a different one???
Sir. Is it possible to increase height by activating pituitary growth hormone after the growth plate is closure and How much inches grow possible?
I am taking it once a week but it seems my right kidney has a little pain. My bone density is 3.1 and I don't feel good when I take it. Will I need to continue in my medicine or will I stop or need to replace.
I respect having Dr. Rubin on but to ask why doctors would prescribe something that will cause fractures, well, that has an answer that I should think most doctors can guess. Most patients today feel doctors' hands are tied by drug companies and that they get told in administrative meetings that this is what you give patients with certain problems. And that there's only so many treatments you can give and that's that; no room for their own thoughts on the matter.
I don't believe in conspiracy theories, but you tell me. How much wiggle room to doctors have today to speak and think for themselves?
Also in one FB group I have only been in for a few weeks, I have already heard of one person getting osteonecrosis and dying from it, due to these drugs. How "rare" can osteonecrosis be if I have already found out about someone who died of it. after just being in a group for three weeks?
The medical definition of "rare" seems to be wildly inconsistent.
On top of that, if you don't give people in their 50s these drugs because they don't fracture, but they do improve bone density for people in their 50s, doesn't it make sense to think that the reason fracturing happens to people in their 60s is because bone density was decreasing progressively during the 50s? And wouldn't drugs help bone density so as to keep fractures from starting in the 50s to begin with?
The benefits from these drugs are very slim, small decrease in # of fractures and who knows how these studies were done. The side effects are horrible!
Endocrinologist Janet Rubin didn’t even use the word “rare”. She said “I haven’t seen in my practice…and …..I am only in clinic once a week” yes, sir, if your head is hidden in the sand you can’t “see” anything.
I think you are spot on. It's all about money and big pharma having control
In US, our healthcare industry is for-profit, meaning their No1 goal isn't healthy patients, but $$$$$$.
No conspiracy needed. It's fact.
Big drug companies send out their sales people to push their drugs on the doctors, wining & dining them, & in turn, they push it on their patients.
Many patients say that their doc never discussed possible side effects with them when they handed out these prescriptions. To me, personally, with such SERIOUS side effects that these drugs have, that's downright immoral!! What ever happened to "Do no harm"???!!
It's not illegal to have doctors own stock in these drug companies, & knowing that these drugs are serious poison to their patients.
This is what for-profit means. Dollars over life, over health.
Prolia and bisphosphonates have nasty side effects and I am not convinced that they provide significant benefits.
Yep, there is no evidence for bone quality. The only evidence is for bone density and density does not equal strength. We can easily buy Strontium at the health food store. Strontium increases bone density and is somehow known not to build bone quality. DEXa scans only measure bone density so there is no way that the Pharma companies could have proved that their drugs increase bone quality=strength with flexibility.
I agree
But than, what do “we” do?!!!
@@mariamarino138 try to exercise, take vitamin D3 and MK7 daily, consume foods with calcium.
@@mariamarino138God wants you to pray.
I am 79. Had L3 fracture in December and had first Prolia injection in January. I would strongly suggest you take your rx for fosomax when you have low T scores. I did not because of side effects and scared. I have walked every day and yoga 2x week for years plus hike. also calcium, mag, D-3 etc. and eat very healthy. Prevent the fractures if you can. If that means taking medication do it. Fractures and immobility are not fun!
Maybe I am an exception, but I found out I had osteoporosis when I was was told I had two compressed fractures at T11 and T12. At that time, I was 61 years old at the time. I wish I had a bone density test much earlier as I could have got on fosamax and maybe prevented the two fractures. Once you have a fracture from osteoporosis I have heard you are at hight risk for another one.
Same here, 57, 2 compression fractures, T8 and T10, I’m told, fracture leads to fracture, I feel so frail and scared to do ANYTHING!!!😢
Even if you aren't diagnosed with either Osteoporosis or Osteopenia, you can still have a fracture!
There are also such things as "silent fractures," where you have a fracture in your spine but never felt great pain. Just like some ppl think having Osteopenia isn't as bad as Osteoporosis. There's no guarantee at all with any diagnosis what each day can bring when it comes to your bones!
but youre also at high risk from fractures on the drug, it increases density, but not bone quality
ok if risks are more after 4 years for older people. what about yonger people? im 27 and got diagnosed wiht op , have loads of other health issues too. i been worried about the side effects form everything i been reading but can tell jsut how rare it is or how likyl it will be i break my femurs or have a jaw issue or other serious side effects. dose this 4 year go to anyone who takes it or dose it jsut matter on age? i start my first dosage in few days, and my edno said its for 5 year treatment. just wondering how soon i can break soemthing if this is a big risk. just how rare is it?
I can't take any thing for my bone loss. Everything gives me stomach pain and diareah. Have tried them all.
How much vitamin D do I need / about to turn 70 / appreciate your input
From all that I've read and heard from doctors, about 2000-5000IU a day--but each person is different & needs to check with their own healthcare provider. You don't want to get too much of any fat-soluble vitamin!
Most Americans are deficient in VitD.
BTW: Best way to get VitD3 is sunshine! No sunscreen, bare skin and about 15-20 minutes, high noon is helpful and best.
(If you have had skin cancer, than completely avoid this.)
I have to have tooth extractions. I started my Prolia injection’s December 2021. I have to stop them in order to complete my dental work. The dental work I will be having will be for several months.
Thank you for these important videos!! 😊🦋
I am 69 and the Endocrinologist told me I have severe bone loss. He gave me a list of 6 medications to consider. I’ll meet back with him in 6 months. I have had osteoporosis for over 10 years. On two separate occasions I was prescribed Fosamax. And I took 1-2 pills each time. Both times I felt like my ankles were weak and would break. I stopped taking the Fosamax. I understand about osteoclasts and osteoblasts and the “dance” they play to create strong bones. I need to do research on all my choices of medications, but I don’t think I want to mess with my osteoclasts and osteoblasts. There are just too many horror stories out there of people who take these drugs.
I just turned 60 going on 61 . I have severe bone density in my left hip and femur . No fractures exercising . My doc suggested Prolia in my 50’s now I see an endocrinologist and suggesting Evenity . That is new and my insurance doesn’t cover . On top of it my husband is a dentist . I am a breast cancer survivor. Had it in my 40’s . Put me in menopause by 46.
Here in Australia I know lots of people on prolia in their 50’s. GP’s give them out easily. They don’t refer to specialists
Also from Oz. Many of my friends are on GP prescribed Prolia. They have no idea of side effects.
I'm in the UK but it was all a 'secret' who had prescribed me a biphosphonate and NOBODY warned me about side effects. I'm 51. Not taking the risk thank you very much.
Age 78 diagnosed osteoporosis of left hip. Prescribed BONIVA, going on 4 years. No known side effects. How long is continued medication recommended?
I Exercise most days, brisk walking 1 hour about 5 kilometres. 30 minutes into walk, hip becomes very uncomfortable starting at hip radiating down to knee. Any advice please?
Are you sure that's not a side effect of this drug? Make sure you read all the fine print.
Many side effects aren't listed but the "side effect" instructions will say something like, "...Not all side effects are listed here."
Then, you have to go online and Google the drug for more info.
I do that even before going on any drug.
@@andreah6379 I read all 64 pages of the patient information leaflet and the possible side effects did worry me. However, almost 4 years later, I do not seem to have any side effects. My question was, "how long is continued medication recommended?"
I have read and been advised by other users of Boniva, that it only builds exterior bone, which starts chipping after prolonged use.
Wish you’d use the brand name. Most of us don’t know clinical name
Hi! This was a very interesting video so thank you. But I am confused about the timing of the drug holiday for the bisphosonates. The talk was to take the holiday at about 4 years. Can you confirm if that meant before you start your 4th year or if it means after you finish your 4th year? Thank you.
Just found this. Wow. In 2010 age early 50’s my PCP ordered a dexa. DX osteoporosis. PCP wanted to put me on this new drug, Prolia. I declined and found a new provider.
Same. Changed providers as well.
My doctor said I have osteoporosis and he prescribed me a tablet that I will go treatment for 1 year
I am 80 with spinal fractures. I did not take prolia but my doctor has recommended Forteo. Sorry that she did not discuss this. perhaps later
Dr. Rubin is mostly concerned with patients who are frail where the risk of fracture is elevated. In this case, she recommends pharmaceutical intervention, such as Prolia.
I studied forteo it has a black box warning about causing bone cancer and u have to stop after 2 years bc it is so toxic I went to forteo class to learn how to inject it and watched a 70 yr old woman have a non stop back spasm she drove to the class but could not drive home due to the horrible pain you have to daily inject it and keep it cold and take it with on trips I decided against it bc i get side effects from drugs read all the fine print
@@margaretmartinpt but sparkle mentioned Forteo, totally different than Prolia.
I need go on Aromatase inhibitors soon. I'm 67. I already have osteoporosis. They are suggesting I take either prolia or Zometa because I have CKD stage 3A and I am being treated for Ulcerative Colitis with Remicade. Should I seek a specialist or are these safe for me?
You should discuss this with your physician.
@@margaretmartinpt I don’t trust many oncologists are well versed on bone issues when you have other health concerns.
@@gdwitch - Very true, unfortunately and sadly.
@@margaretmartinpt is
. Is it possible to increase height by activating pituitary growth hormone after the growth plate is closure and How much inches grow possible?
I'm only 54 and my endocrinologist want me to take Prolia. Should I get a second opinion? What should people do if they're under 60 years old and already have osteoporosis?
Great question I am also 54 & was diagnosed with osteoporosis. My GP suggested Prolia but I didn't take it. I would like to know what I should do apart from diet with high calcium & weight training exercise.
A second opinion would be worthwhile.
@@margaretmartinpt is she saying aldonerate is okay but Prolia is not for such a person, such as Diann above?
@@margaretmartinpt and is she in favor or forteo or like drug for person such as Diann and others similar; at what age does one consider forteo? Could she get into when it is appropriate?
@@yoongtan5163 I suggest you read my reply below to Brenda & watch the video link I posted. Taking calcium is not the answer & neither is weight training after watching the video from Bob & Brad. Too much calcium & the wrong kind...rock hard white tablets can cause many other isdues incuding hardening your arteries. You would be better served to get calcium from your diet & supplement w/Vit. D3, Vitamin K2 MK7 & a good multiple magnesium supplement. Everyone thinks calcium is the answer. It is not. If you do choose to take it, I would take a plant based calcium. Just my opinion from years of having osteoporosis & doing my research. I am 61 & have had osteoporosis for the better part of the last 20 years.
The interviews with Dr. Rubin are so helpful. I'm in the class of women who are early 50's and diagnosed with osteoporosis. I've been active my whole life with both weight bearing and weight resistance exercising. Though I'm on HRT now, I am not confident this is enough, and I feel like I should seriously consider taking a pharmaceutical. From the video, it sounded like Evinity is not a 'first line' drug for someone in their early 50's. Did I misunderstand? Evinity sounds like a good option for me.
One other comment, would you consider an interview with someone who can discuss the Echolight REMS testing vs the DEXA? I had the REMS done recently in NC. My lumbar spine T was -2.5 (vs 3.0 DEXA) and femur neck was -2.5/-2.9 (vs -1.5/-1/8 DEXA). DEXA was done 9 months earlier. Thanks for all your information!
Thank you. Margaret so much for being so thoughtful.to include this concern for the well-being of your patients /clients .
I am in the Old Very old category . Being 93.
Yes I do have severe osteoporosis ,and follow your. Exercise program .
I am very active .
My doctor wants me to start Rx.but it is so very confusing for me ,because of side effects ,and when to take the Rx ,as it is my concern that no.one knows the stage the bone is .
Did I make that clear .??
At the present time I am loading up on Collagen. And hope that will make a difference , which I was promised it does .
However ,the only was to check is Dexa. And that is 5year gap !
I feel I am rambling on . A
Appreciate your program
Notice none of the many side effects of Prolia were discussed I'm 55 osteoporosis T -2.7 with kyphosis & osteoarthritis I'm so unsure about committing 5 years to a drug
With all the advances in medical science I'm amazed they haven't found a solution for bone loss. You have reassured me that it is a complicated event and taking drugs may be the only solution.
They do have a solution. It is to start hormone replacement therapy immediately at menopause.
Weight bearing exercises first line of defense
oh but they have.. the solutions they offer do not fix the problem but rake in a ton of profits for big pharma so it is working perfectly for the pharmaceutical industry they have become very corrupt it is all about the profits they can charge huge sums of money with the current system I worked with a naturopath to get all my supplements good and got a physical therapy program for my hips and you tube has good physical therapies for osteo. Also lots of walking with with a weight vest or back pack with glass water bottles in it carrying lots of groceries walking etc lots of weight bearing
Of course exercise and diet are 1st line defense and repair; but Low Intensity Vibration platform is approved therapy in Europe, Canada and Australia. Pharmaceutical companies prevent its approval in USA.
@@elsagrace3893 Can’t take HRT if women have had breast cancer.
Dosamate is prolia ???
Is it best to see a rheumatologist or endocrinologist for this?
Hi Susan. Either will do. What matters is whether the physician has a record of treating patients with osteoporosis.
Why do so many bone doctors, etc. say that drugs like Fosomax do build bone, but it's not good bone and it's easily breakable and prevents the osteoblasts/osteoclasts from working correctly?
I went to a life screening here in Robbinsville NC. The lady said I needed to see the doctor about my bone density. So my doctor sent my to have a bone density test. I have Osteoporosis in my spine and hips. I’m 62 and will be starting on a weekly dose of Fosamax.
I love your videos.
Please make sure you research all the options carefully. Best of luck
I am 57, and just after my 3rd fracture about 3 years I decided to go with the aclasta infusion. It's supposed to work for 24months. Frustratingly, 6months on, and I have just had another fracture (shoulder) (whilst on the job). I desperately want to pursue trail running. Any suggestions?
My suggestion is to get off the trail running obsession. Trail speedwalk with hiking poles.
@@nancyst.john-smith3891 thanks for the feedback - funny thing the same thought crossed my mind today. Xxxx
@@nancyst.john-smith3891 walking is great and bone building and great for the brain and mood
@@hollyhansen7898It's funny that so many of us here are so desperate to maintain bone health if not make it better and the 1st thing most everyone vows to do is take up running.
Walking up a hill, any incline can be beneficial to bone health--no running needed. It's been my lifeline!
Thank you
You're welcome
Thank you!
You're welcome!
I have tried to find the reason WHY I have bone loss.
fluoridated water is a cause smoking race coca cola consumption all these contribute to it
Estrogen and progesterone loss, mostly estrogen loss.
Genetics, what kind of life style did you have growing up and into adulthood? Did you drink alcohol, or lots of soda? Are you big into keeping active and into weight bearing exercise, even walking up a hill is great for bones.
Your bones start to decrease in density in your 40s.
Fractures of the spine can happen to even normal bone!
Two things to know are not just bone density which is measured with DEXA but also the quality of bone--how well mineralized are your bones and there's tests for that that rarely are done automatically by your doctor & often you need to request them.
There's so much to know!
I had breast cancer 25 yrs ago chemo shut my ovaries down. I have osteoporosis now I have tried everything. I even do kettlebell weight workouts for years . Broke my wrist put me on forteo for 2 years did put some areas into osteopenia but now on prolia im 69
I got RA after taking aclasta.....
What happens if bisphosphanates gives you gastric problems, reflux/gerd, etc? Dr will then prescribe nexium or a generic to help with your gastric issue but which weaken your bones, so then what!? No thanks.
Thry would want you to have the shot or infusion every six months
Your comment you have to have a doctor who knows what they are doing, unfortunately in Wales our GP is responsible for this treatment they know is what they learned at med school, to keep practicing they do not have to keep up to date. Sad for their patients of which I am one.
I was on Prolia around 75. Had osteoporosis for many years before that. Tried foxanax without help first. Well because I needed high calcium with Prolia my test showed hip got worse and with further testing the calcium w3 t into arteries and not bones. Caused auerism in aorta so I am not on anything. Took D3, k2/m7, magnesia. Stood ok two years. But now I’m 83 and going bad again. I don’t know what to do. Plus I’m on S/s and the drug is my cost 1200. Every six months. I can’t afford it. No help. What now. Please advis3.
see a naturopath they have a whole different toolkit and often have cheaper and more holistic less toxic supplements they are a great tool for aging well
Can you exercise at all? If you can do isometric exercises, you may find help with checking out very experienced physical therapist on YT, her name is Sara Meeks. She's in her 80s, has Osteoporosis, too and can give help with proper exercises to hopefully maintain bone for yourself.
There is so much work involved but it could help you. And it's free.
Somehow I feel like this doctor is not answering straight
I take no pharmictical products.
I’m 57, was diagnosed at the age of 47 with a -2.5 DXA, now at 57, one fractured my T-8 and T-10 what should I do?!!!
I’m OVERWHELMED!!!
Thyroid is good.
I exercise swimming, weight baring , walking and exercises.
I never took medicine before till now being young old age.
What do you think of doctor telling you to chew Antacid 500 chew
Have no reflux ever but doctor wants take Antacid 500 3 x daily. Can’t take 3 x daily extreme sinus head aches.
I’m drinking 1 to 1.5 gallons water daily. Extremely dehydration.
This is from my family doctor should I see a specialist.
Sounds like you are drinking a lot of water which may be washing out the minerals and vitimins you should be getting from your food before your body has a chance to absorb them. Look up what Dr. Berg says about drinking too much water.
see a naturopath they have a whole different tool kit than big pharma
For me the doctor wanted me to take an Antacid for the Calcium it contains.
Had severe , very severe , cramping with fosamax... then to find out it may, may not help. And you can't take for many years. ... Then the medicinal ca+ will not always go into the bones, but into vessels and other tissues. Think i will go back to my Grandmother's teachings. Eat a little of everything, back on meat, my skin is clearing, my energy is back . Can't find cod liver oil. Can powder egg shells for my ca+. Can't eat my eggs raw though, and I may look into buttermilk, though i hear greek yogurt is a good exchange. My general health really needed fixing, and slowly re- incorporating the meals of yesteryear has made improvements.
Our grandmothers were the wise ones. Doctors? not so much. They do what the FDA tells them, and FDA does what the big pharmaceuticals dictate. Nothing but drug pushers.
a great cod liver oil is CARLSONS kroger stores have it and you can get it online it does not taste bad either they took the most of the fishy taste out save our bones is a nurse who has great diet tips to help the condition
There are different kinds of Cslcium supplements. Eggshells are the worst. Not easily digested and absorbed.
If interested in Calcium supplements, take Calcium citrate. It's digested betterand more absorbable. The best is hydroxyapatite. It's a form of Calcium that also has other essential minerals attached in a crystal form (from what I read) and it's all good for the bones.
Stay away from too much salt and soda pop, if you liked those things. Calcium doesn't do well with those things.
Look up vitamin K2, it helps put the calcium in the bones not the kidneys and arteries.
people under 50s do fracture. 43 osteporosis, fractured myfoot, not healing. i am not healing and scared. I have low estrogen, history of amenorhha. i need medicine, as my aunt had 5 hip fractures,my doctors are not doing anything forme. i cannot work, i am losing friends because i am stuck at home. please advocate to health care that we cannot leave this alone....execricse is not enough. i exercise mywhole life. exercise and diet not enough. without estrogen, bones will not build...I am sick of people only treating women over 60, this is killing people all over the world:) lets get real please,thank you for listening, as i am scared and have had 4 fractures in feet overyear
possibly try c estriole and progesterone bio identical hormones they are made by a compounding pharmacy and are made from plants, yams