Thank you for the info on the types of tubes! I am in nursing school and having no prior info on tubes and only reading a textbook and lecture had me confused. I appreciate you breaking down the info in both professional and layman's terms. It really helped! I will share this video with my class. Thank you again and I wish you all the best!
Seeing how positive and cheerful you are living with a disability that seems to place a never ending struggle in your life makes me feel really ungrateful for my health. Your strength makes you shine. Keep it real, pretty lady.
Great information! I currently have a j-tube but I've had almost every other type of tube too. I don't have my pancreas, duodenum, gallbladder, or spleen. I also only have about 20% of my stomach. Take care!
Great overview of tubes. I have a pej, Jtube, placed like a pegj. I just have the jpart but it goes through my stomach into my small intestine. I want a GJ but fir some reason my gi doesn't place them that often. I had an NJ for 6 months and it feels the same as an NG.
I have had both NGs and NJs. Before my stomach and intestinal problems started I had an NG placed for nutrition during a hospital stay(october 2014)for pain management due to my overall genetic condition which causes severe amounts of joint dislocations in me (like 150+ times a day and chronically dislocated joints between all my joints) among the other issues I have, in which they used PCA dilaudid and made my appetite go to nothing and feeling nauseated. I tolerated overnight feeds well (they were doing like 70 ml/hr so it turned it an early afternoon ending time because it was that slow). Fast forward to November 2014I start having really bad slow motility in my large intestine that continues and I start loosing my appetite, nausea, pain and bloating. So I see a GI doctor in June of 2015 for the first time and we start trying new regimes for my constipation and trying meds for my other symptoms. By November 2015 nothing is working for my constipation and I am loosing a lot of weight in a very short period of time (it was like 10 lbs in less then two weeks). So a Gastric emptying scan was scheduled and an endoscopy with NG tube placement for a cleanout. The emptying scan comes back normal but the endoscopy showed large amounts of food from over 12 hrs earlier in my stomach. So at that point it confirmed his fear that I had Gastroparesis which is a complication of my genetic condition as well as slow motility. So they start they clean out and increase the rate in varying degrees of 300mls-400 mls an hour and since my stomach wasn't working I started getting nauseas, in a ton of pain, extremely distended stomach and was violently vomiting. The cleanout also didn't even work because I had thrown up some of it and my colon is very resitant to all laxatives and stimulants. In 2016 I try more and more regimes for my slow motility with no avail and the idea of an ileostomy is brought up (he believes a mace or cecostomy would be ineffective due to me not having success with enemas) and when my GI originally mentioned it he thought it could be temporary to rest my intestines and if they didn't wake up then they could be removed and my small intestines would be attached to my rectum but since my intestines have proven to be so slow he thinks now it would be a permanent thing. We were trying medication regimes for my Gastroparesis with no help and eventually experimental botox which helped a ton but meant I would need a surgery to permanently open my stomach ending. I see the surgeon in September 2016 and she says she wants more evidence of Gastroparesis since my scan was negative so we repeat the botox in Octoberand it again works. It starts wearing off inthe end of December and the Beginning of January of 2017 and I go into a very bad flare where I can't keep food or liquids down and haven't eaten or drinken in 4 days. So an NJ is placed and eventually once it was advanced far enough into my jejunum it was very helpful and I felt good for the first time in a long while. I see my GI doctor in February and he decides I need to go see the surgeon to discuss pyloroplasty or GJ feeding tube and the idea of an ileostomy. The pediatric surgeons refuse to even consider surgery because of me being such a high risk surgical candidate. We set the appointment for middle of March with the adult surgeon who will at least have a consultation with me and the surgeon decides he wants to get a gastric emptying at the last minute and postponing the appointment to the end of this month. I had the scan last week and miserably failed it by vomiting it all up within an hour and nothing was moving out of my stomach in the about an hour of pictures they got (normally it is supposed to be 4 hours long). So who knows what is next for me. I have had my NJ for 11 weeks now
i have a seperate g and j! i’ve had ngs, njs, and a gj so i’ve had a bunch of them and by far surgical tubes are 100x better because they’re so much more comfortable:)
I have cystic fibrosis and have a gtube. I originally had a gj placed last year when my pancreas was removed, but i cough so much I kept causing it to coil up. Love watching your videos!
Taylor Schriver I have 4 daughters, two of which have cystic fibrosis. Thankfully, they both qualified for the new FDA approved drug. Hope your feeling good! Much love
finally, someone who knows what an ND tube is! I have an ND tube and I've had RN's ask me what they are.... and they're like ohhh I forgot about those ones we don't use them very often😂
This was VERY informative! Just found out my Dr wants me to a gj tube but the soonest they could get me in is January 2019 so like 2.5 months away, and I just want to expect.
people with cystic fibrosis will often get j tubes because them coughing will cough up the job tube so if they out it right into the jejunum they can't cough the job tube back into their stomach
I had an NJ now I have a Peg-j or GJ tube I have severe Gastroparesis. Nasal tubes block more frequently than surgical tubes as they tend to be narrower lumens.
I think you’re extremely informative obviously and a sweetheart but I know my PEG wasn’t put in just because of appearance reasons or for comfort reasons. Lol. I had no choice. I couldn’t swallow at all, barely even my saliva after major spine surgery. And after being hospitalized for over 6 weeks, the Dr,s made the choice and decision to put a feeding tube through my stomach. I had a NG tube in for weeks in the hospital but mine wasn’t one of those tiny little skinny tubes. It was HUGE. And when the NG got blocked when a pill wasn’t crushed up enough and got lodged when a nurse tried to administer it, they went to replace it and omg it was the worst thing ever. It hurt, it was so hard it made my nose bleed and I brought up blood after they pulled it back out after they couldn’t get it right down all the way I would of survived if it was a tiny one like that. Maybe lol. Although I applaud you regardless of how big or little they are. I could never do it myself. Lol
I was getting scared bc my brother has been on steroids for his crohns and broke out and gained weight. I rather have the feeding tube so I don't have to actually break down the foods on my own it's hard for my body to pass the food afterwords it that makes sense
People get tubes for so many different reasons and there are so many types of tubes. I have mine as I have stomach paralysis severely delayed emptying solids and liquids.
I have gastroparesis gastritis and pancreatitis and my GI doc recommended me that I should get a GJ tube because I cannot handle any kinds of foods and I've been on a liquid diet for about a month now and it hasn't been any better it's horrible so I'm hoping this tube will help me out !
hi Maggie great video and information on feeding tubes I never knew there where so many different kinds of tubes. I'd like to see a video on what to do if you have a leak and you don't have any supplies with you. I'm asking as I don't carry spears around with me I know bad right but yea i just trust I'll be ok while Im out and about.
I have an NJ (soon to be GJ) and I've never had an NG but i imagine it is slightly different. The main difference for me is when I see videos of people's placing NGs once you get to the stomach any discomfort is pretty much over but with NJs they (the people in interventional radiology)actually have to wait until the pylorus opens so there's quite a bit of "twerking" the tube and moving it around to get it past the stomach which in my experience can be nauseating and feel kinda cramp like and irritate the nose. The average NJ placement is also longer. And I actually know some hospitals sedate patients for their NJ placements. ( how ever I've been awake for all my NJ tubes)
maura Grier my NJ went in easy then was pulled down endoscopically under sedation in interventional radiology. Now all my Jtube placements are done the same way.
Love this vid! Have a question though..in regards to patients pulling out tubes they don't want, wouldn't it be illegal to make them keep it? I'm being taught they have the right to refuse
J tubes have a higher rate of complications I know somebody who lost a friend because of a J tube complication I don't know the specifics of the situation I just know that the cause of death was related to the J tube complications
i have my 4th tube in the 1st one was a g tube the 2nd one was a gj tube and 3rd one was a j tube now i have a gj tube cause they take them out and with my gi issues it gets to the point were i can't eat again so they have to put another one in and now my gi is saying about puting a j tube in cause i get really acidic and the gj tube does not help with that
just try to clean it as best u can cause it drains alot a least mine does but everyone is different cause the first one i had did not drain as much as this one that is y my gi wents to put in a j tube cause this one is not working the way he wents and i'm having trouble with infections
Great information! I currently have a j-tube but I've had almost every other type of tube too. I don't have my pancreas, duodenum, gallbladder, or spleen. I also only have about 20% of my stomach. Take care!
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Thank you for the info on the types of tubes! I am in nursing school and having no prior info on tubes and only reading a textbook and lecture had me confused. I appreciate you breaking down the info in both professional and layman's terms. It really helped! I will share this video with my class. Thank you again and I wish you all the best!
Seeing how positive and cheerful you are living with a disability that seems to place a never ending struggle in your life makes me feel really ungrateful for my health. Your strength makes you shine. Keep it real, pretty lady.
Great information! I currently have a j-tube but I've had almost every other type of tube too. I don't have my pancreas, duodenum, gallbladder, or spleen. I also only have about 20% of my stomach.
Take care!
Great overview of tubes. I have a pej, Jtube, placed like a pegj. I just have the jpart but it goes through my stomach into my small intestine. I want a GJ but fir some reason my gi doesn't place them that often. I had an NJ for 6 months and it feels the same as an NG.
I had a ND before and an NJ. My NG sometimes I’ll go post pyloric. Which isn’t too comfortable but I won’t feel sick from feeds
I have the dobhoff feeding tube for now. Surgeon wanted g-tube but I compromised with this. Thank you for the info. Very helpful
I have had both NGs and NJs. Before my stomach and intestinal problems started I had an NG placed for nutrition during a hospital stay(october 2014)for pain management due to my overall genetic condition which causes severe amounts of joint dislocations in me (like 150+ times a day and chronically dislocated joints between all my joints) among the other issues I have, in which they used PCA dilaudid and made my appetite go to nothing and feeling nauseated. I tolerated overnight feeds well (they were doing like 70 ml/hr so it turned it an early afternoon ending time because it was that slow). Fast forward to November 2014I start having really bad slow motility in my large intestine that continues and I start loosing my appetite, nausea, pain and bloating. So I see a GI doctor in June of 2015 for the first time and we start trying new regimes for my constipation and trying meds for my other symptoms. By November 2015 nothing is working for my constipation and I am loosing a lot of weight in a very short period of time (it was like 10 lbs in less then two weeks). So a Gastric emptying scan was scheduled and an endoscopy with NG tube placement for a cleanout. The emptying scan comes back normal but the endoscopy showed large amounts of food from over 12 hrs earlier in my stomach. So at that point it confirmed his fear that I had Gastroparesis which is a complication of my genetic condition as well as slow motility. So they start they clean out and increase the rate in varying degrees of 300mls-400 mls an hour and since my stomach wasn't working I started getting nauseas, in a ton of pain, extremely distended stomach and was violently vomiting. The cleanout also didn't even work because I had thrown up some of it and my colon is very resitant to all laxatives and stimulants. In 2016 I try more and more regimes for my slow motility with no avail and the idea of an ileostomy is brought up (he believes a mace or cecostomy would be ineffective due to me not having success with enemas) and when my GI originally mentioned it he thought it could be temporary to rest my intestines and if they didn't wake up then they could be removed and my small intestines would be attached to my rectum but since my intestines have proven to be so slow he thinks now it would be a permanent thing. We were trying medication regimes for my Gastroparesis with no help and eventually experimental botox which helped a ton but meant I would need a surgery to permanently open my stomach ending. I see the surgeon in September 2016 and she says she wants more evidence of Gastroparesis since my scan was negative so we repeat the botox in Octoberand it again works. It starts wearing off inthe end of December and the Beginning of January of 2017 and I go into a very bad flare where I can't keep food or liquids down and haven't eaten or drinken in 4 days. So an NJ is placed and eventually once it was advanced far enough into my jejunum it was very helpful and I felt good for the first time in a long while. I see my GI doctor in February and he decides I need to go see the surgeon to discuss pyloroplasty or GJ feeding tube and the idea of an ileostomy. The pediatric surgeons refuse to even consider surgery because of me being such a high risk surgical candidate. We set the appointment for middle of March with the adult surgeon who will at least have a consultation with me and the surgeon decides he wants to get a gastric emptying at the last minute and postponing the appointment to the end of this month. I had the scan last week and miserably failed it by vomiting it all up within an hour and nothing was moving out of my stomach in the about an hour of pictures they got (normally it is supposed to be 4 hours long). So who knows what is next for me. I have had my NJ for 11 weeks now
I've got to say I've watched a few of your videos and you're awesome and so strong! Keep going girl!
i have a seperate g and j! i’ve had ngs, njs, and a gj so i’ve had a bunch of them and by far surgical tubes are 100x better because they’re so much more comfortable:)
I have cystic fibrosis and have a gtube. I originally had a gj placed last year when my pancreas was removed, but i cough so much I kept causing it to coil up. Love watching your videos!
Oh no! What do you use to get nutrition now? Thank you so much for commenting and watching Taylor!
Taylor Schriver I have 4 daughters, two of which have cystic fibrosis. Thankfully, they both qualified for the new FDA approved drug. Hope your feeling good! Much love
finally, someone who knows what an ND tube is! I have an ND tube and I've had RN's ask me what they are.... and they're like ohhh I forgot about those ones we don't use them very often😂
This was VERY informative! Just found out my Dr wants me to a gj tube but the soonest they could get me in is January 2019 so like 2.5 months away, and I just want to expect.
Ever go tubing with a tube inserted? Nothing like feeding while being pulled by a speed boat, or sliding down a snow covered hill.
people with cystic fibrosis will often get j tubes because them coughing will cough up the job tube so if they out it right into the jejunum they can't cough the job tube back into their stomach
Ashley Peter do you follow the Frey Life on RUclips? I know she is going through this right now!
I do follow them. They went talked fully about it once and it interests me so I thought I would share that along.
Great video....wondering about infection possibility and rate/percentage?
Congrats on maintaining weight! That is the goal of all Tubies. I hope all is still good for you.
you are so awesome! Thank you for so much concise and quality information.
THank you!!
THanks for your video super helpful! I just got a GJ feeding tube and started a vlog!
I had an NJ now I have a Peg-j or GJ tube I have severe Gastroparesis. Nasal tubes block more frequently than surgical tubes as they tend to be narrower lumens.
I think you’re extremely informative obviously and a sweetheart but I know my PEG wasn’t put in just because of appearance reasons or for comfort reasons. Lol. I had no choice. I couldn’t swallow at all, barely even my saliva after major spine surgery. And after being hospitalized for over 6 weeks, the Dr,s made the choice and decision to put a feeding tube through my stomach. I had a NG tube in for weeks in the hospital but mine wasn’t one of those tiny little skinny tubes. It was HUGE. And when the NG got blocked when a pill wasn’t crushed up enough and got lodged when a nurse tried to administer it, they went to replace it and omg it was the worst thing ever. It hurt, it was so hard it made my nose bleed and I brought up blood after they pulled it back out after they couldn’t get it right down all the way I would of survived if it was a tiny one like that. Maybe lol. Although I applaud you regardless of how big or little they are. I could never do it myself. Lol
I have Hirschsprung's disease but do not have it to the severity of most people. I am lucky enough to currently not need an ostomy bag.
i just had to get a feeding tube
Do you have to see a Specialist to get a feeding tube or can you just get one done at the hospital?
I have a nasoduodenal tube 🙂
not to be blunt or rude in any means I'm getting crohns and I was wondering if you have to be underweight for the feeding tube
Joanna Richards not at all! If you are unable to get good nutrition to help heal, people get feeding tubes.
I was getting scared bc my brother has been on steroids for his crohns and broke out and gained weight. I rather have the feeding tube so I don't have to actually break down the foods on my own it's hard for my body to pass the food afterwords it that makes sense
People get tubes for so many different reasons and there are so many types of tubes. I have mine as I have stomach paralysis severely delayed emptying solids and liquids.
I have gastroparesis gastritis and pancreatitis and my GI doc recommended me that I should get a GJ tube because I cannot handle any kinds of foods and I've been on a liquid diet for about a month now and it hasn't been any better it's horrible so I'm hoping this tube will help me out !
You awesome thank you so much for the positive informations
hi Maggie great video and information on feeding tubes I never knew there where so many different kinds of tubes. I'd like to see a video on what to do if you have a leak and you don't have any supplies with you. I'm asking as I don't carry spears around with me I know bad right but yea i just trust I'll be ok while Im out and about.
Thank you for your comment! I have some ideas brewing about a video like that - hopefully I can come up with something good for you! (:
I have an NJ (soon to be GJ) and I've never had an NG but i imagine it is slightly different. The main difference for me is when I see videos of people's placing NGs once you get to the stomach any discomfort is pretty much over but with NJs they (the people in interventional radiology)actually have to wait until the pylorus opens so there's quite a bit of "twerking" the tube and moving it around to get it past the stomach which in my experience can be nauseating and feel kinda cramp like and irritate the nose. The average NJ placement is also longer. And I actually know some hospitals sedate patients for their NJ placements. ( how ever I've been awake for all my NJ tubes)
maura Grier my NJ went in easy then was pulled down endoscopically under sedation in interventional radiology. Now all my Jtube placements are done the same way.
Oh that's cool!
Love this vid! Have a question though..in regards to patients pulling out tubes they don't want, wouldn't it be illegal to make them keep it? I'm being taught they have the right to refuse
I'm coming from a pediatrics perspective, so it is up to the parent!
Please tell me about different between about feeding tube and ryle tube
J tubes have a higher rate of complications I know somebody who lost a friend because of a J tube complication I don't know the specifics of the situation I just know that the cause of death was related to the J tube complications
i have my 4th tube in the 1st one was a g tube the 2nd one was a gj tube and 3rd one was a j tube now i have a gj tube cause they take them out and with my gi issues it gets to the point were i can't eat again so they have to put another one in and now my gi is saying about puting a j tube in cause i get really acidic and the gj tube does not help with that
Hi I'm getting a GJ tube placement in the coming days I have gastroparesis is there any tips you have to care for it ?
just try to clean it as best u can cause it drains alot a least mine does but everyone is different cause the first one i had did not drain as much as this one that is y my gi wents to put in a j tube cause this one is not working the way he wents and i'm having trouble with infections
I have anorexia and I unfortunately have to have a ng tube. Sucks 😔
I have a feeding tube
U r great
You are soooooooooooo beautiful!!!!!
Great information! I currently have a j-tube but I've had almost every other type of tube too. I don't have my pancreas, duodenum, gallbladder, or spleen. I also only have about 20% of my stomach.
Take care!