I think every medical student, resident and nurse should watch this video. I am a retired RN who has had 10 surgeries for perforated bowels and hernias and have had multiple traumatic NG tube insertions because of medical personnel not knowing basic anatomy and just cramming those tubes in. I had a resident rupture my palatine artery in my nose which became a bloodbath and resulted in packing my nose and later the artery had to be cauterized 4 times! And this is in the midst of a bowel obstruction which led to surgery. Once the tube was inserted in my lung and I was telling the doctor I couldnt breathe in my squeaky voice because I couldnt get air and he wouldn't stop until the nurse stopped him. Please make sure the person who is putting this in has experience!
I'm so glad I found your channel. In high school, a close friend of mine had a bowel resection after a brutal time with ulcerative colitis. Later, I did my college capstone project on certain developments in our understanding of the immunology of Crohn's and colitis. As an immunologist, I find it important to understand the human side of these conditions. It's great to see someone well-spoken, well-educated, and experienced creating content for the public. Thumbs up.
Part of 2019 and 2020 I had a GI tube, drainage tube, trach and a Foley catheter. It was a rough time and I'm glad that's over with. I was happy to get rid of the GI tube, the trach and off the ventilator. You're a strong tough young woman. With your videos you give me as a 64 year woman courage.
I've never had a tube, nor have I ever known anyone who had one (as far as I know.) My mom had an ostomy at one point when I was little but that's where my experience ends. Maggie, you do such a good job explaining things to us "laypeople" (for lack of a better word.)
I had a PEG tube for 6 months due to the surgery and radiation treatments I had for tongue cancer. I asked for it to be placed when I had the surgery since I was having most of my tongue replaced with a free flap and couldn't imagine having to deal with a tube down the back of my throat. The end on the PEG came out of a stoma on the left side of my mid-abdomen, with 2 feeding/med ports and the port for filling/checking the ballon in the stomach that kept it in place. There was a round bumper over the stoma that the tube came through to keep it in position. I used to secure the tube beside the stoma with a catheter holder so it wouldn't get pulled or dangle - it wasn't too conspicuous under loose tops. I was able to have the PEG removed mid-June once I could handle swallowing liquids safely again. I was able to take care of the tube fine and do my feedings with no issues. I used bolus feeding (using syringes that screwed onto the ports) of formula as well as other finely blended 'real food' and baby squeezers mixed in, which helped keep my GI tract relatively happy. It's the only reason I was able to maintain enough of my weight and get enough hydration that I wasn't hospitalized again. However, my body didn't like the tube itself, so I had issues with the stoma, and I'd see a NP at my GI practice to help monitor it - had to do a few rounds of antibiotics to keep it decent, but it was always a 'cranky' stoma. One of the things that was inconvenient while I had it was making sure to get liquid meds, or tablets that could be crushed to mix with water; it took 3 tries once to get an antibiotic that I could actually use. And dealing with a liquid diet means you get hungry every 3 hours or so! I got pretty fast with my feedings - I'd stand at the kitchen sink, getting my 'food' in my stomach, while I watched a YT video or 2, sometimes yours, Maggie! 😊 I'm glad to be done with it. But the interesting thing is it's pretty easy to remove/replace a PEG once you have it - a quick outpatient procedure which in my case was done by interventional radiology at the hospital I go to. My NP at my GI practice said they do the replacements/removals sometimes as well.
I had my first and only blockage followed by my first NG tube this past January at the age of 57. A pair of nurses tried to manhandle me and force the tube in. I was afraid, in pain, they were causing me more pain and distress and making the situation worse by the way that they were going about it. One of the physicians saw his, came over and took care of the situation. He and another doctor gave me a small dose of an anti anxiety medication and the gently placed the tube. Much easier and less traumatic. I had it for a day and a half while they manually cleared the blockage. (No surgery!). Thank you to the doctors for their kindness!
Wow, that's awful that those nurses were so mean! If I was a nurse, I would try to make my patient feel as calm as possible, and I certainly wouldn't want to hurt them. What is wrong with people?!
You are incredible for going through what you did at such a tender age.. I had to have a NG tube last year due to my small intestine getting twisted and blocked so it was to pump out my stomach and not for TPN. But I was traumatised by the tube as the nurse rammed it up my nose causing me pain, he was in a hurry as his shift was about to end so didn't pay any attention to me or my comfort. The tube hurt so bad for the week I had to have kept in and I could feel it hurting my throat everytime I swallowed. The thought of young children having to go through this just breaks my heart. I cried when I saw stoma bags for babies, they are so so very brave. Thank you for sharing your story, Maggie. I wish I had met you before I had my stoma.. sending you lots of love from the UK 🇬🇧 ❤️ 💗 💕
I remember the video you put on here with Zak putting it in. When my sister was 7, she threw up and hated it so much that she stopped eating and drinking. She was in the hospital where they put a feeding tube in her nose when she refused to eat. To this day, she’s now 42, and has never thrown up, however, she’s still afraid to eat at times bc she doesn’t want to throw up. I never thought she’d have kids, but she has my sweet 14 year old nephew, and 9 year old niece. She had to be on a bunch of meds and a pump for the nausea. It’s sad that she lives her life being afraid to throw up. I mean, I get it, if I’m feeling nauseous, I get anxiety attacks, but if I throw up, it’s over in a few minutes and move on with life.
I remember when I was a child, I was so terrified of throwing up! Whenever I got a stomach bug, I was absolutely panic-stricken! I wouldn't eat anything until I was totally sure I was over the illness, and there was no chance of throwing up again. So I wouldn't eat for like 4 or 5 days! As an adult, I'm still afraid to throw up, but luckily it doesn't hardly ever happen. Whenever I get a migraine, though, I get very nauseous and that fear comes up. I have to take deep breaths and concentrate on calming myself down so I don't throw up. Anyway, I can relate to your sister, because I have that fear, too!
It's a legitimate phobia, emetophobia. I can relate, I hate to vomit. On one occasion, I did have to have a rigid NG placed in ER and the immediate relief was actually better than vomiting. But that nurse was very gentle and I agree that any medical staff need to be careful, gentle and discuss every step of the process. I'm curious, though-was there a reason why a PEG wasn't an option? My brother has had a PEG for two years for supplemental feeding following cancer. It seems like much easier maintenance than placing and removing a tube daily. I've been a healthcare provider for 38 years, I own 4 stethoscopes, 3 sphygmomanometers, two pulse oximeters and 3 incentive spirometers. Once my cat with kidney insufficiency needed subcutaneous fluids. I put a hook in the wall at the head of my bed to hang the bag and would get him comfortable in my lap before inserting the needle, then just adjust the flow with the roller clamp until he was okay with full on flow. Once he realized it made him feel better he was very cooperative and it extended his life for at least nine months, and gave him good quality life.
I've never had an NG (or any other GI-related) tube, thankfully! However, I do use (and have in the past) an insulin pump and am also currently using a CGM...you're so right that the less you have connected to you, the better (or at least, more normal) you feel! ❤️
I went to the doc today with dizziness, sob, and weakness. I'm being treated for malnutrition (22 years after weight loss surgery) and tube feeding was brought up at the appointment. Spot on timing, Maggie! TY!
I just got back from another chrons obstruction this past week, they had to put in another NG tube (4th one I've had in the past 3 years).... I hate it... I can't believe how strong you are. I bawled and fought them off and as a 32 year old male... It wasn't pretty. I cried everytime they said I had to wait another day. Thanks for your channel.
I have had 20+ ng tubes placed, not for feeding but obstructions, god they hurt my nose! The nurses would put lidocaine on my nose just for a small amount of comfort, Crohn's sucks!
Hello my friend I'm from St Mary's county Southern Maryland you are Amazing great story God is with you prayers and blessings to you love listening to your story very educational thanks for sharing Stay strong and healthy keep up the good work on your RUclips channel
I had a nasal tube for a while but I now have a micy tube through my stomach into my intestines as I have gastroparesis. I also have an ileostomy. I had a major op and after that I had my mice and ileostomy. I have EDS POTS and other things. Lots of things going on. I still miss food though..
I found you originally from your feeding tube content. I am 100% tube fed, and I have a surgical GJ tube. At this point, the tube is life long to manage my gastroparesis. Thank you for your education
I have a horrific gag reflex, but if something like this happened to me I would like to think that knowing something of the process and how it feels that I would be more in control. Thank you!
I've never had any tubes, and thank God, because just the thought of this is triggering my gag reflex. I feel like I would be one to leave it in just to avoid having to re-place it every time.
Respect to you, Maggie. I just couldn't stand the NG tube and literally begged my Dr. to have it removed. Because of allergy/sinusitis issues causing a bleeding nose; and a deviated septum, it was a herendous experience for me. Blessings to you and yours from South Africa.
Phew! Thank God my only experience with tube-feeding is drinking the Kate Farms Peptide 1.5 orally. It's amazing what we go through, isn't it? Thanks, Maggie!
I couldn't handle the tube, I couldn't talk with it in because of tonsil issues. So instead, for 2 months at age 12 or 13, I had to mix water with formula as my almost exclusive nutrition. I was allergic to all the cartons except one. After the two months, I got surgery to remove the stricture where big and little interesting meet. A few months later I got my tonsils out, so if I ever need formula again, I should be good with a tube.
As someone who was taught to place an NG tube (later turned to an NJ that I could no longer place myself) when I go into the ER and need an NG suction tube, I always talk them into letting me place it, even if I just start it and get it past the back of my throat and they finish pushing it in the the desired length. It is so much LESS traumatic when I do it on myself rather than having someone else do it.
You are always helpful! I have learned so much from your videos. Thank you! I will watch your other channel if you do make another channel about the Barn---from what I saw it was beautiful and you and Zach are the perfect couple to have a wedding venue!!
Ohhhh Maggie this tube feeding was when I first suscribed to your chfeeding annel I have never had a tube but I can imagine how liberating it was for you when it was no longer needed ❤❤
I have a GJ tube right now, and I used to have an NJ. I wish I could exchange my tubes at home, because interventional radiologists are kind of rough with me. I've been doing tube feeds for 4 years, and I am still super annoyed with how sensitive infinity pumps are haha. I've found tricks that make it less likely to do it now, but I still have some days where will yell at me for no reason.
I was lucky - the IR who did a replacement and then later the removal of my PEG was really nice. She looked like a kindly grandmother. 😊 I had a mis-positioned tube that needed replaced and they were nice enough to get pain meds on board beforehand. Now, taking it out for good was the 'cough hard' and wait for the 'sting' to subside... slowly. 😬
I had an NG tube for about 3 days when I was in the hospital for extreme gastric upset. The tube was HUGE and I was nauseous the entire time I had the tube in. As soon as the tube was removed, voila!, the nausea disappeared. Grrr.
Our only family member with Crohn's was my uncle. He found out in a horrific way. He had severe esophageal cancer and they were going to take his esophagus and rebuild one with his intestine. When they opened him up they realized he had Crohn's and the intestine was diseased. He had symptoms but with years of cancer, he just assumed all symptoms were cancer treatment related.
I had what was then called a Ryles tube inserted before surgery 50 years ago. Worst experience and it was a one off. Left in situ for 10 days. I am so feeling for you Maggie. I also had a panic attack.had to be held down. So humiliating
I've had dobhoff tubes placed twice, very briefly, and I didn't tolerate it too well. Part of it was that I have a deviated septum, and the "large nostril" leads to a very narrow path through my nose.
When I had my proctocolectomy I couldn’t eat anything and I was very gassy and was sick a few times , the constant and nurses were treating it as a reaction to the anaesthetic this went on for a couple of days with no change in sight , so I asked about having an NG tube , they couldn’t believe that anyone asked for it themselves. Literally within minutes I was passing dark green bile and the consultant said it was the right choice , I had it in for 3 days , the consultant must have told their colleagues because other doctors came up to see their patients and laughed with me saying nobody asks for that treatment. 😂
First time viewing your channel. I'm in the UK. I have an NGTUBE at the moment. I'm going to have a PEG tube soon. I'll be grateful to get rid of this irritating tube but I'm nervous about the pain of getting the PEG tube. Ill only have a small amount of sedation, the specialist says it's too risky otherwise.
Had my first but hopefully last time, NG tube due to a small bowel obstruction just past my duodenum last year April. I was 66yo and was in the hospital for 7 days until things passed. The nurses, two ladies and a very big but gentle man that after the ladies had tried a couple times and me gaging horribly, the gentlman suggested taking a measuring container(not exactly sure what it is called), putting fairly warm water in it and submerging part of the tube in it for a minute or so. It still took a couple tries but it was easier, at least it didn't seem as stiff, and finally getting it down. Had it three days until....
I’ve learned one thing from these videos. GOD, only gives you what you can handle. If I had to deal with this- I wouldn’t be alive. I would never place a tube in my nose. Just thinking about it frecks me out. Wow!
I placed my own NG tube and check placement by pulling back on the syringe and getting stomach contents. My doctors didn't believe I needed a feeding tube I have Dysphagia and makes it almost impossible to eat and get enough fluids
Relatively new to the channel... have a history w/ Crohn's myself that dates back to ~1997, but was never officially diagnosed until 2008. I did a search through your channel and didn't see anything that looked directly related, so wanted to ask here; have you ever filed for disability due to the Crohn's and/or related problems you've had w/ the various procedures and surgeries you've undergone? I'm looking at filing for disability but very pessimistic about my chances of getting awarded benefits and looking for any info I can arm myself with in the process... thank you for sharing your story!
I’m on disability for Crohns Disease myself. Word to the wise, hire a lawyer. The process is hard enough as is let alone without one! Best wishes to you!
I think Maggie makes enough income from RUclips and has some savings from being a nurse. Plus, her husband works. I think that’s enough income to support them. Great question though!!
@@Nukeaon We are definitely looking into that as the process looks to be quite overwhelming.... initial application, reconsideration and then hearing... whole process sounds like it could take up to 2 years! Insanity.
When they just jam into the nose they can ruin it. After a nurse tried aboit 10 times in the same nostril that norstilbis still hard to use for tubes 6 years later.
Random question... I assume because it's not editable that Ky jelly couldn't be used but in there a lubricant that is safe to digest? Only thought about it because I know it's used for bladder catheters.
@@LetsTalkIBD Ok so something like that is used... That's kool. I'm not sure why I assumed there wasn't, maybe the idea of it being forced in... Ouch. Not sure if that's interesting or disturbing that Ky is used 😆
Ive had many cannot use one side of nose now wont go down but never done it myself My mom dyed in 2008 I had a ng tube in when my brothers come in to tell me I had also just been told I had a blood clot so im crying my brother caught my moms final tear in envelope to give to me it was so hard cause I couldn't quit crying my throat was so raw One thing that helps me was to drink drink drink while they are feeding it in I do remember having one in one time and my heating vent in my hsp room starting smoking my tube hooked to wall I was freaking out they took me out of room called took me to another room my tubes was to draw stuf out never had feeding done but dont have stoma yet its looking like I will end up with one but really fighting it Ive already lost over 60% of colon malrotation scar tissue Im so scared trying meds for constpation bowels just wont go any more just had a hole and abses but got threw it but they said I need this bag the meds all throw me into dire-a but ty watching u and how strong you are helps encourage me that ill make it if i go threw with it just scared
You are courageous for posting these types of vlogs. It just goes to show how health truly is wealth. I personally had to go through a medical procedure too (I had sleep apnea). Before, I was pooping out blood, but it got resolved when I just tried to live a healthy lifestyle, like exercising and going on diet. But I get how some diseases are just purely genetic and hereditary. Thank you for sharing and spreading awareness about your disease.
I think every medical student, resident and nurse should watch this video. I am a retired RN who has had 10 surgeries for perforated bowels and hernias and have had multiple traumatic NG tube insertions because of medical personnel not knowing basic anatomy and just cramming those tubes in. I had a resident rupture my palatine artery in my nose which became a bloodbath and resulted in packing my nose and later the artery had to be cauterized 4 times! And this is in the midst of a bowel obstruction which led to surgery. Once the tube was inserted in my lung and I was telling the doctor I couldnt breathe in my squeaky voice because I couldnt get air and he wouldn't stop until the nurse stopped him. Please make sure the person who is putting this in has experience!
I'm so glad I found your channel. In high school, a close friend of mine had a bowel resection after a brutal time with ulcerative colitis. Later, I did my college capstone project on certain developments in our understanding of the immunology of Crohn's and colitis. As an immunologist, I find it important to understand the human side of these conditions. It's great to see someone well-spoken, well-educated, and experienced creating content for the public. Thumbs up.
Part of 2019 and 2020 I had a GI tube, drainage tube, trach and a Foley catheter. It was a rough time and I'm glad that's over with. I was happy to get rid of the GI tube, the trach and off the ventilator. You're a strong tough young woman. With your videos you give me as a 64 year woman courage.
I've never had a tube, nor have I ever known anyone who had one (as far as I know.) My mom had an ostomy at one point when I was little but that's where my experience ends. Maggie, you do such a good job explaining things to us "laypeople" (for lack of a better word.)
You are just the sweetest! I’m sure you were so appreciated on the pediatric floor by the nurses patients and parents.
I had a PEG tube for 6 months due to the surgery and radiation treatments I had for tongue cancer. I asked for it to be placed when I had the surgery since I was having most of my tongue replaced with a free flap and couldn't imagine having to deal with a tube down the back of my throat. The end on the PEG came out of a stoma on the left side of my mid-abdomen, with 2 feeding/med ports and the port for filling/checking the ballon in the stomach that kept it in place. There was a round bumper over the stoma that the tube came through to keep it in position. I used to secure the tube beside the stoma with a catheter holder so it wouldn't get pulled or dangle - it wasn't too conspicuous under loose tops. I was able to have the PEG removed mid-June once I could handle swallowing liquids safely again.
I was able to take care of the tube fine and do my feedings with no issues. I used bolus feeding (using syringes that screwed onto the ports) of formula as well as other finely blended 'real food' and baby squeezers mixed in, which helped keep my GI tract relatively happy. It's the only reason I was able to maintain enough of my weight and get enough hydration that I wasn't hospitalized again. However, my body didn't like the tube itself, so I had issues with the stoma, and I'd see a NP at my GI practice to help monitor it - had to do a few rounds of antibiotics to keep it decent, but it was always a 'cranky' stoma.
One of the things that was inconvenient while I had it was making sure to get liquid meds, or tablets that could be crushed to mix with water; it took 3 tries once to get an antibiotic that I could actually use. And dealing with a liquid diet means you get hungry every 3 hours or so! I got pretty fast with my feedings - I'd stand at the kitchen sink, getting my 'food' in my stomach, while I watched a YT video or 2, sometimes yours, Maggie! 😊 I'm glad to be done with it. But the interesting thing is it's pretty easy to remove/replace a PEG once you have it - a quick outpatient procedure which in my case was done by interventional radiology at the hospital I go to. My NP at my GI practice said they do the replacements/removals sometimes as well.
I had my first and only blockage followed by my first NG tube this past January at the age of 57. A pair of nurses tried to manhandle me and force the tube in. I was afraid, in pain, they were causing me more pain and distress and making the situation worse by the way that they were going about it. One of the physicians saw his, came over and took care of the situation. He and another doctor gave me a small dose of an anti anxiety medication and the gently placed the tube. Much easier and less traumatic. I had it for a day and a half while they manually cleared the blockage. (No surgery!). Thank you to the doctors for their kindness!
Wow, that's awful that those nurses were so mean! If I was a nurse, I would try to make my patient feel as calm as possible, and I certainly wouldn't want to hurt them. What is wrong with people?!
You are incredible for going through what you did at such a tender age.. I had to have a NG tube last year due to my small intestine getting twisted and blocked so it was to pump out my stomach and not for TPN. But I was traumatised by the tube as the nurse rammed it up my nose causing me pain, he was in a hurry as his shift was about to end so didn't pay any attention to me or my comfort. The tube hurt so bad for the week I had to have kept in and I could feel it hurting my throat everytime I swallowed. The thought of young children having to go through this just breaks my heart. I cried when I saw stoma bags for babies, they are so so very brave. Thank you for sharing your story, Maggie. I wish I had met you before I had my stoma.. sending you lots of love from the UK 🇬🇧 ❤️ 💗 💕
Your hair looks amazing Maggie, very healthy…..Tks for your open honesty….. here’s from The Maritimes
Thank you!!
Ugh NG tubes are my worst nightmare 😖 my body does NOT handle them well. So many props to you for dealing with one for so long!!
I have never had medical surgery nor tubes in my life, but could understand how it feels to have one that is inserted from the nose and body.
I remember the video you put on here with Zak putting it in.
When my sister was 7, she threw up and hated it so much that she stopped eating and drinking. She was in the hospital where they put a feeding tube in her nose when she refused to eat. To this day, she’s now 42, and has never thrown up, however, she’s still afraid to eat at times bc she doesn’t want to throw up. I never thought she’d have kids, but she has my sweet 14 year old nephew, and 9 year old niece. She had to be on a bunch of meds and a pump for the nausea. It’s sad that she lives her life being afraid to throw up. I mean, I get it, if I’m feeling nauseous, I get anxiety attacks, but if I throw up, it’s over in a few minutes and move on with life.
I remember when I was a child, I was so terrified of throwing up! Whenever I got a stomach bug, I was absolutely panic-stricken! I wouldn't eat anything until I was totally sure I was over the illness, and there was no chance of throwing up again. So I wouldn't eat for like 4 or 5 days!
As an adult, I'm still afraid to throw up, but luckily it doesn't hardly ever happen. Whenever I get a migraine, though, I get very nauseous and that fear comes up. I have to take deep breaths and concentrate on calming myself down so I don't throw up.
Anyway, I can relate to your sister, because I have that fear, too!
It's a legitimate phobia, emetophobia. I can relate, I hate to vomit. On one occasion, I did have to have a rigid NG placed in ER and the immediate relief was actually better than vomiting. But that nurse was very gentle and I agree that any medical staff need to be careful, gentle and discuss every step of the process.
I'm curious, though-was there a reason why a PEG wasn't an option? My brother has had a PEG for two years for supplemental feeding following cancer. It seems like much easier maintenance than placing and removing a tube daily.
I've been a healthcare provider for 38 years, I own 4 stethoscopes, 3 sphygmomanometers, two pulse oximeters and 3 incentive spirometers.
Once my cat with kidney insufficiency needed subcutaneous fluids. I put a hook in the wall at the head of my bed to hang the bag and would get him comfortable in my lap before inserting the needle, then just adjust the flow with the roller clamp until he was okay with full on flow. Once he realized it made him feel better he was very cooperative and it extended his life for at least nine months, and gave him good quality life.
I've never had an NG (or any other GI-related) tube, thankfully! However, I do use (and have in the past) an insulin pump and am also currently using a CGM...you're so right that the less you have connected to you, the better (or at least, more normal) you feel! ❤️
I went to the doc today with dizziness, sob, and weakness. I'm being treated for malnutrition (22 years after weight loss surgery) and tube feeding was brought up at the appointment. Spot on timing, Maggie! TY!
I hope you get feeling better soon!
I just got back from another chrons obstruction this past week, they had to put in another NG tube (4th one I've had in the past 3 years).... I hate it... I can't believe how strong you are. I bawled and fought them off and as a 32 year old male... It wasn't pretty. I cried everytime they said I had to wait another day. Thanks for your channel.
I have had 20+ ng tubes placed, not for feeding but obstructions, god they hurt my nose! The nurses would put lidocaine on my nose just for a small amount of comfort, Crohn's sucks!
The ones they use for obstructions are so much bigger and rigid than feeding tubes! I'm so sorry you've had them so many times!!
Hello my friend I'm from St Mary's county Southern Maryland you are Amazing great story God is with you prayers and blessings to you love listening to your story very educational thanks for sharing Stay strong and healthy keep up the good work on your RUclips channel
The only tubes I've ever had were the 3 times I had general anesthesia. This was very educational.
I had a nasal tube for a while but I now have a micy tube through my stomach into my intestines as I have gastroparesis. I also have an ileostomy. I had a major op and after that I had my mice and ileostomy. I have EDS POTS and other things. Lots of things going on. I still miss food though..
I found you originally from your feeding tube content. I am 100% tube fed, and I have a surgical GJ tube. At this point, the tube is life long to manage my gastroparesis. Thank you for your education
I have a horrific gag reflex, but if something like this happened to me I would like to think that knowing something of the process and how it feels that I would be more in control. Thank you!
I've never had any tubes, and thank God, because just the thought of this is triggering my gag reflex. I feel like I would be one to leave it in just to avoid having to re-place it every time.
You are looking so pretty and healthy today! I hope it continues for you-you deserve it!
Respect to you, Maggie. I just couldn't stand the NG tube and literally begged my Dr. to have it removed. Because of allergy/sinusitis issues causing a bleeding nose; and a deviated septum, it was a herendous experience for me. Blessings to you and yours from South Africa.
Phew! Thank God my only experience with tube-feeding is drinking the Kate Farms Peptide 1.5 orally. It's amazing what we go through, isn't it? Thanks, Maggie!
I couldn't handle the tube, I couldn't talk with it in because of tonsil issues. So instead, for 2 months at age 12 or 13, I had to mix water with formula as my almost exclusive nutrition. I was allergic to all the cartons except one.
After the two months, I got surgery to remove the stricture where big and little interesting meet. A few months later I got my tonsils out, so if I ever need formula again, I should be good with a tube.
As someone who was taught to place an NG tube (later turned to an NJ that I could no longer place myself) when I go into the ER and need an NG suction tube, I always talk them into letting me place it, even if I just start it and get it past the back of my throat and they finish pushing it in the the desired length. It is so much LESS traumatic when I do it on myself rather than having someone else do it.
You are always helpful! I have learned so much from your videos. Thank you! I will watch your other channel if you do make another channel about the Barn---from what I saw it was beautiful and you and Zach are the perfect couple to have a wedding venue!!
Ohhhh Maggie this tube feeding was when I first suscribed to your chfeeding annel I have never had a tube but I can imagine how liberating it was for you when it was no longer needed ❤❤
Maggie, what is the smallest gauge NGT that works for adult tube feeds? Did you ever have a Dobhoff?
I have a GJ tube right now, and I used to have an NJ. I wish I could exchange my tubes at home, because interventional radiologists are kind of rough with me.
I've been doing tube feeds for 4 years, and I am still super annoyed with how sensitive infinity pumps are haha. I've found tricks that make it less likely to do it now, but I still have some days where will yell at me for no reason.
I was lucky - the IR who did a replacement and then later the removal of my PEG was really nice. She looked like a kindly grandmother. 😊 I had a mis-positioned tube that needed replaced and they were nice enough to get pain meds on board beforehand. Now, taking it out for good was the 'cough hard' and wait for the 'sting' to subside... slowly. 😬
I had an NG tube for about 3 days when I was in the hospital for extreme gastric upset. The tube was HUGE and I was nauseous the entire time I had the tube in. As soon as the tube was removed, voila!, the nausea disappeared. Grrr.
Our only family member with Crohn's was my uncle. He found out in a horrific way. He had severe esophageal cancer and they were going to take his esophagus and rebuild one with his intestine. When they opened him up they realized he had Crohn's and the intestine was diseased. He had symptoms but with years of cancer, he just assumed all symptoms were cancer treatment related.
Oh my gosh that is awful!! 💔
I'm so sorry to hear that.
Wow that's horrible I'm so sorry :(
❤
I had what was then called a Ryles tube inserted before surgery 50 years ago. Worst experience and it was a one off. Left in situ for 10 days. I am so feeling for you Maggie. I also had a panic attack.had to be held down. So humiliating
I've had dobhoff tubes placed twice, very briefly, and I didn't tolerate it too well.
Part of it was that I have a deviated septum, and the "large nostril" leads to a very narrow path through my nose.
When I had my proctocolectomy I couldn’t eat anything and I was very gassy and was sick a few times , the constant and nurses were treating it as a reaction to the anaesthetic this went on for a couple of days with no change in sight , so I asked about having an NG tube , they couldn’t believe that anyone asked for it themselves. Literally within minutes I was passing dark green bile and the consultant said it was the right choice , I had it in for 3 days , the consultant must have told their colleagues because other doctors came up to see their patients and laughed with me saying nobody asks for that treatment. 😂
First time viewing your channel. I'm in the UK. I have an NGTUBE at the moment. I'm going to have a PEG tube soon. I'll be grateful to get rid of this irritating tube but I'm nervous about the pain of getting the PEG tube. Ill only have a small amount of sedation, the specialist says it's too risky otherwise.
So interesting and such valuable information!
Im sorry about your mom, Maggie♡ your das seems to be awesome tho!♡
Had my first but hopefully last time, NG tube due to a small bowel obstruction just past my duodenum last year April.
I was 66yo and was in the hospital for 7 days until things passed. The nurses, two ladies and a very big but gentle man that after the ladies had tried a couple times and me gaging horribly, the gentlman suggested taking a measuring container(not exactly sure what it is called), putting fairly warm water in it and submerging part of the tube in it for a minute or so. It still took a couple tries but it was easier, at least it didn't seem as stiff, and finally getting it down.
Had it three days until....
I’ve learned one thing from these videos. GOD, only gives you what you can handle. If I had to deal with this- I wouldn’t be alive. I would never place a tube in my nose. Just thinking about it frecks me out. Wow!
I placed my own NG tube and check placement by pulling back on the syringe and getting stomach contents. My doctors didn't believe I needed a feeding tube I have Dysphagia and makes it almost impossible to eat and get enough fluids
Relatively new to the channel... have a history w/ Crohn's myself that dates back to ~1997, but was never officially diagnosed until 2008. I did a search through your channel and didn't see anything that looked directly related, so wanted to ask here; have you ever filed for disability due to the Crohn's and/or related problems you've had w/ the various procedures and surgeries you've undergone? I'm looking at filing for disability but very pessimistic about my chances of getting awarded benefits and looking for any info I can arm myself with in the process... thank you for sharing your story!
I have not actually! I will see if I can find someone with this experience and try to interview them about the process!
I’m on disability for Crohns Disease myself. Word to the wise, hire a lawyer. The process is hard enough as is let alone without one! Best wishes to you!
I think Maggie makes enough income from RUclips and has some savings from being a nurse. Plus, her husband works. I think that’s enough income to support them.
Great question though!!
@@LetsTalkIBD Much appreciated!
@@Nukeaon We are definitely looking into that as the process looks to be quite overwhelming.... initial application, reconsideration and then hearing... whole process sounds like it could take up to 2 years! Insanity.
Lol that video you and zac did with the feeding tube is the video I found you from!!
When they just jam into the nose they can ruin it. After a nurse tried aboit 10 times in the same nostril that norstilbis still hard to use for tubes 6 years later.
😢Adults can get a prescription“magic mouthwash” to help numb the pain
Random question... I assume because it's not editable that Ky jelly couldn't be used but in there a lubricant that is safe to digest? Only thought about it because I know it's used for bladder catheters.
I believe that is what we used to insert it!
@@LetsTalkIBD Ok so something like that is used... That's kool. I'm not sure why I assumed there wasn't, maybe the idea of it being forced in... Ouch. Not sure if that's interesting or disturbing that Ky is used 😆
Ive had many cannot use one side of nose now wont go down but never done it myself My mom dyed in 2008 I had a ng tube in when my brothers come in to tell me I had also just been told I had a blood clot so im crying my brother caught my moms final tear in envelope to give to me it was so hard cause I couldn't quit crying my throat was so raw One thing that helps me was to drink drink drink while they are feeding it in I do remember having one in one time and my heating vent in my hsp room starting smoking my tube hooked to wall I was freaking out they took me out of room called took me to another room my tubes was to draw stuf out never had feeding done but dont have stoma yet its looking like I will end up with one but really fighting it Ive already lost over 60% of colon malrotation scar tissue Im so scared trying meds for constpation bowels just wont go any more just had a hole and abses but got threw it but they said I need this bag the meds all throw me into dire-a but ty watching u and how strong you are helps encourage me that ill make it if i go threw with it just scared
I have 2 tubes one peg used for venting in stomach, one in my jejunum for feeds its a pain, never again want to do nj tube again its so uncomfortable
Sulicone no pain tape from 3m its a lifesaver wih cavilon advanced bsrrier however maybe not on yhr face with the cavilon lol
You are courageous for posting these types of vlogs. It just goes to show how health truly is wealth. I personally had to go through a medical procedure too (I had sleep apnea). Before, I was pooping out blood, but it got resolved when I just tried to live a healthy lifestyle, like exercising and going on diet. But I get how some diseases are just purely genetic and hereditary. Thank you for sharing and spreading awareness about your disease.
Duoderm is good if you don't take it off wvery night. Sadly the colour on it is an awful yellowish
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❤❤❤❤❤❤❤thank you
It is not the food which hurts us (foods that disagree can hurt).Our dysfunctional bodies hurt us.
Been there. Not fun for anyone.
Still nothing happened at 51 years old.
Ok
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I wish I could get a mickey instead. Tired of stupid questions.