At the very least it's a failed discharge. That is a phrase that usual scares the you know what out of them. A complaint to PALS at the hospital and CQC would be your best bet. Sending you both lots of love x
Has she had an MRI /CT brain? Neurologist needs to see her in my humble opinion. Pals definitely, complaint definitely, its fxckin disgusting the way she & you have been treated. I understand somewhat how you feel, 8 yesrs of getting nowhere with my own undiagnosed neuro/ health problems, & a v close young family member let down for years by cahms You are NOT at any fault, you are a worried caring loving parent I would also* if you are able) go to citizens advice and get legal advice & guidance, you need someone to fight your corner. Theses people make me sick Hope you get some help. Best wishes to Ellie & you.
You always have choices. You could pay for a private diagnosis of Ellie first or get her refered to metabolic medicine re MMA and Homocystein which should have happened when her ticking started post surgery as Anasthetic blocks B12 which fod people already lacking b12 can have devastating effects tk even beibg unable to walk.Intercellular tiredness . With diagnosi NHS are bligated to treat her. Your complaint would Include NHS failing to Diagjose Ellies medical problems and putting her at greater risk in not offering her a duty of care. Too often they put everythingunder mental health as the opt out for them.mot diagnosing the cause of mental health. For example some people are born woth Compt gene and with combinations of singkexand double blocks on Mthfrc677tand VDR Receptor and particularly predisposed which all needs to be properly understood.To understand Ellie! Salford Hospital Metabolic will refere to other clinics and have Genome in the barn for genetic testing and MFRD ! Once you have firm diagnosis either NHS or private.You can then out a proper support package around Ellie which will give her PIP and DLA and money to pay for a PA to visit Ellie at home .to establish what she needs to improve her health and work with her on a daily basis. Later you might consider taking Ellie to a health retreat . I am convinced Ellie is B12 deficient.If she is prescribed this every other day the ticking and seizures should stop.and she should feel much better mentally and psyvologocaly .Always a,work in progress when people have been badly damaged . Ellie may feel that she is not seen and has no value or self worth which you as her mother has the opirtunity to help her with. But Lisa you also have to change .! Get her diagnosed and in restorative treatment plan. Get her a Life Coach ! Love S
Wow that’s a huge download. How do I challenge the diagnosis of a psychiatrist? Who would prescribe B12 if no one will look into all your suggestions? I’ve screen shot it all to discuss with my Gp and psychiatrist at next appointment thank you 😊
What a time you have had of it! Poor Ellie, that is no way to be treated, I’m so sorry that happened and sorry you had to witness that as a mum, Leasa! Thinking of you, and hoping there are plenty of brighter days ahead for you both 💕. Take care x
I can't believe how the hospital treated you and Ellie. OMG I'm so very disappointed in the NHS. Sending you and Ellie big hugs ❤. Praying 🙏 for her recovery
@@ThatWilkesWoman Turn to Jesus He loves you, He is the healer of the body And savior of the soul There is True Hope in Jesus, God protects Psalms 91, He is the God of miracles Acts 2:21 And everyone who calls on the name of the Lord will be saved Jesus alone saves Trust Him with your salvation John 3:16 1 Corinthians 15 1-4 Moreover Brethren, i declare unto you the gospel which i preached unto you, which also ye have received, and with wherein ye stand By which also ye are saved, if you keep in memory what i preached unto you, unless ye have believed in vain, For i delivered unto you first of all that which i also received, how that Christ died for our sins according to the scriptures And that He was buried, and that He rose again the third day according to the scriptures, Take care
It was so nice to see Ellie’s sweet face at the end. I am so sorry for the ordeal y’all have been through. It does seem as some type of investigation into her care should looked into. That whole situation must have been so hard for both of you. Love and prayers to you.
Its good to see Ellie back home ❤ where do you go from here, who will give you the help you need and deserve? I hope you find it, I really do, its heartbreaking 💔its sad that she was treated like an inconvenience, turning her away when she is desperate for help and needs it the most😔xxxxx
💔 Ellie and you put through this. (Duty of Care). 😥Inhumane/Dangerous. Very least provide hospital transport home. 💔😥Broken System. Explore support from charities ect in all areas.
sorry to hear what happened, praying for you both. my understanding is FND is only diagnosed after you have had tests to prove that nothing else is going on have these been done ? Since cannabis helps Ellie have you tried CBD oil without the THC to see if that works ?
Thats awful leasa!!!! How can they live with how theyve treated a child! … and as regards to ‘ no longer our responsibility’ … ok even if she wasnt and was signed off.. what happened to ‘ once a nurse always a nurse’ ? Its the same with most professions, i imagine if u saw something out of work hours you couldn’t turn blind eye when you were in the police? So even if Ellie wasnt ‘ on the books’ are they no longer nurses and meant to help ppl? If an oap fell over outside in the carpark would they say ‘ not our responsibility’it was bang out of order! You were both treated horrendously and i agree you should seek legal advice! Xxxxx
Apparently the security guards were tell me an older gentleman did fall over similarly after discharge and waited over six hours for an ambulance! What has our world become?
Wow. I am without words for what happened to you and Ellie. Maybe look into an organization or someone who can advocate for Ellie, as you cannot be expected to navigate the system on your own. How could they say there was nothing medically wrong? I feel for you and this horrible situation. keeping you both in my thoughts. Is Ellie doing better now that she is home? I hope so.
I am absolutely shocked sitting here in my home listening to how poor ellie your daughter was treated like a piece of shit.,sorry...my heart goes out to you both. You as a mother tomsee your Hildebrand in pain and not being able to do anything. Ellies dignity gone and those bastards who couldn't help her or didn't want to. What hospitals do you have there that they are so inhumane. It's disgusting to say the least to leave ellie on the pavement for all to see and others just watch. I really hope you take your footage and ideas further. This is somsad. Please give ellie my love and u are so strong for her. I would have screamed that hospital down. I would like to know the rest but you take your time. How you are coping full time I do not know. Sending hugs prayers and lots of love to you leasa. You are one hell of a super mom. 😪😪😪💔
Sending all my love and best wishes to you both. You are both in my prayers. Xxx
Thanks I would very much appreciate that x
At the very least it's a failed discharge. That is a phrase that usual scares the you know what out of them.
A complaint to PALS at the hospital and CQC would be your best bet.
Sending you both lots of love x
Has she had an MRI /CT brain?
Neurologist needs to see her in my humble opinion.
Pals definitely, complaint definitely, its fxckin disgusting the way she & you have been treated.
I understand somewhat how you feel, 8 yesrs of getting nowhere with my own undiagnosed neuro/ health problems, & a v close young family member let down for years by cahms
You are NOT at any fault, you are a worried caring loving parent
I would also* if you are able) go to citizens advice and get legal advice & guidance, you need someone to fight your corner.
Theses people make me sick
Hope you get some help. Best wishes to Ellie & you.
That’s so kind thanks. I did raise that issue whilst there but was told it’s just Tourette’s and fnd. But agree wholeheartedly x
@@ThatWilkesWoman best of luck
You always have choices.
You could pay for a private diagnosis of Ellie first or get her refered to metabolic medicine re MMA and Homocystein which should have happened when her ticking started post surgery as Anasthetic blocks B12 which fod people already lacking b12 can have devastating effects tk even beibg unable to walk.Intercellular tiredness .
With diagnosi NHS are bligated to treat her.
Your complaint would Include NHS failing to Diagjose Ellies medical problems and putting her at greater risk in not offering her a duty of care.
Too often they put everythingunder mental health as the opt out for them.mot diagnosing the cause of mental health.
For example some people are born woth Compt gene and with combinations of singkexand double blocks on Mthfrc677tand VDR Receptor and particularly predisposed which all needs to be properly understood.To understand Ellie!
Salford Hospital Metabolic will refere to other clinics and have Genome in the barn for genetic testing and MFRD !
Once you have firm diagnosis either NHS or private.You can then out a proper support package around Ellie which will give her PIP and DLA and money to pay for a PA to visit Ellie at home .to establish what she needs to improve her health and work with her on a daily basis.
Later you might consider taking Ellie to a health retreat .
I am convinced Ellie is B12 deficient.If she is prescribed this every other day the ticking and seizures should stop.and she should feel much better mentally and psyvologocaly .Always a,work in progress when people have been badly damaged .
Ellie may feel that she is not seen and has no value or self worth which you as her mother has the opirtunity to help her with.
But Lisa you also have to change .!
Get her diagnosed and in restorative treatment plan.
Get her a Life Coach !
Love S
Wow that’s a huge download. How do I challenge the diagnosis of a psychiatrist? Who would prescribe B12 if no one will look into all your suggestions? I’ve screen shot it all to discuss with my Gp and psychiatrist at next appointment thank you 😊
What a time you have had of it! Poor Ellie, that is no way to be treated, I’m so sorry that happened and sorry you had to witness that as a mum, Leasa! Thinking of you, and hoping there are plenty of brighter days ahead for you both 💕. Take care x
Bless you thanks for your support x
I can't believe how the hospital treated you and Ellie. OMG I'm so very disappointed in the NHS. Sending you and Ellie big hugs ❤. Praying 🙏 for her recovery
Thanks that’s kind. Keep us in your prayers please 🙏🏻
@@ThatWilkesWoman Turn to Jesus He loves you, He is the healer of the body And savior of the soul There is True Hope in Jesus, God protects Psalms 91, He is the God of miracles Acts 2:21 And everyone who calls on the name of the Lord will be saved Jesus alone saves Trust Him with your salvation John 3:16
1 Corinthians 15 1-4
Moreover Brethren, i declare unto you the gospel which i preached unto you, which also ye have received, and with wherein ye stand
By which also ye are saved, if you keep in memory what i preached unto you, unless ye have believed in vain,
For i delivered unto you first of all that which i also received, how that Christ died for our sins according to the scriptures
And that He was buried, and that He rose again the third day according to the scriptures, Take care
It was so nice to see Ellie’s sweet face at the end. I am so sorry for the ordeal y’all have been through. It does seem as some type of investigation into her care should looked into. That whole situation must have been so hard for both of you. Love and prayers to you.
We’ve both been traumatised and it will take time to mend for sure. Thank goodness for your support and your kindness x
Its good to see Ellie back home ❤ where do you go from here, who will give you the help you need and deserve? I hope you find it, I really do, its heartbreaking 💔its sad that she was treated like an inconvenience, turning her away when she is desperate for help and needs it the most😔xxxxx
I concur wholeheartedly. An inconvenience is a good description x
💔 Ellie and you put through this.
(Duty of Care).
😥Inhumane/Dangerous.
Very least provide hospital transport home.
💔😥Broken System.
Explore support from charities ect in all areas.
Good suggestions there thanks 😊
sorry to hear what happened, praying for you both. my understanding is FND is only diagnosed after you have had tests to prove that nothing else is going on have these been done ? Since cannabis helps Ellie have you tried CBD oil without the THC to see if that works ?
No other tests ever done. Assumption remains FND associated with her ADHD.
That's terrible how they treated Ellie
Tell me about it
Thats awful leasa!!!! How can they live with how theyve treated a child! … and as regards to ‘ no longer our responsibility’ … ok even if she wasnt and was signed off.. what happened to ‘ once a nurse always a nurse’ ? Its the same with most professions, i imagine if u saw something out of work hours you couldn’t turn blind eye when you were in the police? So even if Ellie wasnt ‘ on the books’ are they no longer nurses and meant to help ppl? If an oap fell over outside in the carpark would they say ‘ not our responsibility’it was bang out of order! You were both treated horrendously and i agree you should seek legal advice! Xxxxx
Apparently the security guards were tell me an older gentleman did fall over similarly after discharge and waited over six hours for an ambulance! What has our world become?
@@ThatWilkesWoman that’s disgusting! The world has gone mad!!!! Xx
Wow. I am without words for what happened to you and Ellie. Maybe look into an organization or someone who can advocate for Ellie, as you cannot be expected to navigate the system on your own. How could they say there was nothing medically wrong? I feel for you and this horrible situation. keeping you both in my thoughts. Is Ellie doing better now that she is home? I hope so.
Thanks I’m deffo considering that x
I am absolutely shocked sitting here in my home listening to how poor ellie your daughter was treated like a piece of shit.,sorry...my heart goes out to you both. You as a mother tomsee your Hildebrand in pain and not being able to do anything. Ellies dignity gone and those bastards who couldn't help her or didn't want to. What hospitals do you have there that they are so inhumane. It's disgusting to say the least to leave ellie on the pavement for all to see and others just watch. I really hope you take your footage and ideas further. This is somsad. Please give ellie my love and u are so strong for her. I would have screamed that hospital down. I would like to know the rest but you take your time. How you are coping full time I do not know. Sending hugs prayers and lots of love to you leasa. You are one hell of a super mom. 😪😪😪💔
I will sit and work through it all. Tbh so much happened that it’s taking a while to work through the trauma and process it all x
@That Wilkes Woman my heart goes out to you leasa. If you need to talk I'm here for you. I hope and pray ellie gets well soon. Praying foe you both 🩷
You need to either get onto your local map or the media, get this at Tricia’s treatment out in the open
I would if Ellie was comfortable with people seeing her that way but to her it’s shameful and embarrassing so she doesn’t want people seeing it 😢