Post SCDS Surgery Q&A
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- Опубликовано: 2 авг 2024
- It's now been a month post my middle fossa craniotomy and cranioplasty surgery to repair my Superior Canal Dehiscence Syndrome (SCDS). In this video my husband and I do a little Q&A about surgery. If you have any more questions feel free to leave them in the comments!
0:13 - Introduction
2:03 - Were you nervous going into surgery?
3:03 - What were your first thoughts waking up after surgery?
4:24 - What did they do during surgery?
5:52 - How was the pain and other physical feelings after the surgery?
8:23 - How are your scars, and can we see your head?
9:00 - What were some of the hardest things to deal with while in the hospital?
10:38 - Were you surprised your hair was gone?
11:40 - What helped you during your hospital stay?
12:43 - Did your symptoms get any better or worse in the hospital?
15:05 - Why did they do a blood patch?
17:16 - What did you most look forward to in finally coming home?
18:23 - How have your days been at home and how are you working towards your recovery?
20:44 - What has been helpful during recovery?
22:21 - How are you adjusting to having no hair?
23:46 - What symptoms are you currently still dealing with?
26:00 - What are you most looking forward to in the future after recovery?
29:28 - Final thoughts
0:13 - Introduction
2:03 - Were you nervous going into surgery?
3:03 - What were your first thoughts waking up after surgery?
4:24 - What did they do during surgery?
5:52 - How was the pain and other physical feelings after the surgery?
8:23 - How are your scars, and can we see your head?
9:00 - What were some of the hardest things to deal with while in the hospital?
10:38 - Were you surprised your hair was gone?
11:40 - What helped you during your hospital stay?
12:43 - Did your symptoms get any better or worse in the hospital?
15:05 - Why did they do a blood patch?
17:16 - What did you most look forward to in finally coming home?
18:23 - How have your days been at home and how are you working towards your recovery?
20:44 - What has been helpful during recovery?
22:21 - How are you adjusting to having no hair?
23:46 - What symptoms are you currently still dealing with?
26:00 - What are you most looking forward to in the future after recovery?
29:28 - Final thoughts
I have bilateral scds...I have had 2 TM approach surgeries on right and I have hearing loss very loud tinnitus bvd..they didn't have me stay in hospital I left same day im 3 years in. I can't sleep on right side no independence can't have alot happen around me noise makes me lose equilibrium I don't drive or work or go on walks.. im losing this battle. I found your video. Thanks for sharing.
May I ask who did your surgeries?
THX for sharing your experiences and thoughts! What an odyssey.. wow. I am still struggeling with symptoms after my fourth surgery from July. I'm waiting for my surgery 5 and 6 (in a row) in october. That is so complicated with this nasty scds. My though: canal plugging to switch off the dizziness and then a "thick" 3D printed prosthesis on top of the temporal bone to get rid of the f..g noizzzy autophony. This will be sooo helpful, I am pretty sure, but there is no experience (esp in germany) with this stuff. But I am glad that your autophony does not influencing vest.sys. anymore! Jordan, take care! brave girl :)
I was going to say in a previous video that I hope you can get to a place where you find the morbid humor in hearing your eyes and it looks like you already made it! 👍
Sure, here is the translation:
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Hello John,
I am Mustafa. I live in Germany. I have found out that I have the same illness as you. I have been suffering from this illness for three years. I wanted to ask how you are doing now and if you still have the same symptoms and problems as before the surgery. Are you feeling better now? I hope you are doing better. I am asking because I will also be having surgery soon. It was not easy to find a doctor who performs this surgery frequently. I would be very happy if you could write back to me. Thank you very much.
how are you going now?! i only have dizziness and pulsatile tinnitus not sure whether surgery is worth it...
Hi Jordan I'm Danna with same thing vertigo.migraine fatatue. Mr neouoglist says no big deal but he don't feel dizzy all the time