Ramsay Hunt Syndrome & Bell's Palsy Recovery Stages - That's what they said
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- Опубликовано: 15 янв 2022
- Bell's palsy & ramsay hunt syndrome recovery stages . Why Bell's Palsy Happens? My recovery journey is a span of 5 years (so far).
In this video, I talk about my personal experience over the past five years, and hopefully, you will get something out of it.
Be sure to like and subscribe. I update this channel during different milestones throughout my journey.
Five years ago, I posted this video. I took this the morning after being diagnosed with it-the day before, I was sitting at work with a headache and my eye twitching.
At this point in life, I was an editor for a tv news show in Denver, Colorado. Usually, things would get stressful toward the end of the day as we approached deadlines for air.
I remember it being extra stressful on this day-barely making the deadline. By the end of work, my head was pounding towards the back of my ear. My eye went from a twitch to more of a different type of feeling. Like my eyelid didn't seem to close.
I walked to my car after my shift. I looked in the mirror and noticed my entire face was droopy. My eyelid wasn't closing, and I freaked out. I headed home, unsure what's was going on. Besides the headache and eye, I felt ok for the most part.
As soon as I saw my wife, she said Bell's Palsy. I told her, " OK, let's go to the ER just in case. I had no clue what Bell's even was.
So when the doctor entered the room, the first thing he said to me was Bell's Palsy. Give it ten days, and you're back to normal!
I took steroids for the following ten days, but it didn't get better. It got worse! It got to the point of not being able to brush my teach or drink water.
Looking at myself in the mirror every morning and night was horrible. During the ten days, my eye would become more challenging to close. I ended up taping it for a few nights, but that became too much of a hassle.
After ten days, I wasn't any better. So I sought out extra help and found a doctor specializing in different treatment types. After meeting with her, we broke down a course of action with shock treatment. I didn't have anything else to lose; we did it! I did it once a week for a couple of months.
With returning to work, doing the treatments, and being a father and husband, life got busy again. I learned to live with it and got busy. I learned a new way to smile, which angles to take a photo from and share my story here. All of this, I believe, is what helped me.
Over the past five years, I've seen improvements. Today, some would say that I don't even see it anymore, but I do and always will. It's part of me. I find it so important to share your story because it helps others and helps yourself as well!
So what's your story? I'd love to know what you have done or where you're at in your journey. Comment below, and I'll do my best to get back to you!!
Be sure to like and subscribe. I'll do a follow-up video or any questions you may have.
#Bellspalsy #Recovery
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I diagnosed with Bell's a month ago, My face look normal when I don't make expression but I have 0 control of my facial muscles although my physiotherapist said I am improving I just don't feel it.. I decided to get MRI on my own to make sure I am healing! I can't imagine what you went through man, 1 month only and I feel like shit.
Keep battling!!! It gets better overtime. Stay busy as much as you can!!🙏🏾🙏🏾
@@CodyBroadway
thanks Cody.. MRI came out just couple of hours ago and there is nothing serious. was told that it's matter of time.. may I ask you?
have you at any point while doing certain exercises that your mouth become so numb that you can't move it anymore then felt tingles in your lips? this happens since yesterday especially when I suck my cheeks inside.. i don't know if it's a good thing
@@bennizar1689 yes it did happen time to time. I would also tape my face a night to help pull it tight when I slept. You should look to see if there is any specialist in your area to help you with treatment.
Keep fighting! I'm no medical expert but I suggest acupuncture as it's a good treatment that works. Wish you the best
@@zinu8081
hey.. I am still doing massages and exercises.. now I managed to move the muscle between the nose and eye. eyebrow and mouth still dead.. hopefully I overcome this thing
I've had bells palsy for 6yrs now. Never completely healed and some days are more noticeable than others. At this point I feel my smile will never be the same. It's a tough battle emotionally.
It is friend!! It is!!
I've been dealing with Bell's palsy for 5 years as well. And I definitely tear up from eating certain foods usually from something that is vinegary, sweet, or sour
I definitely saw results from acupuncture. I did it for at least five or six months, and I stopped because my insurance wouldn't help me cover the cost. I currently still have Bell's palsy, but it has improved. I use a TENS unit 2 days a week. It has a chart for facial paralysis on certain tens units brands. To anyone that struggling with Bell palsy as you read, I'm praying for emotional support in your life, I know it's hard to accept the way you look now but in order to start healing you have to. just don't settle in your condition even though you've accepted how you look. Always have hope that you will get better and that healing is happening even though it doesn't look that way. Prayer Works 🙏 run to God 🏃♀️
Today is a bad day. I’m on day 6 and crying now. I don’t feel like myself I hate looking in the mirror. I can’t believe a virus can do this of all places on the face. I just want to feel normal again. Trying to not feel alone by watching videos. Praying for all of us with Bells.
I know the feeling Sam!! I hope all is well and hope the videos help. It takes time for sure. Try and stay busy - that is what has helped me.
I sure hope you are doing a lot better a year later! My sister was diagnosed two months ago and feels the same way. I have a permanent condition called Cervical Dystonia, and it stinks too! Although hideous, it teaches us to be humble and compassionate towards others. I am not sure we needed this to do so.
I feel your pain I am in the same boat. And I also noticed my symptoms late. Very nervous. I won’t get some function back. Also noticed it affects my taste. Which really blows me.
I was diagnosed with bells 26 days ago. Im
Also 23 weeks pregnant so super depressed. I’ve done 12 acupuncture sessions and seen a chiropractor twice already. My forehead snd eyebrows are almost symmetrical and today I notice lip/mouth movement on the bad side. My lip droop is the worst of it. Im praying for a speedy recovery with no residuals 🙏🏼💜
Thank you for sharing. I've been diagnosed with Bell's palsy last week. My vision has become blurry and I have to wear glasses so I could read the letters. Let us continue praying for healing.
Thanks for the update, I'm 3.5 years in. Find it hard with the different eye sizes and getting photos taken. Also my speech is affected, slurring some words. Like you people say they don't notice, but I do, its mentally draining at times. Have good and bad days still. I remember watching your videos when I first got diagnosed.
Kim K! I remember your comments. I know the feeling, friend. It can be challenging for sure! Keep sharing your story!!! It helps
Thank you sharing. Got Bells Palsy 5 days ago. Cant move my lefy eye brow, nose or lip. My speech is affected, slurring word. The worst is the emotional toll, not knowing how long the recovery will be. Seeing your video make me realize it will take a awhile to health. I have to be patient and strong and keep being busy. Thanks for sharing 💪💪
I am so glad you did this video about shockwave therapy it gave me the courage to go get it done and what after 2and a half years . It started when I was 5mths pregnant,I suffered as a woman my self confidence and self esteem was in the dumps .I renewed my DL and the pic is horrible , pics with my newborn who is now 2 and a half was horrible, but Thanks to you just yesterday I got shockwave done and my left eye was immediately open unbelievable. It looks better already
How are you now?
I had Bell's palsy about a year ago. I freaked out thinking I had a stroke and it took roughly like 4 1/2months to go away medication for infection and steroids. It was crazy I had to sleep with an eye patch and I have medicine for my eye to keep it moist, drinking anything was almost impossible,speaking was so difficult. I'm sorry you've had yours for so very long.
I’ve lived with Bell’s palsy for about 8 year now and I can totally relate to all that you said in this video. I went through so much emotional trauma. I hope to share my story too one day.
Glad that you recovered
Thanks for posting - day 5 since diagnosis for me and currently doing ok but waiting to see to what extent recover function
It's a tough mental battle. Some days, I feel great, while other days, I feel disappointed and unmotivated to do any exercises or massages. I'm two months into this journey, and right now, my eyes almost close, but there is no movement at all when I smile or raise my eyebrows. Luckily, My job is remote so didn't have to commute or meet people at the early days. Also, I'm thankful that I have good friends and family who always try to motivate me to keep my head up since day one. I hope this battle comes to an end ASAP so that I can regain my smile back.
i am coming up on 1 year with ramsay hunt and bells palsy. the virus made its way into my brain and did some nerve damage. i have the the facial issues but also nerve pain, i am deaf in the ear on the effected side, and vertigo which makes walking tough. some days can be emotionally hard and i need to lay low those days.
Just going through this and the emotional part is really hitting 😭
Its been almost 5 years i am battling with this , main thing u need to do is tc of ur sleep and avoid stress .
If someone is new patient plz take rest and avoid stress it will heal
Glad to see recovery happening. I had it years ago when I was about 8 ish, I had acupuncture done and recovered fully in about a year or so. All the best
4 ish months in and it sucks still haven’t gotten back anything my eye sight has worsened. And I feel that I’m getting frustrated and depressed more from it.
How are you now?
Love this
Thank you!!!!!!!
Got diagnosed last week. I’m afraid it’s going to keep me out of the Air Force. I was ready to go and now I have to wait. I’m 28, a little later in recruitment. I just hope it passes because I feel like this was my last chance to do something with my life
my sister have bells palsy going on for 2 years now. we'll try the home EMS device, hope it would really work because I want her to fully recover already because I dont want her to feel different and not confident about herself
I'm 10 days into my journey and today has me feeling a little down. I've been staying home more and have found that I'm isolating a bit. Just want to feel like myself again.
Sorry to hear that! How are you feeling now? Any improvement?
@@CodyBroadway There has been some improvement. My smile is almost back to normal, but my eye is still droopy. I will take every little win though.
My boyfriend of many years took one look at me and started packing. I am devastated. Had to quit my job… I feel hopeless.
Sorry about that,🥺❤️,how are you,you recovered?
I'm about a year into my Bell's palsy journey and I too have the tearing issue. Trying to schedule some time to go see an ophthalmologist because I heard that it can be treated with Botox. I found out that it's called Bogorats Syndrome...or crocodile tears. It's definitely worth the Google. I hope that helps. I'll be sure to follow up if I'm able to have anything done. Thanks for spreading the word about BP!
Thank you for sharing!!!! That is so interesting. I will definitely look into it all!!
How are you now?
Yoo man this is my exact story man..From start to finish…Except mine was a little worst cause it went from bells to Ramsay hunt
Same tears drop while eating... Now i am surffering from 52days.... Who many days time taken for your recovery?
Hi, 14 months down the road from RH (without blisters etc - just super sensitive hearing on the affected side). Was given 3 weeks steroids and 2 weeks antivirals. Had no change for a good 6 months and then it slowly started improving. Not completely though 😢 My eye still doesn't close completely, my eye weeps as yours , and I get occasional lip droop and saliva leaking from my weak side. I have almost continuous tingling between my ear and eye and a hearing change that I can only describe as like having a shell against my ear - whooshing, swirling "white noise" 🤷♂️
The weirdest thing is yawning - my eye closes then! And I get disturbed vision looking down.
I did spend 2 days in hospital in the stroke ward - as my nerve damage affected arm (unconnected) gave them positive signs for stroke and I had to have an MRI - which felt like someone beating me on the affected ear with a frying pan - that was horrendous 😢 So I was relieved it wasn't a stroke but at the same time wish it hadn't happened 🤷♂️
Love and hugs to all being affected by this, you'll find people saying it's no big deal - usually because they haven't suffered from it...
I’m going on two years with Bell’s palsy. And I had the same symptoms in the beginning. My doctor said it was Ramsey hunt syndrome but I had none of the symptoms that come with that. I just had a new born too! And I was extremely exhausted for awhile. I had no energy for a couple months. I get headaches and pain still behind my ear like pressure, and sometimes if I squish my face up tight I can feel the pain/ pressure intensifying.. it’s weird. I notice some days it seems to function better and other days I can tell it’s seems worse. My eye and mouth and nose are affected still, but I seem to be able to move my eyebrows up and down. My eye will tear up without me realizing it. If I’m eating my eye will twitch every time I chew. At times my face feels tingly like when your arm falls asleep. I also started getting random double vision which I do not know if that is connected. Got an MRI as well and every thing was normal there. It’s a very strange thing! It’s been a battle, and self esteem has gone way down. I hate smiling and being in pictures but I still do it so my kids have memories of me but I hate it.
I’m on week 11 of my Bell’s palsy journey, got it when I was 35 weeks pregnant. It’s definitely been difficult, especially having a newborn. I’ve had very little movement come back. I wanted to ask how you handled your eye when it wasn’t blinking, my eye is just always so irritated. I hate taping it. I just want to be able to enjoy being outside but the wind just irritates my eye so badly. Thanks for the video, I’m trying to stay positive.
Wow, my heart breaks for you-getting it while you are pregnant and then just wanting to be outside! My sister was diagnosed with Ramsay Hunt two months ago, and I have been combing the internet to find information. I sure hope your recovery time is short and that you are enjoying your new baby!
I was diagnosed with bellspalsy a day after I had twin boys . In total I've had the condition going on 4 months on the 22nd of this month. I just started to get a little cheek movement in January inwhich I can kinda move my cheek up and down . I still can't chew , lift my eye brow , make a kiss lip , fully smile or fully close my eye on the affected side . 😕 what are some things that can help? Would accupunture maybe help? Also what exactly are they looking for on a mri for bellspalsy? Any tips can help. Thank you for the video on your experience, it helps others to see we're not alone .
So sorry you to hear that! They were searching to make sure it wasn’t anything more than Bell’s palsy. It was clear thank God! I would look to find some type therapy. I did shock. Just to jump start the nerve. I would also try exercising your face to help strength it.
It's my 16th day ..i have had some improvement in terms of facial movements but still get dizzy standing up, and have difficulty focusing ...i hope it gets better
I am on my 4th day. Taking prednisone and antiviral. Today I started acupuncture sessions and on Monday I will start physiotherapy. I am calm. I can close both eyes but my mouth... lol... it looks like Popeye's mouth. We need to stay calm and be happy that we didn't suffer a stroke. We will be fine! Today I watched the movie Escape from New York! If you see the protagonist, you will identify with him! :) We need to take all of this with good humor!
7 weeks with BP and not any movement yet
Please can you tell me when you saw the first movement?
8th month anniversary here, socked a wall on day 30, then i came to my senses. i dont like to see videos people stating 100% recovery, just jealous i guess, good for them ! . i have same symtoms as Cody but glad to say tearing stopped at 7th month. i work at a hosp so i get humbled right away . im on same boat as all yall , but now when i slightly crooked smile in mirror i say its ok i have lots of people that know this. i notice slow improvements but it does get better everyone . I still bite my lip once in a while when i eat ..now that one sucks lol. keep the faith.
I hope you are even better than one month ago! What a difficult journey!
2 years into it at days the left part of the mouth just stiffens up.
I just got bells polish 10 -5-23 for hate it it’s my second day yes my eye still watering bad I’m very emotional about it driving me crazy help
Hello sir...
I'm suffering from Bell's palsy
This is my third time getting BP, and this time I'm not recovering.
I had it on my whole face bck In oct 21 from covid vaccine..but when i eat my nose run my vision change it was horrible
Oh no!!! So sorry to hear that. How are you doing today?
Not to be disagreeable, but it's far more likely that Covid itself and not the vax caused the Palsy. I know from personal experience. Ramsay Hunt and Bell's Palsy (two entirely different diseases) were way up on the rise in hospitals before the vax came along. But - maybe. Here is a small test to gauge your improvement. If you can close your eyes tight, you might feel a mini-cramp right on the corner of your chin on the affected side - like a pulling sensation. When that stops happening, if it ever did, it means you're better. It's not foolproof, but it's a test no one tells you about.
Now also you have tearing problem sir
Jeebus the constant zooming in and out was distracting. Clicked away...
Cool story
I hope your viewers see your lack of empathy and your dismissiveness. Not very professional. But I digress. I hope your journeys end as well as mine with Bell’s palsy cones to a positive resolution. Good day, Sir.