I am in tears. I have struggled for years with my balance and had no idea why. People thought I was crazy when I told them I vomited everyday and the hardest thing to do was look up or around me. I didn't plan on finding information here. I genuinely love your content and just wanted a fun video. Thank you for this information. I was told by everyone that I was just dramatic. I'm not. I'll talk to my doctor as soon as possible.
Oh my gosh. You're definitely not alone. My fingers are so so so crossed for you! Please DM me on Instagram and let me know how it went with your doctor!!! 💕
I was starting to get balance issues. Just thought I was getting old, (20-30). Found out I have MS, not sure vestibular therapy would help me, I have sclerosis in my brain stem.
I've had migraines for 12 years now. In some seasons I've had up to 3 months without a migraine and other seasons (the last 6 months) I've had 4 or 5 a month, lasting around 3 days each. For some reason it never occurred to me that migraines could be seen as a disability. I've never really known anyone else who had them like I do. I just knew that when someone referred to it as a "bad headache" I wanted to throw things at them and cry. I have always felt that they were my own fault somehow and that I was just failing at coping with normal life stressors. All of my efforts have been focused on preventing them rather than accepting and accommodating. Your videos have helped me shift my perspective to include grace and patience with myself. We have a 75lb black labradoodle who always follows me around and even tries to climb up in my lap just before a migraine... Before watching your videos it never occurred to me that he might be trying to tell me something. ❤️ I also knew that I had severe brain fog and much higher anxiety just before a migraine but I always saw those things as the cause of the migraine. I didn't know that they were actually a part of the migraine process! Thank you! Would love to see a video one day on the things you do to get through the episode and minimize the anxiety during the migraine attack phase. I get really panicky before and during an episode. Thank you so much for doing these videos!
popped in to watch this video and realized youve gained like over 10,000 subs since i found you????? congrats on almost 20,000!! you deserve it, i was surprised you werent famous when i found you with the quality of your content. looks like everyone is catching up now :))))
She only had around 8,000 when I started watching her in early-mid December. (algorithm recommended) I don't have any of these issues but she is so interesting & fun to watch! Great sense of humor!! She hit 15K the day before her baby was born. Her channel is growing so fast & deservedly so. VERY informative & helpful to many I am sure.
Thank you both for the kind words! It's a lot of work so I appreciate that you're loving it. The growth has been rapid - I started December 2020 with under 2k 😳
@@MommingwithMigraine I don't know if you have ever watched Taylor Wynn. She has a makeup channel but also has basically daily migraines! Her ear is always red from a heating pad. She has 834K subs on YT & 176K on IG. Anyhow, I posted your channel to her on IG cause I think if she sees my note she would LOVE your content! (& might give you a shout out at some point? You never know!) :)
I’m also on the ‘coincidence’ train! I started following you a few weeks ago, and around the same time I started having vertigo during my migraines and learned of the term ‘vestibular’...now here’s your video covering vestibular migraines....coincidence? I think not😉
So, I don’t have migraines, I do however have a vestibular organ that just stopped working a couple years back. Have to admit it took me quite a while to see a doctor about it, because I felt stupid going about something as simple as being dizzy. But then it reached the point where I was throwing up daily, sometimes several times a day and one morning I woke up and couldn’t walk anymore. Went to the hospital that day and it took them a while to figure out how to help me. To this day they don’t know why I am having such trouble. I went to physical therapy for it for quite some while. Lots of the exercises you showed I’ve had to do as well. There are still days where I struggle a lot, but its fascinating looking back how much better I feel. Therapy helped me walk again. I can shower again and close my eyes while washing me hair without falling over. I can drive a car again. I can walk up stairs. Its ridiculous how much life it gave me back. Glad to hear it helped you as much!
Sometimes it's hard to remember how far we've come, but it sounds like you had a lot of success! What a blessing. Great job getting through the program 👏 We don't totally know what's up with my head either 🤷🏼♀️
Angelina, just because you don't have migraines, doesn't mean you don't have vestibular migraines...many people with VM have the symptoms of migraines WITHOUT THE HEADACHE...like ME. So check out The Dizzy Cook on RUclips. She talks to a Dr. Beh who has a really great book about VM...I was finally diagnosed after 6 years, this past October and am going to pt alost weekly...makes me REALLY dizzy but there are improvements...going to use this ladies exercises too. BE WELL...keep getting better.
I went through about 5 months that I felt I was spinning / sliding sideways while sitting, in bed, walking, and watching movies. Also had double vision and got dizzy when I would bend down, move my head fast, or get up from a sitting position. Absolutely horrible! I'm feeling 85% better, but these exercises seem like they will really help me. Thanks!
Thank you very much for this video. I learned a lot! I just wanted to share my experience just in case it helps someone. I kept getting severe vertigo in the fall and winter. It took me years of trial and error and tracking my symptoms to figure out that it was caused by a vitamin d & calcium deficiency. During these years, I did get a lot of benefit from doing the half somersault vertigo therapy (just search on RUclips). Now that I am supplementing with vit d and calcium, this is my first winter without vertigo in 6 years!
I was in vestibular therapy after a TBI a few years ago and MAN that tilt table stuff got me every time. I've been dealing with migraines for about two months now, and they bring on a lot of the same vestibular and cognitive symptoms as the TBI, so your channel has been incredibly helpful for me to be able to recognize all the fun curveballs my brain's been throwing me. Thank you so much for doing what you do. I'd be terrified and confused without your channel, but instead I'm informed and I have hope.
You do a great job of teaching us about your therapies, despite your bad memory. Thank you again for sharing, love watching. Three years ago, at the age of 45, I was treated for a stroke only to find out a month later that I suffer from hemiplegic migraines. Certainly not chronic and mostly triggered by hormones (just realized this a couple of months ago). I find your story and channel very helpful and fascinating. You are a total inspiration that life is possible with migraines.
You have been so well cared for in getting a diagnosis for your particular vestibular problem. My son has has vestibular problems since 2019. He was diagnosed this May...... 2nd consultant, 3 medications later.... vestibular migraine, vestibular neurosis and a damaged nerve somewhere in his head ?🤷♀️ He is so ill this week, his specialist is on a weeks leave, as is his vestibular physiotherapist as is his GP..... there is noone to help....
I had a hard time watching this video because I kept getting dizzy as you were doing your exercises. I have watched a couple of your videos tonight I cannot believe how from where we are in our symptoms and migraines. You are so lucky that you got diagnosed early in life I have had migraines since I was a teenager but in 1977 they got the really bad they have changed over the years but it has been disabled for 20 some years now. It took four decades for me to find out that I have complicated migraines. Between 99 and 2001 I was paralyzed 6 times the longest was 4 1/2 days and they got to the point where they were just saying it was all of my head and I was faking it. And come to find out and 2020 that it is my migraines. It is so relieving to know what is happening but on the other hand it is so frustrating like you were talking about and your videos about not knowing and taking so long to diagnose. I am going to be 64 in 2 weeks. I am in Assisted Living one of the main reasons I'm in Assisted Living yes because of my blackouts and seizures that I have. Most of the time I can tell that something's going on like I'm going to black out or have a seizure but I actually at that time have not able to tell somebody cuz it goes so fast. So it's extremely frustrating. I am so thankful that I have found this video and will continue listening to your videos. Have fun with your new little one.
Extremely helpful, thank you! Even better explained than my therapist did two years ago. I haven't had migraines for over a year now but for some reason it's back. Will be trying all known exercises known to man!
Your explanation of the balance system was perfect! I also did the test, for me this issue was in vestibular system. One of the tips i received was to always make sure the other systems have perfect input, and it was a lifesaver. I.e. when i feel dizzy, touch a surface to give my proprioceptive system more info about where i am in space
I too did PT back in the day, around 2009. It helped me very minimal but didn’t help me the way it helped you. I’m so glad yours helped you though!! 🤗. So inspiring for others. My neurologist wants me to do PT again. I told her the only way I could do it is if I received disability (I applied we are just waiting for results). It would be PT for vestibular migraine and my cervicogenic headaches. This is a great video and you demonstrated it well for others who are brand new to PT. Thank you for this awareness 💜
I'd like to say a massive ⭐THANK YOU⭐ for sharing this. I'm currently battling Vertigo & these exercises are helping me enormously. Your channel is fantastic Jen 👏👍
@@vincentvega3747 Thanks for asking. It turns out my Vertigo was being caused by a combination of a cervical disc herniation & osteophytes pressing up against my nerves. Currently hoping for surgery soon to remove them. On the up side, the vertigo has now cleared up. I have the odd wobble but nothing like as severe as it was. 🙂
Recovering from my most recent 3 day vestibular migraine attack and watching you on my small phone screen since cant handle tv yet. I have happy tears that we share so many of the same triggers and issues which sounds strange but it's so encouraging to try therapy.
These exercises are so great! I wish I knew about them when I had 2 months of debilitating vertigo. Scopolamine patches were the only thing that helped.
@@MommingwithMigraine Yep, I have them on. But there is a huge delay. Sometimes 20-35 minutes or MORE. (like it's been 24 minutes & I just got this message!) ug.
I'm also allergic to dairy fat/lactose. SO glad that International Delight and Coffee Mate creamers are actually Lactose Free.... these are all that I put in my coffee. I suffer with extreme vertigo and nausea all day long, I gave up driving because of it, I didn't feel safe any longer. The things you described in this video are so much like my daily life... yet doctors are so quick to dismiss these symptoms. They truly don' understand just how debilitating chronic migraines are.
First sorry for the big comment. I have migraines, and double vision caused for a phoria in my eyes that tend to do convergence, that of course gets worse during a migraine. You just solved a mistery for me, why grocery shopping is so hard for me, I thought it was caused for my sight problem, but I might be also triggering a migraine and that is why I end up feeling so bad when I get out of the grocery store. Will definitly check that out. My doctors never told me there could be different triggers for different migraine types.I made optometrist exercises for double vision, I use the brock cord too! I was thinking on suggesting to you to ask for an optometrist for the double vision, but I see they already gave you tools and exercises for that. for a larger range they told me to hang it on a door handle and sit down at a distance. It has been interesting seeing someone else do it :) Interesting to see different exercises for different eye problems. What I did with a little bag that was similar to your mask, it was like yours but instead of looking at the bag I had to look at the front, I had to use peripheral vision to catch the bag, and they usually place a card with big letters on the wall and I had to do that walking to the wall and backwards. That's because I had problems to calculate distances when trying to focus on an object, for the double vision, and working with peripheral vision was better, so I had to train that. Thank you so much for your videos, I'm learning a lot about migraines and is helping me a lot too.
Watching this video brought back memories from twenty five years ago! So many changes in therapy, all to the plus side, as I had to learn to live with some of the dizziness and head position changes. The migraines did go away, thank heavens, so I readily accepted learning to adjust my head movements and accept a new normal. I pray you find the doctor who can diagnose you correctly. Don’t give up! 🎀
15 years ago I had brain surgery and for the last 15 years since then I’ve been dealing with dizziness, balance issues, getting ‘hot flashes’ where my neck and face get super pink, I can’t get up to quickly, I can’t turn my head to quickly, etc etc...so many things make more sense now! I’m having a chat with my doctor ASAP! I’m so glad I found your channel!! What kind of doctor actually led you to getting a diagnosis?
Haven’t been this early for one of your videos yet! I’m a huge fan! Congrats on the baby girl! She’s so beautiful! Hope all is well! I don’t get migraines or have a service dog but I still love your channel!
THANK YOU. You came out with this video at the perfect time. Today I woke up with one of the worst vertigo migraines I've had in a while. This was very informative
Thank you for these videos. It makes me not feel alone. I have menieres disease, mal disembarkment syndrome, and vestibular migraines to name a few. Along with severe hypotension. Im so glad you made a RUclips channel 🥰
Thank you for this video. I have been suffering from dizziness for years now and vertigo for the last year. I have also been having double vision. I have a autoimmune disease (ulcerative colitis) which is contributing to some. I just saw an orthoptist and she upped the prism in my glasses but told me to go see a Neurological & Vestibular Physiotherapist to help with the dizziness. Now I have an idea of what some of the treatments they will get me to do to help.
I also have U.C. since I was in my 30's but in remission if I take Lialda every day . Vertigo BVPV started in my 40's , then it progressed to Meniere's with violent episodes of extreme dizziness where I felt like I was in a space capsule spinning at 100 miles an hour . I start vomiting & having diarrhea all at the same time & it goes on for hours . During those episodes I just want to check out & die . GET ME OUT OF THIS BODY!! My husband usually had to call a ambulance & rush me to E.R. where they give me an I.V. and knock me out with antivert . I would be Ok after waking up . years later , I'm now 71 , its devolved into Vestibular migraine where Eplay maneuver doesn't help and makes it worse & dizziness to varying degrees is constant . My trigger is salt . Walking in fresh air always helped and after one year with mediation , tapping , moderate exercise and being extremely careful with diet , I can be normal 80% of the time . Yesterday did a downward facing dog and today I'm dizzy again but in a different way . I can't track or move my head very quickly . I now realize I have to see a neurologist and get the evaluation done so I can focus on addressing the results . This video has pointed me in the right direction . Good luck to you ...I hope you get the help you need
Geez, I got dizzy just watching you do those exercises! I wonder if it might help me, another thing to talk to a doc about. Thanks! Also, no need to apologize for baby noises/interruptions, baby comes first! And the noises are adorable.
Thank you for your videos! I’ve had migraines since I was about 11, I am 31 now. I’ve also been through ptsd. And ever since then, my migraines (with ALL the auras), have always been pushed away as psychosomatic. It’s also very hard to describe/explain the auras to people who’ve never experienced them. Let alone aalll the other symptoms (like grocery shopping), that even I am currently learning are actually migraine symptoms. So to come to my point, thank you for creating a place where people with these types of migraine feel a little less crazy, alone or misunderstood!!
I’m a new subscriber. I found your channel a few months ago. I love your videos and the way you explain everything about your condition. Thank you for sharing your story with us💙💙💙
I have done vestibular therapy as well, definitely worth it! I am also in vision therapy right now and some of the exercises are the same. I love it so far! Though it’s not fun to make yourself not feel good :/ hopefully it will all be worth it in the end:)
Video starts... Yay!!! .... "I won state gold on the balance beam"... Uh-oh... Watches her throw ball up, spin around, caches it... Me thinking... Yup, yup, I can definitely watch somebody do that... wait, that wasn't an Opti-kinetic video... I'm supposed to do that... Note to self: Steel toe boots, and a wiffle ball... Okay, seriously, that's awesome. As somebody with no coordination, who could never do a "where's Waldo" I am thoroughly impressed with this video. I had no idea coordination training had a real name, let alone related to migraines. I was the kid who couldn't track words on a page/screen, so teachers said to just follow with my finger... which inadvertently makes the problem worse. I don't see haw anything presented in this video could possibly hurt anybody, whether they get migraines or not. At this rate, I'm expecting to see you on Tedx... keep up the great work, and don't worry about interruptions, nobody cares... life happens. Maybe embrace it?... and intentionally change shirts, camera angles, backgrounds... just to mess with people. As always, have fun with it!!!! You're real, you're honest... can't ask for anything more.
@@MommingwithMigraine Happy to be here. I've always said "I've got cat-like reflexes... but my dog's coordination." This was so incredibly informative, and reading through the comment section, it looks like I'm not the only one who learned something. Thank you.
Hey,I'm new here. I have POTS myself. I got diagnosed years ago at this point. But I've struggled with it my whole life,I just didn't know. (Or more so I thought what I dealt with was normal) mine is genetic more than likely according to my doctors. Thats pry the main cuase of symptoms I deal with. Includeing but not limited to, migraines, headaches, vertigo,dizziness,etc,etc. Its rilly difficult to find content about this stuff. I didn't know what migraine aruas were intill I found this chanel not to long ago. I've dealt with them for a long time,I didn't know they were a migraines thing.(I wasn't ever told) don't get me wrong I research a lot on my oun and trust my doctors obviously. But I find this content is still nice to have. I just felt like commenting that I think its rilly cool you make helpfull content like this. Edit For the record I only brought up symptoms as they pretaned to the video. I have meny more. And I am not saying thease vids are helpful becuase im going to try them. But helpfull becuase I didn't know this was a thing before and it gives me a very genreal idea of what looking into it could end up looking like.
Hey there! So glad you find it helpful because thats exactly why I started the channel! I was never told either. Thanks for letting me know 🥰 Hope you get some relief from your symptoms!!
Kudos for elite teaching and story-telling - not easy when you're snatching moments out of busy days to record snippets. You did well! Good editing, too, so it flowed and made sense. I think this is the first time you've mentioned food allergies at all, let alone in connection with your migraines. Beer. Milk fat. Do you suspect more allergies not yet identified that might be culprits?
She has mentioned the beer before (of course I would remember the alcohol. Lol) But not sure about the milk.... I think she did in one video at least. But it is easy to miss one sentence on it.
@Urgelt I always look forward to your comments 😊 There's white wine/prosecco that I haven't mentioned yet. I CAN have red wine - unusual for migraineurs. I am a bit intolerant to soybean, but that's gastrointestinal.
@@MommingwithMigraine Aw, you're sweet to an irascible old man. 😊 Have you given thought to nuts? Many with food allergies seem to be affected, some to the point where even foods lacking nuts, but processed on machines which have handled nuts, can trigger symptoms. Allergic reactions to nuts can involve some bizarre symptoms, not always with a noticeable gastrointestinal involvement. Legumes are another possible culprit. Just about all of us notice at least mild gastrointestinal symptoms from legumes - I would know, they're a significant part of my diet. That they do could be masking an actual allergic reaction in the intestines. They don't inflict migraines on me, but they do on some people. No need to write a response; I'm just suggesting food for thought. I trust that you know far, far more about how to manage your migraines than any random commenter on the intertubes, which is all I am here.
I will have to look into this....there's a lot of things I have vertigo/dizziness with! Also you are rocking that color lipstick Edit: the baby noises are cute, no need to apologize
Laura B. Newmark 0 seconds ago Thank you o much for this very informative tutorial . Mine started with Vertigo BVPV in my 40's , then it progressed to Meniere's with violent episodes of extreme dizziness where I felt like I was in a space capsule spinning 100 miles an hour . I start vomiting & having diarrhea all at the same time & it goes on for hours . During those episodes I just want to check out & die . GET ME OUT OF THIS BODY!! My husband usually had to call a ambulance & rush me to E.R. where they'd give me an I.V. and knock me out with antivert . I would be Ok after waking up . Years later , I'm now 71 , its devolved into Vestibular migraine where Eplay maneuver doesn't help and makes it worse and dizziness to varying degrees is constant . My trigger is salt . Lots of water , diuretics , walking in fresh air always helped and after one year with mediation , tapping , moderate exercise and being extremely careful with diet , I can be normal 80% of the time . Yesterday I did a downward facing dog (bad idea ) and today I'm dizzy again but in a different way . I can't track or move my head very quickly . I now realize I have to see a neurologist and get the evaluation you had done so I can focus on addressing the results . Your video has pointed me in the right direction . Many thanks to you !
I am so happy I found your channel. I have suffered with chronic migraine and chronic vertigo for 9 years now. it only get worse for me. I am going to try all of this. I never thought I would find help or relief from this. I was fine no accidents nothing then in 2012 a year after I got fixed I started to have all different Kinda problems a list full. I am wondering if its because I got fixed. I am looking into reversing my tubes. We also would love to have our 4th baby as well. But hubby is worried about that with me having migraines and vertigo. How did you due during your pregnancy???
This is great to know, always keep going back and forth to the doctors with dizzy spells and they have no idea why I keep having them, next time I go I will mention can it to do with my migraines as the dizziness gets worse while I have them (like last night I had dizziness, sickness and just couldn't focus on anything so had to come to bed) I'm in the UK so it's now 9am xx
I found the video very interesting. I was born cross-eyed. Had surgery at age 4. Today I have monocular vision. One eye is nearsighted, other eye is farsighted. I figured out my fear of escalators (only downhill) was due to having depth perception issues. I just have trouble judging how far away the ground is when going downhill. No problems going up hill. A few decades ago I broke down and decided to get bifocals. Never again. Bifocals instantly gives me the worse migraine ever. I also see octagons moving clockwise when I put the bifocals on. Closing 1 eye stopped the clockwise motion, but having both eyes open started the octagon movement again. Strange since I only use 1 eye at a time. My brain throws the other eye's vision out. I was back to the ophthalmologist asap. I was his first and only patient with that complaint. Since my problem is genetic (neurological), I don't know anything different.
Omg.... I can’t believe I found this video!! I get so dizzy randomly! It used to happen a bunch, but not too much now. But just watching the tv or laying straight down makes me so dizzy.
Yup, life is what happen while we were making other plans. I feel ya! With my migraine headache, once I put a food in my mouth, my body would tell me if it would trigger a migraine...IF i was listening! It took me several years to figure that out. Weird, huh?
Small request , Jen: Can you feature Buddy in all your videos, even if it's just a few seconds? I'm a huge dog lover and he's such a good, handsome boy.
I have congenital nystagmus and congenital esotropia(my right eye, I think, turns in towards my nose) due to chiari 2 malformation. I have glasses with prisms to help correct the double vision caused by the esotropia. The esotropia is severe so glasses alone don’t correct it completely so I’ve just taught myself to compensate with my left eye to correct it enough I don’t notice it anymore
C1-C6 on the graph--what did they stand for? You only listed 4 things. Also, which test was this and why did they do a CT scan rather than an MRI? I had VNG/ENGs and MRIs for VM and VM is inherently a central vestibular disorder rather than a peripheral one. I have both VM and another vestibular disorder and connective tissue laxity which effs up my joints and was born with the condition and was also an excellent gymnast (but never quite to your level). I didn't see improvement with vestibular therapy, but I am in CA as well as NY so maybe your vestibular therapist is better. Would you mind sharing where you got the therapy? MAV is VM--same disorder, but I'd say it is more common to say VM because more often than not, the vestibular symptoms predominate over classic migraine symptoms, so it's a vestibular type of migraine for most rather than a classic migraine that is associated with dizziness episodes most of the time.
@@MommingwithMigraine fantastic! Thank you! I'm all the way down in LA but it'd be worth the long trip to Stanford to get my VM under control!!! Thank you! Do you know which department it was through? Like PT? I was born with vestibular whackoness and only had about 8 months of mostly full relief until my body became physically dependent on that med regimen--not addiction because I hated the taste of the pill and always took only the prescribed dosage--but like I'd look like I had Parkinson's to the nurse practitioner I lived with at the time if I was late to take it--even if it was only 30 minutes late my body just started having tremors and jerking, so as helpful as that answer was for those 8 months, it was evidently not safe for my body. Hoping to find another answer soon! 💕
Do you have Twitter? I’ve been trying to link you to Taylor Wynn, who also have insane migraine. But yours are on a whole new level. My are getting seriously so bad I don’t know what steps to take next. Last time I went to my primary for a migraine apt, she just prescribed me dopamax(I call it that now because of you lol). I also was a gymnast growing up! For 7-8years. I wish I could find relief for my migraines. As does everyone who gets migraines. I throw up every time I get a migraine. And I have chronic migraines so I get them more days a month than not. It’s hell.
I don't have twitter. Someone else mentioned Taylor recently so I just started following her youtube!! She's a cool person, I dig her videos even though they're totally not my usual content. So sorry about all your migraines... it sucks losing so many days so something so traumatic.
I was a gymnast too and now the though of flipping terrifies me because my chronic dissiness started after vertigo but I'm doing the same exercises for vestibular therapy
I just had my first vestibular migraine. I’ve been eating vegan for two months so it can’t be dairy. I think it might actually be the vegan cheese I ate the other night. Then in the same 24 period I ate blackberries for the first time ever. I didn’t know they were high histamine. Vestibular migraines are super scary.
I love to dance but don't anymore but tonight I heard a song from an old John Travolta movie with Olivia Newton-John and danced with them...stood near something to grab if I needed to but didn't need to....going to do it again tomorrow!!! I work at a supermarket so anytime during the day when I go to receiving, I walk as best I can on the line, turning my head from side to side also up and down as I walk through an aisle. It's a really big store so the aisles are very long!...have to be careful thought that customers don't see me...I'd tell them what I'm doing but at first it would look stupid!
My kids both have Irlen Syndrome. Their symptoms are dyslexia, headaches, confusion when looking at black letters on white paper, sensitivity to light and glare ... and mostly went away since they wear colored glasses and use color paper and notebooks in school. In some people vertigo, dizziness to the point of vomiting, stomachaches, trouble reading etc. are because of the Irlen's. Patterns can cause dizziness and unpleasant feelings. Just wondering if you ever heard of it or were considering getting evaluated?
I haven't opened about it much but yes, absolutely. I'm high functioning and very logical, so I'm good at finding what works and talking myself through things. Love, Migraine Jen
So interesting that you said whipping your head up and down can trigger a migraine. A few years ago I went on a roller coaster that jerks you left and right (Disneyland) and I stumbled out of that with an awful migraine that ruined the rest of the day. Up and down is fine for me, but side to side was clearly not.
I used to get the rides at the fair swinging or spinning to get my sisters queasy or sick but I can't ride any of them anymore. I don't have day to day problems but I can certainly sympathize with you and them now.
I have I tick disorder and when I'm ticking I am not very good at balancing and a way I try to get the tick over with is walking maybe I should look into this
@@MommingwithMigraine I've actually tried the string one before I'm not sure what it was for I was eight at the time but I put up a fight about it it gave me a headache it was something to improve my vision I think I'm not really sure I really don't like the last time I did it I had to go to the place (the appointment was 30 minutes before school) my dog died while I was there natural causes I just wish I hadn't had to go then I would have had an extra half hour with her she was my best friend my cuddle buddy and the reason I learned to read miss you Harl Harl ❤️you were the best dog
Did your eyes always do this? like while you were doing gymnastics? Could gymnastics cause any of this? Did you have a fall or an accident or head injuries? I know you mentioned allergies, but if these problems only showed up later, I'm just wondering if there was a trigger or event that started it all. My daughter struggles with such things. We are looking for the hope you mentioned. Thanks for the information. God bless!
Between gymnastics, rugby, and martial arts, I've hit my head quite a few times. At least 2 huge head shots that I can recall clearly 😳 My eyes shaking is called nystagmus and can happen in patients with hemiplegic migraine. It didn't start happening to me until I became chronic.
Id love to know what C6 is, it looks like that was the system you used most to compensate for your eyes... especially since it was already above the threshold (im guessing thats the grey bars) so you were probably naturally already trying to use that system to compensate at baseline.
Anyone who hasn't started vestibular therapy, be prepared to at first think these are crazy..until you discover they actually work...so just keep doing them...
I am in tears. I have struggled for years with my balance and had no idea why. People thought I was crazy when I told them I vomited everyday and the hardest thing to do was look up or around me. I didn't plan on finding information here. I genuinely love your content and just wanted a fun video.
Thank you for this information. I was told by everyone that I was just dramatic. I'm not. I'll talk to my doctor as soon as possible.
Oh my gosh. You're definitely not alone. My fingers are so so so crossed for you! Please DM me on Instagram and let me know how it went with your doctor!!! 💕
I was starting to get balance issues. Just thought I was getting old, (20-30). Found out I have MS, not sure vestibular therapy would help me, I have sclerosis in my brain stem.
Which symptoms did you experience ??
How are you doing?
I've had migraines for 12 years now. In some seasons I've had up to 3 months without a migraine and other seasons (the last 6 months) I've had 4 or 5 a month, lasting around 3 days each. For some reason it never occurred to me that migraines could be seen as a disability. I've never really known anyone else who had them like I do. I just knew that when someone referred to it as a "bad headache" I wanted to throw things at them and cry. I have always felt that they were my own fault somehow and that I was just failing at coping with normal life stressors. All of my efforts have been focused on preventing them rather than accepting and accommodating. Your videos have helped me shift my perspective to include grace and patience with myself.
We have a 75lb black labradoodle who always follows me around and even tries to climb up in my lap just before a migraine... Before watching your videos it never occurred to me that he might be trying to tell me something. ❤️
I also knew that I had severe brain fog and much higher anxiety just before a migraine but I always saw those things as the cause of the migraine. I didn't know that they were actually a part of the migraine process! Thank you!
Would love to see a video one day on the things you do to get through the episode and minimize the anxiety during the migraine attack phase. I get really panicky before and during an episode.
Thank you so much for doing these videos!
popped in to watch this video and realized youve gained like over 10,000 subs since i found you????? congrats on almost 20,000!! you deserve it, i was surprised you werent famous when i found you with the quality of your content. looks like everyone is catching up now :))))
She only had around 8,000 when I started watching her in early-mid December. (algorithm recommended) I don't have any of these issues but she is so interesting & fun to watch! Great sense of humor!! She hit 15K the day before her baby was born. Her channel is growing so fast & deservedly so. VERY informative & helpful to many I am sure.
Thank you both for the kind words! It's a lot of work so I appreciate that you're loving it. The growth has been rapid - I started December 2020 with under 2k 😳
@@MommingwithMigraine I don't know if you have ever watched Taylor Wynn. She has a makeup channel but also has basically daily migraines! Her ear is always red from a heating pad. She has 834K subs on YT & 176K on IG. Anyhow, I posted your channel to her on IG cause I think if she sees my note she would LOVE your content! (& might give you a shout out at some point? You never know!) :)
@@cavlizzy I haven't heard of her! I'll check her out now 🥰
I literally just heard of vestibular therapy yesterday and was looking it up so major coincidence you posted this today! Thank you
Woah baby! Awesome!
I’m also on the ‘coincidence’ train! I started following you a few weeks ago, and around the same time I started having vertigo during my migraines and learned of the term ‘vestibular’...now here’s your video covering vestibular migraines....coincidence? I think not😉
@@danayager same
So, I don’t have migraines, I do however have a vestibular organ that just stopped working a couple years back. Have to admit it took me quite a while to see a doctor about it, because I felt stupid going about something as simple as being dizzy. But then it reached the point where I was throwing up daily, sometimes several times a day and one morning I woke up and couldn’t walk anymore. Went to the hospital that day and it took them a while to figure out how to help me. To this day they don’t know why I am having such trouble.
I went to physical therapy for it for quite some while. Lots of the exercises you showed I’ve had to do as well. There are still days where I struggle a lot, but its fascinating looking back how much better I feel. Therapy helped me walk again. I can shower again and close my eyes while washing me hair without falling over. I can drive a car again. I can walk up stairs. Its ridiculous how much life it gave me back.
Glad to hear it helped you as much!
Sometimes it's hard to remember how far we've come, but it sounds like you had a lot of success! What a blessing. Great job getting through the program 👏 We don't totally know what's up with my head either 🤷🏼♀️
Angelina, just because you don't have migraines, doesn't mean you don't have vestibular migraines...many people with VM have the symptoms of migraines WITHOUT THE HEADACHE...like ME. So check out The Dizzy Cook on RUclips. She talks to a Dr. Beh who has a really great book about VM...I was finally diagnosed after 6 years, this past October and am going to pt alost weekly...makes me REALLY dizzy but there are improvements...going to use this ladies exercises too. BE WELL...keep getting better.
I went through about 5 months that I felt I was spinning / sliding sideways while sitting, in bed, walking, and watching movies. Also had double vision and got dizzy when I would bend down, move my head fast, or get up from a sitting position. Absolutely horrible! I'm feeling 85% better, but these exercises seem like they will really help me. Thanks!
How are you doing now?
Thank you very much for this video. I learned a lot!
I just wanted to share my experience just in case it helps someone. I kept getting severe vertigo in the fall and winter. It took me years of trial and error and tracking my symptoms to figure out that it was caused by a vitamin d & calcium deficiency. During these years, I did get a lot of benefit from doing the half somersault vertigo therapy (just search on RUclips). Now that I am supplementing with vit d and calcium, this is my first winter without vertigo in 6 years!
Thank you for posting this! It could really help someone 💜
One of my best friends has chronic migraines and your channel helps me understand her experience. Thanks for helping me be a better friend!
Toooooo sweet 💜💜💜
You look absolutely amazing for just having a baby 2 weeks ago! Glad you are doing good! I love your videos!
Thank you!! It's not as effortless as the video makes it look, but I'm doing better every day.
I still get dizziness during my migraines that are extremely bad. Thank you so much for this!
You're welcome! 💜
I was in vestibular therapy after a TBI a few years ago and MAN that tilt table stuff got me every time. I've been dealing with migraines for about two months now, and they bring on a lot of the same vestibular and cognitive symptoms as the TBI, so your channel has been incredibly helpful for me to be able to recognize all the fun curveballs my brain's been throwing me. Thank you so much for doing what you do. I'd be terrified and confused without your channel, but instead I'm informed and I have hope.
You do a great job of teaching us about your therapies, despite your bad memory. Thank you again for sharing, love watching.
Three years ago, at the age of 45, I was treated for a stroke only to find out a month later that I suffer from hemiplegic migraines. Certainly not chronic and mostly triggered by hormones (just realized this a couple of months ago).
I find your story and channel very helpful and fascinating. You are a total inspiration that life is possible with migraines.
You have been so well cared for in getting a diagnosis for your particular vestibular problem. My son has has vestibular problems since 2019. He was diagnosed this May...... 2nd consultant, 3 medications later.... vestibular migraine, vestibular neurosis and a damaged nerve somewhere in his head ?🤷♀️
He is so ill this week, his specialist is on a weeks leave, as is his vestibular physiotherapist as is his GP..... there is noone to help....
Dude , seriously every time I need something your vid is there.
I had a hard time watching this video because I kept getting dizzy as you were doing your exercises. I have watched a couple of your videos tonight I cannot believe how from where we are in our symptoms and migraines. You are so lucky that you got diagnosed early in life I have had migraines since I was a teenager but in 1977 they got the really bad they have changed over the years but it has been disabled for 20 some years now. It took four decades for me to find out that I have complicated migraines. Between 99 and 2001 I was paralyzed 6 times the longest was 4 1/2 days and they got to the point where they were just saying it was all of my head and I was faking it. And come to find out and 2020 that it is my migraines. It is so relieving to know what is happening but on the other hand it is so frustrating like you were talking about and your videos about not knowing and taking so long to diagnose. I am going to be 64 in 2 weeks. I am in Assisted Living one of the main reasons I'm in Assisted Living yes because of my blackouts and seizures that I have. Most of the time I can tell that something's going on like I'm going to black out or have a seizure but I actually at that time have not able to tell somebody cuz it goes so fast. So it's extremely frustrating. I am so thankful that I have found this video and will continue listening to your videos. Have fun with your new little one.
Extremely helpful, thank you! Even better explained than my therapist did two years ago. I haven't had migraines for over a year now but for some reason it's back. Will be trying all known exercises known to man!
Your explanation of the balance system was perfect! I also did the test, for me this issue was in vestibular system. One of the tips i received was to always make sure the other systems have perfect input, and it was a lifesaver.
I.e. when i feel dizzy, touch a surface to give my proprioceptive system more info about where i am in space
I too did PT back in the day, around 2009. It helped me very minimal but didn’t help me the way it helped you. I’m so glad yours helped you though!! 🤗. So inspiring for others. My neurologist wants me to do PT again. I told her the only way I could do it is if I received disability (I applied we are just waiting for results). It would be PT for vestibular migraine and my cervicogenic headaches. This is a great video and you demonstrated it well for others who are brand new to PT. Thank you for this awareness 💜
I'd like to say a massive ⭐THANK YOU⭐ for sharing this. I'm currently battling Vertigo & these exercises are helping me enormously. Your channel is fantastic Jen 👏👍
You're so welcome! This made my day!
How are you doing now?
@@vincentvega3747 Thanks for asking. It turns out my Vertigo was being caused by a combination of a cervical disc herniation & osteophytes pressing up against my nerves.
Currently hoping for surgery soon to remove them. On the up side, the vertigo has now cleared up. I have the odd wobble but nothing like as severe as it was. 🙂
@@craig6460 Good to hear and thx for responding.
Recovering from my most recent 3 day vestibular migraine attack and watching you on my small phone screen since cant handle tv yet. I have happy tears that we share so many of the same triggers and issues which sounds strange but it's so encouraging to try therapy.
These exercises are so great! I wish I knew about them when I had 2 months of debilitating vertigo. Scopolamine patches were the only thing that helped.
YAY!! Been hitting refresh .... waiting.... HI JEN!! :)
Haha! Hi! You can turn on notifications ya know 😋 but I guess those aren't totally reliable.
@@MommingwithMigraine Yep, I have them on. But there is a huge delay. Sometimes 20-35 minutes or MORE. (like it's been 24 minutes & I just got this message!) ug.
I'm also allergic to dairy fat/lactose. SO glad that International Delight and Coffee Mate creamers are actually Lactose Free.... these are all that I put in my coffee. I suffer with extreme vertigo and nausea all day long, I gave up driving because of it, I didn't feel safe any longer. The things you described in this video are so much like my daily life... yet doctors are so quick to dismiss these symptoms. They truly don' understand just how debilitating chronic migraines are.
Hello, how are you doing these days. Has your condition improved?
First sorry for the big comment. I have migraines, and double vision caused for a phoria in my eyes that tend to do convergence, that of course gets worse during a migraine.
You just solved a mistery for me, why grocery shopping is so hard for me, I thought it was caused for my sight problem, but I might be also triggering a migraine and that is why I end up feeling so bad when I get out of the grocery store. Will definitly check that out. My doctors never told me there could be different triggers for different migraine types.I made optometrist exercises for double vision, I use the brock cord too! I was thinking on suggesting to you to ask for an optometrist for the double vision, but I see they already gave you tools and exercises for that. for a larger range they told me to hang it on a door handle and sit down at a distance. It has been interesting seeing someone else do it :)
Interesting to see different exercises for different eye problems. What I did with a little bag that was similar to your mask, it was like yours but instead of looking at the bag I had to look at the front, I had to use peripheral vision to catch the bag, and they usually place a card with big letters on the wall and I had to do that walking to the wall and backwards. That's because I had problems to calculate distances when trying to focus on an object, for the double vision, and working with peripheral vision was better, so I had to train that. Thank you so much for your videos, I'm learning a lot about migraines and is helping me a lot too.
Watching this video brought back memories from twenty five years ago! So many changes in therapy, all to the plus side, as I had to learn to live with some of the dizziness and head position changes. The migraines did go away, thank heavens, so I readily accepted learning to adjust my head movements and accept a new normal. I pray you find the doctor who can diagnose you correctly. Don’t give up! 🎀
15 years ago I had brain surgery and for the last 15 years since then I’ve been dealing with dizziness, balance issues, getting ‘hot flashes’ where my neck and face get super pink, I can’t get up to quickly, I can’t turn my head to quickly, etc etc...so many things make more sense now! I’m having a chat with my doctor ASAP! I’m so glad I found your channel!! What kind of doctor actually led you to getting a diagnosis?
Haven’t been this early for one of your videos yet! I’m a huge fan! Congrats on the baby girl! She’s so beautiful! Hope all is well! I don’t get migraines or have a service dog but I still love your channel!
Aw thank you!! I appreciate your support!! 💜💕
Holy crap. This hit close to home for me. I may have to look into vestibular therapy.
Worth a shot! It's the kind of thing that can have lasting great effects.
THANK YOU. You came out with this video at the perfect time. Today I woke up with one of the worst vertigo migraines I've had in a while. This was very informative
You are so welcome!
Thank you for these videos. It makes me not feel alone.
I have menieres disease, mal disembarkment syndrome, and vestibular migraines to name a few.
Along with severe hypotension.
Im so glad you made a RUclips channel
🥰
Love and hugs 💜 thank you for watching!
Thank you so much for you videos and support for us with migraines 💕
You are so welcome!! 💜 We have a great community here.
Thank you for this video. I have been suffering from dizziness for years now and vertigo for the last year. I have also been having double vision. I have a autoimmune disease (ulcerative colitis) which is contributing to some. I just saw an orthoptist and she upped the prism in my glasses but told me to go see a Neurological & Vestibular Physiotherapist to help with the dizziness. Now I have an idea of what some of the treatments they will get me to do to help.
I also have U.C. since I was in my 30's but in remission if I take Lialda every day . Vertigo BVPV started in my 40's , then it progressed to Meniere's with violent episodes of extreme dizziness where I felt like I was in a space capsule spinning at 100 miles an hour . I start vomiting & having diarrhea all at the same time & it goes on for hours . During those episodes I just want to check out & die . GET ME OUT OF THIS BODY!! My husband usually had to call a ambulance & rush me to E.R. where they give me an I.V. and knock me out with antivert . I would be Ok after waking up . years later , I'm now 71 , its devolved into Vestibular migraine where Eplay maneuver doesn't help and makes it worse & dizziness to varying degrees is constant . My trigger is salt . Walking in fresh air always helped and after one year with mediation , tapping , moderate exercise and being extremely careful with diet , I can be normal 80% of the time . Yesterday did a downward facing dog and today I'm dizzy again but in a different way . I can't track or move my head very quickly . I now realize I have to see a neurologist and get the evaluation done so I can focus on addressing the results . This video has pointed me in the right direction . Good luck to you ...I hope you get the help you need
Geez, I got dizzy just watching you do those exercises! I wonder if it might help me, another thing to talk to a doc about. Thanks! Also, no need to apologize for baby noises/interruptions, baby comes first! And the noises are adorable.
I've learned a lot! Things make a lot of sense now! Thanks for sharing. 💞
Wonderful!!
Thank you for making these videos they helped me learn something new you are very brave for sharing all of this.🥰
You're so welcome 🙏
Thank you. Not what I was expecting. I didn't think triggering it would help. Very interesting.
Fantastic video so helpful....big trigger for me is vertical blinds
I don't always get an aura for my vestibular migraines. Half the time I will be standing around doing nothing, and just tip sideways. So lovely 🥰
TOTALLY. Sometimes after an aura I forget anyway 🤷🏼♀️
I don't know why but for some reason I think it was hilarious to see your clock changing time in the backround :)
Loving watching your channel grow, watching your videos makes me feel so safe and understood, THANK YOU!
YESSSSS THANK YOU 🙌
Thank you for your videos! I’ve had migraines since I was about 11, I am 31 now. I’ve also been through ptsd. And ever since then, my migraines (with ALL the auras), have always been pushed away as psychosomatic. It’s also very hard to describe/explain the auras to people who’ve never experienced them. Let alone aalll the other symptoms (like grocery shopping), that even I am currently learning are actually migraine symptoms. So to come to my point, thank you for creating a place where people with these types of migraine feel a little less crazy, alone or misunderstood!!
This means SO MUCH because that's the whole point! Thank you!!!
Oh thanks. Narrowing in on my problem which is so much like yours!
I enjoy you and buddy now your daughter. I am also training my own service dog. This is also helps me with my problems. Thanks
Aw excellent! Thank you! 🙌
I’m a new subscriber. I found your channel a few months ago. I love your videos and the way you explain everything about your condition. Thank you for sharing your story with us💙💙💙
Aw, awesome! Thanks for subbing!
VT saved my life! I couldn't even get out of bed. But, oh I hated doing them!
So freaking TRUE 👍
yay! I lts friday! i love seeing your videos!
Fri-YAY!
I have done vestibular therapy as well, definitely worth it! I am also in vision therapy right now and some of the exercises are the same. I love it so far! Though it’s not fun to make yourself not feel good :/ hopefully it will all be worth it in the end:)
I was told I would have to keep doing my therapy ideally every other day to maintain after I “graduated”
Triggering but worth it! Keep it up! I was supposed to maintain too but... oops 😬
Video starts... Yay!!! .... "I won state gold on the balance beam"... Uh-oh... Watches her throw ball up, spin around, caches it... Me thinking... Yup, yup, I can definitely watch somebody do that... wait, that wasn't an Opti-kinetic video... I'm supposed to do that... Note to self: Steel toe boots, and a wiffle ball... Okay, seriously, that's awesome. As somebody with no coordination, who could never do a "where's Waldo" I am thoroughly impressed with this video. I had no idea coordination training had a real name, let alone related to migraines. I was the kid who couldn't track words on a page/screen, so teachers said to just follow with my finger... which inadvertently makes the problem worse. I don't see haw anything presented in this video could possibly hurt anybody, whether they get migraines or not. At this rate, I'm expecting to see you on Tedx... keep up the great work, and don't worry about interruptions, nobody cares... life happens. Maybe embrace it?... and intentionally change shirts, camera angles, backgrounds... just to mess with people. As always, have fun with it!!!! You're real, you're honest... can't ask for anything more.
Lolol!!!! This comment had so much personality. Happy to have you here 😊 💜
@@MommingwithMigraine Happy to be here. I've always said "I've got cat-like reflexes... but my dog's coordination." This was so incredibly informative, and reading through the comment section, it looks like I'm not the only one who learned something. Thank you.
Oh geeze Louise lol !! I will have to have someone near me for these exercises. I can't even scroll quickly. Thanks Jen.
Hey,I'm new here. I have POTS myself. I got diagnosed years ago at this point. But I've struggled with it my whole life,I just didn't know. (Or more so I thought what I dealt with was normal) mine is genetic more than likely according to my doctors. Thats pry the main cuase of symptoms I deal with. Includeing but not limited to, migraines, headaches, vertigo,dizziness,etc,etc. Its rilly difficult to find content about this stuff. I didn't know what migraine aruas were intill I found this chanel not to long ago. I've dealt with them for a long time,I didn't know they were a migraines thing.(I wasn't ever told) don't get me wrong I research a lot on my oun and trust my doctors obviously. But I find this content is still nice to have. I just felt like commenting that I think its rilly cool you make helpfull content like this.
Edit
For the record I only brought up symptoms as they pretaned to the video. I have meny more.
And I am not saying thease vids are helpful becuase im going to try them. But helpfull becuase I didn't know this was a thing before and it gives me a very genreal idea of what looking into it could end up looking like.
Hey there! So glad you find it helpful because thats exactly why I started the channel! I was never told either. Thanks for letting me know 🥰 Hope you get some relief from your symptoms!!
Thank you!! Your baby is beautiful😊
Kudos for elite teaching and story-telling - not easy when you're snatching moments out of busy days to record snippets. You did well! Good editing, too, so it flowed and made sense.
I think this is the first time you've mentioned food allergies at all, let alone in connection with your migraines. Beer. Milk fat. Do you suspect more allergies not yet identified that might be culprits?
She has mentioned the beer before (of course I would remember the alcohol. Lol) But not sure about the milk.... I think she did in one video at least. But it is easy to miss one sentence on it.
@@cavlizzy I probably failed to remember what she said.
My question is still an interesting one, to me, at least.
@Urgelt I always look forward to your comments 😊 There's white wine/prosecco that I haven't mentioned yet. I CAN have red wine - unusual for migraineurs. I am a bit intolerant to soybean, but that's gastrointestinal.
@@MommingwithMigraine Aw, you're sweet to an irascible old man. 😊
Have you given thought to nuts? Many with food allergies seem to be affected, some to the point where even foods lacking nuts, but processed on machines which have handled nuts, can trigger symptoms. Allergic reactions to nuts can involve some bizarre symptoms, not always with a noticeable gastrointestinal involvement.
Legumes are another possible culprit. Just about all of us notice at least mild gastrointestinal symptoms from legumes - I would know, they're a significant part of my diet. That they do could be masking an actual allergic reaction in the intestines. They don't inflict migraines on me, but they do on some people.
No need to write a response; I'm just suggesting food for thought. I trust that you know far, far more about how to manage your migraines than any random commenter on the intertubes, which is all I am here.
I will have to look into this....there's a lot of things I have vertigo/dizziness with!
Also you are rocking that color lipstick
Edit: the baby noises are cute, no need to apologize
Omg my lips were blue so I had to put it on 😂😂😂
The vest therapist here in Hooterville they had told me not to use the string. 🤦♂️ wish I found you 2 years and 26 days ago.
Laura B. Newmark
0 seconds ago
Thank you o much for this very informative tutorial . Mine started with Vertigo BVPV in my 40's , then it progressed to Meniere's with violent episodes of extreme dizziness where I felt like I was in a space capsule spinning 100 miles an hour . I start vomiting & having diarrhea all at the same time & it goes on for hours . During those episodes I just want to check out & die . GET ME OUT OF THIS BODY!! My husband usually had to call a ambulance & rush me to E.R. where they'd give me an I.V. and knock me out with antivert . I would be Ok after waking up . Years later , I'm now 71 , its devolved into Vestibular migraine where Eplay maneuver doesn't help and makes it worse and dizziness to varying degrees is constant . My trigger is salt . Lots of water , diuretics , walking in fresh air always helped and after one year with mediation , tapping , moderate exercise and being extremely careful with diet , I can be normal 80% of the time . Yesterday I did a downward facing dog (bad idea ) and today I'm dizzy again but in a different way . I can't track or move my head very quickly . I now realize I have to see a neurologist and get the evaluation you had done so I can focus on addressing the results . Your video has pointed me in the right direction . Many thanks to you !
Interesting stuff! My son had to do vision therapy a few years ago and it included the beads on the string exercise.
Love your content! Thank you! 🥰
Aw thanks! You're welcome!
Love your videos!
Thank you so much!
I am so happy I found your channel. I have suffered with chronic migraine and chronic vertigo for 9 years now. it only get worse for me. I am going to try all of this. I never thought I would find help or relief from this. I was fine no accidents nothing then in 2012 a year after I got fixed I started to have all different Kinda problems a list full. I am wondering if its because I got fixed. I am looking into reversing my tubes. We also would love to have our 4th baby as well. But hubby is worried about that with me having migraines and vertigo. How did you due during your pregnancy???
I get double vision in the morning so I’m gonna try to do what you do and focus on one object and see if it works!
Really enjoying your videos. I seem to learn something new each video. :)
That's fantastic 🥰
great video keep up the good work
Thanks!!
This is great to know, always keep going back and forth to the doctors with dizzy spells and they have no idea why I keep having them, next time I go I will mention can it to do with my migraines as the dizziness gets worse while I have them (like last night I had dizziness, sickness and just couldn't focus on anything so had to come to bed) I'm in the UK so it's now 9am xx
Same my head feels so much pressure and mybears
I found the video very interesting. I was born cross-eyed. Had surgery at age 4. Today I have monocular vision. One eye is nearsighted, other eye is farsighted. I figured out my fear of escalators (only downhill) was due to having depth perception issues. I just have trouble judging how far away the ground is when going downhill. No problems going up hill. A few decades ago I broke down and decided to get bifocals. Never again. Bifocals instantly gives me the worse migraine ever. I also see octagons moving clockwise when I put the bifocals on. Closing 1 eye stopped the clockwise motion, but having both eyes open started the octagon movement again. Strange since I only use 1 eye at a time. My brain throws the other eye's vision out. I was back to the ophthalmologist asap. I was his first and only patient with that complaint. Since my problem is genetic (neurological), I don't know anything different.
That's super interesting, thanks for sharing!
Omg.... I can’t believe I found this video!! I get so dizzy randomly! It used to happen a bunch, but not too much now. But just watching the tv or laying straight down makes me so dizzy.
AND I just realized I used to faint all the time 😳🤔 now I wonder if I was having issues with migraines
I have pppd diagnose, this is helpfull thanks a lot.. Blessings.. U r so cute
Yup, life is what happen while we were making other plans. I feel ya! With my migraine headache, once I put a food in my mouth, my body would tell me if it would trigger a migraine...IF i was listening! It took me several years to figure that out. Weird, huh?
but how?
Small request , Jen: Can you feature Buddy in all your videos, even if it's just a few seconds? I'm a huge dog lover and he's such a good, handsome boy.
Hahaha 😅 fair point...
Where did you go for the diagnosis and treatment? What kind of health professional diagnosis and that’s this issue?
Very interesting!!! Thank you for sharing!
Do you still do these exercises to help improve how you move around with vertigo?
I have congenital nystagmus and congenital esotropia(my right eye, I think, turns in towards my nose) due to chiari 2 malformation. I have glasses with prisms to help correct the double vision caused by the esotropia. The esotropia is severe so glasses alone don’t correct it completely so I’ve just taught myself to compensate with my left eye to correct it enough I don’t notice it anymore
Hello! How do you handle it during pregnancy?? IM just curious cause im planning to have my first baby but im too scared 😭
Yay! Thank you!
You're welcome! Thanks for watching!
I think you are a very impressive person. I bet your husband agrees. Hope the Buddy The Rockstar is well, and your wee one too.
I really appreciate that 💜 I have my downsides too, I just edit them out 😉
C1-C6 on the graph--what did they stand for? You only listed 4 things. Also, which test was this and why did they do a CT scan rather than an MRI? I had VNG/ENGs and MRIs for VM and VM is inherently a central vestibular disorder rather than a peripheral one. I have both VM and another vestibular disorder and connective tissue laxity which effs up my joints and was born with the condition and was also an excellent gymnast (but never quite to your level). I didn't see improvement with vestibular therapy, but I am in CA as well as NY so maybe your vestibular therapist is better. Would you mind sharing where you got the therapy?
MAV is VM--same disorder, but I'd say it is more common to say VM because more often than not, the vestibular symptoms predominate over classic migraine symptoms, so it's a vestibular type of migraine for most rather than a classic migraine that is associated with dizziness episodes most of the time.
I don't have the legend, unfortunately. I got my VT at Stanford. Love, Migraune Jen
@@MommingwithMigraine fantastic! Thank you! I'm all the way down in LA but it'd be worth the long trip to Stanford to get my VM under control!!! Thank you! Do you know which department it was through? Like PT? I was born with vestibular whackoness and only had about 8 months of mostly full relief until my body became physically dependent on that med regimen--not addiction because I hated the taste of the pill and always took only the prescribed dosage--but like I'd look like I had Parkinson's to the nurse practitioner I lived with at the time if I was late to take it--even if it was only 30 minutes late my body just started having tremors and jerking, so as helpful as that answer was for those 8 months, it was evidently not safe for my body. Hoping to find another answer soon! 💕
Interesting !!!
Thanks!
Do you have Twitter? I’ve been trying to link you to Taylor Wynn, who also have insane migraine. But yours are on a whole new level. My are getting seriously so bad I don’t know what steps to take next. Last time I went to my primary for a migraine apt, she just prescribed me dopamax(I call it that now because of you lol). I also was a gymnast growing up! For 7-8years. I wish I could find relief for my migraines. As does everyone who gets migraines. I throw up every time I get a migraine. And I have chronic migraines so I get them more days a month than not. It’s hell.
I don't have twitter. Someone else mentioned Taylor recently so I just started following her youtube!! She's a cool person, I dig her videos even though they're totally not my usual content. So sorry about all your migraines... it sucks losing so many days so something so traumatic.
You don’t have to apologize for baby noises, I think they only ad to the video 😊
Do you have videos when you had your baby and dealing with thia?
I was a gymnast too and now the though of flipping terrifies me because my chronic dissiness started after vertigo but I'm doing the same exercises for vestibular therapy
I just had my first vestibular migraine. I’ve been eating vegan for two months so it can’t be dairy. I think it might actually be the vegan cheese I ate the other night. Then in the same 24 period I ate blackberries for the first time ever. I didn’t know they were high histamine. Vestibular migraines are super scary.
I love to dance but don't anymore but tonight I heard a song from an old John Travolta movie with Olivia Newton-John and danced with them...stood near something to grab if I needed to but didn't need to....going to do it again tomorrow!!! I work at a supermarket so anytime during the day when I go to receiving, I walk as best I can on the line, turning my head from side to side also up and down as I walk through an aisle. It's a really big store so the aisles are very long!...have to be careful thought that customers don't see me...I'd tell them what I'm doing but at first it would look stupid!
Do you happen to have one on eyelid twitching? Sounds insignificant but wow it won’t stop.
How did you get that test, or what is it? That shows ears vs eyes vs muscles etc
My kids both have Irlen Syndrome. Their symptoms are dyslexia, headaches, confusion when looking at black letters on white paper, sensitivity to light and glare ... and mostly went away since they wear colored glasses and use color paper and notebooks in school. In some people vertigo, dizziness to the point of vomiting, stomachaches, trouble reading etc. are because of the Irlen's. Patterns can cause dizziness and unpleasant feelings. Just wondering if you ever heard of it or were considering getting evaluated?
I've never heard of it and it doesn't sound like me. But thank you for posting, because it might help someone else!
Hello, do you have a dizzying effect or blurry vision problem in tracking fast objects?
You appear to be such a confident and strong individual, do you ever suffer from the effects of anxiety or depression?
I haven't opened about it much but yes, absolutely. I'm high functioning and very logical, so I'm good at finding what works and talking myself through things. Love, Migraine Jen
Where did you go for a diagnosis?
Btw is funny to see the clock in the background, suddenly 15sec or 1min passed ;p
🤣 The frame was soooooo boring without it!!
So interesting that you said whipping your head up and down can trigger a migraine. A few years ago I went on a roller coaster that jerks you left and right (Disneyland) and I stumbled out of that with an awful migraine that ruined the rest of the day. Up and down is fine for me, but side to side was clearly not.
I used to get the rides at the fair swinging or spinning to get my sisters queasy or sick but I can't ride any of them anymore. I don't have day to day problems but I can certainly sympathize with you and them now.
I prefer side to side movement over up and down. Weird!!
I have I tick disorder and when I'm ticking I am not very good at balancing and a way I try to get the tick over with is walking maybe I should look into this
Worth asking, right? 🤷🏼♀️
@@MommingwithMigraine I've actually tried the string one before I'm not sure what it was for I was eight at the time but I put up a fight about it it gave me a headache it was something to improve my vision I think I'm not really sure I really don't like the last time I did it I had to go to the place (the appointment was 30 minutes before school) my dog died while I was there natural causes I just wish I hadn't had to go then I would have had an extra half hour with her she was my best friend my cuddle buddy and the reason I learned to read miss you Harl Harl ❤️you were the best dog
Did your eyes always do this? like while you were doing gymnastics? Could gymnastics cause any of this? Did you have a fall or an accident or head injuries? I know you mentioned allergies, but if these problems only showed up later, I'm just wondering if there was a trigger or event that started it all. My daughter struggles with such things. We are looking for the hope you mentioned. Thanks for the information. God bless!
Between gymnastics, rugby, and martial arts, I've hit my head quite a few times. At least 2 huge head shots that I can recall clearly 😳 My eyes shaking is called nystagmus and can happen in patients with hemiplegic migraine. It didn't start happening to me until I became chronic.
Have you looked into binocular vision dysfunction?
Do you feel like it you’re walking in slow motion when you get the dizziness and can’t see the item that you’re looking for in the supermarket clear
How would you get to your therays?
Have you passed out or had a migraine since you had the baby I'm interested to know
Yep.
@@MommingwithMigraine nooooooo!!!!
Id love to know what C6 is, it looks like that was the system you used most to compensate for your eyes... especially since it was already above the threshold (im guessing thats the grey bars) so you were probably naturally already trying to use that system to compensate at baseline.
I'm with ya. Wish I had the legend! You're correct, I believe the grey bars are the results for people with no vestibular issues.
Could you please let me know where I can find a place that ofers this kind of testing?I am very dizzy too(
You'd have to ask your dr or neuro for a referral to vestibular therapy if they think it would be a good fit for you.
Anyone who hasn't started vestibular therapy, be prepared to at first think these are crazy..until you discover they actually work...so just keep doing them...
SO TRUE
does it work for pppd?