New Brunswick’s mystery illness: The anxiety for answers
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- Опубликовано: 3 ноя 2021
- Nine people have died and nearly 50 people are sick in New Brunswick, with what one doctor thinks is a new mystery disease. In The cluster: New Brunswick’s mysterious illness, we go looking for answers and ask why the provincial government questions the idea of a cluster.
To read more: www.cbc.ca/1.6233448
#CBCFifthEstate #NewBrunswick #Health
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About The Fifth Estate: For four decades The Fifth Estate has been Canada's premier investigative documentary program. Hosts Bob McKeown, Gillian Findlay and Mark Kelley continue a tradition of provocative and fearless journalism. The Fifth Estate brings in-depth investigations that matter to Canadians - delivering a dazzling parade of political leaders, controversial characters and ordinary people whose lives were touched by triumph or tragedy.
Doctors who tell you it's all in your head before you actually get diagnosed should be fired for malpractice. I am SO sick of being shrugged off so they can say they saw a patient and put in the least amount of time and effort.
chemtrails!!
So frustrating and sad
Technically, all illness can stem from thought itself.
You can worry or think you have something so much, your body produces it.
Placebo effect...
Negative and positive.
@@tammylayfield6288 jabs?
I have strong evidence chem traiIs have been happening before human flight.
Going back thousands of years.
They are in bible!
Deuteronomy 28:24
The LORD shall make the rain of thy land powder and dust: from heaven shall it come down upon thee, until thou be destroyed.
Amos 4:7
And also I have withholden the rain from you, when there were yet three months to the harvest: and I caused it to rain upon one city, and caused it not to rain upon another city: one piece was rained upon, and the piece whereupon it rained not withered.
@@erichred2858 oh Eric, you are a superstar. I think you are right on top of the target.
I'm in the U.S.. My 29yo daughter died in january. She had all of these symptoms, no diagnosis and was treated like she didn't matter. Boston University is studying her brain now. It's so frustrating that doctors don't bother to listen to patients
My heart feels for you ❤️
My condolences to your family. May God be with you and your loved ones 🙏
wow ........ I'm so sorry this really hurts to read, I can't imagine your struggle just for some answers....
My heart goes out to to you, the pain of losing someone is heartbreaking enough 💔
Indeed
"I don't panic."
If it was her child I think she would. How sad for these people and their families.
@WVWoman the criminals running this country of CanaaDay(nites) could care less about their kids much less ours
I am sorry but her job is not to panic, her job is to stay objective. Any person in that position should be objective and follow evidence.
@@ParsianTV I'm sorry you feel that way in your heart.
@@ParsianTV She was so much less than panicked. She seemed unconcerned to me.
You should learn to read between the lines when it comes to the media. The way the interviewer worded that question and the way that clip was edited is manipulative. Just because she doesn’t panic doesn’t mean she’s unconcerned. Panicking, in most situations, only makes things worse.
You see this is what ""they"" do.. They picked out one of the people who is suffering with similar symptoms and they discredit the ''whole'' group all because one person was diagnosed with something different!!
Does anyone NOT see this???
You can't trust the government OR the media as they are whole. It's unfortunate.
That Dr was lying, did you see her blink rate go up like crazy? Same with the politician. And she said "Anxiety can bring on these symptoms"....that is BLATANTLY untrue, it's normal to be anxious under the circumstances, & it doesn't affect the way you walk, that is neurological, my X husband died of MS last month, & I have suffered from neurological issues & been told it was anxiety.
The lady above said her son was diagnosed with Autism & her husband began hallicinating, & it was parasites. That man Luke said he felt something crawling under his skin, I read about a parasite that does that & causes neurological issues & kills you....I think that's what these people have, there is more than one parasite that affects the brain.
Yes
‘They’? Who are ‘they’? If you’ve got a valid theory, don’t cloak it in mysterious language that’s hard to take seriously.
the doctor laying big time,,, I'm a doctor i see exactly what happening/// a disgrace
When will people wake up and realize the gov doesn't have your best interests at heart?
Main stream media puppets
..too lazy to research
Right they not asking about the covid shot or flu shots at all
Right? Good cripes
The government can’t have our best interests at heart because it has NO heart 😒
As MJ said " they don't care about us"
Private investigation doctors to trace metals in the water, chemicals in the air, certain compounds on food these people consumed prior to the symptoms starts. Maybe testing their hair samples would bring a common contaminant that caused it. They must have something in common.
My first attack was 1947 - 80 and still fighting. I was lucky in that I got help from Americans when no one in Canada cared. Hundreds of thousands of victims in Canada coast to coast are all being treated the same but they remain "invisible" because media refused to publish their stories.
my thoughts exactly, i wonder if anyone is looking at this like a detective would. commonalities,
even genetic predispositions, blood type etc.
@@Larindarr
Exactly!!
They actually DONT have to have anything in common. Their symptoms aren't especially related or even that similar. If you poke into neurological conditions, you'll find that out, but most people know next to nothing about them. Not denigrating these people or denying what they feel, but there's literally nothing here to link them, at all.
It absolutely amazes me that the first I've heard of this illness has come from watching this video. The medical system should be throwing everything they've got into research and developing treatments instead of seemingly attempting to cover it up.
With the paranoia around covid, you would think this would be a major headline. Yet I'm seeing comments about similar outbreaks in other areas. And this video is the first I've heard of any of this. It's disturbing to know that no one who should be trying to investigate this isn't interested and isn't trying to find what is causing it. There's bound to be something in the food, water, air... something that builds up in your system until it flips a switch. Hard to believe that it would be a genetic disorder.
It's all really sad who knows what is going into our water food, clothing, cleaning products and out side our homes it's all plastic clothing, cups, plates, bed sheets, they call it polyester. ,, even our food is wrapped in plastic.
I just hope all the people heal swiftly.
Bless you all.
Love Australia.
With very few suffering for this and no answers to give just yet, putting out some public health warning would only cause unnecessary panic. Especially in the middle of a pandemic.
Maybe if you know that higgs is a puppet of his former and now employer the j.d.irving family, who owns the media and the political as well as economical scene here in n.b., you understand why ....
Ups, i forgot to mention that all taxpayers in n.b. pay for the excessive overuse of chemicals like glyphosate and neonikotinoids, sprayed by those irvings .....
@@petersieben8560 I had no idea about any of that.
As someone in public health, I always think about bacteria in environment with neurotoxicity esp. as some are found in fish and can’t be killed by cooking or freezing or another toxin that can build up in the body or affect ppl w/ sensitivity or predilection to certain types of illnesses.
I remind everyone to be their own biggest advocate and never stop asking questions/getting explanations…if a doctor or psych tells you nothing is wrong go to another and another
Good luck with that in NB; access to primary healthcare is bad here.
I wonder if this will blow up in the next cpl years?😳
@Jade Ravenwolf Have you ever heard about putting your body in a homeostasis state. When my son was diagnosed with autism at the age 6yr and intellectual behavior. On days his behavior will be outrageous and that trigger me to stop and slap myself to check my mom skills fully. What was I lacking for my child to misbehaved to the extreme...when he's normally calm and settled. So I went thru everything in a microbiology sense of mind on anything that can affect my child's behavior. Intake and outake, water, diet, exercise, sleep,social and emotional health, oral hygiene, physical health, and spiritual health. Most of the time was deficiency of vegetables and fish omega 369, fiber, probiotic...totally flip my child into calm and settled child again. He has a history of a gastrointestinal issue of excessive stool even when given stool softener. So the Sam thing occurred with my husband who has a gastrointestinal problem of Gerd and history of h pylori. And recently had a mental health problem where he started hallucinations. I flipped that homeostasis therapy into gear to decrease his symptoms. And I found to realize it's parasites. My good friend Woodward TV just touched on this subject: #watch
👀
ruclips.net/video/76K2aM-YkH0/видео.html
@@NoriaMarieBeauTeyMafia I was thinking parasite with the neurological symptoms, & the brain affected leading to death, & Luke said he felt something crawling under his skin, this can be a neurological symptom, but it's rare, it's much more likely to be a parasite. The Dr who dx him was lying, she didn't want to look bad on TV. Anxiety does NOT cause neurological symptoms such as what he was experiencing, & her blink rate went through the roof, like the politician, indicating they were both lying. Much Love
@@julielea8344 Man you caught that too! 😉 I want you to just give it a try. Go to Dr Eric Berg and try one of the effective ways to get rid of parasites. I know I have to do a seasonal routine on my family. This is a great weekend to do so since kids have a 4 day holiday from school. I'm supposed to go to neurologist and rheumatologist regarding fibro myalgia soon. But I want to do this technique to see if I can actually relieve my chronic pain even more than usual. And my body still healing from fib fx sept 2020. I haven't had covid my antibodies are elevated only thing that was off was my ana that came back positive and varicella titer antibodies elevated but everything else normal range and surprisingly my history of low platelets where at average. I have majority all remedy ingredients. Im going to see if I can make a change and see and feel that change. Not become weak by the parasites making want things my body doesn't need at the moment. My girlfriend asked whats Refrigerated probiotic? I told her something like Activa yogurt 😋 But get a bottle of the supplement to make sure it calculate with your body weight to receive the proper benefits.
The government of New Brunswick is choosing business and boosterism over the public good. This is very concerning...and depressing.
You stole my thunder.
I'll bet it's environmental, like some issues going on re plastics, etc., OR something being passed to ppl from insects, like malaria & lime disease. The interesting thing is the number of patients keep growing & growing -- or are more ppl just being properly diagnosed in the last 2-3 yrs??? Lotsa questions. The gov't. is horrible, and the bureaucrats seem v. smug, to be downplaying this disease, when they should be getting on top of it as much as possible, especially bec it seems to be spreading. Also, a pox on cheap bureaucrats & their assinine decisions, generally, for OTHER ppl, & esp. those so obviously seriously ill, & dying. We don't need another gov't. committee; we need to see some real action here, especially to support this neuro dr. who is identifying the patients & who at least seems to be really trying to help ppl. Some ego may be involved with this dr., to be the discoverer of some new neuro disease, but I think that is in a back seat re this particular neuro dr. -- he seems genuine. And they need to make sure this disease doesn't spread across the whole country, for some reason, esp. after all the awfulness of Covid for all of us. Also, it may not hv shown up elsewhere in Canada YET. And I really feel for the girl who can't skate anymore -- and she's so young!! She was really very good, & obviously so enjoyed the sport.
Same old same old NB.
Them pushing their agenda... why didn't this guy once ask about covid??? Or the vax status... i think he is trying to bury the real cause bere
@@susandevoe6002 Some neurologists in NB believe it’s caused by high manganese levels in the water. The symptoms fit.
There is an alarming uptick in the number of people dealing with autoimmune diseases and neurological illnesses. I have 3 daughters all in their 40s and so many of their friends snd acquaintances in that age group are riddled with these types of diseases, that’s why I’ve noticed. A generation of people.
I think it’s the chemical companies... the ones who got away with all that toxic pollution from the factories in the 1980’s etc. That Teflon is terrible, and the forever chemicals. It’s horrible.
(Raises hand)-> agreed! I grew up downwind from an incinerator, not too far from lands contaminated after WWII with radioactive remnants, very polluted lake water, etc. In Toronto area. Yes, have an autoimmune condition. Even more ground-level pollutants now with traffic, etc. Add onto that lesser thought considerations such as sleep deprivation from noise/light pollution, residual toxins in food plastics….there are lots of possibilities.
I agree look up the documentary dark waters it is scary.
@@larrygrecko921 So true about Teflon
There's so much plastic in our homes cups plates, clothing, bed sheets towels even our food is wrapped in plastic.
Let alone all the chemicals we use inside our homes
The list goes on and on
I do hope The people heal swiftly.
Love Australia xxx
@@larrygrecko921 It's most likely the pesticides put on food. Bee's display hive disorder from pesticides probably does the same thing to human's just takes longer
To all the families effectived by this unknown illness. Know that the country supports you in finding whatever solace, closure or answers you need, as to why this happened.
I suffered a hemorrhagic stroke and until the brain scan showed it, I was largely ignored by all. I realized the studies of the brain are basically unknown.
They think by 2100 we might know 1% of what the brain does. Top neuroscientist in the US.
I hope you are doing fine
@@Flaubert I 🙏 pray I get better. Seems like they need to research outside New Brunswick tho.
@@Flaubert Doing much better now. Thanks for asking.
I feel for her! Living in the U.S. and having similar problems here they just diagnose you with “Fibromyalgia” as a passive excuse lol
Fibromyalgia is a “junk” diagnosis. Really it is. It is an excuse to get you out of THEIR office into “Pain Management.” Pain Management can only give you Neurontin or some other Gabapentin based medication. They DO NOT work over a long period of time. So, GO to a Rheumatoidologist. After 14 YEARS of thinking I had Fibromyalgia, and it got worse, believe me, the Rhematoidologist told me I DID NOT have FIbromyalgia. Now I just have “Chronic Pain Syndrome.” Believe me when my nerves BURN it’s ALL over my body. They link it to the Shingles I had.
@@Kuulei265 feel you on that defo just a guess but do you live in UK as this is what is offered to me
@@marcus3060 No I live in the USA. I just cannot understand WHY my nerves are burning like this. Sometimes just the breeze from the wind can trigger it. Clothes touching me on my back. It’s awful believe me. Only Prayer has helped.
@@Kuulei265 shame sound so like my aunt we both live in scotland shes had shingles 3x lupus and fibromyalgia sure a few more diagnoses. I pray all the time and will for you if thats ok
@@Kuulei265 sounds awful and painful. I am in a situation as well in Canada with horrible symptoms and no answers
It’s awful.
Prayers to you
Shame on the government and the crooked doctors!
I have Multiple Sclerosis. It took five years for a diagnosis. I was happy to finally know what is wrong even though there is no cure. I had many of the symptoms they describe. I know that it is not quite the same but I have experienced the pain and fear of the unknown and people telling me I was crazy and not sick.
This story reminds me a lot of the illness at Chesapeake Bay where a bacteria was connected to brain illness from animal waste runoff into the bay. This was 20 years ago but sounds very similar.
Or something people are eating from the store, deemed safe...
I saw that story not to long ago and I agree with your thoughts on this story sounding so alike.✌️✌️😊
Thanks for this comment. I did not know about those cases. I am very interested because I work with microbial infections of the CNS, particularly seemingly "silent" ones which cause symptoms over a long time. Some of these can enter the brain via nerves from the nose. I also know what it is like to have a "mystery illness" - i am very happy that I finally got a diagnosis at age 44 last year (in my case an autoimmune disease, ankylosing spondylitis).
I had the same symptoms and was never diagnosed with anything but depression and anxiety and I suffered through high school and all my 20s and my life was ruined but I slowly got better on my late 20s and am just getting back on my feet. It's horrible when nobody knows what's going on and there are no answers and they think you're lying or being lazy or just not trying hard enough. This made me lose faith in the American Medical System... Still till this day my mother says it's time to move on not to think of the past but it's not that easy when you struggled for most of your life with barely any support or compassion 😭
God Bless you Golden Child I am so sorry you suffered all those years. You are a stronger person and maybe you can help others get through their pain and find hope. Think about writing a book it's therapeutic. I wish you well. Keep on keeping on. You need to keep draining those painful memories by talking about it. When you feel it's time go somewhere alone and tell your story into a voice activated recorder. Like writing a diary but verbalize. When you feel like crying Go ahead tears are God's way of healing the soul. Jesus Loves You.
I wonder if you had Lyme disease caused from ticks. People in Australia have had symptoms of it but the government won’t acknowledge it unless you’ve been overseas. We also have Ross river virus caused by mosquitoes that has caused lethargy for years even though it’s only supposed to last months. So many possibilities. 😞
As I been through a similar situation (still unwell decades later), I can really relate to your extreme frustration of not being heard, & of grieving for what sort of life you could've had. Just know that there are people reading your words hear your pain! 😢
I hear you, Golden Child. I was plagued with fatigue but kept pushing through because they said there was nothing wrong with me. I pushed until i crashed completey. have come to believe the US medical establishment is good for SOME things, but in the area of chronic mystery diseases we must look after ourselves. If they don't know what it is, they tell you you are depressed.
Better with nutrition, exercise, time outdoors, emotional processing, positive thinking- it all helps. i will never stop looking to get fully well and i send you my best wishes.
Im from the Philippines and have those symptoms too for years and I still have them today. Doctors said I have anxiety and depression and I took those meds but I still have symptoms of near fainting, dizziness, in a haze, headache, vertigo ,body aches, I just have to live with it for many years. No doctor diagnosed me for anything except anxiety
my niece is suffering something weird like this she has been seeing a neurologist 2 years now but they cant figure out what is causing her symptoms she lives in Moncton, she was randomly passing out she complains of fog brain, she recently had a stroke and they still don't know what's wrong with her. very concerned now that i have watched this.
I'm so sorry, poor girl!
Take good care of yourself and be safe.
Isabelle Victoria British Columbia
Please reach out to this dr and tell them about what’s going on
Mostly since C-19. 🤔
Did she ever have a flu shot? They've been putting all kinds of things in them for years. Mercury (they changed the name to thimeresol so you wouldn't know mercury is in there) being a big one which affects the brain.
For the woman in Moncton I think it's More Than likely it's Blue Algae and the Irresponsible way Man has Treated Our Planet. And unfortunately More people will get sick. I'm sorry for your niece and Prayers you're Way. It's absolutely not Okay to Stop the Scientist.GOD BLESS AND YOUR NIECE AND THE PEOPLE IF NEW BRUNSWICK AND AROUND THE WORLD WHIM MAY BE SUFFERING FROM THIS BLUE ALGAE CAUSED BY ENVIRONMENTAL IRRESPONSIBILITY.
Don't forget that Agent Orange was used in New Brunswick to get rid of Bud worms. ( I miss my home Province.)
Agent Orange was a derivative of the Tuskegee experiments. They knew they couldn't keep testing without drawing attention so they relabeled it and sold it to Canada and then sat back and watched.
There is a treatment for agent orange. A man I worked with had been exposed while in the Australian Army working in a unit attached to US special forces in the Vietnam war. He was sent to a great doctor who tried for years many different things until one day he tried something that made it go away and it never returned. Not one symptom since.
@@fionamcgrath8982
So?? Why even bother saying it if you won't bother to either to say what it is or say where a person can find it!!
Sounds right to me!! I know two men, both veterans in USA, both victims of Agent Orange in Vietnam. One has 3rd stage Parkinson's Disease, the other has Prostate Cancer and had 5x heart bypass surgery.
@@blessed7fold583 mom is Vietnamese alot of neurological diseases popped up after the war due to agent orange I myself have epilepsy I hear it’s common there
She's not alarmed because it's not her mother her father her daughter.
She reminded me of the Mayor in the original Jaws movie when the Police Chief told him he had to close the beaches because of the deaths of swimmers from shark attacks. His response was classic "We rely on tourism here, we can't be seen as though we have a shark problem". Nope, nothing to see here folks, sweep, sweep, sweep. Nope, no problem at all. 🙄
or herself.
Dorothy Sheppard replied to me about my husband who moved here to Australia from Canada…. She told us to see our doctor 😂 as if we haven’t been seeing doctors and getting tests for nearly a year 🤦♀️ he’s in a wheelchair most the time and is even losing his vision now…… no diagnosis. The more they hide the harder it will be to get one…… but we keep in contact with our neurologist here in Australia and are so so grateful to Steve for the Facebook group 🙌
I'm so sorry...
I wish you and your family all the best.
This thing needs to be diagnosed!!! Wth!!!
Air, water, soil, foods, soaps, paints, etc etc etc... I mean absolutely EVERYTHING should be tested for viruses, bacteria, prions etc
Anything the victims have in common should be investigated, anything from similar favourite foods, hobbies, their jobs or volunteer activities, etc
Any place they all may have visited, lakes/rivers/beaches they may have swam in, animals they may have touched, farms they may have visited etc.
There is an answer, it must be discovered!
Anyway sorry if I'm going on, it's 6 am and I haven't slept much, (I have chronic pain) lol...
Take good care of yourself!
Isabelle Victoria British Columbia
Have they checked for IIH? Pressure in the brain and spinal column from too much cerebral fluid. Has to be found through a spinal tap. My niece has it.
A year ago, my dad was managing an emergency team of PSW’s for a COVID outbreak in a nursing home up north. Now, he’s been continuously shaking in his wheelchair, along with almost all of these symptoms. Everything has happened at such an accelerated rate, getting worse before we could have a chance to process what’s happening.
Dr. Kalia taking on my dad as a client has been the most hopeful news I’ve heard in a long time.
Hope your father can recover I will pray for him 🙏 so covid started making him get the shakes.
With all the secrecy to me it means the defense department is involved. They probably already know exactly what it is. Our governments are not our friends.
Likely a waste by product...
Exactly!
human experimentation?
The secrecy to me means Irving is involved. The premier works for Irving and the citizens of the province pay for it dearly.
@@FunnyFille that makes alot of sense... 😳
Revealing! My husband was recently diagnosed with atypical parkinism. They couldn’t find anything that they had seen before. Your program now has me wondering.
Did ur man take their deadly shot??? They are lying saying this vax safe when its killimg ppl off like flies
@@ronehouse4317 he started with symptoms two years prior to Covid but yes we are vaccinated
@@valerieleach1084 chemtrails
Have they tested his manganese levels? Some neuros in NB believe this is caused my manganese in the water. Manganese poisoning fits the symptoms
One word. Prions.
Well maybe it’s time they started looking in town records not current environment today. And what do they all share in common from their past. They share a hospital. Maybe the same camping spot. Medication. Drugs. Favourite meal. Industrial chemical. Home cleaner. Could be anything I’d be digging already with the rest of them. It’s neuro, so it’s toxic whatever it is.
Agreed, may I add "follow the money" because most of the time someone, somewhere, knows something...and with money one can make someone somewhere "spill the beans."
@@eldy938 well that’s surprising as I’ve always stocked up on beans
@@kforest2745 I love beans
@@fionagregory9376 yup and sardines
It’s probably the beans. Try farting. I’m sorry, I know this is not funny but we need to laugh too right?
Wow, how can this _not_ be a Prion? It's the only thing that ticks all the boxes, and that's absolutely terrifying.
Sounds like best prevention is to avoid certain meats, from questionable sources.
That is not the only way to acquire a prion.
@@kathleen1685 that is terrifying
@@kathleen1685 as some of us who research have learned this past year 🤬
Deer in the US have something similar generally called Wasting Disease. It is a Prion and some call it Zombie Deer Disease. A hunter friend says it is in every state in the US. There must be several kinds of this sort of disease and New Brunswick has one. I hope they find out what causes it.
Don’t play politics with human life
Transparency is the only answer
Stop the political bs
Don’t shut out scientists that could provide answers
Kat Lanteigne: any time a scientist cannot speak freely, that's troubling. Seems to be a lot of that these days
Controlled by Corporations, ( Monsanta, is a prime example)
blame the morally bankrupt lobyists, they are the real Devils!
Exactly!!!!
💯😔😡
Seeing the son hug his dad after all those months 💔
I wish i couldve hugged my grandmother one last time while she died in isolation... Didnt even have covid...
@@DWreck958 I'm so sorry 💔
The medical community doesn't like to appear to not understand what's going on.
theyre getting paid not to!!
They get pad by the government ‘not’ to tell! Just my opinion!
I got a disease, that's very rare, under the Reagan administration in 1982. I live in Nebraska. A doctor saved my life at that time, but it has not been easy. Another doctor back in the early 2000's said that I had been hit in the head too many times. After hearing this I started to remember all the significant blows to the head I had in my past. Clear back when I was around 4 years old and up. Nobody knows what caused it for a fact. Drove truck for a while. 85 to 93. The best years of my life, especially when I started hauling freight 48 states and Canada. Found some "QUACK," doctors in my time! Have been on Social Security since 1995. A lot of people like to talk their gossip, spreading rumors that I just do not want to work. I went from making over 30,000 dollars a year to receiving a four digit check. This is not where I saw my future going. Still look big, but that comes from taking prednisone for over 11 years straight. Still mow my own lawn and such, but I am a senior now and it has become harder every year that passes. My heart goes out to these people. Best thing to say is never give up. Look for the good in life everywhere and anywhere you can! It's not over until it's over. You have families that love you! Stand beside you and actually care about you. Don't know what else I can say? A lot of people look at me and think I faked being sick. These people will never, ever know anything beyond what they see with their own two eyes. Do not like it but I will not wish for,"these people," to get sick just so they know what it is like. Covid has not made life any easier for anyone. Think about where it originated and when will it happen again? Dan from Nebraska 🇺🇸❤
Love and comfort to you, Dan.. sounds like you've lived a full and adventurous life, as well as the struggles 💓
I suggest you look at carnitine and other supplements
Addison's primary or secondary. Emergency rooms don't test for it and half of the endocrinologists focus only on diabetes and overlook the obvious symptoms. Good health to you!
I get exactly what you are saying and going through keep your spirits up..
I live in The Midlands in England. In the late 1980s I had a friend that went away to university in Nebraska. I would think that university is still there. He would say that they have a football team there and blokes would simply be mad on the game days. It was easy for my mate to assimilate because we have similar traditions with our football (soccer) clubs here in England.
Finally. This is alarming and no one talks about this.
But... lots of people are talking about it. And as someone interested in epidemiology for a long time, I've yet to see anything in either this reporting or the other sources I've read that lays out a compelling case for 'clusterhood' or basically ANY etiology that makes biological sense. My prediction: cyanobacteria or similar environmental agent for some, non-exotic unrelated neurological disorders for most, and psychosomatic presentations for the rest. This is not the first time this phenomenon has happened and there's a lot of very good reasons why many experts are skeptical. Not everything is some sinister cover up. You just have to have an open mind.
@@complimentary_voucher As long as it’s not a prion or prion-like disease! 🙃🥴 I know they said it’s not CJD, but imagine for a moment CWD has jumped to humans like it has to macaque monkey and bank voles, or like mad cow disease did to humans… would our CJD testing even reveal that?
April 2019 … SK. Our family came down with what we called a very weird sickness. Everyone was really sick and it manifested differently in everybody. One of my children complained of tingly legs. I dismissed it as she was a bit out of it. Almost a week later I finally get sick after taking care of everyone. Went numb from feet to ears. Many symptoms of GBS. Went in a few times to docs where they diagnosed me as “psychosomatic.” So I went to the chiro as I was out of options. He indicated he didn’t want to touch me as I was the 6th or 7th person that came in with same symptoms. He felt bad because he told the first guy that he has MS symptoms. Felt bad that people had these symptoms but happy that it was confirmation that it all wasn’t in my head. Today I still have muscle weakness, stumbling, and numbness in legs and feet. Definitely neurological. Zero help from the medical community. Heart goes out to these people.
Beware because you we diagnose with the bed h the label « psychosomatic response » in your medical chart it will be always be diagnosed for the mental issue before the actual chief complaint that you went in for. Still so much stigmatisation against individual with mental illnesses.
Can you tell more about when you got sick?
@@monopinion8799 I understand that. I’ve lost any sort of confidence I have for the medical community at this point in life. Not only my experience, but family members as well.
@@TD-ln2tg I don’t have the exact date but still have my calendar from then. I can look up and give you the exact week in April 2019 that my family was sick.
@@journeythruwords4619 Look at the comment above about the woman whose son had behavior changes & husband was sick as well, it was a parasite, I read about it because I am a psychologist, there is more than one parasite that causes neurological symptoms, sometimes GI problems, if it gets to the brain in can cause confusion, & eventual death. Much Love to you & yours
Sending everyone who is suffering with this Love Prayers and when you breath in remember we are one and as you breath out you are free from anything attacking your body 🙏💛
it’s awful 😞 heartbreaking for the patients and their families 💔
I appreciated the time and research put into this piece and will recommend it to friends. Job well done.
People are sick like this everywhere. This community is just small enough that the doctors know everyone and take them seriously. Most of the time the doctor doesn’t know you and just tells themselves it’s something in the patients head. I’m interested to see what happens because it’s more common than they want to admit.
Except that its all over the province not in one town/city, so your statement is careless and false
5 g is frying brains...
they can't explain what they have, they want to use the 'anxiety' excuse.
The minister of health was as transparent as glass......all her answers were screaming "cover up".
This is so very sad.
I hope she is clear that we all hope she or if she ever has a loved one GETS THIS TODAY. We all know THEN all her answers will be different!
My completely healthy husband died suddenly of cardiac arrest. After an autopsy and forensic pathology report no one can tell me why he died. I understand that frustration and anger when something is going on and medical professionals can’t tell you what it is. It’s fairly common unfortunately.
I know it doesn’t change anything and I am very sorry for your loss but look up Long QT syndrome and into his family’s history if possible all the best
Did he change up anything 6 months before this happened ?? Like foods medications anything along those term?
Also sending my condolences 🙏
Condolences. A lot of young men are dying of heart attacks. Some theorize it is covidbut government here is not doing thorough autopsies or tests
@@rajs7876 Yes, this is horrific. All these people with myocarditis, strokes, heart attacks - the common denominator is that they've been double jabbed... The athletes have been mandated in order to be on the team. :-( ruclips.net/video/RhvjXeYEJnU/видео.html
The health minister makes it sound like the inconclusive report is a positive thing. 🤔
You should feel good to know we haven’t identified a known risk. Canadians should feel good to know we have no clue why this is happening.
Seems if there is no conclusion, their work is done. Nothing to see here.
This was very interesting to listen to. For the young lady, I’m curious to see if neurologists ruled out the condition POTS. My son was finally diagnosed with this condition a few years ago at the age of 18. This doesn’t go hand in hand with all her symptoms but each case is different. We knew of its existence due to the fact that we have Ehlers Danlos syndrome in our family and POTS is a common comorbidity. Trying to get a diagnosis in SK was impossible so he ended up seeing a specialist in Edmonton. I hope that this poor young woman can find a correct diagnosis soon with an outcome that isn’t so bleak. To be 20 and not knowing if you have a fatal condition would be awful to live with. Wishing all of these Canadians all the best.
I have pots… and Eds and here I am!
Gabrielle says the condition was ruled out and she doesn’t fit the symptoms. I also have POTS and HEDS and I’m around the same age! I had no idea what it was until I did some research online as a teenager and brought it to my doctors attention. I probably saw the same doctor your son did. Has he improved since then? I’ve found all the right doctors but I’m still struggling a lot with the fatigue.
@Janitor Queen POTS(Postural Orthostatic Tachycardia Syndrome) is a syndrome that messes up your autonomic system in your body. The autonomic system is responsible for our body doing things like breathing, managing blood pressure, heart rate, respiration, digestion, etc. Things our body should do automatically without us needing to think about it. “Dysautonomia” is another name for a group of conditions that include POTS, that are similar. There’s different kinds, some that are caused by the adrenal glands or mitochondrial disorders.
In people who have POTS, mostly women between the ages of 13-50, when we stand up, our heart rate sky rockets because it is trying to increase blood flow to our head. In a healthy person the body regulates your blood pressure and heart rate when you go from lying or sitting to standing. Some of us get really low blood pressure when this happens and pass out. Severe fatigue and slow digestion is an issue, being out of breath, etc. We also get “brain fog,” which is what happens when you don’t get enough blood flow to the brain. It feels like when you can’t remember where you put your car keys but with everything. It’s hard to find words to talk, hard to remember, hard to concentrate.
It’s a horrible, horrible condition. You aren’t born with it and it is very rare to grow out of it. It develops usually after you get sick, around puberty or it just kinda slowly shows up. Mine started out very slowly and then I was sick for about two weeks years ago and I never recovered the stamina I had. It ruined my entire life. A lot of us used to be very active in sports and now we can’t do much. We take extra salt to increase our blood pressure.
Here is a link if you want to read up on it: my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots
Chinese secret wipon
Two mins in and I’m wondering about the young lady and POTS too. I also have EDS alongside.
I've been dealing with an undiagnosed condition for 8 miserable years. I just want to know what it is and at this point I would be happy for someone to say I have cancer. The pain is too much
Fibromyalgia? That's another mystery affliction - autoimmune they said. It took 8-9 years of my life and left. The nonstop, not for a second, pain was maybe 7-8.
Now I wonder of it could have maybe been cast out. Tried everything else.
Best wishes. 🙏
I'm in bed right now like most days for past 2 and a half years same symptoms as these people I've had 2 diagnosis crhons and fibromyalgia after stomach resection i was told I don't have crhons disease. But my life isn't any better now ive been told to manage it. In all honesty manage I can't but I do survive. I hope and pray for everyone that suffers
What are the symptoms?
@@e_i_e_i_bro are you a doctor? That can help Cause if not I'm in to much pain to list.
The way you ask the question how can people be so healthy and then gone in a few months - having lost my mom to brain cancer - she was here 100% one day and gone in a few weeks - after a few days she no longer recognized her own son.
😪
Oh, Freddy, Im so sorry!
My condolences to your family. May God be with you 🙏
Same with my dad, gliboblastoma took two months.
I went though the whole nonsense about fibromyalgia. First, of course, it was dismissed as psychological. It’s now considered neurological, but that took decades. I felt to enraged by the govt announcement this illness in Canada is “potential”…keep fighting…
Same. Five years of steady decline. I recently got Lyme and within three doses of doxy I had more energy than I had in years and no more pain. My fascia is still glued together but I'm hoping corrections to that will now hold. Five more days of doxy left. I hope the positive changes hold. I had a negative lyme test years ago. Not unusual it seems. I hope you are doing okay.
Same. I have Fibromyalgia and severe Chronic Fatigue. I think it has to do with a viral illness that I had as a teenager. I don't think that Fibromyalgia is a "junk diagnosis", but we need to know more about the cause of these severe and life altering symptoms. There are many patients like me, around the world.
I’ve had fibro, based on symptoms, since I was 12 and drowned, someone in saw me in the bottom if the pool and managed to bring me back. I’ve had so many Lyme tests, I’ve lost count…all negative. At 50 I caught bacterial meningitis, which triggered a flood of autoimmune syndromes, plus a another Nuero disorder which impacts my heart. Not fatal, but exhausting. It has a great name POTS, lol. Keeping my fingers crossed your Lyme will be cured! I’ve kept up with all the research on fibro…definitely neurological. Possibly results from an injury to the brain’s pain center. It’s much more than pain…also the body’s ability to interpret heat and cold is abnormal. Like others with fibro I’ve talked to, I am overwhelmed by too much stimuli…from crowds to all the colors in the grocery store. Have no to,stance fir stress, good or bad. Chronic fatigue sucks.
Fibromyalgia is now being considered as possibly an autoimmune disease where the body attacks itself. As a fibromyalgia sufferer that already has one autoimmune disease, it wouldn’t surprise me.
Actually most the research shows it to be neurological…possibly caused by injury to brain’s pain center. It impacts more than pain…all kinds of sensation…cold & heat for example. I can’t deal with too much sensory input either.
What about black mold? The air conditioner in my old SUV was full of it. Every time I turned the vent on it would blow on my face. I had vertigo, brain fog, tiredness, and other symptoms. It took years to get better. Mold can cause lots of neuro symptoms.
How frightening. My worst fear is to suddenly get health issues. Keep in mind this issue started pre-covid guys.
People aren't dying from covid, as much as we're dying from undiagnosed and untreated serious illnesses. And now it's going to get worse.. They'll label someone as "a covid related death" when truly they died waiting for healthcare. It's OUTRAGEOUS.. Put them in a room with a covid patient and BOOM, they've created a covid "related" death.. Canadians are dying from undiagnosed and untreated illnesses. A lot of us are waiting for answers. Praying that someday I find a dr who will help..
@@sarahstauffer4874
Stop making crap up AGAIN!!!
WTF is wrong with you???
Shame on you.
Yes, patients ARE dying from Covid, they are suffocating to death.
Go volunteer on a Covid ward and find out...
For fck sake...
@@abelis644 wtf is wrong with u
The government have been vaccinated people for over a hundred years.
@@sarahstauffer4874 Can't say anything on RUclips questioning the narrative these days without being attacked. It's sad. I wonder if these people were all given the vaccine that were supposed to forget was experimental?
I seem to remember UK's CJD outbreak was traced back to molybdenum in a river in Lincolnshire rather than beef. There was a documentary which I couldn't find to reference.
That is weird because CJD is caused by a prion which is a protein. I'll have to look up what you are saying.
Cheers.
CJD was traced to the Ovine brain disease Scrapie. Scrapie is a disease that was transferred to beef cattle when rendered sheep protein, including brain matter infected with the disease was used as a cheap cattle feed. The disease in cattle emerged as BSE, this was then transferred to humans either by open wound contact with infected beef or by ingesting infected/diseased beef. The disease showed up in humans as CJD.
@@AnthonyMonaghan Worth noting what humans got from cows with BSE was actually vCJD, or variant CJD - it actually is a different disease with a slightly different presentation than the more prevalent type, sporadic CJD.
@@DannyD-lr5yg Thanks
Chronic Wasting Disease (CWD) related to CJD has been detected in deer and elk in North America. Transmissible to other animals but can be present in infected meat. I wonder if the autopsy looked at the presence of prions.
I had exactly the same symptoms since I was 15 years young. No diagnose for many many years. Diagnosed with Multiple Sclerosis finally when there was aMRI scan. Now with this diagnose Iam a miracle to neurologists. After being sick with these symptoms for so long I am doing great and no meds. Which is weird because MS only gets worse over the years. This video makes me wonder... 🤔🤔🤔
There is a new medication in the US for MS. It’s given by IV, then 2x per year. It actually reduced the sizes of the lesions.
There are more than one type of MS.
Sounds like it could be relapsing/remitting MS... some people have one attack, and never have another period of decline. MS is a very complex disease
remission
Fyi, MS does not always get worse over time, in fact, many times individuals are stable once the disease is under control. I have MS and was undiagnosed for over 15 years.
Can't give the man a diagnosis for 2 years but one weekend in Toronto gives him an answer?
No. Sorry, but no.
They've decided it was from a previous concussion and anxiety? Well, if that were true my son would have what he has x2! He's had 4 concussions.
I don't believe her diagnosis at all. I think she was just looking for an answer - found an easy one - and wrote it down as definitive.
I have dealt with NB before, friend had a mystery skin illness. I went to the google to find the answers, had to not only send the medical journals to the doctors but also find the specialists who studies that disease.
Best for the group of ill people to do their own research, including testing environmental factors in each person's home, as well as doing complete blood work by private labs in the states, testing for every infectious disease and vitamin and mineral levels and to hire private researchers/physicians. No need to involve the province at all.
God bless the Doctor! "I'm here to give them hope.....meaningful hope." Nowadays, in the U.S. treatment of patients reminds me of a factory, in out, pay the bill, next patient, in out, pay the bill, and so it goes. I've been fortunate to find doctors who take their time and truly care about their patients, yet there are so many who don't have such medical providers. I don't feel it's as much the fault of the doctors, as the system.
Cool doc quoting Leonard Cohen.
@@hartplanet356 - ideally, both
You think Canada is different?
Uhh yea.. the doctors in America see patients who have illnesses but they also get a bunch of ppl coming in with ridiculous complaints that probably didn’t need a doctor or a mom with munchausen by proxy, etc. You have no idea what it’s like for doctors.
@@CrustyUgg having worked in both hospitals and a doctor's office, I saw both the good and the bad, as far as patients, and doctors, as well. What so many people do not realize is that when they're in the exam room with the doctor, they're the doctor's employer, and have every right to "fire" that doctor or LNP. I've even gone so far as to schedule an interview with a new doctor, to find out if that doctor is going to treat me with respect and consideration, before I schedule an appointment and become a patient.
Thanks for this documentary & real stories of these brave people who will help each other thru a terrifying unknown disease. This will be in my heart always.
From south Florida USA to a beautiful Canada with people I would have loved to meet. Stay strong you are so very special. 🥀
It is frustrating that this cluster of people have the same symptoms and the government is not doing anything to help. I feel for all of them and hope that Doctors find a diagnostic and cure.
I pray you all finally get an answer, and if it is through the environment each and everyone of you sue your government for gross ignorance as they should be looking constantly for a link. Prayers are with you all x
Pretty sure you cant sue for gross ignorance.
These poor people have all the symptoms of Lyme disease! Speaking as one who has been physically disabled by Late stage Lyme, dizziness, fatigue, body and joint pain, brain fog, good and bad days, are par for the course. Coincidentally I just saw a documentary about the northern migration of Lyme disease into Canada. Blood tests are useless if the disease was left untreated for more than 5 yrs. Only a PCR of the CSF was able to diagnose the Lyme initially, 6 months into the year and half of daily IV infusion of Rocephin, the blood test showed positive for Lyme, as well as Babesia, Ehrlichiosis, and Bartonella. Sixteen years later still struggling to hold onto the hope that there will be a fix, using a Rife machine right now and getting some positive results.
I have Lyme and I'm watching thinking the same thing💚
My first thought was Lyme disease.
Hi. I thought the same thought. Lyme would make sense.
What makes you think that you have an idea that hasn't been explored by anyone in the Canadian health system?
The health authorities here in Australia deny that Lyme disease exist here because the blood-tests come up negative to the parasites that are prevalent in ticks in other countries, & that's also the reason there's no government funding for research!
However, independent research seems to indicate that the parasites carried by ticks are numerous because the environment & the animals they come in contact with vary immensely. The scientists investigating tick parasites insist that further research needs to be funded to genetically identify all of the possibly thousands across the planet!
Hope that the diagnosis of multiple sclerosis has not been missed! Also Lyme disease is a difficult condition to diagnose and is treatable.
I've got MS. It's really easy to determine if they have MS. Run a series of MRIs of the brain and spinal column, then immediately another series with contrast. Any lesions will show with contrast. If the state requires the old fashioned means of confirming MS, then follow up with a cerebral spinal fluid extraction and analysis. While many of the symptoms some of these folks are presenting are also shared with MS, I'm pretty sure it isn't. Besides, MS doesn't happen as an outbreak.
@@ericg7183 Six years ago, my husband was stricken with a sudden illness that paralyzed him from the waist down. They gave him high doses of steroids to stop the spread if it, while they ruled out diseases. It was spreading to his chest, and they said if he had not come to the emergency room when he collapsed at work, he would not have made it. They had to do a spinal tap to rule out MS, which was frightening. It turned out to be Transverse Myelitis, which his neurologist suspected was due to the flu vaccine. He was told no more vaccines, yet here we are being told by the political doctors that it is not an excuse to not get the covid jab. They are not going to pay for his permanent care if he gets TM again, so who are they we should listen to them? It was a long long road to recovery for him and a second bout of it might not have such a positive outcome.
this is literally my biggest fear. having a neurological disease, let alone an unkown one 😰
OMG someone who knows how to use the word 'literally' correctly. How refreshing 🤗
@@TheWendable Is it really? It's not used incorrectly but the sentence would work without "literally", you don't assume she is figuratively afraid of a neurological disease. It doesn't signify anything in the sentence, just make it seems like this is the sort of person to add "literally" to every sentence as a habit, not because it should be there.
@@januszkurahenowski2860 i used the word for emphasis
This reminds me so much of my problems in the US getting help for Ehlers Danlos Syndrome, Fibro, yada yada. Doctors refuse to believe and insurance companies won't pay. SSDI doesn't recognize it and, in many cases, it's completely debilitating. I hope there is strength in the families dealing with this horrible situation to advocate for their loved ones and others to get the help they need.
EDS and fibro is treated terribly in Canada too ❤️
I have Ehlers Danlos too. And you are so right about it. It took me 8 doctors to finally get a diagnosis and relief .
Lie..ssdi does recognize
You hit the nail on the head! If the insurance company says it doesn’t exist then it doesn’t exist. Doctors are controlled by the Insurance companies who contract with the Government.
@@deborahwhit118 -- I'm not lying. It's very difficult to get SSDI for EDS. I know people who have tried for years.
The lack of research into the cause of these people's illnesses is astounding. The vague & shallow word salad / non-answers provided by an apathetic Gov't official were shameful at best.
re Luke: How is ..."Likely related to both the concussion...and his anxiety"... an actual diagnosis???
It's the unfortunate result of limited funds. It takes money to study & treat, the funding will always go to the most rampant illness. & of course answers will be vague. Every official has to be very careful be of lawsuits & words being taken out of context. Bc of the ppl who believe they're entitled to everything they want, regardless of how the world works, reality & what is actually possible.
Agree with you. However Luke received a very positive and definitive response from the neurologist……he will certainly benefit from the healing power of placebo !
sometimes the brain need nutrients not pills, livonlabs products liposomal products easily pass thru the BBB
These people should be ashamed of themselves. They are complicit in these “clusters” of disease process of a neurological origin/ manifestation. How can they wake up and look at themselves in the mirror. They say unknown but are UNWILLING to fully investigate. I wonder will it be alarming when it’s her son/daughter/Hubby/ Mom and or Dad!! Shame, shame shame!! Mercy and grace upon these families; may they be found in the grace of GOD when man’s hand have failed!!
Effects from Concussions are long lasting, CTE reflects that. Affects mood, anxiety frustration balance, relearning basic skills is important
I had a concussion over two years ago... Still affects my capacities. A LOT.
l always look forward to new shows . l heard about this over a year ago . l live in maine so this is pretty close to home . this is a huge puzzle . l hope they find out what is happening .
That government lady is not nice. The least she could do is have some empathy for these sick people. I am not a fan of her. She seems so cold and uncaring. If she was in that situation, she would feel very differently. Dear Lady, you make me sad.
What do you expect? Typical NB.
@@rps1689 I don’t know anything about NB, but I am sad for the people who live there if that is how their leaders feel and act toward their constituents. Don’t they work FOR the PEOPLE? Are they voted in by the people? Just curious.
The minister has been told to dismiss a link to protect tourism. Being alarmed or concerned is differant from panicking.
As someone who has suffered from chronic fatigue/ME for 25 years..and been told I'm lazy, its in my head, I'm a malingerer etc...I WISH doctors would realise there are illnesses that don't fit in side the square...and very few people enjoy being debilitated.
Something tick borne? Given the place and the symptoms, it seems likely, similar to babesiosis, Lyme, Powassan, alpha gal? My sister’s entire family have alpha gal. They have to very careful of their diet.
Also check out a human version of CWD, found in deer, elk, and moose.
There’s a neurological disease in Hawaii with snails as a vector.
I think they need to center research on an animal or insect vector.
I agree.
Was also thinking Tick-vectored disease, come to the comments to see if anyone else was on the same page!
Edit: wrote this before I saw the part of your comment mentioning CWD lol.
I’m just hoping it isn’t a new prion disease.
I know they said it’s not Creutzfeldt-Jakob, but I imagine if chronic wasting disease (in cervids such as deer/elk, blazing through the US for the past several decades; like mad cow disease but significantly more contagious) spread to humans, it’d look something like this.
@@DannyD-lr5yg Creutzfeldt-Jacob was the first thing I thought of when they first started describing this illness. Maybe this is some similar disease.
They don't believe in Lyme disease in Canada. It's ridiculous.
my take away from the minister of health is: you are not being transparent!!! Pretty sad yr shutting science down.. Politics first! Stop yr political BS putting yr political position/s before lifes is disgusting actually!!
Journaling and longitudinal studies are needed for every patient affected. Patient advocacy should permeate everywhere in the health care system. Everyone should be working collectively in this group project.
What is a longitude study?
@@wandakowalski7063 it's when scientists or researchers follow test subjects for a very long time. Basically, if everyone journalled it would help doctors with the research. I can't believe no one has thought about using the young woman's videos as data points. And what about seeing into their Samsung / Apple / Google Fit health Apps to monitor heartrate and other things. Very strange.
same thing happened before I was told I had fibromyalgia. the doctor who was treating me said he didn't believe my diagnosis was a true disease. I felt violated. I really hope there are some answers soon for all of these people.
Praying for everyone who is suffering with this , to the Canadian government this is unbelievable 🚩🚩🚩🚩🚩🚩🚩🚩🚩🚩🚩🚩🚩
Why is it the Canadian government? It would be the provincial government
@@debbiep99 all government is it ok to point fingers while people die.
So sad, as mother Earth gets sick, so does all her inhabitants
Wonderful report. I will continue to look for more information on this topic. Thank you.
My heart goes out to these folks, i know how frustrating it is trying to get proper care for known issues, cannot imagine the stress of not knowing. Gabrielle seems like a fighter, hope they get some good news soon
it sounds like a prion desease. Symptoms of prion diseases include:
Rapidly developing dementia.
Difficulty walking and changes in gait.
Hallucinations.
Muscle stiffness.
Confusion.
Fatigue.
Difficulty speaking.
That’s what I’m worried about. Maybe chronic wasting disease finally made its jump from cervids to humans.. :/
But where did the wasting disease, which is Prions cone from?
They checked for prion diseases like CJD and they did not find anything there. I'm thinking maybe it is environmental, and there may be a coverup of some kind, or maybe it's something they haven't detected, but my money is on a neurotoxin. Could be something in the water supply, algae, heavy metals, maritime life.
@@apenguicitis4395 It’s not CJD or any _know_ prion disease. If it were a _novel_ prion disease or even a novel prion-like disease, they may not know specifically what to look for to rule it out. As for “prion-like” diseases: Alzheimer’s, ALS/Lou Gehrig’s, MS, and even diabetes seem to all be “prion-like” due to the heavy involvement of misfolded proteins, and other behaviors similar to prion diseases. However, because the misfolded proteins in these diseases aren’t the PrP protein, none of them are considered prion diseases, and this would not be found if looking specifically for a prion disease.
Tl;dr this could still be a brand new prion OR prion-like disease
@@poppyaustin4828 The origin of prion diseases is unclear, but they’ve been around for a long time. However, they were only identified in the last several decades - so we’re still learning.
Prion diseases are, at their most basic: diseases where a specific protein, called the prion protein, becomes misfolded and basically “tricks” other prion proteins into also misfolding. It’s kinda like how cancer cells kinda “convince” nearby, normal cells to also mutate and become cancerous - and the growing “crowd” of misshapen cells is what we call a tumor. With prions, though, the misfolded versions (because normal prion proteins are normal, helpful, and almost every person has them) stick to each other and basically “clog up” the cellular pipes. It’s like if a bunch of hair goes down your shower drain; at first, one or two hairs isn’t a big deal. But eventually, too many hairs go down and now it’s clogged. Unfortunately, unlike with shower drains, we have no way currently to “unclog” prions in the brain.
Chronic wasting disease is just the name given to the specific version of prion disease that affects cervids: deer, elk, moose. This may sound like humans cannot be affected, but we’ve seen in past that isn’t always true. “Mad cow disease” - hit the UK hard in the 1990s - is a cow version of prion disease. It became a concern because it adapted to humans (from us eating the infected beef) people began catching it. So, some people are worried the same thing could happen with chronic wasting disease. Even if most people don’t eat deer, CWD is unique from mad cow disease because CWD lives in the outside environment much much longer. For example, an infected deer may go to the bathroom on some grass before they even have symptoms; then, months later, a healthy deer might eat that grass, and get sick.
In other words, the doctor has been silenced by the government, its vile.
My husband's brother in law and diagnosed as having Parkinson's and it took a long time to be diagnosed as having Supranucular Palsy. As a RN I had never heard of it and this was Saskatchewan about 30 years ago. He was a farmer. It could be something new or something in their food or in the water...
Get a 2nd opinion. Sometimes when diagnosed with these very rare diseases, is it possible that the physician that diagnosed the patient worked at a facility that survives on research grants? Make sure the patient tested wasnt charged to a grant to justify the grant research..
Besides me having MS, my older sister and brother this past year have been diag with Parkinson they are really advance with the Parkinson balance, thinking, speech, etc.
I totally get what she was saying, that she was so "Happy" to hear that something was wrong with her... because I got sick in the late 1980s, & no one would believe me. Even when I was Hospitalized due to extreme pain the nurses would say, "You are faking it! You look too healthy to be sick! You just want attention!" Even saying that I just wanted drugs!!! This hurt sooo much because I hated to even take aspirin or ibuprofen for cramps or a head ache - I didn't even drink alcohol - I was clean, but I was very very sick, weak, shaky, dizzy, throwing up bowel, losing weight, abdominal pain!!! It took me nearly dying before they found out what was wrong with me, & I was so excited that there was a name for what I was going through!!! It validated me! So, yeah, it feels good to learn you're not crazy & you have a name of an illness to blame (or finally just a doctor believed me).... ❣
People saying it’s Lyme or me/cfs or Lupus etc Do you really think all the top docs are just going to somehow miss a diagnose like that?
Doctors misdiagnosis is not a rare bird.
Yes have done to me
Yes they did with my daughter for 6 years! Over 20 Dr and brain surgery!
I hypothesize that those who are genuinely suffering from an unknown illness are possibly suffering from LYME DISEASE because it's incredibly hard to diagnose (especially in Canada I've heard) and I've seen documentaries and reports of massive surges of tick populations in the area due to climate change.
Many people don't even realize they've been bitten by a tick, even within the last few years so the symptoms of Lyme disease really does seem to come out of nowhere without an obvious cause. My Uncle and cousin both recently were diagnosed with Lyme disease after suffering for a few years and both of them don't recall ever being bitten by a tick.
Lyme disease is tricky to diagnose because A) people often don't recall ever being bitten B) it manifests in very similar symptoms to other health issues that are more common C) the testing methods are hit or miss and are imperfect
D) symptoms are different from person to person
E) most doctors don't think to test for it
F) we still don't know a lot about it.
There could be something legitimate going on with a small cluster of people but I imagine the large majority of people's symptoms are caused by stress and depression and these reports are causing a bit of mass hysteria.
It is really amazing how depression and anxiety can manifest in physical pain and odd symptoms. It doesn't make their struggle any less real due to being caused by mental illnesses. The pandemic has isolated people and it's stressing everyone out. The important thing is to not be insulted if a doctor suggests the symptoms could be caused by anxiety or depression, just because there's not a physical cause doesn't make the symptoms not real, it's just important to know the cause so you can properly treat it.
I have Fibromyalgia as well as anxiety and depression and once I started treating my depression and anxiety properly with medication, my physical pain and IBS digestion issues improved greatly. Your diagnosis does not need to be something unique or special for you to feel validated in your symptoms. Sometimes we don't accept the simple diagnoses because we don't want to believe it's all in our heads because that makes us feel like we brought it on ourselves.
Yes, it takes on average 30-50 dr appts and 5-10 years to get diagnosed with MS, lyme and pretty much every autoimmune disease.
Looking forward to a follow-up on this! Also, god bless Dr. Morrero!
Perhaps the Health Minister needs to have this Disease in her immediate family to open her eyes to Honesty. 💥
Blessings to those Patients, God Bless You to bring Healing✨🙏🏻💕
It’s the manganese in the well water in NB. Not sure why the NB government won’t let their neurologists speak out.
So sad and scary. I hope they find out what is causing it, and find a way to cure it. I really hope this has a good outcome.
Isn't there a huge oil-petrochemical refinery somewherevin NB?
I have had lyme for years and antibiotics have brought me back. Im not 100% but 70% better. But i cant drink city water i get belly pain and the runs. So you mentioning the chemicals, in the environment should be checked.
@@SnoopyStraub Of course. There are many derivatives from Oil refining which enter into the system. Anyway, the owners of said refinery have the money to get such a study done.
IF so, I guess that the company is important to the province in a lot of ways (ending with money...)? Would they REALLY want answers, IF the answers are connected to the suffering&deaths? 😳🤔
I am just speculating now, this could be because of a lot of different things, even combined, and triggering some genes to "go mad" in these people. 🤷♀️🥺
@@Lovesongs-Deathdance oh, don't worry about the money. They pay negligable tax in somewhere like Ireland, and all the dividends go directly in hard cash to NB. So they are not really short of a dollar to sponsor some research for the good of people's health back in the homeland. But, I could be mistaken.
@@bettyboop-xg6jo Well I don't know anything about the money made in this particular business, but I agree with you, I guess that they could afford the testing. My question/speculation was more like: Do they REALLY want to know (the company/the gov. over there)? I mean, the "nothing to see here" answers from that lady (Health minister, if I'm not wrong 🤔, watching&writing this late at night here in Scandinavia 😴) were a bit concerning, IMO. 🧐 Didn't she want to know more about these increasing cases? 🥺
I hope they ALL get answers soon! Related cases or not, they deserve to know, to get help! ✨❣️
Good bless you all. Sorry for your suffering. Good things may come. Love. Brook
These people MUST keep pushing to find an answer no matter how many doctors it takes ! !
What about Lyme disease? It is really common in the United States from the ticks here in the northern states. It is no joke.
I hypothesize that those who are genuinely suffering from an unknown illness are possibly suffering from LYME DISEASE because it's incredibly hard to diagnose (especially in Canada I've heard) and I've seen documentaries and reports of massive surges of tick populations in the area due to climate change.
Many people don't even realize they've been bitten by a tick, even within the last few years so the symptoms of Lyme disease really does seem to come out of nowhere without an obvious cause. My Uncle and cousin both recently were diagnosed with Lyme disease after suffering for a few years and both of them don't recall ever being bitten by a tick.
Lyme disease is tricky to diagnose because A) people often don't recall ever being bitten B) it manifests in very similar symptoms to other health issues that are more common C) the testing methods are hit or miss and are imperfect
D) symptoms are different from person to person
E) most doctors don't think to test for it
F) we still don't know a lot about it.
There could be something legitimate going on with a small cluster of people but I imagine the large majority of people's symptoms are caused by stress and depression and these reports are causing a bit of mass hysteria.
It is really amazing how depression and anxiety can manifest in physical pain and odd symptoms. It doesn't make their struggle any less real due to being caused by mental illnesses. The pandemic has isolated people and it's stressing everyone out. The important thing is to not be insulted if a doctor suggests the symptoms could be caused by anxiety or depression, just because there's not a physical cause doesn't make the symptoms not real, it's just important to know the cause so you can properly treat it.
I have Fibromyalgia as well as anxiety and depression and once I started treating my depression and anxiety properly with medication, my physical pain and IBS digestion issues improved greatly. Your diagnosis does not need to be something unique or special for you to feel validated in your symptoms. Sometimes we don't accept the simple diagnoses because we don't want to believe it's all in our heads because that makes us feel like we brought it on ourselves.
I have lyme, i went years undiagnosed. The air still hurts sometime it depends how well im doing. I get nervous on windy days. I can pinpoint my nerves they hurst when they re touched. Muscle spasms are painful. My gallbladder was bad, i thought it was lyme for 2 years. I got stung by a jellfishy, i thought it was my nerves at first. My memory was horrible, antibiotics brought it back. I feel bad bad for these people, im 70 % better. I want 100% so bad. Its been over 15 years im still trying. Thankgod for my doctor, it took quite a few to find him. He brought me back.
I was infected in 1988 with Rocky Mountain Spotted fever, I became paralyzed, was in hospital for over a month, it wasn’t until the Dr, cut out and biopsies some sores that were covering my entire body, that he discovered. I believe to this day, I still have that bacteria in my body. There are so many different things to research, yet they are not being. I see the real problem is, most people just don’t really care, or so many Drs. They will assume, rather than test extensively, that’s what really flabbergastes me, to tell me it’s not still in my blood stream, without bothering to see. There are definitely wonderful Drs. Who want to find out, but their hands get tied, and they as well are not listened to
This. I used to work in a clinic with primarily Lyme patients. It’s very obviously Lyme disease to me…
@@amandasnider2644 Depression and anxiety are physiological illnesses.
Thank you to one brave doctor 💙
But with that said ... I was sick for over a year in 2018 and couldn’t get anyone to take me seriously. I was hospitalized for 4 days after a CT scan and still doctors acted like they had no idea why I was sick so I feel for anyone dealing with illness without a diagnosis. Luckily making changes to my diet changed my circumstances but prayers to anyone sick without explanation.
scientists and Dr’s being muzzled?? They sound familiar.
If it's not contagious it's environmental
Aww Gabriel praying for you darling right now sending you Love and strength 💛🙏💛🙏💛🙏💛🙏💛
I am from the Northeast in America. During 2019, I went through a non-stop six plus month season of vertigo, throwing up two three times per week, eyes not able to determine distance of walls, unable to gauge my steps, and constant ringing in my left ear. I went to NUMEROUS doctors appointments and received the same answer: everything looks fine; nothing is wrong. I was extremely disappointed with medical professionals. Finally, a neurologist associated my symptoms with past concussions. But my other doctors all told me the older neurologist did not provide a modern diagnosis. I finally took myself off of EVERY medication I was on, especially the cholesterol medication. I feel much better these days. However, I still don’t have proper answers.
Anti cholesterol meds can really mess people up. I've seen it first hand.
I have these symptoms, but I got them in a car wreck where I suffered a severe concussion. They are with me for life now. The neurologists got me to a certain point in the rehab then told me I was all good. I’m not all good. I’m just as good as they can get me, so they call it all good
This often happens to people within the vicinity of cell towers or having smart meters installed in their homes for electricity...microwaves.
I stumbled across this as someone that lives in New Brunswick
Love this scientist sending him strength prayers and love 🙏💛🙏💛
This makes me want to scream!!
😱
"Scientists are being muzzled, and anytime a scientist cannot speak freely, it's troubling. It seems like right now that they're managing this from a political lens, not from a scientific lens." Well, well, well. Doesn't that sound familiar. I wonder how many won't make the connection.
Not sure what you're on about? Scientists are muted by their agencies every day, for 1000 reasons, some good, most bad. Why the vagueness?
@@complimentary_voucher And there's the first one who couldn't make the connection.
This is such a great program, I enjoy 5th E! Glad you're here!
I am chiming in from the southern US.
For 11 years our great NB doctors can’t diagnosis what i have also.
If i was one of the sick in that town / area, the first thing i woukd do is MOVE AWAY FROM THERE.
DEMAND ACCOUNTABILITY NOW. PEOPLE BACK THESE PEOPLE UP. MAKE THE CALLS CONSISTANTLY UNTIL THEY STEP UP !
Solid journalism. 👍🏻🇩🇰🙋🏻♂️