What a Newly Diagnosed Patient Needs to Know
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- Опубликовано: 11 май 2021
- In this webinar, IMF Chairman of the Board Dr. Brian G.M. Durie explains that myeloma is treatable and requires baseline testing. He discusses important myeloma-related terms, how to assess treatment response, the role of triplet therapy, the pros and cons of undergoing an autologous stem cell transplant, the role of maintenance therapy, and the importance of caregivers. IMF Vice President of Support Groups Robin Tuohy provides guidance on how to navigate the IMF website and more.
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I have multiple myeloma and thank you for this information
Most welcome
Good day, my mother was just diagnosed yesterday and I am here trying to learn anything I can about Multiple Myeloma... How has it been for you so far to this point?
That was a wonderful presentation; the clarity of your delivery was comforting!
This was so helpful. Thank you for all you are doing.
Very useful, highly appreciated it gives very clear explanation,keep it on
It is very helpful. My husband recently has been diagnosed with myeloma
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Thank you for this thorough but succinct information. I am now MRD negative but struggling with Revlimed maintenance. I am 46. Diagnosed at 44.
Support group very important for patient and their partners as if it is really traumatic
How important is monitoring neutrophil levels in detecting progression from MGUS to Myeloma?
What is the percentage of people who have chosen NOT to get an SCT and have a long remission? I am 58 year old female almost at CR after 8 cycles of Daratumumab/dex and Pomalyst and I do not want to get an SCT. I am also considering stopping maintenance and doing no medications at all and wait and see what happens.
Hi Laura, thank you for your comment. If you have a question of a personal nature, please contact our InfoLine Coordinators at 800.452.2873 or email infoline@myeloma.org.
So does that mean many people die shortly after 7 years? Or what’s the overall life expectancy for a young person getting diagnosed at 33 years old?
No, the graph flattening out at the 7 year mark means that those who survived for 7 years are more likely to survive even longer.
My wife had a stem cell transplant at northwestern hospital in Chicago it did not work anyone even here of this protein is going up after 3 months 😑
hi there how are you . four months ago my blood test show more protein in the my blood test . and hematologist. took sample .and biopsy from my spine . and full blood test and full sonography and full s scan . he said my disease is m gus . and he didnt give me any medication. only said after 6 month another blood test and urine test . sometime toes pain and arm pain no to much i dont need pain killer . i am on the diet no more red meat. i eat 4 times a week fish & brown rice & tuna & more beans & lentils . brown bread & no sugar and more salad. i am non-alcohol & non smoker . please give me more information for help and what is best diet food
i am 61 years old men from australia country
thank you