We are glad this is helpful to you! We have even more updated webinars as well as many upcoming information events. Visit events.myeloma.org to see some of the in person or online workshops. Please reach out to us with your questions. Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at infoline@myeloma.org
Good day, my mother was just diagnosed yesterday and I am here trying to learn anything I can about Multiple Myeloma... How has it been for you so far to this point?
What is the percentage of people who have chosen NOT to get an SCT and have a long remission? I am 58 year old female almost at CR after 8 cycles of Daratumumab/dex and Pomalyst and I do not want to get an SCT. I am also considering stopping maintenance and doing no medications at all and wait and see what happens.
Hi Laura, thank you for your comment. If you have a question of a personal nature, please contact our InfoLine Coordinators at 800.452.2873 or email infoline@myeloma.org.
hi there how are you . four months ago my blood test show more protein in the my blood test . and hematologist. took sample .and biopsy from my spine . and full blood test and full sonography and full s scan . he said my disease is m gus . and he didnt give me any medication. only said after 6 month another blood test and urine test . sometime toes pain and arm pain no to much i dont need pain killer . i am on the diet no more red meat. i eat 4 times a week fish & brown rice & tuna & more beans & lentils . brown bread & no sugar and more salad. i am non-alcohol & non smoker . please give me more information for help and what is best diet food i am 61 years old men from australia country thank you
Hi now came across this site,very good information back then I got diagnosed I saw so shock, I never heard about the disease before
We are glad this is helpful to you! We have even more updated webinars as well as many upcoming information events. Visit events.myeloma.org to see some of the in person or online workshops. Please reach out to us with your questions. Our staff of information coordinators are here to assist you. Call us at 1-818-487-7455 or e-mail us at infoline@myeloma.org
I have multiple myeloma and thank you for this information
Most welcome
Good day, my mother was just diagnosed yesterday and I am here trying to learn anything I can about Multiple Myeloma... How has it been for you so far to this point?
How is she now@@mervincharles3095
@@mervincharles3095 how is she now
That was a wonderful presentation; the clarity of your delivery was comforting!
This was so helpful. Thank you for all you are doing.
Thank you for this thorough but succinct information. I am now MRD negative but struggling with Revlimed maintenance. I am 46. Diagnosed at 44.
It is very helpful. My husband recently has been diagnosed with myeloma
.
Very useful, highly appreciated it gives very clear explanation,keep it on
Support group very important for patient and their partners as if it is really traumatic
What is the percentage of people who have chosen NOT to get an SCT and have a long remission? I am 58 year old female almost at CR after 8 cycles of Daratumumab/dex and Pomalyst and I do not want to get an SCT. I am also considering stopping maintenance and doing no medications at all and wait and see what happens.
Hi Laura, thank you for your comment. If you have a question of a personal nature, please contact our InfoLine Coordinators at 800.452.2873 or email infoline@myeloma.org.
Did u do that?
How important is monitoring neutrophil levels in detecting progression from MGUS to Myeloma?
So does that mean many people die shortly after 7 years? Or what’s the overall life expectancy for a young person getting diagnosed at 33 years old?
No, the graph flattening out at the 7 year mark means that those who survived for 7 years are more likely to survive even longer.
hi there how are you . four months ago my blood test show more protein in the my blood test . and hematologist. took sample .and biopsy from my spine . and full blood test and full sonography and full s scan . he said my disease is m gus . and he didnt give me any medication. only said after 6 month another blood test and urine test . sometime toes pain and arm pain no to much i dont need pain killer . i am on the diet no more red meat. i eat 4 times a week fish & brown rice & tuna & more beans & lentils . brown bread & no sugar and more salad. i am non-alcohol & non smoker . please give me more information for help and what is best diet food
i am 61 years old men from australia country
thank you
My wife had a stem cell transplant at northwestern hospital in Chicago it did not work anyone even here of this protein is going up after 3 months 😑