Polymyalgia Rheumatica | Signs and Symptoms of PMR

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  • Опубликовано: 10 дек 2024

Комментарии • 101

  • @miriammanolov9135
    @miriammanolov9135 Год назад +26

    I'm 44 years old female very fair skinned from the middle east with multiple injuries over the years and work in the medical field. I was just diagnosed with PMR (based on signs, symptoms, and bloodwork... along with seeing Neurologist, Pain Specialist, Orthopedic, Cardiologist, PT, Psychiatry, and PCP !!) It took 5 years to figure out what was going on with my pain and stiffness. Not until I saw the Rheumatologist that I finally got the treatment (which I decided to do that myself since one doctor decided that it was Fibromyalgia because he couldn't decide what was wrong with me !) Too late, I had to go on disability because of my pain..and after 20 years in the medical field, I'm done with healthcare system altogether!

    • @mosaabmubarak238
      @mosaabmubarak238 Год назад +2

      hello im from jordan middle east, I have chronic problem since 5 years stiffness back neck hip and joints pain its long story no one can figure out what wrong.. can contact you plz

    • @megcormack681
      @megcormack681 6 месяцев назад +2

      I think women most likely have had this more likely for at least 10 years prior to diagnosis. They are ignored

    • @AkingBones1
      @AkingBones1 5 месяцев назад +3

      I feel your pain, I've given up with my doctors too , absolutely clueless...

    • @ralanden
      @ralanden 5 месяцев назад +1

      Fibro is a wastebin diagnosis!

    • @miriammanolov9135
      @miriammanolov9135 5 месяцев назад +1

      @ralanden
      Yup... it's their way of saying "nothing we can do !" But my Rheumatologist said "Bull S@#$%" and performed multiple tests and found out what was going on. I have been finally on methotrexate for about 6 months now, and finally seeing some improvements with my blood work. I'm still not out of the woods yet, but working on it daily: walking, water Aerobics, healthier diet, rest as needed, and light and some weight lifting as I can tolerate daily.

  • @brucejones8047
    @brucejones8047 4 месяца назад +3

    PMR is kicking my behind rite now. Doc is starting with this diagnosis in order to rule out other causes. Yesterday , I received Pred shots in both shoulders and started on a 3 week oral pred Rx.

  • @alangardner8596
    @alangardner8596 Год назад +12

    My PMR was cured when I stopped taking steroids and concentrated kn curing a leaky gut by changing my diet and avoiding things like vegetable oils, sugar and ultra-processed foods.
    I also began using olive oil and avoiding food containing lectins.
    I'm fine now but had 2 years of hell.

    • @ClinicalPhysio
      @ClinicalPhysio  Год назад +2

      Really pleased to hear that you are doing well Alan!

  • @Richie07a1
    @Richie07a1 2 месяца назад +3

    I'm a 77 year old man who has high praise to my doctor who figured this out immediately and put me on steroids. I am currently on a low dose of prednisone, which has made me relatively pain-free. Never even heard of PMR before.

    • @colettedevine6753
      @colettedevine6753 2 месяца назад

      Qmm😊😮

    • @colettedevine6753
      @colettedevine6753 2 месяца назад

      8th 😊😊😊😊😊😊😊in a great ⁸⁸😊

    • @gallen2101
      @gallen2101 Месяц назад +2

      You are indeed lucky!!! It took 12 years for me, and I was close to giving up ( taking my life) I found a doctor who finally listened

  • @mariekatherine5238
    @mariekatherine5238 Год назад +6

    I know you are not supposed to consult Dr. Google lest you have every disease you read about.....BUT........I think I have this PMR and will be consulting my GP about it. I have all the symptoms, bilateral shoulder pain, trunk pain, fatigue, waking at night from pain, morning stiffness for a good hour, more when my drive to work is longer and I’m stuck sitting in one place, age 67, female, have been told I may have fibromyalgia, etc. My father had the same symptoms as do a sister, age 64, and a brother, age 70. I recall great grandma having pain in her shoulders so that she couldn’t pick up or carry laundry baskets or the baby. (She was afraid she’d drop him.) I will also get checked for giant cell arteritis as I have a heart murmur. There are also other autoimmune diseases in my extended family, RA, MS, and lupus.

  • @dr.jesusbetolima
    @dr.jesusbetolima Год назад +5

    thank you for sharing this video, you are a blessing !

  • @MightyAries66
    @MightyAries66 7 месяцев назад +3

    My mum has been referred to a rheumatologist for sudden unknown pain to rule out PMR . Pain first started in thighs the moved to shoulders R>L unable to lower lift upper extremities above head. R shoulder is slightly swollen. Pain also in groin area but again worse in R shoulder area. Pain sometimes awakens her at night and almost unbearable when attempting to get out of bed to use bathroom. Steroids were recommended but she has had bad side effects. She is changing her diet to anti inflammatory foods and avoiding food high in oxalates. Awaiting lab results to see if inflammatory markers are elevated

    • @ClinicalPhysio
      @ClinicalPhysio  6 месяцев назад

      Wishing you both all the best 🙏🏼

  • @rdgarcia6081
    @rdgarcia6081 2 месяца назад

    I now have two autoimmune disease, PMR and Ulcerative colitis. Now for the past 8 months I have headaches that don't go away with other facial pain. I'm just waiting for my next DR visit to tell him more on the headaches and dizziness that is worse now.

  • @philipjones535
    @philipjones535 7 месяцев назад +3

    This video matches my condition to the T but i cant get a positive diagnosis because i don't have any inflammatory markers in my blood work. I read that some people don't show markers but none of the doctors I have seen believe that.

    • @ClinicalPhysio
      @ClinicalPhysio  7 месяцев назад +1

      So sorry to hear that - and wishing you all the very best 🙏🏼

    • @awf6554
      @awf6554 2 месяца назад

      I had a bout of PMR and my bloods were through the roof. It settled after taking steroids for a while. It's now come back, but no blood indicators this time. It seems to vary.

  • @JenMarco
    @JenMarco 2 месяца назад +1

    My mom had it and was put on prednisone and her weight doubled. She had moon face. She went into depression. That’s the last treatment you want to try. Diet change should be the first thing to try. You’re probably eating something that is causing it. Stop eating packaged foods for one month. It’s hard to do but will probably cure it. Find out if you have any nutritional deficiencies that need supplements. Have a food sensitivity test done and cut those foods out for a month and slowly reintroduce.

  • @gayle5049
    @gayle5049 Год назад +4

    I have PMR. My blood tests gave me my diagnosis. Stiff morning pain is not enough for a dìagnosis.

    • @ClinicalPhysio
      @ClinicalPhysio  Год назад +1

      Hi Gayle, yes certainly I agree, just one symptom by itself not enough

  • @SP-os9pf
    @SP-os9pf Год назад +9

    Im 41 and test to be firmally diagnosed but the last thing i want to take is steroids, especially at my age.. Are there less drastic alternatives or more holistoc approached to treatment available?

    • @AndersAylward
      @AndersAylward Год назад +6

      Auto-inflammatory diseases are almost always affected by diet. Consider an allergen panel test and reducing toxins and inflammation causing foods and beverages, such as soda, alcohol, processed foods, and things high in sugar

    • @kandacepatterson7965
      @kandacepatterson7965 Год назад +1

      ​@@AndersAylwardyour wrong

    • @AndersAylward
      @AndersAylward Год назад

      @@kandacepatterson7965 if you can't get basic English right I don't want you to share your opinion concerning medical advice

    • @ralanden
      @ralanden 5 месяцев назад +4

      Taking steroids for a finite period is better than suffering imho

    • @topbuilder3790
      @topbuilder3790 3 месяца назад +3

      @@ralanden Do both?. Ease symptoms but also change your diet to see if you can get off the Predisone.

  • @chrisjofamuk
    @chrisjofamuk Год назад +3

    Thank you for all your videos. Well presented and on point all of them are👍

  • @maril1379
    @maril1379 Год назад +3

    Thanks very helpful

  • @rasikarane02
    @rasikarane02 2 года назад +4

    Omg it’s like you read my mind.. today I was thinking of pinging you to suggest if you could do video on PMR 😅 Spooky but thank you x

  • @janetmoreton4607
    @janetmoreton4607 Год назад +8

    I was lucky. I described my symptoms to my G P and she diagnosed it right away and prescribed a steroid.

    • @ClinicalPhysio
      @ClinicalPhysio  Год назад +1

      Very pleased to hear you had help Janet!

    • @lornaheron7825
      @lornaheron7825 Год назад +1

      Hi how are you doing now, first day on steriods today trying for a week but really dont want to be on steriods as dont want weight gain as just lost weight

    • @janetmoreton4607
      @janetmoreton4607 Год назад +3

      Hi. I have been on steroids for over a year. I put on weight and did not want to become reliant on them so weaned myself off them twice. However on both occasions the pain came back so had to go back on them. You have to be very careful and should realy only come off them on advice from a doctor. I went down one milligram a week to let my body adjust.

    • @gallen2101
      @gallen2101 Месяц назад

      Wowwww u were!!!

    • @gallen2101
      @gallen2101 Месяц назад

      ​@janetmoreton4607 I tried weaning but it came back with a vengeance

  • @gloryeseh969
    @gloryeseh969 6 месяцев назад +1

    Hello , do you have a clinic. I think my cousin is going through this. A male, in his 30s. But he's not getting the attention he needs in his location which is Italy.

  • @yomama8873
    @yomama8873 Год назад +2

    Thank you 🤩🤩💖

  • @margaretroberts4564
    @margaretroberts4564 7 месяцев назад +2

    Can you still have poly myalgia even though your blood test come back normal

  • @crozwayne
    @crozwayne Год назад +5

    I'm 63, white male, of good health and 2 years ago, a week after I had the second AZ cov19 vaccine, I went down with this. 2 years on and I am still on predisolone ! Arrgghhh I know it is not a life ending disease, I hate this condition!

  • @stephanie-roseart9440
    @stephanie-roseart9440 Год назад +2

    I’m 31 and have PMR, No family history :’(

  • @665molloy
    @665molloy Год назад +2

    I’m 39 and have been diagnosed

  • @Sanchej0000
    @Sanchej0000 9 месяцев назад +1

    Is there a lab test to confirm PMR?

    • @ClinicalPhysio
      @ClinicalPhysio  9 месяцев назад +1

      Absolutely, various blood tests can be considered as a collection e.g. ESR, CRP, Rheumatoid factor

  • @Wimsa43
    @Wimsa43 5 месяцев назад

    Im on my 11th year with PMR. On 5 mg and flare 2-3 times a year.

  • @tomtom8306
    @tomtom8306 Год назад +3

    I got PMR after my Covid vaccine in 2021. The symptoms were swelling of my feet,hands and neck. I went to my doctor and got steroids which relieved the swelling and burning sensation. But the severe depression that followed was the worst I ever experienced.

    • @ClinicalPhysio
      @ClinicalPhysio  Год назад

      So sorry to hear that and really hope you are doing ok now 🙏🏼

    • @julianavillanueva7385
      @julianavillanueva7385 11 месяцев назад +3

      i got PMR while i had covid .... the pain was awful! I also became agitated and depressed.

  • @sheela8076
    @sheela8076 Год назад

    What is the blood test to diagnose PMR?

    • @ClinicalPhysio
      @ClinicalPhysio  Год назад +3

      ESR, CRP, Rheumatoid factor may all be used to consider it

  • @AndersAylward
    @AndersAylward Год назад +3

    Im betting diet and environmental toxicity plays a heavy role in the development of PMR

    • @ClinicalPhysio
      @ClinicalPhysio  Год назад

      Perhaps it may do 🙏🏼

    • @kandacepatterson7965
      @kandacepatterson7965 Год назад +1

      Then why does it come on suddenly at age 70?

    • @AndersAylward
      @AndersAylward Год назад

      @@kandacepatterson7965 Prolonged sustainment of Leaky Gut Syndrome and continual damage from other inflammatory factors builds up and damages tissues, leaks fecal particulate into the blood. The average diet of westerners, or Americans more specifically, is filthy, full of substances known to be carcinogenic or worse. The body can only endure so much

    • @agvision09
      @agvision09 7 месяцев назад

      SO is trauma. I lost my son 6 month ago, 3 months later I got this even though my body inflammation was min.

  • @liddletoes
    @liddletoes Год назад +2

    The Carnivore diet fixed my PMR that I had5 yrs! Don't take my word for it, try it for yourself!

    • @ClinicalPhysio
      @ClinicalPhysio  Год назад +1

      Hope you are doing well now!

    • @sherryblatt4459
      @sherryblatt4459 6 месяцев назад +1

      What exactly is the carnivore diet? What do you eat??

  • @marciashaull2814
    @marciashaull2814 6 месяцев назад +1

    Sounds like my symptoms.

    • @ClinicalPhysio
      @ClinicalPhysio  6 месяцев назад

      Wishing you all the very best 🙏🏼

  • @tinachandler3091
    @tinachandler3091 Год назад

    I think I have this but I can’t see a doctor until January. My stupid job will fire me

  • @Roxyismyfavoritedog
    @Roxyismyfavoritedog Год назад +3

    Better managed by a rheumatologist vs pcp

  • @lextrombas
    @lextrombas Год назад +2

    No indication of how long it lasts?

    • @ClinicalPhysio
      @ClinicalPhysio  Год назад +1

      This wholeheartedly depends on speed and success of treatment. If you look online, sources will suggest from a few days to a few years depending on how quickly someone is able to be diagnosed and receive treatment… naturally this is a very unhelpful time frame, so if you are concerned about yourself I would certainly liaise with your Dr and see if you can be assessed

    • @lextrombas
      @lextrombas Год назад +1

      @Clinical Physio Thank you. Yes I have PMR and am on long term treatment programme with steroids. I'm probably looking at some time as my mother suffered for 2 years...

    • @wallyperson1
      @wallyperson1 Год назад +6

      My sister had this condition for 3 years, on steroid treatment and then magically she woke up after the 3 years and it was gone.

    • @lextrombas
      @lextrombas Год назад +2

      @wallyperson1 I would quite happily stay on steroids except they affect my diabetes and I now have very high blood pressure. Suddenly. I've have nevered suffered from high blood pressure. I'm trying to wean myself to a lesser dose (with the doctors) to see if it helps. My mother also had it for about 3 years.

    • @sherryblatt4459
      @sherryblatt4459 7 месяцев назад

      @@lextrombassame here!!

  • @jean-baptistemuller8248
    @jean-baptistemuller8248 2 года назад +3

    Why don't you talk about ketogenic diet and its improvement on rheumatic diseases?

    • @ClinicalPhysio
      @ClinicalPhysio  2 года назад +4

      Hi! I’m afraid I am not a dietician or nutritionist and so do not have specialist knowledge in this area!

    • @jean-baptistemuller8248
      @jean-baptistemuller8248 2 года назад +2

      @@ClinicalPhysio I agree, but you are an open minded and clever Physio who read studies. So I think there is a lot to learn in studies about ketogenesis and inflammation. Don't you think so? Seeing health without considering nutrition and sleep quality is not optimal.

    • @ClinicalPhysio
      @ClinicalPhysio  2 года назад +8

      @@jean-baptistemuller8248 Certainly! But I am certainly also not in a position to give advice about this even if I did read on the subject!

    • @uDrPeppehr
      @uDrPeppehr Год назад +3

      @@jean-baptistemuller8248keto isn’t better than any other diet

  • @GoBillGatesDE_POP_U_LATE
    @GoBillGatesDE_POP_U_LATE 6 месяцев назад +2

    Seems like it's happening to the young now. I think mine started early 40s with mild neck should tension when I woke thinking I slept wrong or my pillow was the culprit. Had lower back pain and hip pain while sleeping. Weakness and fatigue. What bothered me most was that. Thigh weakness. I think the sun or covid jab is causing it now. I found excedrin and not sure which is helping me alot , the curcumin with boswella or ashawandga but with those herbs I don't have to take excedrin anymore.