🤣🤣yes, write them down (I’m lol😂😂 at myself) Next you forget where you put the notes. And worsening symptoms…you’ve forgotten you wrote a note. 😂😂 laugh at this crap…so we don’t cry.
I'm sickened by all of this, as I clearly had lupus when I came in the hospital in tears at 15, 23.5 years ago, and any doctor with half a heart or sense would have had me tested and checked for autoimmune issues, as my skin was burning and couldn't even wear my school shirts, I couldn't go outside in the sun without pain and couldn't see, on and on, the whole darn list and then some, and it's only gotten worse over the years. But "I was too young to be sick" and instead sent to phychiatry and told I was "depressed and anxious as well as agoraphobia" they ruined my life. All because I had no parents thar cared about me to fight for me and stand up for me and left to "trust" the random doctors those days. My God with what I know now, I have some of the most severe lupus/autoimmune disease in general I've seen from a myriad of people's stories now. How can they do that to a child? I trusted them? I'm now 38 and have SUFFERED and thought I was a FREAK, hiding in bathrooms with burning skin and chest pain, ugly sores and rashes all over my body, my eyes began going and now are so bad, seizures and my gosh so much pain, and confusion/brain fog, lethargy....headaches.. How can one just be told they are mentally ill, when it's not true....and have all symptoms of complaint to be physical yet be thrown on dangerous psych meds. I didn't even know what lupus was until finding people online and realizing their stories were mirrors of me and learning my mother who was nowhere had autoimmune issues and my "father" arthritis and psoriasis and so on. I've been so sick...and had to go on disability by 30 and seeing what's so clear now and how it could have been avoided or better quality of life and now 38, 23 years later I don't even know what to say or think. I have been crying and my virtual doctor brought this up over COVID and I thought nothing of it. I've thought I was a freak and "crazy" ...lazy... I'm a sweetheart of a man, never hurt a soul and feel so let down and have nothing in life as I've been too sick to do anything of note after things fell off a cliff after 30 and I couldn't even fight the flares and confusion and myriad of 18-20 rotating symptoms.. Not to mention the awful mental health meds I was wrongly given....that made me worse and they would just give me more and more and same result until I refused anymore after 10 years or so. I don't get this. I'm nobody and I can see clearly this is something that should have been looked into for me and never was, and noone is held accountable. My abusive parents that would tell me I was lazy or a let down, and didn't care I was suffering or wanted to listen to me qndnin fact I became scared to even speak up and suffered in silence eventually. I now see many are dismissed when it comes to this. I can't understand and I don't know what to do this feeling is painful. How can it be possible.
Hi Jason, I’m very sorry you are suffering. I know that kind of torture we experience. Your story seems all too common. My symptoms also began in Elementary School with Asthma, one symptom at a time added on,and like a roiling stone gathers momentum rolling down hill the symptoms added Year by year. Now 57, totally disabled, wheel chair and (often bedbound, going blind, Autonomic Dysfunction, psych & blood clotting problems…I think I forgot another big life altering symptom, but I can’t remember right now. Like you, many docs over the years and no one to realized and/or connect the dots. Jason, like you, treatment has been delayed by decades and I’m in U.S. My very first legitimate treatment will begin with Rutuximab infusions in a couple of weeks. I came across a new YT channel you may like, “Man with Lupus”. He stared about a month ago. I’m sending you love and wishes for more comfort and improvement in symptom management. Peace.
@@ladeek35 friend forgive me if I ever do not respond to anyone kind enough to reply to my often nonsensical sounding, oft surely looked at as manic and either looking for pity or seeming like I am somehow worse off then someone else or "deserve" better, posts. As I often make them when I'm truly suicidal and I don't say that as a joke or as something I am proud of, it's sad and it hurts, one thing I am above all else is honest and while sometimes too honest and still learning in a world that's truly led me astray so badly that at nearly 39 I'm just now beginning to understand how, what and why some things have occured in my life, how much of it was lies or just greed that I was blind to, or simply national crisis of curriculum that imbeds honest to God lies, in sometimes very...very vulnerable children whom as in my and many other cases start off "well behind the pack", be it lack of family, friends, health issues, abuse, trauma, poverty, genetic issues, and so on. I truly believe anything I say will be judged wrongly as I sadly understand the internet a bit now, and it's much like real life, but often harsher as people will say things behind a keyboard that they wouldn't in real life, which...is scary, as often they don't even realize that their words, often misguided and maybe from misplaced anger, maybe misinterpreting a strangers words, or maybe just for enjoyment or fun to hurt others, that it truly can cause a person on the edge to have a shove that just enough to make them end things in a rash way that isn't well thought out in a moment of weakness. So my point is, I often avoid even looking at responses out of fear...fear as a nearly 39 year old male...human being. As honestly when I do these types of things, it's ONLY to try my best to put things into words that I can't understand myself, and might never, but am getting better with, in hopes someone young will maybe see it, maybe have something similar and maybe save their life. I've had people say I'm looking for pity or handouts. Look up my social media. I have a Facebook I think and maybe Instagram but 0 followers on that and 6 or 7 on a Facebook I've had 13 years or so, as I had once 300 or so, but purposely I deleted everyone after I lost my child and I knew my health situation clearer, I knew I was beginning to speak out and was angry for the first time in my life and confused, and that people who either knew me some when I was in my home state from birth till I moved to Florida in 2012, and subsequently back in 2019 with my beautiful child as we ran for our lives with child services and police advice, emaciated and on the brink of passing due to so much abuse, so much pain, so little kindness, empathy or love from not just strangers as far as the system I was raised to believe was just; including the health professionals who I've learned now after 25 years and now 4 serious tries with providers who have taken the time to listen to my story and either told me what I wanted to hear after I was abused and without family to guide me, entering a hospital at 14 and thinking they would treat me with respect and honesty, naive to the processes proper for issues like my own, compared to other countries, other providers, rich or poor status, healthcare, skin color, age, look...all of it. As it...all matters. Even your state and it's "color" of red or blue? As it all truly matters.
I drove 1200 miles at age 28 as someone who never left Ohio, to me it was like leaving earth. But I just... I wanted to make a difference in the world, break the chain of suffering in my "family", and maybe the USA had better humans and situations, and in was just "unlucky"...no. 10 years later I know know, I am willing to bet every country has some deciet and corruption, some dangerous, confused and desperate people. But in these past 3.7 years I've researched, reached out to others in countries with similar diseases on forums like reddit, truly dug into the core of what I believe is the most corrupt and dangerous place in the world. Of the "top" 20 nations at least. And my findings have brought me to go from feeling "crazy" as a "psychiatrist" once diagnosed me with generic designations based on a 30 minute session, after losing my family, and suffering physically from years of medical malpractice, myriads of pain from disease both diagnosed* and not internally and PHYSICALLY, as well as physical and psychological abuse and injustice that would make any "normal" person, "depressed", or "anxious" , "cptsd", or this or that. Anything to write some pills and shit you up as cheap and quick as possible. Disgusting... So as I try to finish my thoughts and if I haven't lost you or anyone who finds this yet. Understand I am not trying to convince anyone of anything, I am nothing and noone. My experiences and life and findings may not concur with yours. But I ONLY speak if I have concrete facts and although 39 years passed before I could force myself to believe things could be so truly bad, so..wrong...I can't write without crying and shaking. I'm willing to talk to anyone , video etc, see if you think I'm bad or "nuts", or if I make sense.
8 was diagnosed with systemic lupus erythematosus & lupus nephritis… God Almighty still continues to fight for me🙏🏾🙏🏾🙏🏾.SLE has caused other multiple diagnosis .. I’m grateful… yr video made a lot of sense & I think that I also started having brain fog” …
Thyroid Problems It is believed that about 6% of people with lupus have hypothyroidism (underactive thyroid) and about 1% have hyperthyroidism (overactive thyroid). A thyroid gland that is functioning improperly can affect the function of organs such as the brain, heart, kidneys, liver, and skin. As a retired nurse and lupus patient- I can vouch for the addition of Vit D to your nutrition regimen. My endocrinologist tests this level for me and advocated higher dose of Vitamin D, protein, and B& C vitamins.
I have hypothyroidism… am doing a lot of research on sle for my brother who had a positive ana (and is positively diagnosed with schizophrenia… im thinking its nsle)… also… my doctor has told me to take more vitamin d… now im worried… should i take ana?
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
@@Gypsygirl9 Yes, lupus symptoms are unpredictable and different from one patient to another! Insomnia at night and narcolepsy during daytime for me is the worst symptom cause It effects my career which I need cause I’m independent and don’t have a family to support me!
I been living with lupus for more then ten years So I just recently released form the hospital do to serve dehydration and they did an MRI and found white brains lesions I suffer from brain fog
I just went through the same thing. They did not know what to classify my problems to besides the low platelet count, low volume, dehydration and a total whacked out CBC with platelets and my metabolic panel. In the end, they guessed Vasovagal Syncope.....But I was out for 20 min with my eyes open. And they were considering TIA due to my chronic white matter. Good Luck!
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
I am going through the same. In 2005 I had an mri. It showed there were 6 white lesions on my brain. I also suffer very bad migraines. They gave me 6 different conditions that cause it. Lupus is one of them. Before 2005, In 2003, I was on my computer and I just blacked out. I woke up and got myself to bed. I woke up 4 hours later. I felt fine then. Just weak. After awhile I was getting numbness on my left side and my head felt weird. Kinda numb. It happened a few times off and on. I went to see my doctor and explained it all. She ordered every test. Xrays, mris, blood tests. Urine etc. Its from your migraines they tell me even though they have my mri results showing the white lesions. So this went on back and forth until 2017 when I suffered a stroke. I was taken to the hospital and treated for the stroke. I was paralyzed from the tip of my toes to the top of my head. I was disoriented, couldnt get the words out to my boyfriend. He took me in asap. It cleared with meds they put in my iv. After that my falls got worse etc. Im then told its white matters disease, now they say its cadasil. Blood and skin biopsy are negative. Now looking into Lupus. I think its Lupus to. Very bad sweats. I have it all. Im suffereing bigtime with dehydration to. Prayers to you.
Yes ma’am I’ve been having brain attacks for years too and seizures and I was having a seizure one night and the next night I end up having a stroke I end up in the hospital and they could not find out what was wrong with me but when I look back at my problem with celiac and adrenal and thyroid problems as my doctor told me years ago that I could end up with lupus I have not had a test run on me yet but I’m almost positive I have that I have all the symptoms and you are describing me and I haven’t heard any other people having the same symptoms as me except for a few that has lupus where I feel like I have inflammation in my brain and it is attacking my brain
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
That brain 🧠 fog is terrible and annoying I been getting it alot lately, I been having burning sensations with tingling and numbness in both legs with weird eye pain with some blurred vision, I have blackouts sometimes where I go paralyzed until the inflammation goes down, my new neurologist told me that it's not no surprise and is not uncommon for lupus to do things like that, he's going to run test on me to see if I have any lesions in the brain and spine. I run high fevers with headaches off and on every day just about with body aches and extreme fatigue. My lungs hurt with short winded feelings.
@@happyphotoshooter My parathyroid level is high. Doctors are just watching it to see what happens. Is calcium and vitamins D treatment options? I'm lost and confused!!
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
I am having the same issues with my brain now .I have had Lupus since I was 27 I am now 50 I get a lot of headaches as well as smelling smoke all the time . This really drives me crazy . The meds don't seem to be working for me . I don't know what else to do anymore
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
I have got vertigo so often on these medications, not sure which one of the medication, but since I'm on prednisone and methotrexate I have noticed I have been having vertigo, one of my vertigo episode last for almost 1 month.. oh my God it was a horrible experience,, can't move to do nothing, just have to stay in one position on my back..
I know this will receive criticism; however my feedback is solely constructive. I am currently hospitalized, and scouring new research and information regarding Lupus. While I can immediately tell that you have credible and helpful information; I am unable to listen to your entire presentation - it's kind of like running nails across a chalk board - especially while I am on meds, lol. I humbly recommend that you take some speaking classes. It will help you with your verbal ticks and regional colloquialisms and distracting speech patterns. It is extremely difficult to take such critical information from a professional who continues to speak like a "valley girl." I learned the hard way myself, its hard to hear that you need to improve professionally - if one can accept constructive criticism, growth is unlimited. Though your information is excellent, you presentation needs some professional touch up. Thank you for all you are doing. Please hang in there - you're doing great work!
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
At least 30% of lupus patients have some sort of mental health difficulties associated with their lupus. I am a lupus patient as well as being a retired nurse. I have the 5th edition of “Dubois' Lupus Erythematosus”. This work explores the history, aetiology, pathogenesis, clinical manifestations and treatment of systemic, cutaneous and drug-induced lupus. It contains extensive material on the basic science aspects of this disease, with information on cellular and humeral immunity, autoantibodies, and the lupus anticoagulant.
I thought you are going to tell us Lupus and the brain 🧠 How come you drag and drag along not touching on to the subject. It’s a waste of time. Fortunately there are others giving us infos.
It's crazy having to write things down that I wouldn't think that I would forget
🤣🤣yes, write them down (I’m lol😂😂 at myself)
Next you forget where you put the notes.
And worsening symptoms…you’ve forgotten you wrote a note. 😂😂 laugh at this crap…so we don’t cry.
I'm sickened by all of this, as I clearly had lupus when I came in the hospital in tears at 15, 23.5 years ago, and any doctor with half a heart or sense would have had me tested and checked for autoimmune issues, as my skin was burning and couldn't even wear my school shirts, I couldn't go outside in the sun without pain and couldn't see, on and on, the whole darn list and then some, and it's only gotten worse over the years. But "I was too young to be sick" and instead sent to phychiatry and told I was "depressed and anxious as well as agoraphobia" they ruined my life.
All because I had no parents thar cared about me to fight for me and stand up for me and left to "trust" the random doctors those days.
My God with what I know now, I have some of the most severe lupus/autoimmune disease in general I've seen from a myriad of people's stories now.
How can they do that to a child?
I trusted them?
I'm now 38 and have SUFFERED and thought I was a FREAK, hiding in bathrooms with burning skin and chest pain, ugly sores and rashes all over my body, my eyes began going and now are so bad, seizures and my gosh so much pain, and confusion/brain fog, lethargy....headaches..
How can one just be told they are mentally ill, when it's not true....and have all symptoms of complaint to be physical yet be thrown on dangerous psych meds.
I didn't even know what lupus was until finding people online and realizing their stories were mirrors of me and learning my mother who was nowhere had autoimmune issues and my "father" arthritis and psoriasis and so on.
I've been so sick...and had to go on disability by 30 and seeing what's so clear now and how it could have been avoided or better quality of life and now 38, 23 years later I don't even know what to say or think.
I have been crying and my virtual doctor brought this up over COVID and I thought nothing of it. I've thought I was a freak and "crazy" ...lazy...
I'm a sweetheart of a man, never hurt a soul and feel so let down and have nothing in life as I've been too sick to do anything of note after things fell off a cliff after 30 and I couldn't even fight the flares and confusion and myriad of 18-20 rotating symptoms..
Not to mention the awful mental health meds I was wrongly given....that made me worse and they would just give me more and more and same result until I refused anymore after 10 years or so.
I don't get this. I'm nobody and I can see clearly this is something that should have been looked into for me and never was, and noone is held accountable.
My abusive parents that would tell me I was lazy or a let down, and didn't care I was suffering or wanted to listen to me qndnin fact I became scared to even speak up and suffered in silence eventually.
I now see many are dismissed when it comes to this. I can't understand and I don't know what to do this feeling is painful. How can it be possible.
My heart goes out to u Jason.. Im praying for u hoping u go into remmission then completely healed🤗🙏
Thank you for sharing this Jason. 🙏
Hi Jason,
I’m very sorry you are suffering. I know that kind of torture we experience. Your story seems all too common. My symptoms also began in Elementary School with Asthma, one symptom at a time added on,and like a roiling stone gathers momentum rolling down hill the symptoms added Year by year. Now 57, totally disabled, wheel chair and (often bedbound, going blind, Autonomic Dysfunction, psych & blood clotting problems…I think I forgot another big life altering symptom, but I can’t remember right now. Like you, many docs over the years and no one to realized and/or connect the dots. Jason, like you, treatment has been delayed by decades and I’m in U.S. My very first legitimate treatment will begin with Rutuximab infusions in a couple of weeks. I came across a new YT channel you may like, “Man with Lupus”. He stared about a month ago.
I’m sending you love and wishes for more comfort and improvement in symptom management.
Peace.
@@ladeek35 friend forgive me if I ever do not respond to anyone kind enough to reply to my often nonsensical sounding, oft surely looked at as manic and either looking for pity or seeming like I am somehow worse off then someone else or "deserve" better, posts. As I often make them when I'm truly suicidal and I don't say that as a joke or as something I am proud of, it's sad and it hurts, one thing I am above all else is honest and while sometimes too honest and still learning in a world that's truly led me astray so badly that at nearly 39 I'm just now beginning to understand how, what and why some things have occured in my life, how much of it was lies or just greed that I was blind to, or simply national crisis of curriculum that imbeds honest to God lies, in sometimes very...very vulnerable children whom as in my and many other cases start off "well behind the pack", be it lack of family, friends, health issues, abuse, trauma, poverty, genetic issues, and so on.
I truly believe anything I say will be judged wrongly as I sadly understand the internet a bit now, and it's much like real life, but often harsher as people will say things behind a keyboard that they wouldn't in real life, which...is scary, as often they don't even realize that their words, often misguided and maybe from misplaced anger, maybe misinterpreting a strangers words, or maybe just for enjoyment or fun to hurt others, that it truly can cause a person on the edge to have a shove that just enough to make them end things in a rash way that isn't well thought out in a moment of weakness.
So my point is, I often avoid even looking at responses out of fear...fear as a nearly 39 year old male...human being. As honestly when I do these types of things, it's ONLY to try my best to put things into words that I can't understand myself, and might never, but am getting better with, in hopes someone young will maybe see it, maybe have something similar and maybe save their life.
I've had people say I'm looking for pity or handouts. Look up my social media. I have a Facebook I think and maybe Instagram but 0 followers on that and 6 or 7 on a Facebook I've had 13 years or so, as I had once 300 or so, but purposely I deleted everyone after I lost my child and I knew my health situation clearer, I knew I was beginning to speak out and was angry for the first time in my life and confused, and that people who either knew me some when I was in my home state from birth till I moved to Florida in 2012, and subsequently back in 2019 with my beautiful child as we ran for our lives with child services and police advice, emaciated and on the brink of passing due to so much abuse, so much pain, so little kindness, empathy or love from not just strangers as far as the system I was raised to believe was just; including the health professionals who I've learned now after 25 years and now 4 serious tries with providers who have taken the time to listen to my story and either told me what I wanted to hear after I was abused and without family to guide me, entering a hospital at 14 and thinking they would treat me with respect and honesty, naive to the processes proper for issues like my own, compared to other countries, other providers, rich or poor status, healthcare, skin color, age, look...all of it. As it...all matters. Even your state and it's "color" of red or blue? As it all truly matters.
I drove 1200 miles at age 28 as someone who never left Ohio, to me it was like leaving earth. But I just... I wanted to make a difference in the world, break the chain of suffering in my "family", and maybe the USA had better humans and situations, and in was just "unlucky"...no. 10 years later I know know, I am willing to bet every country has some deciet and corruption, some dangerous, confused and desperate people. But in these past 3.7 years I've researched, reached out to others in countries with similar diseases on forums like reddit, truly dug into the core of what I believe is the most corrupt and dangerous place in the world. Of the "top" 20 nations at least. And my findings have brought me to go from feeling "crazy" as a "psychiatrist" once diagnosed me with generic designations based on a 30 minute session, after losing my family, and suffering physically from years of medical malpractice, myriads of pain from disease both diagnosed* and not internally and PHYSICALLY, as well as physical and psychological abuse and injustice that would make any "normal" person, "depressed", or "anxious" , "cptsd", or this or that. Anything to write some pills and shit you up as cheap and quick as possible. Disgusting...
So as I try to finish my thoughts and if I haven't lost you or anyone who finds this yet. Understand I am not trying to convince anyone of anything, I am nothing and noone. My experiences and life and findings may not concur with yours. But I ONLY speak if I have concrete facts and although 39 years passed before I could force myself to believe things could be so truly bad, so..wrong...I can't write without crying and shaking. I'm willing to talk to anyone , video etc, see if you think I'm bad or "nuts", or if I make sense.
During a severe flare, i become mistrustful and suspicious. I wish that was addressed as much as cognitive functions.
8 was diagnosed with systemic lupus erythematosus & lupus nephritis… God Almighty still continues to fight for me🙏🏾🙏🏾🙏🏾.SLE has caused other multiple diagnosis .. I’m grateful… yr video made a lot of sense & I think that I also started having brain fog” …
Thyroid Problems
It is believed that about 6% of people with lupus have hypothyroidism (underactive thyroid) and about 1% have hyperthyroidism (overactive thyroid). A thyroid gland that is functioning improperly can affect the function of organs such as the brain, heart, kidneys, liver, and skin. As a retired nurse and lupus patient- I can vouch for the addition of Vit D to your nutrition regimen. My endocrinologist tests this level for me and advocated higher dose of Vitamin D, protein, and B& C vitamins.
I am just getting diagnosed with lupus and Hashimotos. 😢
@Yuli me too!
I have hypothyroidism… am doing a lot of research on sle for my brother who had a positive ana (and is positively diagnosed with schizophrenia… im thinking its nsle)… also… my doctor has told me to take more vitamin d… now im worried… should i take ana?
I am from a Caribbean island have lupus and do have brain fog i forget about things I am about to say.hope it doesn't get worse.
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
You aren’t alone, Geneva. This has started happening to me after having been diagnosed with lupus 6 years ago.
Brain fog, severe migraine, depression, insomnia and narcolepsy… and the neurologist told me it’s irrelevant I’m just stressed out from work !!!!!
Omg..but if you have Narcolepsy that's the opposite of insomnia, right?
@@Gypsygirl9 Yes, lupus symptoms are unpredictable and different from one patient to another! Insomnia at night and narcolepsy during daytime for me is the worst symptom cause It effects my career which I need cause I’m independent and don’t have a family to support me!
I been living with lupus for more then ten years So I just recently released form the hospital do to serve dehydration and they did an MRI and found white brains lesions I suffer from brain fog
Prayers for you. Please share any updates!
I just went through the same thing. They did not know what to classify my problems to besides the low platelet count, low volume, dehydration and a total whacked out CBC with platelets and my metabolic panel. In the end, they guessed Vasovagal Syncope.....But I was out for 20 min with my eyes open. And they were considering TIA due to my chronic white matter. Good Luck!
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
I am going through the same. In 2005 I had an mri. It showed there were 6 white lesions on my brain. I also suffer very bad migraines. They gave me 6 different conditions that cause it. Lupus is one of them. Before 2005, In 2003, I was on my computer and I just blacked out. I woke up and got myself to bed. I woke up 4 hours later. I felt fine then. Just weak. After awhile I was getting numbness on my left side and my head felt weird. Kinda numb. It happened a few times off and on. I went to see my doctor and explained it all. She ordered every test. Xrays, mris, blood tests. Urine etc. Its from your migraines they tell me even though they have my mri results showing the white lesions. So this went on back and forth until 2017 when I suffered a stroke. I was taken to the hospital and treated for the stroke. I was paralyzed from the tip of my toes to the top of my head. I was disoriented, couldnt get the words out to my boyfriend. He took me in asap. It cleared with meds they put in my iv. After that my falls got worse etc. Im then told its white matters disease, now they say its cadasil. Blood and skin biopsy are negative. Now looking into Lupus. I think its Lupus to. Very bad sweats. I have it all. Im suffereing bigtime with dehydration to. Prayers to you.
That brain fog is a killer to. I also get the pins and needles and raking feeling on top of my head
Kimberly Bryant thank you for sharing your story I’ve been afraid to learn about the disease SLE LUPUS I’m for OKLAHOMA
Yes ma’am I’ve been having brain attacks for years too and seizures and I was having a seizure one night and the next night I end up having a stroke I end up in the hospital and they could not find out what was wrong with me but when I look back at my problem with celiac and adrenal and thyroid problems as my doctor told me years ago that I could end up with lupus I have not had a test run on me yet but I’m almost positive I have that I have all the symptoms and you are describing me and I haven’t heard any other people having the same symptoms as me except for a few that has lupus where I feel like I have inflammation in my brain and it is attacking my brain
Hi my name is Yolanda Greer & I'm from Texarkana Texas,and I was diagnosed with sle.lupus
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
Yes I struggle with brain fog cause of lupus
Why are comments being censored
Having brain glitching 😫 feels so weird! Trying to get into neurology to see what’s going on! I hate Lupus! Just praying I don’t have a stroke.
Hello, I'm a lupus survivor from the great state of Michigan. I love reading during all four seasons:)
Great information and resources!!
That brain 🧠 fog is terrible and annoying I been getting it alot lately, I been having burning sensations with tingling and numbness in both legs with weird eye pain with some blurred vision, I have blackouts sometimes where I go paralyzed until the inflammation goes down, my new neurologist told me that it's not no surprise and is not uncommon for lupus to do things like that, he's going to run test on me to see if I have any lesions in the brain and spine. I run high fevers with headaches off and on every day just about with body aches and extreme fatigue. My lungs hurt with short winded feelings.
Can lupus impact your thyroid and parathyroid? If so, what is the course of correcting/healing this issue?
Hello - I have the same question. I had to have my thyroid removed, and I have low calcium (was low before thyroid removed).
@@happyphotoshooter My parathyroid level is high. Doctors are just watching it to see what happens. Is calcium and vitamins D treatment options? I'm lost and confused!!
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
I am having the same issues with my brain now .I have had Lupus since I was 27 I am now 50 I get a lot of headaches as well as smelling smoke all the time . This really drives me crazy . The meds don't seem to be working for me . I don't know what else to do anymore
Quite informative ... can lupus or lupus medication cause vertigo? My vertigo is so persistent, any advice plz?
Yes in my case.it cause vertigo
Yes! It can cause vertigo!
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
I have got vertigo so often on these medications, not sure which one of the medication, but since I'm on prednisone and methotrexate I have noticed I have been having vertigo, one of my vertigo episode last for almost 1 month.. oh my God it was a horrible experience,, can't move to do nothing, just have to stay in one position on my back..
I have lupis and diabetis 2 conflickting diseases ...how to take care and manage it
I know this will receive criticism; however my feedback is solely constructive. I am currently hospitalized, and scouring new research and information regarding Lupus. While I can immediately tell that you have credible and helpful information; I am unable to listen to your entire presentation - it's kind of like running nails across a chalk board - especially while I am on meds, lol. I humbly recommend that you take some speaking classes. It will help you with your verbal ticks and regional colloquialisms and distracting speech patterns. It is extremely difficult to take such critical information from a professional who continues to speak like a "valley girl." I learned the hard way myself, its hard to hear that you need to improve professionally - if one can accept constructive criticism, growth is unlimited. Though your information is excellent, you presentation needs some professional touch up. Thank you for all you are doing. Please hang in there - you're doing great work!
Lol
Once again i want to appreciate Dr.Auchi for helping me with his herbal medicine to cure my Lupus disease completely, i really suffer from this disease for the past 5year, Right now I'm Lupus negative after using the herbal medicine Dr.Auchi sent to me. I gave all thanks to God for leading me to Dr.Auchi who was able to cure me completely from Lupus disease, Dr.Auchi you are the best traditional herbal doctor in the world God bless you sir Dr.Auchi on RUclips channel..
Interesting
Thanks
Is Lupus brain fog and COVID-19 brain fog
related to each when it comes to symptoms?
Yes
Is schizophrenia and skin problems due to lupus?
At least 30% of lupus patients have some sort of mental health difficulties associated with their lupus. I am a lupus patient as well as being a retired nurse. I have the 5th edition of “Dubois' Lupus Erythematosus”. This work explores the history, aetiology, pathogenesis, clinical manifestations and treatment of systemic, cutaneous and drug-induced lupus. It contains extensive material on the basic science aspects of this disease, with information on cellular and humeral immunity, autoantibodies, and the lupus anticoagulant.
Can any behavioral therapy control Lupus?
Why are comments being censored
WTH does your winter activity have to do with lupus
It can cause more flares. In my case I’m constantly hospitalized in the winter months due to Lupus activity
Lupus and Me
Wow. Thank you 🙏
Thank you for this!
Who here takes hydroxychloroquine for their lupus?
I do and it has helped
I thought you are going to tell us Lupus and the brain 🧠 How come you drag and drag along not touching on to the subject. It’s a waste of time. Fortunately there are others giving us infos.
Hard
?
I don't like winter
O
Pp0
Yes