Babes with Mobility Aids ft Annika Victoria
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- Опубликовано: 29 сен 2024
- Mobility Aids are here to help, they shouldn’t bring us down.
Last summer our friend Annika came to visit Japan and we had a long chat about the stigmas that come with being disabled, the anger that some people have at you for “not looking disabled enough” and - on a less heavy note - we both give some fashion tips and things you should consider with your mobility aids, be they wheelchairs, canes, or braces.
Check out Annika's channel for her part 2 of the video, right here!
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FIRST!!!! 💁♀️
Hahha you absolutely cheated!!!
DAMN! you really are ! haha
It's so cool to see you two making a video together!
LOL 😆
Why don’t you launch your designed wheelchair brand on kickstarter?
WOW!? First of all: The car comparison blew me away. In the very rural area I live in, a car is empowering to people in the way they can get employment, groceries, and social interactions in places they just couldn't get to without a car, the car gives them zhe chance to get to places they couldn't get to before. Thinking of a mobility aid in the exact same way is AMAZING! It gets people places they would have trouble reaching without it. The end. No weird, misplaced misconceptions or judgments needed. 💕
OOPS, I forgot the second of all: You are rocking those outfits!!! SUCH BEAUTY! 💕😍
That’s how my family always treated mobility aids. It doesn’t have a stigma unless you let it.
"gives them zhe chance"
Ok so now I'm reading the rest of the comment in a French accent lol!
@@totowashere ha, sorry, I didn't notice the mistake. The accent would be a funny thing coming from me, especially because I am German and my French is terrible, so the result would be even weirder. :D
I wish I thought of the analogy.
In the US, most cities aren't really accessible without a car. Public transportation has had many cutbacks. So no car, few employment prospects, difficulties getting groceries and medications, etc.
The cane with heels thing gets to me too... I used to live in heels but now since I'm ill and need a cane I feel like I shouldn't wear them. People think I'm using my cane because I can't walk in the shoes
Becca I can relate. Winter time knee high boots with a chunky heel, with a toddler and parking in a disable parking spot, shock horror. My legs maybe sore from the cold or fatigued and walking into the supermarket without a pram to put my daughter in the trolley is so much easier than using a cane and it’s not like I’m going bush walking
This video is amazing and things all of us Babes with Mobility Aids need to be reminded of. Thank you.
Honestly...as someone who was just diagnosed with hEDS (literally last week) and who often uses wheelchairs in museums while travelling bc of the chronic pain in my feet, I watched the video once. Went away, speechless. Five days later I'm back and I still can't believe how "seen" I feel. I've had surgeries, PT, a temporary handicap parking permit, and still I experience so much anxiety when my feet hurt--not just because my feet are hurting, but because as desperately as I want a wheelchair or a seat, I'm terrified of the looks I get. Anyone who's never moved around a public space in a wheelchair wouldn't understand not just how difficult it is to get around, but also the looks people give you. There were times I could have just gotten up and walked, but I feared the stares of the people around me. I would walk to the front desk and ask for a wheelchair and the desk workers would look around me as if I were hiding a severely crippled old person behind me and give me judgmental looks. There were a few months I had severe tendinitis in both my wrists and sitting in public transit I was terrified an elderly person would enter the bus because then I would look rude if I didn't get up and offer them my seat--but how could I hold onto the bars when I couldn't even hold a pen? I wore hand braces out and about, and men tried to make small talk with me by asking if I box. People HAVE TO KNOW there are people like us out there whose pain is invisible and it's not your business to stare or mutter or yell at us just because we don't fit your understanding of how our body works. Like you said in the video, we wouldn't be using wheelchairs unless we actually needed them because of how inconvenient the infrastructure around us is for wheelchairs.
To Martina and Annika, thank you. I'm really touched by this video and I'll remember it for the rest of my life. I just listed a bunch of sad things, but my life is wonderful. I have loving family and friends and a church who support me. I don't need to wear braces or a wheelchair every day, but I empathize with you and I love how you're modeling confidence and giving me tips and tricks on how to live my life with confidence as well (although in my case I don't think I can wear heels for practical reasons, haha! jealous! you rock those!) I originally found Simon and Martina for funtimes but this channel has come to mean so much more to me
This is AMAZING !!!! Such inspirational and empowered women! We 👏love 👏 to 👏 see 👏 it 👏
Holy shit my life is complete! I've watched you both for years.
I actually super appreciate these two videos. My arthritis and tendonitis has started to get much worse despite only being 28. I hate wearing my braces even though I know I should. I feel so out of place with them on and I get a lot of questions like "what happened?" and then disbelief when I explained it. Apparently I'm to younger for such things.
Thank you for helping me feel better about it and I will try to wear them more... Which... I mean would be overall better for my health.
This is the cross over I didn’t realise I needed
The crossover that I really needed and deserve!
I love these kinds of videos. It makes us more aware of others and their needs. I always try to remind myself to not judge others too quickly because you never know what they are going through. So thanks Martina and Annika for this very informative and eye opening video 💓 you guise are such a huge inspiration
OMG! I love this video. You two are both so amazing!!! Your attitudes and beauties just blew me away
My faves.
Thank you!
I use 2 walking sticks and bought them from a mobility shop. They are black with blue gel handles and blue foot but the best thing is.. THEY GLOW IN THE DARK!!! Haha must admit that was the sole reason I chose them lol
This is so lovely and I’m happy that you guys are talking about this. I’m a biomedical engineering student so this is something that is very important to me. It’s really inspiring to hear your stories!!
Love the pink hair !!!, I have heady tendinitis and a strong trimmer is both my arms for about 6 years, I'm almost 27 and I'm a fashion designer and an artist and I lose a bit of my grip and use of my hands every day, it is frustrating to see I am losing the one thing I need to do what I love, but you girls, make me feel strong and amazing, and that things are p[ossible. KEEP BEING FREAKING AWESOME!!!
I love you inspirational people
This. And it makes me think of when we went to the zoo after Christmas and a little girl, probably around Ashtyn's age, told me how much she liked my cane. (I was using the one that has colorful dots on it.) First experience I've ever had like that, from anyone of any age, and it was a nice change!
One word. CUUUUUTTTTEEEE!
OHMYGOODNESS when you scroll down the build a ladder hash tag my face is so visible hahaha. There’s me building a ladder with my Nintendo and cute bag with, of course, soft key rings. Also loving seeing YOUR amazing mermaid legs! They’re extremely cool 🥰 thank you for creating such a wonderful hashtag. I’ve definitely found community through it, and it comforts me to know there are other people like me out there who need to build a ladder too.
Ya’ll are amazing for all that you do 🙌🏼 keep on keepin on!
i definitely understand the whole being judged because i dont look "sick". i may not have a mobility aid but i do have a service dog for my autism and panic attacks. ive had many people accuse me of not needing one because i dont look like i have anything wrong. im usually pretty good about politely correcting them and i also will show them a few of his tasks if they want to. people also get mad when i let people pet him while hes wearing his vest. hes good at knowing that when hes in his vest hes working and will always listen even when hes getting attention from someone else. he was abused by his previews owners so hes a bit afraid of people outside of my family so i let people pet him and give him a treat to help him get over that fear. just because someone doesnt look like they need a specific aid doesnt mean they dont need one
It’s not what I CAN’T do, it’s what I CANE do! 💖💖💖
In my day-to-day life I can usually adapt my schedule and such to my limitations. Chronic back pain accompanied with an auto-immune disease which can make movement, especially walking, very painful. I had to cave last year when I went to Disney World and get a wheelchair. I felt so horrible mentally and it really impacted me. It doesn't help that I'm overweight so I feel like people tend to think that I'm just one of those "lazy fat people" when in reality, I would give anything to be able to walk a mile without pain. I thoroughly dread having to have a chair when I go back or later on in my life when it'll be more required. :(
I've legit havnt looked into a mobility aid for my sciatica since I was diagnosed a few months ago. I think its mostly because my Mom seems to refuse to use mobility aids because she isn't a elder and the stigma. I'm not 100 on getting one still, but this is really is motivational on thinking of this as an option.
🌸When are you gonna do another updated tutorial on any of your new hairstyles?😭🌸 u always have cute hair looks
I use a cane some days and people either stare or move completely out of my way as if I'm sick 😔
i'll keep it short. Martina is the cutest little thing ever.
Little late, but than was an awesome Video! ^^
2 things about walking out of a wheelchair for those who don't understand ambulatory users:
1. You can need a wheelchair and still be able to use your legs
2. Wheelchairs can be prohibitively expensive for people that really really need them so if someone's in a wheelchair why on earth do you think they'd be faking?
3. Why is it any of your business?
I wear wrists braces a lot because my hands have issues. No one ever says anything but I still feel self conscious. I know I shouldn't, but maybe I just need to dress my brace up and make it something pretty instead of a black blob on my hand to feel better about it.
Hi Martina and Simon. Have you watched the latest season of Rupaul's Drag Race? One of the contestants has EDS! I immediately thought of you and how both you and the contestant are so strong.
Season 12? The previous season had Yvie Oddly but I haven’t seen anyone this season mention it yet.
Cooking with dog!! :D yes!
Also needing those patchwork harem pants those are CUUUUTE
martina where did you get nikes with wings thats awesome
I got the wings separately and added them to my shoes :) 🦇
@@eatyourkimchi thats pretty cool ill have to find something like that to add to my snow boots
Hi❤️❤️❤️
Last year when I was outside with my parents in my wheelchair I overheard a child saying “Look a wheelchair “ the moms answered “ Yes, some people need it when their legs don’t want to cooperate” a good answer and not saying that they can’t walk at all if someone has a wheelchair. Just explaining that people with different problems may need it.
That was a good explanation. Sometimes is hard to explain to kids. My niece is at the age where she's curious and she's asked me why I walk the way I do and even for me is hard to explain. I told her my back hurts. I also told her I'm "weak" so I can't carry her but I'm not sure she fully understood.
That's a good way of putting it, it covers so many different health issues and ability levels. Might have to use that in the future.
I've had one experience like that too and it made my day haha. Why can't more people be like this with their kids?? Normally they just make the kid be quiet and so it makes them think they've done something wrong and people using wheelchairs should be feared :(
Annika Victoria exactly it’s better that you explain to a child that people may need some mobility aids too do things. I have gotten complements about me using a walker and not seeing it as something to be ashamed of. I have always answered questions about my aids that it gives me more freedom and not being a hindering too me in my daily life. At the end of March I am going to get the new PushTracker to my Smart Drive. The smart drive is a power assist motor to my wheelchair. You lightly have your hands on the push rings when you drive, it’s easy to manoeuvre.
This is from reddit.
When you were posing with your cane I thought "wow, it's like a magical girl wand" and I was waiting for the dramatic and sparkly effects of transformation to appear 😆 Sailor Martina! ✨
Hahah! Wow! Thank you :) I can see that in my head~
@@eatyourkimchi You should definitely do a Sailor Martina "transformation" effect as a transition in videos! 💖
And a sticker
NOTIFICATION SQUAD! How are you all doing this fine evening?
Always living for these vlogs. It's the positive motivation I need in my life. Stay healthy out there!
Studying at uni to get my degree ✌🏻
Not too bad but feeling crazy! It’s midterms and I’m super tired!! Ahhhhhh!!! I’m loving this video!!! ❤️❤️❤️
Eating breakfast
Just making breakfast so that I can go to work 😊
THE 2 bad ass ladies collaborating and dominating RUclips and bringing knowledge to the public! ❤️💙
Oh yeah Master Apple gets it! *no high five coronavirus rules but here is a mid-range elbow bump*
*foot-high five*!
The wheelchair thing is so hypocritical. My mother is paralyzed and can't walk and when we travel people always ALWAYS ask if she can walk for a little bit and are annoyed or surprised when she can't. (Not always we have met some lovely people who are willing to go above and beyond in assistance) honestly you just can't win with mobility aids and perception of how disabled you should and shouldn't be.
imrebeccap 50% of people think you’re lying if you can walk and 50% think you can just get up and do whatever and your wheelchair is just an accessory. It makes no sense.
I work in a supermarket and at least 30% of the people using the store's mobility scooters are doing it to shoplift. I've had customers walk all the way to the deli, turn around walk across the store and get a scooter. Meanwhile, my little old ladies are forced to wait or risk falling by pushing a buggy.
There are so many different aspects of life like this where you can never make everyone happy at once. So obnoxious
@@jasminemarseilles5070 it's abuses like that shoplifting "trick" that screw with public perception too. There are some places they pull you aside and fully frisk you as you leave if you use a chair. I always think a little extra behavior observance training would be more effective all around, rather than harassing a specific group. I bet the older ladies are some of your most profitable return customers too. Just sucks all around.
2 reasons that I've declined to usue them repeatedly when I probably should be (like when staff have seen me struggling and offered to help by going and getting it for me!). I don't need it as much as a whole bunch of elderly that I see in the shop at the same time. That and I'm kinda stubborn and "I got this"...
You guys are amazing!
I rock a cane to my classes that I teach at a university in Japan. My condition with my hips is very invisible, so my students look at me as I'm faking the pain. I always tell them there are many people with invisible disabilities. Keep spreading a positive message!
I get that too using my blind cane, especially when I look at my phone. I guess it makes sense - unless it affects them directly, people don't realize how many types of illness and disability there are, or the huge spectrum for sufferers of a particular one. You're awesome, keep rocking the cane!
Education is important. I never knew EDS existed until this channel. Ignorance causes people to do and say stupid things.
@@noeinroad7294 it's all good! I had a very dear friend with it back in like 2005 or so or I wouldn't have known until Martina either. (My friend is fine, btw, we just don't talk much anymore. Just realized that could sound concerning xD) Education is super important, but we can't beat ourselves up for things we have no way to know!
My 3 year old nephew when he came over the other day.
Him: "Where are your covers?" While pointing at my knees. "They hurt. Where are your covers?"
Took me a moment to realise he was asking where my knee braces were because he is so used to me wearing them. ♥️
this brought a tear to my eye. such sweetness.
Kids can be sweet.🙂
Awwww
there is nothing more beautiful than a human that is so individually and unapologetically themselves despite their obstacles. love and admire y’all. 🐝❤️
Since being in a power wheelchair, I’ve developed a love for crazy high heels, (because I don’t need to stand on them) and they last forever (no damage to the souls or heels!!!!!!). This is one of very few benefits to being a power wheelchair user! Disability cramps your style enough, don’t give up more than you need to!
Yeessss!! Rock those stilettos 👠. I love it.
Ah, I wish I could do that. My right ankle slowly just disintegrated over time after spraining it 3 times and it not healing correctly... I can't even wear wedges for more than a few minutes. When I saw Martina with the cane and heels I was so envious. I have to walk with a cane now and I'm only 30. I'll never be able to wear heels again :( I look forward to decorating my cane like Martina's though
OrangeGraffiti I understand completely. Prior to being in the power wheelchair I was dragging my extremely slow ass round on a pair of crutches, during which time I could only manage to wear trainers and very soft shoes. It’s horrible how our bodies make us see every thing differently. We need to find our small ways to take as much as possible back into our control.
I have issues that caused my feet to be in a way that I have never been able to wear any heels, not even low. I know my condition will get worse over time and will put me in a wheelchair eventually. The fact of being able to wear heels first time in my life gives me little hope when I'm feeling down and worried for future 🤩
I'm actually mildly jealous at this lol
THIS IS THE CROSSOVER I DIDNT KNOW I NEEDED
“YOU’RE ONLY SUBSCRIBED FOR MEEMERS ADMIT IT”
*Meemers pillow moves fully into frame*
Immediately after his name was mentioned I felt his eyes boring into my soul
I know what you mean about judgemental people though. My husband has to walk with a cane; he’s had surgeries, but both of his knees are still really bad. He’s in his 40’s and young looking, so even though we have a handicapped placard hanging from a mirror, people (especially seniors) have actually stopped and watched us when we get out of our car to see if we really need the handicapped parking spot. It is very insulting.
I'm 27, I could probably use a cane on some really bad days but walk fairly normal on most days and I'm also currently in a school for disabled adults who need to learn a new trait because they can't work in their old job anymore. Even at that school where everyone has some kind of issue I had to defend myself because I look so normal. Like dude, sorry you don't have xray vision and can see my weird ass hip joints that cause me some amount of pain every single day. Just let me take that damn elevator instead of the stairs because it hurts more that day than it did just yesterday or even just 2 hours ago. My age doesn't mean I'm 100% healthy, disabilities don't care how old you are. A lot of people are born with them so please just leave people alone. I've also had some really bad comments regarding the adjustments that were made to my desk so I'm not in too much pain while sitting down. It's just a little thing under my table where I can put my feet down and stretch my legs better and a special cushion so I don't sit on the same spot of my butt and joints all day long. Nobody makes fun of my glasses but fully grown adults who aren't exactly healthy themselves can't comprehend how someone a bit younger than them can still have similar issues.
Hope people learn to mind their own business so people like your husband and me and so many other people can just live their life without being bothered by well meaning but super uneducated assholes.
I was born with my physical disability, so the whole “too young” thing makes 0 sense to me. I’m 43 now.....I was a lot younger when I was a disabled baby. 👶🦽
I became disabled when I was 32, I’m 45 now and even though I walk with 2 walking sticks you can’t actually see my disability and when I first started walking with my sticks I felt like I should put on a limp or something. When I walk along a path to me it’s like walking across a swaying wooden bridge because I have no equilibrium with what balance I have left. Just because you can’t see it doesn’t mean it’s not there.
I can’t imagine people going up to a person in a wheel chair and saying you’re faking it...
This is an awesome video to educated people.
Ive got fibromyalgia and i use a seated walking aid. I get remarks off people constantly saying i should give my walking aid to someone who acually needs it or im too young to use it and i shouldnt use it. People think im on disability when im not and i bought my walker myself. I have a three year old daughter who i can not carry when she is tired so i will sit her on my walker and push her when needed. My body is in constant pain . My legs go heavy and i get extremely tired where i need to rest quite often my walker helps me to do things that overwise i couldnt do and just because i might look ok on the outside i am facing a battle on the inside. I wish people would keep their comments to themselves!!!
@@emilybrabon5376 I share your pain... of course not literally, I can’t imagine what fibromyalgia must feel like but I’ve got hEDS and it’s becoming harder and harder to do things and I also have a 2 year old. Keeping up with her and carrying her is a serious struggle and I always get the “you’re so young you should be stronger and more fit” or “oh stop pretending, just carry her, you’re her mom”. You know, as if mom guilt isn’t bad enough, they have to shame me for something I can’t control. It’s horrible... and I don’t understand why people would do this..
I decorated my cane with cute washi tape! And I took my wrist braces and knee braces and I got rainbow thread and I sewed zigzag lines all over them. I really want to bedazzled them next!!!
Love the washi tape idea! I have so much left over from a scrapbook 🤔
“Tittle almost fell out!” 😂🤣 Oh Simon, never change.
All of the time being told “you’re so young to have all of this going on...” yeah I know but autoimmune diseases don’t discriminate
No lie, I literally had to explain to my boss’ boss today why I was sitting down at work today. (I work retail in the US. Sitting is a no no because retail is a step above institutional torture on a body). I also have EDS, and due to unforeseen circumstances I ended up having to work a 12.5 hour shift yesterday. Then I had to open again today. I was in hella pain when I got home yesterday, slept poorly because of the pain, and then had to be up early again to open. Pretty sure I’m still going to get written up for sitting though because they don’t CARE about shit like that.
With my daughter (age 8 now, but addressed this when she was younger) I've explained it similar to that added in that "If you have questions ask, but be polite don't stare or ogle." I think how I explained canes/wheelchairs was "Sometimes people's bodies don't work properly or were hurt and stop working so they need extra help. No different than me holding your hand to help you get up onto something." I know this seems like I'm tooting my own horn, but a lot of times parents have problems explaining disabilities to their kids and this might help. Kids aren't dumb and they will understand if you just talk openly about any given thing.
It helps I've got some minor mobility issues with my wrist and lower back/hip problems that sometimes cause me extreme pain and issues moving. She's had to help me move and walk before... So she gets it.
Yes I'm lucky and yes my daughter is amazing.
Wait WHO IS THIS CUTE IRISH COUPLE?! I must know!
I was in a sling for a while and I had an Uber driver tell me he thought I had a gun because I was trying to hide it in public...oops
It might be "Way out west blog"! They live in Ireland and take care of a bunch of farm animals 😂
@@solarbear3621 I thought way out west too! But they're not in Northern Ireland.
Celeste Whitlow I was wondering the exact same thing! I wanna see a cute Irish couple take care of sheep...
I immediately wanted to know too! If anyone finds out can they comment the channel name please!
cruising the comments to find out who it is as well. lol
I was in a walmart about a month ago and a young woman walked in and used one of the scooters available, I witnessed a manager come up to her and tell her to get out and that since she walked in she didn't need it and to let people who need it use it. She said she had difficulty walking and the manager basically said too bad, she looked fine.
I wanted to step in and try to help this poor girl out but I wasn't sure if it was my place to do so. When I got home I sent in a complaint to the store and they asked me for names (which I didn't have because I was just there, so I doubt that anything was done). I still think of it and how awful this girl was treated and was wondering if there was more that I could do.
I think it's really great you guys are talking about things like this. I didn't know much about invisible illnesses before and you have made me more aware of everyone around me.
JUDGEMENT : Instant Judgement from the outside, always. when people look at me they see a Very Big Scary Man with a Big Beard and Bigger Belly, the think I'm some kind of Bigg Giant Strong person that can handle every situation. not true. turns out I'm a delicate flower with a lot of medical problems, I understand the judgement thing.
being judged on you appearance is such a nuisance... I have a friendly, expressive, and mischievous baby face with apparently a touch of what passes for arrogance, so people never take me seriously. I only complain when, like, my cousin is killed at war or I'm suffering from demyelinization of my spine and can't feel my limbs. But the bias is so strong that somehow people don't take it seriously even when I talk about those things. In their minds I look like I've never gone through anything rough in my life and they think I'm either BSing or being whiny, so kinda the opposite to your situation but with similar results. My hurt is very seldom acknowledged. I'm glad I found friends who were able to get over that bias but even then it's taken some work.
much love hope you have people who treat you like you deserve to be
You are precious!! 🙏🥰🤗
I have to wear finger splints because two of my fingers overextend, and after years of wearing these pricy plastic ones that broke after less than a year and getting annoyed with people asking what they were; I invested in a pair in sterling silver! They look like funky rings and they make me so so so happy. I of course have a patterned fold-up cane that looks nice with most outfits, a wooden cane that fits perfectly when I wear heels and a carved wooden one that has the handle carved like a dragon. Not super comfy to use but dang I look cool with it.
thank you for this video; it's SO important to learn you can look amazing with mobility aids and it actually opens up a world of new accessories.
my husband has severe feet pain & sometimes when we go to the store, I ask him if he wants to use an electric cart so he doesn't have to walk. he always responds with "but people will think I'm just being lazy or faking needing it..." because he's only 31 & doesn't "look disabled" to others.
I'm 32 and same... I'd really like to see some male rep on this issue!
The first time I used one I became a convert. It really changed the game & while was on guard for dirty looks, no one was unfriendly to me and some were even helpful. (I’m 38.)
I was 38 when I could no longer walk. I so get the feelings around this. I finally had to get to the point that this is what it takes to be out in the world and screw what others think. To that end I've had some people actually question me and when I rattle off my condition then tell them to google it they are shocked. It will either put them in their place or show their true ignorance.
"awww a tiddy almost fell out. thats quite the reveal" Simon cracks me up
I definitely needed this! As someone who has hEDS, I don’t tend to dress cute bc I’m always so conscious of how I look with my supports on and with my walking stick
The way I look at using aids and dressing cute, people are probably going to look and stare, so I might as well give them something worth looking at
When I had to get a cane because of my POTS and hEDS looked high and low on amazon for a cute one, and ended up finding a really cute floral one.
Xanna Renae I do have a rather snazzy purple floral one, I must admit
@@kayleeandrews6896 purple floral? I need to get my hands on that one.
Xanna Renae I got it from amazon! It comes in a pack of 3, I also have a red one and a black one and they’re foldable and adjustable
Thank you for making this! Most days I have to use a walker to walk and I’m horribly self conscious about it sometimes. I’m getting over it and this definitely helps. 💙😸
David I think you’re clever enough to decorate your walker in an outstanding way that will make your personality shine through... and then you’ll have a new problem of having way too many people happily chatting your ear off 😂
Simon and Martina thanks. I really do need to decorate it. I do have a handy bag attached to it, which I love, but could use some bling. 😻
Omg this is revolutionary for me. I use mobility aids and usually feel like an old woman who has to act like one because people are judging me. Which is so wrong. Off to pimp up mah walking steeeek!
Right?! “Ive been fighting something, and winning...while looking dope, look at me go~”
Yaaaaaaaas!!!!!!! You're beautiful and empowered Kristy, never forget it!!!!
7:57 Wait that was a romper?? Mindblown 😮
I’m 19 and I was recently diagnosed with hypermobile EDS as well as Fibromyalgia, the EDS has made me develop POTS as well. I work a full time job and I’m on my feet for 13 hour shifts and it RACKS my body, I’m constantly dislocating joints, pulling muscles, and it’s horrendous. I recently went through such a really rough patch and got super down on myself and couldn’t help but think why is this all happening to me, especially at my age, but watching you and Simon’s channel has truly gotten me through so much. Seeing your positivity through your struggle with EDS let’s me know that I can do it too. So thank you for everything Martina. ❤️
Think you're on an episode of RuPaul's Drag Race.
Yas, Queen, make that cane/chair/sling WORK for you!
YOU BETTER WERK!
God, the part about wearing heals and not using my cane ... I felt that 😭 I always feel like I can’t wear nice shoes with a cute outfit and also have a cane. Some days I start off feeling good and I wanna wear something cute but I know that if I wear heels I’m gonna end up feeling like crap over time to a point where I’ll need it. But like walking in heels with a cane!? Wow what a fake!! But you guys are right, in the nicest way I can say frig the nay sayers!! I’ll wear what I want 😄😄
Martina's little photoshoot moments are just the most adorable happy moments and I strive for that kind of confidence
Thank you both so much for making this! I'll never understand people's love of trying to "prove" that someone is faking a disability. Even if someone IS faking it, what are you gaining by trying to "prove" it? You're not helping disabled people when you act like a dick to a stranger in a wheelchair. Same goes for people who have a handicap parking pass, but aren't in a wheelchair. If they have a pass, leave it alone, even if they "seem fine". I'd love to know what ego button this is pushing for those who scrutinize the people around them using mobility aides! Maybe you both should make a video about comebacks for the ridiculous things strangers say to you about your disability, because I never think of anything good to say until well after the encounter.
I’m about to go wheelchair shopping so this was very comforting and confident boosting 🚶🏼♀️👩🏼🦽
Yay!!! Good luck!
Hey, this might not be exactly what you're looking for, but Jessica Kellgren-Fozard is a really awesome RUclipsr and she made a video series about her journey of choosing a new mobility aid, so even if you're not looking for the same type, maybe some of her tips will help you
"You are all here for meemers, admit it!"
*moves pillow so meemers face is more visible*
Ly ♥️
i was looking for this comment!!
Guys I love how you been posting a little bit more frequently I know it takes a lot of time and a lot of hard work to do that so I just want to say I appreciate it and I love watching your videos 🥰
The black dress look is so amazing 😍 ❤️
@TheRealSala yes! And the charms dangling from the cane handle with that look also are awesome
I remember my knee was bad I had to use a wheelchair at Walmart my husband forced me but I hated it he was like you NEED this. I was like no I will hobble he said no and made me use it!! I felt like everyone was staring
I understand! When I broke my ankle we'd already planned a trip to the zoo. I wanted to go and was determined to use crutches but my husband and the zoo staff were like "NO!" and we used a wheelchair.
A lot of people looked at me with a frown and in the baby reptile area a family scolded us because I couldn't quite edge out of the frame of their photo.
Enlightened me to how privileged I am to not have to deal with that type of behavior eternally.
This comment reminds me of when I got food poisoning in middle school from eating at a restaurant with my mom. It wasn't so bad that it had to come out, but I couldn't move it hurt so much. We had to go to Walmart so my mom put me in a wheelchair and a family stared at me. I pretended to sleep but opened my eyes and stared back for a while before closing them again just to freak them out a little. *sigh* Interesting times in Walmart.
Wow here i go, non native english speaker. Took me like 3/4 of the video to realise its not about AIDS the immune disease.
Lobster oh man! Well if you don’t laugh, you’ll cry
EEEPPP!! I WAS JUST THINKING ABOUT IF Y’ALL MADE A VIDEO TOGETHER. Dream come true!! Love all three of you ( Simon, Martina, and Annika). Sending all my love. Xx 🤗🤗💛💛
„my favorite irish couple who live in ireland and have sheep and stuff“ MARTINA ARE YOU TALKING ABOUT ’WAY-OUT WEST BLOW-IN BLOG‘ ?!! YOU BETTER BE! 😍
YES WE ARE!!!!!
When I broke my foot I had to use a cane for almost a month and the judgement in people's eyes was intimidating, like "why is she even using that when she's so young" so I sometimes opted to not go out. This video is important because for me it was temporary, but there's thousand of people that live this in a daily basis and all that judgement should stop
Martina! I really hope you reply to this but I saw in Annikas video you filmed with her how you get really bad scalp psoriasis and I have it too. It started when I was 16 and I’m now 26. It would flare up then go away but now I’ve had it non stop for 3 years. Nothing works. No steroids or creams make a dent in it and my hair has become thin and the areas that it flares up on, noticeably more thinner. What do you use to help ? Thank you so much !
When I was a kid I had this awful tar shampoo and eventually I stopped bc the smell was killing me haha
Basically I started to notice patterns like, hats = huge flair... BUT it also depends on if I sweat or not, or what type of hat 🧶 or 🧢 🤔 I use a simple psoriasis shampoo from Iherb but only once or twice a month, I always put cream my scalp with psoriasis cream, currently using a kids one! I have flairs and ups and downs, just try to keep up with moisturizing. Hope this helps!
"Ooh yeah. Work it. You saucy little minx." Really? Who was that guy? How many retakes were needed because he kept giggling, lol. ♥️
I have the collapsible metal cane in purple. Love how my cane can stand alone and the elastic wrist strap. Woo-hoo! During rainstorms I wear a hooded, lined trench coat...no ☔ umbrella. Thanks for the brace information... Snoopy Red Baron Band-Aids! 😉
I love this so much I can't even express it. Thank you both so much, this helped me so much today. As you can see from my profile picture I use a blind cane, and it's with me constantly. My newest one has a bright green handle and bottom reflector, and I love it. I had some space themed washi tape on it for awhile, but I need to find a way to secure it better because it got gross and fell off after awhile xD I adore your cane, Martina! Mine folds too and it's awesome.
I'm nowhere near girly and basically live in sweats, so being fashionable isn't too important to me, but seeing this was so empowering and I just love it. Thank you both
Duck Tape and Darice Crafts both make really pretty galaxy-themed duct tape, if that would be a possibility for you & your cane.
I started using my cane after seeing this video, I got it in the first place because I've seen Martina with hers. I'm kicking myself for trying to get around without the cane and just feeling so horrible because of my leg/knee pain. THank you! Representation matters, if you two wonderful young ladies can use your mobility aids, I shouldn't really have any problem using my cane. You have made a difference in this old guys life (is 50 old?) also did you know that people treat you so differently when you're using a cane (Do I really look the decrepit?!)
Screaming, this is the most relatable thing *ever*. G O D thank you for this video
I have a chiari brain malformation and scoliosis as a symptom. I very frequently have slipping discs and shifting bones in my torso and sternum. The worst was when I could breathe and was having very bad chest pains and thought it was a heart attack so I went to the E.R. and found out it was a dislocated rib the popped back in when I had to lift my arms up for an X-ray and I nearly fainted. The tech was so kind about it because she had had a dislocated rib and said she understood the pain that would bring me in. I'vealways suffered through debilitating "headaches", chiari headaches and migraines, and in my childhood and teens I genuinely thought it was just a part of life everybody lived with. It progressed and has gotten worse. I get a lot of suggestions from people, like my mother in law, suggesting my problems would be resolved by losing weight and changing my diet or physical therapy, acupuncture and alternative medicines have also been suggested. That's the worst, is when people imply you brought it on yourself because you live a different lifestyle or your religion or because you're overweight. The condition i have is resolved by very intrusive surgeries that may or may not improve quality of life. They call it the zipper because they open you up and the scars are...intimidating. It's a decision weighed by risk versus reward. Especially if you require a decompression surgery that would require opening the brain dura, which has it's own very high complication rates. In the past I've used back braces and exercises to help stabilize the spine and nones in my ribs, but I lost hope for relief as my condition has progressed. I accepted that my life will be painful and people just wouldn't understand or even just cut me a break on high pain days. Aside from your guys' channels just being uplifting and good for me mentally and emotionally, I've found support and encouragement. Building a ladder has done so much for me. Some days I don't want to get out of bed because it hurts too much, but those small steps really add up to miles. For that, I couldn't express how much you've given me. Knowing I'm not the only person struggling, facing discouraging people, looking for a way to just thrive as me in my body, has given me hope that I've given up on. So thank you, so much. I've just ordered a new back brace and I'm ready to get back in the fight. I know the journey is long and just f*cking hard...but what else have I got if not time? I love you guys. You rock. Thanks you for just being you.
I don't use a mobility aid but this was still very informative and I'll definitely be sharing this! Thanks for sharing!
That's great to hear! I was so worried how this video would be received
@@eatyourkimchi I enjoy all of your videos so I received it very well! Those that don't, missed an opportunity to learn something new. 🤷♀️
I have hEDS and POTS (+ a slew of other stuff) and my teal power wheelchair is similar to hers. I covered all the black plastic on it with rainbow tie-die duct tape. That was my way of bringing my style to my chair and making it fun.
Ty so much for making this. I have multiple diseases and a cane would help me so much! I get worn out when I’m out too long. Martina you’re a huge inspiration to me. Love you tons!!💖💛💖
I love you guys. I love your positivity and hopeful approach to this topic. It's very helpful for those that don't know what it's like to live with mobility (or health-related) issues, anxieties, and worries about living as an "invisible" group amongst abled bodies. I am not sure why the social understanding of health and wellness is so caveman-style (me dumdum) in stark contrast to the health and wellness of neurotypicals (did I use that correctly) in comparison.
I really don't get why health and wellness aren't as normalized as is instead treated as a "spooky" topic to breach unless the person affected is older and well into their retirement years. There really is a nasty stigma that if you have X or Y condition, you are broken, something is wrong with you, or that people without X or Y are better than you. Like??? Why??? Why is there this unspoken competition/unconscious comparison that people without X or Y are better? All people are unique regardless and when it all comes down to it, all people want to live long and cherished lives. People love life.
A flower doesn't compare it's growth to another flower because they are two different flowers. All flowers bloom at different periods, in different conditions.
I think kindness and sharing hope with one another is critical and I love how this community speaks out about "how to live smarter not harder" via mobility aids, via fashion, and via love.
This is love.
So cool.
As someone who uses either a walker for short distances or a wheelchair to get around.
Sadly a lot of the time I feel broken still. It's been years since Degenerative Joint Disease took away my ability to walk normally.
A warning about pinchy knee braces. Make sure they are not constricting your circulation in your legs. (vascular and lymphatic) My braces caused my leg to swell and get a staph infection. 10 months of meds. Not fun.
as a guy with both MS and EDS, I'd really like some male rep on this subject. Especially since guys are supposed to be dependable and all, a lot of us end up not using mobility aids at all and compromising our health further. I have been verbally harassed in public a couple times by middle aged women because I look young and my illnesses are invisible.
The two most striking examples are the one that blocked my path purposefully and insulted me while I was walking with my cane because my left foot was paralyzed. She probably thought I was using the cane for style or some shit. You know, since the cane + hat thing was fashionable for men in the older days, and I was wearing an old-fashioned hat.
The other one started berating me in front of the whole bus because I dared to take a front seat to go to the clinic because I had, in addition to my conditions, a severe upper respiratory tract infection that was making me dizzy. The bus driver intervened, but she went on for like 15 minutes. Probably thought that since I was dressing colorfully that day to cheer myself up, I couldn't possibly have anything wrong with me.
My mistake those days? Dressing nice to feel good about myself. I don't get harassed when I dress like a potato.
This helped me to make the decision to start using mobility aids. Thank you for being strong and inspirational. I don't feel broken anymore
I personally went to a school for sick kids because I could not handle a normal highschool and currently have been unable to even attend my college cause of my pain (fibromyalgia) and got permission to spend the next 6 months at home focusing on my health whilst not quitting school, but it really sucks. I've heard so many people tell me to just get a wheelchair, but I know for myself that I can just walk and don't need one luckily, a cane would actually be nice for some days because I can never wear any cute shoes and only wear the same sneakers over and over again and even those hurt after 15 minutes of walking, but I already got so much hate for wearing weird clothes, even my ex-psychiatrist once told me I should dress normal (I was into pastel goth and cat ears), and told me I must be mentally ill (severe depression) because I don't care about what others think of me. And instead of seeing that as a positive thing she said its bad to stand out and I needed therapy for that? Since then I stopped wearing what I want, got body dysmorphia, binge ED, and try everything to not stand out yet I still do cause I'm always walking like a zombie, to the point that my Dutch teacher who I had never met before in college told me in the middle of class where everyone could hear it ''Why do you walk like that? Why do you talk so slow and why do you look so dead?" Whilst she already knew I had a physical ailment and she herself has a similar one, but hers atleast has pain medications for it whilst fibro has none specifically, you just pray you find one that might work, and since I got this disease at age 11 I wasn't even allowed to get medication until I was 18 and only got it this year at 19 and it doesn't work. So what did she tell me? "Look in the mirror and tell yourself you don't have cancer and the pain won't kill you!".
Kind of went on a rant, but because of this I personally will probably never accept that I need something extra, and hopefully I won't but this video with such an adorable cane actually made me me less scared that if I would ever need it atleast cute ones exist~ I also understand why people might be confused about people who can walk but are in wheelchairs, but as I went to a school for sick kids for 5 years, I started to understand different ilnesses, one boy also had a wheelchair but could walk, but we just asked him why and he kindly explained he had an ilness related to his bones that get weaker by time so it's very tiring for him to walk for too long, so he usually sits in his electric wheelchair. At our school everyone was open about their illnesses but because of that I never really bat an eye when I see people with canes or anything out of the norm at a young age as it's just a necessity, and knowing WHY they need it is not something everyone HAS to know. Ofcourse there might be some rare people who use it for convenience but 99% of the people have a reason and need it so I hope people will judge less.
I don't even use anything but everyone thought I was lying about being sick in elementary and highschool so much that my elementary school director actually wrote a report to my highschool WARNING THEM about my ''fake absence'' as it sadly took 2 years for me to get my diagnosis (sick since 11, diagnosed at 13, doctor said I probably started getting sick at 8), so my highschool teachers never believed me because it's invisible to the eye, once when I went to ask for a permission slip to leave cause walking hurt badly AFTER getting my diagnoses a teacher actually made me stand there for 20 minutes crying my eyes out from pain from standing whilst she was telling me to stop ''faking'' it and get over the pain and go to class as I ''only'' had 1 more hour of school to go. Eventually a student teacher in the room told her to let me go and I went home in tears from embarrassment and pain. eventually my friends started to spread rumours through the school that I fake being sick + my old elementary bullies were at my school as its the only highschool in our town so the ENTIRE school started hearing rumours about the girl whos sick ''270 days a year'' and I had to switch schools. Even with a diagnoses there's enough people who won't understand or believe you or just not care, and thats WITHOUT any helping aid like a cane. Glad you guys made this video to get more awareness for this issue, as people really need to learn that not every person who needs extra support is completely unable to walk or anything.
Oh you watch irish couples with sheep too? Though I watch this older couple who live in the west or Ireland, haha. Way Out West Blow-in blog, their voices and accents always make me want to write a children's book so I can ask them to narrate it. Very simple charming stuff with lots of mud and sheep that keep getting themselves trapped in the brambles eating the leaves and then they just wait until the humans show up to free them, only to do it all over again the next day. haha
THATS WHO WE WATCH!!! :) we love them
@@eatyourkimchi Haha, right? Those types of vlogs show all that is right with the world. They should be way more famous.
I am so grateful for this....in tears. I am a very youthful 50 yr old with a degenerative ligament disorder.. I get looks often because one day the brace is on the right leg, the next week its on the left..wierd I know. But this is how it is. When I need support or adjustments to do things some peoe are obdoxiously rude that I don't work within their system and treat me as if I'm faking..it makes it emotionally difficult to leave the house or be involved in things...I know I have to buck up and step forward however that works for me and seeing this video super charged me to not be afraid to be uniquely me.
OMG THE COLLAB I AM LIVING FOR!!! I love both of your channels I’m so excited to watch this!!!
I'm an OT student and literally just learnt about assisted/mobility aids today and doing a tutorial on them next week! Super cool to see the perspective of someone who actually use them!
The health professionals I have had who are best informed about, and most supportive of me using my aids are my ots and physios! :) I'm glad to have had a little help in your education here 😁
I was looking for a cane this year because my pain has been fluctuating a lot recently. But I couldn't find one that I liked, they all looked very elderly or not my style. So my brother carved me one for my birthday! It was the best gift ever and made me cry. He's already planning on making me another because we found a few issues with the first one. (It's from reclaimed wood and is very curved because of that so it only works for one of my legs.) But it's amazing and very druid/ mage staff-y and I don't feel as horrid when I'm using it. I also have ankle and hand braces I use a lot.
And I agree that wedges are the heels to pick! They are so much easier to use! Those or chunky heeled boots!
Martina you are loved and special and appreciated 💖 Thank you for being so bright 💖
This was a really useful video as was Annika's. Thank you both for talking about this and how sometimes you only need such aids sometimes. After taking children (5-21) with different disabilities to school I can see exactly where you're coming from that mobility aids are dreadful looking. I hope the companies that make these things take note of what you've said and start making ones that are suitable for people from all walks of life and interests.
Please tell me where Annika's leaf backpack is from- it is adorable! 😍
Fern Buttling-Smith I think I saw one like it on Etsy?? I would search leaf backpack on etsy!!!
Hiya! I saw another comment and she said it was from an Etsy shop called Leafling :)
That was me on the other video :)