Answering Your Questions How Long Have I Had HyperPOTS

Live streaming Art and video games on twitch, I am currently streaming when I can and do now have a schedule, I stream on RUclips and twitch. My content is 18+ on twitch, I draw creepy things and stuff and play games horror games, read visual novels, play FPS and more. / villainari
Posting new videos every Tuesday! I hope to bring awareness to the rare disease I live with and also encourage others to pick up their brushes and explore the happiness which can be found in the expressive mark making with the medium of ink. My logo is me in a squid hat, I am an inkstress, ink is my passion and paper is the vehicle in which I express myself.
Join me on an artistic journey, lets explore ink and the wonderful pictures we can articulate with this versatile medium. My name is Ari and I am an inkstress. I get tongue tied regularly due to dyslexia but I will not allow it to stop me from doing something I enjoy.
I aim to raise awareness for rare conditions and bring about hope for others living with chronic health conditions. I live with Ehlers-Danlos syndrome, hyperPOTS, and MCAS. I have a blog where I write about chronic illness.
Rare and complex illness needs more awareness, and people living with complex health conditions matter to.
Feel free to join me on social media
surviving-chro...
/ survivingchronicillnes...
/ aricubangbang
/ villainari

[@houndsathome8464]

Thank you for your videos. It is so hard to find information on HyperPOTS (and even harder to find a good doctor). I’ve been struggling for years.

[@LFROSTVEVO]

Yes i have night swears, but i have a history of night terrors from S.A. so i dunno, its a chicken and the egg situation. I went to my cardiologist yesterday and unfortunately i am showing concerning symptoms of a neurological issue. I dont think ive ever been tested for which types of POTS that I have besides hypovolemic, which was just very apparent to my doctors. I have to try potassium pills. Oddly enough prime hydration is helping. I think it has 700mg of potsssium in each drink. Im maxed out on midodrine to raise my blood pressure and the low BP is killing me as well. We will both get through this! Sending you love Ari!! ❤❤

[@Villainari_]

Many hugs to you also! We got this! I believe in you. I hope that they are able to help ease some of the symptoms and hope the neurological issue is addressed asap.

[@blevenzon]

❤

[@Villainari_]

Hope you are hanging in. A friendly reminder you got this!

[@blevenzon]

@@Villainari_ thanks Ari.