My Hodgkin Lymphoma Diagnosis: "I Didn't Think it was Anything" | Josh's Story | The Patient Story

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  • Опубликовано: 2 май 2023
  • Josh was only 26 years old when he was diagnosed with 4B Hodgkin's lymphoma. After experiencing night sweats, fatigue, and an enlarged lymph node in his neck, Josh went to the Emergency Room. A lymph node biopsy and PET scan determined he had stage 4 Hodgkin's lymphoma, with a subtype of nodular sclerosis.
    In this story, Josh shares his journey, including processing the diagnosis, undergoing chemotherapy, and leaning on his support system.
    Full story & transcript → www.thepatientstory.com/patie...
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Комментарии • 178

  • @rosemarieherman7790
    @rosemarieherman7790 Год назад +282

    I was diagnosed with HL in 1980 at 24 yo. I’m going to be 68 next month and I pray that you will live a long and healthy life. 🌹🌹

    • @siobhanthornton1795
      @siobhanthornton1795 Год назад +9

      So inspirational. Wishing you many more years of good health ❤

    • @taffycat5049
      @taffycat5049 Год назад +2

      Wow! You must have been so scared. It's really impt to hear from people such as yourself who have survived so long. Continued health!! 🩷

    • @momsmushroomsjodyfoster5786
      @momsmushroomsjodyfoster5786 4 месяца назад

      God bless ❤

  • @bonniecoakley6689
    @bonniecoakley6689 Год назад +201

    My daughter was diagnosed with HL at age 24, only one year after getting married. She is an RN and brushed off all her symptoms until she had trouble breathing. She had a large mediastinal tumor that was causing her shortness of breath. She had her first chemo on the day before Thanksgiving 2001 and finished in May of 2002. Here we are almost 21 years later and she is still cancer free.

    • @denisedouglas7498
      @denisedouglas7498 Год назад +10

      Me too! I was 29 now 68. Thanks be to God!

    • @kittyfarkas
      @kittyfarkas Год назад +6

      How fantastic. Congrats. I have chronic lymphoma and was in remission for 5 years. Looks like it has resurfaced and probably more treatments. Sounds hopeful

    • @kittyfarkas
      @kittyfarkas Год назад +2

      ​@@denisedouglas7498amazing. I have non Hodgkins lymphoma was 5 yrs in remission but I'm getting rechecked as small ones reappeared. Hodgkins is curable..non Hodgkins is not. It can be reduced in size but not eliminated.

    • @Sheila612Miller
      @Sheila612Miller Год назад +1

      2001-2022 it took to finish omg that's 2 decades but thank God

    • @EughhBrothereughh
      @EughhBrothereughh 11 месяцев назад

      You have no idea how much hope you give to those who r fighting right now with these stories ❤️❤️❤️💖 God bless 🙏

  • @neliaeppcoo5871
    @neliaeppcoo5871 Год назад +48

    Stage 4 Hodgkin lymphoma survivor going on 6 years……stay strong

  • @MsGail61
    @MsGail61 Год назад +60

    I had it in 1992 at 31. Tomorrow I turn 62, so I’ve doubled my life since then. My main symptom was a cough, so I had open chest surgery to remove a mass around my thymus.

  • @johnciaccio376
    @johnciaccio376 Месяц назад +2

    Im 48.. they found a lymphoma on my spleen just took a biopsy i have to wait 4 days for the results im terrified i feel like just giving up! Ive been threw so much now this! Im just shattered

  • @crosisofborg5524
    @crosisofborg5524 9 месяцев назад +21

    I only had swollen lymph nodes. No other symptoms at all. I was stage 3A nodular sclerosing Hodgkin’s disease. Been cured for 40 years.

    • @user-vc5wl7uq2x
      @user-vc5wl7uq2x 2 месяца назад +1

      Are your swollen lymph nodes located on neck or somewhere else?

  • @momsmushroomsjodyfoster5786
    @momsmushroomsjodyfoster5786 4 месяца назад +8

    Those pictures of you standing there drenched at night! That’s me totally! I don’t have any swollen lymph nodes that I’m aware of. But, fatigue and miserable night sweats

  • @marybachalo7880
    @marybachalo7880 4 месяца назад +7

    14 years ago I was diagnosed with Nonhodgkin lymphoma and as of February,2024 it is back at stage 3,tomorrow I start chemotherapy for 4 treatments. This is very sad because I am 86.

    • @rupowell2821
      @rupowell2821 Месяц назад

      God bless from Ireland 🇮🇪

  • @wallycruz9483
    @wallycruz9483 11 месяцев назад +23

    I ‘m so happy you got this taken care quick! For years I complain to my primary and he didn’t do anything. When to the ER a year ago with a really horrible stomach pain and they said I lite up like a Christmas tree after my scan but they didn’t tell me I had cancer just to follow up with my doctor. He didn’t do a thing! When back this year 2023 and they compared the second scan and hospitalized me, had a biopsy done and found I have stage 4 non Hodgkin’s. This was in January went to the cancer center and my doctor would not start me on anything she kept saying chemo was too harsh for me that my immune system was too low. When on q vacation came back had a sonogram and my tumors grew 3 times the size. She started me on a clinical trail shot targeted to kill the cancer. Today was my second dose and I’m staying positive & hopeful. I’m the only one being treated that have never been on any med’s. Praying that this shot that hasn’t been approved by the FDA helps everyone with lymphoma. 🙏🏼 God is in control.

    • @sallymccoy6286
      @sallymccoy6286 10 месяцев назад

      What an inspiration you are to other HD OR NHD. Your testimony gives other cancer victims hope, strength and courage to fight! Stay strong!!

    • @rubydavis6627
      @rubydavis6627 8 месяцев назад +2

      AMEN!!! God is in control! God knows all things, has all power and has all authority. He is the great PHYSICIAN and HEALER. I wish you the very best. ❤

  • @SeeingHimNow
    @SeeingHimNow Год назад +33

    My bff was diagnosed at 24 in 1986. She went into remission after a hard battle with non Hodgkin’s lymphoma and lived a full life. She passed in 2014 from totally unrelated illnesses. Hang tough!!

  • @lorimac0260
    @lorimac0260 Год назад +10

    I survived uterine cancer because there is only one symptom and when I had it, I went to the ER immediately. Yeah, at 63 I woke up having my period! And then, yes, everything happens really fast.
    I was SO damn lucky because it was contained in my uterus and I only needed a hysterectomy. I am grateful. I admire people like this guy who are so strong and courageous. ❤
    Pay attention to anything different in your body. Act ASAP. Get more than one opinion if necessary. It’s your life!

  • @Gizmo72710
    @Gizmo72710 Год назад +22

    My Friend is currently in the ER with those same symptoms .. he had labs yesterday and his numbers were way off, and she feared his spleen would rupture. When I researched non traumatic spleen ruptures and near ruptures, Lymphoma was the first possibility listed, he is all yellow, and has been loosely weight fast over the past few months. I am praying they have gotten to him in time. I pray that you are well soon!

    • @patrickhyatt172
      @patrickhyatt172 Год назад +1

      If he is yellow could be something with his liver, I'm sorry

  • @pdmarie63
    @pdmarie63 9 месяцев назад +8

    My oldest brother was diagnosed with Hodgkin's in the 80's and died at 24 from it. Glad you're doing well.

  • @TheBryana99
    @TheBryana99 Год назад +28

    I was diagnosed with stage 4 ALCL in Sep of last year, completed 7 rounds of R-CHOP and have been in remission for 3 months so far! I started treatments 2 days after my diagnoses so I completely relate to the urgency and anxiety that follows a cancer diagnoses! It is a long, tiring journey but by keeping your spirits high, remission is closer than you think! For bone pain, claritin and tylenol is what helped me most! 64oz of water a day is super important during treatment as well!

    • @lemur8436
      @lemur8436 7 месяцев назад

      how are you doing today? everything good so far?

  • @loganengels9852
    @loganengels9852 Год назад +25

    Got diagnosed with HL in April, 2021 at the age of 22. Got off the chemo in November that same year. Been in remission since and I go in in a few days to make sure I’m still in remission! Currently 24 and living strong so far! Best of luck to anyone going through this! Thank you for sharing your story, Josh, definitely was able to relate to you with your journey, especially being the youngest one in the room by 50 years, lol. I was stage 3, luckily, my symptoms weren’t really that bad. Some rounds of chemo were better than others.

  • @momsmushroomsjodyfoster5786
    @momsmushroomsjodyfoster5786 4 месяца назад +4

    I’m thankful you had your amazing partner beside you! That and you have a tenacity that is vital for fighting dragons 🐉

  • @jonathanhorne6503
    @jonathanhorne6503 5 месяцев назад +4

    A decade ago I had stg iv DLBCL and 8 week long R-EPOCH treatments. The primary loocatioon was on my spinal cord. I’m now Cured of that cancer. Now I have a new cancer, Nodular Lymphocytes Predominant Hodgkin Lymphoma has struck. I have three more treatment rounds. Chemo brain doesn’t completely go away. Mostly does but I can’t read a book for enjoyment anymore. My worst carryover from treatment is neuropathy on my feet.

  • @natashahackley5642
    @natashahackley5642 4 месяца назад +4

    On Christmas I was diagnosed with stage 4 HL just Ike this and exact same treatment hearing your story has helped me set aside so many fears I’m 28 and can’t see the light at the end of the tunnel iv got 6 months and I hope I can make this video and be better on the other side. Thank you

    • @premilabenjamin4444
      @premilabenjamin4444 7 дней назад

      Believe on the LORD JESUS CHRIST and you will be saved, you and your house hold.

  • @sherdaisy8264
    @sherdaisy8264 Год назад +2

    Your helping a lot of people with describing your symptoms. I pray for speedy healing. Take care of yourself.

  • @lorimac0260
    @lorimac0260 Год назад +3

    Thank you so much for this. ❤ Best wishes for a full and speedy recovery.

  • @rubiedianewaddy838
    @rubiedianewaddy838 Год назад +7

    I'm glad that you're feeling better and things are looking up for you. We're so grateful for the internet in many ways. It is for the good. But some people use it for the bad. Meeting people online like yourself and telling your story and your courage and your support system is truly a testimony. You had a positive attitude❤l

  • @richardhutchison3123
    @richardhutchison3123 Год назад +23

    This sums up so many of my own thoughts and feelings. The hardest thing is to keep your identity after diagnosis intact. You made me smile, laugh and cry. Thanks and stay well Josh!

    • @joshuagraves424
      @joshuagraves424 Год назад +1

      You to Richard! Appreciate the kind words sir

    • @boomeradvocate
      @boomeradvocate Год назад

      He had the same effect on me. He's only 6 yrs older than my grandson, and I was deeply moved by his fortitude and resolute determination.

    • @joshuagraves424
      @joshuagraves424 Год назад +1

      @@boomeradvocate thank you very much for those kind words. I hope your grandson is doing well. He’s a warrior 💜

  • @taffycat5049
    @taffycat5049 Год назад +5

    Loved hearing your story. I'm SO HAPPY to hear you're in remission! Continued good health to you!! 🩷

  • @AnneAlready
    @AnneAlready 5 месяцев назад +3

    Oh wow, this was so inspiring. I teared up too when Josh's Dad called him his hero.
    Awesome outcome - thanks so much for sharing your story. x

  • @sj460162
    @sj460162 10 месяцев назад +7

    Well done fella! My dad has just been diagnosed with this disease. My fingers are crossed for him.

  • @AGPerez
    @AGPerez 5 месяцев назад +4

    Thank you for sharing your story. I can relate to your experience as I was also diagnosed with HL during the Covid pandemic in 2020. I discovered a lymph node in late April, underwent a series of tests and staging, and started chemotherapy in June, followed by radiation in September. Congratulations on completing your treatment and thank you for sharing your story.

  • @denisedouglas7498
    @denisedouglas7498 Год назад +7

    Thanks for sharing. I also had HL at 29 now 68. Blessings!

  • @davisholman8149
    @davisholman8149 Год назад +6

    I live in Arizona, Josh. I lived in the same neighborhood as Ravens’ player Todd Heaps - knew his MIL very well(she passed from pancreatic cancer…damn cancer🤬). I pray you & your pretty wife have a long & happy future. God bless you, Warrior!🙏🏼

  • @MegaGrownFolks
    @MegaGrownFolks 7 месяцев назад +2

    Thank you….i needed this. Glad you are all better. Thank God

  • @elizabethconroy7665
    @elizabethconroy7665 Год назад +5

    Hello,Josh
    Thanks for sharing
    Very informative and I’m glad you are doing well
    Quite a journey
    Yes,listening to our bodies is very important
    Best wishes from Amman Jordan 🇯🇴

  • @LMTino
    @LMTino Год назад +2

    No one wishes for such an experience that you have endured. But on the flip side you are a better man for it. And for those family and friends around you, the bond is reinforced in ways not possible before...and this new life us all yours.

  • @FlaGrown1955
    @FlaGrown1955 Год назад +4

    Thank you for sharing. I wish you the best.

  • @Suffering_Jetfan
    @Suffering_Jetfan Год назад +10

    Thank you for sharing, Josh. You articulated some great points, like processing what you’ve been through after your treatments. I am over a year in remission from a second stint of NHL, and it has been like PTSD, especially dealing with illness due to a compromised immune system. You made some really insightful statements.

    • @ThePatientStory
      @ThePatientStory  Год назад

      David, thanks for sharing a bit of your story here. We'd love to learn more about you and your story if you're interested. If so, please fill out our Intro Survey → thepatientstory.typeform.com/to/OJfTUC. -Stephanie, fellow NHL patient

  • @scaredyfish
    @scaredyfish Год назад +12

    I’m here because Hank Green just announced he has Hodgkin’s Lymphoma and in the video he mentioned some things that I am also experiencing. I’ve noticed enlarged lymph nodes for a while but I figured I would feel worse if it were something serious.
    I had a doctors appointment last week about something else, and I *almost* mentioned it, but the doctor didn’t say the magic words ‘anything else?’, and so I chickened out and figured I’d bring it up another time.
    Thanks to these videos I’m taking it more seriously, and I now have another appointment scheduled. I’m trying not to jump to conclusions, but it’s scary.

    • @SuperAlexGaming
      @SuperAlexGaming 10 месяцев назад

      Are you doing okay?

    • @scaredyfish
      @scaredyfish 10 месяцев назад +6

      @@SuperAlexGaming Thanks for asking. I had a biopsy on one of my lumps and some blood tests. The lump was a lipoma (benign fat lump), and the bloodwork came back clear. The swollen lymph nodes are likely from chronic allergies.

    • @TurtlePig39
      @TurtlePig39 6 месяцев назад

      if it still is persisting now, get more tests@@scaredyfish

  • @nostalgiataxi
    @nostalgiataxi 9 месяцев назад +4

    been watching a lot of these videos because i'm getting tested for cancer... my parents died young, my dad died a few years ago of cancer and all i want in life is to live a long life that they couldnt achieve. i've been so scared that i might have cancer the anxiety has been overwhelming me constantly

    • @laurent2523
      @laurent2523 8 месяцев назад +1

      Hi darling, so sorry to hear of your losses and what you’re going through. How did your tests go? Sending love and healing x

  • @whoaskedxdegfx
    @whoaskedxdegfx 4 месяца назад +1

    You are a true fighter mate. ❤

  • @andith
    @andith Год назад +6

    My daughter has a friend with Hodgkin Lymphoma for more than 20 years, so, there is hope!

    • @andywilliams6103
      @andywilliams6103 7 месяцев назад

      Did she treat not sure how can she be for 20 years?

    • @mindy2215
      @mindy2215 7 месяцев назад

      @@andywilliams6103 There are people with brain tumors for more than 20 years. It all depends on the kind of tumor and how it develops in the body.

  • @ruthfulton2079
    @ruthfulton2079 Год назад +6

    Thku Joshua. All the v best for the future. 🎉

  • @DJK-yt9mu
    @DJK-yt9mu 2 месяца назад +1

    Powerful Story Thank You May God Continue to bless !

  • @cadenli3330
    @cadenli3330 Месяц назад

    Seeing this video is really cool, it's amazing to know that there are people in life as strong and as brave as you are. I don't have cancer but I do have a few very small lymph nodes in front of my ears and in my tonsillar region. I also am a little bit more tired than usual and need to take daily naps now, I didn't think much of these symptoms but I think I'm going to get it checked out because of this video. Thanks!

  • @alohatvj
    @alohatvj 9 месяцев назад +2

    So happy you were able to get through chemotherapy successfully 😊❤.

  • @DH-gk8vh
    @DH-gk8vh Год назад +4

    What a harrowing experience. Bless your heart. I guess you know now not to delay being seen if something is up. My husband had a heart attack at age 40. He refused to go to the hospital. Denied that was what was wrong. Two days later after I spoke to a nurse when I called her from work and told her what happened over the weekend she told me to bring him in asap. I called him at work and asked him to go to lunch with me. Picked him up and drove him to the ER. He said "you tricked me, but I'm fine. I said ok, then go in and let them see you. Prove to me your fine. He said ok. In about 5 to 10 minutes after walking in the did an EKG and told him he had a heart attack. He ended up with stents in 2 arteries in the back wall of his heart. Fast forward to 2013 he was diagnosed with failure.congestive heart failure. Had so many things done. He lived 10 years past his diagnosis. He just passed April 9th this year. Easter. I know you feel your symptoms were subtle, but just know they weren't really, not to mention a high fever like that over 104° F. 105°F can cause a seizure. I'm so happy for you. I know chemo or other therapies to treat cancer can make you very sick on top of all ready being very ill to begin with. I hope you live long and prosper.

  • @boomeradvocate
    @boomeradvocate Год назад +4

    Josh's way of telling his story was remarkable...he's so strong and articulate! An important plus in this video, at least for me, is the moderator (Angie) didn't interrupt him! I like "The Patient Story" channel, but certain moderators are disruptive by inserting themselves too often. This video was a welcome relief in that sense. So happy for you, Josh. ❤️ 💙

  • @Bambotb
    @Bambotb Год назад +5

    Man i love these videos, keep em coming plz

    • @ThePatientStory
      @ThePatientStory  Год назад +2

      Thank you so much for watching!

    • @battybethc8061
      @battybethc8061 Год назад +1

      I know! These videos are packed with valuable info! Also they are packed with inspiration as l am currently fighting stage 3 cervical cancer that has come back in the form of swollen lymph nodes on the leftside of my neck. These videos are awesome when you see the people in them winning their battles with cancer! ❤

  • @elizabethorsillo7187
    @elizabethorsillo7187 Год назад +9

    I was diagnosed with HL in 1993 at age 22. My most prevalent symptom was very intense itching. It was so bad that I dug holes in my skin. I had two doctors (one was a dermatologist) tell me that I had scabies! My first doctor eventually noticed my neck was swelled up. I had a bunch of swollen lymph nodes, and he did a chest X-ray which showed a mass about the size of an orange. He sent me to the surgeon who did a lymph node biopsy, and it showed I had Hodgkin Lymphoma. After some CT scans, a gallium scan (they didn’t have PET scans back then), and a bone marrow biopsy, I was in stage two. I had nine months of chemotherapy and 6 weeks of radiation. I was cancer-free in the spring of 1994 and have been so ever since!

    • @sp500-steph7
      @sp500-steph7 2 месяца назад

      where did it itch mostly on your body? glad you are fine❤

    • @elizabethorsillo7187
      @elizabethorsillo7187 2 месяца назад

      @@sp500-steph7 just about everywhere, but mainly my arms, legs, and torso.

  • @laxnative4622
    @laxnative4622 11 месяцев назад +1

    I had no symptoms when I was diagnosed with Stage 4 HL in Feb 2022. But I already had an autoimmune disease (Giant Cell Arteritis) diagnosed 8 years prior and was taking steroid medication. A scan my Rheumatolist recommended found it. I consider it the luckiest day of my life, because that's when my treatment started and now it's gone.

  • @RighteousMum
    @RighteousMum 25 дней назад

    I saw my doctor today, and he is referring me to the hospital as an urgent case, and said I should hear from them within the week.

  • @cg00000
    @cg00000 Год назад +8

    My husbands first symptom was night sweats, he had a small enlarged lymph node in his armpit. They removed it and more in the armpit, removed his spleen, had chemo and then radiation. He was in remission when it came back in two years, more intense radiation. Later he had skin cancer all over his back they cut them all out. This was in 79-83, I'm sure better treatments are now available. He passed away from different conditions. Good luck in your journey, best wishes.

    • @rebelbrickstudios
      @rebelbrickstudios 2 месяца назад

      Sorry for your loss, may he rest in piece. Hope you’re okay x

  • @medusatc3275
    @medusatc3275 Год назад +13

    Was diagnosed this year with HL and started treatment recently. I basically got the news as my 21st bday present 😂. Positivity is everything. 10 more rounds of chemo and hopefully that’s it.

    • @laxnative4622
      @laxnative4622 11 месяцев назад

      I had 10 sessions of ABVD every 2 weeks until I was told my HL was in remission. That was 12 months ago. Getting another PET scan this week and if its still clear, they'll finally schedule the removal of the chemo port in my arm.

    • @Michael_cgx
      @Michael_cgx 2 месяца назад +1

      You’re young. How’s it going now? If I had to guess, it’s probably going good

    • @medusatc3275
      @medusatc3275 2 месяца назад +1

      Im officially in remission now and had my last treatment 2 months ago. It’s a blessing. A year ago i wouldn’t have thought I was gonna make it to be honest. Now I view life very differently

    • @Michael_cgx
      @Michael_cgx 2 месяца назад

      @@medusatc3275that’s awesome! Congratulations. Fortunately you’re young so your survival rates are actually really high. I’m so happy for you

  • @justiceforall5043
    @justiceforall5043 8 месяцев назад +2

    I am so happy for you! Thanks God you’re doing well. Now get close to God and follow His commandments and you will have everything that you ever hoped for! I have myself a non Hodgkin lymphoma, I am 74 years old, soon I will star my Chemotherapy. I am certainly scared for the painful side of the side effects must that from the cancer itself, but unfortunately there are not a miracle cure treatments available at this time. God is merciful and it’s watching over us who are going through the same illness. Faith and confidence will set us free! God bless🙏🏻

  • @lyndagelormine6081
    @lyndagelormine6081 4 месяца назад +1

    I’m glad you are doing well

  • @kloun1980
    @kloun1980 Год назад +23

    Amazing story!! I'm a HL survivor and found my first k own symptoms when I was running.
    I would also love to tell my story along with my recovery.

    • @ThePatientStory
      @ThePatientStory  Год назад +2

      Thank you so much for watching! We would love to hear more about your story. Are you able to fill out our intro survey?
      thepatientstory.typeform.com/introduction

    • @stevenbarr6843
      @stevenbarr6843 2 месяца назад

      What were your symptoms you noticed when running?

  • @andyayala9119
    @andyayala9119 6 месяцев назад +1

    Stay strong!!

  • @KnockOut242
    @KnockOut242 11 месяцев назад +6

    I’m just beginning this journey and I’m so exhausted. Pretty sure I’ve had it for a long time but have been gaslit by physicians…

    • @harper34
      @harper34 10 месяцев назад

      It’s a rough ride, but you can do it. The hardest part comes after the treatments, and it takes a lot longer than you think. Just endure. I wish you the best.

  • @marystewart1125
    @marystewart1125 Год назад +2

    Orioles and Ravens got me through my chemo and radiation in 2000 for breast cancer. Nothing better than Camden Yards to feed your soul.

    • @joshuagraves424
      @joshuagraves424 Месяц назад

      Incredible what sports can do for someone ❤

  • @volensquemgaming2349
    @volensquemgaming2349 Год назад +6

    I have all these same symptoms.. I have lost over 100lb in the past 8months. And i have doctors dismissing me left and right. I almost died a few days ago from a severe antibiotic reaction. And the doctors dismissed me still saying i should take them, and a ultrasound for a lump on my armpit. It was my family doctor and mother who told me not to take the next antibiotic dose. But now i still have more tests tomorrow to try and find out whats going on still.

  • @danielkelly5474
    @danielkelly5474 Год назад +1

    Wishing you well. Fellow Gooner. ❤

    • @joshuagraves424
      @joshuagraves424 Месяц назад

      CMON YOU GUNNAS! That beanie saved me 😂

  • @alexacarrillo4339
    @alexacarrillo4339 5 месяцев назад +2

    My husband had these strange rashes that just appeared randomly over his body. They were very uncomfortable and I pushed him to go to the GP and they then sent him to a dermatologist that couldn’t figure it out. I have really sensitive skin so weird rashes have always been part of my life but not my husband and I thought it was super concerning because all the products we use are for super sensitive people. The minute a lymph node showed up in his neck he went straight to the Dr who did take him seriously.

  • @elizabethconroy7665
    @elizabethconroy7665 Год назад +4

    That
    “Didn’t like the look of me”
    Really made me laugh 😂

  • @ladyleo944
    @ladyleo944 6 месяцев назад +1

    Wow I've had the hot then the chills did your WBC come back low or high ..or normal??

  • @ThePatientStory
    @ThePatientStory  Год назад +8

    We would love to hear from you! What were your first symptoms? Leave a comment below ↓

    • @tangho
      @tangho Год назад +5

      fatigue, hives, neuropathy in hands which were symptoms I excused for other reasons. such as neuropathy I thought was from grips in Jiu Jitsu. the lump on my neck near the trap area is what really made me go to the doctor cus it was starting to get hard for me to breathe, which I noticed the most when I was paddling while surfing

    • @kareng2012
      @kareng2012 Год назад +4

      Lump on neck that I was not aware until examined. My only known symptom was chest pain after drinking alcohol. It was painful. Stage 2A 1992

    • @Chelltheworshiper
      @Chelltheworshiper 8 месяцев назад +2

      my 25 year old son was 24 when he first started getting sick. he had high fevers, fatigue, bad lower back pain, enlarged lymph nodes, rash, sweats. he only showed a suspicion of HL from the biopsy, but his inflammation markers were so high and his liver/spleen was off. They diagnosed him with HLH (Hemophagocytic lymphohistiocytosis). After failed treatments for that (5 months later), I got a second opinion from Cincinnati Children's and he was diagnosed with Stage 4 HL with an HLH response. Any ounce of HL in his body would cause inflammation to attack his organs tremendously. He relapsed after the first treatment round (6 months) for HL. The HLH response brutally attacked his liver, lungs, kidney that he was in the ICU on a ventilator for 2 weeks. Thank God he overcame because of medicine for the inflammation and immunotherapy and a new chemo regimen. It's been 5 months later, HL is in remission. He is now preparing for a bone marrow transplant Nov. 1 to cure the HLH type response.

  • @boccia2409
    @boccia2409 3 месяца назад +2

    Almost one yr for me cancer free!

  • @jjk2one
    @jjk2one Год назад +3

    This growing "lymph node" on my collar bone is in a dangerous spot. I just barely press on it and get a little light headed. The doctor said don't worry about it because I don't have a temperature. I don't think she cared one way or the other.

  • @calebbridgmane1111
    @calebbridgmane1111 Год назад +3

    This will help me learn about cancerrrr

  • @adamretschlag4665
    @adamretschlag4665 6 месяцев назад +2

    This helped me, im about to start my treatment with Hosking's lymphoma waiting on my PET , and have been wondering what to expect its a very challenging and emotional time, i just want to live

    • @joshuagraves424
      @joshuagraves424 Месяц назад +1

      You’re going to be just fine, Adam . I promise ❤

    • @adamretschlag4665
      @adamretschlag4665 Месяц назад

      @@joshuagraves424 thanks mate im all clear now and chemo is over , life has started up again and im kicking goals, I got alot of living to do and getting stronger mentally and physically each day 🙏

  • @B3R34L
    @B3R34L Год назад +5

    Same symptoms, i taught i has astma or something because it became difficult to breath, my neck has become swollen, sweating all day and every day it becomes worse. My blood has been tested and the results should come in soon. What worries me is that my doctor said they were testing my kidneys but when i looked up the codes i was tested for lymphoma not kidneys. I think the doctor does not want to scare me until he knows for sure. i hope for the best.

  • @just4now141
    @just4now141 Год назад +2

    I was diagnosed with Hodgkins at 29. That was 21 years ago! I was treated at Stanford which is one of the best in world especially for Hodgkins and they covered all that medicaid didnt.didn't.. through research protocol.. I found a lump in my neck in Sept 2001. The only symptom I had prior to the lump was severe itching! It's the only symptom you can have and still be considered A symptomatic. But I tell everyone.. be aware that severe itching can be symptom of certain cancers! I had 4 son ages 1 to 10 yrs.. it was scary.. my aunt had same cancer I did 20 yrs before I did! So definitely genetic for me. What made it more traumatic for me was that I found out I was expecting again right after I found lump.
    My treatment protocol was 8 weeks chemo every week as opposed to every other which was the newest protocol.. less medicine but over a faster time frame. Steroids of course.. and then because my largest mass was a bit over 3 &1/2 by 5 centimeters I had 3 weeks of radiation. My arms were in pain from the chemo because it was a a burning in my veins... and was hard to get dr to give anything as far as pain meds!! My grandmother had to give me vicodin! I had no nausea because the nausea meds worked well the Zofran. After my first chemo a couple days later my lump was super small almost gone in my neck! Steroids definitely made me weird. I was stage 2A. What made this so horrible was having to loose the 5th pregnancy the choices. to this day very emotional for me..

    • @just4now141
      @just4now141 Год назад

      @@micu7005 no it was deep in my skin... I would itch til drawing blood sometimes.. bottom of my feet too.

    • @just4now141
      @just4now141 Год назад +1

      @@micu7005 it wasn't a food issue it was the cancer causing histamine release in my body... once I started chemo it went away

  • @internetuser3965
    @internetuser3965 Год назад +5

    I was diagnosed around 1989. Mixed cellularity stage 3B. I had a daughter a few years later and I am free of cancer. I'm sure you make it also.

    • @ThePatientStory
      @ThePatientStory  Год назад +1

      Such a wonderful share. Thank you so much - so glad to hear you've been cancer free ever since! -Stephanie

    • @alfiefox18
      @alfiefox18 Год назад +2

      I had Mixed Cellularity Stage 4 in 2019 age 26. I’ve been in remission for 3 years, it’s good to hear another person with the Mixed Cellularity subtype have a long term remission. I understand it’s quite uncommon to have this subtype in young people.

    • @ashishtiwari5132
      @ashishtiwari5132 9 месяцев назад

      Did you went through bone marrow transplant also

  • @The_Gallowglass
    @The_Gallowglass Год назад +5

    They kept telling my mom she had a virus..some kinda cold or flu. It went on for a couple months. Finally they were like, "oops, it's cancer. sorry." She died a year later.

  • @JW-zz5wk
    @JW-zz5wk 12 часов назад

    Going thru treatment with abvd. My cancer change from follicular to classic hodkin and going thru abvd. Had follicular for 10 years no treatment. Chemo is making me feel so muchh better with 4.5cm tumor reduction. After the for first cycle.the chemo works. Dont listen to the negative comments .. every stay strong.

  • @jodybogdanovich4333
    @jodybogdanovich4333 Год назад +6

    Thx for sharing. I have saved this to finish watching later today, but you did mention the soaking night sweats. 😓 Did they occur every night for awhile, then stop for awhile, then come back? That's one of my current symptoms, and it's not menopause.
    I'm getting a followup chest CT on the 15th for a 5-mm lung nodule noted 1 year ago. My pulmonologist ordered it because of new symptoms of loss of appetite, weight loss, and low-grade fever spikes intermittently throughout most days. Oh, and major fatigue.

    • @Suffering_Jetfan
      @Suffering_Jetfan Год назад +4

      Hi Jody, I am a 2 time non-Hodgkin Lymphoma survivor, and had car-T after the second time. Your symptoms sound very similar to what I experienced the 1st time. Don’t assume it’s cancer, but stay aggressive to figure out what is going on so you can get it solved and get on with life.

    • @jodybogdanovich4333
      @jodybogdanovich4333 Год назад +5

      @@Suffering_Jetfan Thx, Dave. I have PsA, an autoimmune disease, but my Rheumatologist is testing me for lupus. Between that and my lung issues, I have 2 balls in the air at the same time but am lucky to have specialists who are determined to figure out what's going on so I can be treated. My ESR skyrocketed from 12 to 45 but my CRP is normal.
      I wish for you continued remission. 🙏
      UPDATE: Negative for lupus and lung nodule is smaller. 👍Symptoms are not as frequent.

  • @evelynm2633
    @evelynm2633 11 месяцев назад +3

    At 42 I got diagnosed with NHL stage 4 sixteen months ago and they are not helping me at all. I don’t have private insurance so I have to go to a community hospital. I wish someone could help me so I can live longer and spend the time with my sons.

    • @Amelie41649
      @Amelie41649 8 месяцев назад

      I really hope you get / are getting the treatment you need. Godbless you.

  • @jennyjohnson5428
    @jennyjohnson5428 Год назад +10

    Claritin for bone pain! Crazy! I don't know if it was a coincidence in timing, but my sudden guttate psoriasis with hives beneath (following a common cold which followed covid) improved with Claritin! Then I spoke with a dermatologist who said that Zyrtec is known to be better for skin ... stuff ... related to allergies. But that skin condition came with extreme fatigue & travelling joint pain without injury, so I'm pretty sure this whole mess has little if anything to do with allergies & more to do with autoimmunity. My rheumatologist would have figured it out by now if I hadn't finally managed to get pregnant, thereby preventing him from zeroing in on it (pregnant women with autoimmune conditions are known to sometimes go into a sort of remission when pregnant, I'm told)

  • @dashah13
    @dashah13 2 месяца назад

    How was your CDC test in the beginning? I have pain in the neck above the collarbone and there are bunch of lymphnodes around. I start feeling really bad recently with nausea and extreme exaustion....my CDC shows anemia.

  • @BLK2000
    @BLK2000 2 месяца назад +2

    duddes got cancer, but hes only worried about his girlfriend, bless him

  • @nickywilks7928
    @nickywilks7928 Год назад +3

    Warrior.

    • @MTASHUNKAB
      @MTASHUNKAB 3 дня назад

      In my language..warrior is AKI'CITA

  • @flxmkr
    @flxmkr Год назад +4

    I imagine being in remission would be similar to be freed from prison. Free to live your life. I mean, I’ve never experienced either. But that’s what’s going through my brain.

    • @joshuagraves424
      @joshuagraves424 Месяц назад +1

      Never been to prison but I was a prisoner to myself, and being in remission is the best thing ever

  • @10dev785
    @10dev785 27 дней назад

    i have this lymph node under my neck and I can't seem to shake off this light sore throat. Antibiotics seem to be helping. but im not sure......

  • @pierce99
    @pierce99 Месяц назад

    I have 2 side by side enlarged lymph nodes and they hurt time from time i have nightsweets bad drenched my cloths and bed im 24 now soon be 25 and this has been going on for over a year docs dont know whats going on but something in me is telling me its some form of lymphoma they brought it up before but next time i go they wanna do a biopsey and i havnt been back in over 5 months cauae im scared to know what it is honestly but im also just wore out 24/7 and sleep most of my days away, feel pretty alone but reading all these stores and hearing yours makes me feel less alone with this

    • @milcrez24
      @milcrez24 2 дня назад

      I also feel the same.
      Fever at night
      Nights sweat
      Sweeling lymph nodes / and painful when I pressed it.
      I'm scared also. But reading some articles having lymphoma has a higher survival rate upto 90%..

  • @crayzee4cruising489
    @crayzee4cruising489 Год назад +5

    I’m glad you’re doing be better and I pray for your health. You said you thought you had Covid… but IF you felt that you did , can I ask why would you go to work thinking you MAY have it? There are people like me, who are sick and Immunocompromised and CANNOT get by someone who has Covid because I could die from getting it! Especially someone who has Cancer!

    • @battybethc8061
      @battybethc8061 Год назад +1

      Truth! 💯%! When l was working, l wouldn't go to work even when l had a cold for fear of getting everyone sick! Forget COVID-19 I would be getting tested and calling out! I wouldn't want to soread COVID-19 at all!

    • @joshuagraves424
      @joshuagraves424 Месяц назад

      Your name fits your personality

  • @viorelscrob6391
    @viorelscrob6391 Год назад

    What do you think led to your illnes. .?

  • @onumaytuu
    @onumaytuu 2 месяца назад

    Fevers of non specific origins and night sweats are alarming for physicians. Hodgkin's lymphoma is usually diagnosed in younger people under 49 years of age . With Hodgkin's lymphoma, you have a better chance than with non Hodgkin's lymphoma. There are less cancer cells , with Hodgkin's lymphoma you a number of immune cells rushing into cells , a low number of cancer cells in the beginning. Stage 4 within a few months of symptoms is fast .

  • @splash6427
    @splash6427 4 месяца назад +1

    🙏 ❤️ 🙏

  • @dimitriosdesmos4699
    @dimitriosdesmos4699 Год назад +1

    They are trying to give me Lymphoma now???....LOL.

  • @lindaashmore1246
    @lindaashmore1246 8 месяцев назад +2

    Antihistamine helps with toothache pain ..

  • @thegrandpencil4374
    @thegrandpencil4374 2 месяца назад +1

    I appreciate these videos (and I wish Josh the very best), and other videos like it, but for us hypochondriacs, it's a freakin' nightmare. The internet is probably the worst thing to happen for people like me. You end up having every cancer known to man, ten times over.

  • @supme7558
    @supme7558 Год назад +1

    He says in his kneck the taps on his sholder ...aaahhh

    • @joshuagraves424
      @joshuagraves424 Месяц назад

      What’s the kneck and sholder? Kinda weird thing to point out in 26 minute interview about a cancer survival story.

  • @martinhanley9524
    @martinhanley9524 10 месяцев назад +3

    Change your diet - reduce sugar , use almond milk , dairy cheese eliminate , reduce all fried foods and meat . Processed foods : get rid of those from your diet . You wil get better . 👍👍💪

  • @arthurarthur5221
    @arthurarthur5221 Год назад +2

    That the LOVE of the LORD GOD ALMIGHTY, May have been the cause of the LOVE that you experienced. Just remember that GOD ALMIGHTY is the truth the life and the way. And that their is no greater love in all of creation. Then GOD ALMIGHTY’S LOVE for you, and that GOD ALMIGHTY’S LOVE for all of Mankind is far greater than any Man could possibly comprehend on their own, also try to comprehend the fact that the 21st century computer age, is so full of evil and deception. That some of the most utilized computer programs of the 21st century will turn out to be some of the most detrimental to all of mankind. And please try to understand that OUR LORD GOD ALMIGHTY greatly loves you. So much more than you can possibly imagine in life.

  • @jian658
    @jian658 Месяц назад

    you are beautiful boy! , you will be ok! I am doctor

  • @leisahammonds4479
    @leisahammonds4479 Год назад +1

    The pictures of you during treatment look nothing like you. Are they using another person's pictures for content?

    • @joshuagraves424
      @joshuagraves424 Месяц назад +1

      Nope, that was all me. Pretty incredible what no hair and 40 pounds of weight loss can do 😅

    • @leisahammonds4479
      @leisahammonds4479 Месяц назад +1

      Glad you are still here with us!

    • @joshuagraves424
      @joshuagraves424 Месяц назад

      @@leisahammonds4479 thank you very much 🥹

  • @Mustang1984
    @Mustang1984 Год назад +2

    Man that Baltimore accent is thick! Hope you're ok bro.

    • @joshuagraves424
      @joshuagraves424 Месяц назад +2

      Doing better than ever and have a son on the way HONNNNN

  • @bevy666_
    @bevy666_ 8 месяцев назад

    Another survival .. Angels are near.
    Its horrific to know a 26 yr old could not survive this cancer since the survival rate is high and continues to get better.
    Karma. Must be involved

  • @JonCurtin
    @JonCurtin Год назад +5

    jabbed

  • @zap...
    @zap... 9 месяцев назад

    You have a really odd relationship with your wife/girlfriend.

  • @FreeToBe_Me
    @FreeToBe_Me Год назад +4

    You thought you had Covid…and then went to work?! Not very considerate to every person you came into contact that day if you had been contagious

    • @crosisofborg5524
      @crosisofborg5524 9 месяцев назад

      Another covid coward.

    • @jacktimmer
      @jacktimmer 7 месяцев назад +1

      Some employers will no longer excuse your absence for covid and will you get in trouble really quick absence wise. It's happening where I'm at. They just tell others around them and are somewhat avoided. Nearly everyone I work with has already had it

    • @joshuagraves424
      @joshuagraves424 Месяц назад

      This is probably one of the craziest comments I’ve seen. Dude I had cancer and that’s what you took from this entire video 😂

    • @FreeToBe_Me
      @FreeToBe_Me Месяц назад

      @@joshuagraves424 Yes. Weirdo

    • @joshuagraves424
      @joshuagraves424 Месяц назад

      @@FreeToBe_Me I’m the weirdo? We’re talking about how I didn’t feel well for weeks. Obviously took multiple covid test and they were negative hence why I even did this video. People like you really are kind of the worst human beings. Video is about someone who had cancer and their story and you’re stuck on one sentence where it wasn’t even true. Get a grip man

  • @Weekend658
    @Weekend658 3 месяца назад

    No offense to this guy, but those were ALL TELLTALE signs of Blood cancer.
    1. Pronounced lymph nodes on the supraclavical or collarbone
    2. Night sweats that include mid range fever for continuous weeks
    3. Anemia - yellowing the of the skin and or eyes
    4. Anemia - change of body temperatures
    5. 4-5 weeks of no changes to issues ongoing
    I’m not dismissing his anxiety of not thinking it’s cancer or wanting to know it’s cancer at age 26, but stop saying “there were NO signs”
    Short of you bleeding out of your ass or nose or ears where it’s then stage 4, yes you had obvious Lymphoma Symptoms.
    Short of you having immense back pain when bending over that doesn’t go away or your neck hurting when you drink alcohol, yes you had obvious signs.

    • @joshuagraves424
      @joshuagraves424 Месяц назад +2

      Hey there, I’m the guy from the video. It’s easy to say all those things when you’re knowledgeable about blood cancers. I was never educated on cancer so it wasn’t on my mind that this was a possibility. But, I’m here now and I have son on the way. Ease up a bit, this is a informational video and hopefully inspiring people. Not really a place to play Monday Morning Quarterback.

    • @Weekend658
      @Weekend658 Месяц назад

      @@joshuagraves424 great to hear a response from the actual owner of the video. With that said, it’s the language people use, that make others like myself want to leave the field of medicine. We always hold empathy for patients with cases, it happens in our families as well. When people say “there were NO symptoms” that is where I draw the line. The reality is, our minds without clinical trainings, are not stressed to know that it’s not just an infection or a virus if it doesn’t go away.
      You need good people in medicine, so we do get better at pre-cancerous results and healing bacterias before they become problematic.
      But those people are leaving bc patients don’t respect or give respect for what we know versus what they blame us for later.
      Urgent care, is what most ppl go to. Urgent care, my friend, is filled with PA’s & NP’s who are at their lowest of abilities and tolerance to perform medical care. They don’t spot cancers early-stage. & this is why I wanted to respond… stop going to urgent cares bc it’s easy or cheap… your insurance will cover most physician visits… see an actual office.