This is me right now. Have 3 bumps below my jaw and 4 in various regions of my neck. Honestly tired of waiting just to get diagnose and going to see an ENT specialist tomorrow. Hopefully all is well. 😌
Getting the diagnosis (while not great) can be such a relief! At least you’ll know 1) if you’re fine, or 2) what you need to do to get back to being healthy!
Thank you for sharing your story. Please share more of the story. Have you heard of medications causing certain types of cancers? Is this type of cancer curable? Can it be found out through blood tests? (or what other way OR is thru MRI's scans only?) Why didn't they put you asleep for the bone marrow biopsy? (is there a reason why they can't?)
I will definitely be sharing more! I am not sure about medications causing cancer. I have heard about some chemos causing other types of cancer. I had two forms of lymphoma. One curable and the other will probably come back
Also I don’t think they can tell from a blood test. I had to do a CT (or PET scan, I can’t remember which but it wasn’t an MRI. I misspoke in the video) and a biopsy
I had non Hodgkin when I was 42 years old. I had 12 chemos, one session each week. They gave me 6 different chemo drugs, alternating two each week. The good news for you is I am now 76! I pictured Jesus killing the cancer with a pick. I kept my humor thru the 12 weeks. Cancer free for 34 years!!!
Wow. 22 years ago 3 weeks before my wedding I was diagnosed with non-hodgkin's. I thought the same thing no kids. We cancelled 300 people coming to wedding cause i needed chemo asap. after getting misdiagnosed for 3 months. We got married in church just our families. long story short. 11 months later my huband was diagnosed with hodgkin's lymohoma. I know insane. We saved his sperm in case. waited 5 years to be in remission. genection councelor said not genetic. so was gonna go for invitro. GOT PREGNANT ON OUR OWN 1 Try. then again, and again and 4th was when i was 40. i am 53 now. never lose hope!!!!!!!!
Thank you for sharing your story. My mother was diagnosed with stage 4 DLBCL Lymphoma. She was treated with R-Chop. And she had been in remission until this September , but it seems like it relapsed. You are an inspiration, plz keep making these videos.
You shouldn’t ever have to consider your workplace as being “incredibly understanding” because they let you go home immediately after a cancer diagnosis. America baffles me. Wishing you all the best in your recovery x
I agree. Id say idc im not going to work because I have cancer. You want yo fire me ill take you on legally. Ff that disrespect workplaces try to throw on vulnerable employees
I guess I watch these videos to prepare myself in case this ever happens to me. I applaud you for make this video to help others. Toady is 4/20/23. Praying u are in remission.
I used to work for a head and neck surgeon who operated three days a week and had two days in the office each week. He always gave cancer diagnoses over the phone so you could process all your feelings and get your questions in order before having an appointment with him. He was incredibly busy and a literal miracle worker, he would operate on people who had been told by other doctors there was nothing to do and would end up curing them. He didn’t have time to let people have their reactions in his office...perhaps not the best bedside manner for everyone but if I needed surgery he’s the man I’d go to. Just one persons insight into why some docs give over the phone diagnosis’s.
I think most appointments where a serious diagnosis is announced is just that-an announcement. You are too shocked and scared to think anything beyond "How bad is it? Am I going to die? What will happen to my loved ones?" to either ask or to take in any information the doctor might tell you. All those things happen in the follow up appointment, when you got to calm down a bit and think about the logistics of how to approach it.
I’ve just been referred to an oncologist because it’s likely that I have lymphoma. I have swollen cysts behind both ears, down my neck and under my armpit. I’ve been watching videos like yours to some kind of inspiration. Hope your still doing well today! To whoever reads this please pray for me ❤️
@@ol-lurker hi thts such amazing news to read from you I'm ms Janice Maria I'm a 63 yr gramma I was diagnosed bk in April 2024 this spring w non hodgkin's lymphoma I'm on RCHOP I'm on my 4th session last mo I was told iam in complete remission well I don't feel like it I was in hospital last week and last mo. Chestpain no heart attacks thank God I keep hearing g same thing tht the chemo is doing its job thts why I feel awful bcz I'm still recie chemo well I've got 2 sessions left only I. Still asking Jesus to help rescue me
@janiceaguilar3593 I'm so happy for you! Make sure you do those last two sessions! Very important 👏. You will feel lousy for a while but not too long. The results are worth it! God Bless
Wow you are very interesting!!! Love your personality!!! I am a cancer survivor for 19 years. I had hodgkin's lymphoma and went through chemotherapy and radiation therapy! I wouldn't wish that on my worst enemy!!! I am still feeling the effects today!! Well God bless you and hope you live a healthy life !!!!
This video was so helpful! I am currently in the process of trying to get a referral from my primary. I thought I had a tooth abscess but it's a swollen lymph node. It could be anything but hearing your story gives me peace of mind. I saw your other videos and I couldn't be more thrilled that you are now a mama! Your light-hearted attitude is so wonderful and calming! Thanks again.
I also have a bump on my neck and i went to the doctor because a person i know has lymphoma so i thought ill check it out and he gave me antibiotics so now im looking for a new doctor it kind of sucks when doctors dont take you seriously
Wow I can’t imagine hearing about being diagnosed with stage 4 lymphoma over the phone at work. That’s good that they told u asap cuz I imagine the drive to the doctors office would’ve been a lot of anxiety! I’d love to hear more about your story!
So nice to have run across your video. I was diagnosed with stage 3 small cell follicular lymphoma Feb, 2017. I appreciate your openness and hearing your experience. I was devastated at first. I decided to go with a clinical trial of rituximab. I am here to tell about it almost four years later. Initially I was wrongly diagnosed with large B cell diffused lymphoma, it was a much more threatening form. I hate to say I was thankful for the misdiagnosis, but the truth is I was. I can not imagine battling both at the same time. God bless you :) I hope you are strong and healthy now.
I was just diagnosed with Esophageal Cancer. I have Fanconi Anemia, liver issues and type 2 diabetes.... I don't know how long I have. Please keep me in prayer.
You are so poised and articulate and an amazingly strong young woman!! I am so impressed at how generous you are about sharing something so painful and difficult and personal. No doubt you will help and inspire many people! Wishing you many blessings for good health and beautiful, healthy children when the time is right for you. 🙏🙌💕
Thank you so much! I love to share my personal experiences because I feel like we can all learn from each other. I am a teacher by profession and at heart ☺️
@@MelanieCamille The world needs more people like you with heart and courage. Congratulations on your pregnancy. How exciting and wonderful you are now fulfilling your dream!! 💕
I had non Hodgkin's lymphoma ( mantle cell )stage 4. Dr. Told me it was incurable. I refused chemo, radiation and surgery. It's not until i surrendered to the my Lord JESUS CHRIST that. I saw healing to happen. GOD put key essential people in my life that contributed to my healing. All the praise and glory belongs to the Lord! Heal the spirit!!!
My sister in law is currently going through stage 4 diffuse large B cell, as well as having the non aggressive form of lymphoma. This video really helped me understand, and also made me feel good about her recovery. She’s on her 4th chemo, only two more to go!
Im also primary mediastinal large b cell lymphoma ..my doctor told me its a rare condition..im scared im waiting at hospital for my 2nd chemo..it will be 6 days..through my neck..im 26 years old...chemo im scared of chemo
I had falicular lymphoma stage 3 grade 3; I have been in remission since May 2017. Between January 2017 and May 2017, I had 6 rounds of R-Chop. It was hard because I have three children. I will be praying.
I'm an epidemologist and that is so upsetting to me. Family MDs say to me, well you don't know what it's like to deal with a patient insisting on antibiotics. I respond... THEN EDUCATE YOUR PATIENT!! There is a RUclips doc, which is bizarre, but this is one of those cyst docs, he gives antibiotics, all the time, for just in case... Triggers me too! Blood work for infection and is it even bacterial? Don't take antibiotics guys, insist on facts
You singing my tune! I have refused antibiotics SO many times. Why do docs push the script? NEVER take antibiotics unless you have proof or labs you need them. Turns out I was right every time, never died. 19 years no antibiotics 😊
My Family doctor gives me antibiotics all the time. Without any blood work done. When I asked him, when he gave me antibiotics for a runny nose, he said "...it could get infected soon. So take them." 😅
Doctors push antibiotics and opioids plus many other drugs like lollipops because the drug companies make it worth their while. Not all doctors, but wayyyy too many. If this is not the case then we have hundreds of thousand of lazy, incompetent, ignorant doctors out there so I still go with my first comment.
My grandmother had non-hodgkins lymphoma years ago before I was born (1980) and thankfully she was cured. Lived to be in her 70s. Passed from Alzheimer's.
Thank you so much for this video. I am 31 and I am working on my Bachelor's degree. I was diagnosed with Diffuse Large B-cell Lymphoma on Monday. Like you, I haven't had any of the "classic" symptoms other than a lump (mine is in my tonsil and I have one hard lymph node in my neck), so other than having this big bump, I feel completely fine, so weird. I am desperate to at least finish my semester, but I am starting to worry a lot about being forced to drop out. I haven't been staged yet, but 4 weeks ago, my lymph nodes in my neck were clear on a CT, so hopefully the one that is acting up now is just a response to a pretty invasive tonsil biopsy. I really appreciate your videos, since NHL tends to mostly effect older people, it is good for me to see someone who is about the same age as me who has faced what I am about to face. Peace and Love
Also! So weird you were told over the phone!!! My doctor's office had a temp who kind of messed up and let slip that my doctor got my second CT bumped up a month after seeing my biopsy... so I knew... but he did make a point of clearing an hour of his schedule to break the news face to face and answer my questions.
This makes me so happy! This is exactly what I want my viewers to feel like after watching my videos. I want them to feel like they are not alone and hopefully a little less scared
I am 13 and have had a swollen lymph node for about a month. It is super tiny and right at the line under my jaw. We are going back to the doctor for another appt. I’m really scared because I’m so young but I think it will get better. Btw you are super strong and I am so happy everything worked out for you!
I was diagnosed with stage IV non Hodgkin's lymphoma in March 2018. I had 18 weeks of chemo and at the beginning of August 2018 I was told I was in remission. I just got my chemo port removed yesterday. Stage 1 is if the nodes are only in the neck area. Stage 2 is if the chest is involved. Stage 3 is when you have swollen nodes in your abdomen, and stage IV is when it's in your bone marrow. Happy you're doing well now 😁
oh i just recently had the joy of a bone marrow biopsy and under local only . was so wonderful . its came back negative so that's good now i just want to get a game plan set up so i know how to scheduled my life for this run . like you i wasn't sick or tired or anything just notice a swollen lymphnode under my arm . its way bigger now but still no pain and no ill feelings .
She’s happily and most blessedly pregnant now. So your blessing exceedingly abundantly beyond all you see and imagine prayer is being answered! What a blessed sweet prayer you gave her! And how awesome is our God!! 😄🙌🤗🌈🌸
For emergency purposes so you know and get despite enough with pain that your willing to throw up... nausea and vomiting is not an allergy.... it’s definitely an aversion though for most. Hives and throat swelling and or trouble breathing etc are allergies. Although uncomfortable... the nausea won’t kill you. True allergies are the symptoms that have the potential to kill you. I get many patients that lost diarrhea even as an allergy.... it’s not... sometimes the drug is more important than unpleasant side affects. Glad everything Has worked out for you. Your strength is amazing and inspiring!! Stay strong gurl!
All MD’s are different. There is no standard for notifications on certain diseases. Some docs will have you come in right away,however due to time sensitivity in starting treatment some docs want you to know as soon as possible and unfortunately that means getting the dreaded phone call at the most inopportune time. My friend got the call about his stage IV cancer while he was at a Red Sox game with his family.
This was a good video. I was diagnosed with Invasive Lobular breast cancer, through the CT scan they found enlarged lymph nodes in various areas of my abdomen, a biopsy showed it was Non Hodgkins Lymphoma. A bone marrow showed now it’s in my bones! I went for my bilateral mastectomy and they found the tumor was MUCH larger than any scans showed and was also in 6/13 lymph nodes on my right side. Also the scans never showed the ductal cancer and Paget’s cancer I had in the left breast also! I m 3 weeks post mastectomy and saw my Oncologist yesterday. There are some concerns he had on the Pathologist report, so I will know soon ( when he calls me back after conferring with the Pathologist ) if I will be having chemo and Radiation. ( he did say the chemo could be a help for the Non Hodgkins Lymphoma. Thank you for your video!
Nausea is a common side effect of opioid medication. It is NOT an allergy. I am a board certified Emergency Medicine Physician. I was just diagnosed with Non Hodgkin’s Lymphoma. I have had a bone marrow biopsy. The results aren’t back, yet. I am going to be scheduled for a PET scan. Awaiting for my insurance to approve it.😳 Enjoying your videos. By the way, there is no radiation in an MRI scan. CT scans do involve radiation.
I thought it was strange that they told me I was allergic... but I’m glad you’re enjoying the videos 💕 Oh and I meant CT scan. Had to mention that in my update video lol
I am allergic to Morphine. I get terrible rash. I hear that reactions get worse with more exposure so I don’t get it. I have had anaphylaxis from IV Contrast dye. I’d rather not go through that ever again. The only problem with being allergic to Morphine is that I often get the side eye because I guess a lot of people say that they are just to get a stronger drug. Opioids make me terribly sick too. I always make sure to get zofran as soon as I can before pain medicine
How about poisoned air full of petrol and diesel particles as well as so many other things, the poisons that go into water supply because of the need to combat germs with chlorine etc. and fluoride for dental health, the drinking of alcohol which is now known to be a cause of at least 25% of common cancers. Let’s face it, our lifestyles are killing us, and it will only get worse, not better.
Because I have swollen lymph nodes in my groin and armpits. No night sweats, no fever no fatigue. I did have blood in my stools for about 24 hrs then but not after that to date. No health insurance.
MRI doesn’t use radiation. The high cost of MRI is why doctors don’t prescribe them unless they are absolutely necessary. CT is the go-to in most situations. It DOES use radiation but is less expensive and the equipment is more readily available than MRI.
I have Non-Hodgkins Lymphoma I went through the bone marrow thing I went through almost everything you did my platelets are really low next week I'm going or actually Thursday I'm going to the doctors for my platelets to see what he's going to do about them so I know how you feel I'm hoping not to lose my hair but if it happens it happens as long as I don't lose my life I am sorry to hear that you were sick and hope you get better soon and hope your fiance stays by your side have a nice day
Just lost my best forever(one in a million wonderful girl) friend...in her thirties...she had non hodgkins....years back....had chemo and we didn't know if they'd beaten it......however she beat it ...........doubled her weight...looked amazing....had a lump but she said nothing more...stayed in touch...she got her own home etc...got a life..I moved to a different town.....years on.......I believe she said t hey found another lump...became much thinner (her selfies on facebook looked thin)...hadn't seen her for years but connected on facebook and calls....she never told me her cancer had returned... My phone is cut off..(ex had been paying for it but stopped).....next thing I know....I see the obituaries on her facebook😥😥😥😥 I'm still shocked.. .I'm still processing.....grief...🙏....xxx
I sort of stumbled onto your video because my wonderful uncle died of Hogkin’s disease at the age of 49. What a straight forward way you have in describing what might drive a person into fear and isolation! I just want to say Melanie, that you are an amazing person!
I was diagnosed non Hodgkin's lymphoma (peripheral T cell ) on 15 april18.then took 6 cycle chemotherapy.and I needed BMT to be done which was autologous transplant on October 18.doctor have told me that It can relapse.now I am 42 yrs old, became menopausal as chemotherapy effect.i have 2 kids.i am happy that I am still alive for my kids
Amen! I love ranting about the over prescribing of antibiotics... if I get them when I don’t need them I just save them for the zombie apocalypse....good luck with your journey, hope you are doing well 🙏
I get these lumps but they are a fibrous build ups as an Aussie I burn them out by massaging with eucalyptus oil it really works and can I suggest a large glass of carrot and beetroot juice. All the best, there’s nothing you can’t overcome!
MRIs don’t have radiation, they are the safest mode of taking “picture” from the inside of your body. Best of luck and hope you’re doing better as days go by🤗
I’ve just been diagnosed with non Hodgkin lymphoma stage 1 and they are waiting for it to change before they treat me, which freaks me out as I would rather be treated now and nip it in the bud, but they said that they are going to keep an eye on it, I’ve had no symptoms it was discovered by fluke when I had an mri scan for my back and they found it under my arm in my lymph node your video makes me feel so much better and I have learned from you already, thankyou for your upload and information all the best to you from Norman in Scotland 🏴
@@finiavanamandresy5460 hello, I went to the hospital for a ct scan I think it was if not it was and the scan was for chronic back ache, and they discovered spinal stenosis but also that is when they found that I had the non Hodgkin lymphoma and I’ve never smoked I don’t drink or take any drugs apart from painkillers and then they just told me I had it, no symptoms nothing, I’m still awaiting any treatment ,they said they would keep an eye on it as it seems to tend to shrink on its own, until last week I have had no lumps but I got ringworm and itchy rash from somewhere, it’s not a worm or anything that’s just its name and it started under my right ear and I applied cream but as it went away from there it went around my neck, eventually to my left side of my throat and it’s swollen, if you look in the mirror you can see it swollen, I’ve not managed to get to the doctors yet to see if it is the ringworm that has done it, or if this is the start of something, but I’m sure that it’s ok, but I have not had any treatment for over 12 months ,I’ve just been left an mri
Hi Melanie, I’m glad I found your video. I’ve had a lump under my chin for at least two years. It would get smaller and bigger. I mentioned it to my endocrinologist several times and he said the same thing - might be a virus I’m fighting. I went to him because I have hypothyroidism and I have a growing nodule (non cancerous) near my thyroid. I noticed the lump under my chin getting bigger these past few months and my general physician wanted me to get an ultrasound. There is indeed a swollen lymph node about 2-3 cm large. It’s hard to make out the symptoms, whether it’s due to my thyroid or something else. The GP did run my labs and he said my white blood cells look good so he wants to recheck in June and send me to a neck specialist if the lump is still there. Thing is, I know it will still be there. It’s been there for 2 years now. I noticed I’ve had a few rashes spring up near my armpits all the way under my upper arms. I have eczema patches but this is abnormal for me. My usual eczema routine hasn’t helped it for weeks now. I’m at a loss about what to do at this post. If I should just wait or push for an appt with the neck specialist ASAP. It’s scary and people, including family, around me don’t take my concerns seriously.
I don't even know you but really like you approach to the cancer. I have been dealing with prostate cancer 3/4 because the doctor say one thing and the pathologist says another. Anyway God bless and I hope you beat this thing get to become a mom.
@@MelanieCamille wahoo! So happy for you, Melanie. Wishing you a healthy pregnancy and delivery. Looking forward to watching some of that journey. Take good care. - Paige
Thank you so much for all this information. I’m sorry this happened to you... but it’s so cool that you’re spreading awareness and educating others. I started my search online because I’ve been feeling sick, on and off for years. Fatigue, shortness of breath and chest pains, upper back/shoulder pain, bruising, prone to infections... And now I’ve lost 13 kg (28 lbs) in 3 months, and I’m fairly petite already. I have the same bump on my cheek that doesn’t hurt, but I suspect it’s making my jaw hurt. I also have a bump behind my ear, under my jaw and above my collarbone. I’ve had swollen lymph nodes so bad that my husband woke up and found me on the couch with an ice pack on my face. I’ve had a cold for 3 months now and I’m starting to lose my mind, so I abuse my sleep meds I have for my anxiety. I also take way too much melatonin, but I CANT SLEEP if I don’t. My doctor says that my blood is perfect and I’m “too young to be sick”. I’m 25... He actually refused to send me to an ENT specialist for the bump on my cheek. He refuses to do a scan. He doesn’t even want me to call anymore because I’ve “bothered his assistants too much”. I am completely broken. I really don’t know what to do, if I need to get a second opinion, which tests I should have done. If anyone has some advice I would be so grateful... Again, THANK you for these videos and I wish you lots of luck and strength. ❤️❤️❤️❤️
The whole "young=healthy" stereotype is what led me to go untreated for so long. Such bullshit!! I'm 26 and have every single concerning symptom now because I was ignored for more than a whole year. Switch to a different doctor asap!! Best of luck to you on this journey and take comfort knowing you are not alone! Here if anything blessings
@@maitreyadecoded3040 Oh my... I am so sorry. You did not deserve that. I know how frustrating it is to be ignored by the people who are supposed to HELP when you’re in pain/discomfort. Thank you for your lovely, kind words. Let’s feel better soon ok?! ❤️
I have just found you and your inner Brightness just shines through I am old now and I get very Depressed over the Things that have happened to me in Life and here's you talking about this with out falling in to the Depth of Depression I would And your young and full of Life and optimism I think your Amazing and Strong and with that Attitude will make your life what you want it to be PS and your very Pretty
OMG thank you! That you are so so sweet! I am definitely not always positive, but I definitely try to be. Especially when it comes to situations that are very easy to get depressed about. It helps that I’m in a very good place in my life right now ☺️
A nurse called me (I was driving ) to tell me I had breast cancer. It was a cold rush that went from my head to my toes. I’m sorry you had to go thru it like that at.
Melanie Camille I wish you all the luck in the world. I was 48 I can’t imagine just starting my life like you are. I’ve been praying for you. You look good and you are happy that is what you have to do. Your happy attitude will help you through this. You are brave and strong.
I also got the call while I was at work. Thought that was odd and unnerving, but I was glad I knew right away it was like just ripping off a bandaid , if they called me into the office to tell me my results I would have been more anxious.
Hi , thank you so much for sharing your story. I am 63 and suddenly developed an intense itching on the back of my neck with a rash that 2 prescription creams didn’t help and was given a stronger one from a dermatologist. I also have a small swollen lymph node in my neck that is palpable to the physicians. The worst part is that the itching has spread to other parts of my body. I am a nurse and know this is not normal especially when I have never had any issues with my skin, so I will be returning for a biopsy. Please pray for me as I lost both my youngest brother and then my 16 year old son to tragic accidents and have a wonderful daughter and 3 wonderful grandchildren and a wonderful son in law. I don’t know how she will deal with more bad news, but I know the Lord is good! Thank you again 😊🙏🏻 Linda
My daddy had non Hodgkin’s lymphoma. Fought a long hard battle. Multiple sessions of chemotherapy. He had an aggressive form and it kept coming back. Until the last time we took him to the hospital, it was everywhere and they told us there wasn’t any more they could do. RIP Daddy 5/16/1995
Hi I hope you’re doing well today💛I can’t imagine what you’ve gone through. I really appreciate the fact that you did this video to help others. I would love to hear your opinion on my unresolving symptoms thats been ongoing for 18 months. I did every test possible(colonoscopy,endo,zinc,vitamin D,B12,ANA,celiac, thyroid panel,h pylori,every possible STD) and the only thing that was wrong was unexplained iron deficiency. I got iron infusion because pills didn’t work. Do you remember if you had unexplained iron deficiency? as for the symptoms did you had more symptoms others you’ve mentioned in the video? my first symptom was hair loss from scalp,body,eyelashes,eyebrows,armpit, legs(hundreds every day) ,I was disgnosed with chronic telogen Effluvium, drenching night sweats but not consistently like 7 times a month, extreme fatigue,IBS( do you remember if you had digestive issues? my stomach rumbling no matter what I eat), unexplained weight loss,memory loss, yellow ridged nails(did you notice changes to your nails?), geographic tongue, tingling in feet,back pain and muscles pains and insomnia(like getting up 3 times a night)?? I don’t have any itchying or swollen lymph node(that I’m aware of). my doctor referred me to do a full body CT scan .. I’m a little bit afraid but this past 18 months were pure hell. I just want answers🙏🏻. I’m 27 years old male. Thank you!
I can’t believe they were so reluctant to diagnose. They did a Ct scan on me, saw some enlarged lymph nodes, and automatically said, “it’s probably lymphoma.” Turned out to be sarcoidosis.
OMG! 😮 I’m pretty sure they legally have to know what it is before saying anything. Or at least it’s considered good legal practice. I’ve never heard of a doctor assuming what a diagnosis is
Melanie Camille you’d think, right? All my paperwork that summer under diagnosis was “lymphoma.” I think a lot of sarcoidosis patients have this happen. And because of extenuating medical circumstances it took a particularly long time to have a biopsy. So for about 7 weeks it was lymphoma (until it wasn’t).
@@MelanieCamille Wrong , I was told I had cancer 7 times...and the second to the last time . they said it was advanced Ovarian...4 weeks or so... but they all proved to be wrong, until I had a bad eye and went to the doctor , only to hear I had cancer for the 7th time...this time the biopsy proved it. Non Hodgkin's Lymphoma...of the tear ducts. Stage 4. Went to an Oncologist... very older and cold and told me what he was going to do refused to tell me anything about my condition. Answer my questions and especially refused to hear my opinions... I worked as a Home Health and Hospice CNA for years and drove cancer cases for radiation and Chemo.... for 20 years... I told him I refused Chemo and Immunology....and he got angry. So I left and called the office and told them I was done. I went on Keto diet... no sugar, flours and low carbs, Take CBD oil for any pains. I did 5 months of THC in Rick Simmons form. Hated the feeling . Lost my one eye.... and the other has lost 50+% of vision. Pet Scan shows it did spread in two places... but her I am 4 years later still going strong...GOD told me to be still and know HE is GOD. I did and HE is !! My eye looks bad and they wanted to do radiation on it....a year ago...but then pushed the Chemo and Immunology....again. WE did ask the doctor to allow me to try another doctor and his words were, If she doesn't want me....she can go elsewhere. The problem is the Hospital is less than a mile away, and there are 6 Doctors there...The Radiation Doctor was the one who asked, and she was shocked by his answer. I had warned her. I am 72 and still able to function and do my jobs taking care of my husband, He is 76 and crippled. GOD is amazing and he does care. I think this has been a blessing... I am able to share and enjoy each and every day. So Happy to hear your good news ...hope it all goes well.
Thank God you can have children anyway! I'm 18 and don't plan on getting kids soon but I would be so devastated if I heard I couldn't be a mom :( God is always with us!
Mel. I just knew you would recover. Your type of the big C has a high rate of recovering. A Baby WOW Having a baby 👶 is more exciting than a Wedding. Let all of know 😌
I avoid them at all cost! Ya, I realized after that I meant a CT scan. I wish I could go back and edit just that part of the video because you’re about the third person to point that out lol
My mom had non hogkins lymphoma and had her spleen removed it was over 4 pounds, they gave her a new kind of drug that had mouse Dna and she is now cancer free for ten years.
Wow! 10 pounds!? That's crazy! I am glad she is better now. Was the drug Rituxan? I took that too. My mom is Puerto Rican and she is very proud to let people know that was created by a Puerto Rican lol
I feel like as much as DR. "know" and even if you have something that they know will heal with chemo they seem to "ALWAYS" add a lil extra illness. The holisticness in me tells me THEY ARE ALL BUSINESS! i could be wrong but it's just how i feel. Hope you are feeling well. :)
I'm glad I'm not the only one that had to really stand my ground about the antibiotics! I first noticed my lump in early December. My doc sent me to an ENT who prescribed amoxicillin and wanted me to just wait and come back in mid February to see if it went away. I didnt like that idea so I went to Dukes ENT Oncologist. I just had my biopsy done today, which was pretty uncomfortable but I'm glad its done. By the time my feb 14th appointment comes around to see if the antibiotics got rid of the lump, I'll already have the results and treatment plan if it IS cancer!
Hi Thx for sharing your story. Just stumbled across your channel researching my health issues . Wondering - what type doctor handled your bone marrow biopsy? God bless .
This video was very informative because I’m experiencing the same symptoms. First symptom was a hard lump under my chin then I developed the lumps behind my head. Another thing that was occurring was I had acne on the bottom of my jaw line. That’s when I went to the doctor and they gave me antibiotics. I Finished the antibiotics and lump behind my head went down but the one underneath my chin was smaller but still there. I went back to the doctor and she said it normal to have it because I might be fighting an infection and gave me medication for the acne. This morning I woke up because I developed a new lump thats very uncomfortable on my left side of the bottom of my chin. When I lay on my left side of my body I can feel the tightness and the shift of the lump by my left bottom chin. Whiles watching your video, I felt for the ones behind my head and now I realize that they are returning but not as big as before. This is alarming to me. I’m calling the doctor today!!! I’m going to ask them for a blood test.
I want to hear more!!! Still sad I couldn't be there for you since I had a germy kid...haha!! Excited to watch your videos again. It's always exciting when you post one. Love you!
I’ve been having armpit pain after pregnancy and I have 2 lumps behind my ears. I’ve been trying to ignore it because I’m so scared to go to the doctor. My armpit did not really hurt that much before but I feel like something is wrong now. I’m so scared because I’m just 20 and I have a 8 month old son. My appointment is on the 22nd. I’m hoping for a great news.
UPDATE: my appointment was moved to the 29th. When I came in the doctor checked my right breast and asked me questions. She said that I should try to put a cold compress on the swollen part on my armpit. I’m having an ultrasound for the lump behind my ear and my right armpit on January 14th. I really did not get anything from my check up bec she just asked me to schedule an appointment for the ultrasound to figure out what the lump is. I’m more nervous now...
Also i was surprised that they didn’t even do a cbc for me they just examined the lump and dismissed me. The nurse practitioner also said that she wasn’t able to feel any lump in my breast and those are just breast tissue which are normal because I’m young.
@@trish7256 AVOID DAIRY!!! to consume dairy means a human is ingesting the endocrine fluids of a very large animal and it most definitely compromises the glands of the human. It causes mucus and fluid to amass, which is the bodys response to a foreign invader, it encompasses it and tries to expel it as quickly as possible. AVOID IT!!!
Thank you for sharing your story. I am glad you are in remission! I have one swollen lymph node in my neck that has been worrying me. It’s painless & since I’ve started paying attention and counting, it’s been there for 70 days so far. It gets bigger and smaller and bigger and smaller again but never goes away. The CT shows it’s less than a centimeter but they still want me to see a hematologist to make sure it’s not C. I can’t tell if it’s hard but I don’t think it’s moveable. I have no clue what to think :(
Hi! Reaching out years after this comment bc I have this as well. I have had 1 swollen node on my neck for a year that comes and goes for a year. I saw my dr and he gave me a 30 day prescription for scalp infection, and it got better for a month but came back. Did you find out what was causing it?
@@rachelknight6554 Hi! I’m glad they are being proactive in figuring out what is causing it for you. Mine is still swollen and now I find that I have a few more, all very small and painless-and movable. These indicate non C, so if yours is similar don’t panic! I am thinking mine is due to chronic inflammation and/or autoimmune. The doctor never seemed worried so I haven’t done anything else. Wishing you positive news and peace of mind!
I was asked if i "wanted" a ct for abdominal pain i was having, leg swelling for over a year....they tried to say that it was just muscle pain and basically brushed me off....until i got my results. Ended up with getting a stent put in in an artery that was completely closed off. Basically, circulation was being cut off to my leg, and the blood wasn't circulating back to my heart....
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Did this video help you out? What did you find to be the most useful information?
This is me right now. Have 3 bumps below my jaw and 4 in various regions of my neck. Honestly tired of waiting just to get diagnose and going to see an ENT specialist tomorrow. Hopefully all is well. 😌
Getting the diagnosis (while not great) can be such a relief! At least you’ll know 1) if you’re fine, or 2) what you need to do to get back to being healthy!
Thank you for sharing your story. Please share more of the story. Have you heard of medications causing certain types of cancers? Is this type of cancer curable? Can it be found out through blood tests? (or what other way OR is thru MRI's scans only?) Why didn't they put you asleep for the bone marrow biopsy? (is there a reason why they can't?)
I will definitely be sharing more! I am not sure about medications causing cancer. I have heard about some chemos causing other types of cancer. I had two forms of lymphoma. One curable and the other will probably come back
Also I don’t think they can tell from a blood test. I had to do a CT (or PET scan, I can’t remember which but it wasn’t an MRI. I misspoke in the video) and a biopsy
I had non Hodgkin when I was 42 years old. I had 12 chemos, one session each week. They gave me 6 different chemo drugs, alternating two each week. The good news for you is I am now 76! I pictured Jesus killing the cancer with a pick. I kept my humor thru the 12 weeks. Cancer free for 34 years!!!
God Is Good never fails !
Amazing. God bless.
Praise the Lord 🙏
Wow!!!! Jesus hears our prayers congrats
What type of non Hodgkin's lymphoma you had suffered?
Wow. 22 years ago 3 weeks before my wedding I was diagnosed with non-hodgkin's. I thought the same thing no kids. We cancelled 300 people coming to wedding cause i needed chemo asap. after getting misdiagnosed for 3 months. We got married in church just our families. long story short. 11 months later my huband was diagnosed with hodgkin's lymohoma. I know insane. We saved his sperm in case. waited 5 years to be in remission. genection councelor said not genetic. so was gonna go for invitro. GOT PREGNANT ON OUR OWN 1 Try. then again, and again and 4th was when i was 40. i am 53 now. never lose hope!!!!!!!!
Wow! That's an incredible story!!!!! You should make a video about that. Thank you. I will keep you and your family in mind when I start to lose hope
How is he now
God bless you
Thank you 🙏🏼
@@MelanieCamille God bless you too. Strong and beautiful women. I admire you both. How are you doing right now?
Thank you for sharing your story. My mother was diagnosed with stage 4 DLBCL Lymphoma. She was treated with R-Chop. And she had been in remission until this September , but it seems like it relapsed. You are an inspiration, plz keep making these videos.
You shouldn’t ever have to consider your workplace as being “incredibly understanding” because they let you go home immediately after a cancer diagnosis. America baffles me.
Wishing you all the best in your recovery x
Thank you
I agree. Id say idc im not going to work because I have cancer. You want yo fire me ill take you on legally. Ff that disrespect workplaces try to throw on vulnerable employees
I know right.
I guess I watch these videos to prepare myself in case this ever happens to me. I applaud you for make this video to help others. Toady is 4/20/23. Praying u are in remission.
Never look back..never give up..never stop living..pray for you
Thank you 🥰
I am so proud of you for speaking up to the Dr. great job Drs don’t like it when you question there judgements 😊
Thank you. At the end of the day it’s our bodies and we should speak up for them ☺️
I used to work for a head and neck surgeon who operated three days a week and had two days in the office each week. He always gave cancer diagnoses over the phone so you could process all your feelings and get your questions in order before having an appointment with him. He was incredibly busy and a literal miracle worker, he would operate on people who had been told by other doctors there was nothing to do and would end up curing them. He didn’t have time to let people have their reactions in his office...perhaps not the best bedside manner for everyone but if I needed surgery he’s the man I’d go to. Just one persons insight into why some docs give over the phone diagnosis’s.
Thanks for that insight! Unfortunately I’m pretty sure that wasn’t the case with my oncologist, but I totally see your surgeons point
I think most appointments where a serious diagnosis is announced is just that-an announcement.
You are too shocked and scared to think anything beyond "How bad is it? Am I going to die? What will happen to my loved ones?" to either ask or to take in any information the doctor might tell you. All those things happen in the follow up appointment, when you got to calm down a bit and think about the logistics of how to approach it.
That’s a good point
I’ve just been referred to an oncologist because it’s likely that I have lymphoma. I have swollen cysts behind both ears, down my neck and under my armpit. I’ve been watching videos like yours to some kind of inspiration. Hope your still doing well today! To whoever reads this please pray for me ❤️
I hope these types of videos are brining you hope! Have you heard back from your oncologist?
How are you doing? Any update? Hope you're doing okay.
Yes I was diagnosed with Lupus just a few days ago. Thanks for asking me for a follow up!
@@WGLLIKE I hope you're okay 🌹🌹
@@WGLLIKE is Lupus manageable?
Thirteen yyrs ago i was diagnosed with both DLBC and follicular lymphoma. Did R-CHOP 6 months and I'm still here 😊
@@ol-lurker hi thts such amazing news to read from you I'm ms Janice Maria I'm a 63 yr gramma I was diagnosed bk in April 2024 this spring w non hodgkin's lymphoma I'm on RCHOP I'm on my 4th session last mo I was told iam in complete remission well I don't feel like it I was in hospital last week and last mo. Chestpain no heart attacks thank God I keep hearing g same thing tht the chemo is doing its job thts why I feel awful bcz I'm still recie chemo well I've got 2 sessions left only I. Still asking Jesus to help rescue me
@janiceaguilar3593 I'm so happy for you! Make sure you do those last two sessions! Very important 👏. You will feel lousy for a while but not too long. The results are worth it! God Bless
Wow you are very interesting!!! Love your personality!!! I am a cancer survivor for 19 years. I had hodgkin's lymphoma and went through chemotherapy and radiation therapy! I wouldn't wish that on my worst enemy!!! I am still feeling the effects today!! Well God bless you and hope you live a healthy life !!!!
Aww thank you :)
So glad you are here to tell the story! I can only imagine chemo and radiation where a lot worse 19 years ago
You've went through a whole lot. I hope and pray you are well now. Stay strong. Thank you for sharing your story. God bless 💛
I thank Jesus for your faith. Crying out for you sweetie, the Lord is fighting for you!
Thank you 💕
This video was so helpful! I am currently in the process of trying to get a referral from my primary. I thought I had a tooth abscess but it's a swollen lymph node. It could be anything but hearing your story gives me peace of mind. I saw your other videos and I couldn't be more thrilled that you are now a mama! Your light-hearted attitude is so wonderful and calming! Thanks again.
I love that you say that about antibiotics!! I couldn’t agree more!!
I just hate them being shoved down my throat! Especially when I can tell I don’t actually need them. I’m all for them if I actually need them!
I also have a bump on my neck and i went to the doctor because a person i know has lymphoma so i thought ill check it out and he gave me antibiotics so now im looking for a new doctor it kind of sucks when doctors dont take you seriously
Ya it really does!
Wow I can’t imagine hearing about being diagnosed with stage 4 lymphoma over the phone at work. That’s good that they told u asap cuz I imagine the drive to the doctors office would’ve been a lot of anxiety! I’d love to hear more about your story!
Thank you
So nice to have run across your video. I was diagnosed with stage 3 small cell follicular lymphoma Feb, 2017. I appreciate your openness and hearing your experience. I was devastated at first. I decided to go with a clinical trial of rituximab. I am here to tell about it almost four years later. Initially I was wrongly diagnosed with large B cell diffused lymphoma, it was a much more threatening form. I hate to say I was thankful for the misdiagnosis, but the truth is I was. I can not imagine battling both at the same time. God bless you :) I hope you are strong and healthy now.
I was just diagnosed with Esophageal Cancer.
I have Fanconi Anemia, liver issues and type 2 diabetes....
I don't know how long I have.
Please keep me in prayer.
What a shocking revelation to receive. Praying for you and holding you in the powerful ho'oponopono prayer 💖
You are so poised and articulate and an amazingly strong young woman!! I am so impressed at how generous you are about sharing something so painful and difficult and personal. No doubt you will help and inspire many people! Wishing you many blessings for good health and beautiful, healthy children when the time is right for you. 🙏🙌💕
Thank you so much! I love to share my personal experiences because I feel like we can all learn from each other. I am a teacher by profession and at heart ☺️
@@MelanieCamille The world needs more people like you with heart and courage. Congratulations on your pregnancy. How exciting and wonderful you are now fulfilling your dream!! 💕
I had non Hodgkin's lymphoma ( mantle cell )stage 4. Dr. Told me it was incurable. I refused chemo, radiation and surgery. It's not until i surrendered to the my Lord JESUS CHRIST that. I saw healing to happen. GOD put key essential people in my life that contributed to my healing. All the praise and glory belongs to the Lord! Heal the spirit!!!
Amen!
@@MelanieCamille many miracles happened in this cancer journey.🙏
I use cbd waterbase thc free oil from zilis since april of 2018. It's a great product.
Amen
quique chavez what were your symptoms ?
My sister in law is currently going through stage 4 diffuse large B cell, as well as having the non aggressive form of lymphoma. This video really helped me understand, and also made me feel good about her recovery. She’s on her 4th chemo, only two more to go!
I am so glad I could help. Heck yes to only two more!!!
My Sister also have same stage 4 non hodgkin is your sister better now??
Im also primary mediastinal large b cell lymphoma ..my doctor told me its a rare condition..im scared im waiting at hospital for my 2nd chemo..it will be 6 days..through my neck..im 26 years old...chemo im scared of chemo
You can do it! This too shall pass
Hii
I had falicular lymphoma stage 3 grade 3; I have been in remission since May 2017. Between
January 2017 and May 2017, I had 6 rounds of R-Chop. It was hard
because I have three children. I will be praying.
Luckily I am currently pregnant with my first! Despite what the doctor said!
I'm an epidemologist and that is so upsetting to me. Family MDs say to me, well you don't know what it's like to deal with a patient insisting on antibiotics. I respond... THEN EDUCATE YOUR PATIENT!! There is a RUclips doc, which is bizarre, but this is one of those cyst docs, he gives antibiotics, all the time, for just in case... Triggers me too! Blood work for infection and is it even bacterial? Don't take antibiotics guys, insist on facts
Yes!!! I mean If I really need it I will take it, but most of the time that's not the case
You singing my tune! I have refused antibiotics SO many times. Why do docs push the script? NEVER take antibiotics unless you have proof or labs you need them. Turns out I was right every time, never died. 19 years no antibiotics 😊
My Family doctor gives me antibiotics all the time. Without any blood work done. When I asked him, when he gave me antibiotics for a runny nose, he said "...it could get infected soon. So take them." 😅
OMG... I legit do not understand how doctors can think that’s ok...
Doctors push antibiotics and opioids plus many other drugs like lollipops because the drug companies make it worth their while. Not all doctors, but wayyyy too many. If this is not the case then we have hundreds of thousand of lazy, incompetent, ignorant doctors out there so I still go with my first comment.
My grandmother had non-hodgkins lymphoma years ago before I was born (1980) and thankfully she was cured. Lived to be in her 70s. Passed from Alzheimer's.
Sounds like an incredibly tough woman 💜
My husband just diagnosed with non hodgkin's lymphoma and the doctor said it is not curable.
Thank you so much for this video. I am 31 and I am working on my Bachelor's degree. I was diagnosed with Diffuse Large B-cell Lymphoma on Monday. Like you, I haven't had any of the "classic" symptoms other than a lump (mine is in my tonsil and I have one hard lymph node in my neck), so other than having this big bump, I feel completely fine, so weird. I am desperate to at least finish my semester, but I am starting to worry a lot about being forced to drop out. I haven't been staged yet, but 4 weeks ago, my lymph nodes in my neck were clear on a CT, so hopefully the one that is acting up now is just a response to a pretty invasive tonsil biopsy. I really appreciate your videos, since NHL tends to mostly effect older people, it is good for me to see someone who is about the same age as me who has faced what I am about to face. Peace and Love
Also! So weird you were told over the phone!!! My doctor's office had a temp who kind of messed up and let slip that my doctor got my second CT bumped up a month after seeing my biopsy... so I knew... but he did make a point of clearing an hour of his schedule to break the news face to face and answer my questions.
This makes me so happy! This is exactly what I want my viewers to feel like after watching my videos. I want them to feel like they are not alone and hopefully a little less scared
That sounds like I much better approach!
How are you now ?
Lol I can never tell of people are asking me how I’m doing or others. But if you’re asking me, I’m doing very well. We just started trying for a kid!
I am 13 and have had a swollen lymph node for about a month. It is super tiny and right at the line under my jaw. We are going back to the doctor for another appt. I’m really scared because I’m so young but I think it will get better. Btw you are super strong and I am so happy everything worked out for you!
How are ya?
So happy you are doing well and if it was an MRI- they use no radiation❤️ CT Scans do.
I was diagnosed with stage IV non Hodgkin's lymphoma in March 2018. I had 18 weeks of chemo and at the beginning of August 2018 I was told I was in remission. I just got my chemo port removed yesterday. Stage 1 is if the nodes are only in the neck area. Stage 2 is if the chest is involved. Stage 3 is when you have swollen nodes in your abdomen, and stage IV is when it's in your bone marrow. Happy you're doing well now 😁
Thank you for clarifying that! I am so glad that you're doing better too!
@@MelanieCamilleYou're welcome, and thank you. 😊
It just means stage 4 (roman numerals) :)
Which staging system is that? It isn't the Ann Arbor system
How r u now
oh i just recently had the joy of a bone marrow biopsy and under local only . was so wonderful . its came back negative so that's good now i just want to get a game plan set up so i know how to scheduled my life for this run . like you i wasn't sick or tired or anything just notice a swollen lymphnode under my arm . its way bigger now but still no pain and no ill feelings .
Thank you for sharing your experience - it has really opened my eyes ❤️
May God bless you exceedingly abundantly beyond all you see or imagine.
She’s happily and most blessedly pregnant now. So your blessing exceedingly abundantly beyond all you see and imagine prayer is being answered! What a blessed sweet prayer you gave her! And how awesome is our God!! 😄🙌🤗🌈🌸
So amazing! I am so happy to share this new adventure of life now ☺️
Just found out my nephew who is at has non-Hodgkins lymphoma. Thanks for your video. Appreciate it
You’re very welcome. I hope it helps 💕 Just remember medicine is really effective now a days. He will be just fine ☺️
For emergency purposes so you know and get despite enough with pain that your willing to throw up... nausea and vomiting is not an allergy.... it’s definitely an aversion though for most. Hives and throat swelling and or trouble breathing etc are allergies. Although uncomfortable... the nausea won’t kill you. True allergies are the symptoms that have the potential to kill you. I get many patients that lost diarrhea even as an allergy.... it’s not... sometimes the drug is more important than unpleasant side affects. Glad everything Has worked out for you. Your strength is amazing and inspiring!! Stay strong gurl!
That’s what I thought. But they told me it was an allergy 🤷🏻♀️ Either way I’m ok with not taking it again lol
All MD’s are different. There is no standard for notifications on certain diseases. Some docs will have you come in right away,however due to time sensitivity in starting treatment some docs want you to know as soon as possible and unfortunately that means getting the dreaded phone call at the most inopportune time. My friend got the call about his stage IV cancer while he was at a Red Sox game with his family.
I guess it’s better to get it sooner rather than later, but it does really disrupt your day. And then you life... lol
Thank you for your story. Please keep me in your prayers.
You are welcome. Will do!
Thank you for sharing your story - I need to watch this! It is very comforting
I am so glad ☺️
This was a good video. I was diagnosed with Invasive Lobular breast cancer, through the CT scan they found enlarged lymph nodes in various areas of my abdomen, a biopsy showed it was Non Hodgkins Lymphoma. A bone marrow showed now it’s in my bones! I went for my bilateral mastectomy and they found the tumor was MUCH larger than any scans showed and was also in 6/13 lymph nodes on my right side. Also the scans never showed the ductal cancer and Paget’s cancer I had in the left breast also!
I m 3 weeks post mastectomy and saw my Oncologist yesterday. There are some concerns he had on the Pathologist report, so I will know soon ( when he calls me back after conferring with the Pathologist ) if I will be having chemo and Radiation. ( he did say the chemo could be a help for the Non Hodgkins Lymphoma.
Thank you for your video!
Nausea is a common side effect of opioid medication. It is NOT an allergy. I am a board certified Emergency Medicine Physician. I was just diagnosed with Non Hodgkin’s Lymphoma. I have had a bone marrow biopsy. The results aren’t back, yet. I am going to be scheduled for a PET scan. Awaiting for my insurance to approve it.😳 Enjoying your videos. By the way, there is no radiation in an MRI scan. CT scans do involve radiation.
I thought it was strange that they told me I was allergic... but I’m glad you’re enjoying the videos 💕 Oh and I meant CT scan. Had to mention that in my update video lol
I am allergic to Morphine. I get terrible rash. I hear that reactions get worse with more exposure so I don’t get it. I have had anaphylaxis from IV Contrast dye. I’d rather not go through that ever again. The only problem with being allergic to Morphine is that I often get the side eye because I guess a lot of people say that they are just to get a stronger drug.
Opioids make me terribly sick too. I always make sure to get zofran as soon as I can before pain medicine
I went trhough the test, im waiting for my chemotherapy, Im Stage 4 too, hope all will go well, im 36. God Bless
How r u now
I blame the poisoned food supply for why younger people keep being diagnosed with cancer. This is scary stuff.
I agree!!!
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A government that does that and now we're supposed to believe they care about our health concerning covid.
more like vaccine poisoning
How about poisoned air full of petrol and diesel particles as well as so many other things, the poisons that go into water supply because of the need to combat germs with chlorine etc. and fluoride for dental health, the drinking of alcohol which is now known to be a cause of at least 25% of common cancers. Let’s face it, our lifestyles are killing us, and it will only get worse, not better.
Because I have swollen lymph nodes in my groin and armpits. No night sweats, no fever no fatigue. I did have blood in my stools for about 24 hrs then but not after that to date. No health insurance.
How are you now?
Hope you're doing good
You’re a special lady.
Aww, thank you :)
MRI doesn’t use radiation. The high cost of MRI is why doctors don’t prescribe them unless they are absolutely necessary. CT is the go-to in most situations. It DOES use radiation but is less expensive and the equipment is more readily available than MRI.
I have Non-Hodgkins Lymphoma I went through the bone marrow thing I went through almost everything you did my platelets are really low next week I'm going or actually Thursday I'm going to the doctors for my platelets to see what he's going to do about them so I know how you feel I'm hoping not to lose my hair but if it happens it happens as long as I don't lose my life I am sorry to hear that you were sick and hope you get better soon and hope your fiance stays by your side have a nice day
That’s absolutely right! Hair will grow back, but you only get one life.
My fiancé is now my husband! 🥰
How r u now
Just lost my best forever(one in a million wonderful girl) friend...in her thirties...she had non hodgkins....years back....had chemo and we didn't know if they'd beaten it......however she beat it ...........doubled her weight...looked amazing....had a lump but she said nothing more...stayed in touch...she got her own home etc...got a life..I moved to a different town.....years on.......I believe she said t hey found another lump...became much thinner (her selfies on facebook looked thin)...hadn't seen her for years but connected on facebook and calls....she never told me her cancer had returned... My phone is cut off..(ex had been paying for it but stopped).....next thing I know....I see the obituaries on her facebook😥😥😥😥 I'm still shocked.. .I'm still processing.....grief...🙏....xxx
I sort of stumbled onto your video because my wonderful uncle died of Hogkin’s disease at the age of 49. What a straight forward way you have in describing what might drive a person into fear and isolation! I just want to say Melanie, that you are an amazing person!
I am so glad I can be a small light in the darkness ❤️
I was diagnosed non Hodgkin's lymphoma (peripheral T cell ) on 15 april18.then took 6 cycle chemotherapy.and I needed BMT to be done which was autologous transplant on October 18.doctor have told me that It can relapse.now I am 42 yrs old, became menopausal as chemotherapy effect.i have 2 kids.i am happy that I am still alive for my kids
That is so wonderful to hear! I hope to have a happy and full life like you :)
How r u now
Amen! I love ranting about the over prescribing of antibiotics... if I get them when I don’t need them I just save them for the zombie apocalypse....good luck with your journey, hope you are doing well 🙏
I am doing great right now :)
I get these lumps but they are a fibrous build ups as an Aussie I burn them out by massaging with eucalyptus oil it really works and can I suggest a large glass of carrot and beetroot juice. All the best, there’s nothing you can’t overcome!
Definitely important to note that not all swollen lymph nodes are cancer. In fact I have an entire video about that! 😊
MRIs don’t have radiation, they are the safest mode of taking “picture” from the inside of your body. Best of luck and hope you’re doing better as days go by🤗
I know. I totally misspoke in the video. I wish I could go back and fix it because so many people have pointed that out! Lol Oh well 🤷🏻♀️
Hahaha no worries i have done that before too! It's an honest mistake. Hope you're doing well
Thank you ❤️
@@MelanieCamille Did you actually have an MRI for this or a CT scan? Which way round was the miss quote? Lol
I’ve just been diagnosed with non Hodgkin lymphoma stage 1 and they are waiting for it to change before they treat me, which freaks me out as I would rather be treated now and nip it in the bud, but they said that they are going to keep an eye on it, I’ve had no symptoms it was discovered by fluke when I had an mri scan for my back and they found it under my arm in my lymph node your video makes me feel so much better and I have learned from you already, thankyou for your upload and information all the best to you from Norman in Scotland 🏴
Hi, how are you now?
Can I ask if you had any lumps and what they felt like?
@@finiavanamandresy5460 hello, I went to the hospital for a ct scan I think it was if not it was and the scan was for chronic back ache, and they discovered spinal stenosis but also that is when they found that I had the non Hodgkin lymphoma and I’ve never smoked I don’t drink or take any drugs apart from painkillers and then they just told me I had it, no symptoms nothing, I’m still awaiting any treatment ,they said they would keep an eye on it as it seems to tend to shrink on its own, until last week I have had no lumps but I got ringworm and itchy rash from somewhere, it’s not a worm or anything that’s just its name and it started under my right ear and I applied cream but as it went away from there it went around my neck, eventually to my left side of my throat and it’s swollen, if you look in the mirror you can see it swollen, I’ve not managed to get to the doctors yet to see if it is the ringworm that has done it, or if this is the start of something, but I’m sure that it’s ok, but I have not had any treatment for over 12 months ,I’ve just been left an mri
Hi Melanie, I’m glad I found your video. I’ve had a lump under my chin for at least two years. It would get smaller and bigger. I mentioned it to my endocrinologist several times and he said the same thing - might be a virus I’m fighting. I went to him because I have hypothyroidism and I have a growing nodule (non cancerous) near my thyroid. I noticed the lump under my chin getting bigger these past few months and my general physician wanted me to get an ultrasound. There is indeed a swollen lymph node about 2-3 cm large. It’s hard to make out the symptoms, whether it’s due to my thyroid or something else. The GP did run my labs and he said my white blood cells look good so he wants to recheck in June and send me to a neck specialist if the lump is still there. Thing is, I know it will still be there. It’s been there for 2 years now. I noticed I’ve had a few rashes spring up near my armpits all the way under my upper arms. I have eczema patches but this is abnormal for me. My usual eczema routine hasn’t helped it for weeks now. I’m at a loss about what to do at this post. If I should just wait or push for an appt with the neck specialist ASAP. It’s scary and people, including family, around me don’t take my concerns seriously.
I would push for a biopsy of the lymph node. The only way to be sure
I don't even know you but really like you approach to the cancer. I have been dealing with prostate cancer 3/4 because the doctor say one thing and the pathologist says another. Anyway God bless and I hope you beat this thing get to become a mom.
Praying for you 🙏🏼
I am actually happy to say I’m pregnant with my first child! I am documenting it on this channel ☺️
@@MelanieCamille wahoo! So happy for you, Melanie. Wishing you a healthy pregnancy and delivery. Looking forward to watching some of that journey. Take good care. - Paige
Thank you ☺️
Thank you so much for all this information. I’m sorry this happened to you... but it’s so cool that you’re spreading awareness and educating others.
I started my search online because I’ve been feeling sick, on and off for years. Fatigue, shortness of breath and chest pains, upper back/shoulder pain, bruising, prone to infections...
And now I’ve lost 13 kg (28 lbs) in 3 months, and I’m fairly petite already.
I have the same bump on my cheek that doesn’t hurt, but I suspect it’s making my jaw hurt. I also have a bump behind my ear, under my jaw and above my collarbone. I’ve had swollen lymph nodes so bad that my husband woke up and found me on the couch with an ice pack on my face. I’ve had a cold for 3 months now and I’m starting to lose my mind, so I abuse my sleep meds I have for my anxiety. I also take way too much melatonin, but I CANT SLEEP if I don’t.
My doctor says that my blood is perfect and I’m “too young to be sick”. I’m 25...
He actually refused to send me to an ENT specialist for the bump on my cheek. He refuses to do a scan. He doesn’t even want me to call anymore because I’ve “bothered his assistants too much”.
I am completely broken. I really don’t know what to do, if I need to get a second opinion, which tests I should have done.
If anyone has some advice I would be so grateful...
Again, THANK you for these videos and I wish you lots of luck and strength. ❤️❤️❤️❤️
The whole "young=healthy" stereotype is what led me to go untreated for so long. Such bullshit!! I'm 26 and have every single concerning symptom now because I was ignored for more than a whole year. Switch to a different doctor asap!! Best of luck to you on this journey and take comfort knowing you are not alone! Here if anything blessings
@@maitreyadecoded3040 Oh my... I am so sorry. You did not deserve that. I know how frustrating it is to be ignored by the people who are supposed to HELP when you’re in pain/discomfort.
Thank you for your lovely, kind words. Let’s feel better soon ok?! ❤️
Time for a new doctor!
@@mrsmickayla how are you now ? Did they finally diagnose you ?
I have just found you and your inner Brightness just shines through I am old now and I get very Depressed over the Things that have happened to me in Life and here's you talking about this with out falling in to the Depth of Depression I would And your young and full of Life and optimism I think your Amazing and Strong and with that Attitude will make your life what you want it to be PS and your very Pretty
OMG thank you! That you are so so sweet! I am definitely not always positive, but I definitely try to be. Especially when it comes to situations that are very easy to get depressed about. It helps that I’m in a very good place in my life right now ☺️
You are brave and strong!!!
Thank you! I don’t feel brave and strong, just determined to keep living
Two years later and hoping you are okay😍
Love your positivity ❤ God bless you! New sub!
Thank you ☺️
A nurse called me (I was driving ) to tell me I had breast cancer. It was a cold rush that went from my head to my toes. I’m sorry you had to go thru it like that at.
Wow that’s way scarier! They should at least make sure you’re sitting down and not in a car!
Melanie Camille
I wish you all the luck in the world. I was 48 I can’t imagine just starting my life like you are. I’ve been praying for you. You look good and you are happy that is what you have to do. Your happy attitude will help you through this. You are brave and strong.
Thank you so much ❤️
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I also got the call while I was at work. Thought that was odd and unnerving, but I was glad I knew right away it was like just ripping off a bandaid , if they called me into the office to tell me my results I would have been more anxious.
That's a good point
Hi , thank you so much for sharing your story. I am 63 and suddenly developed an intense itching on the back of my neck with a rash that 2 prescription creams didn’t help and was given a stronger one from a dermatologist. I also have a small swollen lymph node in my neck that is palpable to the physicians. The worst part is that the itching has spread to other parts of my body. I am a nurse and know this is not normal especially when I have never had any issues with my skin, so I will be returning for a biopsy. Please pray for me as I lost both my youngest brother and then my 16 year old son to tragic accidents and have a wonderful daughter and 3 wonderful grandchildren and a wonderful son in law. I don’t know how she will deal with more bad news, but I know the Lord is good! Thank you again 😊🙏🏻
Linda
FYI: MRIs do not use any radiation. They use magnets and radio waves.
I know, I meant CT. I wish I could fix that part of the video because everyone lets me know lol
My daddy had non Hodgkin’s lymphoma. Fought a long hard battle. Multiple sessions of chemotherapy. He had an aggressive form and it kept coming back. Until the last time we took him to the hospital, it was everywhere and they told us there wasn’t any more they could do. RIP Daddy 5/16/1995
I’m so sorry for your loss
My daddy had the aggressive kind too. 1999.
Hi I hope you’re doing well today💛I can’t imagine what you’ve gone through. I really appreciate the fact that you did this video to help others. I would love to hear your opinion on my unresolving symptoms thats been ongoing for 18 months. I did every test possible(colonoscopy,endo,zinc,vitamin D,B12,ANA,celiac, thyroid panel,h pylori,every possible STD) and the only thing that was wrong was unexplained iron deficiency. I got iron infusion because pills didn’t work. Do you remember if you had unexplained iron deficiency? as for the symptoms did you had more symptoms others you’ve mentioned in the video? my first symptom was hair loss from scalp,body,eyelashes,eyebrows,armpit, legs(hundreds every day) ,I was disgnosed with chronic telogen Effluvium, drenching night sweats but not consistently like 7 times a month, extreme fatigue,IBS( do you remember if you had digestive issues? my stomach rumbling no matter what I eat), unexplained weight loss,memory loss, yellow ridged nails(did you notice changes to your nails?), geographic tongue, tingling in feet,back pain and muscles pains and insomnia(like getting up 3 times a night)?? I don’t have any itchying or swollen lymph node(that I’m aware of). my doctor referred me to do a full body CT scan .. I’m a little bit afraid but this past 18 months were pure hell. I just want answers🙏🏻. I’m 27 years old male. Thank you!
Hey , how are you doing now?
No radiation with MRI so I’m glad you did that!
God bless you ! I will pray for you xo❤️🙏🏼💕
I'm heading on this morning. Having a biopsy on lymph nodes.
Wish me luck.😊
I can’t believe they were so reluctant to diagnose. They did a Ct scan on me, saw some enlarged lymph nodes, and automatically said, “it’s probably lymphoma.” Turned out to be sarcoidosis.
OMG! 😮 I’m pretty sure they legally have to know what it is before saying anything. Or at least it’s considered good legal practice. I’ve never heard of a doctor assuming what a diagnosis is
Melanie Camille you’d think, right? All my paperwork that summer under diagnosis was “lymphoma.” I think a lot of sarcoidosis patients have this happen. And because of extenuating medical circumstances it took a particularly long time to have a biopsy. So for about 7 weeks it was lymphoma (until it wasn’t).
Wow! That’s so scary!
How has your sarcoidosis going for you I have same thing.
@@MelanieCamille Wrong , I was told I had cancer 7 times...and the second to the last time . they said it was advanced Ovarian...4 weeks or so... but they all proved to be wrong, until I had a bad eye and went to the doctor , only to hear I had cancer for the 7th time...this time the biopsy proved it. Non Hodgkin's Lymphoma...of the tear ducts. Stage 4. Went to an Oncologist... very older and cold and told me what he was going to do refused to tell me anything about my condition. Answer my questions and especially refused to hear my opinions... I worked as a Home Health and Hospice CNA for years and drove cancer cases for radiation and Chemo.... for 20 years... I told him I refused Chemo and Immunology....and he got angry. So I left and called the office and told them I was done. I went on Keto diet... no sugar, flours and low carbs, Take CBD oil for any pains. I did 5 months of THC in Rick Simmons form. Hated the feeling . Lost my one eye.... and the other has lost 50+% of vision. Pet Scan shows it did spread in two places... but her I am 4 years later still going strong...GOD told me to be still and know HE is GOD. I did and HE is !! My eye looks bad and they wanted to do radiation on it....a year ago...but then pushed the Chemo and Immunology....again. WE did ask the doctor to allow me to try another doctor and his words were, If she doesn't want me....she can go elsewhere. The problem is the Hospital is less than a mile away, and there are 6 Doctors there...The Radiation Doctor was the one who asked, and she was shocked by his answer. I had warned her. I am 72 and still able to function and do my jobs taking care of my husband, He is 76 and crippled. GOD is amazing and he does care. I think this has been a blessing... I am able to share and enjoy each and every day. So Happy to hear your good news ...hope it all goes well.
Thank God you can have children anyway! I'm 18 and don't plan on getting kids soon but I would be so devastated if I heard I couldn't be a mom :( God is always with us!
You're a brave girl
Hope you get better ❤️
Thank you. I feel so much better! Now I am just trying to figure out my gut health... Life can be so fun lol
God bless you Melanie , you're inspiring so many people
Thank you ❤️
Good for you for not gulping down the antibiotics without a definitive reason.
Prayers for You
Mel. I just knew you would recover. Your type of the big C has a high rate of recovering.
A Baby WOW
Having a baby 👶 is more exciting than a Wedding.
Let all of know 😌
It’s been so exciting! And I’m documenting it right here in RUclips ☺️
Good Luck, May God Bless You.
Praying for a full recovery ❤️
I’m actually doing great now! I’ve been in remission for 3 years and I’m now documenting my pregnancy!
MRIs don’t have radiation it’s magnetic resonance scanning, CT scans do have radiation though just FYI.
I know, I meant a CT scan. I wish I could fix that part because people point out that mistake all of the time lol
Constant pain needs to be check out with a doctor better to find out than live with the symptoms not knowing if you have cancer.
MRI's don't have any radiation at all but CT scans do.
You're totally right! I misspoke in this video, I think I actually mentioned that in another video
Totally agree with your point about antibiotics. Can't believe GP's throw them at us for the slightest thing. Oh, no radiation in an MRI 👍
I avoid them at all cost! Ya, I realized after that I meant a CT scan. I wish I could go back and edit just that part of the video because you’re about the third person to point that out lol
@@MelanieCamille Aww, really? I kinda thought it'd be useful for others to know in case they were wondering. Wasn't a criticism 👍
I didn’t take it personally. Thank you for clarifying!
@@MelanieCamille 😊 No worries
My mom had non hogkins lymphoma and had her spleen removed it was over 4 pounds, they gave her a new kind of drug that had mouse Dna and she is now cancer free for ten years.
Wow! 10 pounds!? That's crazy! I am glad she is better now. Was the drug Rituxan? I took that too. My mom is Puerto Rican and she is very proud to let people know that was created by a Puerto Rican lol
Gotta love those mousies!!
what drugs??
If you mean what chemo, I was on RCHOP
no i want to know whicj drug fr mouse dna i lost my mom to lukemia 8 months back it happened in 15 days she died
Melanie, God is going to Heal you Completely!!!
I have actually been in remission for three years! I’m now documenting my first pregnancy!
@@MelanieCamille Glory to Jesus Christ!!!
Great video. Thankyou for posting this 💜
You’re very welcome 💕
When Google algorithms suggest subject matter denial... whew.
2021 is a beast.
Here 4 it.
I feel like as much as DR. "know" and even if you have something that they know will heal with chemo they seem to "ALWAYS" add a lil extra illness. The holisticness in me tells me THEY ARE ALL BUSINESS! i could be wrong but it's just how i feel. Hope you are feeling well. :)
Ya I feel a similar way. But at the moment I didn’t have the emotional capability to argue with them. Fortunately I am feeling a lot better!
I'm glad I'm not the only one that had to really stand my ground about the antibiotics! I first noticed my lump in early December. My doc sent me to an ENT who prescribed amoxicillin and wanted me to just wait and come back in mid February to see if it went away. I didnt like that idea so I went to Dukes ENT Oncologist. I just had my biopsy done today, which was pretty uncomfortable but I'm glad its done. By the time my feb 14th appointment comes around to see if the antibiotics got rid of the lump, I'll already have the results and treatment plan if it IS cancer!
Did you hear any news? ❤
Update?
Would love to hear more about your journey!
I have a “stage 4 lymphoma” playlist and a “pregnancy” playlist if you want to follow whats currently going on in my life ☺️
Just confirmed that I have B cell lymphoma. Just had my left tonsil removed due to that is the area. I'm going to be getting chemo and I'm scared.
How are you now?
Hope you're doing good!
Hi Thx for sharing your story. Just stumbled across your channel researching my health issues . Wondering - what type doctor handled your bone marrow biopsy? God bless .
IDK who actually did the bone marrow biopsy, but my oncologist asked for it
This video was very informative because I’m experiencing the same symptoms. First symptom was a hard lump under my chin then I developed the lumps behind my head. Another thing that was occurring was I had acne on the bottom of my jaw line. That’s when I went to the doctor and they gave me antibiotics. I Finished the antibiotics and lump behind my head went down but the one underneath my chin was smaller but still there. I went back to the doctor and she said it normal to have it because I might be fighting an infection and gave me medication for the acne.
This morning I woke up because I developed a new lump thats very uncomfortable on my left side of the bottom of my chin. When I lay on my left side of my body I can feel the tightness and the shift of the lump by my left bottom chin. Whiles watching your video, I felt for the ones behind my head and now I realize that they are returning but not as big as before. This is alarming to me.
I’m calling the doctor today!!! I’m going to ask them for a blood test.
If antibiotics helped them go down, my guess is it’s not cancer. But definitely get a blood check to be sure!
My mum has stage 3 lung cancer and she’s just started treatment, I’m worried because she’s living alone
I’m so sorry. That’s very scary. Is there any way she can move in with someone? Or better yet someone can move in with her?
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@@MelanieCamille I wish! she is so stubborn her treatment worked well but the cancer came back now she’s having a different treatment right now
@@Mspowell30 which treatment? How's she
I want to hear more!!! Still sad I couldn't be there for you since I had a germy kid...haha!! Excited to watch your videos again. It's always exciting when you post one. Love you!
It's all good. I am glad you had a germy kid! lol
you rock Melanie!
Aww thank you ☺️
I like your name. I live in Michigan, and I make Rick Simpson oil. If you ever know anyone who needs the help, let me know.
You’re so strong ! Lots of courage to do such video ❤️
I’ve been having armpit pain after pregnancy and I have 2 lumps behind my ears. I’ve been trying to ignore it because I’m so scared to go to the doctor. My armpit did not really hurt that much before but I feel like something is wrong now. I’m so scared because I’m just 20 and I have a 8 month old son. My appointment is on the 22nd. I’m hoping for a great news.
Did your appointment go well?
u shd contact dr musa dont take drugs take herbs instead...
UPDATE: my appointment was moved to the 29th. When I came in the doctor checked my right breast and asked me questions. She said that I should try to put a cold compress on the swollen part on my armpit. I’m having an ultrasound for the lump behind my ear and my right armpit on January 14th. I really did not get anything from my check up bec she just asked me to schedule an appointment for the ultrasound to figure out what the lump is. I’m more nervous now...
Also i was surprised that they didn’t even do a cbc for me they just examined the lump and dismissed me. The nurse practitioner also said that she wasn’t able to feel any lump in my breast and those are just breast tissue which are normal because I’m young.
@@trish7256 AVOID DAIRY!!! to consume dairy means a human is ingesting the endocrine fluids of a very large animal and it most definitely compromises the glands of the human. It causes mucus and fluid to amass, which is the bodys response to a foreign invader, it encompasses it and tries to expel it as quickly as possible. AVOID IT!!!
Thank you for sharing your story. I am glad you are in remission! I have one swollen lymph node in my neck that has been worrying me. It’s painless & since I’ve started paying attention and counting, it’s been there for 70 days so far. It gets bigger and smaller and bigger and smaller again but never goes away. The CT shows it’s less than a centimeter but they still want me to see a hematologist to make sure it’s not C. I can’t tell if it’s hard but I don’t think it’s moveable. I have no clue what to think :(
I pray that all the test come back and everything is good (or at least treatable) :)
swollen lymph node is very common, most of them aren't dangerous.
So true!
Hi! Reaching out years after this comment bc I have this as well. I have had 1 swollen node on my neck for a year that comes and goes for a year. I saw my dr and he gave me a 30 day prescription for scalp infection, and it got better for a month but came back. Did you find out what was causing it?
@@rachelknight6554 Hi! I’m glad they are being proactive in figuring out what is causing it for you. Mine is still swollen and now I find that I have a few more, all very small and painless-and movable. These indicate non C, so if yours is similar don’t panic! I am thinking mine is due to chronic inflammation and/or autoimmune. The doctor never seemed worried so I haven’t done anything else. Wishing you positive news and peace of mind!
MRIs do not use radiation. They use magnets.
You’re totally right! I mean to say CT scan. So many people have pointed that out. I wish I could change it in the video...
Well I had a ct scan last month AND my nodes have shrunk significantly..all I am doing is vitamins..AND praying
Crazy! You have a lot of faith in vitamins lol. I'm glad it's working for you!
Don't lie which vitamins do you use
I think the medical field should think it’s a cancer and rule it out before anything else
Excellent idea 👍
I was asked if i "wanted" a ct for abdominal pain i was having, leg swelling for over a year....they tried to say that it was just muscle pain and basically brushed me off....until i got my results. Ended up with getting a stent put in in an artery that was completely closed off. Basically, circulation was being cut off to my leg, and the blood wasn't circulating back to my heart....