Riding with MS- How motorbikes help me to deal with Multiple Sclerosis.
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- Опубликовано: 17 сен 2024
- Based on a question asked by a Subscriber- How riding motorcycles help me to deal with the fact that my immune system is trying to eat my nervous system!
I was diagnosed with MS about 10 years ago and in that time, bikes have helped me deal with the mental aspects of the disease.
#motorcycle #motorbike #multiplesclerosis #ms #multiplesclerosiswarrior #kawasaki #meanstreak #townsville #australia
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Bike: 2008 Kawasaki VN1600b “Meanstreak”.
Scooter: Segway Ninebot Max G30
Jacket: Alpinestars Runner Air- appears to be no longer on sale.
Boots: Alpinestars SMX 1R
Gloves: Alpinestars SP8 V3
Helmet: HJC F70
All videos recorded using a combination of the following:
- GoPro Hero 9 Black.
- GoPro Hero 7 Black.
- DJI Mini SE
- DJI Osmo (Gimbal).
- iPhone 12.
Video written, filmed and edited by Stephen Joyce.
I am 70 yr old woman, have MS, and was diagnosed at 39yrs. I love riding my Triumph Street Twin motorbike! I call it bike therapy 😁
I got diagnosed with MS almost a year ago and I’m 32. I’ve been wanting to get my first street bike and this video has made me want it even more. Life has changed drastically for me but I also have a brand new perspective on my life and how precious living really is. I hope you win this lifelong fight my friend. Stay strong!
My wife has MS as well, we just came back from a 6000 km trip through the outback, we live life to the max
Only way to do it brother. The MS can go and f**k itself!
Great story. You never know what's around the corner. A good reason to live life to the full.
Good on you!
Keep er lit, I was diagnosed in 2010 and went to secondary progressive ms very quickly. I can no longer drive the car or the motorbike. Keep going as long as you can and enjoy every minute of it 👍👍
Sorry to hear that. It’s a bastard of a thing. I have been very, very lucky so far.
@@PaddyOutback my son takes me to as many road races as I can get to so I still see a lot of action , good for the soul
You have a wonderful philosophy on life..."live for today"! The group I ride with have four 80 plus's, and they say it's the bike that keeps them young and feeling alive. I look forward to watching many more of your rides!
Cheers mate!
Not to worry, the journey is the thing as the destination is already known. Good Luck yourself you madman..
Yeah, Brother! This video gave me goosebumps. I have all the same symptoms you discribed. I sold my bike 3 years ago because the ex wife wanted me to. I got Diagnosed day after Thanksgiving this year. Wife left me right before Christmas, I was shattered. Seeking answers, couldn't get seen by a doc till now but during this time, went on my own journey of healing, even ended up in a Tai Chi and Qi Qong class taught by (not joking) a Shaolin monk. No one knows i have ms in the class as I've progressed so quickly, my teacher wants me to begin Kung Fu, and get combat ready. Was wondering if i could ever ride again bu Your video has inspired me to get back in the saddle. To anyone else reading this in the same battle, read "Walking on Pins and Needles." Author put her ms into total remission through practicing "the way. "
You are absolutely right, Im a RRMS patient and on DMD. 3 yars ago my health worsened and now im ok with very few or minimal relapses, I also thought, What is the point in living a life which will become a curse to the care taker. So I thought of buying a motorcycle 2 yers ago, Now im in love with the vehicle and inturn the vehicle started helping me back by reducing my MS challanges.
I thought im the only person experiencing this, You are absolutely right,,, :)
A fine video indeed. This can serve as a reminder that life can be fragile, so you should seize the moment sometimes and just live it! This will avoid the regrets later on.
keep riding mate one of the best things for mental and physical health is to ride I can 100% relate to that my friend
It’s good for anyone’s mental health. Hard to worry about the nonsense we have to deal with in out lives when on a bike!
You gotta live the life you have in as best a way as possible that brings you joy to your innards. None of us are guaranteed a tomorrow, so today needs to be lived!
Exactly, tomorrow is never guaranteed so make the most of now.
Wow. Awesome video, Paddy. Riding has a therapeutic side to it.
There is just something pleasent to ride in the city at night time, a relaxing feeling.
Good video sir, thanks for sharing this with us. 🇳🇴☕
Cheers man! I love riding at night but you can’t leave the city in these parts. Kangaroos are mostly nocturnal and love jumping out in front of bikes!
@@PaddyOutback suicidal roo.. Here we have moose and deer that jumps in front of you🤔🇳🇴
nice one paddy we all have our crosses to bare i only have my little finger on my left hand have my thumbs luckaly my right i only have my index finger and a few stumps i was born that way but i have never let it hold me back its a state of mind pal totaly admire you respect shaun
Sorry to hear about that man but it’s good to hear that you’re getting on with life regardless. Everyone has their thing that they have to deal with.
Hi Paddy love the video I've got MS got diagnosed in 1998 and still ride. It helps my mental health. Like your good self I suffer bad with fatigue and mobility. I've got a kawasaki versys 1000se and live in the UK. Keep riding my friend and like myself give the MS two fingers regards Shaun
Shit. What an inspiration you are. I am just an old fart who is retitring now and thinking about a road trip here in Norway. Even though I got a new Vstrom, a tent and all I need, I am still stressing about all the stuff that can go wrong. It sounds pathetic - what a loser. When you talk so eloquently about being here and living in the moment - it inspires me - or at least challenges all the nonsense I think when sitting here in Oslo on my sofa! I am quite sure you do not think of yourself as a hero - but you are in your way. Good luck to you and may you be riding your (wacky) bike for many years to come. Thank you for your channel. Keep making the vids - they motivate dorks like me!
Thanks mate but I’m certainly no hero! I’m just a lad who’s trying to do the best he can with what he has. Same as most of us! Good luck with the trip. Norway is a beautiful part of the world. A place I hope to get to one day.
You definitely inspire me. I also have MS. And, I'd like to learn to ride a motorcycle also. I have the same optic nerve situation. Diagnosed about 11 years ago. I'm planning to take the written test and, the motorcycle class this summer.
Good on you mate, always enjoy your channel and your humour. Would love to ride with you one day.
Thanks man! I’ll organise a Paddy Outback group ride some day 😂
@@PaddyOutback count me in! 🙂
It always impresses the living hell out of me how people like yourself deal with these things. I have a few, INCREDIBLY minor, things that I've to deal with, and I just get extremely angry with myself and my own body if that makes sense. So fair play man.
Ah yeah, I get it giving you a push, VERY glad it gave you the push to ride bikes :)
Haha you definitely have that mug don't you? :P I will proudly admit I do :D That's actually mad it can do that to your vision. The human body is weird.
The noise that bike makes, well it'd move a stone's cold brittle heart!!
Great video man, a good outlook for anyone tbh, sure we could all be dead tomorrow really!!
Cheers man. Tomorrow is never guaranteed and shit will inevitably happen. This is the shit I have and I’ll have to get on with it!
Thanks for sharing paddy, long may you ride mate 👍
I have cfs have had for 27 years
Now they say I have fibromyalgia my body is in pain all the time so I sold my Harley and stopped riding I miss it and I fully understand the fatigue I’m like it all the time forcing my self to stay awake every day stay strong paddy your not alone mate ride safe
Brilliant, Thanks for sharing, Inspirational!!
Ride On Paddy, Ride On.
Cheers man!
Wow, thanks for sharing! Wishing you all the best
Thanks man!
Thanks for sharing, I have self-inflicted COPD and the good days are dwindling. I have to carry O/2 with me when I ride.
You’re still at it though which is good.
I have struggles with the smokes for a long time myself. Dumbest thing I ever started doing.
Thanks for this video. I really hope you can ride a very long time further on and enjoying the rides. I keep fingers crossed.
But I have to thank you, I got lazy and your video was a kick in my arse, to move on and turning my plans to reality. So I go on with my plans for a Scandinavian tour up to the Nordkapp. Just got myself an new tent 😂 and I'll start get used to it as soon ast it arrives.
You're doing well mate 👍
Cheers mate. Bet you’re sorry you asked 😂
@@PaddyOutback not at all I was worried if was to personal question to ask
Thanks for sharing some of yourself and your perspectives on dealing with chronic illness including tour riding. Riding out from the garage toward a distant horizon is the motorbike mental health regiment I subscribe to as well. I’m only a very little bit older than you, but I can already see there will be some inherent limits sooner or later to this strategy’s shelf life. So my answer for now is to get on the open road and pin that throttle every now and again to remind myself why we all keep circling the sun anyway!
Cheers Paddy!
Cheers mate! As long as I’m not circling the drain, I’ll be on the bike!
Nice one mate, interesting take on the situation and I think you're doing exactly the right thing - seize the day. Keep at it.
It’s all you can do man! Cheers!
Thank you, sir. I have just been diagnosed with MS (@55) and was wondering if I should still ride. As long as I am fit I will rock on. I feel geed riding. It's the weakish legs at complete stops that have me thinking.
If you can do it, you should do it. It’s easy to find reasons not to when you get a diagnosis like MS. Just put both feet down when you’re stopped at the lights!
life altering indeed. However, you can still expect a long life
Indeed I can. And all going well, the impact of that thing will be minimal.