This SHOULDN'T be the reality
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- Опубликовано: 20 окт 2024
- This shouldn't be the reality. Yet here we are riding the waves that life presents us each and everyday.
I do want to note since filming this video we have been blown away by the generosity of our community. Kyle's surgery is completely paid for and we are speechless.
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⊹ tags: this shouldn't be the reality, financial burden, medical expenses, truth about cancer care, mindset, reality of cancer, brain cancer story, brain cancer brain cancer, stop fighting cancer, beyond diagnosis, healing brain cancer, glioblastoma, living with glioblastoma, healing cancer, a 19 year cancer journey, brain cancer, cancer wife, real life with cancer, slow living, caregiver wife, defying cancer odds, living with cancer, living with brain cancer, aplastic anemia, couple goals, cataract, cataract surgery, Chinese medicine for cancer ⊹
Hi from Sweden! Watching this and reading the comments make me speechless....I've worked for 35+ years as a licensed special nurse here in Sweden, and I'm always so, so sad when reading stories like this. Can't quite get how you cope in US with your health care system. I have relatives living in N.Y area, so have an understanding of the costs. Our system is so totally different, all is paid through our taxes, and it doesn't matter if your rich or poor. Grateful to live here, it must be a huge burden to worry about the cost on top of an illness.
Wow, what a dream! The care here truly boils my blood I cannot understand how it got so messed up. I may have to come join you in Sweden!
This really breaks my heart 😞. How can we fund wars , but we can’t take care of cancer patients ? The people that’s been paying tax , taking care of the country ? How do we put a price on something like cancer ? 😞. My husband had multiple myeloma 2 yrs ago, so I understand. He’s in remission now , with medications to maintain it. We’re trying to get stem cells transplant soon. I wish you healing my dear, lay this be behind you soon . You have a very loving wife 🙏🏾🥰🥰
Oh how you preach to the choir! It blows my mind. I am so sorry cancer has touched you and your lovely husband. I am celebrating the remission, truly incredible!! Sending you the biggest hug from one cancer wife to another. Big big love! 😍💛
I just turned 65 and as a Canadian living in the States I really need a lot of care, however I can’t afford too, even with insurance I have accepted that when it my time comes I will accept it. Too bad that my lifespan is decided on what I can afford. But I feel lucky to have made it to 65. You guys are much younger so I understand where you are coming from. Sending love and prayers to y’all. ❤️❤️
This truly breaks my heart and shouldn’t be your reality or anyone’s. Do you have a GoFundMe?
Naaaa. No need. Leave it for the young folks. If I go tomorrow I will be fine. I have had a full life. And the world these days is not necessarily something I look forward too. It’s just too crazy. I Stay only for my kids and grandchildren. Sending Love ❤️❤️ thank goodness I’m retired as it’s too hard to imagine being in an office, not knowing what is ok to say and not offend.
I only wish you & Kyle the best! 💗💗
Thank you we can feel it and deeply appreciate it 🥰
I have had cataract surgery and also grappled with this. Eye doctors are not good at explaining the options and they also have some incentive to push you to multifocal lenses. My eye surgeon shared with me that he frequently has patients come to him asking him to remove their multifocal lenses and replace with single because those more complex lenses do not deliver on their promised functionality.
All this is to say, if Kyle is getting both eyes done, I would encourage him to have one eye pegged for distance and one eye for reading. This is called monovision. I have done this and it is amazing! I see clearly both at a distance and for reading. It takes some adjustment, but it is truly working so well for me. Let me know if you want to talk. I am young (for cataract surgery) so I understand how weighty this decision feels and what a potential loss you feel like you’re facing. Best of luck.
I am livid at health insurance companies. THEY are the reason our healthcare has tanked. THEY dictate what can and can't be done. THEY rake in literally BILLIONS of dollars in profits every year to the detriment of their customers. It's sickening, really.
Oh it is truly sickening the health care system / insurance in the US boils my blood. The system is beyond broken and things HAVE TO CHANGE!!
Rachel it really is such BS that our country (the richest) country has such terrible coverage for ill people and the elderly. I don’t know how people make it that have health issues. Insurance costs a fortune then what they don’t cover and you pay out of pocket is absolutely ridiculous. Some people are very ignorant when they make such rude comments about what you should do. Obviously they’ve never had health issues. God bless you and Kyle🙏🏼🙏🏼
Thank you for your words of love and support! You are also so so right, the health “care” system is so messed up in this country. At the end of the day healthy people don’t make health insurance money which is sickening.
Thank you for pushing the whole eyes thingy! It really us (me) helped out a-lot. I love you! 🤙
We are gonna get you seeing so crystal clear so soon! Cannot wait to watch you see the world clearly again 🥰
My friends who have had this, took your option 1 and then got reading glasses.
That was the original plan but Kyle still has good near vision, he looked at me and said I really don't want to loss that. Which I get with everything he has been through to have the ability for his eye to go back to how he could see prior to the cataracts make sense. Trusting his lead and honoring what he wants!
I was told that is what most people choose. That was a difficult decision for me, too.
I'm sorry to hear this, but it's a hurdle you can overcome, I'm thankful to live in the UK as our healthcare service is free, my dad's not long had his cataracts done, I hope you find a solution guys xx
Thank you for your kind words. With the loving support from our community we are able to go into it without a worry about how we will pay now which is beyond us. I wish we lived somewhere where it was covered, as it should be!!!
Glad you now have the money to get the most advanced lenses. I just had this surgery done on my eyes, two weeks apart and am now 1 month after the last eye was done. The surgery was painless and not at all scary. The worst part was just getting the IV for the minimal amount of sedative that I was given. Good luck! I hope your surgery and your results are as good as mine!
This is amazing to hear! I am so glad the surgeries went like a breeze for you, we are going to channel that same energy for Kyle! Thank you for your kind words and for being here it means the world!! 💛💛
My husband did the more expensive one and guess what, he is using readers now! So go for the one the insurance covers.
I totally hear you and I trusted Kyle's lead he didn't want to lose that near vision yet and with everything he has faced I get!
Been looking for the link to the GoFundMe and come to the end of your video to see the surgery has been financed. AWESOME!!!❤🎉❤
🥹🥹 that’s very kind of you! We are honestly blown away by the generosity of our community, truly speechless
@@SimplyRachelOBare I'm glad it worked out and so quickly!! 1 less thing to worry about:)
Truly!! We are so speechless and have shed many of tears in this house!
I was just going to start a go fund me. I’m praying for Kyle and you too Rachel.
😭😭 that’s truly so kind thank you so much for the love
I went with the first option. I had chosen option 2 during my measurements I have a problem with my eye and it will not work for me. I went with the one insurance paid. Everything is clear and I see far away without glasses. I just wear reading glasses when I read a book. Mid range vision is very good also. At first I was sad but I had been wearing reading for many years. You will be blown away by the beautiful sights around you, colors will beautiful. For a year I thought the paint on our walls had started turning brown. The world around you will become a much more beautiful. The details of trees, the color of the sky, looking into your wife’s eyes. I am thankful and blessed that option 1 that insurance paid for! Please research I believe the priciest option there is glare off the lenses that is hard to get used to at night. The joy you will feel the following day after surgery when you take the patch off for a bit. I think you will be surprised. Surgery was pain free, and we were in and out the door in 1 hour and 15 minutes. Sending big hugs from Heide in Texas!
Wow! Thank you for sharing your experience with me. I am so glad it was such a pleasant experience for you and cannot wait to see Kyle amazed by all he can see again. My heart is already swelling at the thought. We did not go with the option 4 which is the most expensive and I think the one you are speaking of with the glare. The surgeon didn't even tell us about about because he was like you wouldn't be pleased with it. The option 3 the one we are going with I think will be perfect because since Kyle is only 45 he still has really good ability to see close up so he just doesn't want to loss that. Which I understand with everything he has been through. Excited to see how he feels once he comes out of surgery later this week!
I don’t understand. I just had mine done. I picked the covered to see long distance. I can still see fine close up with readers.
I am so glad you can see and it went well. Kyle didn't need readers prior so we would have been losing part of his sight with everything he has been through he just didn't want to give that up yet.
Wow, it cost that much. I have an appointment to see if I need cataract surgery on the 26 right now I can't see to drive Thank God I have a job where I can work remotely but wow that is a lot of money.I pray it happens for him.
I am so sorry your dealing with this as well and glad you are getting it fixed! We were shocked at the cost and I hope you don’t have to pay that. Sending positive energy for your healing 🤍
Health insurance in our country Has nothing at all to do with quality of care. That those companies decide what they are willing to cover without a care in the world about what's best for the patient is insidious.
Oh your preaching to the choir! Being on this healthy journey with Kyle has truly illuminated how messed up our health “care” system is! I knew it before but the depths i know now truly enrage me.
Optune my brother wore for years
It truly is incredible isn't it?
When one is hit by a major diagnosis, there will be a lot of out of pocket expenses. Am wondering if you have income. I understand Kyle isnt well enough to work and Rachel needs to be home for him. Do you run a biz or work from home?
You are right it comes with so many expenses. To answer your question, we have been so fortunate that Kyle was eligible to hire me as a home health care worker so I get paid to care for him. It’s not a lot but it HELPS. Kyle also is able to get disability which is FAR from any amount someone could live off. I also walk dogs twice a week which is great for my mental health and a little extra money to put toward groceries. I am starting to make money from RUclips but its about $50 a month at this point. Most of Kyle’s care has been paid thanks to our GoFundMe and the generosity of others. We could not do it without that. Just one of his protocols alone is $1000 a month it all adds up so quickly and that support has been truly a godsend to relieve alot of that stress but it’s always there and it never feels like we have enough. That said I am constantly over here trying to figure out other ways we can bring in more money. That was long and maybe more than you asked for but I want to be truly honest and transparent.
@@SimplyRachelOBare I appreciate your willingness to talk about this and no it was neither too long nor too much info. I hope your RUclips channel grows and you make more. I certainly will watch, share and like.
Of course! Money has so such a stigma of it not being ok to talk about. Which I have realized by sharing this video 😑 but we all need it and I think it's important to be honest and speak about it. It lessens the stigma and normalizes our human need for it in our modern world. Thank you for being here and supporting it means more than you know!
@@SimplyRachelOBare you are right but this is reality. We need to face it and it should not offend people our talking about it. You are bringing awareness to othersx who might find themselves on such a path in future. Btw, what line of were you in before this happened?
❤️❤️❤️🙏🙏🙏🙏🙏
Thank you for watching and sending your love
How much do you need?
We actually have it fully covered thanks to your community and their generosity!
Can’t he just wear glasses for near vision? The cataracts will be gone, so the haziness and starbursts will be gone. And glasses every year or two are covered by most insurances. just a thought.
That was the single vision option and Kyle still has good near vision, he looked at me and said I really don’t want to loss that. Which I get with everything he has been through to have the ability for his eye to go back to how he could see prior to the cataracts make sense. Trusting his lead and honoring what he wants. Which we are so grateful that our community showed up to help cover some of the cost. We’ve been blown away, lots of tears in our house.
Your husband looks like Nicolas Cage 😊
I cannot say he has gotten that before… me now looking up photos of Nicolas Cage 😂
What about a GO FUND ME?
We do have one (it’s linked in the description) and it’s thanks to that we have been able to cover the cost 🥹
Maybe someone can sponsor a Go Fund Me page. Easy to end up with more than enough- when it’s for a good cause
Thank you for the love and support! We do have a GoFundMe set up and I have it linked in the description of the video 😊