Navigating The PIP Process - Toileting / Incontinence - Step by Step Guide
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- Опубликовано: 31 май 2024
- Do you suffer from chronic pain and/or chronic fatigue? If yes, you MUST please watch this guide.
Do you struggle with the toilet due to your condition? It does not matter what your condition is or why you are having issues. If you live in the UK and you have a condition that has lasted more than 3 months and will last for more than 9 months, that truly impacts your life.
YOU ARE ENTITLED TO THIS FUNDING!
I know this is a subject we do not normally talk about. But, its important. We all want to be as independent as possible, and by talking about this (at least with PIP and me (if we link)) you CAN make your life better.
If you are struggling with PIP (Personal Independence Payment) Claims and you would like to link with me, check out my sites:
CONSULTANCY: calendly.com/charliesjourney
But, before booking me PLEASE watch the guides as I am trying to provide all of the information for FREE!
WEBSITE: charlies-journey.co.uk
On my website you will find
- PIP points and templates that you can download for FREE
- Our top Frequently Asked Questions
- Reviews
NEWSLETTER:
charlieanderson.substack.com/
SOCIALMEDIA: profile.php?...
This is for future ‘live’ meetings with me where you can ask me questions directly.
WHO AM I:
My name is Charlie and I am disabled. I live with chronic illness, I have a severe form of Psoriatic Arthritis and its crap! I am in pain all the time and always battling fatigue. BUT, I will not let it win. I love to learn and to laugh (even though it hurts my arthritic rib cage LOL). You will often see Ollie (she) my black Labrador. She is currently my trainee assistance dog! We are together, literally ALL the time.
As there are a number of awful people who target us - the vulnerable - here is a link to my personal LinkedIn account. You can literally see the past 25+yrs of my career, people who have recommended me (as a Logistician as Disability Specialist is very new for me).
/ charlotte-charlie-ande...
The most important bit: I would like to thank the support network I have around me and YOU for watching this channel.
Please know, I would love to reply to all of your comments but I cannot reply AND film new videos, write the weekly newsletter and work with clients. If I could, I really would reply to you all.
HELPFUL PRODUCTS FOR DISABLED PEOPLE (I only recommend what I know is good):
-Step Counter: amzn.to/42oy91k
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-The BEST zimmer in the world LOL: amzn.to/42ms8SG
-Perch chair - I could not find the right one on Amazon, it MUST have:
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-Left awesome WRIST support: amzn.to/42vF8FS
-Right awesome wrist support: amzn.to/42oqm3s
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-If you are worried about falls and getting in contact with someone, this is great (based on reviews, I have NOT tried it): amzn.to/490FzdC
-Sock aid: amzn.to/48YtHsC
-Nice shower or bath chair (adjustable heights and arms): amzn.to/3SFungO
-Pill pot (the good one): amzn.to/3UpoR3h
-Raised toilet seat WITH arms: amzn.to/48X1t1b
-Raised toilet seat, no arms: amzn.to/3w173RJ
-Men’s pads (incontinence): amzn.to/4bjewMf
-Pads for the BED incontinence: amzn.to/4ber2wm
-Unisex bottle with handle and LID: amzn.to/48gAFrX
-Handle - I am testing this before I link it in case its crap
-Commode, look I hate the hospital crap. This LOOKS like a posh chair so you can maintain your dignity: amzn.to/4bnMVcQ
-Dyslexia coloured sheets for reading: amzn.to/3w4Uvcg
PS: If you order using these links I get a teeny tiny profit
If you would like to write to me here is my address:
Disabled NOT Dead
PO Box 4928
Stoke-on-Trent
ST4 9RL
Email: charliesjourney2024@outlook.com
Thank you so much for reading all of this
Charlie
Hi everyone, here is a link to my weekly newsletter, I am adding a PIP section due to the increase in questions/feedback, please feel free to check it out if you are interested:
charlieanderson.substack.com/
Thanks EVERYONE for watching and commenting! We will WIN! I send this weekly so its quicker to get updates and I chat about my life that week. Hope this helps as well x
,I'm currently on pip high living and lower mobility side for depression.I had 18 points for living and 10 for mobility,and I definitely should had more because I said the right things but was never going appeal as I already had enough to be awarded.love ur videos,I know so many that have failed pip because it's not so much they don't deserve it,it's how they worded it like u say. always great to learn and pass Info to others also. Thank u .and Merry Xmas
I got 0 points for application, reconsideration and appeal. Hoping these guides will help when I reapply in New Year.
@@richardajoy79 best of luck .don't give up ..
Hi, I LOVE your comment. You are right, its not that they do not deserve it......its that it was not worded right.
I truly believe in 2024 we will have a LOT more wins.....the opposite of the Government plans LOL
Thank you for such positive messages xx
Have a great Christmas
Charlie
@@Poweroftouch , As Churchill said 'Never give up! Never surrender!'
Thanks for this, really helped. Roll on the next guides. Merry Christmas.
Hey Richard!!! I have done another FULL claim and a REVIEW that I am going to edit and I think will go live er.....I might bring them forward (I have videos scheduled for a while) but I think these are going to be really good.
So, some weeks there might be 2......and I am going to cut back on consultancy as I really want to be able to film some more about:
- Pain management
- Tips to improve quality of life
So excited for 2024!
I hope you are as ok as possible and you have the best day possible!
Merry Christmas!!!!
Charlie
P.S I tried to be normal since I have been off (21st was last day of work) so I have sat on a sofa for 3 days (I do not normally do this, its my desk or bed). I was trying to spend time with my mum........fcuk me....my hip pain is really high....so I am up at 0300 not for santa....due to pain damn it.....so less time on the sofa....which is ok as we save movies to watch at Christmas!!!
Really hope you are ok as you wrote this really late....hope you are not in too much pain
@@CharliesJourney , A friend of mine has fybro, chronic fatigue and bursitis so I can relate to the pain, sleep problems and relaxing... she can be laid up for days.
My pain varies, but its constant and the tramadol, paracetomol and ibuprofen help, I was on naproxin but during the first month I was urinating blood, so I asked to come off them pretty quick.
I hope you have an enjoyable day, I am spending it with family myself (mum, her fella and uncle). Take care and I'll keep my eyes peeled for more vids.
Thank you xxxxx
I have copd,diverticulitis, I had sepsis and actually died and was resuscitated,I have a colostomy bag(which does leak occasionally )and a massive hernia made worse due to medical negligence, I’ve suffered ptsd (partly due to a wrong cancer diagnosis partly due to the treatment I received) insomnia and depression, I get lower rate pip, and should have had the higher rate but the expert medical examiner decided otherwise I appealed but didn’t get anywhere, and had to give up as it was affecting my mental health, I’ve become a recluse virtually since 2019, and am still awaiting surgery,
I have a grab bag for my toileting needs that I go no where without, I also have a whistle to alert my hubby I need help
I have a prolapsed bowel! & still have not received one ☝️ pip payment or disability payments is that wrong from DWP?
How often does incontinence have to occur to claim pip
Hi Charlie, where do I stand if I am currently on standard rate for living and at the time of applying I was severely incontinent with bladder and watery bowel movements which I’m having a liver mri and waiting on a hepatology appointment now for, but since then I’m now wearing an in dwelling Foley catheter . I asked for a second opinion before I had foley and was denied so can I reapply and update them? Or do I write a second letter to them? I have ms,fibromyalgia and spinal injuries. Please can you advise me ? Katie x
Hi,
Can you email me at: charlieisdisablednotdead@gmail.com as I have a couple of questions for you before I want to advise......
I am REALLY careful when advising people about contacting PIP with updates.
Hope to hear from you soon
Charlie
Hi Charlie, I have been diagnosed with Osteoarthritis in both knees, can you advise me how I can receive the correct forms to start my claim, I will then need to book an appointment with you to complete this form in detail.
Hi,
Here is a link to the Government site on how to start your claim
www.gov.uk/pip/how-to-claim
Speak soon
Charlie
I’ve also discovered that motion activated lighting in disabled toilets, yes even the ones in hospitals, only last until you reach the toilet, you are then plunged into darkness, and I end up hopping about with a soiled nappy round my ankles trying to get the light back on 🤬🤬🤬
Lol
I've got ulcerative colitis, on the toilet with loose stools up to well over 20 times a day, zero points. How nice of them.
Hi, have you had a look at the points? If you are able to managed this yourself, without aids.....even though it must be awful for you, it would result in no points.
But, I would expect this to result in points regarding:
- Engaging with people
- Planning and following a journey
I hope this helps
Charlie
Hello, I really need some help, I’m in a state. Can I contact you please
Hi, here is a link to my Calendly where you can book me:
calendly.com/charlieisdisablednotdead
Here is my email for quick questions:
charlieisdisablednotdead@gmail.com
Speak soon
Charlie
I also have 100% win 🏆 have one 4 times in tribunal court,although I do for free it's very time consuming etc.. I would say I'm a expert with regards to this matter..
Toileting probs. Due to nerve damage in my hands I'm unable to hold toilet paper and wipe properly. The best I can do is to wrap my hands in paper like a mitten and press and dab. If I'm 'loose' then it always smears over my fleash and contaminates my front area. That gives me urinary infections. My fingers and thumbs don't work as to hold toilet paper properly. (Try wiping your bum with mittens on...its just like that). Im 70 and I had to use my life savings pensions pot to pay for the cost to remodel my home to create a wetroom and a raised bidet plus put new drains in (as there were no drains where the wet room and bidet needed to go). Social Services refused to fund the remodel for the layout I needed. They only offered a walk in shower in an inconvenient place and no bidet or new drains. The only way I can clean myself is to sit on a bidet and soak my bottom. The Japanese type loo seats that wash and dry don't help as I need to sit and soak the smudged mess off. All those silly poo sticks to clean are useless. Wrong size and not bendy enough and a faff to apply paper if one has disabled hands. We all have to devise our own way to clean ourselves as non-disabled bureaucrats who make the rules have no idea. Theyre all bloody Idiots!
That’s disgusting of them
I’m applying for adult disability payment which is similar I have stomach pain made worse by anxiety and joint pain I have a syndrome that causes the stomach and joint pain called hyper mobility but the name of the syndrome doesn’t suggest that and I know the “ medical professionals” employed don’t need to know anything about the conditions they’re assessing. I need to use a hot water bottle all the time to help manage the pain in my joints and stomach and lie down a lot or I’ll faint. I spend a lot of time lying down in bed or sitting down and often don’t have the energy to move. I’m embarrassed to say this and don’t want to include it on the application if it isn’t relevant but I use the toilet too much getting through 1 - 2 rolls a day as one person. am I likely to get any points
I can physically walk I can see I walk thousands of steps a day most days but not without pain I’m not bed bound I don’t know if it’s bad enough or if i should tick that I can’t walk because it hurts but then I don’t want to get into trouble for it or go to tribunal or be denied
You should be getting a lot of points by the looks of it
Constipation is NOT self inflicted.
I have 1 meter of small intestine, I was told by the pip assessor that because I only have accidents roughly about 14 times a month, that he can't award me anything for it.