MY STORY: How I Was Diagnosed With RA (Rheumatoid Arthritis) At 18
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- Опубликовано: 18 окт 2024
- I want to share my story mainly just to let others know where I'm coming from. Thanks for watching! Please give a like & subscribe for more!
Follow my Instagram: itsmegzz_fitness
Email: megzz.fitness@gmail.com
I just got diagnosed with RA, and I’m relieved after so much pain I finally have an answer but at the same time I cry every 15 min. Thank you for making this video I feel I’m not alone (I’m 26)
raquelandreaa im 21 with Severe RA
Me too girl me. I can't stop cry like it kills me too know.
I was 23 now almost 26
I was diagnosed with RA when i was 16... It was devestating and it effects my life everyday. But now im 21 and have a year done with nursing school and continue to strive to do what i thought was not impossible. Its really great to see other people who are younger who have RA because its hard to not feel alone.
I'm going through extremely similar circumstances; especially the frustration with doctors and not knowing what's wrong with me. Thank you for your video!
Hey there!! Just came across your vid when I was searching for fellow RA warriors who are creators! :) So glad to have come across your video.
I was diagnosed at two years old and strive to educate and inspire others with the disease and those without it as well. I heard sooooo many times, "Oh you are too young to have arthritis" or, "Oh my grandpa has arthritis!" People don't realize it isn't just a disease of the older generations. Kids get RA too.
So, thanks for raising the awareness and making your video!
Peace and love!
Lori MacLean
Yes!! Agreed loved this so much. The awareness is much needed
I just got diagnosed with RA yesterday. It’s extremely scary but I’m so excited to finally have answers(: my pain is everywhere but mainly my neck so I got migraines everyday. Thank you for sharing your story now I feel less alone lol
How you doing
how are you doing now haley hope u doing fine don't worry as a person who deals with the pain everyday i know how it feels. (25 years old) keep up exercise n be active
my story: all through age 7 to 12 I would feel a terrible pain in my knees, of course, my parents didn't think it was anything serious was happening to me till I was twelve. I started playing volleyball and the pain got even worse. so my parents waited a week or two till my yearly check up and told my doctor. then my doctor made me get my blood check. finally after weeks of waiting I found out I had RA which of course as a 12 kid would not understand what was to come. Now I am 18 and in bad pain. I have RA in my wrist, knees, elbows and ankles. sometimes my ankles are so bad it feels like Im stepping on knifes.
I've had arthritis my whole life. I just started vlogging abt it. So, I know how difficult it can be to share your story. Ty for sharing it with us. ~Jess~
Your story reminds me so much of mine! I was diagnosed at 16 after lots of tendinitis diagnosis'. I was able to go into remission for quite awhile but am back in the heat of it. ANA positive, RF negative. Currently trying to find the right meds to get back on track. I cut out gluten 6 years ago and that significantly helped! (I'm 29 now) thank you for sharing your story!
Jenny Zavicar did rhuematolist have a hard time diagnosing you
This story meant a lot to me! I am 18 and I used to be a professional golfer. February of 2017 I was 16 and woke up and couldn’t put weight on my legs. Now I am handicap and still can’t walk and was diagnosed with ankylosis spondylitis. I really appreciate being able to relate to others my age with arthritis :)
Hy dear , as a fellow Rheumy warrior, I was diagnosed i n my 20s and I was so depressed. Your video was inpiring :)
I have had RA since 4/10/2010. I am in my 50's now and my medicine is not working xaljanz. I just had lab work done and they cant find anything but I am having a big flare up. It possibly a reaction to xeljanz. I am in the process of scheduling a rheumy appt. I am happy you are on the right track to getting relief. Your right about the rheumatologist, Diet and exercise. I have not been able to make it to the gym in a few weeks. I am hoping to get back into it.
I got it since 14 and turn 15 in sep and it stuck because people in your age some don’t have it and it very hard to move around and thank you that I’m not alone I’m not the only one go through this 😊
I've had RA for 9 years.
I fell at work on a concrete garage floor, everything was fine until I woke up the next day, swollen feet, ankles and in so much pain. The one Dr I saw said it was from the impact when I fell and didn't do anything. I took ibuprofen and it went away for a week. The swelling and pain came back, in the meantime I started waking up with my hands throbbing, I would cry out in pain in my sleep. I went to my family Dr and because I have a heart defect since birth, he thought it might be my heart. Went back after seeing the cardiologist which ofcourse, the echo and EKG showed nothing wrong. He said with my hands starting to bother me and over all pain he sent me to my Rheumatologist, who tested me, but RA factors were clear however, he is a pediatric and adult rheumatologist so he knew that it doesn't have to show in blood test, after an extensive exam and a test for Lupus later, I got diagnosed. It's hard, some days are worse than others. Honestly my hands hurt just now typing this. But I am thankful to God that I'm still mobile. I was able to have a baby. And my family has helped me more than they will know. Some Dr's won t treat without blood work not showing RA. My hope and prayer is that every Dr, have more knowledge to help those in so much pain and suffering. Soft hugs, keep on living life!
I hurt my knee playing softball, at age 11. and went to patient first and was told it was sprained. It ended up never healing properly and had continuous pain that eventually went away. until a couple months later it swelled up and i couldn't bend it properly. After 8 months of PT it finally got better but not before my left knee swelled too. Just recently my fingers, knees, and toes swelled, and I had pain in pretty much every joint(including jaw which sucks) and now I have to go to my doctor again. It also doesn't help that in my first round of PT I was blood tested for Lyme and JIA and came back negative. so I don't know what it could be.
hi,
i am a physical therapy diagnosed with ra. i am also have so many food allergies and i have to go on the celiac diet, after been in the diet my energy, and my pain in my joints went away. i can recommended enough for all of you so please go on a gluten free diet you will see amazing results in your ra.
now i have so many patients that were even bed ridden and are up living normal lies on the diet.
if i eat or get contaminated with any gluten feel your flu symptoms and i even can hardly open my eyes. please do it. you will be great.
Another RA warrior here. If your pain level doesn't allow much exercise try a water aerobic class at your local YMCA. Water exercise is gentle on the joints!
I'm 23 & really scared about being early in life & experiecing major pains in my hands and shoulders , the morning is when the pain is at its highest . I havent gone to the doc but i know what im experiencing is NOT normal , but makes me feel better to know there IS other young folk experiencing this , thank u r sharing ur story 💌
Please go and visit the doctor. There are many medical treatments as well as they might suggest nutrition and lifestyle changes. All of these could help a lot the pain.
What was it?
I was diagnosed after having my fourth child, I recently started going gym and I only go on the bike for like 25 minutes and now my knee joint is just like horrible I thought also that exercise was good but actually I feel like it’s made it worse 😩
I got diagnosed when I was 22, i shed a lot of tears. I’m 24 now and my joints are starting to bother me at work. I’m not going to let it best of me though
I was diagnosed with RA and Psoriatic rheumatoid arthritis age 18 after a 3 year battle for diagnosis.All doctors said it was growing pains in someone my age with not family history of it.Im 29 this month I’m in high tech medication I’ve lost allot joint function locked left elbow swam necking of fingers and toes etc.Its so destructive.I hope that anyone newly diagnosed advocates for themselves strongly Ive has many many battles with doctors and getting medication suitable for me etc.You know your body best
thank you for this.
I was diagnosed with seronegative rheumatoid arthritis.
Went from doing 29 dead hang pull ups to not being able to open juice bottle.
Was in denial for a while.
Now I am thankful for RA as I have NO choice but to work out and eat healthy. My knees cannot afford any weight gain. So being lean is the only...getting ripped is just a fringe benefit lol
Are you on methorexate and is it mitigating the symptoms?
I love you meal prep videos. I too make meals for few days. Fish and veggies though. Limiting grain, gluten etc.
Thanks so much for the support! So sorry you're dealing with RA as well, but that's amazing you're choosing to do what you can to improve your health! Right now the methotrexate seems to be working well for me. :)
I was 17 my senior year 2013. My hands started swell and I couldn't move them and I was in horrible pain. So my mom took me mt primary doctor and she said it's either RA or diabetes. Got a blood test and it came back as RA but I have a severe type. I've been through multiple medication that lead me no where and left me with gut destroyed. I recently got diagnosed with Irritable bowel syndrome and I also had my gallbladder taken out a couple years back. I have complain to my Rhemtoglist about pain on my bigger joints. I have pain mostly in my neck and back shoulders hips and knees. My Rhemtoglist doesn't believe RA effects bigger joints. He only checks my smaller ones. I need a new Rhemtoglist but my depression and anxiety has effected that but I am working on it. Today I have gotten ibs more under control but my RA still very up and down. I also deal with a huge amount of muscle pain and tightness constantly in and out of physical therapy. This is definitely a tough disease to handle.
I'm so proud of you for sharing your struggles & taking action for yourself!! That's AMAZING
@@megantovar2228 Thank you! 💙
Thank you 🙏🏼 my story is basically almost the same. :/ soccer and swollen left knee. They drain my knee, tested it, had an mri. But know it has spread my right eye, and hands rn. It’s starting to travel. :/ I’m not on a permanent treatment yet. Just on pain killers but I’m a junior with Ap class and club so when the pain become a lot it was hard and everyone made me thing I was over exaggerating
oh my god i have that all.. myofacial pain syndrome,arthritis,spinal regenerate+anxiety disorder+acid reflux+kidney problem..today my doctor said i have arthritis again..i hate like this feeling tinggling sensation in my fingers,neck,chest all over my body..muscle ache i dont know how to explain the pain..im really tired😔
I was diagnosed about 2 months ago at 17. It had been going on for like a year or more with a pain free period of maybe a few months though) and a swollen middle finger.
So it was pretty bad by that point with inflammation in like every joint so the doctors wanted to start treatment immediately and I took my first injection 2 days later and was put on cortisone pills😅My middle finger is still a bit swollen haha
But we thought I scrolled my phone too much or something like that so that’s why we didn’t seek medical care earlier😅
Just got diagnosed with RA rehumatoid arthritis last month at 38 and now I'm 39 years old n I'm at work in pain trying to get through the day
I know what you are going through because I suffer from oa and ra it can be so painfull and very irritating when you can't even do the everyday things.
Hi Megan,
You might not see this message but I hope it gets across. I've been going through major symptoms of Juvenile Rheumatoid Arthritis and thinking that I'm alone with these problems with being 20 years young. But with just seeing the start of your video, especially seeing that you're a lovely normal looking girl (Soz I'm weird) 😂 its given me the littlest bit of hope for myself. I hope youre still going well 😊 peacceee
Thank you for sharing your story. ❤️ i've been having the same joint pains for the past 3 weeks now. 😥 I got my blood tested, dont have ra factor but will wait for the ANA count next week.
Hi, thanx a lot for the film. I've been suffering from different kinds of pains and aches since mu early childhood. Now I'm 39 and pains are stronger and stronger. My joints, every bone, every tendon, knees, hips, backache, neck, elbows, jaws. I was diagnosed Hashimoto a year ago. I take letrox. But it doesn't bring any relief. My RF is negative. However, sometimes, I can;'t even stand on my foot because of pain as if I have twisted my ankle.
I got RA when i was 4. Now im 24 still with it.
I'm 13 and I have all the symptoms of RA and I'm getting tested for it on the 18th. All my joints hurt so bad all the time and it's just horrible. The doc said I had to get tested since the medical steroid didn't help and since I have all the symptoms. I half hope it is so that I can get help but at the same time I hope it isn't because it's chronic and gets worse through life.
How are you now ??
Thank you for your story. It's very similar to my own. However I'll be 38 this year. When I was 16 I too was in a track type team but for Army Cadets then. One weekend after track, my left knee swelled up so bad I too couldnt put any pressure or weight on it. I went to the doctors with my fathwr and he gave me inflamation meds and that was it! The meds never worked amd I had a swelled knee for I believe 2 weeks back then, and I had to use crutches. You mentioned your other knee being pained but thought it was for compensating...mine did the same and I too thought the same until this video. All throughout my childhood I had been in and out of hospitals...to this day I dont even recall why. I do know that as a child I would hurt quite a lot and my father would just tell me it was growing pains. *sigh* When I'd sleep, my hands and feet would also fall asleep and Id wake those nights terrified that that appendage would fall off. So I'd rub them until sensation came back and I'd fall back asleep. Lol I guess Im still having growing pains and my hands and feet still fall asleep from time to time. However... I'm seronegative and cannot get diagnosed. My feet and hands are changing and yet no one gives me direct answers. I've come to ignor most of my pain that comes and goes...its the body and mental fatique and sometimes the brain fog that are the worse. I'm truly happy your mom is there with you for support. I myself have my kids and Jesus as my support. Thank you again.
im sorry to hear that i would you should try to finda another rhuematologist
Rosy C I have to give you an internet hug. I just turned 41 in August and I also had a lot of the symptoms that you did growing up. My mom would come rub the cramps in my legs and arms and I remember going to the grocery store on crutches when I was 8 one winter because the pain in my knees was just so insane! I went thru 4 rheumys in TX and none of them dx’d me. They kept saying I don’t need to be seeing a rheumatologist. Thank God my now husband, convinced me to try one more time when we moved to TN! I now have a wonderful rheumatologist and we are currently in the process of trying to figure out a way to get and keep me pain free. This is the first time EVER that my CRP has ACTUALLY come down at all so I know we’re on the right track. Hang in there and don’t feel bad about trying a different dr. Don’t give up until you find someone willing to help you...I know how much that journey sucks, but it’s worth it!! ❤️
My ra blood test came back Normal but im inflammation markers are up. Has anyone experienced this
Yes positive Ana 1:640 but RA was negative. I have pain in my knees shoulders back and hands
Hello Megan! Thank you for your video and positive attitude. I am almost diagnosed with RA - I have the RA factor and occasional swelling in the joints, however no major pain or stiffness yet. I wanted to ask you to clarify what you mean by healthy diet because I have seen so many different versions over the internet. Also what kinds of Vitamins are you taking as well? - Nadia
How ru doing now?
Hi sweetie, you are adorable and I am so sorry you went through all this pain, but you don't let us know what helps you which is so important. The combo of drugs you take so we can determine if that too is good. I suffer from RA and can't find a way to have me in no pain...:(
If we change our diet we can definitely reverse ra.without any medication we can live happily.so first thing is to stop eating non veg and eat food daily two times only and the most important thing is to eat c vitamin fruits like oranges daily.dont eat food made by wheat flour and also white rice.eat brown rice instead white rice .add millets in ur daily life and also try to drink vegetable juices like ash guard,cucumber ,beetroot ,carrot. Try to avoid food and do fastings by eating only fruits .maintain like this just for one month then definitely u will find change
Thank you so much.
Am 22 year old I too have RA n diagnosis going on with homeopathy medicine feeling better like am healing but ,I heard there is no cure , n can I get pregnant
are you indian parthana ? when did you got diagnosed? hows ur status ? now u feeling ok are u on painkillers or homeopat? medicine ?
What medication did he put you on? I'm in like your exact same shoes and am in so much pain.
I'm now on methotrexate & Humira!
Hi Megan, Sorry if you mentioned this in your video... I am jumping ahead before finishing the video to ask this question: have you had a history of dental issues?
McKenzie Bell Hi!! I actually haven't had any dental issues in my life really.
Hi Megan Im Romi im 24 now turning 25 this year july last year july i had a bit of back pain and it went keep getting stronger so went n done MRI it shows signs of wear n tear on my spine one neck area i have finger numbness hotness and some times . when i sleep no matter day or night i get huge pain in my thighs it lasts for 10 min Have no RF factor nor the HLAb27 is negative doc keep giving me medications but it works untill i drink it over it comes back Doc keep saying i dont have ARth but i don't know ? any tips ?
Hey i also have the same what you had been diagnosed with??? Plz tell
@@anushrirawale7850 they said its early Ankalosing spondylitis!
@@anushrirawale7850 but im negative rf and hlab 27 negative
@@iam.romiyo so you are still not diagnoised?? And what that neck do does it makes noise pain while taking your shoulder up plz tell me
@@anushrirawale7850 iam already diagnosed with early ankolosing spondilitis
how long from your knee being inflamed to your whole body hurt?
mark heroia I would say about 2-3 months
Megan Tovar thanks for the reply. hope your feeling a lot better. btw is your joint also swelled up? or just the knees?
mark heroia It started with my knees swelling up then it turned to other joints... But my knees were the main joints affected.
I was diagnosed wen I was 11 trust me its not fun still have it 25 years later I was diagnosed with juvenile arthritis
WOW, mine started out the exact same way except mine was my left knee this is crazy
I was being a stupid teen and punched walls intel’s my index and middle knuckle are deformed looking and am loosing grip strength. Now I can’t join the military😔
what are the good foods that you eat?
I am only 13 and I was diagnosed with juvenile RA
thanks.
How do we contact to share and talk about stories x
Hi Emma! Feel free to DM my Instagram: @itsmegzz_fitness
I am suffering so much. I am just 24💔😢
Your story sounds so much like mine only im 21 still not diagnosed.. because i dont have ra factor though ive had all the symptoms of the seronegative disease.. .. i am vary worried about the medication the doctors said i will need to take if this is the case.. and the synovitis spreading over my joints..also i have fibromyalgia:/
how could i work out if i cant even get up and out of bed? Do you have any tips how to get past this point? Thank you so much!
Try Moringa and zeolite.. it's working for me..
What do you eat?
Omg this is just like me
Look up the Paddison Program!!
Couldn’t listen, music too loud
try meringa
THIS FUCKING MUSIC IS SO OUTTA PLACE!!!!!
I have it also Itchy painful I drink beat juice Organic baby spinach organic I’m 90 now I force myself to walk with a walker I’m not on medication. Refuse to take it anyway bless you