Child Battling One of the Rarest Fatal Diseases in the World

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  • Опубликовано: 20 янв 2025

Комментарии • 1 тыс.

  • @InsideEdition
    @InsideEdition  3 месяца назад +238

    To follow Emma’s journey, or to donate to her GoFundMe, visit linktr.ee/lovetoemma

    • @Fenrir.Gleipnir
      @Fenrir.Gleipnir 3 месяца назад +14

      Beautiful child and a beautiful and wonderful mother!

    • @granmommy11
      @granmommy11 3 месяца назад +36

      ​@Violet.the.Budgie
      Yes, Emma is still alive. I'm her grandmother and am so thankful to still be able to enjoy life with our happy little Emma 💕 💗

    • @AmberHoyle
      @AmberHoyle 3 месяца назад +2

      ​@Violet.the.Budgiewhat?? You can't be that ignorant.This story literally came out yesterday and the interview was a month ago. Go follow her page.

    • @Serendipity11118
      @Serendipity11118 3 месяца назад +7

      Thank you!! I was wondering if she had one. Will be donating and keeping them all in our prayers as well. God bless you guys🙏♥️

    • @jodigardner1543
      @jodigardner1543 3 месяца назад +9

      ​​@granmommy11 May thy Lord & Lady wrap your family in love and light always & forever 🙏💖 in Jesus name 🙌

  • @valentinacardona173
    @valentinacardona173 3 месяца назад +730

    Such a cruel disease . Not only kills the patients but takes their lives away while they're still alive

    • @helianabanes4875
      @helianabanes4875 3 месяца назад +21

      Yeah. That has to be the worst part of it, especially her knowing she is losing everything.

    • @saulehaali329
      @saulehaali329 2 месяца назад +2

      😅Bru😂😂 its funny

    • @Adrosero
      @Adrosero 2 месяца назад +10

      ​@@saulehaali329 Bait used to be believable

    • @ashleighscott9888
      @ashleighscott9888 2 месяца назад +7

      @@saulehaali329no

    • @BANANA_films-1
      @BANANA_films-1 2 месяца назад +7

      @@saulehaali329no it is not

  • @germanshepherd6638
    @germanshepherd6638 3 месяца назад +1098

    This is why I’m studying medicine, I want to work in a lab curing disease

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад +63

      Respect

    • @MontysGatorGulf
      @MontysGatorGulf 3 месяца назад +52

      I have faith in you ❤

    • @jessfromdablock
      @jessfromdablock 3 месяца назад +58

      you're going to change so many lives in a positive way. good luck to you!

    • @UT-qu9nv
      @UT-qu9nv 3 месяца назад +32

      thats awesome. my best wishes, keep the eye on the prize , the prize being curing diseases which have not met their arch enemy yet. you will be that diseases's arch enemy / cure .

    • @justtryme2020
      @justtryme2020 3 месяца назад +21

      God bless you❤

  • @samjane6267
    @samjane6267 3 месяца назад +285

    "Love, Kennedy" is a book written by Jason and Heather Hanson, who's daughter also had Battens disease. After her terminal diagnosis, Kennedy's life would never be the same. But even as her body broke down, her heart never failed, nor did her ability to love. With each precious passing day, more people witnessed her faith and kindness uniting her community. It is very inspiring story.

    • @GraceJensen06
      @GraceJensen06 3 месяца назад +12

      i remember watching the movie when i was younger. it always stuck with me. such an inspiring story

    • @Harper63793
      @Harper63793 Месяц назад +1

      I watched it too!

    • @yvonnerahui8729
      @yvonnerahui8729 Месяц назад

      Thank you for that..I hope the parents see your comment..every encouragement is needed.
      I'm going to look for the book.

    • @GeminiRust
      @GeminiRust 13 дней назад

      It was a really good movie.

  • @Quitting134
    @Quitting134 3 месяца назад +472

    This is so sad! My family friend was diagnosed with battens disease 2 years ago and he is 6 currently, but the doctors said that he will likely within a few years. He can’t walk by himself, He can’t eat by himself, This is just such a horrible situation to be in.

    • @ssneakyandfriends1626
      @ssneakyandfriends1626 3 месяца назад

      couldn't one try using stem cells of a 'healthy' individual or, and hear me out, we risk making a epi/pandemic and make a special virus (due to their ability to inject cells with their dna) to slap the gene in into their brain?

    • @ChunkychunHealy
      @ChunkychunHealy 3 месяца назад

      @@ssneakyandfriends1626 there’s no treatment! There’s nothing we can do except pray for her!

    • @julesoxana
      @julesoxana 3 месяца назад +13

      Im so sorry💔 Praying for a cure asap and that he is healthy, safe and well✝️🙏❤️

    • @Quitting134
      @Quitting134 3 месяца назад +6

      @@julesoxana thank you! 🙏

    • @Fishtoe1539
      @Fishtoe1539 Месяц назад +1

      STOP the cap bud

  • @leah-michelle5872
    @leah-michelle5872 3 месяца назад +968

    These people need to call the Make A Wish Foundation. I'm sure there is a lot that little child would love to do. And it would be good for the family to make memories.

    • @TheCreativeAutistic37
      @TheCreativeAutistic37 3 месяца назад +78

      I agree I had blood cancer and was able to get my wish granted...😢 Though I feel so bad for this whole family terrible ❤

    • @pipertarin68
      @pipertarin68 3 месяца назад +30

      ​@@TheCreativeAutistic37 I'm so happy you have been in Remission 🙏❤️ My Mom, had a really Rare Cancer 54 years ago. She's been in Remission 54 years. May you been Blessed a long healthy Life ❤ Blessings & Love to you all,
      Piper & Singer a.k.a. My Kitty.

    • @TheCreativeAutistic37
      @TheCreativeAutistic37 3 месяца назад +18

      @@pipertarin68 Thank GOD your mother is well too :3 Im am grateful she is since the treatment itself is awful just as much as cancer itself

    • @59Schnauzermom
      @59Schnauzermom 3 месяца назад +12

      yes they do while she can still get around.
      Call Make A Wish

    • @pipertarin68
      @pipertarin68 3 месяца назад +7

      @@TheCreativeAutistic37 I'm grateful & Blessed My Mom, Survived. I would of Grown up without a Mom. I was 2 years old at the time.

  • @conceptiageffrard59
    @conceptiageffrard59 3 месяца назад +519

    Sending love to Emma, her amazing parents and everyone committed to her care💛

  • @HopeLandis267
    @HopeLandis267 3 месяца назад +104

    Being strong isn't not being afraid it's doing something even when you're absolutely terrified.

  • @jenniferhuff2566
    @jenniferhuff2566 3 месяца назад +110

    This is so heartbreaking. To hear her father’s voice crack when he’s talking about taking her to school just ripped my heart out. I don’t understand why she doesn’t qualify for disability. I know families that had premature babies with health issues and they collect $ from the government every month!!! How is Emma not covered?????

    • @AnneOnStage110
      @AnneOnStage110 3 месяца назад +1

      I think it was just because she was diagnosed late it honestly really depends if there district everything but really she should be covered to get all the medical support all of the therapies. She may need like everything should be covered. I don't know how.

    • @peachxtaehyung
      @peachxtaehyung 2 месяца назад +4

      Maybe because there's not much known about her disease but with hospital documentation etc she should still be eligible for it...

    • @cpiccerilli
      @cpiccerilli 2 месяца назад +3

      It's potentially because her symptoms/issues aren't bad/severe enough to qualify. Obviously we can see otherwise but with government agencies, she "doesn't need disability" because she doesn't use a feeding tube, breathing tube, IVs, etc. Sure she needs meds and round the clock care, but not beyond what a government agency would deem a parent can provide. It's a shame

    • @peachxtaehyung
      @peachxtaehyung 2 месяца назад +4

      @cpiccerilli I don't need any of that though, I am "just" in a wheelchair, need meds and my mom to help take care of what needs to be done but otherwise I don't need any med equipment. I've been on disability since I was 16

  • @aiyannaharris7905
    @aiyannaharris7905 3 месяца назад +298

    I really hope they can find a cure for her. She doesn't deserve to leave this world so early. Be strong, Emma!

    • @tonyblack4833
      @tonyblack4833 3 месяца назад +18

      True this world is beautiful and has a lot to offer

    • @not_here_for_a_while
      @not_here_for_a_while 3 месяца назад +9

      I really hope that if someone finds a cure, they dont go missing a day after

    • @ecuador6612
      @ecuador6612 3 месяца назад +4

      ​@@tonyblack4833not in afghanistan, Iran, venezuela, cuba, Palestine, south sudan, ukraine, haiti, somalia, n. Korea, syria do I continue?

    • @tonyblack4833
      @tonyblack4833 3 месяца назад +4

      @@ecuador6612 sucks to be them

    • @LovedLamb
      @LovedLamb 3 месяца назад +2

      @@tonyblack4833 at her age I was abused at school. You suffer in this life so you wont take granted Gods gift for us.

  • @susanlapierre2555
    @susanlapierre2555 3 месяца назад +565

    God Bless Emma love her with everything that you have. I will be praying for you and your family. 🙏❤️

    • @bevcamren1316
      @bevcamren1316 3 месяца назад +12

      Same I will pray every day for your family

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад

      @@bevcamren1316💀

    • @sonicgalaxy27
      @sonicgalaxy27 3 месяца назад +7

      Same here.

    • @CamTheMan8
      @CamTheMan8 3 месяца назад +10

      @@bevcamren1316Yeah cause praying does so much 😒

    • @saraswinerton7202
      @saraswinerton7202 3 месяца назад +13

      @@CamTheMan8 there’s nothing much that they can do it. Just let people be nice.

  • @eltonsherazee601
    @eltonsherazee601 3 месяца назад +83

    No child should have to go through any kind of suffering sad to hear that the " government " will not help

    • @AuntJulie-Jacob
      @AuntJulie-Jacob 3 месяца назад +10

      They do if your under a certain income but they, the dad only one working it says, must make too much money for them to be able to help. That's unfortunate for them!

    • @ileac7122
      @ileac7122 Месяц назад +2

      Emma’s parents need to speak with a social worker @ the Hosp & ask for that person to intercede for them about getting Disability to make their lives a lil bit easier. Go also to Welfare & plead the case. Don’t give up. They have to provide . They collect our taxes on everything put that $ toward helping ppl who really need the help.

  • @jingerjar1365
    @jingerjar1365 3 месяца назад +35

    Her father is so well versed it gives me happiness that allows him the ability to speak
    His feelings and the science understood

  • @ThrifterPickerShipper
    @ThrifterPickerShipper 3 месяца назад +221

    What is wrong with government disability???? I know all kinds of kids who get disability for ADHD so why can't a beautiful child living with a fatal disease not get it???? Yeah, that's BEYOND a broken system.

    • @lukeohenry9422
      @lukeohenry9422 3 месяца назад +24

      “Just for ADHD.” So you’re saying ADHD isn’t a disability?

    • @lukeohenry9422
      @lukeohenry9422 3 месяца назад +10

      I understand you saying this should be a disability. But it’s so rare they haven’t acknowledged it yet.

    • @lukeohenry9422
      @lukeohenry9422 3 месяца назад +21

      ADHD is a disability.

    • @ThrifterPickerShipper
      @ThrifterPickerShipper 3 месяца назад +52

      @@lukeohenry9422 I said no such thing. Of course it is. I have gotten numerous children disability for ADHD on appeal. The comparison to a short-lived fatal childhood cancer should be expedited and not put under appeal. There is a vast difference. How did I know someone like you would come along with no perspective hahaha. Come on now.

    • @ThrifterPickerShipper
      @ThrifterPickerShipper 3 месяца назад +27

      @@lukeohenry9422 Duh. It's the kind of law I practice. Simple to advocate for ADHD but not so much for a fatal cancer? Like I said, the system is broken.

  • @WOF665
    @WOF665 18 дней назад +10

    EMMA WILL WIN THIS BATTLE! Prayers! 🙏🙏🙏🙏

  • @MissMarshall
    @MissMarshall 3 месяца назад +29

    I cried. I’m crying with you. I want the parents to be as loud as possible & express their hardships for the world to pay attention to Emma ❤

  • @youmadhuh6375
    @youmadhuh6375 3 месяца назад +275

    I just couldn't stop crying... my heart goes out to them. I can't even begin to imagine what they're going through.. enjoy every second with your little girl... I pray they find a cure🙏🏾

    • @CamTheMan8
      @CamTheMan8 3 месяца назад +3

      lol

    • @Niallpro10
      @Niallpro10 3 месяца назад +14

      ​@@CamTheMan8And what the hell do you find funny 💀

    • @MalinoisMadness888
      @MalinoisMadness888 3 месяца назад +12

      ​@@CamTheMan8how weird can you be to "lol" on a post about a child dying? Do you feel better now??

    • @CamTheMan8
      @CamTheMan8 3 месяца назад +2

      @@MalinoisMadness888 Yes

    • @tonyblack4833
      @tonyblack4833 3 месяца назад +6

      With science research and the right people we can and will cure and deal with any disease

  • @annlaundrie7884
    @annlaundrie7884 3 месяца назад +202

    🙏🙏😭my heart goes out to this family

  • @erinboateng5961
    @erinboateng5961 3 месяца назад +82

    I am so sorry to the parents. I know this is a rare disease but I hope Emma gets to live out the remainder of her life with happiness❤️

  • @kellyong3431
    @kellyong3431 3 месяца назад +315

    this is actually sad.

  • @sharonstevenson1770
    @sharonstevenson1770 2 месяца назад +39

    She's a lucky girl to have such lovely caring parents.

  • @brittneyakabeezus260
    @brittneyakabeezus260 3 месяца назад +21

    I can tell you the WORST DAY OF MY LIFE WAS FINDING OUT..there was/is a spot on my brain after having a seizure. My parents were in MINNESOTA with my aunts. My husband had to walk out as I was crying, my parents were crying as well as my grandma. I will NEVER FORGET MY DAD SAYING DO NOT LET ANYONE DO ANYTHING until they get home. My sisters beat me to the hospital as they were transferring me to a different hospital for ICU support. I wish nothing except for happiness & time for this little girl.
    Thank you for the likes, I just want this baby to have a wonderful life while she has the opportunity, the chance as well as the time. This is the ONE time a person can say their time is valuable.

  • @adryannamalone9012
    @adryannamalone9012 3 месяца назад +30

    No child deserves this Sending love and prayers 💓🙏🙏

  • @francestaylor1649
    @francestaylor1649 2 месяца назад +9

    I’m disabled and do understand how it can be heartbreaking 💔🥀I’m Praying for Emma to be able to live life functioning properly 🌹❤️ healing ❤️‍🩹her with all my heart pouring out tears please let’s her live longer lord. 😭🥰😍🤗🙏🏾

  • @BrandonCiCi
    @BrandonCiCi 3 месяца назад +40

    This breaks my heart. Praying for Emma and her amazing parents ❤

  • @juanakravitz3024
    @juanakravitz3024 3 месяца назад +67

    Very sorry for what this family goes through. But sadly I don’t think they’ll be a cure for Emma in time. But for future generations they may one day have a cure. She’s a fighter that’s what’s important. Living the best life she can!

    • @cloroxbleach8661
      @cloroxbleach8661 3 месяца назад

      Having enzyme replacement is the ONLY cure. It’s a defect in the genome sequence. You can’t change THAT.

  • @micheleromola7266
    @micheleromola7266 3 месяца назад +17

    This story is unimaginable. My heart aches for this family. I pray for a miracle for them.

  • @soccerfanbeliever8725
    @soccerfanbeliever8725 3 месяца назад +114

    I hope she will be ok.❤🙏 No one should go through pain.❤🙏😢

  • @soramame7528
    @soramame7528 3 месяца назад +22

    I am so sorry about her diagnosis. What a beautiful child❤I bet she’s an amazing person.

  • @violetoderwald6535
    @violetoderwald6535 3 месяца назад +12

    Praying for Emma and sending the Austins a load of love.
    💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕

  • @me-pb3gi
    @me-pb3gi 3 месяца назад +24

    Oh my!! Sending prayers to all of you!!
    Stay strong!!
    Emma is beautiful!

  • @kennyphun1946
    @kennyphun1946 3 месяца назад +32

    Don’t give up hope, believe in miracles. Everyone please pray for this little angel.

  • @joellowe4141
    @joellowe4141 21 день назад +4

    She's a beautiful little girl, God bless ya'll.

  • @yogiyogesh-vh2zx
    @yogiyogesh-vh2zx 3 месяца назад +21

    Prayers for little Emma and her parents May Divine Grace and Blessings be with this beautiful family. ♥️♥️♥️

  • @charrielyn1231
    @charrielyn1231 3 месяца назад +11

    WOW. How terribly frightening & devastating. Keep making your wonderful memories - your precious little girl is beautiful.

  • @helianabanes4875
    @helianabanes4875 3 месяца назад +8

    I saw this loss of everything happen to my completely healthy father, over a period of less than 3 months. That was horrifying, and as his main caretaker, I went through immense trauma, and sorrow. He passed away(he had cancerous tumors in his brain, and cancer in his spinal fluid) and I am still struggling yo understand what, and how this could happen to me, to my father, my family. I don't know if I could survive my child losing everything, and then their life. I wish I could hold this mother, and father, and give them strength, but the strength has to feel pointless at times. There is no fixing it. This is so, so, so heartbreaking. I cannot imagine how surreal this all feels for them.

  • @janel5323
    @janel5323 3 месяца назад +11

    emma looks like such a beautiful soul, i hope this family can overcome this i keep you in my prayers

  • @BlackInsanity00
    @BlackInsanity00 3 месяца назад +83

    What a nightmare

  • @josephbennett3482
    @josephbennett3482 3 месяца назад +23

    She's a very beautiful girl, it's really sad 🥺😭

  • @josiedickson6959
    @josiedickson6959 2 месяца назад +4

    Mummy and Daddy ..i send loving hugs and prayers from New Zealand

  • @simonegacia4429
    @simonegacia4429 3 месяца назад +4

    I used to babysit a little girl that had this around 1980. Her name was Erin Faber. I’ll never forget her….

  • @aracelymeza340
    @aracelymeza340 3 месяца назад +11

    Y’all have my condolences 💐. That’s very sad honesty. Breaks my heart a little girl can’t even live life.

  • @rosah.901
    @rosah.901 3 месяца назад +16

    Praying for beautiful Emma and her family

  • @tokemeout
    @tokemeout 3 месяца назад +11

    Ok mom give your self some credit…you’re stronger than you know..Emma’s in my prayers

    • @AmberHoyle
      @AmberHoyle 3 месяца назад

      She absolutely is! That's why he has a smirk on his face when she says that.

    • @DominusTecum0917
      @DominusTecum0917 Месяц назад +1

      🙏♥️🙏

  • @jilliantavares8249
    @jilliantavares8249 3 месяца назад +11

    I send my love and prayers to Emma and her family.

  • @reedb9039
    @reedb9039 3 месяца назад +14

    This is heart wrenching

  • @genese80
    @genese80 3 месяца назад +9

    She's gorgeous I'm praying for her 🙏 and her parents

  • @jenniferwilliams9548
    @jenniferwilliams9548 3 месяца назад +10

    She is absolutely adorable, so precious, sending prayers and big hugs . 🙏💜💙🙏

  • @carolynrobinson6110
    @carolynrobinson6110 3 месяца назад +24

    Prayers for this beautiful family ❤

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад +2

      Y

    • @saraswinerton7202
      @saraswinerton7202 3 месяца назад +2

      @@AxoTheGamerwhat

    • @MalinoisMadness888
      @MalinoisMadness888 3 месяца назад +2

      ​@@AxoTheGameris this what you do with your time? Go volunteer or something

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад +1

      @@MalinoisMadness888 I clean up the environment
      I donate to animal shelters
      And I care for bugs and nature
      More then what most of y’all would do lol

  • @CarmonCarr-e8z
    @CarmonCarr-e8z 3 месяца назад +4

    I love how you support your daughter and I will be praying for her and her illness I hope she lives and knows that she is not alone and many people support her I will be following her journey I will pay for her god bless you❤❤❤❤

  • @mikerules666
    @mikerules666 3 месяца назад +10

    My thoughts and prayers go out to Kirstie and Eric and your daughter. May God smile upon you and bless you. 🙏♥

  • @amandahaskin7230
    @amandahaskin7230 3 месяца назад +8

    So heartbreaking such a beautiful little girl i can’t imagine what Emma is going through it must be heartbreaking for her parents

  • @jeffblaginess812
    @jeffblaginess812 2 месяца назад +2

    This shows how precious life is. She got to experience a little bit of life without having her innocence violated by today's society. Life is precious no matter what. I love the smile on that little girl. I feel like crying with the parents because she may be their child but when you see a little girl like that you just want the best for her and want to treat her like my own. May the Lord bless that child.

  • @roxananunez2735
    @roxananunez2735 3 месяца назад +14

    I’m so sorry for what’s happening to your precious baby 😪😪😪we will keep her in our prayers

    • @tonyblack4833
      @tonyblack4833 3 месяца назад

      That won't do anything

    • @roxananunez2735
      @roxananunez2735 3 месяца назад

      @@tonyblack4833to you probably not

    • @ChunkychunHealy
      @ChunkychunHealy 3 месяца назад +2

      @@tonyblack4833 you’re such a bot! 🤖

    • @tonyblack4833
      @tonyblack4833 3 месяца назад

      @@ChunkychunHealy looks who's talking 🤣🤣🤣🤣

    • @Ihavestarrz5
      @Ihavestarrz5 3 месяца назад

      ​@@tonyblack4833 bro is so bored he has to respond negatively to a positive comment

  • @JourneyInTheCity
    @JourneyInTheCity 3 месяца назад +10

    I knew looking at her, it was battens. I thought possibly sanfillipo but she didn’t have the look. Oh sweet baby. My sweet friend had a daughter named Alice. She passed at 8 with Battens. I miss her every single day.

  • @star_productionss
    @star_productionss 3 месяца назад +40

    This is actually sad…. 😞

  • @ImOnGearSoWhat
    @ImOnGearSoWhat 3 месяца назад +5

    So sad, she’s so pure. God please save this Angel 🙏😭

  • @barbaraunderwood1762
    @barbaraunderwood1762 3 месяца назад +3

    So sad to have to live with knowing your child is going to die. She’s such a beautiful baby girl. I’ve lost an infant, a stepson & my youngest son. When my infant daughter died in 1971, u couldn’t sleep nor cry. The pills that my doctor prescribed me to sleep didn’t help. Really hope she lives longer & yes take plenty of pictures & videos.

  • @catsnpeacocks
    @catsnpeacocks 3 месяца назад +6

    This is so sad. She’s beautiful little girl and the little boy is so cute.

  • @DA.BRATT.ziyah12
    @DA.BRATT.ziyah12 3 месяца назад +7

    Poor baby I’m so sorry that this is happening god bless emma❤

  • @lindaseiffert2737
    @lindaseiffert2737 Месяц назад +1

    That beautiful beautiful little girl....how awesome to have her in your life!!!.....while this is the hardest thing you ever experience...she is here NOW....we just never know...if we will be here...our loved ones..our pets...I wish I was there to help...because you BOTH need to live also.....I feel an intense live for your family... prayers and as much happiness as you can muster....and have fun with little Samual too❤❤❤❤

  • @AleisaEtheridge
    @AleisaEtheridge 3 месяца назад +11

    No matter how crappy your day is ,maybe you didnt get that promotion you wanted ,that date you wanted ,a dress or phone you deeamed of having ,so many things We take for granted ,nothing is worse than a very sick child that you cant help ,no matter how much you love them and you cant save therm and worse ,you cant save them because of money ,I hope and pray this family and every family with a sick child gets all the help they need .

  • @katyr6580
    @katyr6580 3 месяца назад +2

    She is lovely. I wish I could be there to help. Bless you all.

  • @floreiii
    @floreiii 3 месяца назад +5

    this is so sad. God bless Emma and her family. the saddest part is she looks like a happy little girl, she looks like she doesn’t know what going on.

  • @lukodaian
    @lukodaian 3 месяца назад +6

    God bless you as you go through this trying moment , sorry about the suicidal ideation

  • @lockjaw7437
    @lockjaw7437 3 месяца назад +41

    This is so sad

  • @mariaferreras4369
    @mariaferreras4369 2 месяца назад +3

    Deepest sympathy. ❤️

  • @kellybultman3588
    @kellybultman3588 Месяц назад +3

    Someone I know, one of her sons passed away from this disease. 😢

  • @elainecartwright1793
    @elainecartwright1793 2 месяца назад +2

    Oh dear god I pray for your family I’m 66 yrs of age why must children suffer I would give my life to save this beautiful child. I’m old it’s just not fair ❤❤❤❤❤❤❤❤❤❤❤❤

  • @jenniferjohnson9733
    @jenniferjohnson9733 3 месяца назад +6

    Prayers to your family. ❤️❤️🙏🏻🙏🏻

  • @59Schnauzermom
    @59Schnauzermom 3 месяца назад +4

    I am so so sorry for you all, prayers for your family

  • @Srider85
    @Srider85 3 месяца назад +45

    😢 it's very painful I hope she get well soon.. good bless..

    • @Borderlinegoldenretriever
      @Borderlinegoldenretriever 3 месяца назад +14

      Didn’t you listen, there is no getting well with this disease. She is going to die 😢

    • @lisboro9489
      @lisboro9489 3 месяца назад +4

      @@Borderlinegoldenretrieveru know that tomorrow there might be a cure.

    • @ecuador6612
      @ecuador6612 3 месяца назад

      ​@@lisboro9489it isn't 😂

    • @Seek1878
      @Seek1878 3 месяца назад

      @@lisboro9489 You don't develop cures overnight lol

    • @Fire.dragon45
      @Fire.dragon45 3 месяца назад

      @@ecuador6612 sometimes it can just happen there’s still a way

  • @FatimaFa-y1b
    @FatimaFa-y1b 3 месяца назад +2

    I’m sorry for their daughter’s loss, rest in peace Emma you’ll never be forgotten❤

  • @anthonynoneyabusiness420
    @anthonynoneyabusiness420 3 месяца назад +9

    This breaks my heart for that family /: especially as a father myself I’d be broken

  • @Delluu
    @Delluu Месяц назад +2

    Hearing the mom asking god just to take her daugther and bring her to heaven, broke my heart 💔 Thats just proves how much pain it was.

  • @brangibbs2218
    @brangibbs2218 2 месяца назад +3

    Prayers and LOVE for this family. 🙏 😇🤍💙

  • @mmmmlllljohn
    @mmmmlllljohn Месяц назад +1

    Emma is a beautiful child and she has amazing parents. May God bless and protect them and give them strength. ❤🇨🇦🙏

  • @carolynkeelin4761
    @carolynkeelin4761 3 месяца назад +5

    I hope she has the best life regardless of how long it is.

  • @antbbx3417
    @antbbx3417 3 месяца назад +9

    Gosh I’m so sorry. I’m legit crying

  • @yumark5800
    @yumark5800 3 месяца назад +3

    This is why as a nurse, I want to focus neurology. So many tragic diseases like these :( I hope there is a cure soon!

  • @celestephelps5897
    @celestephelps5897 3 месяца назад +2

    My heart goes out for the three of you. All I can do is pray for you.

  • @aishatomlinson3364
    @aishatomlinson3364 3 месяца назад +9

    I’m 22 years old with C.P. and still don’t get help

  • @lotusthefoodie
    @lotusthefoodie 3 месяца назад +1

    May God bless this family. Stay strong. It must feel so horrible to have your child diagnosed with a fatal disease. She is a beautiful child and did not deserve this. God bless. Amen.

  • @sandraphillipps4750
    @sandraphillipps4750 3 месяца назад +3

    God bless Emma. She is so sweet.
    Keep strong.

  • @kimbrooks7639
    @kimbrooks7639 Месяц назад +1

    this child will do the best she can. I wish her parents much prayers, and hope for the best.

  • @abdullahak2204
    @abdullahak2204 3 месяца назад +4

    A very resilient family!

  • @BonnieKetterman-qw8vd
    @BonnieKetterman-qw8vd 3 месяца назад +1

    Praying for little emma praying fof both of u as well during this difficult time

  • @MJ_247
    @MJ_247 3 месяца назад +17

    It’s not even 7am for me and I’m sad first thing in the morning 😢 poor girl

  • @ameliafroehlich2577
    @ameliafroehlich2577 3 месяца назад +2

    What a horrible and sad situation. I wish I had some magical words to cure this beautiful girl and all kids.

  • @RealestGuppy
    @RealestGuppy 3 месяца назад +3

    I’m so sorry, I just really hope they can all make good memories and that she doesn’t suffer too much…

  • @virginiasmith5371
    @virginiasmith5371 2 месяца назад +1

    I think you’re fantastic parents! Your daughter is so beautiful! I had a daughter that was so smart, courageous, beautiful and had to “grow up” fast. My daughter like I bet your daughter knew right from wrong and she didn’t mind carefully admonishing someone who wasn’t being the best they could be! We learn some of the hardest lessons in life via our children. My love for my daughter is just as strong now as it was! God Bless you now and always! I pray you feel the presence of Jesus with each of you every day! I care about each of you in this very difficult trial! ❤🙏❤️

  • @The_Horizon
    @The_Horizon 3 месяца назад +6

    crispr has so much potential to save lives

    • @corvus5801
      @corvus5801 3 месяца назад +1

      In this case it already has, a study in 2018 proved on two patients that it was possible to introduce the gene that is removed by batten disease. I don't know why it is not in widespread use.

  • @ToEKnee213
    @ToEKnee213 3 месяца назад +1

    My very beautiful friend just lost her son to Battens.
    Prayers to you and the family

  • @angelasampson3973
    @angelasampson3973 2 месяца назад +2

    Praying for your beautiful baby girl.

  • @justinflack5764
    @justinflack5764 3 месяца назад +31

    Praying 🙏 right now for your daughter

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад +4

      Y

    • @theresahaines2647
      @theresahaines2647 3 месяца назад +1

      @@AxoTheGamerYou need to seek Jesus!

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад

      @@theresahaines2647 y

    • @tonyblack4833
      @tonyblack4833 3 месяца назад +4

      That won't do anything she needs medicine and to be studied to find treatment and a cure prayer never does any

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад +2

      @@tonyblack4833 ikr

  • @ashleymarie6585
    @ashleymarie6585 3 месяца назад +2

    “Anticipatory grief” is literally almost worse than post death grief

    • @lovetoemma
      @lovetoemma 3 месяца назад +3

      Yes!! It takes a toll on you long before the grand show of grief displays itself. It’s a true testament of faith for me.

  • @FDR-ww6xz
    @FDR-ww6xz 3 месяца назад +12

    Hope she gets well soon.

  • @brea-amor277
    @brea-amor277 2 месяца назад +2

    Sending the best & Love to Emma & Family

  • @luckycharms1249
    @luckycharms1249 3 месяца назад +9

    Praying 🙏 for Emma and her family ❤🙏

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад +2

    • @Folkloreforevermore
      @Folkloreforevermore 3 месяца назад

      @@AxoTheGamerwhat?

    • @AxoTheGamer
      @AxoTheGamer 3 месяца назад +1

      @@Folkloreforevermore what’s praying gonna do

    • @saraswinerton7202
      @saraswinerton7202 14 дней назад

      @@AxoTheGamer until you do something maybe you should shut up and let people have some feelings for once honestly there’s nothing wrong with being nice

    • @AxoTheGamer
      @AxoTheGamer 14 дней назад

      @@saraswinerton7202 God could of easily stopped this

  • @chriskarpinski7874
    @chriskarpinski7874 2 месяца назад +2

    Poor Emma poor little girl, I hope she gets better I wish her and her family the best I will be praying for people like her God bless her and her family ☦️✝️🙏