Awesome. Thanks for sharing. I should interview my wife abt her experience living with an XLHer lol. So interesting to hear others' experiences. We dont get that nearly enough. Ive only meet 2 other people with XLH in person. I live in New Zealand and work as a teacher and also videographer/RUclipsr sorta lol
NatPicking thank you for watching my video!! You should definitely ask your wife!! In my next videos coming up I’m going to interview my brother who doesn’t have xlh, my parents, and sister a fellow XLHer
I'm from South 🇿🇦 have hypophospotamic rickets, I'm always in pain. I'm on Brufen and tramazac and it doesn't help. I get depressed because of the pain. When I walk in town with my husband people always stare and he don't like it. I always tell him to chill because I'm a VVIP. I love myself and I know I'm fearfully and wonderfully made by God. I am not cursed,or a reject I am a daughter of the most HiGh God. I love you guys.
I’m surprised that insurance won’t cover it? That’s the only way to prevent XLH from being passed down. Especially since XLH is on the rise. I would think that they would want to slow down the rise of XLH. Either way, that kid will be lucky growing up in a home filled with love. Best of luck to you guys.
MsChampion24 for me I think i wouldn’t go through that. There’s not 100% guarantee they can take the gene out and i doubt that any insurance would pay to get that done.
![BLACK BAG - Official Trailer [HD] - Only in Theaters March 14](http://i.ytimg.com/vi/Du0Xp8WX_7I/mqdefault.jpg)
Awesome. Thanks for sharing. I should interview my wife abt her experience living with an XLHer lol. So interesting to hear others' experiences. We dont get that nearly enough. Ive only meet 2 other people with XLH in person. I live in New Zealand and work as a teacher and also videographer/RUclipsr sorta lol
NatPicking thank you for watching my video!! You should definitely ask your wife!! In my next videos coming up I’m going to interview my brother who doesn’t have xlh, my parents, and sister a fellow XLHer
@@nayaxlher13 cool I'll subscribe! Bless
Girl he looked like he was afraid to answer wrong. All skeered!! Lol
I'm from South 🇿🇦 have hypophospotamic rickets, I'm always in pain. I'm on Brufen and tramazac and it doesn't help. I get depressed because of the pain. When I walk in town with my husband people always stare and he don't like it. I always tell him to chill because I'm a VVIP. I love myself and I know I'm fearfully and wonderfully made by God. I am not cursed,or a reject I am a daughter of the most HiGh God. I love you guys.
Thank you so much for watching! I hope I bring you some love and support. I know it’s hard some times but always try to stay positive!
Have you guys thought about getting invitro? They can implant an egg without the gene mutation.
MsChampion24 yes we have it’s just way expensive.
I’m surprised that insurance won’t cover it? That’s the only way to prevent XLH from being passed down. Especially since XLH is on the rise. I would think that they would want to slow down the rise of XLH. Either way, that kid will be lucky growing up in a home filled with love. Best of luck to you guys.
MsChampion24 for me I think i wouldn’t go through that. There’s not 100% guarantee they can take the gene out and i doubt that any insurance would pay to get that done.