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  • Опубликовано: 14 окт 2024
  • ...Meet my friend Joey Sooch, who is advocating for a very rare disease, fibrodysplasia ossificans progressiva.
    ~This video is just the bloopers. Full video will be out on his channel.
    Link to his channel is given below.
    / joeysooch
    Rare Disease Advocacy is still in it's infancy in India.
    Nonetheless, I personally believe that there is nothing called rare when there is enough knowledge shared.
    I am an author of the book "World Will Remember You Dad" published under Evincepub Publications on 23/04/2021, i.e my birthday.
    Buy my book here.
    Indian Domain
    www.amazon.in/...
    USA Domain
    www.amazon.com...
    UK Domain
    www.amazon.co....
    Your reviews would mean a lot to me. So don't forget to write your review on Amazon.
    Connect with me on social media.
    Instagram: @the_rare_world
    / the_rare_world
    @_shyamala_peesapati (My personal account)
    / _shyamala_peesapati
    Indian Ambassador for @shapingfoundations, New Jersey, USA.
    Check out their Instagram Pages.
    @rare_youth_revolution, United Kingdom.
    @shapingfoundations
    @the_rare_world
    There is nothing called rare when there is enough knowledge shared!

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