Watch us having some fun!
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- Опубликовано: 14 окт 2024
- ...Meet my friend Joey Sooch, who is advocating for a very rare disease, fibrodysplasia ossificans progressiva.
~This video is just the bloopers. Full video will be out on his channel.
Link to his channel is given below.
/ joeysooch
Rare Disease Advocacy is still in it's infancy in India.
Nonetheless, I personally believe that there is nothing called rare when there is enough knowledge shared.
I am an author of the book "World Will Remember You Dad" published under Evincepub Publications on 23/04/2021, i.e my birthday.
Buy my book here.
Indian Domain
www.amazon.in/...
USA Domain
www.amazon.com...
UK Domain
www.amazon.co....
Your reviews would mean a lot to me. So don't forget to write your review on Amazon.
Connect with me on social media.
Instagram: @the_rare_world
/ the_rare_world
@_shyamala_peesapati (My personal account)
/ _shyamala_peesapati
Indian Ambassador for @shapingfoundations, New Jersey, USA.
Check out their Instagram Pages.
@rare_youth_revolution, United Kingdom.
@shapingfoundations
@the_rare_world
There is nothing called rare when there is enough knowledge shared!
LOVE IT!
I'm so glad that you loved it Joey! 💛