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The Rare World
Добавлен 7 ноя 2017
Celebrating the unsung heroes, trying to see the unseen, feel the unfelt and hear to the unheard stories.
Being the voice for the rare disease community, making sure to break the geographical barriers someday!
We care for the rare :)
And your life matters!
You matter❤
Being the voice for the rare disease community, making sure to break the geographical barriers someday!
We care for the rare :)
And your life matters!
You matter❤
Watch us having some fun! #bloopers #rarediseases
...Meet my friend Joey Sooch, who is advocating for a very rare disease, fibrodysplasia ossificans progressiva.
~This video is just the bloopers. Full video will be out on his channel.
Link to his channel is given below.
ruclips.net/user/JoeySooch
Rare Disease Advocacy is still in it's infancy in India.
Nonetheless, I personally believe that there is nothing called rare when there is enough knowledge shared.
I am an author of the book "World Will Remember You Dad" published under Evincepub Publications on 23/04/2021, i.e my birthday.
Buy my book here.
Indian Domain
www.amazon.in/dp/9354460062/ref=tmm_pap_swatch_0?_encoding
USA Domain
www.amazon.com/dp/9354460062
UK Domain
www.amazon.co.uk/dp/93544600...
~This video is just the bloopers. Full video will be out on his channel.
Link to his channel is given below.
ruclips.net/user/JoeySooch
Rare Disease Advocacy is still in it's infancy in India.
Nonetheless, I personally believe that there is nothing called rare when there is enough knowledge shared.
I am an author of the book "World Will Remember You Dad" published under Evincepub Publications on 23/04/2021, i.e my birthday.
Buy my book here.
Indian Domain
www.amazon.in/dp/9354460062/ref=tmm_pap_swatch_0?_encoding
USA Domain
www.amazon.com/dp/9354460062
UK Domain
www.amazon.co.uk/dp/93544600...
Просмотров: 51
Видео
5 reasons why you don't care for RARE Dr Shyamala Peesapati #myassumptions #rarediseases
Просмотров 983 года назад
ruclips.net/video/sgHvgK8cqfE/видео.html Watch this video to know about 10 ways in which you can support the RARE. Rare Disease Advocacy is still in it's infancy in India. Nonetheless, I personally believe that there is nothing called rare when there is enough knowledge shared. I am an author of the book "World Will Remember You Dad" published under Evincepub Publications on 23/04/2021, i.e my ...
5 reasons why I chose rare disease advocacy THIS seriously? Dr Shyamala Peesapati #rarediseases
Просмотров 783 года назад
Rare Disease Advocacy is still in it's infancy in India. Nonetheless, I personally believe that there is nothing called rare when there is enough knowledge shared. I am an author of the book "World Will Remember You Dad" published under Evincepub Publications on 23/04/2021, i.e my birthday. Buy my book here. Indian Domain www.amazon.in/dp/9354460062/ref=tmm_pap_swatch_0?_encoding USA Domain www...
Is Rare Love Tough? Will I Ever Fall In Love? Dr Shyamala Peesapati #rarediseases
Просмотров 1083 года назад
Is rare love tough? This is just my take on it. However, if you find your love, Please don't give up! Fight for your love. All the Best. Connect with me on social media. Links given below👇 Rare Disease Advocacy Account: Instagram: @the_rare_world the_rare_world @_shyamala_peesapati (My personal account) _shyamala_peesapati I am an author of the book "World Will Rem...
10 Ways In Which You Can Help The Rare Disease Community. Dr Shyamala Peesapati #rarediseases
Просмотров 873 года назад
Rare Disease Advocacy is still in it's infancy in India. Nonetheless, I personally believe that there is nothing called rare when there is enough knowledge shared. I am an author of the book "World Will Remember You Dad" published under Evincepub Publications on 23/04/2021, i.e my birthday. Buy my book here. Indian Domain www.amazon.in/dp/9354460062/ref=tmm_pap_swatch_0?_encoding USA Domain www...
My Answers To Your Questions About Rare Disease Advocacy. #rarediseases Dr Shyamala Peesapati
Просмотров 673 года назад
Rare Disease Advocacy is still in it's infancy in India. Nonetheless, I personally believe that there is nothing called rare when there is enough knowledge shared. Time Stamps👇 0:31 What exactly is Rare Disease Advocacy? 1:07 Types of Advocates 1:40 Who can become a Rare Disease Advocate? 3:21 How much money do you make by Rare Disease Advocacy? 5:12 How many organizations should we connect our...
Choose to Challenge! International Women's Day #rarediseases
Просмотров 293 года назад
...thanks to these fellow advocates without whom this wouldn't have been possible.
Will I be able to do this? #choosetochallenge #internationalwomensday #signlanguage
Просмотров 253 года назад
This is my friend from Nigeria! Akheri, who is the conveyor of Special People Special Stories! For this International Women's Day, she chose to challenge me to learn the sign language alphabets. We are in this together. Let me give it a try💛 #rarediseases #careforrare
Help Navya Today! Pulmonary Alveolar Proteinosis. #rarediseases #careforrare #lungdisorder
Просмотров 553 года назад
Help Navya Today. Navya is a bubbly little girl with Pulmonary Alveolar Proteinosis. Every child deserves an innocent childhood. Your support means a lot. The least that you can do is share💛 P.S I am directly connected with their family. This is not a hype or myth! You can use the following links as well to make your minor contribution. India: www.ketto.org/fundraiser/help-this-baby-get-a-secon...
Rare Disease Day, Feb 28 2021.
Просмотров 683 года назад
Music Credits: www.bensound.com I extend my heartfelt gratitude to @rare_youth_revolution @rarerevolutionmagazine @cardsforbravery @katieds_ for giving me this wonderful opportunity. Getting the youth and the children involved is a Herculean's Task. Nevertheless, I am glad that we could make it happen. This rare disease day and this year we pledge to love each other a little more. A little less...
Spoken Word Poetry| Polymyositis| Rare Disease
Просмотров 403 года назад
ruclips.net/channel/UCWvcwhyVDqXZjPi7-aJ1Psg Link to Shana's channel that is Life of Sunshine on Wheelz :) Happy Watching :)
I am afraid :)
Просмотров 1303 года назад
I am afraid to even start off, but I guess I can't wait any longer :) I am sure that I am going to fail, but guess what, that's who its meant to be, Isn't it? I am afraid if I have taken the right choice, I am lost in it questioning myself if I am wise. All I can hear is the clock ticking. And the faith in my dreams gradually sinking. Is it because I am closer to the finish line? Or because I b...
LOVE IT!
I'm so glad that you loved it Joey! 💛
Nice video dear 🤩🤩
Thank you so much! 💛
Amazing video. Thanks for bringing out this lovely video to binge on!
...Thank you so much dear! 💛
Wow! Very nicely articulated video! More power to you girl.
Thanks a lot dear! This means a lot to me💛
Well speaking... Truly said the 5 reasons ADVOCACY 🧡
Thank you so much! 💛