Why TRAVEL is OK when you have neural circuit dizziness (and some tips for success!)
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- Опубликовано: 17 сен 2024
- Traveling can be a big, scary step when you have been suffering from neural circuit dizziness (PPPD, MdDS-type symptoms, vestibular migraine and related conditions). In this video, we talk about why sometimes people are afraid of travel or advised not to travel, and why I think you should feel free to do so! I will also give you three tools you can implement today to help make your vacation a success.
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Neural circuit dizziness basics (MUST WATCH): Why you have PPPD, MdDS, and other unexplained chronic dizziness & how to recover
• Why you have PPPD, MdD...
Vision: Are your eyes causing your dizziness? How to deal with visual symptoms in PPPD & chronic dizziness
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DISCLAIMER: Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk.
This is so on point. I feel better when traveling. I used to think maybe my house was making me sick.
Love this video!!! I want people to know that it does get better! I have VM and PPPD and I was so scared to travel again for fear of going backwards on how far I’ve come in my healing.
It took me a year and a half… 🥴 that’s a long time I know but I was really sick In the beginning and soooooo scared to travel again!
We drove 6.5 hours to the beach and I stopped every hour to ground myself and walk for a second and I did great!! I loved being able to be there and be a part of the vacation with my family ❤️
The fear with these disorders is very real I know, but the confidence that comes with trying things and seeing you are ok is a huge part of our healing!!
Hang in there everyone I know how tough it is to live with these disorders but healing is possible!!! (Slow but possible)😊❤️
LOVE reading this, Bethany! It's that fear of going backwards that often is the very reason why people get held back. I hope you're really proud of your courage, because it took some guts to push through that fear.
Thank you! I just recently drove 7 hours to pick up my daughter from college and I was totally fine, but the days before I did feel anxious about driving that long distance by myself! I stopped for gas and got dizzy and anxious, so I had to collect myself before I started driving again. But I am also dealing with stressors at home, like my husband, not understanding my dizziness and anxiety, he makes it worse!
I haven’t even watched this all the way yet but saw the title and wanted to share a success story. I had not gone on a car trip since getting pppd and was especially anxious about the beach because the ocean obviously moves and is a large open plain visually. I was in the car six hours for my vacation and stood in the ocean and had a major victory. I did have some symptoms but it felt really good to be there. I know we can’t always just push our way through things but this was the right amount for me and I am so relieved to have travel back as an option.
Edit: After having had a chance to listen to the whole thing… this is such great information, thank you! That is fascinating about getting away from your usual environment and symptom associations and how many people feel better while traveling because of that.
Julie what did you do to recover?
VICTORY! I loved reading this, Julie! I hope you feel incredibly proud of your courage.
@@TheSteadyCoach Thank you so much.
@@DiamondForevah I did take medication for a while and it helped but I had some tough side effects and had to stop taking it. I do still have symptoms and they have morphed and changed over time but I think what has helped with being a passenger in the car is being in that situation more and more and also I think it has helped me to mentally try to remain calm through symptoms, i.e. not catastrophizing but also acknowledging what I am experiencing and it is ok if it’s too much sometimes and I need to back off of whatever it is that’s triggering.
I didn’t know what to expect with the ocean. I may never experience that the same way that I used to but I’m glad I got to experience it.
Best of luck to you.
Yeah I sometimes catch myself expecting symptoms to happen if I do a certain activity. Not helpful 😅 I am still training my brain out of that 😊
It's a hard habit to break, but it's also totally understandable and human!
I am about to take a long flight tomorrow. I haven’t had dizziness in about a year. Yesterday I woke up with vertigo for about a minute and it sent me into full fledge anxiety.
I have been planning this trip for 6 months and was so excited and now I’m scared. Watching this video has really helped ground me and seeing a lot of the comments as well. I won’t allow myself to spin out of control because of my fear!
YOU CAN DO THIS!!! Come back and comment again (not as a reply but as a new comment so I don't miss it) and tell us how you did!
I hope you have a wonderful trip!
Hey how did it went?
Great advice that applies to all activity. It definitely takes effort but I’ve found that reframing expectations from ‘this is going to be terrible’ to ‘it’ll be fine’ has been extremely helpful. Thanks for your good work!
That's why I go into those deep explanations about why, from a nervous system perspective, it really can be ok! Glad you enjoyed this one, Paula!
Thank you so much!!! I just wished more Drs had all this knowledge....and not look at us like if we're crazy....🤪
You're so welcome, Fabian! They have a lot of knowledge but often are not looking at a patient as a whole person. I hate that you don't get that support from your providers.
My symptoms began when I was 21 years old and I flew on a plane, I had no idea what was happening, it went away after a few weeks. Then it happened again about 6 months later after another plane trip. I still had no idea what was going on, nor did I connect it to flight. The next time I went on a holiday and what got me was a week up and down in the elevator. I still did not know what was happening, nor did I connect it to flight. After my next flight, I discovered the connection and have avoided flying ever since. Except for one time, where I flew, was not expecting anything and went 48 hours feeling happy and free, and then it hit me again. I am constantly dizzy now. I go out and continue to remind myself against all odds that I am safe and can do anything. I use breathing techniques and try and lead a calm life where I can. I don't use avoidance behaviors and use the lift every day (without thought). However, I am still chronically dizzy. How do I convince myself that lifts and planes are fine when they are the things constantly triggering my symptoms? I am only 26 and it is my dream to travel but I have been unable to. I have been on your waitlist since April and would love to work with you.
Hi Katie, your past experiences are an incredibly powerful force that program your brain to make the same predictions in current experiences. Once it happens once (even if it wasn't something you were expecting), your brain will expect it every time you do it again. Messages of safety and not avoiding are wonderful tools that help extinguish this response for most people, but if there are other unresolved sources of danger mode in your life (this can happen to people who had wonderful childhoods and not stressful lives- it can be subtle things), that message is less likely to get through. I know you have been waiting for a long time and I wish I had a way to help you sooner. Some people need intensive one-on-one help and that makes it difficult for me to help a large number of people at once. Have you taken a look at the course since the update? It might help you determine if there is anything else in your life that could be a source of danger mode.
Love the barking dog analogy - so true !
The very end 😢. Did pretty well traveling to my second concert. A few moments of unsteady feelings. But goodness gracious since home today I have awful visual difficulties. Hopefully a good night's sleep will put me back to baseline
Ah yes, the brain associations kick in with a vengeance. Remember that barking dog metaphor!
Ahhh a little sad to report the trip (although amazing!) has sent me back into MdDs symptoms after being 2 years symptom free.
I will say the first 3 days were totally fine! I think that’s proof that stress and anxiety play a huge role in NCD. I didn’t feel symptoms after the first plane ride of first couple days!
But I think the amount of activity and anxiety I was doing grew throughout the week. Elevators and the museums really sent me over the edge. It was a massive trip and I had a lot of stressful moments. I’ve never properly treated my MdDs so I joined the Steady Coach membership and am hoping to once and for all tackle this! It’s scary to have symptoms after not having them for awhile but I’ve learned so much in the past couple of days.
You’ve got this. I’m sorry you’re not feeling well. I want you to live a life that allows traveling without fear of triggering symptoms. You can get there.
Thank you again for your wisdom..I too was wondering about travelling.
You're welcome, Moreen! It's a very common question.
Really informative video...got all my answers to the things i was worried about...dr. yo you are helping me alot in my life to get better...thanks alot...
You're very welcome, Shumaela! I am so glad that I was able to help you! Thank you for trusting me! ❤
I had pppd and mdds really bad, still do, but decided to fly. I absolutely love flying now, and it felt extremely scary at first, but i have more symptoms when riding a bus or car etc than flying. Questions can be asked
Thanks so much for another clear explanation and great video. I suffer with vestibular migraine from a bout of labyrinthitis and am worried about boat movement and air pressure in a plane. I take Stugeron, cinnarizin and ginger, use ear plugs and try not to get too anxious about it. I’ve just come back from a flight and a boat trip one of which was quite rough and have had a migraine and tinnitus since then, but am also having osteopathy on my neck and not sure if that has contributed to it. So of course I’m already anxious about a planned flight and cruise next year and the ‘threat mode’ is totally active. But as you say once I was abroad on our recent trip, I was totally fine whilst there and since getting back my symptoms have come back. So it’s remembering this and trying to not let the fear of symptoms worsening from overwhelming me before and during travel and using your calming tips before travelling. And my husband won’t let me give in to the fear and to stop travelling…and he makes me feel safe. ❤️❤️
You're handling it perfectly, Arty. I know there's a lot of fear-based information out there about travel, but my experience has been that my clients generally do GREAT traveling, especially once I've reassured them before they go! In fact, as you say, they often feel surprisingly symptom-free or much better while traveling.
Glad I found this I started with VN back spent 3rd..I was very sick.. 4 weeks of puking. ive been doing VT for 8 weeks and now dealing with balance this week seems like a setback. I decided to keep my 50th bday trip dec 30 to jan 6 my VT says I should go. we scaled the trip back from aruba to Florida for a 2 hour flight ...
You can do it!!!!
@@TheSteadyCoach I sure hope so. I think that's why my setback this week balance is way off, eyes/dizzy I'm worried about going. I've been watching your videos for 3 days trying to get myself calm
@@TheSteadyCoach are major setbacks normal while under stress. I was decorating sugar cookies last week. This week I feel super wobbly and that I've went backwards. I am worried since rebooting my vacation..I'm a bit stuffy too..think that's affecting my eyes. Just need reassuring that I'll come back to.where I was..I was doing balance exercises with eyes closed. And left that for now.
@@SugarxRushTutorialsx Did you end up going on your bday trip?? Would love an update! Hope it went well.
@@bsp1502 I did go to florida dec 30 to jan 7th. it was good.. flying there, no issues, walking the airport was tough. I got a cold half way through and flying back even with mucinex my ears really got clogged. Walking airport better. I walked everyday especially the lazy river
I also drunk ( I looked) walked St.Petes Beach. since back I've walked 20 to 30 mins a day if it's not icy. Today I shoveled the driveway, and made banana bread and stir fry. I work thru dizziness and foggy 🧠. I do 2 vestibular workouts a day and changed my mindset too I CAN!!! I go on vacation March 8th with 30 people and I'm determined to try to have fun.Thanks for asking
Thank you so much for this video, Dr. Yo! What do you think about medications like Dramamine?
Hi Molly! It’s also a vestibular suppressant so it can be used for the same purpose if needed.
All sensations are safe. All thoughts are safe!
Yes!!!
@@TheSteadyCoach focus on what you can control and there is a lot. Not on sensations you can’t control.
I've been suffering from dizziness and swaying vision for about 2 months now. Only times I feel completely normal are driving or when I am laying down. We just went on vacation to Aruba and honestly it was an amazing 4 days. Plane ride was smooth, even though the airport was tough with so much sensory overload. Being in Aruba, in wide open places and in the ocean was complete serenity. In the ocean I felt completely normal and had 0 symptoms the entire time I was in the water for 5 days.
Do not let these symptoms take over your life, live it and make unforgettable memories. I refuse to let this take my life over.
Wonderful, Richie!
Hi Dr. Yo! Thank you SO much for this, it couldn’t have come at a better time for me as I have a work trip coming up and I’ve been stressing about my symptoms. I have some klonopin in my “back pocket” just in case! I have my first appointment next week with Dr. Lisa and I’m really looking forward to it.
YES! Great timing with your travel! I really do think you will be surprised by how well you do.
funny when i am in the car i don't feel so bad and rather have the motion of the moving car than sitting still otherwise feel the symptoms of constant boat swaying.
Yes, this is common with my clients. I recently made a video on this that you may find interesting. Ask Dr. Yo: why does my dizziness get better (OR worse) in a vehicle or when moving? ruclips.net/video/6mPKiOa7VQ8/видео.html
SAME
I was diagnosed with MdDS 6 years ago after a 7 day cruise. The last time I flew on a plane (having had no idea at the time it might trigger me and not even knowing it triggered me until 2 days later) I was debilitated for 2 months and haven’t flown since. I’m even more afraid of ever getting on a boat again, but after watching your videos, I want to give traveling another try. Do you recommend starting out slow? Maybe a short plane ride or boat ride? For the last 6 months, my symptoms have been low and part of me is very fearful I might put myself back into a debilitating state and have to start all over again. But I also know I can’t live the rest of my life without traveling.
Thank you, thank you, thank you for these videos, for the class, and the workbook (I received mine today!) I have studied the heck out of MdDS, and you are the only expert that has given me real hope of having a normal future! I am currently studying to become an EFT practitioner, and I intend to serve this community in overcoming neural circuit dizziness. I hope to be on one of your shows to talk about how EFT can help calm those danger signals in the brain.
Many blessings to you and genuine, heartfelt gratitude for the hope you’ve given me and all you do to serve this community. ❤
Oh Cindy, I know MdDS is a special form of hell, and a lot of that has to do with the fact that people are (INCORRECTLY) told that there's nothing that can be done for it. I think things would look so different if people were given correct messages from Day 1. Regarding getting started traveling- there's no right way to do it. I don't see any reason to start slow- your body and brain are healthy. Might your brain have a freak out and possibly kick up symptoms? Possibly, because you've been told over and over that travel is a problem. However, the less afraid you are, the more you show your brain that you are completely unconcerned about its nonsense, the LESS likely it is that something like that will happen. The more confident you are that you can handle whatever symptoms your brain decides to create (and yuo can firmly and without fear tell it "NO."), the less likely it'll get going again. I know it's impossible to go in to traveling completely free of anticipation, but I want you to know that several of my clients with MdDS symptoms (regardless of the diagnosis) have gotten on boats, planes, surfboards and into cars over the last year, and they were completely fine. Please keep in touch - as you work your way through this, it would be an honor to interview you and hear how EFT has helped you!
I'm totally in the same boat - no pun intended. I had no problems with flights in my past, but I developed really severe motion/vestibular dizziness since 2013, and have not flown since due to the fear that it will trigger all of its terrible symptoms when I'm in the air. Because even going on a kayak for an hour will get me to feel like I'm walking on water once I'm on land; playing a video game will make me feel really dizzy; and driving my car (which I LOVED to do) for over an hour will get me to feel dizzy. I'd have to stop and walk around for a bit to get my visual/motion sensation back to normal. All of this chalked up to the assumption that "I *will* get sick and have a terrible plane ride" even though I haven't even gotten on a plane since having these issues. The projection of the fear is truly debilitating.
However, I have my first flight (since over ten years) coming up in February and I'm pretty stressed out about it lol. I have moments of feeling really confident, and moments of internally freaking out lol. I am deeply grateful for Dr. Yo and these insanely educational videos you're putting out. Sometimes it's hard to think that just telling your brain not to freak out will do the trick but I also have experienced the power of the mind/brain and it's ability to get us to experience outrageous symptoms in our body. I'm still really not confident about the whole plane ride but...I must live life to its fullest...I must overcome these fears of flying.
Thank you so much Dr. Yo! Please continue to put out these great videos esp regarding flying!
Thank you for your words of encouragement! I will keep in touch! :)
I hope you have a smooth flight! Good on you for doing it! I plan to fly again soon and this inspires me to do so.
@@nevcbear I just took my flight yesterday and while I had anxiety leading up to the moment, the actual flight was totally fine! The anxiety would hit a little during the turns but they were really OK. I'm a little shocked at how much I assumed and freaked myself out...fear is an ugly thing. It really makes us think we can't do something when our body actually can. This gets me so excited for the future - for future vacations and exploring. I really hope the best for you too!
I do so well on vacations or going somewhere special, but the next day is always bad. It's like my brain is saying "what was all that?!"
I know I shouldn't react to those symptoms, but it makes me feel like I'm far from recovery😅
I know!! This does happen a lot. The way you react when they pop back up really matters though! And you can’t control your initial reaction- don’t beat yourself up for that. Just see what you can do after it happens and you panic or feel anxious- that’s when it REALLY counts.
Dear Dr. Yonit! First of all, I want to thank you for answering my every question. Since I found you my life got better and this is something I will never forget. I will pray for you and I will always be thankful as you are nex to me during the hardest moments in my life.
I wanted to ask you, I am feeling, thank god, much better and one thing I always loved was cycling bike. I love it and I miss it dearly. From your perspective, is it alright to start slowly drive bike. Is there any harmful for the eyes or the pppd? I am bit afraid to try it. Whats your thoughts on it? thank you so much! ♥
Video coming shortly on this exact question- I see NO problem cycling. As long as there is no medical problem that would prevent you from driving a bike, and it is just neural circuit dizziness, go for it!!
Dear Dr. Yonit, thank you so much for your video which is really helpful !
I’d like to ask you a question. I was diagnosed with PPPD recently and I have two travels this summer. The problem is that I have to take four flights of 1 hour approximately, and I’m so afraid to develop MdDS on top of it.. do you know if it would be possible when you have PPPD to travel and then develop MdDS ?
Thank you so much for your answer ☀️
Hi Luana, both PPPD and MdDS are neural circuit dizziness so they overlap a lot. One doesn’t turn into the other; they are already the same brain process with different symptoms. It is also normal for symptoms of PPPD to change over time. That all being said, my clients with PPPD have traveled a lot and been fine. It is very important for you to try not to spend a lot of time fearing and worrying about this happening. The less afraid you are, the less your brain will receive the message that there is danger and react to things like travel.
Dr yonit, can I go on a boat for 1hour? Or it’s not gonna help my recovery?
Dr Yo! its ok to travel 2000 km with ncd?
Yes!
I have to take an international flight next month and my dizziness is the worst it’s ever been. Will I be ok?
Dear Dr Yonit, I’m having PPPD and feel dizzier when I’m in still mode. May I know what’s your advise if I’m going to take a long hours flight? As closing eyes made me feel more dizziness or even motion sickness (I did get severe motion sickness even closing eyes on moving car), this has caused me to be quite worried about having to feel the motion sickness again.. can you please help to advise on this ? Thank you
Consider using Graded Motor Imagery to prepare if you want to be proactive (look under the Brain Exercises playlist) but honestly the vast majority of people do great on a plane, way better than they are worried about.
I have a couple questions. A huge variety of people I’ve seen don’t think I should go on my cruise which is now in 2 weeks because I have to fly and drive and be on a boat for 8 days. However it’s fully paid for by other family members so I’ve been trying to be extra positive because I am telling myself I’ll be fine to go. I had two doctors recommend those patches for behind the ear to help prevent feeling worse i think? I’ve never had motion sickness or anythign like that only been dealing with that unsteady feeling for 7 months now off and on but it’s better than it was. Do u think the patch is a good idea or do you think a low dose anxiety medication would be better? A few doctors recommend that i try anxiety meds in general but I have anxiety about taking medication haha so haven’t brought myself to try that yet. For the patches behind the ear do u think I should wait and then put it on if I feel bad or should I put it on before I leave and just have it on the whole trip as a preventative measure? Btw love your page thank u so much!!
Hi Allie, it's really hard for me to give you advice about this since it's different for everyone. The patches won't prevent recovery or anything so it's ok to use them if you need them and your doctors think it's a good idea. They're usually for motion sickness but they are vestibular suppressants as well.
I don't see the link for the videos she references.
Hi Lanise! So sorry about that, the videos are added to the description now.
What if you have bppv and it’s travel day and your having a bad day
Hi Jason, BPPV typically only affects people in specific positions and can be resolved with a maneuver. My main concern re: travel would be not being able to find a vestibular therapist at my destination.
I have mdds and I feel fine traveling in the car but how to I bring myself down once I’m out of the car? Especially if I’m traveling not home
Hi Crystal, one of the best techniques here is to notice how you react when the symptoms come back. If you are searching for them and dreading them returning, the brain is getting a danger signal and that makes it more likely for the symptoms to come back with a vengeance. I’ll have a video soon on how to work through fear of symptoms.
@@TheSteadyCoach I know the symptoms will be there when I leave the car so not sure if fear is the word. Maybe more awareness trying to prepare?? Yesterday I tried not to think about it as i exited the car and def felt better. But sometimes the gravitational pulls I feel are so strong it def spikes my anxiety.
I adore your videos and love that you make the mind body connections. I have watched so many of your videos and they are so informative and reassuring that we can all be cured from our chronic dizziness. I have implemented so many of your strategies with great success. However my TMS started after using klonopin as prescribed…. benzodiazepines are only for emergencies and not regulated well by primary care doctors. You should just let your audience know that the FDA says that they should not be used for more than two weeks and the withdrawal can contribute to increase fight flight and anxiety symptoms which would only exacerbate dizziness. They are highly addictive, a class of meds that many take when no access to opioids, and many states have bills that are currently being passed so that patients have to be aware of how to taper off even after a very short term use and informed consent must be provided. After hearing you suggest that medication at the end of this video, my dizziness immediately increased, at least this is reassurance as to what you were saying is true. That past trauma and a decreased level of safety and the brain can trigger are the symptoms.
Hi Christine! My heart goes out to you- I am so sorry you went through this! I am glad you made this comment so that others can make informed decisions and know they are not alone if they have also gone through something similar. Benzodiazepines are often over prescribed (especially as bandaids to complex issues) and patients are not given appropriate information and support.
💜💜💜
Thank you for your kind reply and content
How are you ?
I am doing quite well as far as the dizziness goes. Lots of meditation in times of high stress. My iron was also low which was not helping so I have started a supplement and feel much better.
@@christinasouza2468 excellent!! how long were you dizzy