NEW Optokinetic Head Roll Exercise for MdDS - NEW VERSION based on updated research
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- Опубликовано: 29 сен 2024
- Joella's Success Story (MdDS recovery): • Joella's Success Story...
Ben's Success Story (MdDS recovery): • Ben's Success Story: r...
This is a new version of this exercise, which has been in use by vestibular therapists for several years: • 5 Minutes of Vestib: O...
Watch my video on the basics of why MdDS happens: • Why you have PPPD, MdD...
FREE course to help you recovery: thesteadycoach...
This video describes a NEW home version of the optokinetic head roll exercise. This exercise has been found effective for MDDS (Mal de Debarquement Syndrome), which is a form of chronic dizziness in which sufferers feel constant rocking, swaying or other rhythmic motion. Small studies (Mucci et al, 2018; Dai et al, 2014) have suggested high efficacy for this exercise after a few days of treatment. Recently published research (Maruta et al, 2024) detailed the protocol adapted in this video.
Apps:
This app has both the metronome AND the optokinetic stripes in one. Turn the speed to 13 or 14. Be sure your phone is NOT on silent or you will not hear the metronome. Note: I have no business relationship with the maker of the app. apps.apple.com...
You can also download Smart Optometry for the stripes and Pro Metronome for the metronome. When I last checked, both apps were free.
If you do not have an iPhone, you can download Smart Optometry and a separate metronome app.
play.google.co...
Pro Metronome: play.google.co... DISCLAIMER:
References: Sham-Controlled Study of Optokinetic Stimuli as Treatment for Mal de Debarquement Syndrome (2018) - Mucci et al, Frontiers in Neurology
Readaptation of the Vestibulo-Ocular Reflex Relieves the Mal De Debarquement Syndrome (2014) - Dai et al, Frontiers in Neurology
Symptom reduction in mal de débarquement syndrome with attenuation of the velocity storage contribution in the central vestibular pathways (2024)- Maruta et al, Frontiers in Rehabilitation Sciences
Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk.
My girlfriend MdDS for almost 3 months and we have tried a lot of things. Especially the exercises in the first video and in this one. We did all the exercises at speeds 13 and 14 (up to 3 minutes), but she doesn't feel any improvement after the exercises. Maybe someone can help with their experience?
1. Does it make sense to try other speeds (like 8 or 10)?
2. Does it help to change the thickness of the bars?
My girlfriend has problems with focus, so the bars become blurred. Is that typical?
Could medication have an effect on the success?
And if we understand correctly, you should focusing the bars in the middle and then try to count. We had a doctor who said you should follow the bars to the edge.
So if anyone has any other tips or experiences, please write. Many thanks. 🙏
how did your girlfriends mdDS come on? from experience with speaking to people that can tell a lot, I've had it for 5 weeks now
I fill side to side ....fill like travel in boat?
Can you demonstrate nodding the head up and down as well? I'm not sure if I'm doing it correctly
Just like saying "yes"!
Anything for gaze stabilization? I still have a vision delay and my vision is not steady when moving my head. It's been over a year now and I freak out that this may be permanent. Please tell me that isn't so and that you've seen people recover from this symptom 😢
My English is not very good, but do I understand it correctly? If you move from front to back, should I do my head from left to right and the stripes from top to bottom or vice versa?
Stripes always move right to left or left to right. The only thing that changes is the direction of your head movements. For front to back motion, the authors moved people’s heads side to side.
@@TheSteadyCoachShould I focus all time on one stripe from right to left ? Or should I fosuc on all stripes ať screen in my movement ?
Hi - this is really helpful, thanks! Are you able to share the references for the research?
Three studies in the video description!
@@TheSteadyCoach oh yes! didn't spot the '...more' at the end of the description.Thanks!
Thank you! I developed MdDS after a two week cruise the summer of 2022. Finding your videos then, helped me describe my symptoms and guide the Drs. to diagnose and treat. It did help, but i still get symptoms of like i am standing, walkiing or sitting on a boat. I think these more specific movements are something i need to do. Thanks for all you do!
You're very welcome! I am so glad that you have found this channel!
Hi Dr Yo, so this is just done once a day? Not up to 8 times a day like the previous protocol?
That’s how the authors of the latest study ran it- just repeating it until symptoms improved or the 90 minute time slot was done. Once symptoms improved, they’d stop for the day.
Hi, i am wondering, i have no mdds. I did have pppd. Now i mainly have visual issues left. But, i do have some swaying still. When i am living life i mostly not notice it too much anymore. But when i stand still, i do feel i am not completely in balance. Its a back and forth sensation. But mild. I was wondering, if i keep working on reducing my anxiety and stress, which was the cause of all of this, could that also be enough for my brain to get back to feeling steady again? Without these excercises?🙏
I am the same moving cars gets to me the most are you the same way maybe we can figure out what to try let me know thx
I too with pppd and left with visual symptoms I wanted to add ❤
I used OKN to fix my swaying and rocking but it couldn’t fix my bobbing up and down hahaha
Oh man! Yeah, this works for the rocking and swaying. I'm glad you got relief, though!
dang it haha
Does this work for the sensation of trampoline walking? If so, what direction?
I have PPPD/VM but one of my main symptoms is the 24/7 rocking dizziness. Could this help?
It's really designed for MdDS. The exact diagnoses overlap a lot because they're based on symptoms, but no one really knows if this helps PPPD.
Where can I find the link for the video. I tried
something similar with an audiologist specialist for PPPD for 8 weeks & could only tolerate 30-45 minutes. I am wondering if I have mdds too. Thank you
Video description but this is not for PPPD. Your physio likely recommended stripes for exposure, not for this purpose.
Do any people experience headache ans nausea after doing this exercise just for a few minutes? I have the feeling it’s only making me feel worse. Should I push through for another 4 days or am I making thinks even worse? 😢
Some people do have adverse effects and I would not continue if you're having them.
Dear Steady Coach!
Thank you so much for your videos!
It is very useful in such a country’s patients like me in Hungary here is no available rehabilitation for Pppd.
My question is:what do you think about prism glasses my neurologist thinks it is possible to stop the development of my eyes oscillopsia
Would it benefit me or not?
I have not personally seen prism glasses help with PPPD.
Dr. Yo, Thank you for the update! I heard about the new paper and was waiting to be able to read it for the details!! What do they/you consider "improved symptoms" from the protocol. Any minor change for the better? a significant change? I didn't know if they defined that in the paper or if you have thoughts. Just curious as I just completed the original version with VR goggles and had minimal change or success so I'm excited to try this version.
Hi! Totally subjective. They had people rank their symptoms on a scale of 1-10. Improvement just meant the person reported improvement. They actually did try to correlate these changes with measured adaptations of the vestibular system but none of the results were statistically significant.
Dr. Yo,
I did this and it helped a bit with my symptoms. Do I keep doing them or is it just one time for 5 days? Thank you thank you for everything you do for us!
AWESOME! They kept going each day for 5 days, but that doesn't mean you have to.
I will try this! Can you help me with the name of the apps to do this exercise? Or link, pls? Thank you, dr Yo! ❤️
In video description! All links are there.
I've notice an uptick of symptoms around that time of the month. Is there anything you recommend that can help?
ruclips.net/video/6Jh8uBVm22w/видео.html
Just to let you know that all of the optokinetic apps cost now. There are no free apps for this!
Boo! Thanks for letting me know, Donna, I'll see if I can find a free one and update the video description if I can find it.
How much time for each “rest” break between each set/level change?
To my recollection, they didn't specify in the study.
This is wonderful news for us mdds sufferers. Don't expose yourself to passive motions under these 5 days though!
Hi and what do you mean by "under these 5 days though"? I got MdDS from a 7 day cruise in 2017.
@@janetwooldridge8931 Hi. Have you ever tried to not expose yourself to passive motions after all these years since the day you got mdds? Have you continued to expose yourself of this world of passive motions (elevator; plane, boat; car, train and so on just because it have made you feel better?). You shouldn't expose yourself to passive motion events as these events are just keeping your mdds on in the brain; it still thinks that you are on that boat ride as started all this. You shouldn't expose yourself to passive motions for atleast 6 months to give the brain a chance to go back to normal and turn off the mdds in the brain; while you are doing this you should be outside in nature or in a city to just be, and do as much natural movments as possible like walking e.g..
This is a big mistake I see a lot of mdds sufferers do who are in this trap; but I can't blame them either, because we are forced to live in this world of passive motions unfortunately. I think my theory is the truth and the key to defeat mdds; because I followed it myself and I healed in 3 weeks when I had my mdds journey.
Hi. Have you ever tried to not expose yourself to passive motions after all these years since the day you got mdds? Have you continued to expose yourself of this world of passive motions (elevator; plane, boat; car, train and so on just because it have made you feel better?). You shouldn't expose yourself to passive motion events as these events are just keeping your mdds on in the brain; it still thinks that you are on that boat ride as started all this. You shouldn't expose yourself to passive motions for atleast 6 months to give the brain a chance to go back to normal and turn off the mdds in the brain; while you are doing this you should be outside in nature or in a city to just be, and do as much natural movments as possible like walking e.g..
This is a big mistake I see a lot of mdds sufferers do who are in this trap; but I can't blame them either, because we are forced to live in this world of passive motions unfortunately. I think my theory is the truth and the key to defeat mdds; because I followed it myself and I healed in 3 weeks when I had my mdds journey.
I haven't activated my mdds in the brain either since I had my mdds episode many years ago, that's because I'm not exposing myself to passive motion events over a prolong time, and especially not if I'm feeling streesed, anixety, fear or panic.
No, don't avoid anything
@@BlessedKarma10 If something doesnt work - you change tactic until it works. We are all individuals madame.
Can you post the link to the bio social approach you mention?
thesteadycoach.com/free-course or this video ruclips.net/video/4QDFGvHGURc/видео.htmlsi=88TM2xMdxz5vYVDR
I was dx with pppd.
I think I have mdds. Swaying, bobbing,.
I also feel like im falling when I lay down. It's not vertigo. Will this help?
This exercise is specifically for MdDS. The methods that work for PPPD are everything else I describe on my channel. That said, there is a ton of overlap because they’re both symptom based diagnoses with no differences found on lab tests.
@@TheSteadyCoach thanks for your reply
I flew on my first long flight in a long time 5 days ago and have found myself with MdDS symptoms that I can't seem to shake. I've just started day 2 of head rolls with stripes based on this video, but I'm curious, how long after doing the exercises should relief last?
I'm finding during the exercise breaks that I get a sense of relief, but after completing the exercise and when I stand up, within a few minutes it feels like the symptoms return. I'm imagining that's expected?
Also thanks for documenting this illness and process so thoroughly!
How are you now? Did it help?
@@juliab1423 my symptoms managed to pass completely with these exercises combined with prescribed medication, but my symptoms lasted around 3.5 weeks.
Not long after my symptoms alleviated, I took another long flight and noticed a sense of vertigo around an hour or so after landing, albeit less severe. It cleared within a week or so. I also took more of the medication until the symptoms passed.
Recently flew home from the same trip and landed without any vertigo at all.
This is totally anecdotal, but both times I had symptoms I was staring downward at my phone for the majority of the flight. I made the effort this time to look ahead (in flight entertainment over phone time), and combined with a good neck pillow things felt much better.
What motion should the stripes be in if you’re moving your head up and down?
They didn't change the direction of the stripes and just selected a side randomly if the person didn't have a dominant side.
Okay thank you and also, should the stripes be shaking at all at a certain point in the movement? Sort of like my eyes are panicking?
Hi, I had a question regarding passive motion. Do we have to avoid passive motions such as driving, planes, etc. to get rid of MDds? Or are we able to get better even if we go on passive motion, as long as we are addressing danger mode? Thanks
Don't avoid anything
I agree with BlessedKarma, I do not recommend people avoid things. I feel a little differently about cruises than about regular passive motion, though.
Hi dr.Yo is this good also for pppd? Having pppd My physio told me to do optokinetic exercises to improve my vision issues
No, what your physio is recommending is more of an exposure or habituation exercise, not this.
@@TheSteadyCoach thank you dr.Yo! He actually gave me the link of a video with stripes moving from left to right, you think I shouldn’t do it?
What if my motions are not side to side neither back and forth, but random? Like constantly moving , floating on a dock, gravity pull and waves. But no rhythm or direction.
Don’t have guidance for this unfortunately because this doesn’t sound like MdDS. Please see everything else on my channel (basics video in video description) for how to work with chronic dizziness.
I feel the same. I struggle to determine if I’m bobbing or swaying. The only way I can describe it is if I was in a pool with waves coming from all directions and I’m on an anchored dock in the middle. I’m definitely feeling the movement it’s just all over the place.
@@NAOART_85 was yours motion triggered or spontaenous just “woke up” like this?
@@8QQ8 motion triggered. Was on a very bumpy boat for 2 hours. That was 2 years ago. At the beginning it was definitely up and down like bobbing but now it feels more like I described.
@@NAOART_85 how do you feel walking? And does it disappear while driving?