My ALS Update Finding Joy in Small Moments

Поделиться
HTML-код
  • Опубликовано: 17 дек 2024

Комментарии • 152

  • @DarinNakakihara
    @DarinNakakihara  2 месяца назад +6

    Thank you for watching my updates. If you want to help support me, please visit my website. Here is the link. www.gofindsomejoy.com/merch

  • @juliekelderman4041
    @juliekelderman4041 Месяц назад +1

    I'm so sorry you are going through this. I am continuing to pray for you and your family. You inspire me.

  • @jojoFranklin
    @jojoFranklin 2 месяца назад +9

    Such a beautiful soul … hope you keep finding that joy for a long time to come.

  • @markvpinkham
    @markvpinkham 2 месяца назад +12

    You keep posting and we will keep watching.

  • @jule3480
    @jule3480 2 месяца назад +19

    I appreciate the time you take to make these videos . Very inspirational ❤

  • @blogwithben
    @blogwithben 2 месяца назад +3

    I'm so sorry man. You're in my thoughts and prayers. Stay strong.

  • @84Edusp
    @84Edusp 2 месяца назад +2

    Brazilian here. Watching your videos since your diagnosis... I'm really sorry for you, Darin. Actually, I almost cried when you tried to close your hand... Wish you all the best. You are such an inspiring person, brother! ❤ Let's go find some joy and some cure! I will see you better. I believe it!

  • @jimbilluris9132
    @jimbilluris9132 2 месяца назад +1

    You are so bright. So real. I'm so appreciative of your time and efforts to share all you are experiencing.
    I think you are awesome.
    Sending love to you.

  • @michellebacon397
    @michellebacon397 2 месяца назад +6

    Darin, I "spoke" to u thru Instagram, my husband was diagnosed with bulbar als & we watch your videos. Since his is bulbar it started in his mouth, speech, swallowing, choking, etc. We got him into speech therapy & she gave him pointers such a slow down & over enunciate. when drinking, hold the liquid in ur mouth for a few seconds to let ur brain catch up. Cut food into small pieces, chew Thoroughly. I ordered some stuff from your merch!! God bless you & your family! Yall are in our prayers!! Go find some joy!!

  • @johannamartinez7267
    @johannamartinez7267 2 месяца назад +12

    Hi Darin, I was diagnosed with ALS this June. I know everyone is different and it’s exhausting to hear people’s recommendations. I have started on Plasmalogens from Prodrome. Check out Dr. Goodenowe, and his explanation on ALS. I have scoured this earth and he makes the most sense to me. I have slowed progression since being at his health center in Canada, but have not stopped it or reversed yet.
    Thank you for sharing your story, this is a pretty isolating disease.
    Go Find Your Joy!

    • @Puda
      @Puda 2 месяца назад

      Hmmm I would advise to Google his name first. The guy claims he can cure autism on top of other things.

  • @kimtongo3533
    @kimtongo3533 2 месяца назад +8

    GO FIND SOME JOY!!! Darin, You are such an inspiration to every one. Thank you for sharing your journey and I am going to continue to pray for a miracle for u!!!!!!🙏☀️☀️🙏

  • @LiiBorossy
    @LiiBorossy 2 месяца назад +1

    “Go find some joy!” We love you too and thank you for letting us be part of your journey. I send all my love and strength to you and your family.🙏🏼❤️❤️❤️

  • @debrapinkus4013
    @debrapinkus4013 Месяц назад

    Darin you inspire me everyday to not take life for granted. Stay positive and you and your family are in my prayers.

  • @lr2714
    @lr2714 Месяц назад

    We are here! Keep making these videos. They are helpful to spreading the word about ALS❤

  • @DerekDegroot-h7s
    @DerekDegroot-h7s 2 месяца назад +2

    There is always Joy to find. No matter the circumstances, we can choose Joy. Thanks for sharing.

  • @jkue-f4e
    @jkue-f4e 2 месяца назад +2

    I want to remember to pray for you and your family every day. It’s hard for me to watch your videos, because ALs took my mom in May, and I just miss her so much ,and see so much of her suffering in your own progression of symptoms. No suffering is in vain if we unite it to Him; Christ redeemed and continues to redeem in our participation in His cross. Your joy and your gratitude for your family is such a gift to them. Coming from someone who loved an ALS patient who was never able to accept her diagnosis, know that it is a profound gift you and you alone can give. May God give you His peace and His joy, you are a courageous and generous man.

  • @dawnpaz2337
    @dawnpaz2337 2 месяца назад +3

    Go find some joy! Got my sweatshirt yesterday!

  • @marjilaplante9579
    @marjilaplante9579 2 месяца назад +4

    You are remarkable and you made me smile, and tear up. Blessings to you and your family, loved ones...♥️🙏

  • @dianevalenzuela2507
    @dianevalenzuela2507 2 месяца назад +2

    "Go find some joy"...Thank you for taking the time to make these videos and keeping us updated. Sending prayers.
    ~diane

  • @BiffJohnsonIII
    @BiffJohnsonIII 2 месяца назад +1

    0:50 lol!!!! Love ur content, bro.

  • @naomitsuji-tamaki1441
    @naomitsuji-tamaki1441 2 месяца назад +1

    My joy right now is watching your videos and listening to your positivity. Thank you.

  • @lr2714
    @lr2714 Месяц назад

    Go find some joy ! Yes Sir❤

  • @lr2714
    @lr2714 2 месяца назад +1

    Please know that you are not alone... you are an amazing man!
    Finding Joy! Always ❤

  • @blazinxracer
    @blazinxracer 2 месяца назад +4

    You are a reminder to always find joy!

  • @Cwazy4heaven
    @Cwazy4heaven 2 месяца назад +4

    Love you, Darin! ❤ 🙏
    Go find some joy!

  • @wendymichiko
    @wendymichiko 2 месяца назад +2

    Go find some joy! Thank you for spreading love and hope brother. 👊

  • @robertshelleyduck3268
    @robertshelleyduck3268 2 месяца назад +1

    I love you, Darin. You give me hope, and your testimony is my joy.

  • @cherisewhitney205
    @cherisewhitney205 2 месяца назад +2

    Go find some Joy 🩷 Big hugs Darin! 😊

  • @kathyfreeman9596
    @kathyfreeman9596 2 месяца назад

    You are so sweet ❤ and Inspirational!! Go find some joy !! ❤🙏🙏🇨🇦

  • @mygilli71
    @mygilli71 28 дней назад

    Go find some joy! That’s my plan 🎉

  • @chriscarson1903
    @chriscarson1903 2 месяца назад +1

    No Response Necessary my friend. Thank you for bringing me joy even in the struggle. I am praying for you and Mrs. N.

  • @youtubingwithyou
    @youtubingwithyou 2 месяца назад +3

    Keep up the positive mental energy, Darin. ❤️ 🙏🏻
    Go Find Some Joy, and a Hat! 🎩

  • @4BarbaraJ
    @4BarbaraJ 2 месяца назад +1

    Go find some joy!
    Appreciate you so much!

  • @DeniseMarieplaylearnteach
    @DeniseMarieplaylearnteach 2 месяца назад

    Go find some joy! Thank you for including us on your journey.

  • @BalletShoes-c1k
    @BalletShoes-c1k 2 месяца назад +1

    Bless you Darin for sharing. You’re in my thoughts ❤.

  • @DistressingDelilah
    @DistressingDelilah Месяц назад

    Beautiful video! Thank you for taking the time to speak with us about your journey! You are amazing.

  • @MarthaGarrett
    @MarthaGarrett 2 месяца назад

    Your videos are so important, thank you for sharing everything ALS is doing to you. I love your ♡.
    Prayers

  • @teribabe58
    @teribabe58 2 месяца назад +2

    I’m so sorry to hear of the progression of your symptoms. I wish they at least had meds to slow it down. Such a horrible disease!!!!! 💔❤️

  • @patrickshaw6561
    @patrickshaw6561 2 месяца назад +1

    I love you brother, keep fighting my friend.. we got this!

  • @watchingyou7945
    @watchingyou7945 2 месяца назад +3

    Love you and donated to your Go Fund Me. Darin, you are awesome! Go find some joy!🙏🙏🙏💖💖💖

  • @julieseattle
    @julieseattle 2 месяца назад

    Thank you so much for sharing encouraging words of wisdom. Sending you love❤

  • @jimmywarren6685
    @jimmywarren6685 2 месяца назад +1

    Prayers for you, my friend!

  • @pamalageorge3436
    @pamalageorge3436 2 месяца назад +1

    Thanks for bringing the joy. Ima go find more joy…

  • @shannonjohnston4634
    @shannonjohnston4634 2 месяца назад

    Go find some joy! Praying for you and Mrs.N!❤

  • @KDA593
    @KDA593 Месяц назад

    ❤go find some joy❤
    Love you!

  • @dragon7taekwondo
    @dragon7taekwondo 2 месяца назад

    Got my shirts. Finding joy. Stage 1 Limb onset.

  • @susanveligor364
    @susanveligor364 2 месяца назад

    My heart is joyful when I watch your videos. Go find some joy ❤

  • @SCTrojanRommel
    @SCTrojanRommel 2 месяца назад

    Go find some joy! I hope you continue to have the strength to keep making videos.🙏

  • @gaildevlin1989
    @gaildevlin1989 2 месяца назад +1

    That's what she said-loved it!!!!

  • @janieness5158
    @janieness5158 2 месяца назад

    Keep on keeping on, Mr. N!!!! Go find some joy!

  • @holliethomson6147
    @holliethomson6147 2 месяца назад +1

    Bless your heart ❤️ you’re a true inspiration. Much love to you and your family 😊xxx

  • @ninjanana102
    @ninjanana102 2 месяца назад +1

    Go find some joy!!! ❤❤❤

  • @katelynshin2383
    @katelynshin2383 2 месяца назад +2

    Go find some joy! 🥳🥳

  • @joanbeach644
    @joanbeach644 2 месяца назад +1

    Keeping you in my prayers Mr N. ❤️🙏🏻
    Go Find Some Joy!

  • @mjb9176
    @mjb9176 2 месяца назад

    Your spirit is beautiful. ❤

  • @rachellemontoya5504
    @rachellemontoya5504 2 месяца назад

    Going to find myself some joy!

  • @swscott10
    @swscott10 2 месяца назад

    As a teacher I found inspiration in your education videos. Now you inspire me with your honesty and courage! Praying for you🙏

  • @leonorvargas8656
    @leonorvargas8656 2 месяца назад

    Go find some joy!!! ♥️🤗😘

  • @ettiidan133
    @ettiidan133 2 месяца назад

    Today will go and find some joy,
    You are such an inspiration
    With all this Hurd journey you still see the bright side of life.
    I appreciate that,
    with your attitude, you give power to all of us.
    Thank you😊

  • @jillglass4914
    @jillglass4914 2 месяца назад +1

    Sending you and family loving vibes!

  • @amyfentress1
    @amyfentress1 2 месяца назад +2

    Sending you so much joy and love!!!

  • @amanday2731
    @amanday2731 2 месяца назад +2

    Go find some joy….❤

  • @sophiaentzminger5011
    @sophiaentzminger5011 2 месяца назад

    Sending you love from one human to another. How brave and inspirational you are. Blessings😊

  • @MsAddie1294
    @MsAddie1294 2 месяца назад +2

    Go find some joy 💕

  • @kristie33777
    @kristie33777 2 месяца назад

    Go find some joy! Thank you for being such an inspiration. Love you! ❤️

  • @webg03
    @webg03 2 месяца назад

    thank you for reminding me to go find some joy

  • @bethkelly9206
    @bethkelly9206 2 месяца назад +2

    Go find some joy! ❤

  • @flipflops4sherri
    @flipflops4sherri 2 месяца назад +2

    Friendships are so important!!! Go find some joy 😃

  • @annaledesma7873
    @annaledesma7873 2 месяца назад

    Go find some joy! ❤️

  • @deedemerson3126
    @deedemerson3126 2 месяца назад

    #gofindsomejoy !! 🧡

  • @DirlingSwervish
    @DirlingSwervish 2 месяца назад +2

    Go find some joy❤

  • @mindthemind
    @mindthemind 2 месяца назад +1

    Thank you for making videos! 😊📷 Go find some joy, everyone. ✌❤✨

  • @Aqua_Gino
    @Aqua_Gino 2 месяца назад +1

    I'm moved by your videos. 🙏Thank you for sharing your wisdom and your ongoing journey. I wish you the best. :)

  • @gagewyant7886
    @gagewyant7886 2 месяца назад +1

    Best video I've seen today

  • @dawnmoffett9479
    @dawnmoffett9479 2 месяца назад

    GO find some JOY!!!🎉

  • @kerstintaugher1793
    @kerstintaugher1793 2 месяца назад

    You truly are so inspiring! Thank you for making these videos!

  • @elsavalerio6851
    @elsavalerio6851 2 месяца назад +1

    Joy must be carried through 🎉 go find some joy🎉

  • @nancysouliere4302
    @nancysouliere4302 2 месяца назад

    May God bless you and your family. They must be very proud of you❤

  • @stomas5640
    @stomas5640 2 месяца назад +2

    That's what she said! That's funny but my Mom died from Bulbar ALS. She went thru the same symptoms you're going thru. God bless you!

  • @trishamorrison3986
    @trishamorrison3986 2 месяца назад +1

    Go find some joy!!!

  • @terrificintk
    @terrificintk 2 месяца назад

    You sound great to me!! Go find some joy! Gotta check out the merch ❤

  • @JasonMurray-r7n
    @JasonMurray-r7n 2 месяца назад

    Darin, can post more often if you feel up to it? I know it’s not easy sometimes but you’ve been a big help in my life.

  • @csl5859
    @csl5859 2 месяца назад

    Go find some joy!

  • @michellemcneill5313
    @michellemcneill5313 2 месяца назад

    Go find some joy ❤

  • @EricaL2024
    @EricaL2024 2 месяца назад

    #GoFindSomeJoy! ❤❤

  • @missiris1234
    @missiris1234 2 месяца назад

    Just keep being and find some joy🙏❤️🙏

  • @osqul
    @osqul 2 месяца назад +1

    Go find some joy!!

  • @barbhelle5481
    @barbhelle5481 2 месяца назад

    Go find some joy. I have SLE, RA and spinal stenosis to name a few. God bless you. ❤

  • @teresadavis128
    @teresadavis128 2 месяца назад +2

    Go find some joy💖

  • @kaylynm4193
    @kaylynm4193 2 месяца назад +1

    ❤ Go find some joy. ❤

  • @patticake6032
    @patticake6032 2 месяца назад +1

    Go find some joy ❤🙏

  • @marjilaplante9579
    @marjilaplante9579 2 месяца назад +1

    Go find some joy🙏

  • @joellenconway5464
    @joellenconway5464 2 месяца назад

    Thank you for your post. My husband has ALS. Quite the battle, isn’t it?

  • @blciffa
    @blciffa 2 месяца назад

    Go find some joy. ❤

  • @gloriaferri2085
    @gloriaferri2085 2 месяца назад +3

    Go find some joy ❤

  • @TeresaRaab-hb5co
    @TeresaRaab-hb5co 2 месяца назад

    Very nice vlog. Thank you for sharing.

  • @michelephillips1927
    @michelephillips1927 2 месяца назад +1

    ❤Go find some joy!❤

  • @markvpinkham
    @markvpinkham 2 месяца назад +1

    Go find some joy!

  • @ericdh2009
    @ericdh2009 2 месяца назад

    I got some finger splits. They’re made out of Velcro to help. Keep my fingers somewhat straight and then the Als dad I think on X has hand splints that keeps his finger straight so then I always bent and he says it helps a little bit.

  • @finestnostalgia
    @finestnostalgia 2 месяца назад

    Such a positive guy 💪🏽