Let's GO find some JOY everyone!!! Lifting you up in my daily prayers, Darin. Grief is a really tough thing, especially when it's just 1 loss after another piling up. It always makes my day when I see your smile, enthusiasm & you add a little bit of funny sarcasm in the mix. The world is a brighter, better place bc you're in it, Darin. Have a blessed wknd 🌞 🐕
I totally understand the fatigue. For years with my lupus, I continue to work. I was the infection control nurse at my hospital and I had to round the floors daily. I used to say I felt like someone was sitting on my shoulders and my feet were in cement, buckets, when I would have to walk around the hospital. The fatigue was overwhelming. My muscles did not want to work. I would be drenched and sweat. Luckily, I had a very understanding boss and she would say as long as I got my work done, I could take a break in the middle of the day go home take a nap and come back. I did that for weeks months, I was diagnosed in 2001 and couldn’t stop working until 2011. 10 years of hell my lupus is better since I don’t work but I rarely if ever feel “normal”. I became isolated because it was just better physically to stay home. After a while people stop inviting you to do things when you always so no. So yes keep trying to do things if you can. ❤
Sending a hug. ❤ Except for the Lupus (have another chronic illness) I can completely relate. Trying to figure out how to stay ‘well’/stable, connected and sane. The isolation, becoming disabled & forgotten is a tough one.
You are my ROCK at this stage with my ALS! You make me feel comfortable and I understand my body alittle more each time I tune into another update. You have taught me so much, and I appreciate you more than you know. I try each day to "To Go Find Some JOY!" Thank you ❤
The only way to live is day by day, as we never know what tomorrow will bring. Thank you for continuing to share your journey with us, Darin. Prayers up! 🙏🏻 #GoFindSomeJoy ❤
The doctors misdiagnosed my Mom as having a stoke for over a year. She finally went to a specialist when she was diagnosed with ALS. A real shame. Live your best life while you can
Thank you for sharing. I am sorry for all the losses you are feeling so acutely. I have several chronic illnesses, and I found you because I had my fifth c spine surgery, and I was listening to your update there, when I saw these other videos. It is hard to find joy in the midst of dark valleys, but you are showing it can be done!
You are one of my joys. My husband found out in June he has stage 4 non-smoking lung cancer. I find it hard to cope. Finding Joy is even more difficult. You are one the best!
Thank you for all your videos. It’s strangely comforting to hear your thoughts and what you feel throughout the journey. My dad just got diagnosed with ALS last month. As a daughter who’s been accompanying him meeting multiple doctors, it was hard to process, i cried for weeks but i saw how he tries to always stay positive so i’m here just trying my best being his support and drive him out a few times a week for some fresh air. Let’s go find our joy!
I needed this today. I have watched your videos and gained so much from your cheerful and yet honest reaction to ALS. I was diagnosed two weeks ago after struggling she find the reason my hand was atrophying. No doctor was able to determine the cause even though I had MRIs and other test. Finally, a neurologist did the nerve conduction and the test and there it was today I went to ALS clinic at Vanderbilt. Although I had been calm and I thought prepared, I saw about 40 other patients with ALS there. There were many who were in wheelchairs, power wheelchairs, andHaving watched about 50 RUclips videos from people who have ALS, I felt like I had a good understanding. But when I met with many doctors and others who treat ALS it was very close to home for me. I don’t wanna leave this world just yet. I have a strong faith in Jesus Christ and his promises But leaving my family, and this world that we live in is tough to comprehend.
I'm so sorry to hear about your diagnosis. It takes immense courage to share your journey, and I’m glad my videos have been a source of support for you. Remember, you’re not alone in this fight, and there are many resources and communities out there to help you.
Go find some JOY ❤ I totally understand the heaviness and fatigue 😩 it's literally like carrying a load of heavy weights attached to my legs and arms its absolutely exhausting 😩 like you expressed about how MND strips you from doing so many things we enjoyed and take for granted we in our lives before this horrible disease which it kind of feels like grieving for so many things 😢 i was always so active and enjoyed doing a workout in my gym, not to be able to go for a long walk on a beach with my family 👨👩👧👦their's just so much we miss out on but we need to concentrate on what we can do and to feel some what proud of ourselves 😊 So Mr N please keep fighting and bringing some joy to yourself and your beautiful family 👨👩👧👦 they love you for you and not what you could do ❤ and you really are doing a marvellous job on helping spreading awareness & hope 🙏 for many of us with MND 🦋👏🫂 sending much love from Coleen in the UK 🇬🇧 ❤🫂🥰
Mr. Darin… You are our FAVORITE teacher! 💙 You are an inspiration to watch. You give other’s a lot of HOPE! Keep on keeping on & continue to share the LOVE! Big big hugs 🤗 Mr. D. Go find some JOY 🙏🫶
Go find some joy! I don’t know what it is about you, but you are so incredibly likable and relatable, and I feel like I am so blessed to “know” you. It’s an honor.
I've been Hearing your story from the moment you got diagnosed.d when I'm having a bad day! You have such a good outlook on what's going on with you, you're a true inspiration! My love and prayers go out to you and your family, man they love you truly. I've had some bad days at work and I'll see your videos and it makes me try find some joy in my life....keep up the fight
I’m truly grateful for your support and encouragement. Your love and prayers mean the world to me. Let’s keep spreading positivity and inspiration together!
Go find some joy! Life is a gift, not to be wasted. Thanks for giving joy on your platforms. I've enjoyed all the knowledge and entertainment your platforms have shared over the years. Continued prayers for you and the family. ❤
I’m incredibly grateful for your support and prayers! It's heartwarming to know that my content has made a positive impact in your life. Thank you for being a part of this journey!
I feel for you. I hate that you’re going through this. I’m in the middle of tests here and tests there and ALS is on the table. Even being in this place in-between is isolating; I can only imagine how you’re feeling. HOWEVER, you are doing great by sharing your thoughts and emotions. Keep on reaching out and a whole different world of “joys” will suddenly appear. 🙏🏼
Go find joy ❤️ I’m following your journey not from a ALS point of view but dealing with aggressive MS. I relate to many of the things you say and I just want to thank you for making your videos and making me feel less alone.
I found some joy when I saw you come on Darin. I thought of you earlier as there is a short on Instagram of a 19 or 20 year old with ALS and she is in her car singing I’m gonna praise!!!! As loud as she can. Made me think and wonder how you were. I put you on my prayer sheet and I pray for others in groups so I can get to everyone. I was calling you Derek and I knew that’s not his name. A few hours later you come on. That was my joy. Also watching my 4 1/2 year old granddaughter play her first soccer game. Stay healthy mentally. When you have a day that is better get yourself out. Get a tea or latte or milkshake and watch people. Look for your next update. Take care.
You are such a sweet soul, Darin. I am a recent subscriber and I am praying for you. I am a Christian so I believe we just go to a better life after this and I also have a disabling illness. It is hard to think of leaving loved ones but I don’t fear death. I hope you can get connected to a group as you are such a people person. Go find your joy, Darin! Love from Canada ❤️🇨🇦🙏
Darin your attitude is amazing!! I agree find some joy! When things feel dark or heavy I find if you lie outside on the grass and star gaze at nite, it makes you feel grounded. And really shows the beauty around us. Continued prayers/lite always. ❤️🙏🙏🇨🇦
Go find some joy!!!!!☀️🙏☀️🙏☀️🙏 That was so funny when you said who wants to sit on the bottom row a the movies!! You really have a great sense of humor!! Praying for a miracle for you!!! Have an awesome weekend!!!!!🙏☀️🙏☀️🙏
Darin, thanks for sharing, I know just how you feel and it is hard to explain. I’m further along than you. 2 and a half years. I’m still finding love in my life. I’m sending love to you too.
It really touches home with me about the grief and isolation. I have to go to a neuromuscular center to determine progressive muscle weakness with other symptoms. But the this whole time I have been quietly adjusting my life due to fatigue and things being hard to do. It makes good sense and wise counsel to make a concerted effort to go out and live. That’s what i intend to do. Thank you.
I found your channel because I am having ACDF surgery. I went 3 days ago and they had trouble intubating me. So we are going to try again next week. However, my ENTIRE body is SO sore. I feel like I was in a car wreck or something. Anyway, thanks for the encouragement. I’m really feeling down and I need to find a way out of that. Go find some joy! I’m so sorry for all you have been through. I pray you find some relief and joy as well.
I just started following your channel. I’m sorry for your ALS diagnosis.😞 I’m glad to hear that you do have a functional dr as well as your standard MD. I am a true believer in the body’s ability to heal itself. Ten years ago, my husband’s Dr as well as his urologist told him he most likely had the early stages of prostate cancer as his PSA levels were really rising. They were pushing for a biopsy but after researching, my husband declined due to the possibility of seeding. Instead, he went on a regimen of over 25 different supplements as well as Essiac tea and juicing. After three months, he went back to his urologist and was retested. His PSA levels dropped all the way back down to normal! The dr was in shock. Said he’d never seen such a dramatic decrease in a patient in such a short period of time. He didn’t care to hear what my husband had done to achieve this, he only said, “continue doing what you’re doing”. Fast forward to today - he continues to do great! We both see a Chiro weekly (I have slight scoliosis with terrible back and hip pain at times plus neuropathy in my feet). I just wanted to pass on to you a protocol my chiropractor put me on to help with my sleep which is 5-HTP and L- tyrosine. I’ve been taking this for a week or so now and have noticed an improvement in my sleep which in turn has helped my mental well being and energy levels. Maybe you can try adding these to your supplement regimen - you never know, it may help your overall well being! I will continue following your channel and wish only the best for you! God bless!🙏
Go find some Joy! Darin, it made my day to see an update from you! My most joyful place is the outdoors. I'm headed there just to exist and enjoy my surroundings today, Thinking of you & your family!
How is it I can love someone that I have never met? I pray for you, Darin, every night without fail. You are such an inspiration to me. While my chronic pain condition is not terminal, sometimes I almost wish it was. So I am grateful you are not suffering from terrible pain. God still performs miracles,and I'm praying for one for you. Let's go find some joy!
Thank you so much for your kind words and prayers! It’s heartwarming to know I can inspire you, even from afar. I truly appreciate your support and positivity during tough times.
My dad was diagnosed with Progressive Supranuclear Palsy. (PSP). He also thought he had Lynne’s disease. He also described the fatigue just like you do .
Bless you Darin I'm waiting for my diagnosis. ☹ So far i have all the same experiences and symptoms as you. I have experienced things for about 10yrs. I have C4/5 damage and L5 s/1. I was told I have Lytic lesions as well. BUT They tell me I have Radiculopathy! Haha!... for 10 yrs?? Then why no offer of medication or physio??? I was told its my meds. What!???? ... so what did I do - I threw it all away and do not take a thing! Since 18 months now. I have fasciculations, terrible muscle cramps at night, bad sleep, dreams, nightmares. I don't talk about it to my children because well I have but no one understands really. No-one believes me. I am a hypocondriac remember? I went for a mental test for Altzheimers and Parkinsons. I passed. my mind is not affected. I knew I was not affected I know my mind is all there . I'm ok in that region you know. I can't do my housework much anymore, the house is a mess, my body is heavy, weak, tired, fatigued. I feel embarrassed about the house. My daughter arrived from California for 5 days with my granddaughter, I live in Sussex England/ I tried. I tried so hard to clean the house before she arrived. I threw everything I didn't want people to see in my office/spare bedroom and someone tried to open the door - I had a party, her brothers arrived you see and their children. To see her. My left hand is getting worse, my left big toe is the start of it all. Fasciculations up the left side. I get cramps in my right lower calf now, I've been watching ALS videos of people like you for 2 years now. It really helps me. You do a good job. I kind of know or think I know. I think I knew then. My doctor said in no particular words I was a hypocondriac. But I went for EMG/NC studies, was told I have start of Axonal peripheral nerve neuropathy. But I think I have all the opathies , myleopathy too. I walk like Quazimodo now. Still waiting to be diagnosed. After 10 years. I am going to ask for a Lumbar Puncture next and nerve biopsy. I think They wait until last thing to tell us, when only a few years left. They don't think we should know too soon. Anyway, Darin, your videos are comforting and informative. Please carry on the excellent work for as long as you feel you can. I will be here watching and appreciate hearing you, what you have to say, and appreciate you asking us {the public} how we are too which is so kind Go find some joy! From Carol-Joy, Eastbourne, Sussex, England.
Go find some Joy! Loving you from Florida. Keep moving anyway that you can.....one second at a time, one breath at a time...close your eyes and smile... now open them and grin big.
Darin - look at that beautiful weather God is granting you - and all that green in your yard! That, my friend, is JOY! I recommend getting a fancy power chair, of a less fancy version with wife power - and going into the beautiful world of nature! Love your smile and your attitude.
I hope you can get a power chair and go to Disney with your daughter..enjoy the weather and the food ..watch a parade. I know you can't ride the rides but you can still have some fun
Go find some joy. I agree that a life changing illness brings grief. Pray every day and connect someone to people every day. Your yard is so peaceful looking. Thinking of positive thoughts and sending them your way.
Is this d8sease hard to diagnose I have a rare cancer it was 7 years before it was I pray for you and I just found you but you seem to have a heart of Joy and kindness you are so positive so go find some Joy
Go find some joy! In 2010 my husband was initially diagnosed w ALS. Many Drs and tests later he was found to have an unusual presentation of MS. He also has Addisons, and he had a cerebellar stroke in 2015. Is this the life we imagined in our 50's? Absolutely not! But my husband has the most positive outlook of anyone I've ever met. I'm a work in progress.
Gut Dysbiosis: Imbalance in gut microbiota in ALS patients might contribute to disease progression through mechanisms like increased inflammation and altered immune responses.
Darin thank you for being open. Have you heard of Joni Erickson Tada? Her disability started at 17 years old. Her ministry is called “Joni and Friends” Please I’d you get a moment read some of her books and programs. Somehow I see you in Joni.
You are an inspiration! What resources have you found most helpful? Anything you know now you wish you knew or were told about when you first embarked in this journey?
You think you are no longer teaching, but you are. Only the classroom is different. Thank you!
What a lovely way to put it-I agree!
Let's GO find some JOY everyone!!! Lifting you up in my daily prayers, Darin. Grief is a really tough thing, especially when it's just 1 loss after another piling up. It always makes my day when I see your smile, enthusiasm & you add a little bit of funny sarcasm in the mix. The world is a brighter, better place bc you're in it, Darin. Have a blessed wknd 🌞 🐕
I totally understand the fatigue. For years with my lupus, I continue to work. I was the infection control nurse at my hospital and I had to round the floors daily. I used to say I felt like someone was sitting on my shoulders and my feet were in cement, buckets, when I would have to walk around the hospital. The fatigue was overwhelming. My muscles did not want to work. I would be drenched and sweat. Luckily, I had a very understanding boss and she would say as long as I got my work done, I could take a break in the middle of the day go home take a nap and come back. I did that for weeks months, I was diagnosed in 2001 and couldn’t stop working until 2011. 10 years of hell my lupus is better since I don’t work but I rarely if ever feel “normal”. I became isolated because it was just better physically to stay home. After a while people stop inviting you to do things when you always so no. So yes keep trying to do things if you can. ❤
hey sis-along with the debilitating fatigue, the last part of your post i could have written! here are some flowers for you💐
Sending a hug. ❤
Except for the Lupus (have another chronic illness) I can completely relate.
Trying to figure out how to stay ‘well’/stable, connected and sane. The isolation, becoming disabled & forgotten is a tough one.
You are my ROCK at this stage with my ALS! You make me feel comfortable and I understand my body alittle more each time I tune into another update. You have taught me so much, and I appreciate you more than you know. I try each day to "To Go Find Some JOY!" Thank you ❤
The only way to live is day by day, as we never know what tomorrow will bring.
Thank you for continuing to share your journey with us, Darin.
Prayers up! 🙏🏻
#GoFindSomeJoy ❤
I really appreciate your support! It means a lot to have you along on this journey with me.
The doctors misdiagnosed my Mom as having a stoke for over a year. She finally went to a specialist when she was diagnosed with ALS. A real shame. Live your best life while you can
Thank you for sharing. I am sorry for all the losses you are feeling so acutely. I have several chronic illnesses, and I found you because I had my fifth c spine surgery, and I was listening to your update there, when I saw these other videos. It is hard to find joy in the midst of dark valleys, but you are showing it can be done!
I also am on this journey. So true that you have to be purposeful in staying connected. Thanks for reminding me. Go find some joy! 🙏
You are one of my joys. My husband found out in June he has stage 4 non-smoking lung cancer. I find it hard to cope. Finding Joy is even more difficult. You are one the best!
Thank you for all your videos. It’s strangely comforting to hear your thoughts and what you feel throughout the journey. My dad just got diagnosed with ALS last month. As a daughter who’s been accompanying him meeting multiple doctors, it was hard to process, i cried for weeks but i saw how he tries to always stay positive so i’m here just trying my best being his support and drive him out a few times a week for some fresh air. Let’s go find our joy!
Seems like the good people always are always the first ones to suffer…. You inspire and motivate me…. Praying for you.
I really appreciate your support and prayers! It means a lot to me to know I can inspire others, even during tough times.
I needed this today. I have watched your videos and gained so much from your cheerful and yet honest reaction to ALS. I was diagnosed two weeks ago after struggling she find the reason my hand was atrophying. No doctor was able to determine the cause even though I had MRIs and other test. Finally, a neurologist did the nerve conduction and the test and there it was today I went to ALS clinic at Vanderbilt. Although I had been calm and I thought prepared, I saw about 40 other patients with ALS there. There were many who were in wheelchairs, power wheelchairs, andHaving watched about 50 RUclips videos from people who have ALS, I felt like I had a good understanding. But when I met with many doctors and others who treat ALS it was very close to home for me. I don’t wanna leave this world just yet. I have a strong faith in Jesus Christ and his promises But leaving my family, and this world that we live in is tough to comprehend.
I'm so sorry to hear about your diagnosis. It takes immense courage to share your journey, and I’m glad my videos have been a source of support for you. Remember, you’re not alone in this fight, and there are many resources and communities out there to help you.
Go find some joy! Thank you son
I h for sharing your journey ❤
"GO FIND SOME JOY", Darin.....my best to you!
Go find some JOY ❤ I totally understand the heaviness and fatigue 😩 it's literally like carrying a load of heavy weights attached to my legs and arms its absolutely exhausting 😩 like you expressed about how MND strips you from doing so many things we enjoyed and take for granted we in our lives before this horrible disease which it kind of feels like grieving for so many things 😢 i was always so active and enjoyed doing a workout in my gym, not to be able to go for a long walk on a beach with my family 👨👩👧👦their's just so much we miss out on but we need to concentrate on what we can do and to feel some what proud of ourselves 😊
So Mr N please keep fighting and bringing some joy to yourself and your beautiful family 👨👩👧👦 they love you for you and not what you could do ❤ and you really are doing a marvellous job on helping spreading awareness & hope 🙏 for many of us with MND 🦋👏🫂 sending much love from Coleen in the UK 🇬🇧 ❤🫂🥰
Mr. Darin… You are our FAVORITE teacher! 💙 You are an inspiration to watch. You give other’s a lot of HOPE! Keep on keeping on & continue to share the LOVE! Big big hugs 🤗 Mr. D. Go find some JOY 🙏🫶
I am so sorry to hear that you are extremely fatigued. When you feel tired everything seems worse. Take advantage of your good days. Sending hugs❤
Go find some joy! I don’t know what it is about you, but you are so incredibly likable and relatable, and I feel like I am so blessed to “know” you. It’s an honor.
I've been Hearing your story from the moment you got diagnosed.d when I'm having a bad day! You have such a good outlook on what's going on with you, you're a true inspiration! My love and prayers go out to you and your family, man they love you truly. I've had some bad days at work and I'll see your videos and it makes me try find some joy in my life....keep up the fight
I’m truly grateful for your support and encouragement. Your love and prayers mean the world to me. Let’s keep spreading positivity and inspiration together!
You are an amazing person and excellent teacher. You're videos are very informative! Thanks for what you do.
Go find some joy! Life is a gift, not to be wasted. Thanks for giving joy on your platforms. I've enjoyed all the knowledge and entertainment your platforms have shared over the years. Continued prayers for you and the family. ❤
I’m incredibly grateful for your support and prayers! It's heartwarming to know that my content has made a positive impact in your life. Thank you for being a part of this journey!
I feel for you. I hate that you’re going through this. I’m in the middle of tests here and tests there and ALS is on the table. Even being in this place in-between is isolating; I can only imagine how you’re feeling. HOWEVER, you are doing great by sharing your thoughts and emotions. Keep on reaching out and a whole different world of “joys” will suddenly appear. 🙏🏼
Go find some JOY!! I’m with you on that journey. Your beautifully soul and mind give ME joy.
I truly appreciate your beautiful message! It warms my heart to know that I can bring joy to you, just as you do for me.
Go find joy ❤️ I’m following your journey not from a ALS point of view but dealing with aggressive MS. I relate to many of the things you say and I just want to thank you for making your videos and making me feel less alone.
I found some joy when I saw you come on Darin.
I thought of you earlier as there is a short on Instagram of a 19 or 20 year old with ALS and she is in her car singing I’m gonna praise!!!! As loud as she can. Made me think and wonder how you were. I put you on my prayer sheet and I pray for others in groups so I can get to everyone. I was calling you Derek and I knew that’s not his name. A few hours later you come on. That was my joy. Also watching my 4 1/2 year old granddaughter play her first soccer game.
Stay healthy mentally. When you have a day that is better get yourself out. Get a tea or latte or milkshake and watch people. Look for your next update. Take care.
You are such a sweet soul, Darin. I am a recent subscriber and I am praying for you. I am a Christian so I believe we just go to a better life after this and I also have a disabling illness. It is hard to think of leaving loved ones but I don’t fear death. I hope you can get connected to a group as you are such a people person. Go find your joy, Darin! Love from Canada ❤️🇨🇦🙏
Darin your attitude is amazing!! I agree find some joy! When things feel dark or heavy I find if you lie outside on the grass and star gaze at nite, it makes you feel grounded. And really shows the beauty around us. Continued prayers/lite always. ❤️🙏🙏🇨🇦
Go find some joy!!!!!☀️🙏☀️🙏☀️🙏
That was so funny when you said who wants to sit on the bottom row a the movies!! You really have a great sense of humor!! Praying for a miracle for you!!! Have an awesome weekend!!!!!🙏☀️🙏☀️🙏
So glad to see you hanging in there and holding on to your inner joy❤😊even in the face of insurmountable odds. You really inspire me!
Thank you so much for your kind words! I'm really glad to hear that my journey resonates with you. Let's keep inspiring each other!
Darin, thanks for sharing, I know just how you feel and it is hard to explain. I’m further along than you. 2 and a half years.
I’m still finding love in my life. I’m sending love to you too.
Praying for you all the way in South Carolina. ❤
A good way to feel, “Go find some joy”. My prayers to you and your family.
It really touches home with me about the grief and isolation. I have to go to a neuromuscular center to determine progressive muscle weakness with other symptoms. But the this whole time I have been quietly adjusting my life due to fatigue and things being hard to do. It makes good sense and wise counsel to make a concerted effort to go out and live. That’s what i intend to do. Thank you.
I found your channel because I am having ACDF surgery. I went 3 days ago and they had trouble intubating me. So we are going to try again next week. However, my ENTIRE body is SO sore. I feel like I was in a car wreck or something. Anyway, thanks for the encouragement. I’m really feeling down and I need to find a way out of that. Go find some joy! I’m so sorry for all you have been through. I pray you find some relief and joy as well.
I just started following your channel. I’m sorry for your ALS diagnosis.😞 I’m glad to hear that you do have a functional dr as well as your standard MD. I am a true believer in the body’s ability to heal itself. Ten years ago, my husband’s Dr as well as his urologist told him he most likely had the early stages of prostate cancer as his PSA levels were really rising. They were pushing for a biopsy but after researching, my husband declined due to the possibility of seeding. Instead, he went on a regimen of over 25 different supplements as well as Essiac tea and juicing. After three months, he went back to his urologist and was retested. His PSA levels dropped all the way back down to normal! The dr was in shock. Said he’d never seen such a dramatic decrease in a patient in such a short period of time. He didn’t care to hear what my husband had done to achieve this, he only said, “continue doing what you’re doing”.
Fast forward to today - he continues to do great! We both see a Chiro weekly (I have slight scoliosis with terrible back and hip pain at times plus neuropathy in my feet). I just wanted to pass on to you a protocol my chiropractor put me on to help with my sleep which is 5-HTP and L- tyrosine. I’ve been taking this for a week or so now and have noticed an improvement in my sleep which in turn has helped my mental well being and energy levels. Maybe you can try adding these to your supplement regimen - you never know, it may help your overall well being!
I will continue following your channel and wish only the best for you! God bless!🙏
You are a true inspiration.....GO FIND SOME JOY !!
Keep pushing brutha ,Find that joy !
Realize you are still teaching many 🙏
Love you.
Go find some Joy! Darin, it made my day to see an update from you! My most joyful place is the outdoors. I'm headed there just to exist and enjoy my surroundings today, Thinking of you & your family!
You teach me all of the time... Go find some joy and I will as well♥️
Finding some joy right now, snuggling with my dog. She brings me so much joy and hope yours bring you joy as well!
Go find some joy!!! With you through these posts. You are in my thoughts and always will be.
How is it I can love someone that I have never met? I pray for you, Darin, every night without fail. You are such an inspiration to me. While my chronic pain condition is not terminal, sometimes I almost wish it was. So I am grateful you are not suffering from terrible pain. God still performs miracles,and I'm praying for one for you. Let's go find some joy!
Thank you so much for your kind words and prayers! It’s heartwarming to know I can inspire you, even from afar. I truly appreciate your support and positivity during tough times.
Go find some joy! 🎉 It's a privilege to be able to join you here on RUclips.
Been waiting to hear from you! Glad you are still standing strong. Keep it up 👍
Thank you so much for your support! It means a lot to me to know that you're here. I'll keep pushing forward!
Let’s go find some joy! Praying for you and sending lots of love and healing ❤️🩹
My dad was diagnosed with Progressive Supranuclear Palsy. (PSP). He also thought he had Lynne’s disease. He also described the fatigue just like you do .
❤ you Darin! Praying for more good days ahead! Go find some joy!
Go find some joy Darin. I’m going to go find some connections. You’re a great teacher❤
Thank you for sharing your journey! I try to find joy everyday! Enjoy your wonderful family!
Go find some joy. Thank you for sharing your journey. ❤❤
You gave me words of wisdom today. Thank you you!
Thank you for your kind words! I'm really happy to hear that my message resonated with you.
Bless you Darin I'm waiting for my diagnosis. ☹ So far i have all the same experiences and symptoms as you. I have experienced things for about 10yrs. I have C4/5 damage and L5 s/1. I was told I have Lytic lesions as well. BUT
They tell me I have Radiculopathy!
Haha!...
for 10 yrs?? Then why no offer of medication or physio???
I was told its my meds. What!???? ... so what did I do - I threw it all away and do not take a thing! Since 18 months now.
I have fasciculations, terrible muscle cramps at night, bad sleep, dreams, nightmares. I don't talk about it to my children because well I have but no one understands really. No-one believes me. I am a hypocondriac remember?
I went for a mental test for Altzheimers and Parkinsons. I passed. my mind is not affected. I knew I was not affected
I know my mind is all there .
I'm ok in that region you know.
I can't do my housework much anymore, the house is a mess, my body is heavy, weak, tired, fatigued. I feel embarrassed about the house. My daughter arrived from California for 5 days with my granddaughter, I live in Sussex England/
I tried. I tried so hard to clean the house before she arrived. I threw everything I didn't want people to see in my office/spare bedroom and someone tried to open the door - I had a party, her brothers arrived you see and their children. To see her.
My left hand is getting worse, my left big toe is the start of it all. Fasciculations up the left side. I get cramps in my right lower calf now,
I've been watching ALS videos of people like you for 2 years now. It really helps me. You do a good job.
I kind of know or think I know. I think I knew then.
My doctor said in no particular words I was a hypocondriac. But I went for EMG/NC studies, was told I have start of Axonal peripheral nerve neuropathy. But I think I have all the opathies , myleopathy too. I walk like Quazimodo now.
Still waiting to be diagnosed. After 10 years.
I am going to ask for a Lumbar Puncture next and nerve biopsy.
I think They wait until last thing to tell us, when only a few years left. They don't think we should know too soon.
Anyway, Darin, your videos are comforting and informative.
Please carry on the excellent work for as long as you feel you can.
I will be here watching and appreciate hearing you, what you have to say, and appreciate you asking us {the public}
how we are too
which is so kind
Go find some joy!
From
Carol-Joy, Eastbourne, Sussex, England.
Sending you love on your journey, Darin!
I find joy everyday!
Thank Darin for sharing your journey with us, you are inspirational ! Go find some joy!!
Go find some Joy! Loving you from Florida. Keep moving anyway that you can.....one second at a time, one breath at a time...close your eyes and smile... now open them and grin big.
Go find some joy! Continuing to pray for complete healing for you. I know He can do it! ❤
Your prayers mean the world to me! Thank you for your unwavering support; it truly helps in my healing process.
Go find some joy!! 🕺🍡 It's always so great to hear your updates Darin, we love you so much! God Bless You!🕯
I really appreciate your support! It warms my heart to know I have such amazing fans. God bless you too!
My sister in laws brother had als. His ex wife took goid care if him.i wish u the best . ...its never easy this kfe we have
Continued prayers! Go find some joy!
You are such a bright light, Darrin.❤ Go find some joy😊
Go find some joy! Prayers for you and your family.
Go find some joy! Thanks so much for the update and advice! I’m a fellow ALS’er. Earlier in my journey
Darin - look at that beautiful weather God is granting you - and all that green in your yard! That, my friend, is JOY! I recommend getting a fancy power chair, of a less fancy version with wife power - and going into the beautiful world of nature! Love your smile and your attitude.
Thanks a bunch! You’re totally right about the weather and the yard-it's all about good vibes and soaking up the sunshine! Let’s get outside!
I hope you can get a power chair and go to Disney with your daughter..enjoy the weather and the food ..watch a parade. I know you can't ride the rides but you can still have some fun
Go find some joy! You are an inspiration!
go find some joy!!! you and your family are in my prayers
You are amazing! You are a wonderful teacher STILL! ❤️🇨🇦
Go find some joy!!! Continued prayers for you and your family!
Let's go find some joy. Thanks for reminding me.
Exactly. Make the most of now! Even if it's a nap.
Absolutely! Every moment counts, whether it's productive or just a well-deserved nap.
Go find some joy!! I love hearing that reminder everyday! ❤
Go find some joy. I agree that a life changing illness brings grief. Pray every day and connect someone to people every day. Your yard is so peaceful looking. Thinking of positive thoughts and sending them your way.
Always looking forward to your updates. Thank you for sharing with us. One day at a time. Finding Joy and sending you a huge hug.
~diane
I pray you find some joy this weekend ❤️
Is this d8sease hard to diagnose I have a rare cancer it was 7 years before it was I pray for you and I just found you but you seem to have a heart of Joy and kindness you are so positive so go find some Joy
You are an inspiration
Go find some joy!
In 2010 my husband was initially diagnosed w ALS. Many Drs and tests later he was found to have an unusual presentation of MS. He also has Addisons, and he had a cerebellar stroke in 2015.
Is this the life we imagined in our 50's? Absolutely not! But my husband has the most positive outlook of anyone I've ever met. I'm a work in progress.
Thank you for the update. I think of you often
Go find some joy!
Go find some joy❤️ Thank you for sharing your journey 🙏🏻
I truly appreciate your support! It means a lot to me that you’re following along on this journey. Here’s to finding even more joy together!
I’m glad to hear about the medication, I was getting ready to start but had my own suspicions about it. Now I’m definitely not taking it
Go find some joy! Thank you for inspiring.🌺
Gut Dysbiosis: Imbalance in gut microbiota in ALS patients might contribute to disease progression through mechanisms like increased inflammation and altered immune responses.
Prayers for you, my friend!
Since I started taking radicava and riluzole my symptoms have accelerated. I will talk to my Dr about stopping both.
Go find some JOY! I look forward to your stories on IG each day. Praying that the days ahead are a bit easier 🙏🏼
I really appreciate your kind words and prayers! It’s amazing to have such supportive followers. I’ll keep sharing my stories!
Praying for you and your family. 💙💙💙Go find some joy. 🙏🏽🙏🏼🙏🏻
Let's go find some joy!
Go Find Some Joy!! Sending you positive energy and agape love.
I truly appreciate your kind words and positive energy! It means a lot to me.
Go find some joy! Thank you for sharing.
I have ALS I’m a 67 male and have had it for about 1 years and have to struggle with it every day
Go find some joy ❤ thanks Darin
Go find your joy
🙌🏼🙏🏼
Go find some Joy! 🫶 ……Blessings Darin🙏
Darin thank you for being open. Have you heard of Joni Erickson Tada? Her disability started at 17 years old. Her ministry is called “Joni and Friends” Please I’d you get a moment read some of her books and programs. Somehow I see you in Joni.
Go find some joy‼️❤️
GO FIND SOME JOY!! Love you Darin🙏❤
Thank you! Love you too!
❤ FIND THAT JOY BROTHA❤❤❤❤❤❤❤❤❤❤❤❤
Daren thanks so much for your effort
Go find some joy!
You are an inspiration!
What resources have you found most helpful?
Anything you know now you wish you knew or were told about when you first embarked in this journey?
Go find some joy =) Sending you and your family love and aloha. and thank you for always sharing your journey.