This is so true regarding the production of lactic acid when we don't pace appropriately. I learned this after pushing myself to get to a doctor's appointment, and ended up in the ER with acute lactic acidosis. This was very scary, but an excellent lesson that my body's metabolism was not producing energy efficiently. And no amount of motivation or determination is going to outrun that fact.
I really appreciate Dr Myhill who has more knowledge of ME than any mainstream (trained in mainstream medicine at least) doctors I know of in the UK. However, I think she concentrates too much on diet. I am pleased that she mentions vegetarians and vegans here as in the past she has spoken a lot about eating meat,something that would cause me further stress if I had to eat it. I know many people with ME having helped to run our local group for years and only one person recovered by changing his diet - in his case it was the Candida diet. So many people now seem to be recovering from brain retraining techniques so that's where I'm personally focusing my efforts.
I think it's a combination of many things. Trauma, stress and ANS dysregulation play a massive role, as does crappy detox pathways and a schizophrenic immune system. Holistic approaches addressing all of these work best. Supplements are the icing on the cake. Most of the cfs community are the most studious, intuitive and intelligent people I know, they don't miss a beat. I do like Sarah and her philosophies and I am sure it works for some but for many we have to dig a lot Deeper.I personally had the greatest success sorting out detoxification and addressing ANS dysregulation. Props to Raelan for getting on such a guest who really drives conversations.
@@notrend nothing ground breaking, just the basics. Saunas, various detox support supplements and lots of green juices. It's been slow and steady over a few years.
@@dankamistovic1337 I did the CFS school course, it was really helpful. I'm in no way affiliated with them but I highly recommend the course for those who are interested in learning how to regulate the nervous system.
Great interview Raelan! Dr. Myhill clearly cares and has done so much to raise awareness and help people with ME/CFS get diagnosed and treated. I personally wish I wasn't so focused on the labels when I was searching for answers on the internet, because at the end of the day the way out is similar. I guess I had a dozen of them, but the body doesn't know labels. Hindsight is 20/20. Keeping my blood sugar stable and supporting my mitochondria was helpful. I realize I ate very similarly to Dr. Myhill's protocol (didn't do some of the supplements), which helped me for a while. But yeah diet isn't one-sized fits all -- many don't do well with keto, while some thrive on it. I wonder if it has to do with the organs that are affected. Now I eat a lot, lot more varied diet (when before I wouldn't even look at a grain). I think reducing all sources of stress and all the mind-body, brain rewiring, nervous system work to build autonomic nervous system resilience was more essential for me -- though my strict diet was helpful for me in the first 1-2 years.
I have been following Dr myhills protocol for nearly three years and improved! Her aproach is amazing and she is without hesitation a true hero. Its all an energy equation in My wiev. Surely ANS and stress plays a big part as well. But as she says, IF you stick to the plan it takes you a long way.
I'm so thankful I've found this video! I was starting to lose my way but Dr. My Hill is inspirational and also is very open to talk to what she does rather than keeeping it as a "secret recipe"! Also thanks to Raelan for asking interesting questions!
I love the passion and energy of Dr. Myhill. That's a lot of information to digest, so to speak. I wonder if there are studies and statistics that back up the diet she recommends. It seems that everyone has their own theory--and, often, diet--that they claim helps this illness. I've tried various diets, and nothing has made a difference, with one big exception. When I first got ill, eating a lot of protein definitely helped. But as time went on, it stopped having an effect. Now, I'm mostly on a Mediterranean diet, which is largely plant based. What's helped my ME is mindfulness meditation, developing an attitude of acceptance and gratitude, pacing and rest, and taking Abilify. Also, possibly, just the passage of time. It seems like there are many different paths to better health with ME. One size does not fit all.
For me, HBOT for 80 sessions and ivermectin helped, along with the HIV medication (used for long covid), but then EBOO (filtering the blood, ozone, IV peroxide) but then Methylene Blue and NAD+! Yes, no one side fits all -- correct!
The most important thing about the Paleo/Ketogenic diet is the removal of the carbohydrates but there are factors in these diets that do not work for us because we have developed food intolerances to many of the foods in the in that style of diet. Likewise we can develop an intolerance to various, if not all, foods in the vegetarian diet. The reason for this is that ALL vegetation has a built in self-defence mechanism such as oxalaytes. salicicylates and lectins because we have lost the enzymes which process these chemicals. It seems to me that the longer we have had this condition the more likely we are likely to develop these food Intolerances. P.S. I have ME/CFS and I have these Intolerances, also I think this is one of the best interviews I have seen, well done Dr Myhill (I do have your book).
I applaud Dr. Myhill's passion and commitment to helping people with CFS and this is a mostly good information from Myhill in the interview. I am very familiar with Myhill's work as I followed her on RUclips four years ago, purchased and read her book, and implemented all of her healing strategies. It was a step in the right direction, but it didn't get me to a full recovery because I was still getting tripped up with ongoing gut dysfunction and a brain that needed retraining. My gut dysfunction was severe in the depths of my illness, however. The worst of the worst. She is on track with a number of things with the cause of this illness, such as emotional issues, the energy leak caused by an overactive immune system and leaky gut, poor mitocondrial function, a fermenting gut, the dangers of processed fats, seed oils, addictive eating of processed sugars but misses, or does not emphasize, on some points such as the need to entrain the circadian clock, the importance of light exposure and problems with nuts and vegetables and fiber for someone with a leaky gut. Further, I don't find her supplement recommendations all that necessary with an quality animal based diet. Magnesium is an exception. She is overly fixated on ketones and the ketogenic diet though I won't fuss too much on this point because what she recommends is a not a classical ketogenic diet and will not raise circulating ketones in anyone much at all. I thought it was great that she highlighted the importance of having meaning and purpose, citing Viktor Frankl, but when asked about brain retraining I don't get the feeling that she understands or appreciates all it's methods and nuances. Finally, I don't find her distinction between CFS and ME all that instructive or accurate. I would bet that anyone in her practice diagnosed with CFS under her criteria and whatever labs she uses still has problems with underlying inflammation. I understand that this interview was only 50 minutes long and to get into the real nitty-gritty on many things can take hours upon hours, even days upon days of discussion. Thank you for sharing this interview Raelen.
I agree with you on many aspects. It struck me as odd to promote a keto diet that relies on Beta oxidation of fats in mitochondria when you assume these same mitochondria are failing. It would make more sense to rely on starch and sugars for glucose oxidation in the cytoplasm. This is more in line with the Pro Metabolic Diet. And while I agree with Myhill getting the mitochondria going again to get energized to face taks ahead, she is underestimating the deeply rooted effects of chronic hyper vigilant stress mode and a hyper sensitive nervous system due to adverse live experiences. I applaud you for you animal based diet, please let us all stay away from idiotic plant based notions by Ornish that will have us malnourished in no time. All the best, Gerlach Sven
I followed dr myhills protocol many years ago. A lot of expensive supplements resulting in very colourful and expensive urine. But zero improvement. Having been a cfs sufferer for 40 years i am now absolutely 100 per cent certain that in most cases, it is an autonomic nervous system dysfunction. However, having been keto for two years, my psoriasis is 90 per cent gone , and i never get low blood sugar crashes anymore. My weight has also stabilised within perfect range. I have never met , or read, or seen a video with anyone who has recovered using dr myhills protocol.. the two supplements she recommends that i do agree with however, are vit D and k.
Agree with your ANS conclusion. So I can think of 3 off the top of my head who recovered and used Dr. Myhill's diet/supplement protocol. Pamela Rose did Sarah Myhill's protocol (on Raelan's channel - and my website), so did Katie (the one in the trucker hat - she didn't want to reveal her last name for work reasons) on my site and another Katie (on Raelan's channel 2 years ago when she was pregnant) did AIP, which is similar. But for all 3 it was a component and they did other stuff to fully heal. 100% agree about the ANS dysfunction. I think often times things work synergistically. If someone is in an extreme fight-or-flight state, I don't think any supplement could be digested. And I don't think any diet is a cure if one's nervous system is not operating optimally. It sounds like keto is working for you now for your other stuff, which is great. I also know people who changed their diet over time like myself at the different stages of their health. And people who found plant based better. (Sidetone: I'm pretty sure Dr. Myhill also has a lot of helpful material about pacing on her website and book. It's been a while since I looked at them, but I had a neighbor show them to me.)
@@HealwithLiz hello again liz ! Thanks for your detailed and thoughtful reply . I think supplements at right stage along with other protocols can support the body. But the reason they are lacking is their system is in a constant state of underlying fear and unease affecting every system in body. Unfortunately, sometimes being told that they are deficient in this, and deficient in that, and their mitochondria are deficient etc etc. This can make people feel more broken and frightened, and pouring more supplements into system is like trying to fill up a bucket which is full of holes. Until people feel safe (or safer) and more confident , then healing is an uphill struggle. God, the money i wasted on supplements back in day !. Kind regards to you.
I had constant racing heart palpitations for no reason. I used to wake up with them, get them from any slight adrenaline or just randomly throughout the day every day. Doctors said it was anxiety of course but the second I started taking magnesium supplements they went away and never came back. Not once in 6 years now unless I stop taking the magnesium supplement. I get plenty of magnesium from my diet but for some reason I depend on supplemented magnesium. No other supplement seems to do anything for me so I can relate to wasting thousands of pounds down the toilet.
following myhill's protocol oct2018, I had SOOO many health improvements it was unreal! after 3 months; My skin was clear and itchy-free, no spots, no teeth pain, no brainfog, i had so much energy i felt i was bouncing off walls and went from being bedridden 98% and at the end of month 3 did a 5mile walk! I felt i gained an extra ten IQ points compared to pre ME/CFS era, My periods became regular and pain-free for 1st time in my life! Christmas happened and i havent successfully gotten rid of my sugar addiction since XD The biggest thing is that Myhill doesnt really focus enough or rather doesnt share enough info about the emotional/brain rewiring angle. Usually because in her success stories, as with many of Dan nueffer's vids of 'spontaneous recovery' that dont follow the ANSrewire blueprint, Many people end up rewiring their own brains naturally en route as their lives expand and they interact in the world again. but to be fair, Unless you know the specifics, It is very difficult to DIY brain rewiring without therapy. For instance, I needed a therapist to make me realise i was unusually harsh n critical on myself (i thought it was normal) I didnt need therapy to stop telling my self i was ugly, once i had internalised the previous lesson 3 weeks ago, my therapist taught me i was using the word 'incompetent' incorrectly, using it when i meant 'i feel useless and pathetic from being avoidant for 'x' reasons. This has given me agency and the power of choice and it is a distinction that neither i nor my loved ones had been able to see. So while brain retraining programmes ARE awesome, they too are not the whole answer if you are limiting yourself in your thinking, word choices and world beliefs. Psychology is not what Myhill studied. I think it is unfair to expect her to disseminate information that has nothing to do with what she is trained in, the biological health systems
@@hea7055 i went on the websote for uk registry of psychotherapists (vrs counsellers) and i found one that has trauma expertise. Ive been working with her for nearly 2 years now. (theres a handful of them, so 1st i had to find the best one XD It did take a few weeks of research) I have also done an intense course of CBT with the NHS and that was what gave me the insight into my 'self-bullying' and taught me some useful strategies that worked very well with ANSrewire. Because i have 'micro-traumas' from age 4-35, ive wanted more indepth therapy. Luckily, my nan pays for me to have 2x/month therapy, else i wouldnt be able to afford it and neither could my mum help me out
Could you please share what you did , what supplements and what steps you took feom dr myhills protocoll? die you also have that terrible flu like feeling and did it go away?
I thinking tackling the ANS and avoiding crashes by frequent rest breaks is the way to go. I think a huge stress to the body like and infection or event triggers the body and it stays switched on. I believe doing the above things will at least improve symptoms with the possibility for a full recovery. I also believe it's important to tackle it head on earlier instead of trying to push through. I think thats why we see people recover most often in the first 2 years of having symptoms.
It's almost certainly viral. Driving an abnormal immune response, in turn driving an abnormal metabolism. What Dr Myhill suggests could potentially take stressor of the body. It won't be a cure, but a treatment that could give big benefits for some. It's well documented that gut microbiome is out of whack in CFS. Which in itself can drive many symptoms. If our immune system is unable to maintain an healthy balance due to a ongoing viral infection (gut, brain, CSF) then we must support it by eating correctly.
I still feel like it’s the ANS malfunctioning. Cell danger response and dorsal vagal brake stuck on. Maybe diet and supplements help a little but people recover without these. Addressing developmental trauma and personality patterns and processing emotions goes a long way.
Its true, most people cannot even tolerate supplements or anything synthetic. A lot of people feel also bad on the keto or paleo diet. Not all people react to gluten or diary.
yes i agree x all the lifestyle stuff supports your body while it’s healing but addressing the ANS dysregulation seems to be key x i dont believe i have cfs because i eat dairy, dont take a certain supplement or dont meditate enough, i have it because i went though several big life stresses while already dealing with chronic anxiety and i didnt heed the warning signs x i do get that we have different triggers but i believe whatever that is the body is stuck in a fear state
@@Rebelconformist82 sorry to hear you have long covid. look at the youtube channels i suggested on one of my other replies, imo miguel bautista has one of the best understanding of what this is and how to recover x covid may have been the trigger for you but you also need to think what was going on in your life 2-3 years before you got covid, sometimes its the last straw. good luck in your recovery and know that it is possible 👍
I think that a lot of abnormalities including mitochondrial are issues that are the result of chronic infection. It would be interesting to interview researchers on cell danger response theory
I've had this condition since 1991. Been down so many paths from those professing to understand this disease. Sorry to sound so skeptical, but I've tried everything and many times over. I've spent so much money and my life has been completely destroyed. It would certainly help if this disease was being researched in the least
Jamie, I'm so so so sorry to hear that you've been dealing with this for so long. I hope you find all your puzzles pieces and can finally put this all behind you soon ❤️
I would be curious how many full recoveries she has seen with her advice. It seems very rare that someone diets or supplements their way out of this. Not saying diet isn't important.
Anything to decrease the Stress on the body...this Disease sucks I've had it for 17 years and I am 62... This is also a Progressive Illness which is gets worse over time...I have felt well again on and off twice this year for a few months at a time...then a tooth was pulled and been in bed for 9 weeks. Surely the Muscle Wasting has not helped me however I have had my success with CSF Health videos...if I can feel better anyone can ! 🌱
Dr Myhill used to be my grandparents GP when she worked for the NHS and my parents took my sister to see her as a small child when she started out in private practice and she completely transformed my sisters health so I have a lot of time for her in some respects, that being said, Dr Myhill preaches some really dangerous anti-vaccine rhetoric and alternative and unproven approaches to tackling respiratory viruses including Covid. PK diet made me very unwell and like you say yourself often Raelan, there is no one size fits all approach when it comes to diet. She is very unsympathetic about this protocol and never talks about how dangerous it is for some people to follow such restrictive regimes, especially those with histories of disordered eating. Also perfectionism is the enemy of recovery, and this is an incredibly strict way of eating that's bound to inspire perfectionism in folks with type A personalities, which many of us do! I definitely resonate more with gentler and more holistic approaches, but everyone is different.
Love all of what you said, minus the dangerous anti-vaccine "rhetoric." And the "unproven" approaches to covid? Funny that I and my seem saved thousand of lives. When it was my time to get sick, I had no access to care and now longhauler, but from start to finish, your comment was great, especially with the type A personalities.....the strict diets on top of what I had to do already for the diabetes and the kidney stones, so it's very stressful to try to do it all right!! I do my best, but it's overwhelming!!!
I respect Dr Sarah Myhill for thinking outside the box and actually trying to help ME/CFS patients... but her protocol made me so much worse. Brain retraining saved me. Poor energy output from the mitochondria is a SYMPTOM, it's not a root cause. Why aren't the mitochondria working effectively? The cell danger response, which is a stress response. The nervous system is stuck in emergency mode. Retraining the nervous system is the answer for most people.
@@hea7055 If you put even a little bit of effort into CFS research on RUclips, you will discover Nervous system issues, brain training. So sounds like you haven't looked much
Yeah I agree with you. The brain can cause all of the symptoms we face. I think one of the things that reinforces this is literally Raelen's channel - I just couldn't ignore the fact the very vast majority of the recovery stories involve brain training related methods. I fully recovered using brain training and it was the first time it all made sense.
Well for me a non-dairy keto diet was a game changer after suffering with ME for 27 years without brain rewiring. Haven't had a crash (bedridden for days) in 2 1/2 years.
Sarah, isn’t a doctor with the UK NHS any more as she was stopped from practicing by the BMA. She talks a good game and uses the same simple examples such as the car engine example over and over. I tried her regime of Keto with supplements and achieved no improvement whatsoever. It’s a good point that she has been running her private practice for a long time and there does not appear to be any client of hers that has taken to RUclips to herald their health improvement or recovery using her techniques. I became concerned about the amount of red meat I was consuming on the Keto diet. The way Sarah comes across is very awkward as she doesn’t show much social awareness regarding the to and fro of a balanced conversation. I believe this is another clue regarding her unconscious MO. Sarah appears to me to be intellectually arrogant that she is absolutely right and there is little or no scope for entertaining other thoughts and ideas regarding ME and CFS improvement strategies. Her disdain of doctors and medical authorities is quite right. It is appalling the way the medical profession have dealt with this illness to date. Truly hapless. Having suffered from CFS for over 30 years my own feeling is that diet has nothing to do with recovery. In my case my primal brain has become stuck in fright and flight mode and my body is applying the brakes via poor energy production and delivery, brain fog, heart palpitations, hypertension- basically causing chaos as it has lost trust in my ability to keep me ‘safe’. I will be looking into different approaches to calming my stuck nervous system naturally and recoding my misguided primal brain. Easier said than done. I’m very suspicious of the vendors of CFS recovery sales people.
Ditto Paul H. I agree with everything you said. 32 years for me. I do think diet plays a role but it's not a one-size-fits-all situation. eg. I have discovered I'm sensitive to high oxalates. I have taken some of the supplements she recommends and they didn't make a blind bit of difference. I am trying to cut down on processed foods however.
You nailed it. I would add that the vast majority of recoveries are in people who addressed their life long stress and the nervous system being in 4 alarm fire mode.
Although I agree with you there is 1 person on RUclips who is doing her diet and supplements, is she close to cured no but no longer bed bound but she does go in and out of crashes it appears.I don't believe Keto is for everyone especially women. Diet can make a difference but not necessarily enough for ME/CFS. Obviously this depends on the starting point, if a person lived on fast food , any kind of diet that would have an element of eliminating processed food and common allergies it would probably make a difference for anyone sick or not sick. I don't like the strong focus on diet, it is kind of like the Dr Wahls protocol for MS where in the MS forums there are so few people ( if any) having success.
Paul H - i get that you’re wary of people selling cfs recovery programmes even though in my experience some are genuine x if you’re looking at different aporoaches i strongly suggest you watch Dan Buglio, The Pain PT Jim Prussack and Miguel Bautista x they all offer a paid service and Miguel has a programme but you can pick up alot just watching their videos x i watch Jim or Dan everyday as its like having a coach helping to keep me on track-they both do the TMS approach but in an easy to understand way x Miguel has a lot of free content on his channel x i am making good progress in my recovery following their advice and approach x good luck to you 👍
ME & CFS are the same conditions!! Dr Myhills very expensive protocol did absolutely nothing for me after many years & her strong focus on her paleo keto diet only suits some people! in all my time over years in healing & recovery groups, pages etc I haven’t seen anyone who has fully recovered from the Myhill protocol, some have some benefit from mito supplements, & her diet but it’s only an ongoing bandaid treatment, what is causing the mito dysfunction …. autonomic nervous system dysregulation! So many people recover fully without taking any of her rec supplements or her strict keto diet!! So what does that say?? I spoke with someone recently who has been following Myhills full protocol for 8 years, 8 years & is not any better, but is still doing it ?? now searching out brain retraining!
You are right. It is a nervous system issues. Not mitochondria, not candida, not adrenals ....... all thoses things are results of an overwhelmed nervous system not the cause of CFS.
I have CFS. I very strongly feel that the origin might have been a dysfunction to deal with some stress properly, but it is for me caused by ignoring the results and not dealing with life challenges in particular all the childhood trauma I have had which has come back to bite me in the bum so to speak...so until I deal with that I will still suffer from it
ME and CFS as separate conditions makes sense to me. I have crippling brain-fog almost every day, sometimes driving me to tears, non-restorative sleep and frequent physical fatigue. This has been for more than three years now and came on because of the stress of insomnia. I don't feel as though I ever get post-exertional malaise. This latter condition is now being said to be a definite symptom of ME. Loads of blood tests and an abdominal ultrasound all returned normal. I don't think my GP knows what's wrong.
I have found Dr Myhill's books interesting to read. I feel the focus on mitochondria is helpful but narrow and doesn't take into account the research that shows more varied and whole body dysfunctions, e.g. cardiac preload failure identified by Harvard or vascular autoimmunity by Scheibenbogen and Wirth.That said, Myhill is certainly a champion for ME/CFS patients. Also regarding the Frankl analogy at the beginning (and I'm criticising Frankl here and not Myhill), in general I find the suggestion that people with a better attitude were more likely to survive the holocaust quite galling. In the face of the threat of being gassed or shot at any given moment, a positive attitude is unlikely to save you. It might of course help you to cope better but, as a random number, you'd be just as likely a target as anyone else.
I heard from a gulag survivor that it was all types of illnesses to wipe out those who had no hope. However i have reasons to believe that this is influencing the hormone system, and therefore is a physical thing again in the end. I heard Huberman ecplain a mouse experiment pointing in the same direction. It seems it is absolutely important to work on psychological stuff as well, i can recommend hypnosis (again backed by Huberman, i think related to trauma therapy podcasts) and some hypnosis stuff is free on youtube. Good luck out there!
Could they ask the people who died? I am sure they had just as many reasons to live. The survivor I met, would eat the food off your plate after you were done eating. I am sure those who survived probably had to steal food from others so they wouldn’t starve to death.
Interesting video. I’m not convinced that fibro and chronic fatigue r separate disorders. I’ve had times where I was higher in fatigue. Times I was higher in pain. And times I’m high in both fatigue and pain. I think they’re symptoms of the same disorder that ebb and flow just like the multitude of other symptoms.
This was the first guidance I followed and after 4 weeks felt suicidal I was feeling so ill and still hadn't got into ketosis .I took all the advised supplements etc.
I am the same. I tried a very low carb/keto diet and felt like I was actually going to die within about 3 days. My muscles were so weak I couldn't stand and my heart was acting strange. So I ate a banana and felt better almost instantly. I am terrified to try again. Although I don't know why, it seems that some of us just CAN'T get into ketosis.
I think there are many many body type of people. I also never been able to go low carbs. I felt superweak, and in my life when I had good life, i always in the moment when I had good amount of carbs.
@@Laura_B__ this is likely because you weren't having enough electrolytes! Especially if potassium made you feel better. Electrolytes have to be managed very carefully during ketosis. Especially in the first stages.
I also would recommend caution with the ketogenic diet (especially for women). I was on the ketogenic diet and it was actually a trigger for my first onset of becoming unwell. I lost my periods for a while and it really messed with my hormones. Everyone's body is very different 😊 xx
I'm relatively new to CFS and still unclear if I have it separately or due to my Sjogren's or / and myotosis. When I asked my rheumatologist if CFS was the same as ME, she said no, but Fibromyalgia is the same. It's so hard to get the same answer from all 'experts'. I got very excited in trying Dr Myhill's protocol as I have heard a lot about mitochondria. I have never been keen on the keto diet but willing to do anything to gain my old energy back and have no brain fog, but after reading most of the comments I am disheartened to hear so many viewers tried this method with no avail. Still, some food for thought. I especially found the liver using up all that energy interesting.. Also, I'd not heard about ANS resetting. Will go check that out now too!
Yeah definitely look into calming one-self/the nervous system. That seems key to me. I will soon do a course in Transcendental meditation which I really hope will help with this.
I have followed the protocol and it works. Of course: it is not for everyone. It treats problems of the body, for the mind we would have to look for other specialists. You have to have a very clear mind and willpower to follow the diet without doing traps until you recover. The Western diet greatly unbalances our intestinal microbiota without us being fully aware of how much damage we carry. And they are usually not solved with 2 months of correct diet. At first, stopping eating the usual diet implies a very strong impact and the sensations are really unpleasant but they improve and you get better and better. His roadmap is sensible and useful for people who do not need constant support. We are not all the same
Million dollar question for Dr Myhill- If there are so many immune problems involved, mythochondria, energy delivery, etc in CFS/ME , how is it possible people get completely cured in 3 days with brain retraining programs?
Agreed... or at least addressing the nervous system from a mind-body approach. Seems like the vast majority of recoveries occur once people address those things.
I do think me/cfs is an umbrella term for a condition where people have the same/similar symptoms but different triggers so what helps one person to recover wont necessarily help another because the stressor on the human body has a different root cause x i have recovered before using brain training techniques and massively reducing stress/anxiety etc x other than a healthy-ish lifestyle i didnt take loads of supplements or cut any food groups out x this is why recovery can be so confusing for people and its so time consuming and costly trying to find what works for you x TMS approach is currently helping my recovery x i respect Dr Myhill and her work but we are all different i think 🤷♀️
I don't think recovery happens in 3 days. I've been doing brain retraining for over 6 months and I'm the same. The mind is much stronger than we think. For what I've read the mitochondria can't function properly when th body is in high alert, which will make sense that calming the sympathetic nervous system will help solve the rest like a cascade. Everything is related
So what would you say are causing the symptoms, if not those things? Even if you buy the brain retraining hypothesis (which I do), most of the programs agree that the symptoms are real, in the body, caused by activation of the immune system, NS, mitochondria dysfunction etc. The brain is signaling these systems to activate due to a threat (that's no longer in the body).
@@jonathannelson7584 Correct. First of all I am no doctor, but what I've been reading is that the body is still in fight or flight mode, either due to viral debris or simply false alarm mode. That's high sympathetic activation. Because of that, the body attacks food that we normally can eat (causing MCAS). It also leads to dysautonomia because well, dysautonomia definition is an imbalance in the autonomic nervous system (i.e. balance between sympathetic and parasympathetic nervous system). That constant attack also impairs the pathway for energy leading to the mitochondria being impaired (I think that's where the NAD+ theory lies in). So I feel as a non doctor, that everything is a cascade effect of the hyperactivation of the sympathetic nervous system. That's why I think brain retraining makes sense, yet it takes time. Because the body has to very gradually realized there is no danger and we have to stimulate the parasympathetic part of our nervous system. Again, I'm no doctor, that's what I've gather from seeing interviews or reading
I have tried all the diets in 13 years and done many rounds of changing the diets. For me diet is not the cure. If I eat Keto diet, which means a lot of fats and meats, my body feels very tired to digest them. Carbs are much easier to digest and when you have chronic fatigue, then when less energy goes to digestion then better I feel. I think everybody needs to have their own personal approach and for sure diet alone is not going to heal anybody having cfs/me.
Hi Ari I would say I agree with you . I’ve been primarily carnivore 19 months & while it did help me get well & off meds , got my mind going even & out of mental illness & misery It’s starting to feel tiring & heavy now . I certainly don’t want to go back to the way things were . Do I accept heavy digestion or go back to the other way . I will say it was eating plant based that got me healing & out of bed again , carnivore/ keto got me off most meds 💗
I wish you had asked her HOW she explains all the many many recovery stories from people with ME/CFS who didnt make any dietary changes, certainly didn’t go keto & who were taking no mito supplements & who used brain retraining Programmes & PolyVagal based nervous system regulation work to recover! How does she explain that?? She obviously has no understanding or knowledge of Neuroplasticity based Brain Retraining & Nervous System Regulation work & the vagus nerve!
A problem can have multiple solutions. Also, a problem (e.g., ME/CFS) can come in different flavors where some solutions work and others don’t. Life is complicated 😁
I agree with you 100%. Please share if you can, where to seek treatment for ANS or any other treatments for nervous system dysregulation. Hugely appreciate in advance!
I do wish that Dr Myhill talked more about the neurological issues so many of us have-autonomic, neuropathy, CNS issues like migraines, seizures, etc. But we are so complex, with such a range of issues. After 25 years, my conclusion is to be very grateful to the docs who take us seriously, and who offer helpful tips. Try the tips, and see what works for you, and what doesn’t. Surveys have shown that many of us (and people with immune disorders) are helped by the KP diet. Maybe others of us benefit more from the neurological approaches that you present. I say, thanks to everybody working on help for us! And it’s up to each of us to decide which approaches we want to try.
She discusses this in other videos and interviews. It can be hard to cover something so complex in a short video when answers are usually based on questions asked. Do read her books too when she goes into this further and look at her court cases. As a past medical professionals she is also limited to what she is allowed to say online as it could be seen as giving medical advice when in practice, you look at each case individually. Hope that helps.
Dr. Myhill says a lot of interesting things but she's always been a diet person and unfortunately the keto diet never worked for me. No all of us are suffering from MCAS.
I have recovered 90% after using the non dairy keto diet and Magnesium, CoQ10 and vitamin D (all things everyone can benefit from and be deficient in). That was after suffering from ME for 27 years!!! (No crashes for 2 1/2 yrs). This Dr knows what she's talking about. I do however believe in the brain rewiring and have begun to put it into practice to take myself to 100% hopefully before long. Everyone can recover!
To recover from chronic adrenal fatigue and autoimmune type symptoms, I eliminated all stress, did an anti-inflammatory diet, vitamin and minerals supplementation and drank electrolytes.
Fabulous interview, especially differentiating ME and CFS!! That clarity is really necessary in this community. Love her passion for this! On another note, I have so much to say about diet with my background in Ayurvedic and holistic nutrition that I simply can’t type here. 😂
My belief is that we are highly sensitive people and over time due to stress our adrenal glands become depleted, opening the gateway to viruses I think gut health is so important, if your have leaky gut your not absorbing vital nutrients, I also believe some of us are poisoned, with poor livers,to me this illness is a breakdown of loads of things going wrong with one's body and mind, ie the amygdala.
PLEASE INCLUDE QUESTIONS REGARDING FIBROMYALGIA WITH GUESTS AND PATIENTS WHO'VE HEALED! Hopefully, there are some... I feel I'm doing much better recently after changing my dietandd lifestyle! 👍🏻
This does make sense - I feel like people who got better on plant based diets are almost lucky that those diets did not make them worse, and it was something else that helped them as well as cutting out junk and processed foods. The fermenting stomach she speaks of is SIBO, and many people with ME/CFS and POTS have SIBO. My 11 yo has it and we can't get rid of it. We've cut carbs way down but haven't done paleo/keto....not sure if an 11 yo should do that diet?
I understand the frustration. I grappled with SIBO and managed to overcome it with the support of a brilliant naturopath. The key things were to start taking specific stomach supplements to increase stomach acids needed to breakdown food in my gut more efficiently and take quality probiotics as well as consuming foods that have good bacteria. I removed inflammatory food and eat lots of helpful foods such as coconut oil and leafy greens and bone broth to heal leaky gut. I did not completely remove dairy long term just for a period to help my digestive system some help. When I re-introduced them I only eat raw dairy and organic meats. It’s an investment but it’s well worth it. I am healed and can (but choose not to) eat anything I want now. All the best!
glad you are healed! We're still mostly grain free - just some white rice. She takes a high quality probiotic as my fermented yogurt makes her feel sick. Bone broth also makes her feel sick - everything makes her sick! I buy hormone free chicken....she won't eat much beef. I'm doing all of the dietary stuff....her bloating is way down but I think if she ate a bunch of sugar we'd see that it's all still in there just dormant. @@myrandomrants
Not sure you're still following, but just in case: Do not put your child on such a restrictive diet when they are young. I did it at 12, it excacerbated a growing eating disorder exponentially!
@@tuvamariamartinussen573 thank you yes I was worried about that. She has a totally open diet right now and has finally gained weight and now is upset thinking she's fat. She's 90lbs and 13 yrs old....she was 67lbs a year ago and badly needed to gain weight. We are trying to increase meat but not cut anything out.
@@stephaniew4168 It’s so hard to be young and have illness at the same time. Try to focus not so much on food, more about strengthening her sense of self, of beauty, of strength in the face of adversity, and perhaps posttraumatic growth! Focus on eating to be strong, but don't do a very restrictive diet. Young people are already so concerned about trying to be thin and "perfect". Do stuff together as a family instead!
Im going round in circles, so im heading for the mediteraen diet, without pasta, fish , veg, avoid lactic acid - stay within limits, and build up the parasympathetic, and dr clare weeks book - a 1960s classic is a good read - its about nervous breakdown - but quite relevant, i also use some recovery techniques like athletes do before bed - epsom salts bath then cool gel massage on my leg muscles
What happened to the Mediterranean diet health benefits ? the problem today is also GMO, spraying pesticides, industrial farming, etc. also the depleted condition of our soils and so on.
Sarah Myhill has been around for a long long time but where are all the recovery stories from people doing her protocol! I haven’t seen any for all this time! The many many recoveries out there are from people who have not taken any mito supplements or followed her very strict diet, or have given up on all those things after many years of trying them! Consider that!
I heard she charges quite a lot and that her treatment is expensive. Also, there are no evidence on how taking high doses of supplements will affect the body in the long run. I have suffered from M.E. for many years and at one point I was bedriden for a year. I now have an almost normal life and have not spent a penny. I believe that trauma caused my illness. Also, I realised I am a hypersensitive person and live my life accordingly. I made changes to diet, got rid of toxic people, have a job I love working from home etc. I am happier now that I was before the illness. There is hope. Keep doing what it feels right for you.
I’ve seen tons of people saying they recovered through diet, keto, supplements or brain retraining. It doesn’t seem to be one single thing that heals people.
I am severely ill. In alot of pain And feeling like I am dying. Watching this video Has me so overwhelmed I'm Crying. It's WAY TO COMPLUCATED. At this point I feel like I'd rather die than go through all of this Work. All these protocols make me sicker.🤕 anyone relate??
Sorry I know this is an old comment but just wanted to add that Im so sorry you’re struggling and I know how overwhelming it is trying to recover. I agree with the comment above, just try to focus on one thing at a time and try it and see if it helps in any way. Main thing is not to stress about it as that will worsen symptoms
@@dthompson5234 Please don't be sorry. Thank you so much for replying to me. Yeah, I understand what you're saying and thank you. You're just a very kind person and I appreciate you.
I’m not a fan of Sarah. She leaves absolutely no room for any of the other theories that researchers are studying. Meaning she thinks she has it figured out. That’s very arrogant. And it’s very misleading Her confidence leads people to believe, like so many other doctors, if you just follow her regimen, you can be fixed. I don’t believe that for a second. There are people who are bedbound being fed by the tube. Who have likely been checked for every imaginable infection. People like the researchers son at the Stanford clinic. You can’t tell me this person doesn’t have a condition that science doesn’t understand.
Lol yeah I love how ppl very severe are not mentioned on this channel. It’s just muh brain retraining recovery etc. ppl living thru excruciating conditions deserve to be championed as much as those who “recover”. Also taking responsibility for recovery is just ego. Sure u can make better day to day decisions which enable better rest & pacing but ppl who are in a dire condition already do this as much as possible & the majority don’t recover. But that’s not “positive” so I guess it has no place here.
@@SoundsInstinctive it's a condition with very little scientific explanation what do you want them to do invent some miracle drug and start injecting it lol?
Strip back your diet to an elimination diet ie stick to clean red meat fatty as possible, not just muscle meat, include offal. Clean as in grass fed for life animals not fed on grains, also water and apple cider vinegar. This will reset the body and help the mitochondria to heal.
I Came across a lot of people that didn't benefit ftom her protocol. I tried her diet and supplement regime and I crashed so hard I had to recover again for 2 months. She is not backing up her theory with results.
If you read validated recovery results produced by ME Assoc London, you will find that it is not the norm for ppl not to recover and only small percentage remain Ill over long,period of time. Recovery can be helped by good diet and being sensible about exercising. Take rest with pinch of salt. Some are making lot money with dubious “cures”.
Go careful there with AW aka Medical Medium. Sorry but there are many people who have been hurt on his protocols. Me being one of them. He's another 'one-size-fits-all', which always screams alarm bells at me now. What he prophesizes is based on a belief system. There is very little science behind what he says and the science behind what he does say can be found on the internet anyway, it's not new information like he claims.
@@hea7055 Anthony William is absolutely NOT one size fits all. He conveys various protocols for various health challenges. I have followed his EBV protocol for 7 years and experience amazing healing benefits. A long list of symptoms due to decades of ME/CFS and more is gone. In my truth science is absolutely NOT sole approach to health. Then millions of people suffering from health issues would be cured. I observe so many people receiving health care based on scientific health research challenged with new symptoms and illnesses as the initial symptoms were dulled with pharmaceuticals and/or removed with surgery. I know that Anthony William is spot on that human beings are full of toxins and viruses. In addition full healing oftentimes requires to tend to emotional and mental healing. Anthony William includes some great information in this regard as well.
Anyone else feel exhausted after watching/listening?! She didn't really get the brain-training Q, did she? very reductive / mechanistic, almost old-school...the sort of advice I used to get from GPs decades ago. Shame really, as so much new research being done with ANS resetting.
I followed her complete regime. I improved, but did not completely recover after over a year. I think she's as good as you'll get with the expertise in this field, but she doesn't have all the answers.
I believe I know exactly what the reason for CFS is. HPA AXIS DYSFUNCTION. OR, "SUBCLINICAL" HPA DYSFUNCTION. I HAVE VERY SUBSTANTIAL, LEGITIMATE, SERIOUS, REASONS FOR ALLEGING THIS.
Dr Myhill is currently suspended and has been suspended before… While that doesn’t mean she doesn’t have a lot of insight to share I genuinely feel Raelen that it would be pertinent to mention someone introduced as ”Doctor” is actually currently suspended - especially because she was suspended for giving advice that could cause “serious harm” - quote from the medical review board Quick edit as I just did an up to date search: Sarah’s medical ban has been extended by another year as she’s still considered a threat to patient safety.
It may be worth keeping in mind that those who depart from 'mainstream' medicine are often sacked, black-balled or suspended. Frequently, there is less income for drug companies by the likes of Sarah Myhill. This makes them a threat to the pharmaceutical income stream. A classic example is Dr. Andrew Wakefield. I am much less inclined to go along with so-called conspiracy theories these days, but if it looks like a duck...etc.
What about glucos? the brain is made of glucogen and dyes if it doesn't get enough glucos? How is it possible that a doctore recommends cutting out glucos from good sources such as fruit and vegetalbes such as sweet potatoes and potatoes. The liver as she correctly tells us needs a lot of energy. The liver needs glucos so that it can keep it to send to the heart and brain. Remember the brain dyes without glucos.
Do you have deathlike fatigue or just pain? I had fibromyalgia for decades with out needing meds. Long covaids with ME/CFS? You literally don't have the energy to inflate your lungs, think a word, speak a word, complete loss of memory...
That is why I love homeopathy, because it is root cause analysis, not treating only the symptoms Thank you for this interview. Still the conventional medicine is not up to date with this.
With the greatest respect to Dr Myhill but I doubt she visited a concentration camp. I'm from Germany and can tell you from all I know from my grandfather, education, documentaries and the knowledge I gained from visiting these horrible places: the NAZIs killed people who got ill, who were disabled or just unlucky to stand in front of a SS a...hole.. It wasn't the mind and the feeling that they can control their destiny. It's so disrespectful to say this and I hesitate to say but that's what this channel is all about: giving you the illusion that you have control over your body, your future and almost everything if you just do A or B. I'm sorry but that is so delusional and is like a religion - a mind calmer. I'm sorry, but this statement is just not ok!
It is not negativity. It is a fact. People recover on different diets. And most people cannot even tolerate any type of supplement. I cannot for example.
Urgh. This interview is a bit gut-wrenching to me. Following this strict diet is massively stressing for the nervous system and for the Type A personality structures (and expensive as hell). Also, as has been said before, the mitochondria dysfunction is a symptom, not the root cause. It is a consequence of the cell-danger-response, a cell response that the autonomic nervous system can initiate when it perceives danger.
Oh dear, no. I have tried supplements- they make me worse. Even liquid supplements. As for the keto diet- i was collapsing even more. Personally, I think M.E. is connected to Electromagnetic Hypersensitivity. I feel better after walking barefoot on wooden floorboards - earthing
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This is so true regarding the production of lactic acid when we don't pace appropriately. I learned this after pushing myself to get to a doctor's appointment, and ended up in the ER with acute lactic acidosis. This was very scary, but an excellent lesson that my body's metabolism was not producing energy efficiently. And no amount of motivation or determination is going to outrun that fact.
I really appreciate Dr Myhill who has more knowledge of ME than any mainstream (trained in mainstream medicine at least) doctors I know of in the UK. However, I think she concentrates too much on diet. I am pleased that she mentions vegetarians and vegans here as in the past she has spoken a lot about eating meat,something that would cause me further stress if I had to eat it. I know many people with ME having helped to run our local group for years and only one person recovered by changing his diet - in his case it was the Candida diet. So many people now seem to be recovering from brain retraining techniques so that's where I'm personally focusing my efforts.
I think she over emphasises diet, also
I think it's a combination of many things. Trauma, stress and ANS dysregulation play a massive role, as does crappy detox pathways and a schizophrenic immune system. Holistic approaches addressing all of these work best. Supplements are the icing on the cake. Most of the cfs community are the most studious, intuitive and intelligent people I know, they don't miss a beat. I do like Sarah and her philosophies and I am sure it works for some but for many we have to dig a lot Deeper.I personally had the greatest success sorting out detoxification and addressing ANS dysregulation.
Props to Raelan for getting on such a guest who really drives conversations.
Interested in hearing your detoxification strategy?
@@notrend nothing ground breaking, just the basics. Saunas, various detox support supplements and lots of green juices. It's been slow and steady over a few years.
I am interested to here how did you approach AND dysregulation?
@@dankamistovic1337 I did the CFS school course, it was really helpful.
I'm in no way affiliated with them but I highly recommend the course for those who are interested in learning how to regulate the nervous system.
@@djbb7079
Is it only online course (CFS) n may I ask how much is it ?!
Greatly appreciated 🙏
Great interview Raelan! Dr. Myhill clearly cares and has done so much to raise awareness and help people with ME/CFS get diagnosed and treated. I personally wish I wasn't so focused on the labels when I was searching for answers on the internet, because at the end of the day the way out is similar. I guess I had a dozen of them, but the body doesn't know labels. Hindsight is 20/20. Keeping my blood sugar stable and supporting my mitochondria was helpful. I realize I ate very similarly to Dr. Myhill's protocol (didn't do some of the supplements), which helped me for a while. But yeah diet isn't one-sized fits all -- many don't do well with keto, while some thrive on it. I wonder if it has to do with the organs that are affected. Now I eat a lot, lot more varied diet (when before I wouldn't even look at a grain). I think reducing all sources of stress and all the mind-body, brain rewiring, nervous system work to build autonomic nervous system resilience was more essential for me -- though my strict diet was helpful for me in the first 1-2 years.
💕
I have been following Dr myhills protocol for nearly three years and improved! Her aproach is amazing and she is without hesitation a true hero. Its all an energy equation in My wiev. Surely ANS and stress plays a big part as well. But as she says, IF you stick to the plan it takes you a long way.
I haven't seen very many recoveries mentioning Myhill. To be honest. I bet it can help but have my doubts.
I'm so thankful I've found this video! I was starting to lose my way but Dr. My Hill is inspirational and also is very open to talk to what she does rather than keeeping it as a "secret recipe"!
Also thanks to Raelan for asking interesting questions!
I love the passion and energy of Dr. Myhill. That's a lot of information to digest, so to speak. I wonder if there are studies and statistics that back up the diet she recommends. It seems that everyone has their own theory--and, often, diet--that they claim helps this illness. I've tried various diets, and nothing has made a difference, with one big exception. When I first got ill, eating a lot of protein definitely helped. But as time went on, it stopped having an effect. Now, I'm mostly on a Mediterranean diet, which is largely plant based. What's helped my ME is mindfulness meditation, developing an attitude of acceptance and gratitude, pacing and rest, and taking Abilify. Also, possibly, just the passage of time. It seems like there are many different paths to better health with ME. One size does not fit all.
For me, HBOT for 80 sessions and ivermectin helped, along with the HIV medication (used for long covid), but then EBOO (filtering the blood, ozone, IV peroxide) but then Methylene Blue and NAD+! Yes, no one side fits all -- correct!
I have tried many diets and eat healthy food, to no avail too!
@@Jennifer-gr7hn where did you get eboo done at any luck with vitamin infusion s
The most important thing about the Paleo/Ketogenic diet is the removal of the carbohydrates but there are factors in these diets that do not work for us because we have developed food intolerances to many of the foods in the in that style of diet. Likewise we can develop an intolerance to various, if not all, foods in the vegetarian diet. The reason for this is that ALL vegetation has a built in self-defence mechanism such as oxalaytes. salicicylates and lectins because we have lost the enzymes which process these chemicals. It seems to me that the longer we have had this condition the more likely we are likely to develop these food Intolerances. P.S. I have ME/CFS and I have these Intolerances, also I think this is one of the best interviews I have seen, well done Dr Myhill (I do have your book).
I applaud Dr. Myhill's passion and commitment to helping people with CFS and this is a mostly good information from Myhill in the interview. I am very familiar with Myhill's work as I followed her on RUclips four years ago, purchased and read her book, and implemented all of her healing strategies. It was a step in the right direction, but it didn't get me to a full recovery because I was still getting tripped up with ongoing gut dysfunction and a brain that needed retraining. My gut dysfunction was severe in the depths of my illness, however. The worst of the worst. She is on track with a number of things with the cause of this illness, such as emotional issues, the energy leak caused by an overactive immune system and leaky gut, poor mitocondrial function, a fermenting gut, the dangers of processed fats, seed oils, addictive eating of processed sugars but misses, or does not emphasize, on some points such as the need to entrain the circadian clock, the importance of light exposure and problems with nuts and vegetables and fiber for someone with a leaky gut. Further, I don't find her supplement recommendations all that necessary with an quality animal based diet. Magnesium is an exception. She is overly fixated on ketones and the ketogenic diet though I won't fuss too much on this point because what she recommends is a not a classical ketogenic diet and will not raise circulating ketones in anyone much at all. I thought it was great that she highlighted the importance of having meaning and purpose, citing Viktor Frankl, but when asked about brain retraining I don't get the feeling that she understands or appreciates all it's methods and nuances. Finally, I don't find her distinction between CFS and ME all that instructive or accurate. I would bet that anyone in her practice diagnosed with CFS under her criteria and whatever labs she uses still has problems with underlying inflammation. I understand that this interview was only 50 minutes long and to get into the real nitty-gritty on many things can take hours upon hours, even days upon days of discussion. Thank you for sharing this interview Raelen.
I agree with you on many aspects. It struck me as odd to promote a keto diet that relies on Beta oxidation of fats in mitochondria when you assume these same mitochondria are failing. It would make more sense to rely on starch and sugars for glucose oxidation in the cytoplasm. This is more in line with the Pro Metabolic Diet. And while I agree with Myhill getting the mitochondria going again to get energized to face taks ahead, she is underestimating the deeply rooted effects of chronic hyper vigilant stress mode and a hyper sensitive nervous system due to adverse live experiences. I applaud you for you animal based diet, please let us all stay away from idiotic plant based notions by Ornish that will have us malnourished in no time. All the best, Gerlach Sven
What has helped you bevillenze? I’m struggling any help appreciated🙂
Do u recommend any other doctors or health practitioners for cfs to follow?
Very well said!
This was a great listen! Thank you very much for demonstrating that there are still people and doctors who think systematically 🙏
Two legends! I love you both so very much. Thank you for all of the insight and encouragement!!!
I would be so relieved to hear a doctor say, look we don’t understand what causes CFS but I have protocols that have helped many people
I followed dr myhills protocol many years ago. A lot of expensive supplements resulting in very colourful and expensive urine. But zero improvement. Having been a cfs sufferer for 40 years i am now absolutely 100 per cent certain that in most cases, it is an autonomic nervous system dysfunction. However, having been keto for two years, my psoriasis is 90 per cent gone , and i never get low blood sugar crashes anymore. My weight has also stabilised within perfect range. I have never met , or read, or seen a video with anyone who has recovered using dr myhills protocol.. the two supplements she recommends that i do agree with however, are vit D and k.
thank you for sharing.
Agree with your ANS conclusion. So I can think of 3 off the top of my head who recovered and used Dr. Myhill's diet/supplement protocol. Pamela Rose did Sarah Myhill's protocol (on Raelan's channel - and my website), so did Katie (the one in the trucker hat - she didn't want to reveal her last name for work reasons) on my site and another Katie (on Raelan's channel 2 years ago when she was pregnant) did AIP, which is similar. But for all 3 it was a component and they did other stuff to fully heal. 100% agree about the ANS dysfunction. I think often times things work synergistically. If someone is in an extreme fight-or-flight state, I don't think any supplement could be digested. And I don't think any diet is a cure if one's nervous system is not operating optimally. It sounds like keto is working for you now for your other stuff, which is great. I also know people who changed their diet over time like myself at the different stages of their health. And people who found plant based better. (Sidetone: I'm pretty sure Dr. Myhill also has a lot of helpful material about pacing on her website and book. It's been a while since I looked at them, but I had a neighbor show them to me.)
@@HealwithLiz hello again liz ! Thanks for your detailed and thoughtful reply . I think supplements at right stage along with other protocols can support the body. But the reason they are lacking is their system is in a constant state of underlying fear and unease affecting every system in body. Unfortunately, sometimes being told that they are deficient in this, and deficient in that, and their mitochondria are deficient etc etc. This can make people feel more broken and frightened, and pouring more supplements into system is like trying to fill up a bucket which is full of holes. Until people feel safe (or safer) and more confident , then healing is an uphill struggle. God, the money i wasted on supplements back in day !. Kind regards to you.
@More Lime wow ! I was thinking of doing daniel's programme. If it helps you , please let me know.
I had constant racing heart palpitations for no reason. I used to wake up with them, get them from any slight adrenaline or just randomly throughout the day every day. Doctors said it was anxiety of course but the second I started taking magnesium supplements they went away and never came back. Not once in 6 years now unless I stop taking the magnesium supplement. I get plenty of magnesium from my diet but for some reason I depend on supplemented magnesium. No other supplement seems to do anything for me so I can relate to wasting thousands of pounds down the toilet.
following myhill's protocol oct2018, I had SOOO many health improvements it was unreal!
after 3 months; My skin was clear and itchy-free, no spots, no teeth pain, no brainfog, i had so much energy i felt i was bouncing off walls and went from being bedridden 98% and at the end of month 3 did a 5mile walk! I felt i gained an extra ten IQ points compared to pre ME/CFS era, My periods became regular and pain-free for 1st time in my life!
Christmas happened and i havent successfully gotten rid of my sugar addiction since XD
The biggest thing is that Myhill doesnt really focus enough or rather doesnt share enough info about the emotional/brain rewiring angle. Usually because in her success stories, as with many of Dan nueffer's vids of 'spontaneous recovery' that dont follow the ANSrewire blueprint, Many people end up rewiring their own brains naturally en route as their lives expand and they interact in the world again.
but to be fair, Unless you know the specifics, It is very difficult to DIY brain rewiring without therapy.
For instance, I needed a therapist to make me realise i was unusually harsh n critical on myself (i thought it was normal)
I didnt need therapy to stop telling my self i was ugly, once i had internalised the previous lesson
3 weeks ago, my therapist taught me i was using the word 'incompetent' incorrectly, using it when i meant 'i feel useless and pathetic from being avoidant for 'x' reasons. This has given me agency and the power of choice and it is a distinction that neither i nor my loved ones had been able to see.
So while brain retraining programmes ARE awesome, they too are not the whole answer if you are limiting yourself in your thinking, word choices and world beliefs.
Psychology is not what Myhill studied. I think it is unfair to expect her to disseminate information that has nothing to do with what she is trained in, the biological health systems
That's really interesting Kim. How do you find a therapist like the one you're seeing?
@@hea7055 i went on the websote for uk registry of psychotherapists (vrs counsellers) and i found one that has trauma expertise. Ive been working with her for nearly 2 years now. (theres a handful of them, so 1st i had to find the best one XD It did take a few weeks of research)
I have also done an intense course of CBT with the NHS and that was what gave me the insight into my 'self-bullying' and taught me some useful strategies that worked very well with ANSrewire.
Because i have 'micro-traumas' from age 4-35, ive wanted more indepth therapy. Luckily, my nan pays for me to have 2x/month therapy, else i wouldnt be able to afford it and neither could my mum help me out
@@kimwarburton8490 thank you for your reply. It's interesting and helpful.
@@hea7055 no worries, glad to assist :)
Could you please share what you did , what supplements and what steps you took feom dr myhills protocoll?
die you also have that terrible flu like feeling and did it go away?
Thanks to all both for a fascinating conversation - really appreciate all you both do to help xxx
💓💓💓
I thinking tackling the ANS and avoiding crashes by frequent rest breaks is the way to go. I think a huge stress to the body like and infection or event triggers the body and it stays switched on. I believe doing the above things will at least improve symptoms with the possibility for a full recovery. I also believe it's important to tackle it head on earlier instead of trying to push through. I think thats why we see people recover most often in the first 2 years of having symptoms.
It's almost certainly viral. Driving an abnormal immune response, in turn driving an abnormal metabolism. What Dr Myhill suggests could potentially take stressor of the body. It won't be a cure, but a treatment that could give big benefits for some. It's well documented that gut microbiome is out of whack in CFS. Which in itself can drive many symptoms. If our immune system is unable to maintain an healthy balance due to a ongoing viral infection (gut, brain, CSF) then we must support it by eating correctly.
I still feel like it’s the ANS malfunctioning. Cell danger response and dorsal vagal brake stuck on. Maybe diet and supplements help a little but people recover without these. Addressing developmental trauma and personality patterns and processing emotions goes a long way.
Its true, most people cannot even tolerate supplements or anything synthetic. A lot of people feel also bad on the keto or paleo diet. Not all people react to gluten or diary.
yes i agree x all the lifestyle stuff supports your body while it’s healing but addressing the ANS dysregulation seems to be key x i dont believe i have cfs because i eat dairy, dont take a certain supplement or dont meditate enough, i have it because i went though several big life stresses while already dealing with chronic anxiety and i didnt heed the warning signs x i do get that we have different triggers but i believe whatever that is the body is stuck in a fear state
@@seffie4363 that is literally the bottom line... all of the physical manifestations are the result.
@@seffie4363 I have long covid. I swear you've described what I'm going through piece by piece
@@Rebelconformist82 sorry to hear you have long covid. look at the youtube channels i suggested on one of my other replies, imo miguel bautista has one of the best understanding of what this is and how to recover x covid may have been the trigger for you but you also need to think what was going on in your life 2-3 years before you got covid, sometimes its the last straw. good luck in your recovery and know that it is possible 👍
I think that a lot of abnormalities including mitochondrial are issues that are the result of chronic infection. It would be interesting to interview researchers on cell danger response theory
1. ketogenic diet
2. magnesium 300 mg
3. vit D 10000 IU
4. co - enzyme Q10 100 mg
5. acetyl el carnitine 500 mg- 1 g
6. vit B3 1500 mg
This is everything we are looking for.... thank you.
How in the world are you supposed to take 1500mg of niacin? I can barely take 50mg without being completely flushed.
@@notrend taking it in the form niacinamide doesn't cause flushes apparently.
@@notrend build up over weeks
Been doing all this for years with no improvement
OMG! I have never clicked so fast on a video - what a collab!! Thank you for this.
I've had this condition since 1991. Been down so many paths from those professing to understand this disease. Sorry to sound so skeptical, but I've tried everything and many times over. I've spent so much money and my life has been completely destroyed. It would certainly help if this disease was being researched in the least
Hang in there 🙏
Jamie, I'm so so so sorry to hear that you've been dealing with this for so long. I hope you find all your puzzles pieces and can finally put this all behind you soon ❤️
Have you tried hyperbaric chamber, EBOO blood filtering? Methylene Blue and NAD+
Have you heard of Toby Morrison? He has a new interesting approach. CFS / ME health foundation.
I hear you, my life has also been destroyed. But I’m still hopeful things are getting better
I would be curious how many full recoveries she has seen with her advice. It seems very rare that someone diets or supplements their way out of this.
Not saying diet isn't important.
Keeping a Stable Blood Sugar is one of the most important Considerations
@@avalonmist254 I think it is one small piece. A symptom. One of about a hundred.
Anything to decrease the Stress on the body...this Disease sucks I've had it for 17 years and I am 62...
This is also a Progressive Illness which is gets worse over time...I have felt well again on and off twice this year for a few months at a time...then a tooth was pulled and been in bed for 9 weeks. Surely the Muscle Wasting has not helped me however I have had my success with CSF Health videos...if I can feel better anyone can ! 🌱
I totally agree.
@@avalonmist254 not true! I believed that too and its BS.
Dr Myhill used to be my grandparents GP when she worked for the NHS and my parents took my sister to see her as a small child when she started out in private practice and she completely transformed my sisters health so I have a lot of time for her in some respects, that being said, Dr Myhill preaches some really dangerous anti-vaccine rhetoric and alternative and unproven approaches to tackling respiratory viruses including Covid. PK diet made me very unwell and like you say yourself often Raelan, there is no one size fits all approach when it comes to diet. She is very unsympathetic about this protocol and never talks about how dangerous it is for some people to follow such restrictive regimes, especially those with histories of disordered eating. Also perfectionism is the enemy of recovery, and this is an incredibly strict way of eating that's bound to inspire perfectionism in folks with type A personalities, which many of us do! I definitely resonate more with gentler and more holistic approaches, but everyone is different.
Full with her on vaccines check out what Vax doing in Swedish reaserach cells are dividing in liver Pfizer vaccine
Love all of what you said, minus the dangerous anti-vaccine "rhetoric." And the "unproven" approaches to covid? Funny that I and my seem saved thousand of lives. When it was my time to get sick, I had no access to care and now longhauler, but from start to finish, your comment was great, especially with the type A personalities.....the strict diets on top of what I had to do already for the diabetes and the kidney stones, so it's very stressful to try to do it all right!! I do my best, but it's overwhelming!!!
Teetanus.vaccine brought on my muscle pain I had caf prior but bought more pain do you have hypimobility see rccx genes theory my father has CFS to
I’m allergic to dairy and avoid it on a daily basis. This improves my symptoms of ME.
A doctor that understands how a car actually works. Pretty amazing❤❤❤!
I respect Dr Sarah Myhill for thinking outside the box and actually trying to help ME/CFS patients... but her protocol made me so much worse. Brain retraining saved me.
Poor energy output from the mitochondria is a SYMPTOM, it's not a root cause. Why aren't the mitochondria working effectively? The cell danger response, which is a stress response. The nervous system is stuck in emergency mode. Retraining the nervous system is the answer for most people.
Which brain re training?
How do you know it’s brain retraining? Everyone keeps saying this but are we basing our opinions based on what we watch on RUclips ?
@@hea7055 If you put even a little bit of effort into CFS research on RUclips, you will discover Nervous system issues, brain training. So sounds like you haven't looked much
Yeah I agree with you. The brain can cause all of the symptoms we face. I think one of the things that reinforces this is literally Raelen's channel - I just couldn't ignore the fact the very vast majority of the recovery stories involve brain training related methods. I fully recovered using brain training and it was the first time it all made sense.
Well for me a non-dairy keto diet was a game changer after suffering with ME for 27 years without brain rewiring. Haven't had a crash (bedridden for days) in 2 1/2 years.
Sarah, isn’t a doctor with the UK NHS any more as she was stopped from practicing by the BMA.
She talks a good game and uses the same simple examples such as the car engine example over and over.
I tried her regime of Keto with supplements and achieved no improvement whatsoever.
It’s a good point that she has been running her private practice for a long time and there does not appear to be any client of hers that has taken to RUclips to herald their health improvement or recovery using her techniques. I became concerned about the amount of red meat I was consuming on the Keto diet.
The way Sarah comes across is very awkward as she doesn’t show much social awareness regarding the to and fro of a balanced conversation. I believe this is another clue regarding her unconscious MO. Sarah appears to me to be intellectually arrogant that she is absolutely right and there is little or no scope for entertaining other thoughts and ideas regarding ME and CFS improvement strategies.
Her disdain of doctors and medical authorities is quite right. It is appalling the way the medical profession have dealt with this illness to date. Truly hapless.
Having suffered from CFS for over 30 years my own feeling is that diet has nothing to do with recovery. In my case my primal brain has become stuck in fright and flight mode and my body is applying the brakes via poor energy production and delivery, brain fog, heart palpitations, hypertension- basically causing chaos as it has lost trust in my ability to keep me ‘safe’.
I will be looking into different approaches to calming my stuck nervous system naturally and recoding my misguided primal brain. Easier said than done. I’m very suspicious of the vendors of CFS recovery sales people.
Ditto Paul H. I agree with everything you said. 32 years for me. I do think diet plays a role but it's not a one-size-fits-all situation. eg. I have discovered I'm sensitive to high oxalates. I have taken some of the supplements she recommends and they didn't make a blind bit of difference.
I am trying to cut down on processed foods however.
You nailed it. I would add that the vast majority of recoveries are in people who addressed their life long stress and the nervous system being in 4 alarm fire mode.
Although I agree with you there is 1 person on RUclips who is doing her diet and supplements, is she close to cured no but no longer bed bound but she does go in and out of crashes it appears.I don't believe Keto is for everyone especially women. Diet can make a difference but not necessarily enough for ME/CFS. Obviously this depends on the starting point, if a person lived on fast food , any kind of diet that would have an element of eliminating processed food and common allergies it would probably make a difference for anyone sick or not sick. I don't like the strong focus on diet, it is kind of like the Dr Wahls protocol for MS where in the MS forums there are so few people ( if any) having success.
Paul H - i get that you’re wary of people selling cfs recovery programmes even though in my experience some are genuine x if you’re looking at different aporoaches i strongly suggest you watch Dan Buglio, The Pain PT Jim Prussack and Miguel Bautista x they all offer a paid service and Miguel has a programme but you can pick up alot just watching their videos x i watch Jim or Dan everyday as its like having a coach helping to keep me on track-they both do the TMS approach but in an easy to understand way x Miguel has a lot of free content on his channel x i am making good progress in my recovery following their advice and approach x good luck to you 👍
I agree
Another great interview. I really enjoyed listening. A lot of great information!
Way to Go Raelen I absolutely Love your Guest...So Excited!!!🌠
Thanks
Much appreciated, John! 🧡 🧡
Thank you. I was diagnosed with Cfs and then suddenly it ME/CFS and it is very clear they are not to be lumped together as the same thing
ME & CFS are the same conditions!! Dr Myhills very expensive protocol did absolutely nothing for me after many years & her strong focus on her paleo keto diet only suits some people! in all my time over years in healing & recovery groups, pages etc I haven’t seen anyone who has fully recovered from the Myhill protocol, some have some benefit from mito supplements, & her diet but it’s only an ongoing bandaid treatment, what is causing the mito dysfunction …. autonomic nervous system dysregulation! So many people recover fully without taking any of her rec supplements or her strict keto diet!! So what does that say?? I spoke with someone recently who has been following Myhills full protocol for 8 years, 8 years & is not any better, but is still doing it ?? now searching out brain retraining!
You are right. It is a nervous system issues. Not mitochondria, not candida, not adrenals ....... all thoses things are results of an overwhelmed nervous system not the cause of CFS.
I have CFS. I very strongly feel that the origin might have been a dysfunction to deal with some stress properly, but it is for me caused by ignoring the results and not dealing with life challenges in particular all the childhood trauma I have had which has come back to bite me in the bum so to speak...so until I deal with that I will still suffer from it
What is everyone basing their opinions on? All the RUclips stories from other programs? Or support groups?
Autism.adhd cause for alot see Dr lenz
Wow! This is fascinating, thank you for Dr Myhill for your explanation and for the helpful questions Raelan
ME and CFS as separate conditions makes sense to me. I have crippling brain-fog almost every day, sometimes driving me to tears, non-restorative sleep and frequent physical fatigue. This has been for more than three years now and came on because of the stress of insomnia. I don't feel as though I ever get post-exertional malaise. This latter condition is now being said to be a definite symptom of ME. Loads of blood tests and an abdominal ultrasound all returned normal. I don't think my GP knows what's wrong.
This was the best video on CFS.
I have found Dr Myhill's books interesting to read. I feel the focus on mitochondria is helpful but narrow and doesn't take into account the research that shows more varied and whole body dysfunctions, e.g. cardiac preload failure identified by Harvard or vascular autoimmunity by Scheibenbogen and Wirth.That said, Myhill is certainly a champion for ME/CFS patients.
Also regarding the Frankl analogy at the beginning (and I'm criticising Frankl here and not Myhill), in general I find the suggestion that people with a better attitude were more likely to survive the holocaust quite galling. In the face of the threat of being gassed or shot at any given moment, a positive attitude is unlikely to save you. It might of course help you to cope better but, as a random number, you'd be just as likely a target as anyone else.
That’s not what he meant. Please his words in the full context and spirit. Read his book
I heard from a gulag survivor that it was all types of illnesses to wipe out those who had no hope. However i have reasons to believe that this is influencing the hormone system, and therefore is a physical thing again in the end. I heard Huberman ecplain a mouse experiment pointing in the same direction.
It seems it is absolutely important to work on psychological stuff as well, i can recommend hypnosis (again backed by Huberman, i think related to trauma therapy podcasts) and some hypnosis stuff is free on youtube. Good luck out there!
Could they ask the people who died? I am sure they had just as many reasons to live. The survivor I met, would eat the food off your plate after you were done eating. I am sure those who survived probably had to steal food from others so they wouldn’t starve to death.
Interesting video. I’m not convinced that fibro and chronic fatigue r separate disorders. I’ve had times where I was higher in fatigue. Times I was higher in pain. And times I’m high in both fatigue and pain. I think they’re symptoms of the same disorder that ebb and flow just like the multitude of other symptoms.
I concur!
Thank you for this interview. It helps explain the difference between these two awful diseases. 🌸💕🌸
This doctor has a lot of theories and well they are theories. The precious thing is that she talks as an expert on ME and CFS.
This was the first guidance I followed and after 4 weeks felt suicidal I was feeling so ill and still hadn't got into ketosis .I took all the advised supplements etc.
I am the same. I tried a very low carb/keto diet and felt like I was actually going to die within about 3 days. My muscles were so weak I couldn't stand and my heart was acting strange. So I ate a banana and felt better almost instantly. I am terrified to try again. Although I don't know why, it seems that some of us just CAN'T get into ketosis.
I think there are many many body type of people. I also never been able to go low carbs. I felt superweak, and in my life when I had good life, i always in the moment when I had good amount of carbs.
@@Laura_B__ this is likely because you weren't having enough electrolytes! Especially if potassium made you feel better. Electrolytes have to be managed very carefully during ketosis. Especially in the first stages.
@@Claire-ux2qu i think it was not successful for her
I also would recommend caution with the ketogenic diet (especially for women). I was on the ketogenic diet and it was actually a trigger for my first onset of becoming unwell. I lost my periods for a while and it really messed with my hormones. Everyone's body is very different 😊 xx
Amazing interview with this Dr ❤
I'm relatively new to CFS and still unclear if I have it separately or due to my Sjogren's or / and myotosis. When I asked my rheumatologist if CFS was the same as ME, she said no, but Fibromyalgia is the same. It's so hard to get the same answer from all 'experts'.
I got very excited in trying Dr Myhill's protocol as I have heard a lot about mitochondria. I have never been keen on the keto diet but willing to do anything to gain my old energy back and have no brain fog, but after reading most of the comments I am disheartened to hear so many viewers tried this method with no avail. Still, some food for thought. I especially found the liver using up all that energy interesting.. Also, I'd not heard about ANS resetting. Will go check that out now too!
Yeah definitely look into calming one-self/the nervous system. That seems key to me. I will soon do a course in Transcendental meditation which I really hope will help with this.
I have followed the protocol and it works. Of course: it is not for everyone. It treats problems of the body, for the mind we would have to look for other specialists. You have to have a very clear mind and willpower to follow the diet without doing traps until you recover. The Western diet greatly unbalances our intestinal microbiota without us being fully aware of how much damage we carry. And they are usually not solved with 2 months of correct diet. At first, stopping eating the usual diet implies a very strong impact and the sensations are really unpleasant but they improve and you get better and better. His roadmap is sensible and useful for people who do not need constant support. We are not all the same
Makes sense that ME and CFS are different in the way the Dr. Describes.
thanks for making this video i'm a fan of Dr Sarah Myhill
Hope gives strength 💖🙏🏽
Million dollar question for Dr Myhill- If there are so many immune problems involved, mythochondria, energy delivery, etc in CFS/ME , how is it possible people get completely cured in 3 days with brain retraining programs?
Agreed... or at least addressing the nervous system from a mind-body approach. Seems like the vast majority of recoveries occur once people address those things.
I do think me/cfs is an umbrella term for a condition where people have the same/similar symptoms but different triggers so what helps one person to recover wont necessarily help another because the stressor on the human body has a different root cause x i have recovered before using brain training techniques and massively reducing stress/anxiety etc x other than a healthy-ish lifestyle i didnt take loads of supplements or cut any food groups out x this is why recovery can be so confusing for people and its so time consuming and costly trying to find what works for you x TMS approach is currently helping my recovery x i respect Dr Myhill and her work but we are all different i think 🤷♀️
I don't think recovery happens in 3 days. I've been doing brain retraining for over 6 months and I'm the same. The mind is much stronger than we think. For what I've read the mitochondria can't function properly when th body is in high alert, which will make sense that calming the sympathetic nervous system will help solve the rest like a cascade. Everything is related
So what would you say are causing the symptoms, if not those things?
Even if you buy the brain retraining hypothesis (which I do), most of the programs agree that the symptoms are real, in the body, caused by activation of the immune system, NS, mitochondria dysfunction etc. The brain is signaling these systems to activate due to a threat (that's no longer in the body).
@@jonathannelson7584 Correct. First of all I am no doctor, but what I've been reading is that the body is still in fight or flight mode, either due to viral debris or simply false alarm mode. That's high sympathetic activation. Because of that, the body attacks food that we normally can eat (causing MCAS). It also leads to dysautonomia because well, dysautonomia definition is an imbalance in the autonomic nervous system (i.e. balance between sympathetic and parasympathetic nervous system). That constant attack also impairs the pathway for energy leading to the mitochondria being impaired (I think that's where the NAD+ theory lies in). So I feel as a non doctor, that everything is a cascade effect of the hyperactivation of the sympathetic nervous system. That's why I think brain retraining makes sense, yet it takes time. Because the body has to very gradually realized there is no danger and we have to stimulate the parasympathetic part of our nervous system. Again, I'm no doctor, that's what I've gather from seeing interviews or reading
I have tried all the diets in 13 years and done many rounds of changing the diets. For me diet is not the cure. If I eat Keto diet, which means a lot of fats and meats, my body feels very tired to digest them. Carbs are much easier to digest and when you have chronic fatigue, then when less energy goes to digestion then better I feel. I think everybody needs to have their own personal approach and for sure diet alone is not going to heal anybody having cfs/me.
Hi Ari
I would say I agree with you . I’ve been primarily carnivore 19 months & while it did help me get well & off meds , got my mind going even & out of mental illness & misery
It’s starting to feel tiring & heavy now . I certainly don’t want to go back to the way things were .
Do I accept heavy digestion or go back to the other way . I will say it was eating plant based that got me healing & out of bed again , carnivore/ keto got me off most meds 💗
I couldn't agree more!
The paleo-keto diet and 2 or 3 supplements such as magnesium were a complete game changer after 27 yrs of suffering. Crashes totally vanished.
Dr myhill is the bomb
Love and have followed her for years.
Super woman 🧘🏼♂️🧘🏼♂️
I wish you had asked her HOW she explains all the many many recovery stories from people with ME/CFS who didnt make any dietary changes, certainly didn’t go keto & who were taking no mito supplements & who used brain retraining Programmes & PolyVagal based nervous system regulation work to recover! How does she explain that?? She obviously has no understanding or knowledge of Neuroplasticity based Brain Retraining & Nervous System Regulation work & the vagus nerve!
A problem can have multiple solutions. Also, a problem (e.g., ME/CFS) can come in different flavors where some solutions work and others don’t. Life is complicated 😁
I agree with you 100%. Please share if you can, where to seek treatment for ANS or any other treatments for nervous system dysregulation.
Hugely appreciate in advance!
I do wish that Dr Myhill talked more about the neurological issues so many of us have-autonomic, neuropathy, CNS issues like migraines, seizures, etc. But we are so complex, with such a range of issues. After 25 years, my conclusion is to be very grateful to the docs who take us seriously, and who offer helpful tips. Try the tips, and see what works for you, and what doesn’t. Surveys have shown that many of us (and people with immune disorders) are helped by the KP diet. Maybe others of us benefit more from the neurological approaches that you present. I say, thanks to everybody working on help for us! And it’s up to each of us to decide which approaches we want to try.
27 years for me with lots pain symptoms some changed over decades now I no I have heds do you
She discusses this in other videos and interviews. It can be hard to cover something so complex in a short video when answers are usually based on questions asked. Do read her books too when she goes into this further and look at her court cases. As a past medical professionals she is also limited to what she is allowed to say online as it could be seen as giving medical advice when in practice, you look at each case individually.
Hope that helps.
Dr. Myhill says a lot of interesting things but she's always been a diet person and unfortunately the keto diet never worked for me. No all of us are suffering from MCAS.
I have recovered 90% after using the non dairy keto diet and Magnesium, CoQ10 and vitamin D (all things everyone can benefit from and be deficient in). That was after suffering from ME for 27 years!!! (No crashes for 2 1/2 yrs). This Dr knows what she's talking about. I do however believe in the brain rewiring and have begun to put it into practice to take myself to 100% hopefully before long. Everyone can recover!
I found the editing to be off. Dr Myhill was cut off and shut down quickly. Felt offended for her.
All healthy types of diets work when u eliminate sugar pasta alcohol processed foods.
To recover from chronic adrenal fatigue and autoimmune type symptoms, I eliminated all stress, did an anti-inflammatory diet, vitamin and minerals supplementation and drank electrolytes.
Do you havehypomobilty did you have much pain
@sarahberesford4724 no
Fabulous interview, especially differentiating ME and CFS!! That clarity is really necessary in this community. Love her passion for this!
On another note, I have so much to say about diet with my background in Ayurvedic and holistic nutrition that I simply can’t type here. 😂
Where are the testimonials? Her advice sounds good on paper but they don't work.
My belief is that we are highly sensitive people and over time due to stress our adrenal glands become depleted, opening the gateway to viruses I think gut health is so important, if your have leaky gut your not absorbing vital nutrients, I also believe some of us are poisoned, with poor livers,to me this illness is a breakdown of loads of things going wrong with one's body and mind, ie the amygdala.
PLEASE INCLUDE QUESTIONS REGARDING FIBROMYALGIA WITH GUESTS AND PATIENTS WHO'VE HEALED! Hopefully, there are some... I feel I'm doing much better recently after changing my dietandd lifestyle! 👍🏻
This does make sense - I feel like people who got better on plant based diets are almost lucky that those diets did not make them worse, and it was something else that helped them as well as cutting out junk and processed foods. The fermenting stomach she speaks of is SIBO, and many people with ME/CFS and POTS have SIBO. My 11 yo has it and we can't get rid of it. We've cut carbs way down but haven't done paleo/keto....not sure if an 11 yo should do that diet?
I understand the frustration. I grappled with SIBO and managed to overcome it with the support of a brilliant naturopath. The key things were to start taking specific stomach supplements to increase stomach acids needed to breakdown food in my gut more efficiently and take quality probiotics as well as consuming foods that have good bacteria. I removed inflammatory food and eat lots of helpful foods such as coconut oil and leafy greens and bone broth to heal leaky gut. I did not completely remove dairy long term just for a period to help my digestive system some help. When I re-introduced them I only eat raw dairy and organic meats. It’s an investment but it’s well worth it. I am healed and can (but choose not to) eat anything I want now. All the best!
glad you are healed! We're still mostly grain free - just some white rice. She takes a high quality probiotic as my fermented yogurt makes her feel sick. Bone broth also makes her feel sick - everything makes her sick! I buy hormone free chicken....she won't eat much beef. I'm doing all of the dietary stuff....her bloating is way down but I think if she ate a bunch of sugar we'd see that it's all still in there just dormant. @@myrandomrants
Not sure you're still following, but just in case: Do not put your child on such a restrictive diet when they are young. I did it at 12, it excacerbated a growing eating disorder exponentially!
@@tuvamariamartinussen573 thank you yes I was worried about that. She has a totally open diet right now and has finally gained weight and now is upset thinking she's fat. She's 90lbs and 13 yrs old....she was 67lbs a year ago and badly needed to gain weight. We are trying to increase meat but not cut anything out.
@@stephaniew4168 It’s so hard to be young and have illness at the same time. Try to focus not so much on food, more about strengthening her sense of self, of beauty, of strength in the face of adversity, and perhaps posttraumatic growth! Focus on eating to be strong, but don't do a very restrictive diet. Young people are already so concerned about trying to be thin and "perfect". Do stuff together as a family instead!
fantastic interview thankyou!
Im going round in circles, so im heading for the mediteraen diet, without pasta, fish , veg, avoid lactic acid - stay within limits, and build up the parasympathetic, and dr clare weeks book - a 1960s classic is a good read - its about nervous breakdown - but quite relevant, i also use some recovery techniques like athletes do before bed - epsom salts bath then cool gel massage on my leg muscles
Anybody had any good results following that protocol ??
What happened to the Mediterranean diet health benefits ? the problem today is also GMO, spraying pesticides, industrial farming, etc. also the depleted condition of our soils and so on.
Sarah Myhill has been around for a long long time but where are all the recovery stories from people doing her protocol! I haven’t seen any for all this time! The many many recoveries out there are from people who have not taken any mito supplements or followed her very strict diet, or have given up on all those things after many years of trying them! Consider that!
I heard she charges quite a lot and that her treatment is expensive. Also, there are no evidence on how taking high doses of supplements will affect the body in the long run. I have suffered from M.E. for many years and at one point I was bedriden for a year. I now have an almost normal life and have not spent a penny. I believe that trauma caused my illness. Also, I realised I am a hypersensitive person and live my life accordingly. I made changes to diet, got rid of toxic people, have a job I love working from home etc. I am happier now that I was before the illness. There is hope. Keep doing what it feels right for you.
I’ve seen tons of people saying they recovered through diet, keto, supplements or brain retraining. It doesn’t seem to be one single thing that heals people.
How much witamin C is recommended from Sarah? Any specific from (like non-acid?).
I am severely ill. In alot of pain And feeling like I am dying. Watching this video
Has me so overwhelmed I'm
Crying. It's WAY TO COMPLUCATED. At this point I feel like I'd rather die than go through all of this
Work. All these protocols make me sicker.🤕 anyone relate??
Pick one thing to work on and work on it. There r tons of different approaches. Pick something u like and focus on making that part of ur routine
@@rachelk5272 hi Rachel thanks for your reply. I appreciate it.
Sorry I know this is an old comment but just wanted to add that Im so sorry you’re struggling and I know how overwhelming it is trying to recover. I agree with the comment above, just try to focus on one thing at a time and try it and see if it helps in any way. Main thing is not to stress about it as that will worsen symptoms
@@dthompson5234 don't be sorry. I am rewatching now.
It still is overwhelming and I have not_0r=⁶⁶
@@dthompson5234 Please don't be sorry. Thank you so much for replying to me. Yeah, I understand what you're saying and thank you. You're just a very kind person and I appreciate you.
I’m not a fan of Sarah. She leaves absolutely no room for any of the other theories that researchers are studying. Meaning she thinks she has it figured out. That’s very arrogant. And it’s very misleading
Her confidence leads people to believe, like so many other doctors, if you just follow her regimen, you can be fixed. I don’t believe that for a second. There are people who are bedbound being fed by the tube. Who have likely been checked for every imaginable infection. People like the researchers son at the Stanford clinic. You can’t tell me this person doesn’t have a condition that science doesn’t understand.
Lol yeah I love how ppl very severe are not mentioned on this channel. It’s just muh brain retraining recovery etc. ppl living thru excruciating conditions deserve to be championed as much as those who “recover”. Also taking responsibility for recovery is just ego.
Sure u can make better day to day decisions which enable better rest & pacing but ppl who are in a dire condition already do this as much as possible & the majority don’t recover. But that’s not “positive” so I guess it has no place here.
@@SoundsInstinctive it's a condition with very little scientific explanation what do you want them to do invent some miracle drug and start injecting it lol?
Strip back your diet to an elimination diet ie stick to clean red meat fatty as possible, not just muscle meat, include offal. Clean as in grass fed for life animals not fed on grains, also water and apple cider vinegar.
This will reset the body and help the mitochondria to heal.
How would these relate to systemic mast cell disease and symptoms?
I agree with chronic EBV.........
I Came across a lot of people that didn't benefit ftom her protocol. I tried her diet and supplement regime and I crashed so hard I had to recover again for 2 months. She is not backing up her theory with results.
She is no help. CFS is a nervous system issues not what she is claiming. All she is claiming cfs is is actually a results and not a cause.
If you read validated recovery results produced by ME Assoc London, you will find that it is not the norm for ppl not to recover and only small percentage remain Ill over long,period of time. Recovery can be helped by good diet and being sensible about exercising.
Take rest with pinch of salt. Some are making lot money with dubious “cures”.
To Ask which MAGNESIUM you recommend to take
Hi Raelan. I'd love to see you interview Ashok Gupta! could this happen too?
I would love that you interview Anthony William. He has some valuable information about root cause to ME/CFS.
Go careful there with AW aka Medical Medium. Sorry but there are many people who have been hurt on his protocols. Me being one of them. He's another 'one-size-fits-all', which always screams alarm bells at me now. What he prophesizes is based on a belief system. There is very little science behind what he says and the science behind what he does say can be found on the internet anyway, it's not new information like he claims.
@@hea7055 Anthony William is absolutely NOT one size fits all. He conveys various protocols for various health challenges. I have followed his EBV protocol for 7 years and experience amazing healing benefits. A long list of symptoms due to decades of ME/CFS and more is gone. In my truth science is absolutely NOT sole approach to health. Then millions of people suffering from health issues would be cured. I observe so many people receiving health care based on scientific health research challenged with new symptoms and illnesses as the initial symptoms were dulled with pharmaceuticals and/or removed with surgery.
I know that Anthony William is spot on that human beings are full of toxins and viruses.
In addition full healing oftentimes requires to tend to emotional and mental healing. Anthony William includes some great information in this regard as well.
Those who stole food are probably the ones who survived.
Very interesting. Does this doctor have a program for gut healing?
Anyone else feel exhausted after watching/listening?! She didn't really get the brain-training Q, did she? very reductive / mechanistic, almost old-school...the sort of advice I used to get from GPs decades ago. Shame really, as so much new research being done with ANS resetting.
She is hopelessly behind the curve. Things have moved on enormously in mindbody realm in last 10 years.
I've got the feeling that she was saying that belief in the diet calms the nervous system but she fudged the full answer.
She is spectacular 🥰
thank you!
💓💓💓
I followed her complete regime. I improved, but did not completely recover after over a year. I think she's as good as you'll get with the expertise in this field, but she doesn't have all the answers.
I’m so confused is paleo ketogenic diet different to just keto diet or just paleo diet?
I think paleo is not so strict.
I believe I know exactly what the reason for CFS is. HPA AXIS DYSFUNCTION. OR, "SUBCLINICAL" HPA DYSFUNCTION. I HAVE VERY SUBSTANTIAL, LEGITIMATE, SERIOUS, REASONS FOR ALLEGING THIS.
Dr Myhill is currently suspended and has been suspended before… While that doesn’t mean she doesn’t have a lot of insight to share I genuinely feel Raelen that it would be pertinent to mention someone introduced as ”Doctor” is actually currently suspended - especially because she was suspended for giving advice that could cause “serious harm” - quote from the medical review board
Quick edit as I just did an up to date search: Sarah’s medical ban has been extended by another year as she’s still considered a threat to patient safety.
It may be worth keeping in mind that those who depart from 'mainstream' medicine are often sacked, black-balled or suspended. Frequently, there is less income for drug companies by the likes of Sarah Myhill. This makes them a threat to the pharmaceutical income stream. A classic example is Dr. Andrew Wakefield. I am much less inclined to go along with so-called conspiracy theories these days, but if it looks like a duck...etc.
What about glucos? the brain is made of glucogen and dyes if it doesn't get enough glucos? How is it possible that a doctore recommends cutting out glucos from good sources such as fruit and vegetalbes such as sweet potatoes and potatoes. The liver as she correctly tells us needs a lot of energy. The liver needs glucos so that it can keep it to send to the heart and brain. Remember the brain dyes without glucos.
Lol Dr. Mayhill would talk literally forever!
What about fybromyalgia
Do you have deathlike fatigue or just pain? I had fibromyalgia for decades with out needing meds. Long covaids with ME/CFS? You literally don't have the energy to inflate your lungs, think a word, speak a word, complete loss of memory...
@@Jennifer-gr7hn long covid is CFS I had it for decades before it's now more fybromyalgia with fatigue
That is why I love homeopathy, because it is root cause analysis, not treating only the symptoms
Thank you for this interview. Still the conventional medicine is not up
to date with this.
With the greatest respect to Dr Myhill but I doubt she visited a concentration camp. I'm from Germany and can tell you from all I know from my grandfather, education, documentaries and the knowledge I gained from visiting these horrible places: the NAZIs killed people who got ill, who were disabled or just unlucky to stand in front of a SS a...hole.. It wasn't the mind and the feeling that they can control their destiny. It's so disrespectful to say this and I hesitate to say but that's what this channel is all about: giving you the illusion that you have control over your body, your future and almost everything if you just do A or B. I'm sorry but that is so delusional and is like a religion - a mind calmer. I'm sorry, but this statement is just not ok!
I was shocked when she said that, too! It was the last thing I was expecting to hear from her?
Nutrition and gut health are very individual so I don' t feel that any one-size-fits-all approach can be helpful.
There's always gotta be that one person ready to bring the negativtiy!
It is not negativity. It is a fact. People recover on different diets. And most people cannot even tolerate any type of supplement. I cannot for example.
So are genetics!
Urgh. This interview is a bit gut-wrenching to me. Following this strict diet is massively stressing for the nervous system and for the Type A personality structures (and expensive as hell). Also, as has been said before, the mitochondria dysfunction is a symptom, not the root cause. It is a consequence of the cell-danger-response, a cell response that the autonomic nervous system can initiate when it perceives danger.
YES!!
Oh dear, no. I have tried supplements- they make me worse. Even liquid supplements. As for the keto diet- i was collapsing even more. Personally, I think M.E. is connected to Electromagnetic Hypersensitivity. I feel better after walking barefoot on wooden floorboards - earthing
My head is spinning
Literally or metaphorically?can’t be sure anymore. Lmao.
Keto made me ill.....
I cannot eat red meat
Burnout starts it she says realy
nobody knows what the cause of ME/CFS is. Not even Dr Myhill.
Eating meat and suppliments doesnt seem the answer for me aswell. So thank u doc but no thanks....
She's missing the key point, stress
Damn so much misinformation in one video
ahh people just need anti depressants .